首页 > 最新文献

Asian Bioethics Review最新文献

英文 中文
Ethical Data Collection for Medical Image Analysis: a Structured Approach. 医学图像分析的伦理数据收集:一种结构化方法。
IF 2.9 Q1 Arts and Humanities Pub Date : 2023-04-10 DOI: 10.1007/s41649-023-00250-9
S T Padmapriya, Sudhaman Parthasarathy

Due to advancements in technology such as data science and artificial intelligence, healthcare research has gained momentum and is generating new findings and predictions on abnormalities leading to the diagnosis of diseases or disorders in human beings. On one hand, the extensive application of data science to healthcare research is progressing faster, while on the other hand, the ethical concerns and adjoining risks and legal hurdles those data scientists may face in the future slow down the progression of healthcare research. Simply put, the application of data science to ethically guided healthcare research appears to be a dream come true. Hence, in this paper, we discuss the current practices, challenges, and limitations of the data collection process during medical image analysis (MIA) conducted as part of healthcare research and propose an ethical data collection framework to guide data scientists to address the possible ethical concerns before commencing data analytics over a medical dataset.

由于数据科学和人工智能等技术的进步,医疗保健研究获得了发展势头,并对导致人类疾病或障碍诊断的异常产生了新的发现和预测。一方面,数据科学在医疗保健研究中的广泛应用进展更快,而另一方面,这些数据科学家未来可能面临的伦理问题以及随之而来的风险和法律障碍减缓了医疗保健研究的进展。简单地说,将数据科学应用于伦理指导的医疗保健研究似乎是梦想成真。因此,在本文中,我们讨论了作为医疗保健研究一部分进行的医学图像分析(MIA)过程中数据收集过程的当前实践、挑战和局限性,并提出了一个道德数据收集框架,以指导数据科学家在开始对医疗数据集进行数据分析之前解决可能的道德问题。
{"title":"Ethical Data Collection for Medical Image Analysis: a Structured Approach.","authors":"S T Padmapriya,&nbsp;Sudhaman Parthasarathy","doi":"10.1007/s41649-023-00250-9","DOIUrl":"10.1007/s41649-023-00250-9","url":null,"abstract":"<p><p>Due to advancements in technology such as data science and artificial intelligence, healthcare research has gained momentum and is generating new findings and predictions on abnormalities leading to the diagnosis of diseases or disorders in human beings. On one hand, the extensive application of data science to healthcare research is progressing faster, while on the other hand, the ethical concerns and adjoining risks and legal hurdles those data scientists may face in the future slow down the progression of healthcare research. Simply put, the application of data science to ethically guided healthcare research appears to be a dream come true. Hence, in this paper, we discuss the current practices, challenges, and limitations of the data collection process during medical image analysis (MIA) conducted as part of healthcare research and propose an ethical data collection framework to guide data scientists to address the possible ethical concerns before commencing data analytics over a medical dataset.</p>","PeriodicalId":44520,"journal":{"name":"Asian Bioethics Review","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2023-04-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10088772/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9715953","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
COVID-19 Vaccination under Conditions of War in Ukraine 乌克兰战争条件下的新冠肺炎疫苗接种
IF 2.9 Q1 Arts and Humanities Pub Date : 2023-04-04 DOI: 10.1007/s41649-023-00248-3
Olena Korolchuk, Nataliia Vasiuk, Iryna Klymkova, Dmytro Shvets, Oleksii Piddubnyi

The COVID-19 pandemic, which spread around the world in 2020, changed the lives of millions of people and affected the life and functioning of all countries and people without exception. With the emergence of the opportunity to be vaccinated against COVID-19, the problem of making a decision about vaccination also appeared. But it has become increasingly clear that the coronavirus is moving into the group of annual viral epidemic diseases that occur every year in different countries during the seasonal wave of acute respiratory viral infections. The ongoing COVID-19 pandemic against the background of the adoption of serious quarantine measures indicates the need for large-scale vaccination of the population as the most effective way to protect against COVID-19. In this article, we pay special attention to vaccination, as the main factor in ensuring health, reducing the morbidity and severity of the course of the COVID-19 disease, and an important task of the state and modern public administration.

