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Tough Clinical Decisions: Experiences of Polish Physicians. 艰难的临床决定:波兰医生的经验。
IF 1.5 4区 哲学 Q2 Social Sciences Pub Date : 2024-03-01 Epub Date: 2022-08-08 DOI: 10.1007/s10730-022-09491-x
Joanna Różyńska, Jakub Zawiła-Niedźwiecki, Bartosz Maćkiewicz, Marek Czarkowski

The paper reports results of the very first survey-based study on the prevalence, frequency and nature of ethical or other non-medical difficulties faced by Polish physicians in their everyday clinical practice. The study involved 521 physicians of various medical specialties, practicing mainly in inpatient healthcare. The study showed that the majority of Polish physicians encounter ethical and other non-medical difficulties in making clinical decisions. However, they confront such difficulties less frequently than their foreign peers. Moreover, Polish doctors indicate different circumstances as a source of the experienced problems. The difficulties most often reported relate to (i) patients (or their proxies) requests for medically non-indicated interventions; (ii) problems with communication with patients (or their proxies) due to the patients' negative attitude, unwillingness to cooperate, or aggression; and (iii) various difficulties with obtaining informed consent. Polish physicians report difficulties associated with disagreements among care givers or scarcity of resources less frequently than doctors from other countries. The study's findings provide support for the thesis that a significant portion of Polish physicians still follow a traditional, paternalistic, and hierarchical model of healthcare practice. Instead of promoting patient's empowerment, engagement, and rights, they often consider these ideas as a threat to physicians' professional authority and autonomy. The study leads to the conclusion that due to insufficient training in medical ethics, communication skills, and medical law, many Polish physicians lack the knowledge and competence necessary to adequately respond to challenges posed by modern healthcare practice.

本文报告了波兰医生在日常临床实践中面临的道德或其他非医疗困难的普遍性、频率和性质的首次调查研究结果。这项研究涉及 521 名不同医学专业的医生,他们主要从事住院医疗工作。研究表明,大多数波兰医生在做出临床决定时都会遇到伦理和其他非医疗方面的困难。不过,与外国同行相比,他们遇到此类困难的频率较低。此外,波兰医生指出,不同的情况是造成这些问题的原因。最常报告的困难涉及:(i) 病人(或其代理人)要求进行非医学指征的干预;(ii) 由于病人态度消极、不愿合作或攻击性行为导致与病人(或其代理人)的沟通出现问题;(iii) 获得知情同意方面的各种困难。与其他国家的医生相比,波兰医生较少报告与护理人员之间的分歧或资源匮乏有关的困难。研究结果为以下论点提供了支持:相当一部分波兰医生仍然遵循传统的、家长式的、等级森严的医疗实践模式。他们非但不提倡增强病人的能力、参与和权利,反而常常认为这些观念是对医生职业权威和自主权的威胁。研究得出的结论是,由于在医学伦理、沟通技巧和医疗法律方面的培训不足,许多波兰医生缺乏必要的知识和能力来充分应对现代医疗实践带来的挑战。
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引用次数: 0
Platelets, Puppies, and Payment: How Surveys can be Misleading in the Remuneration Debate. 血小板、小狗和报酬:调查如何在薪酬辩论中产生误导》。
IF 1.5 4区 哲学 Q2 Social Sciences Pub Date : 2024-03-01 Epub Date: 2022-04-19 DOI: 10.1007/s10730-022-09481-z
James Stacey Taylor

In a recent article ("The current state of the platelet supply in the US and proposed options to decrease the risk of critical shortages") published in Transfusion, Stubbs et al. have argued that platelet donors should be paid. Dodd et al. have argued against this proposal, supporting their response with survey data that shows that blood donors (and by extension platelet donors) and potential platelet donors are uninterested in receiving incentives to encourage them to donate. Instead, argue Dodd et al., prospective platelet donors are motivated more by the ease of donation than the prospect of payment. This article defends Stubbs et al. from the criticisms of Dodd et al. It first argues that the preferences that persons state they have in response to survey questions might not reflect the preferences that their actions would reveal they have in actual rather than hypothetical situations. This hypothetical bias is especially likely when persons respond to surveys that ask them about the performance of morally commendable actions (such as platelet donation). This article then argues that the survey that Dodd et al. rely on exhibits serious selection bias with respect to the set of persons it considers to be potential platelet donors.

