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Couples’ experiences of using DemPower in everyday life 夫妻在日常生活中使用DemPower的经验
IF 1.5 Q2 Nursing Pub Date : 2020-07-24 DOI: 10.1108/qaoa-10-2019-0059
T. Bielsten, J. Keady, Agneta Kullberg, R. Lasrado, I. Hellström
PurposeInterventions aimed at couples where one partner has dementia are often targeting burden, depression and cognitive function and do not focus on relationship and interpersonal issues. Furthermore, interventions within this population do not seem to have embraced a salutogenic and authentic dyadic approach where both partners’ experiences are considered. To address this gap, a self-management app, DemPower, which was piloted and tested among couples where one partner has dementia living at home, has been developed. This study explores couples‘ everyday experiences of engaging with the DemPower.Design/methodology/approachSemi-structured interviews with couples were analysed using thematic analysis.FindingsThe findings resulted in the following themes: growth of the relationship; we are not alone; and positive approach. The findings indicated that the experiences of a salutogenic and dyadic intervention can contribute to the feelings of empowerment, satisfaction of couples’ achievements and a sense of support through peers and with the intervention itself.Originality/valueThe findings of this study indicate that couples where one partner has dementia appreciate interventions that focuses on a salutogenic approach to their everyday life and relationship. The dyadic intervention contributed to feelings of empowerment, satisfaction of couples’ achievements and a sense of support through peers and through the intervention itself. Discussing, inventory and focus on strengths, resources and quality of life can therefore give couples insight in their growth of the relationship and their transitions during the dementia trajectory. Furthermore, this study can serve as an eye opener in health care for the type of support couples need and wishes to receive. This means that care for people with dementia and partners should adopt a more health-promoting approach.
目的:针对一方患有痴呆症的夫妇的干预措施通常针对负担、抑郁和认知功能,而不是关注关系和人际问题。此外,在这一人群中的干预措施似乎没有采用一种健康和真实的二元方法,在这种方法中,双方的经历都被考虑在内。为了弥补这一差距,一款名为DemPower的自我管理应用程序已经被开发出来,在其中一方患有痴呆症的家庭中进行了试点和测试。这项研究探讨了夫妻与DemPower互动的日常体验。设计/方法/方法采用主题分析对夫妇进行半结构化访谈。研究结果得出了以下主题:关系的发展;我们并不孤单;积极的态度。研究结果表明,有益健康和二元干预的经历可以促进赋权的感觉,对夫妻成就的满意度,以及通过同伴和干预本身获得的支持感。原创性/价值本研究的发现表明,一方患有痴呆症的夫妇更喜欢对他们的日常生活和关系采取有益健康的干预措施。二元干预有助于增强赋权感、对夫妻成就的满意度,以及通过同伴和干预本身获得的支持感。因此,对优势、资源和生活质量进行讨论、盘点和关注,可以让夫妻了解他们关系的发展以及他们在痴呆症发展过程中的转变。此外,本研究可以为夫妻需要和希望获得的支持类型的卫生保健提供启示。这意味着对痴呆症患者及其伴侣的护理应采取更加促进健康的方法。
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引用次数: 5
Editorial 编辑
IF 1.5 Q2 Nursing Pub Date : 2020-07-16 DOI: 10.1108/qaoa-06-2020-068
F. Poland
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引用次数: 0
Exploring the role of volunteers in social care for older adults 探讨志愿者在老年人社会护理中的作用
IF 1.5 Q2 Nursing Pub Date : 2020-06-17 DOI: 10.1108/qaoa-02-2020-0005
A. Cameron, Eleanor K. Johnson, Pauline Willis, L. Lloyd, Randall Smith
PurposeThis paper aims to report the findings of a study that explores the contribution volunteers make to social care for older adults, identifying lessons for the social care sector and policymakers.Design/methodology/approachAn exploratory multiple case study design was used to capture the perspectives and experiences of managers of services, volunteer co-ordinators, volunteers, paid care staff and older people. Seven diverse social care organisations took part in the study drawn from three locations in the South West of England.FindingsThis study identified three distinct models of volunteer contribution to social care services for older people. Although the contributions made by volunteers to services are valued, the study drew attention to some of the challenges related to their involvement.Research limitations/implicationsThe organisations taking part in this small-scale study were all based in the South West of England, and the findings are therefore not generalisable but contribute to the growing evidence base related to this important field.Practical implicationsThis study demonstrates the importance of the volunteer co-ordinator role and suggests that it is properly funded and resourced. It also confirms the importance of volunteers receiving appropriate training and support.Originality/valueGiven the increasing involvement of volunteers in the provision of social care, this paper provides lessons to ensure the role of volunteers in social care enhances rather than diminishes the quality of care provided.