新冠肺炎疫情于2020年在全球蔓延,改变了数百万人的生活,无一例外地影响了所有国家和人民的生活和功能。随着接种新冠肺炎疫苗的机会出现,做出接种决定的问题也出现了。但越来越明显的是,在急性呼吸道病毒感染的季节性浪潮中,冠状病毒正在进入每年在不同国家发生的年度病毒性流行病。在采取严格隔离措施的背景下,持续的新冠肺炎大流行表明,有必要为人口大规模接种疫苗,作为预防新冠肺炎的最有效方法。在这篇文章中,我们特别关注疫苗接种,这是确保健康、降低新冠肺炎发病率和严重程度的主要因素,也是国家和现代公共管理的一项重要任务。
{"title":"COVID-19 Vaccination under Conditions of War in Ukraine","authors":"Olena Korolchuk,&nbsp;Nataliia Vasiuk,&nbsp;Iryna Klymkova,&nbsp;Dmytro Shvets,&nbsp;Oleksii Piddubnyi","doi":"10.1007/s41649-023-00248-3","DOIUrl":"10.1007/s41649-023-00248-3","url":null,"abstract":"<div><p>The COVID-19 pandemic, which spread around the world in 2020, changed the lives of millions of people and affected the life and functioning of all countries and people without exception. With the emergence of the opportunity to be vaccinated against COVID-19, the problem of making a decision about vaccination also appeared. But it has become increasingly clear that the coronavirus is moving into the group of annual viral epidemic diseases that occur every year in different countries during the seasonal wave of acute respiratory viral infections. The ongoing COVID-19 pandemic against the background of the adoption of serious quarantine measures indicates the need for large-scale vaccination of the population as the most effective way to protect against COVID-19. In this article, we pay special attention to vaccination, as the main factor in ensuring health, reducing the morbidity and severity of the course of the COVID-19 disease, and an important task of the state and modern public administration.</p></div>","PeriodicalId":44520,"journal":{"name":"Asian Bioethics Review","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2023-04-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://link.springer.com/content/pdf/10.1007/s41649-023-00248-3.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9799304","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Virtue Ethics among Physicians who serve Individuals with Chronic Spinal Cord Injury in Indonesia 印尼为慢性脊髓损伤患者服务的医生的道德操守。
IF 2.9 Q1 Arts and Humanities Pub Date : 2023-03-30 DOI: 10.1007/s41649-023-00245-6
Maria Regina Rachmawati, Mubasyisyir Hasanbasri, Mohammad Hakimi

Abstract

Individuals with chronic spinal cord injury (CSCI) require complex and lengthy health services based on ethical philosophy. The virtue character that is most relevant to the egalitarian concept is fairness. The aim of the study is whether the character of fairness becomes the character of a doctor serving individuals with CSCI. It is a mixed method cross-sectional explanatory study, with questionnaires sent to doctors and individuals with CSCI, interviews with doctors, and healthcare system field observation. Sixty-two doctors and 33 patients with CSCI participated in the study. The virtues most frequently chosen by doctors were love, gratitude, spirituality, zest, fairness, and kindness. The CSCI patients’ views regarding doctors’ characters were a postponement of personal interest, compassion, and loyalty to trust. All interviewed doctors indicated that they supported more than five of the 24 virtues. Doctors serve with ethical principles of virtue, even though the rewards received are inadequate. In fact, the use of health services by CSCI is still limited. Virtue ethics, especially the character of fairness, is necessary as a base of positive relationships between doctors and patients, to achieve equality of benefits for CSCI patients. Data obtained that the doctors’ character of fairness is still not the main choice.

慢性脊髓损伤(CSCI)患者需要基于伦理哲学的复杂而漫长的健康服务。与平等主义概念最相关的美德特征是公平。本研究的目的是,公平的特征是否成为为CSCI患者服务的医生的特征。这是一项混合方法的横断面解释性研究,向患有CSCI的医生和个人发送问卷,对医生进行访谈,并对医疗系统进行实地观察。62名医生和33名CSCI患者参与了这项研究。医生最常选择的美德是爱、感恩、精神、热情、公平和善良。CSCI患者对医生性格的看法是推迟了个人兴趣、同情心和对信任的忠诚。所有接受采访的医生都表示,他们支持24种美德中的5种以上。医生的服务遵循道德原则,即使所得到的回报是不够的。事实上,CSCI对卫生服务的使用仍然有限。为了实现CSCI患者的利益平等,美德伦理,特别是公平性,是建立积极医患关系的基础。数据显示,医生的公平性仍然不是主要的选择。
{"title":"Virtue Ethics among Physicians who serve Individuals with Chronic Spinal Cord Injury in Indonesia","authors":"Maria Regina Rachmawati,&nbsp;Mubasyisyir Hasanbasri,&nbsp;Mohammad Hakimi","doi":"10.1007/s41649-023-00245-6","DOIUrl":"10.1007/s41649-023-00245-6","url":null,"abstract":"<div><h2>Abstract\u0000</h2><div><p>Individuals with chronic spinal cord injury (CSCI) require complex and lengthy health services based on ethical philosophy. The virtue character that is most relevant to the egalitarian concept is fairness. The aim of the study is whether the character of fairness becomes the character of a doctor serving individuals with CSCI. It is a mixed method cross-sectional explanatory study, with questionnaires sent to doctors and individuals with CSCI, interviews with doctors, and healthcare system field observation. Sixty-two doctors and 33 patients with CSCI participated in the study. The virtues most frequently chosen by doctors were love, gratitude, spirituality, zest, fairness, and kindness. The CSCI patients’ views regarding doctors’ characters were a postponement of personal interest, compassion, and loyalty to trust. All interviewed doctors indicated that they supported more than five of the 24 virtues. Doctors serve with ethical principles of virtue, even though the rewards received are inadequate. In fact, the use of health services by CSCI is still limited. Virtue ethics, especially the character of fairness, is necessary as a base of positive relationships between doctors and patients, to achieve equality of benefits for CSCI patients. Data obtained that the doctors’ character of fairness is still not the main choice.</p></div></div>","PeriodicalId":44520,"journal":{"name":"Asian Bioethics Review","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2023-03-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://link.springer.com/content/pdf/10.1007/s41649-023-00245-6.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9736461","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Public Awareness of Medical Research Terminology in Japan, and the Accuracy of Physicians’ Predictions regarding that Awareness 日本公众对医学研究术语的认识,以及医生对这种认识的预测的准确性。
IF 2.9 Q1 Arts and Humanities Pub Date : 2023-03-30 DOI: 10.1007/s41649-023-00247-4
Ayako Kamisato, Hyunsoo Hong, Suguru Okubo

