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Assessing Path Dependency in Vietnam’s Healthcare Legal Framework: Exploring Public–Private Collaboration in Ho Chi Minh City during the COVID-19 Crisis 评估越南医疗保健法律框架中的路径依赖:探索 COVID-19 危机期间胡志明市的公私合作
IF 1.3 Q3 ETHICS Pub Date : 2024-04-08 DOI: 10.1007/s41649-023-00276-z
Tran Viet Dung, Ngo Nguyen Thao Vy

The COVID-19 pandemic prompted a nudge for public–private cooperation in healthcare to rapidly cope with limited resource. However, Vietnam’s historical reliance on a public healthcare system, combined with a traditional emphasis on socialization in the Polanyian sense, hindered the swift integration of the private sector. This research investigates path dependency in Vietnam’s public health sector, using theories including path dependency, Karl Polanyi’s double movement with legal analysis method to analyze the interplay of historical decisions, and socialist policies in healthcare. Recognizing these institutional and market governance flaws, a deeper understanding of the role of law becomes vital in crafting strategies for a more resilient and sustainable healthcare system in Vietnam. In this article, Ho Chi Minh City is chosen as a case study due to its notable mix of public–private healthcare facilities and its status as a leading area in infection cases during the third COVID-19 wave. The article suggests that there should be a change in the way public and private sectors work together, one that is more in line with market-driven solutions which requires solid legal framework for cooperation beyond merely mobilizing resources.

COVID-19 大流行促使公私部门在医疗保健领域开展合作,以迅速应对有限的资源。然而,越南历史上对公共医疗系统的依赖,加上传统上强调波兰尼意义上的社会化,阻碍了私营部门的迅速整合。本研究调查了越南公共医疗部门的路径依赖,运用路径依赖、卡尔-波兰尼的双重运动和法律分析方法等理论,分析了历史决策与社会主义医疗政策之间的相互作用。认识到这些制度和市场治理缺陷,加深对法律作用的理解对于制定更具弹性和可持续性的越南医疗保健系统战略至关重要。在本文中,胡志明市被选为案例研究对象,因为该市的公私合营医疗机构数量众多,而且在 COVID-19 第三波感染病例中,胡志明市是感染病例的主要地区。文章建议,应改变公共和私营部门的合作方式,使其更符合市场驱动的解决方案,这就要求建立坚实的合作法律框架,而不仅仅是调动资源。
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引用次数: 0
Secondary Use of Health Data for Medical AI: A Cross-Regional Examination of Taiwan and the EU 将健康数据二次用于医疗人工智能:台湾和欧盟的跨区域研究
IF 1.3 Q3 ETHICS Pub Date : 2024-04-06 DOI: 10.1007/s41649-024-00279-4
Chih-hsing Ho

This paper conducts a comparative analysis of data governance mechanisms concerning the secondary use of health data in Taiwan and the European Union (EU). Both regions have adopted distinctive approaches and regulations for utilizing health data beyond primary care, encompassing areas such as medical research and healthcare system enhancement. Through an examination of these models, this study seeks to elucidate the strategies, frameworks, and legal structures employed by Taiwan and the EU to strike a delicate balance between the imperative of data-driven healthcare innovation and the safeguarding of individual privacy rights. This paper examines and compares several key aspects of the secondary use of health data in Taiwan and the EU. These aspects include data governance frameworks, legal and regulatory frameworks, data access and sharing mechanisms, and privacy and security considerations. This comparative exploration offers invaluable insights into the evolving global landscape of health data governance. It provides a deeper understanding of the strategies implemented by these regions to harness the potential of health data while upholding the ethical and legal considerations surrounding its secondary use. The findings aim to inform best practices for responsible and effective health data utilization, particularly in the context of medical AI applications.