本文旨在报告一项研究的结果,探讨志愿者对老年人社会护理的贡献,为社会护理部门和政策制定者提供经验教训。设计/方法/方法采用探索性多案例研究设计来捕捉服务经理、志愿者协调员、志愿者、有偿护理人员和老年人的观点和经验。七个不同的社会关怀组织参与了这项研究,这些组织来自英格兰西南部的三个地方。本研究确定了志愿者为老年人社会关怀服务做出贡献的三种不同模式。虽然志愿人员对服务的贡献受到重视,但这项研究提请注意与他们的参与有关的一些挑战。研究的局限性/意义参与这项小规模研究的组织都位于英格兰西南部,因此研究结果不具有普遍性,但有助于增加与这一重要领域相关的证据基础。实际意义这项研究证明了志愿者协调员角色的重要性,并表明它得到了适当的资助和资源。它还证实了志愿人员接受适当培训和支持的重要性。原创性/价值鉴于越来越多的志愿者参与提供社会关怀,本文提供了一些经验教训,以确保志愿者在社会关怀中的作用提高而不是降低所提供的关怀质量。
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引用次数: 5
Everybody S***s: how defecation stigma reduces care quality in dementia 每个人都在说:排便的耻辱如何降低痴呆症的护理质量
IF 1.5 Q2 Nursing Pub Date : 2020-05-15 DOI: 10.1108/qaoa-07-2019-0039
Leah Hewer-Richards, Dawn Goodall
Purpose: This paper aims to raise awareness of the ways in which faecal incontinence can impact the provision of dementia care by examining this through the lens of stigma. Design/methodology/approach: This paper contains a scoping review of available literature relating to faecal incontinence, dementia and stigma. Findings: Literature was organised into three themes: the origins of the stigma, the purpose of stigma and the care context. Research limitations/implications: Limitations of this paper include the lack of literature discussing faecal incontinence and dementia in relation to stigma. Practical implications: Stigma regarding faecal incontinence has the potential to impact quality of life of people with a dementia and contributes towards the invisible work of unqualified care workers. Originality/value: Stigma and faecal incontinence have only a small amount of research around them in residential dementia care.
目的:本文旨在通过污名化的视角来研究大便失禁对痴呆症护理的影响,从而提高人们对大便失禁影响痴呆症护理方式的认识。设计/方法/方法:本文对与大便失禁、痴呆和污名有关的现有文献进行了范围审查。研究结果:文献分为三个主题:污名的起源、污名的目的和护理背景。研究局限性/影响:本文的局限性包括缺乏讨论粪便失禁和痴呆症与耻辱感的文献。实际意义:关于大便失禁的污名有可能影响痴呆症患者的生活质量,并导致不合格护理人员的隐形工作。独创性/价值:在住院痴呆症护理中,对臭味和大便失禁的研究很少。
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引用次数: 0
Exercise and dementia: what should we be recommending? 运动与痴呆症:我们应该推荐什么?
