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The Experience of Moral Distress in an Academic Family Medicine Clinic. 一个学术性家庭医学诊所的道德困境体验。
IF 1.5 4区 哲学 Q3 ETHICS Pub Date : 2023-03-01 DOI: 10.1007/s10730-021-09453-9
Dawn Worsham Bourne, Elizabeth Epstein

Background and objectives: Primary care providers (PCPs) report decreased job satisfaction and high levels of burnout, yet little is known about their experience of moral distress. The aim of this study was to gain insight into the experiences of PCPs regarding moral distress including causative factors and proposed mitigation strategies.

Methods: This qualitative pilot study used semi-structured interviews to identify causes of moral distress in PCPs in an academic family medicine department. Interviews were analyzed using conventional content analysis.

Results: Of 35 eligible participants, 12 completed the study (34% participation rate). Most were white, female, and had practiced for less than 10 years. Four PCPs had considered leaving their position due to moral distress. Participants identified five causes of moral distress: policies and procedures that conflict with patient needs, the unpredictable nature of primary care, need to "bend the rules," lack of accountability, and lack of support staff. Six internal conflicts made resolving morally distressing situations difficult: perceived powerlessness, sense of responsibility, socialization to follow orders, emotional toll of the job, competing obligations, and fear of mistakes.

Conclusions: These findings matched themes in the current literature and identified an unbending infrastructure. This, coupled with the chaotic nature of primary care, resulted in frequent moral distress. Participants offered solutions to reduce and mitigate moral distress (also similar with current literature) and suggested moral distress and burnout are closely linked.

背景和目的:初级保健提供者(pcp)报告工作满意度下降和高度倦怠,但对他们的道德痛苦经历知之甚少。本研究的目的是深入了解pcp在道德困境方面的经验,包括病因和建议的缓解策略。方法:本定性初步研究采用半结构化访谈来确定学术家庭医学部门pcp道德困扰的原因。访谈采用传统的内容分析法进行分析。结果:在35名符合条件的参与者中,12名完成了研究(34%的参与率)。大多数是白人,女性,并且练习不到10年。四名pcp曾考虑因道德困境而离职。与会者确定了道德困境的五个原因:与患者需求相冲突的政策和程序,初级保健的不可预测性,需要“变通”,缺乏问责制,以及缺乏支持人员。六种内部冲突使得解决道德困境变得困难:感知到的无力感、责任感、服从命令的社会化、工作的情感代价、竞争性义务和对错误的恐惧。结论:这些发现与当前文献的主题相匹配,并确定了一个不弯曲的基础结构。这一点,再加上初级保健的混乱性质,导致了频繁的道德困境。参与者提出了减少和减轻道德困境的解决方案(与当前文献相似),并认为道德困境与倦怠密切相关。
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引用次数: 2
Psychiatric Hospital Ethics Committee Discussions Over a Span of Nearly Three Decades. 精神病院伦理委员会近三十年的讨论。
IF 1.5 4区 哲学 Q3 ETHICS Pub Date : 2023-03-01 DOI: 10.1007/s10730-021-09454-8
Michall Ferencz-Kaddari, Abira Reizer, Meni Koslowsky, Ora Nakash, Shai Konas

Various types of health settings use clinical ethics committees (CEC) to deal with the ethical issues that confront both healthcare providers and their patients. Although these committees are now more common than ever, changes in the content of ethical dilemmas through the years is still a relatively unexplored area of research. The current study examines the major topics brought to the CEC of a psychiatric hospital in Israel and explores whether there were changes in their frequency across nearly three decades. The present paper reports on a thematic analysis of the written verbatim transcripts from 466 ethical topics brought to the CEC between the years 1991 and 2016. The following major topics related to ethical dilemmas were identified: confidentiality (30%), patient autonomy (23%), health records (14%), dual relationship (12%), allocation of resources (11%), inappropriate professional and personal conduct (9%), and multicultural sensitivity (1%). Topics related to confidentiality increased significantly over the years, as did inappropriate professional and personal conduct. In addition, the analysis showed that the content of the ethical cases and the resolutions suggested by the CEC also varied over the years. In conclusion, although most ethical topics have remained relatively stable over time, the discourse around them has evolved, requiring a dynamic assessment and reflection by the mental health practitioners serving as members of a CEC.

