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Clinical Ethics Consultation in Japan: What does it Mean to have a Functioning Ethics Consultation? 日本的临床伦理咨询:有效的伦理咨询意味着什么?
IF 1.3 Q3 ETHICS Pub Date : 2023-09-06 DOI: 10.1007/s41649-023-00257-2
Noriko Nagao, Yoshiyuki Takimoto

This research examines the current status of clinical ethics consultation (CEC) in Japan through a nationwide study conducted with chairs of ethics committees and clinical ethics committees among 1028 post-graduate clinical teaching hospitals. We also qualitatively analyzed their viewpoints of the CEC’s benefits and problems related to hospital consultation services to identify the critical points for CEC and inform the development of a correctly functioning system. The questionnaire included structured questions about hospital CEC organization and service purpose and operation and open-ended questions about the benefits and problems of initiating CEC. The questionnaire comprised the presence/absence of an ethics committee, CEC services and membership when services were implemented, users, and the number of cases handled since inception. In addition, the respondents also provided their impressions of the CEC system’s impact on their hospital by describing (a) the benefits of CEC services and (b) the ineffectual or harmful aspects of the CEC system. Qualitative data were examined using qualitative content analysis to determine the impact of establishing a CEC and the difficulties of practice. One hundred twenty-five questionnaires were returned from either the chair of the ethics committee or clinical ethics committee in teaching hospitals. Of these, 90 (72%) reported they provided CEC services. Additionally, 36 respondents (34.6%) reported that their existing research and clinical ethics committees had conducted CEC services, and 35 (33.7%) reported having a newly established clinical ethics committee conducting CEC services. Three positive effects of establishing and four challenges in managing CEC were also identified.

本研究通过在全国范围内对 1028 家研究生临床教学医院的伦理委员会主席和临床伦理委员会进行调查,研究了日本临床伦理咨询(CEC)的现状。我们还定性分析了他们对 CEC 的益处以及与医院咨询服务相关的问题的看法,以确定 CEC 的关键点,为建立一个正确运作的系统提供信息。调查问卷包括有关医院 CEC 组织和服务目的及运作的结构性问题,以及有关启动 CEC 的益处和问题的开放式问题。问卷内容包括医院是否设有伦理委员会、伦理委员会的服务内容和服务实施时的成员情况、用户情况以及伦理委员会成立以来处理的病例数量。此外,受访者还通过描述 (a) CEC 服务的益处和 (b) CEC 系统的无效或有害方面,提供了他们对 CEC 系统对医院影响的印象。我们使用定性内容分析法对定性数据进行了研究,以确定建立 CEC 的影响和实践中的困难。教学医院的伦理委员会主席或临床伦理委员会共收回 125 份调查问卷。其中 90 人(72%)表示他们提供了 CEC 服务。此外,36 名受访者(34.6%)称其现有的研究和临床伦理委员会已开展 CEC 服务,35 名受访者(33.7%)称其新成立的临床伦理委员会已开展 CEC 服务。受访者还指出了建立临床伦理委员会的三个积极影响和管理临床伦理委员会的四个挑战。
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引用次数: 0
Bioethics in Northeast Asia 东北亚的生物伦理学。
IF 2.9 Q3 ETHICS Pub Date : 2023-09-04 DOI: 10.1007/s41649-023-00260-7
Graeme T. Laurie
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引用次数: 0
Remote Technologies and Filial Obligations at a Distance: New Opportunities and Ethical Challenges 远程技术与远距离的孝道义务:新的机遇和伦理挑战。
IF 2.9 Q3 ETHICS Pub Date : 2023-09-01 DOI: 10.1007/s41649-023-00256-3
Yi Jiao (Angelina) Tian, Fabrice Jotterand, Tenzin Wangmo

The coupled growth of population aging and international migration warrants attention on the methods and solutions available to adult children living overseas to provide distance caregiving for their aging parents. Despite living apart from their parents, the transnational informal care literature has indicated that first-generation immigrants remain committed to carry out their filial caregiving obligations in extensive and creative ways. With functions to remotely access health information enabled by emergency, wearable, motion, and video sensors, remote monitoring technologies (RMTs) may thus also allow these international migrants to be alerted in sudden changes and remain informed of their parent’s state of health. As technological solutions for caregiving, RMTs could allow independent living for older persons while any unusual deviations from normal health patterns are detected and appropriately supported. With a vignette of a distance care arrangement, we engage with concepts such as filial piety, in-absentia caregiving distress, and the social exchange theory, as well as the upholding of shifting cultural ideals to illustrate the complex dynamic of the satisfaction and quality of the informal caregiving relationship. This paper extends the traditional ethical issues in technology-aided caregiving, such as autonomy, privacy, and justice, to be considered within the context of distance care. We also posit newer ethical considerations such as consent in power imbalances, harm to caregivers, and stigma. These known and new ethical issues aim to encourage further ethically conscious design and use of RMTs to support distance care for older persons.