Abstract

One of the ethical principles of medical research involving human subjects is obtaining proper informed consent (IC). However, if the participants’ actual awareness of medical research terminology is lower than the researchers’ prediction of that awareness, it may cause difficulty obtaining proper IC. Therefore, this study aims to clarify the presence of “perception gaps” and then discuss IC-related issues and measures based on the insights obtained. We conducted two online surveys: a “public survey” to understand the Japanese public’s awareness of 11 medical research terms and a “physicians’ survey” to investigate physicians’ predictions regarding public awareness. In the “public survey,” for each term, respondents were instructed to select their situation from “understand,” “have heard,” or “have never heard.” In the “physicians’ survey,” respondents were asked to estimate the proportions of the general public who would “have understood,” “have heard,” or “have never heard” by using an 11-step scale. We analyzed separately in two age groups to understand the age-related difference. We received 1002 valid responses for the “public survey” and 275 for the “physicians’ survey.” Of the public respondents, more than 80% had never heard of terms such as interventional study, prospective clinical study, cohort study, Phase I clinical trial, or double-blind study. Concurrently, physicians overestimated general public awareness of the terms placebo, cohort study, double-blind study, and randomized clinical trial (in the group of people under 60). The results revealed the perception gap between the general public and physicians which raise serious concerns about obtaining proper IC from clinical research participants.

涉及人类受试者的医学研究的伦理原则之一是获得适当的知情同意。然而,如果参与者对医学研究术语的实际认知低于研究人员对该认知的预测,则可能会导致难以获得适当的IC。因此,本研究旨在澄清“感知差距”的存在,然后根据所获得的见解讨论IC相关问题和措施。我们进行了两项在线调查:一项是了解日本公众对11个医学研究术语的认识的“公众调查”,另一项是调查医生对公众认识的预测的“医生调查”。在“公众调查”中,每一个术语的受访者都被要求从“理解”、“听说过”或“从未听说过”中选择自己的情况。在“医生调查”中的受访者被要求使用11步量表来估计公众中“理解过”、“听过”或”从未听说过“的比例。我们分别对两个年龄组进行了分析,以了解与年龄相关的差异。我们收到了1002份“公众调查”和275份“医生调查”的有效回复。在公众受访者中,超过80%的人从未听说过介入研究、前瞻性临床研究、队列研究、I期临床试验或双盲研究等术语。同时,医生高估了公众对安慰剂、队列研究、双盲研究和随机临床试验(60岁以下人群)的普遍认识。研究结果揭示了公众和医生之间的认知差距,这引发了人们对从临床研究参与者那里获得适当IC的严重担忧。补充信息:在线版本包含补充材料,请访问10.1007/s41649-023-00247-4。
{"title":"Public Awareness of Medical Research Terminology in Japan, and the Accuracy of Physicians’ Predictions regarding that Awareness","authors":"Ayako Kamisato,&nbsp;Hyunsoo Hong,&nbsp;Suguru Okubo","doi":"10.1007/s41649-023-00247-4","DOIUrl":"10.1007/s41649-023-00247-4","url":null,"abstract":"<div><h2>Abstract\u0000</h2><div><p>One of the ethical principles of medical research involving human subjects is obtaining proper informed consent (IC). However, if the participants’ actual awareness of medical research terminology is lower than the researchers’ prediction of that awareness, it may cause difficulty obtaining proper IC. Therefore, this study aims to clarify the presence of “perception gaps” and then discuss IC-related issues and measures based on the insights obtained. We conducted two online surveys: a “public survey” to understand the Japanese public’s awareness of 11 medical research terms and a “physicians’ survey” to investigate physicians’ predictions regarding public awareness. In the “public survey,” for each term, respondents were instructed to select their situation from “understand,” “have heard,” or “have never heard.” In the “physicians’ survey,” respondents were asked to estimate the proportions of the general public who would “have understood,” “have heard,” or “have never heard” by using an 11-step scale. We analyzed separately in two age groups to understand the age-related difference. We received 1002 valid responses for the “public survey” and 275 for the “physicians’ survey.” Of the public respondents, more than 80% had never heard of terms such as <i>interventional study</i>, <i>prospective clinical study</i>, <i>cohort study</i>, <i>Phase I clinical trial</i>, or <i>double-blind study</i>. Concurrently, physicians overestimated general public awareness of the terms <i>placebo</i>, <i>cohort study</i>, <i>double-blind study</i>, and <i>randomized clinical trial</i> (in the <i>group of people under 60</i>). The results revealed the perception gap between the general public and physicians which raise serious concerns about obtaining proper IC from clinical research participants.</p></div></div>","PeriodicalId":44520,"journal":{"name":"Asian Bioethics Review","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2023-03-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://link.springer.com/content/pdf/10.1007/s41649-023-00247-4.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41173621","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Diversity, Equity, and Inclusion on Editorial Boards of Global Health Journals 全球健康期刊编辑委员会的多样性、公平性和包容性
IF 2.9 Q1 Arts and Humanities Pub Date : 2023-03-16 DOI: 10.1007/s41649-023-00243-8
Muhammad Romail Manan, Iqra Nawaz, Sara Rahman, Areeba Razzaq, Fatima Zafar, Arisha Qazi, Kiera Liblik