各种类型的医疗机构使用临床伦理委员会(CEC)来处理医疗保健提供者及其患者所面临的伦理问题。尽管这些委员会现在比以往任何时候都更普遍,但这些年来伦理困境内容的变化仍然是一个相对未被探索的研究领域。目前的研究检查了以色列一家精神病院CEC的主要主题,并探讨了近三十年来它们的频率是否有变化。本文报告了对1991年至2016年期间提交CEC的466个伦理主题的逐字书面记录的专题分析。确定了与道德困境相关的以下主要主题:保密性(30%)、患者自主权(23%)、健康记录(14%)、双重关系(12%)、资源分配(11%)、不当的职业和个人行为(9%)和多元文化敏感性(1%)。多年来,与保密相关的话题显著增加,不恰当的职业和个人行为也在增加。此外,分析表明,伦理案件的内容和CEC建议的决议也在逐年变化。总之,尽管大多数伦理主题随着时间的推移保持相对稳定,但围绕它们的论述已经发生了变化,需要作为CEC成员的精神卫生从业人员进行动态评估和反思。
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引用次数: 1
Primary Care Ethics is Just Medical Ethics: A Philosophical Argument for the Feasibility of Transitioning Acute Care Ethics to the Primary Care Setting. 初级保健伦理就是医学伦理:急症护理伦理过渡到初级保健环境可行性的哲学论证。
IF 1.5 4区 哲学 Q3 ETHICS Pub Date : 2023-03-01 DOI: 10.1007/s10730-021-09451-x
Stephen Perinchery-Herman

Whether practiced by ethics committees or clinical ethicists, medical ethics enjoys a solid foundation in acute care hospitals. However, medical ethics fails to have a strong presence in the primary care setting. Recently, some ethicists have argued that the reason for this disparity between ethics in the acute and primary care setting is that primary care ethics is distinct from acute care ethics: the failure to translate ethics to the primary care setting stems from the incorrect belief that acute care ethics can be applied to the primary care setting. In this paper, I argue that primary care ethics and acute care ethics are species of the same ethical genus, and that the ethical differences are not ones of kind but of circumstance. I do this by appealing to the role obligations that underlie acute care and primary care clinicians' medical ethical obligations and the shared institutions that ground those obligations.

无论是伦理委员会还是临床伦理学家,急诊医院的医学伦理都有着坚实的基础。然而,医学伦理在初级保健环境中没有很强的存在感。最近,一些伦理学家认为,这种差异的原因在急诊和初级保健设置的伦理是不同的,初级保健伦理不同于急性护理伦理:未能将伦理转化为初级保健设置源于错误的信念,即急性护理伦理可以应用于初级保健设置。在本文中,我认为初级保健伦理学和急性护理伦理学是同一伦理属的物种,并且伦理差异不是种类而是环境的差异。我通过呼吁作为急症护理和初级保健临床医生医学道德义务基础的角色义务以及作为这些义务基础的共同机构来做到这一点。
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引用次数: 0
From Prohibition to Permission: The Winding Road of Medical Assistance in Dying in Canada. 从禁止到允许:加拿大死亡医疗援助的曲折之路。
IF 1.5 4区 哲学 Q3 ETHICS Pub Date : 2022-12-01 DOI: 10.1007/s10730-022-09488-6
Jocelyn Downie

In this paper, I offer a personal and professional narrative of how Canada went from prohibition to permission for medical assistance in dying (MAiD). I describe the legal developments to date and flag what might be coming in the near future. I also offer some personal observations and reflections on the role and impact of bioethics and bioethicists, on what it was like to be a participant in Canada's law reform process, and on lessons that readers in other jurisdictions might take from Canada's experience.

在本文中,我提供了加拿大如何从禁止到允许死亡医疗援助的个人和专业叙述(MAiD)。我描述了迄今为止的法律发展,并指出了在不久的将来可能会发生的事情。我还提供了一些关于生物伦理学和生物伦理学家的作用和影响的个人观察和思考,关于参与加拿大法律改革过程的感受,以及其他司法管辖区的读者可以从加拿大的经验中吸取的教训。
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引用次数: 5
The Implementation of Assisted Dying in Quebec and Interdisciplinary Support Groups: What Role for Ethics? 协助死亡在魁北克和跨学科支持小组的实施:伦理的作用是什么?
IF 1.5 4区 哲学 Q3 ETHICS Pub Date : 2022-12-01 Epub Date: 2022-09-08 DOI: 10.1007/s10730-022-09484-w
Marie-Eve Bouthillier, Catherine Perron, Delphine Roigt, Jean-Simon Fortin, Michelle Pimont