人口老龄化和国际移民的双重增长需要关注居住在海外的成年儿童为年迈的父母提供远程护理的方法和解决方案。尽管与父母分开生活,跨国非正规护理文献表明,第一代移民仍然致力于以广泛和创造性的方式履行他们的孝顺照顾义务。通过紧急、可穿戴、运动和视频传感器实现的远程访问健康信息的功能,远程监测技术也可以让这些国际移民在突然变化时得到警报,并随时了解他们父母的健康状况。作为护理的技术解决方案,RMT可以让老年人独立生活,同时发现并适当支持任何与正常健康模式的异常偏差。通过一个关于远程护理安排的小插曲,我们引入了孝顺、缺席护理痛苦、社会交换理论以及对不断变化的文化理想的坚持等概念,以说明非正式护理关系的满意度和质量的复杂动态。本文将技术辅助护理中的传统伦理问题,如自主性、隐私和正义,扩展到远程护理的背景下加以考虑。我们还提出了新的伦理考虑,如权力失衡中的同意、对照顾者的伤害和污名化。这些已知的和新的伦理问题旨在鼓励有道德意识的RMT的进一步设计和使用,以支持老年人的远程护理。
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引用次数: 0
Assisted Reproductive Technology (Regulation) Act 2021: Critique and Contestations 2021 年辅助生殖技术(监管)法案》:批判与争议。
IF 1.3 Q3 ETHICS Pub Date : 2023-07-11 DOI: 10.1007/s41649-023-00253-6
Soumya Kashyap, Priyanka Tripathi

The article critically examines the Assisted Reproductive Technology (Regulation) Act 2021, its development process spanning 15 years, and its potential shortcomings in addressing the needs of India’s 27 million infertile couples. By scrutinizing the recommendations presented in the Parliamentary Standing Committee on Health and Family Welfare’s 129th report, the critique argues that the Act may not effectively cater to the diverse reproductive rights of the population. The article claims that most of its suggestions are in opposition to redefining families and accepting inclusive family structures other than heterosexual marriages. The study posits that the Act, with its inherent limitations, perpetuates the reinforcement of patriarchal family structures that medical science intends to disrupt. In order to foster inclusivity and comprehensibility, the article advocates for necessary amendments that align with the interest of the general populace.

文章批判性地审视了《2021 年辅助生殖技术(管理)法案》、其长达 15 年的发展过程,以及在满足印度 2 700 万不孕夫妇需求方面可能存在的不足。通过仔细研究卫生与家庭福利议会常务委员会第 129 号报告中提出的建议,该评论认为该法案可能无法有效地满足人口的各种生殖权利。文章称,委员会的大部分建议都与重新定义家庭和接受异性婚姻以外的包容性家庭结构背道而驰。研究认为,《法案》因其固有的局限性,使父权制家庭结构得到了永久性的强化,而医学科学正是要打破这种结构。为了促进包容性和可理解性,文章主张进行必要的修订,以符合大众的利益。
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引用次数: 0
Supporting a Member Secretary of an Ethics Committee 支持道德委员会的成员秘书。
IF 2.9 Q3 ETHICS Pub Date : 2023-07-10 DOI: 10.1007/s41649-023-00255-4
Salik Ansari
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引用次数: 0
The Duty to Care is Not Dead Yet 关心的责任还没有死。
IF 2.9 Q3 ETHICS Pub Date : 2023-06-23 DOI: 10.1007/s41649-023-00254-5
Yali Cong, James Dwyer

The COVID-19 pandemic exposed social shortcomings and ethical failures, but it also revealed strengths and successes. In this perspective article, we examine and discuss one strength: the duty to care. We understand this duty in a broad sense, as more than a duty to treat individual patients who could infect health care workers. We understand it as a prima facie duty to work to provide care and promote health in the face of risks, obstacles, and inconveniences. Although at least one survey suggested that health care workers would not respond to a SARS-like outbreak according to a duty to care, we give reasons to show that the response was better than expected. The reasons we discuss lead us to consider normative accounts of the duty to care based on the adoption of social roles. Then, we consider one view of the relationship between empirical claims and normative claims about the duty to care in the COVID-19 pandemic. Here, we draw insight from Mengzi, with an emendation from Dewey. Our perspective leaves many question to research, but one point seems clear: there will be future pandemics and the need for health care workers who respond.