Journals have been described as “duty bearers” of upholding fundamental ethical principles that are essential for maintaining the ethical integrity of newly generated and disseminated knowledge. To play our part, we evaluated diversity and inclusion in the leadership and management of global and international health journals. We developed Journal Diversity Index (JDI) to measure three parameters of diversity and representation (gender, geographic, socioeconomic status). Relevant information regarding editorial board members of systematically screened journals was sequentially extracted and job titles were categorized into five editorial roles. Chi-squared test was utilized to study associations between gender and geographic distribution of editors along with the Medline indexing of the journal and its impact factor. Out of 43 journals included, 62.7% were published from two high-income countries. Women comprised 44% of the total editors. Among all the editorial board members, we did not find any information suggesting the representation of non-binary and transgender individuals. Furthermore, 68.2% of editors were based in high-income countries with 67.3% of the editors belonging to the Global North. This disparity in geographic region and socioeconomic level was observed across all five editorial roles. Among all women editors, more than 70% worked in non-Medline and non-impact factor journals. Only two journals scored “excellent” on JDI. Despite the continuous evolution of the definition of global health ethics, marginalized individuals, and their perspectives remain underrepresented in this field. Thus, we call for swift action regarding the decentralization and redistribution of global and international health journal editorial boards.

期刊被描述为维护基本伦理原则的“责任承担者”,这些原则对于维护新产生和传播的知识的伦理完整性至关重要。为了发挥我们的作用,我们评估了全球和国际卫生期刊领导和管理的多样性和包容性。我们开发了期刊多样性指数(JDI)来衡量多样性和代表性的三个参数(性别、地理、社会经济地位)。按顺序提取了经过系统筛选的期刊编委会成员的相关信息,并将职位划分为五个编辑角色。卡方检验用于研究编辑的性别和地理分布之间的关系,以及期刊的Medline索引及其影响因素。在包括在内的43种期刊中,62.7%来自两个高收入国家。女性占编辑总数的44%。在所有编委会成员中,我们没有发现任何信息表明非二元和跨性别个体的代表性。此外,68.2%的编辑来自高收入国家,67.3%的编辑属于全球北方。在所有五个编辑角色中都观察到了这种地理区域和社会经济水平的差异。在所有女性编辑中,70%以上在非Medline和非影响因素期刊工作。只有两份期刊在JDI上获得了“优秀”的评价。尽管全球卫生伦理的定义不断演变,但边缘化个人及其观点在这一领域的代表性仍然不足。因此,我们呼吁在全球和国际卫生期刊编辑委员会的权力下放和重新分配方面迅速采取行动。
{"title":"Diversity, Equity, and Inclusion on Editorial Boards of Global Health Journals","authors":"Muhammad Romail Manan,&nbsp;Iqra Nawaz,&nbsp;Sara Rahman,&nbsp;Areeba Razzaq,&nbsp;Fatima Zafar,&nbsp;Arisha Qazi,&nbsp;Kiera Liblik","doi":"10.1007/s41649-023-00243-8","DOIUrl":"10.1007/s41649-023-00243-8","url":null,"abstract":"<div><p>\u0000Journals have been described as “duty bearers” of upholding fundamental ethical principles that are essential for maintaining the ethical integrity of newly generated and disseminated knowledge. To play our part, we evaluated diversity and inclusion in the leadership and management of global and international health journals. We developed Journal Diversity Index (JDI) to measure three parameters of diversity and representation (gender, geographic, socioeconomic status). Relevant information regarding editorial board members of systematically screened journals was sequentially extracted and job titles were categorized into five editorial roles. Chi-squared test was utilized to study associations between gender and geographic distribution of editors along with the Medline indexing of the journal and its impact factor. Out of 43 journals included, 62.7% were published from two high-income countries. Women comprised 44% of the total editors. Among all the editorial board members, we did not find any information suggesting the representation of non-binary and transgender individuals. Furthermore, 68.2% of editors were based in high-income countries with 67.3% of the editors belonging to the Global North. This disparity in geographic region and socioeconomic level was observed across all five editorial roles. Among all women editors, more than 70% worked in non-Medline and non-impact factor journals. Only two journals scored “excellent” on JDI. Despite the continuous evolution of the definition of global health ethics, marginalized individuals, and their perspectives remain underrepresented in this field. Thus, we call for swift action regarding the decentralization and redistribution of global and international health journal editorial boards.