Journal of Patient Experience最新文献

Patients hospitalized in an intensive care unit (ICU) are vulnerable to dehumanization. To provide ICU patients and their family members with more enjoyable and meaningful ICU experiences, our hospital has implemented out-of-ICU activities, including outdoor excursions and whole-body shower bathing as an early rehabilitation strategy. Herein, we investigated healthcare professionals' perceptions regarding how these out-of-ICU activities affect both the patients' physical and mental conditions and the humanized care of ICU patients. We conducted a survey that asked 17 questions (benefits, harms, "What if you or your family member were the one in the ICU?" and humanization) and provided a free-writing section. Thirty-six physicians, 38 nurses, 9 therapists, and 7 clinical engineering technicians responded (84% response rate). Most respondents perceived that the out-of-ICU program improves patients' conditions and promotes humanized care in the ICU. These preliminary findings provide valuable insights, though larger and more rigorous studies are needed to confirm and extend the results.

With artificial intelligence (AI) on the rise in healthcare, we investigated the acceptance and adoption of AI among cancer survivors who are seeking information. We searched 3 databases-PubMed, Scopus, and CINAHL for original research studies examining cancer survivors' acceptance and adoption of AI while seeking information. We screened 858 articles, resulting in the inclusion of 12 studies. Cancer survivors' perceived benefits of AI include diagnostic accuracy, improved healthcare access, and reduced healthcare costs. Concerns included the loss of human interaction, data loss, and privacy issues. Adoption and acceptance of AI-based Chatbots and cancer trial search tools were also demonstrated. Regarding the ethical use of AI, cancer survivors shared a desire for data de-identification, disclosure, and transparency. Cancer survivors accepted AI as an adjunct to physicians. Patients demonstrated acceptance and adoption of both AI-based educational tools and search engines. Developing AI models with better explainability and education can improve cancer survivors' acceptance and adoption of AI.

This pilot study evaluated the impact of a brief, animated educational video on patient understanding and satisfaction in a large urban academic emergency department (ED). A convenience sample of 23 patients viewed a 1-min 50-s video explaining triage, wait times, and ED workflows, then completed pre- and postintervention surveys. Statistically significant improvements were observed across all domains of understanding. Mean 4-point Likert scores rose from 2.48 to 3.93 (p < .0001) for understanding why patients wait, from 2.25 to 3.78 for why others may be seen first, and from 2.81 to 4.00 for overall ED processes. This intervention offers a low-cost, scalable, and staff-efficient solution to enhance communication, set expectations, and improve the overall patient experience in ED waiting rooms. These findings highlight the potential of patient-centered media to support transparency and trust in emergency care.

Pelvic inflammatory disease (PID) is often clinically associated with sexually transmitted infections, which can overshadow a broader differential diagnosis. This patient perspective explores the emotional and clinical consequences of an emergency department visit where assumptions about sexual activity delayed appropriate treatment and resulted in family conflict. As a college student from a conservative cultural background, I was disbelieved when disclosing that I had never been sexually active, and my worsening condition was attributed to denial rather than medical nuance. This piece underscores the importance of approaching patient narratives with cultural humility and avoiding premature diagnostic closure. Recommendations are made for improving history-taking, provider training, and restoring patient trust.

Heart failure (HF) is a chronic syndrome that is associated with frequent rehospitalization. Patient-focused research suggests that increased health-management activation may lead to favorable clinical outcomes. This article introduces a case study of the development of a patient education and activation tool for use by HF-specialist clinicians, "ENGAGE in HF," and advocates for wider adoption of co-creation involving people living with HF. Following a behavioral assessment of unmet needs in the HF-patient population in scientific literature, people living with HF were invited to comment on the content plan and excerpts from the tool. Afterwards, HF-specialist clinicians provided their scientific perspective and assessed the content's practical utility. The co-created tool aims to improve dialogue between clinicians and patients. It allows clinicians to personalize conversations, considering each patient's capacity to integrate information and their readiness to engage in shared decision making. Feedback from initial dissemination of the ENGAGE in HF tool among cardiologists in China suggests that use of such tools may lead to improvements in patient education, symptom management, and adherence to medication.

