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Disability and health outcomes - from a cohort of people on long-term anti-retroviral therapy. 残疾和健康结果——来自长期抗逆转录病毒治疗的人群。
IF 1.1 4区 医学 Q2 Social Sciences Pub Date : 2018-12-01 DOI: 10.1080/17290376.2018.1459813
Hellen Myezwa, Jill Hanass-Hancock, Adedayo Tunde Ajidahun, Bradley Carpenter

Human-immunodeficiency virus (HIV)/Acquired immunodeficiency Syndrome (AIDS) remains a major health problem in South Africa - even after two decades since the introduction of antiretroviral therapy (ART). Long-term survival with HIV is associated with new health-related issues and a risk of functional limitation/disability. The aim of this study was to assess functional limitation associated with HIV/AIDS among people living with HIV (PLHIV) in South Africa. This study is a cross-sectional survey using a cohort in an urban area in Gauteng province, South Africa. Data were collected using questionnaires through an interview process. The information collected included aspects such as demographics, livelihood, the state of mental and physical health, adherence and disability. A total of 1044 participants with an average age of 42 ± 12 years were included in the study, with 51.9% of the participants reporting functional limitations (WHODAS ≥ 2). These were reported mainly in the domains of participation (40.2%) and mobility (38.7%). In addition, adherence to ART, symptoms of poor physical health and depression were strongly associated with their functional limitations/disability. HIV as a chronic disease is associated with functional limitations that are not adequately addressed and pose a risk of long-term disability and negative adherence outcomes. Therefore, wellness for PLHIV/AIDS needs to include interventions that can prevent and manage disability.

人体免疫机能丧失病毒(艾滋病毒)/获得性免疫机能丧失综合症(艾滋病)仍然是南非的一个主要健康问题——即使在引进抗逆转录病毒疗法(ART) 20年之后。艾滋病毒感染者的长期生存与新的健康相关问题和功能限制/残疾的风险有关。本研究的目的是评估南非艾滋病毒感染者(PLHIV)与艾滋病毒/艾滋病相关的功能限制。本研究是一项横断面调查,在南非豪登省的一个城市地区使用队列。数据收集采用问卷调查,通过访谈过程。收集的信息包括人口统计、生计、身心健康状况、依从性和残疾等方面。研究共纳入1044名参与者,平均年龄42±12岁,51.9%的参与者报告功能受限(WHODAS≥2)。这些主要发生在参与(40.2%)和流动性(38.7%)领域。此外,坚持抗逆转录病毒治疗、身体健康状况不佳和抑郁症状与她们的功能限制/残疾密切相关。艾滋病毒作为一种慢性病与功能限制有关,而这些功能限制没有得到充分解决,并可能造成长期残疾和不良依从性结果。因此,艾滋病毒/艾滋病患者的健康需要包括能够预防和管理残疾的干预措施。
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引用次数: 31
Factors associated with knowledge and awareness of HIV/AIDS among married women in Bangladesh: evidence from a nationally representative survey. 孟加拉国已婚妇女中与艾滋病毒/艾滋病知识和意识相关的因素:来自全国代表性调查的证据。
IF 1.1 4区 医学 Q2 Social Sciences Pub Date : 2018-12-01 DOI: 10.1080/17290376.2018.1523022
Md Ashiqul Haque, Md Sha Newaj Hossain, Muhammad Abdul Baker Chowdhury, Md Jamal Uddin