</p></div>","PeriodicalId":44520,"journal":{"name":"Asian Bioethics Review","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2023-03-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://link.springer.com/content/pdf/10.1007/s41649-023-00243-8.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10123700","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
Optimism about Measuring Animal Feelings 测量动物情感的乐观主义。
IF 2.9 Q1 Arts and Humanities Pub Date : 2023-03-15 DOI: 10.1007/s41649-023-00244-7
Heather Browning, Walter Veit

While animal sentience research has flourished in the last decade, scepticism about our ability to accurately measure animal feelings has unfortunately remained fairly common. Here, we argue that evolutionary considerations about the functions of feelings will give us more reason for optimism and outline a method for how this might be achieved.

尽管动物感知研究在过去十年中蓬勃发展,但不幸的是,对我们准确测量动物感受的能力的怀疑仍然相当普遍。在这里,我们认为,对感觉功能的进化考虑将给我们更多乐观的理由,并概述如何实现这一点的方法。
{"title":"Optimism about Measuring Animal Feelings","authors":"Heather Browning,&nbsp;Walter Veit","doi":"10.1007/s41649-023-00244-7","DOIUrl":"10.1007/s41649-023-00244-7","url":null,"abstract":"<div><p>While animal sentience research has flourished in the last decade, scepticism about our ability to accurately measure animal feelings has unfortunately remained fairly common. Here, we argue that evolutionary considerations about the functions of feelings will give us more reason for optimism and outline a method for how this might be achieved.</p></div>","PeriodicalId":44520,"journal":{"name":"Asian Bioethics Review","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2023-03-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://link.springer.com/content/pdf/10.1007/s41649-023-00244-7.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9736458","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Genetic Data Governance in Japanese Hospitals 日本医院的基因数据治理。
IF 2.9 Q1 Arts and Humanities Pub Date : 2023-03-08 DOI: 10.1007/s41649-023-00242-9
Mizuho Yamazaki Suzuki, Yuko Ohnuki, Kei Takeshita

Abstract 

The storage and access of genetic testing results have unique considerations for medical records. Initially, genetic testing was limited to patients with single gene diseases. Genetic medicine and testing have expanded, as have concerns about appropriately handling genetic information. In this study, we surveyed the management of genetic information in general hospitals in Japan using a questionnaire on access restrictions. Our questions included whether any other medical information was managed in a unique way. We identified 1037 hospitals designated for clinical training located throughout Japan and received responses from 258 hospitals, and 191 reported that they handle genetic information and results of genetic tests. Of the 191 hospitals that handle genetic information, 112 hospitals implement access restrictions to genetic information. Seventy-one hospitals, one of which uses paper medical records rather than electrical medical records, do not enforce access restrictions. For eight hospitals, it was not known whether access restrictions were enforced or not. The responses from these hospitals indicated that access restrictions and storage methods varied across institution type (e.g., general vs. university hospitals), institution size, and the presence of a clinical genetics department. Other information, such as infectious disease diagnosis, psychological counseling records, abuse, and criminal history, was also subject to access restriction in 42 hospitals. The disparity in how medical facilities handle sensitive genetic information demonstrates a need for discussion between medical professionals and the general public on the storage of sensitive records, including genetic information.

