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Hospice Communication and MAID in Washington State: A Qualitative Case Study of Transparency, Ethics, and Social Work Practice Implications. 华盛顿州安宁疗护沟通与MAID:透明度、伦理与社会工作实务影响之定性个案研究。
IF 1 Q2 SOCIAL WORK Pub Date : 2025-12-12 DOI: 10.1080/15524256.2025.2601630
Lauren Gil Hayes

Medical Aid in Dying (MAID) is legal in Washington State, and most individuals who pursue it are enrolled in hospice care. Despite legalization, many hospices omit MAID from their business websites, leaving patients and families without clear guidance for decision-making. This qualitative case study used exploratory document analysis, guided by the READ approach, to examine how Medicare-certified hospices in Washington communicated, or obscured, their stance on MAID through website content. Only 60% presented any position, policy, or related services online. The analysis assessed clarity, accessibility, and interpretive burden from the perspective of a prospective patient or caregiver. Four typologies emerged, Silent, Compliant, Restrictive, and Affirming, reflecting approaches that ranged from withholding all mention of MAID to providing clear, patient-oriented information. Findings suggest that public communication is not a neutral act but an ethically consequential one. When organizational silence prevails, social workers often bear the burden of interpreting policy and guiding patients with limited institutional support. Positioned at the intersection of ethics, advocacy, and care coordination, social workers are uniquely equipped to promote transparency and patient self-determination. A practice-ready toolkit is provided to support social workers in assessing hospice messaging and advocating for accessible, values-consistent communication in legally authorized settings.

临终医疗援助(MAID)在华盛顿州是合法的,大多数追求它的人都参加了临终关怀。尽管已经合法化,但许多临终关怀医院在其商业网站上忽略了MAID,这使得患者和家属没有明确的决策指导。本定性案例研究采用探索性文件分析,在READ方法的指导下,研究华盛顿医疗保险认证的临终关怀医院如何通过网站内容传达或模糊他们对MAID的立场。只有60%的人在网上展示过职位、政策或相关服务。该分析从潜在患者或护理人员的角度评估了清晰度、可及性和解释负担。出现了四种类型:沉默型、顺从型、限制性和肯定型,反映了从不提及MAID到提供清晰的、以患者为导向的信息的方法。研究结果表明,公共传播不是一种中立的行为,而是一种道德后果。当组织沉默盛行时,社会工作者往往在有限的机构支持下承担解释政策和指导患者的负担。社会工作者处于道德、倡导和护理协调的交叉点,在促进透明度和患者自决方面具有独特的能力。我们提供了一个实用的工具包,以支持社会工作者评估临终关怀信息,并倡导在法律授权的环境中进行无障碍、价值观一致的沟通。
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引用次数: 0
The Last Conversation That Never Happened. 最后一次从未发生的对话。
IF 1 Q2 SOCIAL WORK Pub Date : 2025-12-12 DOI: 10.1080/15524256.2025.2601631
Nadia Rehman
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引用次数: 0
The Caregiver's Hands. 看护者的手。
IF 1 Q2 SOCIAL WORK Pub Date : 2025-12-04 DOI: 10.1080/15524256.2025.2598068
Amir Mahmood
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引用次数: 0
What Remains is Love After Loss. 剩下的是失去之后的爱。
IF 1 Q2 SOCIAL WORK Pub Date : 2025-10-30 DOI: 10.1080/15524256.2025.2579997
Awu Isaac Oben
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引用次数: 0
Strategies for Self-Care and Support During the COVID-19 Pandemic: Findings From an International Survey of Social Workers in Palliative Care. COVID-19大流行期间的自我护理和支持策略:对姑息治疗社会工作者的国际调查结果
IF 1 Q2 SOCIAL WORK Pub Date : 2025-10-01 Epub Date: 2025-11-25 DOI: 10.1080/15524256.2025.2588585
Patricia Dobríková, Audrey Roulston, Natália Valúchová, Maria Wasner, Petruta Anania