Women in Bangladesh share a greater risk of Human Immunodeficiency Virus (HIV)/Acquired Immune Deficiency Syndrome (AIDS) infection compared to men. Levels of knowledge and awareness largely contribute to the prevalence of the HIV epidemic and its consequences. So, it is required to conduct studies based on most recent data to explore the determinants of HIV awareness. Therefore, we aimed to find the awareness level and factors influencing HIV related awareness among the married women in Bangladesh. We used data from 2014 Bangladesh Demographic and Health Survey (BDHS). About two-third of total respondents who heard about the HIV/AIDS were selected and interviewed successfully (n = 12,593) about 11 basic questions related to individual's awareness. A score of the respondent's knowledge and awareness was determined based on these questions. We used logistic regression models for analysing the data. We found about 62% of the respondents had an adequate knowledge and consciousness about the HIV/AIDS. Respondents' education status, mass-media access, place of living, and working status played significant role on the awareness. As expected, respondents with higher education were more aware than those with no education (odds ratio (OR) = 3.56, 95% confidence interval (CI): 2.99-4.23). Moreover, respondents who had access to the mass media were more likely to be aware compared to those who did not have the access (OR = 1.14, 95% CI: 1.04-1.26). Although a sizeable proportion of women had an adequate knowledge and awareness regarding the HIV/AIDS, we recommend implementing educational programmes related to HIV/AIDS in the curriculum to ensure a standard level of awareness throughout the nation. Since the respondents from rural areas scored significantly lower than the urban areas, awareness through mass media, particularly in rural areas, is of prime concern for raising awareness.

与男子相比,孟加拉国妇女感染人体免疫缺陷病毒(艾滋病毒)/获得性免疫缺陷综合症(艾滋病)的风险更大。知识和认识水平在很大程度上助长了艾滋病毒流行病的流行及其后果。因此,需要开展基于最新数据的研究,以探索艾滋病毒意识的决定因素。因此,我们的目的是找出孟加拉国已婚妇女的艾滋病相关意识水平和影响因素。我们使用了2014年孟加拉国人口与健康调查(BDHS)的数据。大约三分之二的听说过艾滋病的受访者(n = 12593)被选中并成功采访了11个与个人意识相关的基本问题。应答者的知识和意识的得分是根据这些问题确定的。我们使用逻辑回归模型来分析数据。我们发现约62%的受访者对艾滋病有足够的知识和意识。受访者的教育程度、大众媒体接触情况、居住地点和工作状况对其认知有显著影响。正如预期的那样,受过高等教育的受访者比没有受过教育的受访者更了解(优势比(OR) = 3.56, 95%可信区间(CI): 2.99-4.23)。此外,有机会接触大众媒体的受访者比没有机会接触大众媒体的受访者更有可能意识到这一点(OR = 1.14, 95% CI: 1.04-1.26)。虽然相当大比例的妇女对艾滋病毒/艾滋病有充分的知识和认识,但我们建议在课程中执行与艾滋病毒/艾滋病有关的教育方案,以确保全国的认识达到标准水平。由于来自农村地区的答复者得分明显低于城市地区,因此通过大众传播媒介的认识,特别是在农村地区,是提高认识的主要关注点。
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引用次数: 19
Evaluation of a community-based ART programme after tapering home visits in rural Sierra Leone: a 24-month retrospective study. 在塞拉利昂农村逐步减少家访后对社区抗逆转录病毒治疗规划的评价:一项为期24个月的回顾性研究。
IF 1.1 4区 医学 Q2 Social Sciences Pub Date : 2018-12-01 DOI: 10.1080/17290376.2018.1527244
J Daniel Kelly, Raphael Frankfurter, Gregoire Lurton, Sulaiman Conteh, Susannah F Empson, Fodei Daboh, Brima Kargbo, Thomas Giordano, Joia Mukherjee, M Bailor Barrie

