Pub Date : 2025-01-05DOI: 10.1080/15524256.2024.2445055
Zhaohui Su
{"title":"Eureka.","authors":"Zhaohui Su","doi":"10.1080/15524256.2024.2445055","DOIUrl":"https://doi.org/10.1080/15524256.2024.2445055","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-2"},"PeriodicalIF":1.6,"publicationDate":"2025-01-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142933110","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01Epub Date: 2024-10-18DOI: 10.1080/15524256.2024.2417183
See Mieng Tan
{"title":"How Tangible is an Advance Care Planning Document in Reality?","authors":"See Mieng Tan","doi":"10.1080/15524256.2024.2417183","DOIUrl":"10.1080/15524256.2024.2417183","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"3-5"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142477366","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01Epub Date: 2025-03-10DOI: 10.1080/15524256.2025.2472446
Ellen L Csikai
{"title":"Introduction.","authors":"Ellen L Csikai","doi":"10.1080/15524256.2025.2472446","DOIUrl":"10.1080/15524256.2025.2472446","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"1-2"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143587694","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01Epub Date: 2025-03-17DOI: 10.1080/15524256.2024.2443152
Rennie Bimman, Nancy Graham
Perinatal loss is often immensely painful for families, yet remains unrecognized despite its ubiquity. Perinatal loss frequently leads to disenfranchised grief, and members of family systems less proximate to the loss are at risk for additional disenfranchisement. Grandparents and siblings are especially vulnerable to complications in perinatal grief due to intersecting and disenfranchising factors of identity, including age, role within family, and type of loss. The purpose of this narrative review was to examine their experiences in order to provide informed support. Medline via OVID was searched using specific terms to identify articles for inclusion. Content from each article was screened, synthesized, and codified according to salient themes. Evidence found attested to the uniquely complex grief experiences these populations face as a result of their confluent disenfranchisement, and their overwhelming lack of support and recognition. New insights uncovered may inform clinicians as they assess needs and provide support to these oft-ignored grievers. Significant research gaps remain in this subtopic, such as firsthand perspectives of nonparental grievers, data on other extended family members, and the effect of additional psychosocial stressors on nonparental perinatal grief. As recent legal restrictions curtail reproductive healthcare access, the need for support and research is especially salient.
{"title":"<i>Hiding in Plain Sight</i>: A Narrative Review of Non-Parental Relatives' Perinatal Grief.","authors":"Rennie Bimman, Nancy Graham","doi":"10.1080/15524256.2024.2443152","DOIUrl":"10.1080/15524256.2024.2443152","url":null,"abstract":"<p><p>Perinatal loss is often immensely painful for families, yet remains unrecognized despite its ubiquity. Perinatal loss frequently leads to disenfranchised grief, and members of family systems less proximate to the loss are at risk for additional disenfranchisement. Grandparents and siblings are especially vulnerable to complications in perinatal grief due to intersecting and disenfranchising factors of identity, including age, role within family, and type of loss. The purpose of this narrative review was to examine their experiences in order to provide informed support. Medline via OVID was searched using specific terms to identify articles for inclusion. Content from each article was screened, synthesized, and codified according to salient themes. Evidence found attested to the uniquely complex grief experiences these populations face as a result of their confluent disenfranchisement, and their overwhelming lack of support and recognition. New insights uncovered may inform clinicians as they assess needs and provide support to these oft-ignored grievers. Significant research gaps remain in this subtopic, such as firsthand perspectives of nonparental grievers, data on other extended family members, and the effect of additional psychosocial stressors on nonparental perinatal grief. As recent legal restrictions curtail reproductive healthcare access, the need for support and research is especially salient.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"30-57"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143651244","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01Epub Date: 2025-01-12DOI: 10.1080/15524256.2024.2447313
Rennie Bimman
Grief, unavoidable and often excruciating, is rarely sufficiently acknowledged or supported in Western society. It is not granted permission to exist without barriers. By considering and evaluating grief experiences through the lens of their access to permission, clinicians can collectively imagine and promote inclusivity in grief. Permission is presented as a conceptual framework and clinical tool, with broader micro- and macro-level applications for both professional and layperson engagement, offering a foundation for further implementation and research.