新冠肺炎疫情暴露了社会缺陷和道德失败,但也揭示了优势和成功。在这篇前瞻性的文章中,我们考察并讨论了一个优势:谨慎的义务。我们从广义上理解这一义务,而不仅仅是治疗可能感染医护人员的个别患者的义务。我们认为,面对风险、障碍和不便,努力提供护理和促进健康是一项表面上的义务。尽管至少有一项调查表明,医护人员不会根据护理义务对类似SARS的疫情做出反应,但我们有理由表明,反应比预期的要好。我们讨论的原因使我们考虑基于社会角色的规范性照顾义务。然后,我们考虑了关于新冠肺炎大流行中护理义务的经验主张和规范主张之间关系的一种观点。在这里,我们从《孟子》中汲取真知灼见,并从杜威那里加以校订。我们的观点给研究留下了许多问题,但有一点似乎很清楚:未来会有流行病,需要医护人员做出反应。
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引用次数: 0
Inclusion and Exclusion in Bioethics 生物伦理学中的包容与排斥。
IF 2.9 Q3 ETHICS Pub Date : 2023-06-16 DOI: 10.1007/s41649-023-00252-7
Graeme T. Laurie
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引用次数: 0
Stakeholder Involvement in the Governance of Human Genome Editing in Japan 利益相关者参与日本人类基因组编辑治理。
IF 2.9 Q3 ETHICS Pub Date : 2023-04-26 DOI: 10.1007/s41649-023-00251-8
Tatsuki Aikyo, Atsushi Kogetsu, Kazuto Kato

Abstract

Genome editing is a technology that can accurately and efficiently modify the genome of organisms, including the human genome. Although human genome editing (HGE) has many benefits, it also involves technical risks and ethical, legal, and social issues. Thus, the pros and cons of using this technology have been actively debated since 2015. Notably, the research community has taken an interest in the issue and has discussed it internationally. However, for the governance of HGE, the roles of government agencies and the general public are also important for an effective regulatory system. Here, we examine the roles of the research community, government, and public in the governance of HGE through an analysis of discussions in the Japanese Expert Panel on Bioethics. During the discussion of the research ethics review system, the professionalism of the research community and the pros and cons of state oversight have become issues for debate. Furthermore, through an examination of the overall policy-making process, three stakeholders are clearly involved in the governance of emerging medical technologies in the Expert Panel on Bioethics, a discussion forum established by government agencies. The contrast among these roles provides insight into the positive roles of government agencies and the research community and the conditions under which these roles are played. We also note that there are diverse actors in the public, which may have an impact on their participation. Our results may serve as a guide for countries and organizations to establish governance on emerging medical technologies.

基因组编辑是一种可以准确有效地修改包括人类基因组在内的生物体基因组的技术。尽管人类基因组编辑(HGE)有很多好处,但它也涉及技术风险以及伦理、法律和社会问题。因此,自2015年以来,使用这项技术的利弊一直备受争议。值得注意的是,研究界对这个问题很感兴趣,并在国际上进行了讨论。然而,对于HGE的治理,政府机构和公众的作用对于有效的监管体系也很重要。在这里,我们通过对日本生物伦理学专家小组讨论的分析,研究了研究界、政府和公众在HGE治理中的作用。在对研究伦理审查制度的讨论中,研究界的专业性和国家监督的利弊成为了争论的问题。此外,通过对整个决策过程的审查,三个利益攸关方显然参与了生物伦理专家小组对新兴医疗技术的治理,这是一个由政府机构设立的讨论论坛。这些角色之间的对比让我们深入了解了政府机构和研究界的积极作用,以及这些角色发挥的条件。我们还注意到,公众中有不同的行动者,这可能会对他们的参与产生影响。我们的研究结果可以为各国和组织建立新兴医疗技术的治理提供指导。
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引用次数: 1
Undue Influence from the Family in Declining COVID-19 Vaccination and Treatment for the Elderly Patient 家庭对拒绝老年患者接种新冠肺炎疫苗和治疗的不当影响。
IF 1.3 Q3 ETHICS Pub Date : 2023-04-11 DOI: 10.1007/s41649-023-00249-2
See Muah Lee, Neal Ryan Friets, Irene Tirtajana, Gerard Porter