Evaluations of community-based antiretroviral therapy (ART) programmes have demonstrated positive outcomes, but little is known about the impact of tapering community-based ART. The objective of this study was to assess 24-month HIV retention outcomes of a community-based ART programme and its tapered visit frequency in Koidu City, Sierra Leone. This retrospective, quasi-experimental study compared outcomes of 52 HIV-infected persons initiated on community-based ART against 91 HIV-infected persons receiving the standard of care from November 2009 to February 2013. The community-based ART pilot programme was designed to strengthen the standard of care through a comprehensive, patient-centred case management strategy. The strategy included medical, educational, psychological, social, and economic support. Starting in October 2011, the frequency of home visits was tapered from twice daily every day per week to once daily three days per week. Outcomes were retention in care at 12 and 24 months and adherence to ART over a three-month time period. Participants who received community-based ART had significantly higher retention than those receiving standard of care. At 12 months, retention rates for community-based ART and standard of care were 61.5% and 31.9%, respectively (p < .01). At 24 months, retention rates for community-based ART and standard of care were 73.1% and 44.0%, respectively (p < .01). Significant differences in levels of adherence were observed when comparing community-based ART against persons receiving standard of care (p < .05). No differences in adherence levels were observed between groups of people receiving various frequencies of home visits. Our pilot programme in Koidu City provides new evidence that community-based ART has the potential to improve retention and adherence outcomes for HIV-infected persons, regardless of the frequency of home visits. Overcoming the barriers to HIV care requires a comprehensive, patient-centred approach that may include clinic-based and community-based interventions.

对社区抗逆转录病毒治疗(ART)规划的评估显示出积极的结果,但对逐渐减少社区抗逆转录病毒治疗的影响知之甚少。本研究的目的是评估塞拉利昂Koidu市基于社区的抗逆转录病毒治疗项目24个月的艾滋病毒滞留结果及其逐渐减少的就诊频率。这项回顾性、准实验研究比较了2009年11月至2013年2月期间,52名开始接受社区抗逆转录病毒治疗的艾滋病毒感染者与91名接受标准治疗的艾滋病毒感染者的结果。以社区为基础的抗逆转录病毒治疗试点方案旨在通过以患者为中心的全面病例管理战略加强护理标准。该战略包括医疗、教育、心理、社会和经济支持。从2011年10月开始,家访频率从每周每天两次逐渐减少到每周三天每天一次。结果是在12个月和24个月时保持治疗,并在三个月的时间内坚持抗逆转录病毒治疗。接受以社区为基础的抗逆转录病毒治疗的参与者比接受标准治疗的参与者有更高的保留率。12个月时,社区抗逆转录病毒治疗和标准护理的保留率分别为61.5%和31.9%
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引用次数: 7
An evaluation of the innovative potentials of a HIV pilot exploring medical pluralism in rural South Africa. 对南非农村探索医疗多元化的艾滋病毒试点创新潜力的评估。
IF 1.1 4区 医学 Q2 Social Sciences Pub Date : 2018-12-01 DOI: 10.1080/17290376.2018.1536560
Christopher J Burman

This article reflects on an internal evaluation undertaken to estimate the potentials of a community-university pilot project to be developed into a bonafide innovation that can be applied at scale. The focus of the community-university partnership has been to reduce the unintended consequences of medical pluralism on the HIV and AIDS epidemic in Waterberg district, Limpopo Province, South Africa. Despite promising outputs from the partnership - including an increase in adherence to antiretroviral therapy and a reduction in stigma among traditionalists living with HIV - the partnership wished to establish whether further funding should be applied for to take the pilot from its current prototype status to a more established innovation. In order to evaluate the innovative potentials of the pilot, the opportunity vacuum model of innovation was adapted and applied. The findings indicate that (1) the application of the opportunity vacuum model of innovation to evaluate the potentials of the pilot to be developed into a bonafide innovation was fit for purpose and (2) the pilot contains the key ingredients that are associated with innovations in the making. The discussion reflects on the social potentials of the pilot to contribute to 90-90-90 from a global, national and local perspective. The reflection concludes by suggesting that the opportunity vacuum model of innovation is a versatile heuristic that could be applied in other contexts and the community-university pilot represents a nascent innovation which has sufficient potential to justify further development.