基因检测结果的存储和获取对医疗记录有着独特的考虑。最初,基因检测仅限于患有单基因疾病的患者。基因医学和检测已经扩大,对适当处理基因信息的担忧也在扩大。在这项研究中,我们使用一份关于访问限制的问卷调查了日本综合医院的遗传信息管理情况。我们的问题包括是否以独特的方式管理任何其他医疗信息。我们确定了位于日本各地的1037家指定进行临床培训的医院,并收到了258家医院的回复,191家医院报告称,它们处理基因信息和基因检测结果。在191家处理基因信息的医院中,有112家医院实施了对基因信息的访问限制。71家医院,其中一家使用纸质医疗记录而非电子医疗记录,不执行访问限制。对于八家医院,尚不清楚是否实施了出入限制。这些医院的回复表明,访问限制和存储方法因机构类型(例如,普通医院与大学医院)、机构规模和临床遗传学部门的存在而有所不同。其他信息,如传染病诊断、心理咨询记录、虐待和犯罪史,也在42家医院受到访问限制。医疗机构处理敏感基因信息的方式存在差异,这表明医疗专业人员和公众需要就包括基因信息在内的敏感记录的存储进行讨论。补充信息:在线版本包含补充材料,请访问10.1007/s41649-023-00242-9。
{"title":"Genetic Data Governance in Japanese Hospitals","authors":"Mizuho Yamazaki Suzuki,&nbsp;Yuko Ohnuki,&nbsp;Kei Takeshita","doi":"10.1007/s41649-023-00242-9","DOIUrl":"10.1007/s41649-023-00242-9","url":null,"abstract":"<div><h2>Abstract </h2><div><p>The storage and access of genetic testing results have unique considerations for medical records. Initially, genetic testing was limited to patients with single gene diseases. Genetic medicine and testing have expanded, as have concerns about appropriately handling genetic information. In this study, we surveyed the management of genetic information in general hospitals in Japan using a questionnaire on access restrictions. Our questions included whether any other medical information was managed in a unique way. We identified 1037 hospitals designated for clinical training located throughout Japan and received responses from 258 hospitals, and 191 reported that they handle genetic information and results of genetic tests. Of the 191 hospitals that handle genetic information, 112 hospitals implement access restrictions to genetic information. Seventy-one hospitals, one of which uses paper medical records rather than electrical medical records, do not enforce access restrictions. For eight hospitals, it was not known whether access restrictions were enforced or not. The responses from these hospitals indicated that access restrictions and storage methods varied across institution type (e.g., general vs. university hospitals), institution size, and the presence of a clinical genetics department. Other information, such as infectious disease diagnosis, psychological counseling records, abuse, and criminal history, was also subject to access restriction in 42 hospitals. The disparity in how medical facilities handle sensitive genetic information demonstrates a need for discussion between medical professionals and the general public on the storage of sensitive records, including genetic information.</p></div></div>","PeriodicalId":44520,"journal":{"name":"Asian Bioethics Review","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2023-03-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://link.springer.com/content/pdf/10.1007/s41649-023-00242-9.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9714062","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Ethics and Evidence: Mapping New Paths Through Bioethical Controversies 伦理与证据:通过生物伦理争议绘制新路径
IF 2.9 Q1 Arts and Humanities Pub Date : 2023-02-22 DOI: 10.1007/s41649-023-00246-5
Graeme T. Laurie
{"title":"Ethics and Evidence: Mapping New Paths Through Bioethical Controversies","authors":"Graeme T. Laurie","doi":"10.1007/s41649-023-00246-5","DOIUrl":"10.1007/s41649-023-00246-5","url":null,"abstract":"","PeriodicalId":44520,"journal":{"name":"Asian Bioethics Review","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2023-02-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://link.springer.com/content/pdf/10.1007/s41649-023-00246-5.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9309802","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Ethics Guideline Development for Neuroscience Research involving Patients with Mental Illness in Japan 日本精神疾病患者神经科学研究伦理指南的制定。
IF 2.9 Q1 Arts and Humanities Pub Date : 2023-02-10 DOI: 10.1007/s41649-023-00240-x
Yoshiyuki Takimoto, Akifumi Shimanouchi

This study aims to develop guidelines of key concepts and specific considerations to make the research more ethical when conducting neurological examinations and treatment interventions in mentally ill patients. We analyzed guideline development theory and literature, previous issues, and discussions with specialists of philosophy, medicine, sociology, and bioethics. The selection of research participants, drafting of intervention plans, and informed consent process were examined with reference to the dual burden; the minimal risk as a general rule of ethical allowance levels, assent and dissent to assess the individual’s judgment capacity for consent, relational autonomy for personal consent with assistance by the proxy, and risk/benefit assessments. When conducting studies, this guideline requires that these three processes be set up appropriately on a case-by-case basis.