Stubbs 等人最近在《输血》(Transfusion)杂志上发表了一篇文章("美国血小板供应现状及降低严重短缺风险的建议方案"),认为应该向血小板捐献者支付报酬。Dodd 等人反对这一提议,他们用调查数据支持自己的观点,这些数据显示献血者(以及血小板捐献者)和潜在的血小板捐献者对接受奖励以鼓励他们捐献不感兴趣。相反,多德等人认为,潜在的血小板捐献者的动机更多的是捐献的便利性,而不是付款的前景。本文为 Stubbs 等人对 Dodd 等人的批评进行了辩护。本文首先指出,人们在回答调查问题时所陈述的偏好可能并不反映他们在实际情况下而非假设情况下的行为偏好。当人们在回答调查问题时被问及道德上值得称赞的行为(如血小板捐赠)时,这种假设性偏差尤其可能出现。本文随后指出,多德等人所依据的调查在其认为的潜在血小板捐献者群体方面表现出严重的选择偏差。
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引用次数: 0
Suppressing Scientific Discourse on Vaccines? Self-perceptions of researchers and practitioners. 压制关于疫苗的科学言论?研究人员和从业人员的自我认知
IF 1.5 4区 哲学 Q2 Social Sciences Pub Date : 2024-03-01 Epub Date: 2022-05-19 DOI: 10.1007/s10730-022-09479-7
Ety Elisha, Josh Guetzkow, Yaffa Shir-Raz, Natti Ronel

The controversy over vaccines has recently intensified in the wake of the global COVID-19 pandemic, with calls from politicians, health professionals, journalists, and citizens to take harsh measures against so-called "anti-vaxxers," while accusing them of spreading "fake news" and as such, of endangering public health. However, the issue of suppression of vaccine dissenters has rarely been studied from the point of view of those who raise concerns about vaccine safety. The purpose of the present study was to examine the subjective perceptions of professionals (physicians, nurses, researchers) involved with vaccines through practice and/or research and who take a critical view on vaccines, about what they perceive as the suppression of dissent in the field of vaccines, their response to it, and its potential implications on science and medicine. Respondents reported being subjected to a variety of censorship and suppression tactics, including the retraction of papers pointing to vaccine safety problems, negative publicity, difficulty in obtaining research funding, calls for dismissal, summonses to official hearings, suspension of medical licenses, and self-censorship. Respondents also reported on what has been termed a "backfire effect" - a counter-reaction that draws more attention to the opponents' position. Suppression of dissent impairs scientific discourse and research practice while creating the false impression of scientific consensus.

最近,在全球 COVID-19 大流行之后,关于疫苗的争论愈演愈烈,政治家、卫生专业人士、记者和公民都呼吁对所谓的 "反疫苗者 "采取严厉措施,同时指责他们散布 "假新闻 "并因此危害公众健康。然而,很少有人从那些对疫苗安全表示担忧的人的角度来研究压制疫苗异议者的问题。本研究的目的是考察通过实践和/或研究参与疫苗工作并对疫苗持批判态度的专业人士(医生、护士、研究人员)对他们所认为的疫苗领域压制异议的主观看法、他们对此的反应及其对科学和医学的潜在影响。受访者报告了他们受到的各种审查和压制手段,包括撤回指出疫苗安全问题的论文、负面宣传、难以获得研究经费、要求解雇、传唤参加官方听证会、吊销医疗执照以及自我审查。受访者还报告了所谓的 "逆火效应"--一种使反对者的立场受到更多关注的反作用。压制不同意见会损害科学讨论和研究实践,同时造成科学共识的假象。
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引用次数: 0
Building Effective Mentoring Relationships During Clinical Ethics Fellowships: Pedagogy, Programs, and People. 在临床伦理学研究期间建立有效的指导关系:教学法、计划和人员。
IF 1.5 4区 哲学 Q2 Social Sciences Pub Date : 2024-03-01 Epub Date: 2022-02-26 DOI: 10.1007/s10730-022-09473-z
Trevor M Bibler, Ryan H Nelson, Bryanna Moore, Janet Malek, Mary A Majumder