本文回顾了一项内部评估,该评估旨在评估社区大学试点项目发展成为可大规模应用的真正创新的潜力。社区-大学伙伴关系的重点是减少医疗多元化对南非林波波省沃特贝格区艾滋病毒和艾滋病流行的意外后果。尽管该伙伴关系的产出很有希望,包括增加抗逆转录病毒治疗的依从性和减少传统艾滋病毒感染者的耻辱感,但该伙伴关系希望确定是否应该申请进一步的资金,将试点从目前的原型状态转变为更成熟的创新。为了评估试点的创新潜力,对创新的机会真空模型进行了调整和应用。研究结果表明:(1)应用创新的机会真空模型来评估试点发展成为真正创新的潜力是符合目的的;(2)试点包含与正在进行的创新相关的关键成分。讨论从全球、国家和地方的角度反映了试点为90-90-90做出贡献的社会潜力。反思的结论是,创新的机会真空模型是一种通用的启发式方法,可以应用于其他情况,社区大学试点代表了一种新生的创新,具有足够的潜力来证明进一步发展的合理性。
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引用次数: 0
Accounting for youth audiences' resistances to HIV and AIDS messages in the television drama Tsha Tsha in South Africa. 南非电视剧《Tsha Tsha》中青年观众对艾滋病毒和艾滋病信息的抵制。
IF 1.1 4区 医学 Q2 Social Sciences Pub Date : 2018-12-01 DOI: 10.1080/17290376.2018.1444506
Blessing Makwambeni, Abiodun Salawu

Theoretical debates and literature on E-E efforts in Africa have largely focussed on understanding how and why interventions on HIV and AIDS are effective in influencing behaviour change among target communities. Very few studies have sought to investigate and understand why a substantial number of targeted audiences resist the preferred readings that are encoded into E-E interventions on HIV and AIDS. Using cultural studies as its conceptual framework and reception analysis as its methodology, this study investigated and accounted for the oppositional readings that subaltern black South African youths negotiate from Tsha Tsha, an E-E television drama on HIV and AIDS in South Africa. Results from the study show that HIV and AIDS messages in Tsha Tsha face substantial resistances from situated youth viewers whose social contexts of consumption, shared identities, quotidian experiences and subjectivities, provide critical lines along which the E-E text is often resisted and inflected. These findings do not only hold several implications for E-E practice and research, they further reflect the utility of articulating cultural studies and reception analysis into a more nuanced theoretical and methodological framework for evaluating the 'impact' of E-E interventions on HIV and AIDS.

关于非洲E-E努力的理论辩论和文献主要集中于理解艾滋病毒和艾滋病干预措施如何以及为什么能够有效地影响目标社区的行为改变。很少有研究试图调查和理解为什么相当多的目标受众抵制编码为艾滋病毒和艾滋病的E-E干预措施的首选读物。本研究以文化研究为概念框架,以接受分析为方法,调查并解释南非下层黑人青年在南非HIV和艾滋病题材的E-E电视剧《Tsha Tsha》中谈判的对立阅读。研究结果表明,《查查》中的HIV和AIDS信息面临着来自情境青年观众的巨大抵制,他们的消费、共同身份、日常经历和主体性的社会背景为E-E文本提供了经常被抵制和扭曲的关键线索。这些发现不仅对E-E的实践和研究有一些启示,而且还进一步反映了将文化研究和接受分析结合成一个更细致的理论和方法框架的效用,以评估E-E干预对艾滋病毒和艾滋病的“影响”。
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引用次数: 5
'It's not good to eat a candy in a wrapper': male students' perspectives on condom use and concurrent sexual partnerships in the eastern Democratic Republic of Congo. “包着糖果吃是不好的”:刚果民主共和国东部男学生对避孕套使用和并发性伴侣关系的看法。
IF 1.1 4区 医学 Q2 Social Sciences Pub Date : 2018-12-01 DOI: 10.1080/17290376.2018.1516160
Maroyi Mulumeoderhwa