The purpose of this text is to tell the story of the implementation of the Act Respecting End-of-Life Care, referred to hereafter as Law 2 (Gouvernement du Québec, 2014) with an emphasis on the ambiguous role of ethics in the Interdisciplinary Support Groups (ISGs), created by Quebec's Ministère de la santé et des services sociaux (MSSS). As established, ISGs provide "clinical, administrative and ethical support to health care professionals responding to a request for Medical aid in dying (MAiD)" (Gouvernement du Québec, 2015). It is suggested that their composition includes the participation of a person with an expertise in ethics. These ISGs represent an important innovation for stakeholders involved in MAiD. To date, no scientific research has specifically addressed ISGs and little research has been conducted in other jurisdictions on the roles, operations and practices of MAiD support structures, especially the implication of ethics. Several ISGs have certainly developed promising practices that could benefit all stakeholders in the wider field of ethics and end of life. We will explore the development of ISGs in Quebec as a support structure for MAiD by highlighting the role that ethics has played (and should play) in these morally and humanly challenging situations.

本文的目的是讲述《尊重临终关怀法案》的实施情况,下文称为第2号法律(government du quemacei, 2014),重点是伦理在跨学科支持小组(isg)中的模糊作用,由魁北克的社会服务部门(MSSS)创建。按照规定,isg向"响应临终医疗援助请求的保健专业人员提供临床、行政和道德支持"。(中国政府,2015)。建议他们的组成包括一个具有道德专业知识的人的参与。这些isg代表了参与MAiD的利益相关者的重要创新。到目前为止,还没有科学研究专门针对国际咨询组,在其他司法管辖区也很少对国际咨询组支助结构的作用、业务和做法进行研究,特别是对伦理的影响。一些isg当然已经开发出有前途的做法,可以使更广泛的道德和生命终结领域的所有利益攸关方受益。我们将通过强调道德在这些具有道德和人性挑战性的情况下所发挥的作用(以及应该发挥的作用),探索魁北克isg作为MAiD支持结构的发展。
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引用次数: 4
Implementation of Medical Assistance in Dying as Organizational Ethics Challenge: A Method of Engagement for Building Trust, Keeping Peace and Transforming Practice. 作为组织伦理挑战的临终医疗援助的实施:一种建立信任、维护和平和转变实践的参与方法。
IF 1.5 4区 哲学 Q3 ETHICS Pub Date : 2022-12-01 Epub Date: 2022-08-24 DOI: 10.1007/s10730-022-09485-9
Andrea Frolic, Paul Miller

This paper focuses on the ethics of how to approach the introduction of MAiD as an organizational ethics challenge, a focus that diverges from the traditional focus in healthcare ethics on the ethics of why MAiD is right or wrong. It describes a method co-designed and implemented by ethics and medical leadership at a tertiary hospital to develop a values-based, grassroots response to the decriminalization of assisted dying in Canada. This organizational ethics engagement method embodied core tenants that drew inspiration from a variety of sources, including poetic ones. These tenants are: make the problem bigger; focus on values; cultivate open moral spaces; and trust emergence. The paper describes how these tenants were put into practice in order to create a rigorous and sustainable MAiD program that delivers high-quality care to patients and families while honoring the moral diversity of the hospital workforce. One of the goals in sharing this method is to provide a roadmap for healthcare organizations in Canada and other jurisdictions around the world that are facing the challenge of responding to patient requests for MAiD following the decriminalization of this care option.