How should clinical ethicists be trained? Scholars have stated that clinical ethics fellowships create well-trained, competent ethicists. While this appears intuitive, few features of fellowship programs have been publicly discussed, let alone debated. In this paper, we examine how fellowships can foster effective mentoring relationships. These relationships provide the foundation for the fellow's transition from novice to competent professional. In this essay, we begin by discussing our pedagogical commitments. Next, we describe the structures our program has created to assist our fellows in becoming competent ethicists. We then outline the kinds of knowledge, skills, and professional attributes mentors should possess. Following this, we focus on the knowledge, skills, and professional attributes that fellows develop as they co-create effective mentoring relationships. We will not prescribe a single approach to fellowship training; instead, our perspective will, we hope, become a catalyst for further conversation on training and mentoring clinical ethics fellows.

应如何培训临床伦理学家?有学者指出,临床伦理学研究金项目可以培养出训练有素、能力出众的伦理学专家。虽然这似乎很直观,但很少有人公开讨论过研究金项目的特点,更不用说辩论了。在本文中,我们将探讨研究金项目如何促进有效的指导关系。这些关系为研究员从新手转变为称职的专业人员奠定了基础。在本文中,我们首先讨论了我们的教学承诺。接下来,我们介绍了我们的项目为帮助研究员成为称职的伦理学家而建立的结构。然后,我们概述了导师应具备的知识、技能和专业素质。随后,我们将重点介绍学员在共同创建有效指导关系的过程中发展起来的知识、技能和专业特质。我们不会为研究员培训规定单一的方法;相反,我们希望我们的观点将成为进一步讨论培训和指导临床伦理学研究员的催化剂。
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引用次数: 0
The Need for Specialized Oncology Training for Clinical Ethicists. 临床伦理学家接受肿瘤学专业培训的必要性。
IF 1.5 4区 哲学 Q2 Social Sciences Pub Date : 2024-03-01 Epub Date: 2022-04-15 DOI: 10.1007/s10730-022-09477-9
Eric C Blackstone, Barbara J Daly

Numerous ethical issues are raised in cancer treatment and research. Informed consent is challenging due to complex treatment modalities and prognostic uncertainty. Busy oncology clinics limit the ability of oncologists to spend time reinforcing patient understanding and facilitating end-of-life planning. Despite these issues and the ethics consultations they generate, clinical ethicists receive little if any focused education about cancer and its treatment. As the field of clinical ethics develops standards for training, we argue that a basic knowledge of cancer should be included and offer an example of what cancer ethics training components might look like. We further suggest some specific steps to increase collaboration between clinical ethicists and oncology providers in the outpatient setting to facilitate informed consent and proactively identify ethical issues.

癌症治疗和研究中存在许多伦理问题。由于复杂的治疗方式和预后的不确定性,知情同意具有挑战性。繁忙的肿瘤诊所限制了肿瘤学家花时间加强病人理解和促进临终规划的能力。尽管存在这些问题以及由此产生的伦理咨询,临床伦理学家却很少接受有关癌症及其治疗的集中教育。在临床伦理学领域制定培训标准时,我们认为应将癌症的基本知识纳入其中,并举例说明癌症伦理学培训的内容。我们进一步提出了一些具体步骤,以加强临床伦理学家与门诊环境中的肿瘤治疗提供者之间的合作,从而促进知情同意并主动发现伦理问题。
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引用次数: 0
The "Ladder of Inference" as a Conflict Management Tool: Working with the "Difficult" Patient or Family in Healthcare Ethics Consultations. 作为冲突管理工具的 "推论阶梯":在医疗伦理咨询中与 "难缠 "的病人或家属合作。
IF 1.5 4区 哲学 Q2 Social Sciences Pub Date : 2024-03-01 Epub Date: 2022-04-18 DOI: 10.1007/s10730-022-09476-w
Autumn Fiester