This paper reports on fieldwork carried out in 2011 with aim to investigate young men's perspectives about condoms use, concurrent sexual partnerships and sex in the context of HIV/AIDS. This study employed a qualitative approach to collect data from 28 boys aged 16-20 from two urban and two rural high schools in South Kivu province. Four focus group discussions and 20 individual interviews were conducted among them. The findings showed that most students identified condoms as unsafe and untrustworthy. Reasons given for the mistrust of condoms were related to the belief that condoms do not give enough protection from Sexually Transmitted Infections, HIV and pregnancies. Most participants believe that condoms have a 'small hole' or are unreliable and are therefore not effective in prevention. They also mentioned that condoms encourage inappropriate sexual activity. They prefer flesh-to-flesh sex rather than protected sex using a condom. However, a few participants acknowledged the importance of condom use. Despite the risk of HIV transmission, boys believe that it is appropriate for them to have concurrent sexual partnerships. They justified the concurrent sexual partnerships as a way of ensuring that they cannot miss a girl to satisfy their sexual desire. Given the boys' failure to use condoms and their strong inclination to concurrent sexual partnerships, there is a need for heath groups and stakeholders within the area to increase awareness about condoms' effectiveness and improve knowledge dissemination on Sexually Transmitted Diseases and how they are prevented.

本文报告了2011年进行的实地调查,目的是调查年轻男性在艾滋病毒/艾滋病背景下对避孕套使用、同时性伴侣关系和性行为的看法。本研究采用定性方法收集了来自南基伍省两所城市和两所农村高中的28名16-20岁男孩的数据。其中进行了4次焦点小组讨论和20次个人访谈。研究结果表明,大多数学生认为避孕套不安全且不值得信任。不信任避孕套的原因是认为避孕套不能提供足够的保护,防止性传播感染、艾滋病毒和怀孕。大多数参与者认为避孕套有一个“小孔”或不可靠,因此在预防方面无效。他们还提到避孕套会鼓励不适当的性活动。他们更喜欢有血有肉的性行为,而不是使用避孕套进行保护性行为。然而,一些与会者承认使用避孕套的重要性。尽管有传播艾滋病毒的风险,但男孩们认为,他们同时拥有性伴侣关系是合适的。他们为同时性伴侣关系辩护,认为这是确保他们不会为了满足性欲而错过女孩的一种方式。鉴于男孩们不使用避孕套,而且他们强烈倾向于同时性伴侣关系,该地区的健康团体和利益相关者需要提高对避孕套有效性的认识,并改进性传播疾病及其预防方法的知识传播。
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引用次数: 0
Special thanks to reviewers 2018 特别感谢2018年的评论者
IF 1.1 4区 医学 Q2 Social Sciences Pub Date : 2018-01-01 DOI: 10.1080/17290376.2018.1546160
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引用次数: 0
Invisible work: Child work in households with a person living with HIV/AIDS in Central Uganda. 隐形工作:在乌干达中部,儿童在有艾滋病毒/艾滋病患者的家庭中工作。
IF 1.1 4区 医学 Q2 Social Sciences Pub Date : 2017-12-01 DOI: 10.1080/17290376.2017.1379429
Julie Abimanyi-Ochom, Brett Inder, Bruce Hollingsworth, Paula Lorgelly

Background: HIV/AIDS has led to increased mortality and morbidity, negatively impacting adult labour especially in HIV/AIDS burdened Sub-Saharan Africa. There has been some exploration of the effects of HIV/AIDS on paid child labour, but little empirical work on children's non-paid child work. This paper provides quantitative evidence of how child and household-level factors affect children's involvement in both domestic and family farm work for households with a person living with HIV/AIDS (PLWHA) compared to non-PLWHA households using the 2010/2011 Centre for Health Economics Uganda HIV questionnaire Survey.

Method: Descriptive analysis and multivariate logistic modelling is used to explore child and household-level factors that affect children's work participation.

Results: This research reveals greater demands on the labour of children in PLWHA households in terms of family farm work especially for boys. Results highlight the expected gendered social responsibilities within the household space, with girls and boys engaged more in domestic and family farm work, respectively. Girls shared a greater proportion of household financial burden by working more hours in paid work outside the household than boys. Lastly, the study revealed that a household head's occupation increases children's participation in farm work but had a partial compensatory effect on their involvement in domestic work. Wealth and socio-economic standing is no guarantee to reducing child work.

Conclusion: Children from PLWHA households are more vulnerable to child work in family farm work especially boys; and girls are burdened beyond the household space through paid work. Differing perspectives and solutions need to consider the contextual nature of child work.