IF 1.5 Q2 Nursing Pub Date : 2020-05-13 DOI: 10.1108/qaoa-10-2019-0053
Kiara Lewis, Leanne Livsey, Robert J. Naughton, Kim Burton
PurposeExercise has the potential to provide benefits for people living with dementia, yet the balance of evidence is uncertain. This paper aims to provide an evidence synthesis to determine whether exercise improves their health and well-being and what exercise should be recommended.Design/methodology/approachStructured search for existing literature reviews on exercise for dementia. Relevant articles were selected and critically appraised against systematic criteria. The findings from 15 high quality reviews were collated by using a best evidence synthesis approach.FindingsThe evidence is convincing for improving physical health, promising for cognitive benefits, mixed for psychological benefits and limited for behavioural outcomes. No evidence of harm was found. Overall, exercise can improve physical and mental health for people living with dementia: there is sufficient evidence to recommend multimodal exercise.Social implicationsThe potential beneficial outcomes are of significant importance both for people with dementia and their caregivers. In the absence of more specific findings, the current recommendation for older adults in general is pragmatically justified – some activity is better than none, more activity provides greater benefits. Adding social interaction may be important for psychological and behavioural outcomes.Originality/valueTo the best of the authors’ knowledge, this paper is the first to encapsulate the literature to date on exercise for dementia. Combining the findings from previous reviews enabled a novel synthesis across the range of relevant interventions and outcomes.
目的锻炼有可能为痴呆症患者提供益处,但证据的平衡尚不确定。本文旨在提供一个证据综合,以确定运动是否能改善他们的健康和幸福感,以及应该推荐什么运动。设计/方法/方法对痴呆症运动的现有文献综述进行结构化搜索。选择相关文章,并根据系统标准进行批判性评价。使用最佳证据综合方法对15篇高质量综述的结果进行了整理。发现这些证据对改善身体健康有说服力,对认知有益,对心理有益,对行为结果有限。没有发现伤害的证据。总的来说,锻炼可以改善痴呆症患者的身心健康:有足够的证据建议进行多模式锻炼。社会影响潜在的有益结果对痴呆症患者及其护理人员都具有重要意义。在没有更具体的发现的情况下,目前对老年人的建议总体上是合理的——有些活动总比没有好,更多的活动带来更大的好处。增加社交互动可能对心理和行为结果很重要。原创性/价值据作者所知,本文是迄今为止第一篇综述痴呆症运动的文献。结合先前综述的发现,能够对一系列相关干预措施和结果进行新的综合。
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引用次数: 1
Sleep disturbances in adults with frailty and sarcopenia 虚弱和少肌症成年人的睡眠障碍
IF 1.5 Q2 Nursing Pub Date : 2020-04-29 DOI: 10.1108/qaoa-05-2019-0021
R. Chiba, Yuki Ohashi, A. Ozaki
Several epidemiological studies have reported an age-related increase in the prevalence of sleep disturbances. This study aims to investigate the relationship between sleep and sarcopenia/frailty in older adults and clarify issues that remain to be addressed in future studies.,PubMed was searched for relevant studies with the following keywords in the title: “sleep” and “sarcopenia” or “sleep” and “frailty.” A total of 15 studies published in English between 1998 and 2018 were reviewed.,Among the four studies that examined the relationship between sarcopenia and sleep, two reported that long or short sleep duration increased the risk of sarcopenia and this association was more pronounced in women than men. Among the seven studies examining the relationship between frailty and sleep, four reported that higher Pittsburgh Sleep Quality Index (PSQI) scores were associated with an increased risk of frailty.,Most previous studies have focused on interventions targeting a single area such as muscle strength or exercise habits, in older adults at risk for frailty. The results suggest that interventions targeting improved sleep may positively impact the maintenance of muscle strength.,The literature review revealed that too much or too little sleep increases the risk of sarcopenia in older adults. Further, sleep deprivation, greater night-time wakefulness and reduced sleep quality increase the risk of frailty. Interestingly, the risk of mortality is increased in individuals with daytime functional disorders such as excessive drowsiness or napping habits.