Conflict resolution is a core component of healthcare ethics consultation (HEC) and proficiency in this skill set is recognized by the national bioethics organization and its HEC certification process. Difficult interpersonal interactions between the clinical team and patients or their families are often inexorably connected to the normative disputes that are the catalyst for the consult. Ethics consultants are often required to navigate challenging dynamics that have become entrenched and work with patient-provider or family-provider relationships that have already broken down. The first step in conflict resolution is diagnosing the source of the conflict. Because so many interpersonal and normative conflicts rest on misunderstanding and mischaracterization, the diagnosis of the problem requires untangling the actual positions and perspectives of the conflicting parties from the fallacious assumptions made about the parties' respective positions and views. Developed in management science, the Ladder of Inference (LOI) is a diagnostic tool for assisting stakeholders in re-examining the process they used to form beliefs about others involved in the conflict. The LOI is a device that detects errors in reasoning, including implicit racial bias, that lead to false judgments and counterproductive responses to those judgments. The LOI is an instrument that can be used by ethics consultants to help resolve contentious bedside conflicts, but the LOI can also be employed as a teaching tool used by healthcare ethics consultants in training the clinical staff in how to avoid such conflicts in the first place.

解决冲突是医疗伦理咨询(HEC)的核心内容,熟练掌握这项技能已得到国家生物伦理组织及其 HEC 认证程序的认可。临床团队与患者或其家属之间艰难的人际互动往往与规范性争议有着千丝万缕的联系,而规范性争议正是咨询的催化剂。伦理咨询师往往需要处理已经根深蒂固的具有挑战性的动态关系,并与已经破裂的患者-医护人员或家属-医护人员关系打交道。解决冲突的第一步是诊断冲突的根源。由于许多人际冲突和规范性冲突都建立在误解和错误描述的基础上,因此问题的诊断需要将冲突各方的实际立场和观点与对各方各自立场和观点的错误假设区分开来。推理阶梯(LOI)是在管理科学中发展起来的一种诊断工具,用于帮助利益相关者重新审视他们用来形成对冲突中其他人的看法的过程。LOI 可以检测出推理中的错误,包括隐性种族偏见,这些错误会导致错误的判断以及对这些判断做出适得其反的反应。LOI是一种工具,伦理顾问可以利用它来帮助解决有争议的床边冲突,但LOI也可以被医疗伦理顾问用作一种教学工具,培训临床工作人员如何从一开始就避免此类冲突。
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引用次数: 0
Specific Trends in Pediatric Ethical Decision-Making: An 18-Year Review of Ethics Consultation Cases in a Pediatric Hospital. 儿科伦理决策的具体趋势:一家儿科医院伦理咨询案例的 18 年回顾。
IF 1.5 4区 哲学 Q2 Social Sciences Pub Date : 2024-02-28 DOI: 10.1007/s10730-024-09524-7
Yaa Bosompim, Julie Aultman, John Pope

This is a qualitative examination of ethics consultation requests, outcomes, and ethics committee recommendations at a tertiary/quaternary pediatric hospital in the U.S. The purpose of this review of consults over an 18-year period is to identify specific trends in the types of ethical dilemmas presented in our pediatric setting, the impact of consultation and committee development on the number and type of consults provided, and any clinical features and/or challenges that emerged and contributed to the nature of ethical situations and dilemmas. Furthermore, in reviewing clinical ethics consultation trends for nearly two decades, we can identify topic areas for further ethics education and training for ethics consultants, ethics committee members, and pediatric healthcare teams and professionals based on our experiences. Our study with nearly two decades of data prior to the COVID-19 pandemic can serve as groundwork for future comparisons of consultation requests and ethics support for pediatric hospitals prior to, during, and following a pandemic.