This paper examines a patient with borderline mental capacity, where the healthcare team is conflicted about how to proceed. This case demonstrates the complicated intersection between undue influence and mental capacity, allowing us to explore how the law is applied in clinical practice. Patients have the right to decline or accept medical treatments offered to them. In Singapore, family members perceive a right to be involved in the decision-making process for sick and elderly patients. Elderly patients, dependent on mainly family members for care and support, sometimes submit to their overbearing influence resulting in decisions that fail to protect the patients’ own best interests. However, the clinicians’ own well-intentioned influence, driven by a desire for the best medical outcome can also be undue, and neither influence should seek to be a substitution for the patient’s decision. Following Re BKR [2015] SGCA 26, we are now obliged to examine how mental capacity can be affected by undue influence. A lack of capacity can be found when a patient fails to appreciate the presence of undue influence or is susceptible to undue influence due to their mental impairment causing their will to be overborne. This then paves the way for the health care team to decide based on best interests, because the patient is determined to be lacking in mental capacity.

本文研究了一名精神能力处于临界状态的患者,在这种情况下,医疗团队对如何进行存在冲突。本案展示了不当影响和心理能力之间的复杂交叉,使我们能够探索法律如何在临床实践中应用。患者有权拒绝或接受提供给他们的医疗服务。在新加坡,家庭成员认为有权参与病人和老年病人的决策过程。老年患者主要依赖家庭成员的照顾和支持,有时会屈从于他们的专横影响,导致决策无法保护患者自身的最大利益。然而,临床医生出于对最佳医疗结果的渴望而产生的善意影响也可能是不适当的,这两种影响都不应试图取代患者的决定。根据Re-BKR[2015]SGCA 26,我们现在有义务研究过度影响对心理能力的影响。当患者没有意识到存在不当影响,或者由于精神障碍而容易受到不当影响,导致他们的意志不堪重负时,就会发现能力不足。这为医疗团队根据最大利益做出决定铺平了道路,因为患者被认定缺乏心理能力。
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引用次数: 0
Ethical Data Collection for Medical Image Analysis: a Structured Approach 医学图像分析的伦理数据收集:一种结构化方法。
IF 1.3 Q3 ETHICS Pub Date : 2023-04-10 DOI: 10.1007/s41649-023-00250-9
S. T. Padmapriya, Sudhaman Parthasarathy

Due to advancements in technology such as data science and artificial intelligence, healthcare research has gained momentum and is generating new findings and predictions on abnormalities leading to the diagnosis of diseases or disorders in human beings. On one hand, the extensive application of data science to healthcare research is progressing faster, while on the other hand, the ethical concerns and adjoining risks and legal hurdles those data scientists may face in the future slow down the progression of healthcare research. Simply put, the application of data science to ethically guided healthcare research appears to be a dream come true. Hence, in this paper, we discuss the current practices, challenges, and limitations of the data collection process during medical image analysis (MIA) conducted as part of healthcare research and propose an ethical data collection framework to guide data scientists to address the possible ethical concerns before commencing data analytics over a medical dataset.

由于数据科学和人工智能等技术的进步,医疗保健研究获得了发展势头,并对导致人类疾病或障碍诊断的异常产生了新的发现和预测。一方面,数据科学在医疗保健研究中的广泛应用进展更快,而另一方面,这些数据科学家未来可能面临的伦理问题以及随之而来的风险和法律障碍减缓了医疗保健研究的进展。简单地说,将数据科学应用于伦理指导的医疗保健研究似乎是梦想成真。因此,在本文中,我们讨论了作为医疗保健研究一部分进行的医学图像分析(MIA)过程中数据收集过程的当前实践、挑战和局限性,并提出了一个道德数据收集框架,以指导数据科学家在开始对医疗数据集进行数据分析之前解决可能的道德问题。
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引用次数: 0
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Asian Bioethics Review
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