这项研究旨在制定关键概念和具体考虑的指南,使研究在对精神病患者进行神经检查和治疗干预时更符合伦理。我们分析了指导方针发展理论和文献,以前的问题,以及与哲学、医学、社会学和生物伦理学专家的讨论。参照双重负担审查了研究参与者的选择、干预计划的起草和知情同意程序;最低风险作为道德允许水平的一般规则,评估个人同意判断能力的同意和反对,在代理人的帮助下个人同意的关系自主权,以及风险/收益评估。在进行研究时,本指南要求根据具体情况适当设置这三个过程。补充信息:在线版本包含补充材料,请访问10.1007/s41649-023-00240-x。
{"title":"Ethics Guideline Development for Neuroscience Research involving Patients with Mental Illness in Japan","authors":"Yoshiyuki Takimoto,&nbsp;Akifumi Shimanouchi","doi":"10.1007/s41649-023-00240-x","DOIUrl":"10.1007/s41649-023-00240-x","url":null,"abstract":"<div><p>This study aims to develop guidelines of key concepts and specific considerations to make the research more ethical when conducting neurological examinations and treatment interventions in mentally ill patients. We analyzed guideline development theory and literature, previous issues, and discussions with specialists of philosophy, medicine, sociology, and bioethics. The selection of research participants, drafting of intervention plans, and informed consent process were examined with reference to the dual burden; the minimal risk as a general rule of ethical allowance levels, assent and dissent to assess the individual’s judgment capacity for consent, relational autonomy for personal consent with assistance by the proxy, and risk/benefit assessments. When conducting studies, this guideline requires that these three processes be set up appropriately on a case-by-case basis.</p></div>","PeriodicalId":44520,"journal":{"name":"Asian Bioethics Review","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2023-02-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://link.springer.com/content/pdf/10.1007/s41649-023-00240-x.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41171108","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Poor Representation of Developing Countries in Editorial Boards of Leading Obstetrics and Gynaecology Journals 发展中国家在主要妇产科期刊编辑委员会中的代表性较差
IF 2.9 Q1 Arts and Humanities Pub Date : 2023-02-07 DOI: 10.1007/s41649-023-00241-w
Seema Rawat, Priyanka Mathe, Vishnu B. Unnithan, Pratyush Kumar, Kumar Abhishek, Nazia Praveen, Kiran Guleria

Evidence suggests a limited contribution to the total research output in leading obstetrics and gynaecology journals by researchers from the developing world. Editorial bias, quality of scientific research produced and language barriers have been attributed as possible causes for this phenomenon. The aim of this study was to understand the prevalence of editorial board members based out of low and lower-middle income countries in leading journals in the field of obstetrics and gynaecology. The top 21 journals in the field of obstetrics and gynaecology were selected based on their impact factor, SCImago ranking and literature search. The composition of the editorial boards of these journals was studied based on World Bank Income Criteria to understand the representation status of researchers from low and lower-middle income countries. A total of 1315 board members make up the editorial composition of leading obstetrics and gynaecology journals. The majority of these editors belong to high-income countries (n = 1148; 87.3%). Low (n = 6; 0.45%) and lower-middle income (n = 55; 4.18%) countries make up for a very minuscule proportion of editorial board members. Only a meagre 9 out of 21 journals have editorial board members from these countries (42.85%). Low and low-middle countries have poor representation in the editorial boards of leading obstetrics and gynaecology journals. Poor representation in research from these countries has grave consequences for a large proportion of the global population and multidisciplinary collaborative efforts must be taken to rapidly change this statistic with immediate effect.