本文对台湾和欧盟(EU)有关健康数据二次使用的数据管理机制进行了比较分析。这两个地区都采用了独特的方法和法规来利用初级医疗以外的健康数据,包括医学研究和医疗保健系统改进等领域。通过对这些模式的研究,本研究试图阐明台湾和欧盟所采用的策略、框架和法律结构,以便在数据驱动的医疗创新和保障个人隐私权之间取得微妙的平衡。本文研究并比较了台湾和欧盟二次使用健康数据的几个关键方面。这些方面包括数据治理框架、法律和监管框架、数据访问和共享机制以及隐私和安全考虑因素。这一比较探索为了解不断变化的全球健康数据治理情况提供了宝贵的见解。它让我们更深入地了解了这些地区为利用健康数据的潜力而实施的战略,同时也维护了围绕其二次使用的伦理和法律考虑因素。研究结果旨在为负责任、有效地利用健康数据,特别是在医疗人工智能应用方面的最佳做法提供参考。
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引用次数: 0
A Tempered Rationalism for a Tempered Yuck Factor—Using Disgust in Bioethics 有节制的理性主义促进有节制的 "恶心因子"--在生物伦理学中使用 "恶心 "一词
IF 1.3 Q3 ETHICS Pub Date : 2024-03-28 DOI: 10.1007/s41649-023-00278-x
Konstantin Eckl, Konstantin Deininger

When it comes to invasive manipulation of animals on the biological level, reactions of disgust are common and often influential on people’s moral judgments. As a case in point, the Belgian Blue, a breed of hyper-enhanced cattle which will serve as a case study for the present article, has historically been met with revulsion. Traditionally, in bio- and animal ethics, this ‘yuck factor,’ has been denied any productive role in proper moral justification, since rationalism is still a dominant paradigm in those disciplines. This is not surprising since rationalism offers the fulfilment of certain expectations we have of morality, like universality, intersubjective communicability, and objectivity. Increasingly, however, the preconceptions of rationalism have been brought into question, both through empirical as well as philosophical insights. In this paper, we will explore a way in which researchers who are, accordingly, critical of rationalism, and who wish to take seriously the role disgust plays in the formation of moral judgments when it comes to biological manipulation of animals, can do so without abandoning those virtues of rationalism which make it such an appealing position. We will do so by offering what we call a ‘tempered’ kind of rationalism, that is, one which conceives of rationality in the terms of Mary Midgley, not as distinct from, but as a possible function of, well-ordered emotion.

说到对动物进行生物学层面的侵入性操纵,人们通常会产生厌恶反应,而且这种反应往往会影响人们的道德判断。比利时蓝牛就是一个很好的例子,它是一种超级强化牛,本文将以此为案例进行研究。传统上,在生物伦理学和动物伦理学中,由于理性主义仍是这些学科的主导范式,这种 "憎恶因素 "在适当的道德论证中被剥夺了任何有成效的作用。这并不奇怪,因为理性主义满足了我们对道德的某些期望,如普遍性、主体间的可交流性和客观性。然而,理性主义的先入之见越来越多地受到质疑,既有经验上的,也有哲学上的。在本文中,我们将探讨一种方法,让那些对理性主义持批判态度的研究人员,以及那些希望在对动物进行生物学操纵时认真对待厌恶在道德判断形成过程中所扮演的角色的研究人员,能够在不放弃理性主义那些使其具有吸引力的优点的情况下做到这一点。为此,我们将提出一种我们称之为 "有节制的 "理性主义,即按照玛丽-米德格利(Mary Midgley)的观点来构想理性,这种理性不是有别于秩序井然的情感,而是情感的一种可能功能。
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引用次数: 0
Developing a Framework for Self-regulatory Governance in Healthcare AI Research: Insights from South Korea 制定医疗人工智能研究自律治理框架:韩国的启示
IF 1.3 Q3 ETHICS Pub Date : 2024-03-25 DOI: 10.1007/s41649-024-00281-w
Junhewk Kim, So Yoon Kim, Eun-Ae Kim, Jin-Ah Sim, Yuri Lee, Hannah Kim

This paper elucidates and rationalizes the ethical governance system for healthcare AI research, as outlined in the ‘Research Ethics Guidelines for AI Researchers in Healthcare’ published by the South Korean government in August 2023. In developing the guidelines, a four-phase clinical trial process was expanded to six stages for healthcare AI research: preliminary ethics review (stage 1); creating datasets (stage 2); model development (stage 3); training, validation, and evaluation (stage 4); application (stage 5); and post-deployment monitoring (stage 6). Researchers identified similarities between clinical trials and healthcare AI research, particularly in research subjects, management and regulations, and application of research results. In the step-by-step articulation of ethical requirements, this similarity benefits from a reliable and flexible use of existing research ethics governance resources, research management, and regulatory functions. In contrast to clinical trials, this procedural approach to healthcare AI research governance effectively highlights the distinct characteristics of healthcare AI research in research and development process, evaluation of results, and modifiability of findings. The model exhibits limitations, primarily in its reliance on self-regulation and lack of clear delineation of responsibilities. While formulated through multidisciplinary deliberations, its application in the research field remains untested. To overcome the limitations, the researchers’ ongoing efforts for educating AI researchers and public and the revision of the guidelines are expected to contribute to establish an ethical research governance framework for healthcare AI research in the South Korean context in the future.