几项流行病学研究报告称,与年龄相关的睡眠障碍患病率增加。本研究旨在调查老年人睡眠与少肌症/虚弱之间的关系,并澄清未来研究中有待解决的问题。,PubMed在标题中搜索了以下关键词的相关研究:“睡眠”和“少肌症”或“睡眠”与“虚弱”。共回顾了1998年至2018年间以英语发表的15项研究。,在四项研究少肌症与睡眠之间关系的研究中,有两项报告称,睡眠时间长或短会增加少肌症的风险,这种关联在女性中比男性更明显。在研究虚弱与睡眠之间关系的七项研究中,有四项报告称,匹兹堡睡眠质量指数(PSQI)得分越高,虚弱风险越高。,以前的大多数研究都集中在针对有虚弱风险的老年人的单一领域的干预措施上,如肌肉力量或锻炼习惯。结果表明,针对改善睡眠的干预措施可能对肌肉力量的维持产生积极影响。,文献综述显示,睡眠过多或过少会增加老年人少肌症的风险。此外,睡眠不足、夜间清醒度升高和睡眠质量下降会增加虚弱的风险。有趣的是,患有日间功能紊乱(如过度嗜睡或打盹习惯)的人的死亡率会增加。
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引用次数: 2
“Circles of support”: social isolation, targeted assistance, and the value of “ageing in place” for older people “支持圈”:社会孤立、有针对性的援助以及“就地老龄化”对老年人的价值
IF 1.5 Q2 Nursing Pub Date : 2020-04-15 DOI: 10.1108/qaoa-05-2019-0022
E. Bolton, R. Dacombe
This study aims to explore the experiences of older people “ageing in place”, focussing on the implementation of “Circles of Support”, a pilot intervention aimed at mitigating the risk of hospitalisation amongst socially-isolated older people.,The study draws on qualitative research, taking in semi-structured interviews with participants in the intervention and with community networkers involved in delivering the programme.,The research provides indicative findings supporting the idea that social isolation is linked to health issues amongst older people. It also suggests that targeted interventions can go some way to mitigating this problem. The findings presented here also indicate the importance of a deeper understanding of the lived experiences of socially-isolated older people in designing and delivering interventions.,The study contribution is in three areas. It presents findings based on the pilot programme relating to the experiences of older people at risk of social isolation and provides an indication of the value of interventions aimed at tackling social isolation, connecting these to the risk of hospitalisation.
这项研究的目的是探索老年人"就地老龄化"的经验,重点是"支持圈"的实施,这是一项旨在减轻社会孤立的老年人住院风险的试点干预措施。该研究采用了定性研究,对参与干预的参与者和参与实施该方案的社区网络进行了半结构化访谈。这项研究提供了指示性的发现,支持社会孤立与老年人的健康问题有关的观点。它还表明,有针对性的干预措施可以在一定程度上缓解这一问题。这里提出的研究结果还表明,在设计和提供干预措施时,更深入地了解社会孤立老年人的生活经历非常重要。本研究的贡献在三个方面。报告介绍了基于试点方案的调查结果,涉及面临社会孤立风险的老年人的经历,并指出了旨在解决社会孤立问题的干预措施的价值,将这些措施与住院风险联系起来。
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引用次数: 2
Exercise and perceived quality of life among frail older adults 体弱多病老年人的运动和感知生活质量
IF 1.5 Q2 Nursing Pub Date : 2020-03-23 DOI: 10.1108/qaoa-08-2019-0047
Ofer I. Atad, Dafna Caspi
PurposeThe purpose of this paper is to explore the association between level of physical activity (PA) and perception of quality of life (QOL) and physical health in frail and non-frail older adults.Design/methodology/approachVolunteer participants in this quantitative cross-sectional study were a convenience sample of 236 independent residents (120 frail, 116 non-frail) in an assisted living facility in Israel. Frailty was measured by Fried et al.’s phenotype; QOL and physical health were measured using the World Health Organization Quality of Life Instruments (WHOQOL-BREF) questionnaire. PA level was ascertained from attendance lists completed by exercise class instructors in each class during the eight-week study.FindingsFrail older adults who engaged in regular PA (at least 2.5 h/week) reported the same physical health as non-frail older individuals performing a similar level.Research limitationsUnsupervised PA performed independently was not taken into consideration; exercise class attendance may be a less reliable criterion of PA than collection of objective data, i.e. calories burned; participants were selected from an economically homogeneous population of a specific assisted living facility with easy access to a variety of PA.Practical implicationsThe level of PA performed by frail older adults impacts their perceived QOL and physical health. The logs were an incentive to attend PA classes.Originality/valueA minimum of 2.5 h a week of regular PA can be a protective factor that improves perceived QOL and physical health in frail older adults.