The COVID-19 pandemic caused many hospice and palliative care services to reconfigure existing services and invent new ones using technology and remote working. Workloads increased in response to demand and healthcare professionals risked professional burnout, stress and emotional exhaustion. The aim of this study was to conduct secondary analysis of international survey data from palliative care social workers regarding the support received during the COVID-19 pandemic. A cross-sectional online survey-based design was used. Social workers in palliative care were invited to participate via members of international palliative care Social Work networks. The findings are based on data from 278 respondents from 21 countries. Most reported online team meetings, supervision and peer-led group supervision as the main support strategies during the pandemic, yet many indicated they had no time during the pandemic to access support. With hindsight, 43.5% of respondents said they would have done things differently during the pandemic. Most regretted implementing social distancing measures, due to the social isolation, moral distress and impact on grieving relatives. Managers need to help social workers prioritize self-care and proactively engage in support strategies, including supervision, peer-led group supervision and have a better work-life balance that allows time to switch off from work.

2019冠状病毒病大流行导致许多临终关怀和姑息治疗服务机构重新配置现有服务,并利用技术和远程工作发明新服务。工作量随着需求的增加而增加,医疗保健专业人员面临职业倦怠、压力和情绪衰竭的风险。本研究的目的是对来自姑息治疗社会工作者的关于COVID-19大流行期间获得的支持的国际调查数据进行二次分析。采用横断面在线调查设计。通过国际姑息治疗社会工作网络的成员邀请姑息治疗社会工作者参加。调查结果基于来自21个国家的278名受访者的数据。大多数人报告说,在线小组会议、监督和同伴领导的小组监督是大流行期间的主要支持策略,但许多人表示,他们在大流行期间没有时间获得支持。事后看来,43.5%的受访者表示,他们在大流行期间会采取不同的做法。由于社会孤立、道德困境和对悲伤的亲属的影响,大多数人后悔采取了社会距离措施。管理人员需要帮助社会工作者优先考虑自我照顾,积极参与支持策略,包括监督,同伴领导的小组监督,以及更好的工作与生活平衡,允许时间从工作中解脱出来。
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引用次数: 0
Lessons Learned Teaching Loss. 教学损失。
IF 1 Q2 SOCIAL WORK Pub Date : 2025-10-01 Epub Date: 2025-07-03 DOI: 10.1080/15524256.2025.2528035
E Goldblatt Hyatt, Tangela Sawyerr
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引用次数: 0
Horticulture Therapy as a Complementary Intervention in Palliative Care: A Narrative Review. 园艺疗法作为一种辅助干预在姑息治疗:叙述回顾。
IF 1 Q2 SOCIAL WORK Pub Date : 2025-10-01 Epub Date: 2025-11-17 DOI: 10.1080/15524256.2025.2588573
Muhammad Bilal Nadeem, Esha Habib, Muhammad Hamayal

Palliative care is provided to chronically ill patients to offer symptomatic relief from their disease, but it is not a curative treatment. A range of strategies are employed to alleviate symptoms and improve quality of life, among which horticultural therapy has emerged as a possible option. Horticultural therapy has been shown to provide diverse benefits, including creating a calming environment that provides comfort and emotional support for palliative care patients. Patients experience symptom relief and perceived pain reduction through engaging activities that distract from discomfort. Those with mental health disorders also report decreased symptoms after participating in horticulture therapy. It also encourages healthier and proactive lifestyle through physical exercise and a more positive outlook on life, however, participants should be cautious of potential risks, such as dehydration and fatigue. This therapy can result in reduced cortisol and increased serotonin levels, indicating lower stress and improvement of cognitive function. Moreover, horticultural activities enhance social well-being by fostering interactions and strengthening social bonds among participants. Horticultural therapy benefits patients' senses by providing an immersive experience with diverse colors, textures, fragrances, and lush landscapes. Through the interplay of these mechanisms, horticulture therapy holds strong prospect of emerging as valuable addition to palliative care.