{"title":"Granting Permission: Toward Embracing Grief.","authors":"Rennie Bimman","doi":"10.1080/15524256.2024.2447313","DOIUrl":"10.1080/15524256.2024.2447313","url":null,"abstract":"<p><p>Grief, unavoidable and often excruciating, is rarely sufficiently acknowledged or supported in Western society. It is not granted <i>permission</i> to exist without barriers. By considering and evaluating grief experiences through the lens of their access to <i>permission</i>, clinicians can collectively imagine and promote inclusivity in grief. <i>Permission</i> is presented as a conceptual framework and clinical tool, with broader micro- and macro-level applications for both professional and layperson engagement, offering a foundation for further implementation and research.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"8-29"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142972585","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01Epub Date: 2024-11-27DOI: 10.1080/15524256.2024.2430970
James Seymour Huntley
{"title":"Chains.","authors":"James Seymour Huntley","doi":"10.1080/15524256.2024.2430970","DOIUrl":"10.1080/15524256.2024.2430970","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"6"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142733261","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01Epub Date: 2025-03-10DOI: 10.1080/15524256.2025.2472446
Ellen L Csikai
{"title":"Introduction.","authors":"Ellen L Csikai","doi":"10.1080/15524256.2025.2472446","DOIUrl":"https://doi.org/10.1080/15524256.2025.2472446","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":"21 1","pages":"1-2"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144188227","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01Epub Date: 2024-12-07DOI: 10.1080/15524256.2024.2439265
Tarek Zieneldien
{"title":"Apricot Forest.","authors":"Tarek Zieneldien","doi":"10.1080/15524256.2024.2439265","DOIUrl":"10.1080/15524256.2024.2439265","url":null,"abstract":"","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"7"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142792644","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01Epub Date: 2025-02-23DOI: 10.1080/15524256.2025.2468217
Miia Kontro
Palliative care has evolved considerably over the past decades. This scoping literature review explores the development of palliative care in Finland and its societal impact, guided by Arksey and O'Malley's five-stage framework. A total of 25 articles and grey literature sources were analyzed, revealing three key themes: the evolution and ethical foundations of palliative care in Finland, defining roles and enhancing communication, and equitable access and regional integration in palliative care. The review highlights the role of caregivers and shows that clear communication between caregivers, healthcare professionals, and patients is important to coordinating care and meeting various needs. Furthermore, it stresses the necessity of reducing regional disparities and improving access to palliative care, particularly for individuals without family caregivers. As Finland's population ages, policies must focus on equitable care for individuals living alone to avoid over-reliance on relatives and uphold fundamental rights.
{"title":"The Development of Palliative Care in Finland and Its Societal Impacts: A Scoping Review.","authors":"Miia Kontro","doi":"10.1080/15524256.2025.2468217","DOIUrl":"10.1080/15524256.2025.2468217","url":null,"abstract":"<p><p>Palliative care has evolved considerably over the past decades. This scoping literature review explores the development of palliative care in Finland and its societal impact, guided by Arksey and O'Malley's five-stage framework. A total of 25 articles and grey literature sources were analyzed, revealing three key themes: the evolution and ethical foundations of palliative care in Finland, defining roles and enhancing communication, and equitable access and regional integration in palliative care. The review highlights the role of caregivers and shows that clear communication between caregivers, healthcare professionals, and patients is important to coordinating care and meeting various needs. Furthermore, it stresses the necessity of reducing regional disparities and improving access to palliative care, particularly for individuals without family caregivers. As Finland's population ages, policies must focus on equitable care for individuals living alone to avoid over-reliance on relatives and uphold fundamental rights.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"72-93"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143484182","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01Epub Date: 2025-02-23DOI: 10.1080/15524256.2025.2469685
Donna M Wilson, Brooklyn Grainger, Hannah Fonteyne, Jennifer E Heron, Cynthia Fiore, Suzanne Rainsford, Begoña Errasti-Ibarrondo
People will understandably continue to remember significant persons long after their deaths. One possible remembrance practice is the placement of a memorial about the deceased person in a community newspaper. It is not clear what these memorials are intended to do, how they are constructed, who places them in a public sphere for open viewing, and what purpose or purposes they serve. As these memorials could be important for grief management and other personal, family, or social purposes, an examination of memorials to the dead appearing over one year in the Edmonton Journal, the primary newspaper for a Canadian city of one million inhabitants, was conducted. This research project found memorials were uncommon (N = 567) compared to obituaries (N = 4,865), and very uncommon in relation to the number of decedents who could have been memorialized. Memorial authors were most often parents or children, with memorials usually appearing on a second year or later death anniversary. Two content themes were identified: (a) enduring love for the deceased, and (b) a continuing if not permanent remembrance of them. The findings raise many questions, but primarily how people can openly and constructively grieve long after the death of a loved one.
{"title":"Remembering the Dead: What Community Newspaper Memorials Reveal.","authors":"Donna M Wilson, Brooklyn Grainger, Hannah Fonteyne, Jennifer E Heron, Cynthia Fiore, Suzanne Rainsford, Begoña Errasti-Ibarrondo","doi":"10.1080/15524256.2025.2469685","DOIUrl":"10.1080/15524256.2025.2469685","url":null,"abstract":"<p><p>People will understandably continue to remember significant persons long after their deaths. One possible remembrance practice is the placement of a memorial about the deceased person in a community newspaper. It is not clear what these memorials are intended to do, how they are constructed, who places them in a public sphere for open viewing, and what purpose or purposes they serve. As these memorials could be important for grief management and other personal, family, or social purposes, an examination of memorials to the dead appearing over one year in the Edmonton Journal, the primary newspaper for a Canadian city of one million inhabitants, was conducted. This research project found memorials were uncommon (N = 567) compared to obituaries (N = 4,865), and very uncommon in relation to the number of decedents who could have been memorialized. Memorial authors were most often parents or children, with memorials usually appearing on a second year or later death anniversary. Two content themes were identified: (a) enduring love for the deceased, and (b) a continuing if not permanent remembrance of them. The findings raise many questions, but primarily how people can openly and constructively grieve long after the death of a loved one.</p>","PeriodicalId":45992,"journal":{"name":"Journal of Social Work in End-of-Life & Palliative Care","volume":" ","pages":"58-71"},"PeriodicalIF":1.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143483784","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}