本文关注的是如何将MAiD的引入作为一项组织伦理挑战的伦理问题,这一焦点与医疗保健伦理学中传统的关于MAiD是对还是错的伦理问题的焦点有所不同。它描述了由一家三级医院的伦理和医疗领导共同设计和实施的一种方法,以制定基于价值观的基层对策,应对加拿大协助死亡非刑事化。这种组织伦理参与方法体现了从各种来源(包括诗歌来源)汲取灵感的核心租户。这些租户:使问题变得更大;关注价值观;培育开放的道德空间;信任涌现。本文描述了如何将这些租户付诸实践,以创建一个严格和可持续的MAiD项目,为患者和家属提供高质量的护理,同时尊重医院员工的道德多样性。分享这种方法的目标之一是为加拿大和世界各地的其他司法管辖区的医疗保健组织提供一个路线图,这些组织在这种医疗选择合法化后面临着响应患者对MAiD请求的挑战。
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引用次数: 5
Introducing Medical Assistance in Dying in Canada: Lessons on Pragmatic Ethics and the Implementation of a Morally Contested Practice. 在加拿大介绍临终医疗援助:关于实用伦理学的教训和实施道德上有争议的做法。
IF 1.5 4区 哲学 Q3 ETHICS Pub Date : 2022-12-01 Epub Date: 2022-09-02 DOI: 10.1007/s10730-022-09495-7
Andrea Frolic, Allyson Oliphant

Medical Assistance in Dying (MAiD) in Canada has had a tumultuous social and legal history. In the 6 years since assisted dying was decriminalized by the Canadian Parliament in June 2016, the introduction of this practice into the Canadian healthcare system has been fraught with ethical challenges, practical hurdles and grass-roots innovation. In 2021, MAiD accounted for approximately 3.3% of all Canadian deaths annually, and more patients are seeking MAiD year over year as this option becomes more widely know. Unfortunately, some patients who want MAiD are unable to access it in a timely manner because of a lack of willing MAiD providers. This introduction describes statistics about the uptake of MAiD in Canada and the challenges presented by Canadians' rapid acceptance of this end of life care option. In this special edition of HEC Forum about the implementation of MAiD in Canada, authors depict a range of ethical challenges and strategies to address issues related to MAiD access and quality, organizational engagement, clinician recruitment and retention, and support for a morally diverse workforce. In each article, the authors reflect on the question: What are the practical ethics involved in introducing assisted dying into a new healthcare context, and how can ethicists and ethics resources collaborate with stakeholders to ensure the integration of ethical considerations as this practice continues to evolve?

加拿大的临终医疗援助(MAiD)有着动荡的社会和法律历史。自2016年6月加拿大议会将协助死亡合法化以来的6年里,将这种做法引入加拿大医疗体系充满了伦理挑战、实践障碍和基层创新。2021年,MAiD每年约占加拿大所有死亡人数的3.3%,随着这一选择的普及,越来越多的患者每年都在寻求MAiD。不幸的是,由于缺乏自愿的MAiD提供者,一些想要MAiD的患者无法及时获得它。这篇介绍介绍了在加拿大使用MAiD的统计数据,以及加拿大人迅速接受这种临终关怀选择所带来的挑战。在本期HEC论坛关于在加拿大实施MAiD的特别版中,作者描述了一系列道德挑战和策略,以解决与MAiD获取和质量、组织参与、临床医生招聘和保留以及支持道德多元化的劳动力相关的问题。在每篇文章中,作者都反思了这样一个问题:将辅助死亡引入新的医疗环境中涉及的实践伦理是什么,伦理学家和伦理资源如何与利益相关者合作,以确保随着这种实践的不断发展,伦理考虑的整合?
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引用次数: 4
Getting Beyond Pros and Cons: Results of a Stakeholder Needs Assessment on Physician Assisted Dying in the Hospital Setting. 超越利弊:利益相关者对医院环境中医生协助死亡的需求评估结果。
IF 1.5 4区 哲学 Q3 ETHICS Pub Date : 2022-12-01 Epub Date: 2022-08-23 DOI: 10.1007/s10730-022-09492-w
Andrea Frolic, Leslie Murray, Marilyn Swinton, Paul Miller

This study assessed the attitudes and needs of physicians and health professional staff at a tertiary care hospital in Canada regarding the introduction of physician assisted dying (PAD) during 2015-16. This research aimed to develop an understanding of the wishes, concerns and hopes of stakeholders related to handling requests for PAD; to determine what supports/structures/resources health care professionals (HCP) require in order to ensure high quality and compassionate care for patients requesting PAD, and a supportive environment for all healthcare providers across the moral spectrum. This study constituted a mixed methods design with a qualitative descriptive approach for the study's qualitative component. A total of 303 HCPs working in a tertiary care hospital completed an online survey and 64 HCPs working in hospital units with high mortality rates participated in 8 focus group discussions. Both focus group and survey data coalesced around several themes to support the implementation of PAD following the decriminalization of this practice: the importance of high quality care; honoring moral diversity; supporting values (such as autonomy, privacy, beneficence); and developing resources, including collaboration with palliative care, education, policies and a specialized team. This study provided the foundational evidence to support the development of the PAD program described in other papers in this collection, and can be a model for gathering evidence from stakeholders to inform the implementation of PAD in any healthcare organization.