这是对美国一家三级/四级儿科医院的伦理咨询请求、结果和伦理委员会建议进行的定性研究。对 18 年间的咨询进行回顾的目的,是为了确定在儿科环境中出现的伦理困境类型的具体趋势、咨询和委员会发展对所提供咨询的数量和类型的影响,以及出现的任何临床特征和/或挑战,并对伦理状况和困境的性质做出贡献。此外,在回顾近二十年的临床伦理咨询趋势时,我们可以根据自己的经验,为伦理咨询师、伦理委员会成员、儿科医疗团队和专业人员确定需要进一步开展伦理教育和培训的主题领域。我们在 COVID-19 大流行之前对近二十年的数据进行的研究,可以为今后比较大流行之前、期间和之后儿科医院的咨询请求和伦理支持奠定基础。
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引用次数: 0
What is a High-Quality Moral Case Deliberation?-Facilitators' Perspectives in the Euro-MCD Project. 什么是高质量的道德案例审议?
IF 1.5 4区 哲学 Q2 Social Sciences Pub Date : 2024-02-05 DOI: 10.1007/s10730-023-09519-w
Lena M Jakobsen, Bert Molewijk, Janine de Snoo-Trimp, Mia Svantesson, Gøril Ursin

The evaluation of the European Moral Case Deliberation Outcomes project (Euro-MCD) has resulted in a revised evaluation instrument, knowledge about the content of MCD (moral case deliberation), and the perspectives of those involved. In this paper, we report on a perspective that has been overlooked, the facilitators'. We aim to describe facilitators' perceptions of high-quality moral case deliberation and their Euro-MCD sessions. The research took place in Norway, Sweden, and the Netherlands using a survey combined with interviews with 41 facilitators. Facilitators' perceived that attaining a high-quality MCD implies fostering a safe and respectful atmosphere, creating a wondering mode, being an attentive authority, developing moral reflective skills, reaching a common understanding, and ensuring organisational prerequisites for the MCD sessions. Our central conclusion is that efforts at three levels are required to attain a high-quality MCD: trained and virtuous facilitator; committed, respectful participants; and organizational space. Furthermore, managers have a responsibility to prepare MCD participants for what it means to take part in MCD.

对欧洲道德案例评议成果项目(Euro-MCD)的评估修订了评估工具,了解了道德案例评议(MCD)的内容和参与人员的观点。在本文中,我们将报告一个被忽视的视角,即主持人的视角。我们旨在描述主持人对高质量道德案例评议和欧洲道德案例评议会议的看法。研究在挪威、瑞典和荷兰进行,采用了调查与访谈相结合的方式,访问了 41 位主持人。主持人认为,要实现高质量的道德案例讨论,就必须营造安全和相互尊重的氛围,创造一种想知道的模式,成为一个细心的权威,培养道德反思能力,达成共识,并确保道德案例讨论的组织前提。我们的核心结论是,要实现高质量的 "强迫性思维",需要在三个层面做出努力:训练有素、品德高尚的主持人;尽心尽力、相互尊重的参与者;以及组织空间。此外,管理者有责任让强迫性思维训练的参与者做好参加强迫性思维训练的准备。
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引用次数: 0
Can We Be Creative with Communication? Assessing Decision-Making Capacity in an Adult with Selective Mutism. 我们能创造性地进行交流吗?评估患有选择性缄默症的成年人的决策能力。
IF 1.5 4区 哲学 Q2 Social Sciences Pub Date : 2024-02-05 DOI: 10.1007/s10730-024-09523-8
Nicholas R Mercado

Selective mutism is an anxiety disorder in which an individual is unable to speak in certain social situations though may speak normally in other settings (Hua & Major, 2016). Selective mutism in adults is rare, though people with this condition might have other methods of communicating their needs outside of verbal communication. Healthcare professionals rely on a patient's ability to communicate to establish if they have decision-making capacity. This commentary responds to a case of a young adult patient with selective mutism and social anxieties that significantly limited his ability to communicate with anyone in the healthcare team. This required a creative, patient-centered approach to engage in meaningful communication.