本文对韩国政府于 2023 年 8 月发布的《医疗保健领域人工智能研究人员的研究伦理指南》中概述的医疗保健领域人工智能研究伦理治理体系进行了阐释和合理化。在制定指导方针的过程中,将临床试验的四个阶段扩展为医疗人工智能研究的六个阶段:初步伦理审查(第 1 阶段);创建数据集(第 2 阶段);模型开发(第 3 阶段);训练、验证和评估(第 4 阶段);应用(第 5 阶段);以及部署后监控(第 6 阶段)。研究人员发现了临床试验与医疗人工智能研究之间的相似之处,特别是在研究对象、管理和法规以及研究成果的应用方面。在逐步阐明伦理要求方面,这种相似性得益于对现有研究伦理治理资源、研究管理和监管职能的可靠而灵活的利用。与临床试验相比,这种程序化的医疗人工智能研究治理方法有效地突出了医疗人工智能研究在研发过程、结果评估和研究结果可修改性方面的显著特点。该模式存在局限性,主要表现在依赖自我调节和缺乏明确的责任划分。虽然该模式是通过多学科审议制定的,但其在研究领域的应用仍有待检验。为了克服这些局限性,研究人员正在努力对人工智能研究人员和公众进行教育,并对指导方针进行修订,预计这将有助于在未来为韩国的医疗人工智能研究建立一个符合伦理的研究管理框架。
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引用次数: 0
The Law and Ethics of Reproduction: Experiences and Perspectives from Asia 生殖的法律与伦理:亚洲的经验与观点
IF 1.3 Q3 ETHICS Pub Date : 2024-03-25 DOI: 10.1007/s41649-024-00286-5
Graeme T. Laurie
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引用次数: 0
Advancing Bioethical Standards: Charting the Course of the Inaugural Malaysian Paediatric Association Bioethics Task Force 推进生物伦理标准:马来西亚儿科协会首届生物伦理特别工作组的工作规划
IF 1.3 Q3 ETHICS Pub Date : 2024-03-23 DOI: 10.1007/s41649-024-00287-4
Erwin Jiayuan Khoo
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引用次数: 0
Support for the Right to Life among Neonatal Intensive Care Nurses in Korea 韩国新生儿重症监护护士对生命权的支持
IF 1.3 Q3 ETHICS Pub Date : 2024-02-24 DOI: 10.1007/s41649-023-00277-y
Somin Kim, Sunhee Lee

The increase of high-risk newborns due to societal changes has presented neonatal intensive care unit nurses with more ethical challenges and heightened their perception of neonatal palliative care. Therefore, this study was a descriptive survey exploring the perceptions of neonatal intensive care unit nurse regarding biomedical ethics and neonatal palliative care in neonatal intensive care units. The research participants were 97 neonatal intensive care unit nurses who had been directly involved with end-of-life care for high-risk babies. Data were collected from November to December 2021 through an online survey. The Korean version of Neonatal Palliative Care Attitude Scale and the tool of biomedical ethics were used. The collected data were analyzed using the T-test, ANOVA, Scheffé test, Pearson correlation coefficient, and multiple regression analysis. The mean score for perception of biomedical ethics in neonatal intensive care unit nurses was 2.89 of 4, and that of neonatal palliative care in neonatal intensive care unit nurses was 3.10 of 5. Existence of a protocol of neonatal palliative care, the experience of patients dying, and the right to life of neonates were factors influencing the perception of neonatal palliative care. The explanatory power was 12.5%. The data support the importance of guidelines regarding systematic neonatal palliative care. Also, developing programs for sharing and supporting experiences of patients dying among colleagues and persistent education about the right to life of neonates for neonatal intensive care unit nurses can improve perception of neonatal palliative care.