本研究评估了2015- 2016年加拿大一家三级保健医院的医生和卫生专业人员对引入医师辅助死亡(PAD)的态度和需求。本研究旨在了解与处理PAD请求相关的利益相关者的愿望、关注和希望;确定卫生保健专业人员(HCP)需要什么支持/结构/资源,以确保要求PAD的患者获得高质量和富有同情心的护理,并为所有道德范围内的卫生保健提供者提供支持性环境。本研究采用混合方法设计,采用定性描述方法作为研究的定性成分。在三级保健医院工作的303名医务人员完成了在线调查,在死亡率高的医院单位工作的64名医务人员参加了8次焦点小组讨论。焦点小组和调查数据围绕以下几个主题进行整合,以支持在这种做法非刑事化之后实施PAD:高质量护理的重要性;尊重道德多样性;支持价值观(如自主、隐私、慈善);开发资源,包括与姑息治疗、教育、政策和专业团队合作。本研究为本文集中其他论文中描述的PAD项目的发展提供了基础证据,并且可以作为从利益相关者那里收集证据的模型,为任何医疗机构的PAD实施提供信息。
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引用次数: 5
MAiD to Last: Creating a Care Ecology for Sustainable Medical Assistance in Dying Services. 女仆到最后:创建一个可持续的临终医疗援助服务的护理生态。
IF 1.5 4区 哲学 Q3 ETHICS Pub Date : 2022-12-01 Epub Date: 2022-09-12 DOI: 10.1007/s10730-022-09487-7
Andrea Frolic, Paul Miller, Will Harper, Allyson Oliphant

This paper depicts a case study of an organizational strategy for the promotion of ethical practice when introducing a new, high-risk, ethically-charged medical practice like Medical Assistance in Dying (MAiD). We describe the development of an interprofessional program that enables the delivery of high-quality, whole-person MAiD care that is values-based and sustainable. A "care ecology" strategy recognizes the interconnected web of relationships and structures necessary to support a quality experience of MAiD for patients, families, and clinicians. This program exemplifies a care ecology approach that addresses common barriers to entry to MAiD practice, and also meets the needs of a variety of stakeholders through the creation of patient and family resources, team supports, standards of practice, professional development opportunities, organizational infrastructure, and community partnerships. We also describe how a thriving care ecology evolves to remain resilient, and to enable integration as the needs of the organization, team and program change over time. The design and development of this program may be adapted to other jurisdictions and organizations where MAiD is introduced, or where new patient populations become eligible for MAiD. This care ecology model may also be applicable to the creation of sustainable programs that provide other morally controversial or novel clinical services.

本文描述了一个组织战略的案例研究,以促进道德实践,当引入一个新的,高风险的,道德收费的医疗实践,如死亡医疗援助(MAiD)。我们描述了一个跨专业项目的发展,该项目能够提供高质量的、以价值为基础的、可持续的全人MAiD护理。“护理生态”战略认识到相互关联的关系和结构网络是为患者、家庭和临床医生提供高质量体验所必需的。该项目体现了护理生态方法,解决了进入MAiD实践的常见障碍,并通过创造患者和家庭资源、团队支持、实践标准、专业发展机会、组织基础设施和社区伙伴关系来满足各种利益相关者的需求。我们还描述了蓬勃发展的护理生态如何演变以保持弹性,并随着组织、团队和项目的需求随时间变化而实现整合。该计划的设计和开发可以适应引入MAiD的其他司法管辖区和组织,或者新患者群体有资格获得MAiD。这种护理生态模式也可能适用于提供其他道德上有争议或新颖临床服务的可持续项目的创建。
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引用次数: 5
Author Index to Volume 34: 2022. 第34卷的作者索引:2022。
IF 1.5 4区 哲学 Q3 ETHICS Pub Date : 2022-12-01 DOI: 10.1007/s10730-022-09497-5
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引用次数: 0
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