背景:艾滋病毒/艾滋病导致死亡率和发病率增加,对成人劳动产生负面影响,特别是在艾滋病毒/艾滋病负担严重的撒哈拉以南非洲。关于艾滋病毒/艾滋病对有偿童工的影响已经有了一些探索,但关于儿童的非有偿童工工作的实证研究很少。本文利用2010/2011年乌干达卫生经济中心艾滋病毒问卷调查,提供了儿童和家庭层面因素如何影响有艾滋病毒/艾滋病感染者(PLWHA)家庭与非PLWHA家庭的儿童参与家务和家庭农场工作的定量证据。方法:采用描述性分析和多元logistic模型,探讨影响儿童劳动参与的儿童和家庭层面因素。结果:本研究表明,在家庭农场工作方面,对艾滋病家庭儿童的劳动需求更大,尤其是男孩。结果突出了家庭空间中预期的性别社会责任,女孩和男孩分别更多地从事家务和家庭农场工作。女孩在家庭以外从事有偿工作的时间比男孩长,分担了更大比例的家庭经济负担。最后,研究表明,户主的职业增加了儿童参与农活,但对他们参与家务劳动有部分补偿作用。财富和社会经济地位并不能保证减少童工现象。结论:来自艾滋病家庭的儿童更容易从事家庭农活,尤其是男孩;此外,女孩还因从事有偿工作而承受着家庭以外的负担。不同的观点和解决方案需要考虑儿童工作的背景性质。
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引用次数: 3
The lived experiences of rural women diagnosed with the human immunodeficiency virus in the antenatal period. 被诊断患有人体免疫缺陷病毒的农村妇女在产前的生活经历。
IF 1.1 4区 医学 Q2 Social Sciences Pub Date : 2017-12-01 DOI: 10.1080/17290376.2017.1379430
Genevieve Marion Fords, Talitha Crowley, Anita S van der Merwe
Abstract Background: In South Africa, pregnant women are diagnosed with human immunodeficiency virus (HIV) at antenatal clinics and simultaneously initiated on antiretroviral treatment (ART). An HIV diagnosis together with the initiation of ART has an emotional impact that may influence how pregnant women cope with pregnancy and their adherence to a treatment plan. The aim of the study was to explore the lived experiences of women diagnosed with HIV in the antenatal period in a rural area in the Eastern Cape province of South Africa. Methods: A qualitative approach with a descriptive phenomenological design was utilised. The study applied purposive sampling to select participants from a local community clinic in the Eastern Cape. Ten semistructured interviews were conducted, transcribed and analysed using Colaizzi's framework. Results: Four themes formed the essential structure of the phenomenon being investigated: a reality that hits raw, a loneliness that hurts, hope for a fractured tomorrow and support of a few. Although the participants had to accept the harsh reality of being diagnosed with HIV and experienced loneliness and the support of only a few people, they had hope to live and see the future of their children. Conclusion: Women diagnosed with HIV during pregnancy are ultimately concerned with the well-being of their unborn children, and this concern motivates their adherence to ART. Women's lived experiences are situated in their unique sociocultural context, and although some known challenges remain, counselling and support strategies need to be informed by exploring context-specific issues and involving the local community.
背景:在南非,孕妇在产前诊所被诊断患有人类免疫缺陷病毒(HIV),同时开始抗逆转录病毒治疗(ART)。诊断出艾滋病毒并开始抗逆转录病毒治疗会对孕妇的情绪产生影响,可能会影响孕妇如何应对妊娠以及她们对治疗计划的依从性。这项研究的目的是探索南非东开普省一个农村地区被诊断患有艾滋病毒的妇女在产前的生活经历。方法:采用描述现象学设计的定性方法。该研究采用有目的抽样从东开普省当地社区诊所选择参与者。使用Colaizzi的框架进行了10次半结构化访谈,并进行了转录和分析。结果:四个主题构成了正在调查的现象的基本结构:一个触痛的现实,一个伤害的孤独,对破碎的明天的希望和少数人的支持。虽然参与者不得不接受被诊断为艾滋病毒的残酷现实,经历孤独和只有少数人的支持,但他们对生活和看到孩子的未来充满希望。结论:怀孕期间被诊断感染艾滋病毒的妇女最终关心的是未出生孩子的健康,这种关心促使她们坚持抗逆转录病毒治疗。妇女的生活经历处于其独特的社会文化背景中,虽然仍然存在一些已知的挑战,但需要通过探讨具体情况的问题和让当地社区参与,为咨询和支助战略提供信息。
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引用次数: 15
On the periphery of HIV and AIDS: Reflections on stress as experienced by caregivers in a child residential care facility in South Africa. 在艾滋病毒和艾滋病的边缘:南非一家儿童寄宿护理机构的护理人员对压力的思考。
IF 1.1 4区 医学 Q2 Social Sciences Pub Date : 2017-12-01 DOI: 10.1080/17290376.2017.1389300
Kesh Mohangi, Chereen Pretorius