姑息治疗是为慢性病患者提供的,以缓解他们疾病的症状,但它不是一种治愈性治疗。采用一系列策略来缓解症状和改善生活质量,其中园艺疗法已成为一种可能的选择。园艺疗法已被证明可以提供多种好处,包括创造一个平静的环境,为姑息治疗患者提供舒适和情感支持。通过参与分散不适的活动,患者体验到症状缓解和疼痛减轻。那些有精神健康障碍的人也报告说,参加园艺疗法后症状有所减轻。它还通过体育锻炼和更积极的人生观来鼓励更健康和积极的生活方式,然而,参与者应该警惕潜在的风险,如脱水和疲劳。这种疗法可以降低皮质醇和增加血清素水平,表明压力降低和认知功能改善。此外,园艺活动通过促进互动和加强参与者之间的社会联系来提高社会福祉。园艺疗法通过提供不同颜色、质地、香味和郁郁葱葱的景观的身临其境的体验,使患者的感官受益。通过这些机制的相互作用,园艺疗法具有强大的前景,作为有价值的附加到姑息治疗。
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引用次数: 0
Editor's Introduction. 编辑器的介绍。
IF 1 Q2 SOCIAL WORK Pub Date : 2025-10-01 Epub Date: 2025-11-27 DOI: 10.1080/15524256.2025.2592173
Ellen L Csikai
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引用次数: 0
The Human Side of Cancer Care: A Decade in Medical Oncology Social Work. 癌症护理的人性面:医学肿瘤社会工作的十年。
IF 1 Q2 SOCIAL WORK Pub Date : 2025-10-01 Epub Date: 2025-08-05 DOI: 10.1080/15524256.2025.2540799
Vincent Luong
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引用次数: 0
Caring for Grievers: A Scoping Review of Bereavement Practice Approaches and Support Strategies. 照顾悲痛者:丧亲实践方法和支持策略的范围审查。
IF 1 Q2 SOCIAL WORK Pub Date : 2025-10-01 Epub Date: 2025-11-22 DOI: 10.1080/15524256.2025.2588552
Liana Bailey, Katie Richardson, Norah Lynn Paddock, Sarah Allan-Wiseman, Madelena Arnone

Bereavement support is a foundational element of palliative care social work, yet practice approaches and support strategies remain varied. This scoping review was initiated in response to a Canadian children's hospice's interest in expanding its bereavement services. The aim was to identify and critically reflect on assessment strategies and professional approaches used with bereaved children, youth, and adults, and to consider how these align, or diverge, from the values and practices of palliative care social work. A review of evidence syntheses published between 2015 and September 2024 was conducted across four databases: MEDLINE, Embase, PsycINFO, and CINAHL. Seventy-one articles met inclusion criteria, identifying over 400 distinct assessment tools and a wide range of support approaches. This review also highlighted gaps in the literature, such as methodological limitations (risk of bias, lack of control groups, limited follow-up), conceptual ambiguity, and challenges in applying evidence to practice. Viewed through a palliative care social work lens, the findings underscore the need to understand grief as a uniquely human experience requiring systems of support. Expanding bereavement care involves individual service delivery in addition to building cohesive programming and integrated systems that acknowledge and support grief across contexts.

丧亲支持是姑息治疗社会工作的基本要素,但实践方法和支持策略仍然各不相同。这项范围审查是针对加拿大儿童临终关怀院扩大其丧亲服务的兴趣而发起的。目的是确定和批判性地反思评估策略和专业方法用于丧亲儿童,青年和成人,并考虑这些如何与姑息治疗社会工作的价值观和实践相一致或分歧。在MEDLINE、Embase、PsycINFO和CINAHL四个数据库中对2015年至2024年9月间发表的证据综合进行了回顾。71篇文章符合纳入标准,确定了400多种不同的评估工具和广泛的支持方法。本综述还强调了文献中的空白,如方法学上的局限性(偏倚风险、缺乏对照组、随访时间有限)、概念模糊以及将证据应用于实践中的挑战。从姑息治疗社会工作的角度来看,研究结果强调了将悲伤理解为需要系统支持的独特人类体验的必要性。扩大丧亲关怀包括提供个人服务,以及建立有凝聚力的规划和综合系统,在各种情况下承认和支持悲痛。
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引用次数: 0
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Journal of Social Work in End-of-Life & Palliative Care
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