由于社会变革,高危新生儿增多,这给新生儿重症监护病房护士带来了更多伦理挑战,也提高了她们对新生儿姑息治疗的认识。因此,本研究对新生儿重症监护病房护士对新生儿重症监护病房生物医学伦理和新生儿姑息治疗的认知进行了描述性调查。研究参与者为 97 名新生儿重症监护室护士,她们直接参与了高危婴儿的临终关怀。数据是在 2021 年 11 月至 12 月期间通过在线调查收集的。调查使用了韩国版新生儿姑息治疗态度量表和生物医学伦理工具。收集到的数据采用 T 检验、方差分析、Scheffé 检验、皮尔逊相关系数和多元回归分析进行分析。新生儿重症监护室护士对生物医学伦理的认知平均分为 2.89 分(满分为 4 分),新生儿重症监护室护士对新生儿姑息治疗的认知平均分为 3.10 分(满分为 5 分)。新生儿姑息治疗方案的存在、患者濒死的经历和新生儿的生命权是影响新生儿姑息治疗认知的因素。解释力为 12.5%。这些数据支持了系统性新生儿姑息治疗指南的重要性。此外,为同事之间分享和支持患者死亡的经验制定计划,以及对新生儿重症监护室护士进行有关新生儿生命权的持续教育,也能改善对新生儿姑息治疗的认知。
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引用次数: 0
A Dialogue between Hindu and Catholic Perspectives in Taking Care of Newborns at their End-of-Life 印度教和天主教在照顾临终新生儿方面的观点对话
IF 1.3 Q3 ETHICS Pub Date : 2024-02-01 DOI: 10.1007/s41649-023-00275-0
Giulia Adele Dinicola

Hinduism is considered one of the most ancient religions in the world. Although the technological innovation of modernization has undermined the reliance on their traditions, Hindus may still rely on Hindu Scripture when making decisions. From their standpoint, contrary to Western medicine, human lives cannot be reduced to statistical and empirical facts. They focus more on preserving the spirit, rather than considering survival as one of the goals of medicine. Consequently, when a preterm infant is born, Hindu parents might struggle to understand the goals of Western neonatologists. This divergence may create misunderstandings when discussing end-of-life decisions. Since they value relational aspects to be of utmost importance, they may accept treatments only in the likelihood of good neurological outcomes. Being able to interact allows Hindus to act virtuously with the aim of purifying their soul toward moksa. When it comes to end-of-life decisions on behalf of newborns, Hindu parents may opt to forgo treatments and let the baby peacefully die, while praying for their soul to have a better rebirth. This paper aims to evaluate quality-of-life assessment in the Hindu tradition in comparison with the Catholic tradition. It draws parallelisms between these two different religions to investigate whether an inter-religious dialogue is possible. This work will help Catholic, and more broadly Western, doctors to have a better understanding of the Hindu end-of-life views.

印度教被认为是世界上最古老的宗教之一。虽然现代化的技术革新削弱了对其传统的依赖,但印度教徒在做决定时仍会依赖印度教经文。在他们看来,与西方医学相反,人的生命不能简化为统计数字和经验事实。他们更注重保护精神,而不是将生存作为医学的目标之一。因此,当早产儿出生时,印度教父母可能很难理解西方新生儿专家的目标。在讨论临终决定时,这种分歧可能会造成误解。由于他们将亲情视为最重要的因素,因此他们可能只在神经功能良好的情况下才接受治疗。印度教徒能够进行互动,从而以善行来净化自己的灵魂,实现 "莫克萨"(moksa)的目标。在代表新生儿做出生命终结的决定时,印度教父母可能会选择放弃治疗,让婴儿平静地死去,同时祈祷他们的灵魂得到更好的重生。本文旨在对比天主教传统,评估印度教传统中的生命质量评估。它将这两种不同的宗教相提并论,以探讨宗教间对话是否可能。这项工作将有助于天主教医生以及更广泛意义上的西方医生更好地理解印度教的临终观点。
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引用次数: 0
The Impact of Clinical Ethics Consultations on Physicians in a Latin American Context 拉丁美洲背景下临床伦理咨询对医生的影响
IF 1.3 Q3 ETHICS Pub Date : 2024-01-24 DOI: 10.1007/s41649-023-00271-4
Nathalia Rodríguez-Suárez, Paula Prieto-Martínez