选择性缄默症是一种焦虑症,患者在某些社交场合无法说话,但在其他场合可以正常说话(Hua & Major, 2016)。成人中的选择性缄默症较为罕见,但患有这种疾病的人可能会在语言交流之外使用其他方法来表达自己的需求。医护人员依赖患者的沟通能力来确定其是否具有决策能力。这篇评论回应了一个年轻成年患者的病例,该患者患有选择性缄默症和社交焦虑症,这极大地限制了他与医疗团队中任何人交流的能力。这就需要采用一种创造性的、以患者为中心的方法来进行有意义的交流。
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引用次数: 0
Non-Psychiatric Treatment Refusal in Patients with Depression: How Should Surrogate Decision-Makers Represent the Patient's Authentic Wishes? 抑郁症患者拒绝非精神治疗:代理决策者应如何代表患者的真实意愿?
IF 1.5 4区 哲学 Q2 Social Sciences Pub Date : 2024-01-27 DOI: 10.1007/s10730-024-09522-9
Esther Berkowitz, Stephen Trevick

Patients with mental illness, and depression in particular, present clinicians and surrogate decision-makers with complex ethical dilemmas when they refuse life-sustaining non-psychiatric treatment. When treatment rejection is at variance with the beliefs and preferences that could be expected based on their premorbid or "authentic" self, their capacity to make these decisions may be called into question. If capacity cannot be demonstrated, medical decisions fall to surrogates who are usually advised to decide based on a substituted judgment standard or, when that is not possible, best interest. We propose that in cases where the patient meets the widely accepted cognitive criteria for capacity but is making decisions that appear inauthentic, the surrogate may best uphold patient autonomy by following a "restorative representation" model. We see restorative representation as a subset of substituted judgement in which the decision-maker retains responsibility for deciding as the patient would have, but discerns the decision their "truest self" would make, rather than inferring their current wishes, which are directly influenced by illness. Here we present a case in which the patient's treatment refusal and previously undiagnosed depression led to difficulty determining the patient's authentic wishes and placed a distressing burden on the surrogate decision-maker. We use this case to examine how clinicians and ethicists might better advise surrogates who find themselves making these clinically and emotionally challenging decisions.

精神疾病患者,尤其是抑郁症患者,在拒绝维持生命的非精神治疗时,会给临床医生和代理决策者带来复杂的伦理困境。当他们拒绝治疗的行为与他们病前或 "真实 "自我的信念和偏好不一致时,他们做出这些决定的能力就会受到质疑。如果无法证明其行为能力,医疗决定就会由代理机构做出,通常会建议代理机构根据替代判断标准做出决定,或者在无法根据替代判断标准做出决定时,根据最佳利益做出决定。我们建议,如果病人符合广泛接受的行为能力认知标准,但做出的决定似乎并不真实,代理者可以通过遵循 "恢复性代表 "模式来最好地维护病人的自主权。我们将恢复性表述视为替代判断的一个子集,在这个子集中,决策者保留了按照病人本来的意愿做出决定的责任,但要辨别出病人 "最真实的自我 "会做出的决定,而不是推断出病人当前的意愿,因为病人当前的意愿会受到疾病的直接影响。在这里,我们介绍了一个病例,在这个病例中,病人拒绝治疗和之前未确诊的抑郁症导致难以确定病人的真实意愿,并给代理决策者带来了痛苦的负担。我们通过这个病例来探讨临床医生和伦理学家如何才能更好地为代理决策者提供建议,帮助他们做出这些在临床和情感上都具有挑战性的决定。
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引用次数: 0
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