Few researchers have investigated how female caregivers of institutionalised children, especially those affected by HIV and AIDS, experience stress. The role played by caregivers cannot be overemphasised; yet caregivers who work in institutions caring for orphaned and/or abandoned children affected by HIV and AIDS, are often marginalised and on the periphery of the HIV and AIDS pandemic. The implication is that insufficient attention or consideration is given to the importance of the role they play in these children's lives. The objective of the study was to explore how female caregivers of institutionalised children affected by HIV and AIDS experience stress. A qualitative research project with a case study design was conducted. The purposively selected participants from a previously identified care facility were seven females in the age ranges of 35-59. Data was gathered during individual interviews and focus group discussions. Thematic content analysis of the data yielded the following themes: (1) contextualising caregiving as 'work'; (2) stresses linked to caregiving; and (3) coping with stress. Findings from this study indicated that participants experienced caregiving in an institution as stressful, demotivating, and emotionally burdensome. Moreover, caregivers working in an environment of HIV and AIDS experienced additional stress related to organisational and management impediments, lack of emotional and practical support, inadequate training, discipline difficulties, and lack of respect and appreciation from the children in their care. It is recommended that training and management support as well as personal support and counselling for caregivers in the institutional context could help them to cope better, feel empowered and to potentially elevate their status as valued members of society.

很少有研究人员调查过福利院儿童(尤其是受艾滋病毒和艾滋病影响的儿童)的女性照顾者是如何承受压力的。照顾者所发挥的作用无论怎样强调都不为过;然而,在机构中照顾受艾滋病毒和艾滋病影响的孤儿和/或被遗弃儿童的照顾者往往被边缘化,处于艾滋病毒和艾滋病流行病的边缘。这意味着,他们在这些儿童生活中扮演的重要角色没有得到足够的重视或考虑。本研究的目的是探讨受艾滋病毒和艾滋病影响的福利院儿童的女性照顾者如何承受压力。本研究采用个案研究设计,开展了一个定性研究项目。研究人员从先前确定的一家护理机构有目的地挑选了七名年龄在 35-59 岁之间的女性作为研究对象。研究人员通过个人访谈和焦点小组讨论收集数据。通过对数据进行主题内容分析,得出了以下主题:(1)将护理工作视为 "工作";(2)与护理工作相关的压力;以及(3)如何应对压力。本研究的结果表明,参与者认为在机构中进行护理工作压力大、动力不足、情绪负担重。此外,在艾滋病毒和艾滋病环境中工作的照顾者还经历了额外的压力,这些压力与组织和管理障碍、缺乏情感和实际支持、培训不足、纪律困难以及缺乏对所照顾儿童的尊重和赞赏有关。建议为机构中的护理人员提供培训和管理支持,以及个人支持和咨询,以帮助他们更好地应对压力,增强他们的能力,并有可能提高他们作为社会重要成员的地位。
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Sahara J-Journal of Social Aspects of Hiv-Aids
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