Clinical bioethics plays a significant role in hospital settings through bioethics consultations, which focus on providing ongoing assistance in complex situations within the doctor-patient dynamic. These consultations entail regular interaction between physicians and clinical bioethicists. This situation prompts an exploration into how bioethics consultations affect physicians. The current research aims to understand the influence of bioethics consultations on physicians’ bioethical knowledge by analyzing the lexical content in their patients’ medical records. Medical records are a synthesis carried out by physicians, often reflecting collaborative efforts, and capturing verbal statements indicative of thought processes suggestive of learning. The study is a sequential mixed-methods design with a retrospective descriptive approach, comparing medical records from the early years of the Department of Humanism and Bioethics’ operation (2013–2015) to the more recent ones (2019). Technical bioethical terminology such as “therapeutic effort limitation,” “futility,” “beneficence,” and “respect for autonomy” is more prevalent in recent medical records. This trend may stem from the positive impact of bioethics consultations conducted by the Department, with haptic communication serving as a particularly effective form of interaction with others during experiences of moral distress. This appears to be characteristic of cultures like those in Latin America.

临床生物伦理学通过生物伦理学会诊在医院环境中发挥着重要作用,其重点是在医患关系复杂的情况下提供持续的帮助。这些会诊需要医生和临床生物伦理学家之间的定期互动。这种情况促使人们探索生命伦理学咨询如何影响医生。目前的研究旨在通过分析病人病历中的词汇内容,了解生命伦理学咨询对医生生命伦理学知识的影响。病历是医生进行的综合分析,通常反映了合作的努力,并捕捉到了表明学习的思维过程的口头陈述。本研究采用顺序混合方法设计,采用回顾性描述方法,比较人文主义与生命伦理学系运行初期(2013-2015 年)和近期(2019 年)的医疗记录。在近期的医疗记录中,"治疗努力限制"、"徒劳"、"受益 "和 "尊重自主权 "等生物伦理技术术语更为普遍。这一趋势可能源于该部开展的生命伦理学咨询所产生的积极影响,在经历道德困境时,触觉交流是与他人互动的一种特别有效的形式。这似乎是拉丁美洲文化的特点。
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引用次数: 0
Wearable Devices for Long COVID: Prospects, Challenges and Options 用于长 COVID 的可穿戴设备:前景、挑战和选择
IF 1.3 Q3 ETHICS Pub Date : 2024-01-20 DOI: 10.1007/s41649-023-00272-3
Hui Yun Chan

Post COVID-19 infections resulting in long COVID symptoms remain persistent yet neglected in healthcare priorities. Although long COVID symptoms are expected to decline after some time, many people continue to endure its debilitating effects affecting their daily lives. The diversity of characteristics amongst long COVID patients adds to the complexity of communicating personal health predicaments to healthcare providers. Recent research towards building an evidence base for long COVID with the aim of delivering responsive healthcare interventions for long COVID patients has utilised datasets generated from wearable devices. This paper examines the prospects presented by wearable devices for long COVID patients and physicians. It highlights distinct ethical and legal challenges arising from their use in practice. Several recommendations aiming to support their usage amongst long COVID patients are outlined for future research using wearable devices for long COVID treatment.

COVID-19 后感染导致的长期 COVID 症状仍然持续存在,但却被医疗保健优先事项所忽视。尽管长COVID症状在一段时间后会有所缓解,但许多人仍在忍受其对日常生活造成的衰弱影响。长期慢性阻塞性肺气肿患者的特征多种多样,这增加了与医疗服务提供者沟通个人健康困境的复杂性。为建立长期慢性阻塞性肺病的证据基础,以便为长期慢性阻塞性肺病患者提供有针对性的医疗干预措施,最近的研究利用了可穿戴设备生成的数据集。本文探讨了可穿戴设备为长期慢性阻塞性肺病患者和医生带来的前景。它强调了在实践中使用可穿戴设备所面临的伦理和法律挑战。本文概述了几项建议,旨在支持将可穿戴设备用于长期慢性阻塞性肺病治疗的未来研究。
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引用次数: 0
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Asian Bioethics Review
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