The purpose of this study was to explore the patient experience of individuals diagnosed with ocular melanoma (OM). This qualitative study was guided by Interpretive Description. Nine participants (N = 9) participated in interviews. A focus group (n = 7) was conducted at the end of the study to discuss and confirm themes. WORD, EXCEL, and NVIVO were used for data collection and analysis and EQUATOR guidelines (COREQ) were followed. This study revealed three themes: the entangled self, perils of survivorship, and self-advocacy. The participants in this study described how they discovered their OM, the treatments they faced, and the deep sense of loss from the disruption of sight. The participants also highlighted the importance of understanding OM as an ongoing, lifelong cancer experience that is rarely acknowledged by healthcare providers. Understanding the journey of OM patients as cancer survivors is critical for both oncology and general healthcare providers. With improved recognition, better patient-centered care could be provided affecting both physiological and psychological health of OM patients.

Patients face significant challenges throughout their treatment journey, including barriers to medication access and difficulties maintaining adherence. This industry insight presents an innovative shift from retrospective, reactive patient support to a proactive, real-time, data-driven model that enables precision engagement strategies delivering the right support at the right time. This work highlights how [Otsuka Precision Health] leverages its robust data platform to generate insights that inform individualized patient experiences. The core innovation lies in real-time integration of pharmacy claims, support cases, and payer information, which distinguishes this approach from traditional reactive support models. These insights empower Field Support Representatives to collaborate with patients and healthcare teams, to proactively improve access, adherence, and continuity of care. By addressing healthcare system complexities and patient challenges, Otsuka Precision Health Patient Services creates a more patient-centered model that streamlines treatment initiation and sustains adherence, ultimately enhancing health outcomes.

Parkinson's disease (PD) is a chronic neurodegenerative disorder requiring informed decision making, especially regarding advanced treatments such as deep brain stimulation (DBS). However, patient knowledge and perceptions in low-resource settings like Morocco remain poorly understood. This study assessed PD patients' knowledge and attitudes/perceptions toward DBS in Morocco. A cross-sectional study was conducted among PD patients in 5 cities in the Casablanca-Settat region. Data were collected using a 7-item PD knowledge tool and a DBS attitudes/perceptions questionnaire. A total of 370 patients were recruited, with a mean PD knowledge score of 4.5 out of 7, with higher scores linked to greater education. Only 31.9% had heard of DBS, and 39.4% were willing to undergo it if recommended. Willingness was higher among patients from the private sector, those with longer disease duration, and those at advanced stages. A common misconception was that DBS cures PD (25.9%). Barriers to DBS access included high cost, fear of surgery, lack of specialists, and insufficient information. Gaps in PD knowledge and misconceptions about DBS persist, highlighting the need for targeted educational initiatives in Morocco.

Patient experience must innovate and demonstrate impact alongside evolving healthcare systems, technology, and patient populations to meet demands and deliver excellent, high value care. Patient experience focuses largely on experience and satisfaction metrics from unique encounters, while burnout and turnover of healthcare team members persist, and the technology industry aims to disrupt healthcare delivery. Academic medical centers are well positioned to lead the way by conducting user and academic research to develop, test, and disseminate findings from successful interventions which are cocreated with patients and care teams. This article outlines three insight areas with opportunites for innovation toward this aim: focus on care experience in parallel of patient experience, integrate human-centered design as technology solutions are developed from the inside out, and measure and evaluate all interventions aimed at enhancing the care experience.

Living with cancer involves numerous challenges during illness journey, including a high rate of significant distress and an increased risk of psychiatric disorders. Addressing these complex and multidimensional needs requires innovative and patient-centered approaches. Integrative interventions, such as art-based practices, have shown evidence-based benefits in reducing symptoms of anxiety and depression in adults with cancer. However, access to such complementary interventions remains limited in routine clinical care. Our team developed and implemented a creative arts workshop specifically designed for cancer patients treated for comorbid psychiatric disorders as a complementary intervention to standard psychiatric care. This article briefly outlines the workshop, as well as some institutional and clinical challenges encountered during implementation. Actionable insights and practical recommendations for institutions interested in adopting similar initiatives are also discussed. By providing an engaging space for emotional expression, the creative arts workshop was well received by participants and contributed positively to their care experience. Future research should focus on its feasibility, acceptability, and effectiveness on psychological well-being and quality of life in this vulnerable population.