目的探讨体弱和非体弱老年人身体活动水平(PA)与生活质量感知(QOL)和身体健康之间的关系。设计/方法/方法这项定量横断面研究的志愿者参与者是以色列一家辅助生活机构的236名独立居民(120名体弱,116名非体弱)的方便样本。脆弱性采用Fried等人的表型测定;使用世界卫生组织生活质量量表(WHOQOL-BREF)问卷测量生活质量和身体健康状况。在为期八周的研究中,PA水平是根据每班运动课教师完成的出勤名单确定的。研究结果:体弱多病的老年人定期参加体育锻炼(每周至少2.5小时),其身体健康状况与非体弱多病的老年人进行类似水平的体育锻炼相同。研究局限性:未考虑独立进行的sunsupervised PA;与收集客观数据(即卡路里燃烧)相比,运动课出勤率可能是一个不太可靠的PA标准;参与者从经济上相同的人群中选择,他们住在一个特定的辅助生活设施中,可以很容易地获得各种PA。实际意义体弱多病老年人的生活质量水平影响其感知生活质量和身体健康。这些日志是参加私人助理课程的动力。对于体弱多病的老年人来说,每周至少2.5小时的常规PA是改善生活质量和身体健康的保护因素。
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引用次数: 5
Joining-the-dots: caring for patients in advanced age 结合点:照顾老年病人
IF 1.5 Q2 Nursing Pub Date : 2020-03-09 DOI: 10.1108/qaoa-08-2019-0042
Philippa Miskelly, N. Kerse, J. Wiles
Managing patients in advanced age is complex, especially when it comes to multi-morbidities and polypharmacy. The purpose of this qualitative study is to investigate challenges, opportunities and potential solutions from a primary healthcare provider perspective.,Fifty-seven participants joined in group discussions on challenges and opportunities of working with advanced age. Participants included general practitioners (GPs), practice nurses, students and administration staff working in ten general practices. A thematic analysis was developed, supported by NVivo software.,Poor lines of communication and fragmentation of services between differing levels of health care services available for older people were highlighted. This has implications for quality of care and equity of services. Participants also reported challenges in treatment and funding regimes.,The small sample size and regional nature of the study, along with the semi-structured nature of the group discussions and rigorous thematic analysis, indicate that this qualitative data is transferable, dependable, confirmable and credible. Comparing the views of tertiary and community services would be useful.,A range of potential strategies and solutions to the current fragmented services was offered by GPs. For example, adequately funded and staffed community-based health hubs; IT platforms enabling timely flow of patient information between primary and tertiary health providers and creation of medical, nursing and allied health roles aimed at improving synergy between GP and tertiary services.,Obtaining the perspectives of general practice highlights the challenges and complexities of caring for those in advanced age brings. These insights have not been previously been explored in-depth within this setting in New Zealand.
管理老年患者是复杂的,特别是当涉及到多种疾病和多种药物。本定性研究的目的是从初级保健提供者的角度调查挑战、机遇和潜在的解决方案。,五十七名参加者参加小组讨论,探讨高龄人士工作的挑战和机遇。参与者包括全科医生(gp)、执业护士、学生和在十个全科诊所工作的行政人员。在NVivo软件的支持下,进行了专题分析。强调了老年人可获得的不同级别保健服务之间的沟通渠道不畅和服务分散。这对护理的质量和服务的公平性有影响。与会者还报告了治疗和供资制度方面的挑战。研究的小样本量和区域性质,以及小组讨论的半结构化性质和严格的专题分析,表明这种定性数据是可转移的,可靠的,可确认的和可信的。比较高等教育服务和社区服务的意见是有益的。全科医生提出了一系列潜在的策略和解决方案,以解决目前分散的服务。例如,资金充足、人员配备充足的社区卫生中心;信息技术平台使初级和三级保健提供者之间能够及时地传递病人信息,并建立医疗、护理和联合保健角色,旨在改善全科医生和三级保健服务之间的协同作用。获得全科实践的观点强调了照顾老年人带来的挑战和复杂性。这些见解以前没有在新西兰的这个环境中进行过深入的探索。
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引用次数: 0
Editorial 社论
IF 1.5 Q2 Nursing Pub Date : 2020-03-09 DOI: 10.1108/qaoa-03-2020-067
F. Poland
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引用次数: 0
期刊
Quality in Ageing and Older Adults
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