有证据表明,发展中国家的研究人员对主流妇产科期刊的总研究成果贡献有限。编辑偏见、科学研究的质量和语言障碍被认为是造成这种现象的可能原因。本研究的目的是了解来自中低收入国家的编委会成员在妇产科领域领先期刊中的患病率。根据影响因素、SCImago排名和文献检索,评选出妇产科领域排名前21位的期刊。根据世界银行收入标准对这些期刊编委会的组成进行了研究,以了解中低收入国家研究人员的代表地位。共有1315名董事会成员组成了主要妇产科期刊的编辑组成部分。这些编辑中的大多数属于高收入国家(n=1148;87.3%)。低收入(n=6;0.45%)和中低收入(n=55;4.18%)国家在编委会成员中所占比例非常小。在21种期刊中,只有极少数9种期刊的编委会成员来自这些国家(42.85%)。低收入和中低收入国家在主要妇产科期刊编委会中的代表性很差。这些国家在研究中的代表性不足对全球很大一部分人口造成了严重后果,必须采取多学科合作努力,迅速改变这一统计数字,并立即生效。
{"title":"Poor Representation of Developing Countries in Editorial Boards of Leading Obstetrics and Gynaecology Journals","authors":"Seema Rawat,&nbsp;Priyanka Mathe,&nbsp;Vishnu B. Unnithan,&nbsp;Pratyush Kumar,&nbsp;Kumar Abhishek,&nbsp;Nazia Praveen,&nbsp;Kiran Guleria","doi":"10.1007/s41649-023-00241-w","DOIUrl":"10.1007/s41649-023-00241-w","url":null,"abstract":"<div><p>Evidence suggests a limited contribution to the total research output in leading obstetrics and gynaecology journals by researchers from the developing world. Editorial bias, quality of scientific research produced and language barriers have been attributed as possible causes for this phenomenon. The aim of this study was to understand the prevalence of editorial board members based out of low and lower-middle income countries in leading journals in the field of obstetrics and gynaecology. The top 21 journals in the field of obstetrics and gynaecology were selected based on their impact factor, SCImago ranking and literature search. The composition of the editorial boards of these journals was studied based on World Bank Income Criteria to understand the representation status of researchers from low and lower-middle income countries. A total of 1315 board members make up the editorial composition of leading obstetrics and gynaecology journals. The majority of these editors belong to high-income countries (<i>n</i> = 1148; 87.3%). Low (<i>n</i> = 6; 0.45%) and lower-middle income (<i>n</i> = 55; 4.18%) countries make up for a very minuscule proportion of editorial board members. Only a meagre 9 out of 21 journals have editorial board members from these countries (42.85%). Low and low-middle countries have poor representation in the editorial boards of leading obstetrics and gynaecology journals. Poor representation in research from these countries has grave consequences for a large proportion of the global population and multidisciplinary collaborative efforts must be taken to rapidly change this statistic with immediate effect.</p></div>","PeriodicalId":44520,"journal":{"name":"Asian Bioethics Review","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2023-02-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://link.springer.com/content/pdf/10.1007/s41649-023-00241-w.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10106078","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
期刊
Asian Bioethics Review
全部 Acc. Chem. Res. ACS Applied Bio Materials ACS Appl. Electron. Mater. ACS Appl. Energy Mater. ACS Appl. Mater. Interfaces ACS Appl. Nano Mater. ACS Appl. Polym. Mater. ACS BIOMATER-SCI ENG ACS Catal. ACS Cent. Sci. ACS Chem. Biol. ACS Chemical Health & Safety ACS Chem. Neurosci. ACS Comb. Sci. ACS Earth Space Chem. ACS Energy Lett. ACS Infect. Dis. ACS Macro Lett. ACS Mater. Lett. ACS Med. Chem. Lett. ACS Nano ACS Omega ACS Photonics ACS Sens. ACS Sustainable Chem. Eng. ACS Synth. Biol. Anal. Chem. BIOCHEMISTRY-US Bioconjugate Chem. BIOMACROMOLECULES Chem. Res. Toxicol. Chem. Rev. Chem. Mater. CRYST GROWTH DES ENERG FUEL Environ. Sci. Technol. Environ. Sci. Technol. Lett. Eur. J. Inorg. Chem. IND ENG CHEM RES Inorg. Chem. J. Agric. Food. Chem. J. Chem. Eng. Data J. Chem. Educ. J. Chem. Inf. Model. J. Chem. Theory Comput. J. Med. Chem. J. Nat. Prod. J PROTEOME RES J. Am. Chem. Soc. LANGMUIR MACROMOLECULES Mol. Pharmaceutics Nano Lett. Org. Lett. ORG PROCESS RES DEV ORGANOMETALLICS J. Org. Chem. J. Phys. Chem. J. Phys. Chem. A J. Phys. Chem. B J. Phys. Chem. C J. Phys. Chem. Lett. Analyst Anal. Methods Biomater. Sci. Catal. Sci. Technol. Chem. Commun. Chem. Soc. Rev. CHEM EDUC RES PRACT CRYSTENGCOMM Dalton Trans. Energy Environ. Sci. ENVIRON SCI-NANO ENVIRON SCI-PROC IMP ENVIRON SCI-WAT RES Faraday Discuss. Food Funct. Green Chem. Inorg. Chem. Front. Integr. Biol. J. Anal. At. Spectrom. J. Mater. Chem. A J. Mater. Chem. B J. Mater. Chem. C Lab Chip Mater. Chem. Front. Mater. Horiz. MEDCHEMCOMM Metallomics Mol. Biosyst. Mol. Syst. Des. Eng. Nanoscale Nanoscale Horiz. Nat. Prod. Rep. New J. Chem. Org. Biomol. Chem. Org. Chem. Front. PHOTOCH PHOTOBIO SCI PCCP Polym. Chem.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1