Pub Date : 2020-10-26DOI: 10.1080/14461242.2020.1832357
A. Hickey-Moody, Philippa Collin
Feminism and a Vital Politics of Depression and Recovery is a conceptual and methodological intervention into the discursive construction of gender and illness. The book is much needed, beautifully...
{"title":"Feminism and a vital politics of depression and recovery","authors":"A. Hickey-Moody, Philippa Collin","doi":"10.1080/14461242.2020.1832357","DOIUrl":"https://doi.org/10.1080/14461242.2020.1832357","url":null,"abstract":"Feminism and a Vital Politics of Depression and Recovery is a conceptual and methodological intervention into the discursive construction of gender and illness. The book is much needed, beautifully...","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"31 1","pages":"342 - 344"},"PeriodicalIF":3.6,"publicationDate":"2020-10-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/14461242.2020.1832357","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42084418","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-05-03DOI: 10.1080/14461242.2020.1770619
E. Hansen
{"title":"Complementary and alternative medicine: knowledge production and social transformation","authors":"E. Hansen","doi":"10.1080/14461242.2020.1770619","DOIUrl":"https://doi.org/10.1080/14461242.2020.1770619","url":null,"abstract":"","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"29 1","pages":"226 - 227"},"PeriodicalIF":3.6,"publicationDate":"2020-05-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/14461242.2020.1770619","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42010488","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2019-09-02DOI: 10.1080/14461242.2019.1658537
Tarryn Phillips
ABSTRACT People with contested illnesses such as Gulf War Syndrome and multiple chemical sensitivities (MCS) have struggled to have their claims to chemical injury recognised as scientifically valid. Patients have thus built on shared experiences and formed ‘embodied health movements’, to challenge mainstream scientific understandings of toxicity and disease causality. Digital technologies have changed the scale and scope of patient sharing and collaboration, yet little attention has been paid to how patients govern each others’ scientific claims. This paper draws from an online qualitative survey of forum users with self-reported MCS (N = 186) to investigate how patient groups internally debate scientificity – in this case over a controversial new ‘neural retraining’ treatment. Despite their own scientific marginalisation, MCS patients conducted ‘boundary-work’ to demarcate scientifically legitimate claims from ‘pseudo-science’ in their analysis of peer theories, and used scientific criteria as a powerful tool to claim and dispute epistemic authority. Moreover, this inter-patient boundary-work had profound social and therapeutic implications in the movement, particularly with respect to the politics of recognition, community solidarity and peer support.
{"title":"‘Mostly accurate with occasional piles of bullshit’: patient ‘boundary-work’ in an online scientific controversy","authors":"Tarryn Phillips","doi":"10.1080/14461242.2019.1658537","DOIUrl":"https://doi.org/10.1080/14461242.2019.1658537","url":null,"abstract":"ABSTRACT People with contested illnesses such as Gulf War Syndrome and multiple chemical sensitivities (MCS) have struggled to have their claims to chemical injury recognised as scientifically valid. Patients have thus built on shared experiences and formed ‘embodied health movements’, to challenge mainstream scientific understandings of toxicity and disease causality. Digital technologies have changed the scale and scope of patient sharing and collaboration, yet little attention has been paid to how patients govern each others’ scientific claims. This paper draws from an online qualitative survey of forum users with self-reported MCS (N = 186) to investigate how patient groups internally debate scientificity – in this case over a controversial new ‘neural retraining’ treatment. Despite their own scientific marginalisation, MCS patients conducted ‘boundary-work’ to demarcate scientifically legitimate claims from ‘pseudo-science’ in their analysis of peer theories, and used scientific criteria as a powerful tool to claim and dispute epistemic authority. Moreover, this inter-patient boundary-work had profound social and therapeutic implications in the movement, particularly with respect to the politics of recognition, community solidarity and peer support.","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"28 1","pages":"261 - 276"},"PeriodicalIF":3.6,"publicationDate":"2019-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/14461242.2019.1658537","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45921930","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2019-09-02DOI: 10.1080/14461242.2019.1651175
D. Swinglehurst
Video-Reflexive Ethnography (VRE) is gaining traction internationally within healthcare improvement practice and research. It is a participatory approach that foregrounds the everyday practices of ...
{"title":"Video-reflexive Ethnography in health research and healthcare improvement: theory and application","authors":"D. Swinglehurst","doi":"10.1080/14461242.2019.1651175","DOIUrl":"https://doi.org/10.1080/14461242.2019.1651175","url":null,"abstract":"Video-Reflexive Ethnography (VRE) is gaining traction internationally within healthcare improvement practice and research. It is a participatory approach that foregrounds the everyday practices of ...","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"28 1","pages":"339 - 340"},"PeriodicalIF":3.6,"publicationDate":"2019-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/14461242.2019.1651175","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45157383","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2019-09-02DOI: 10.1080/14461242.2019.1678397
Caragh Brosnan, A. Cribb
ABSTRACT Complementary and alternative medicine (CAM) degrees in Australian and British universities have come under attack from sceptics who argue that such courses teach only ‘pseudoscience’. Moreover, CAM academics have themselves been publicly labelled ‘quacks’. Comparatively little is known about this group of health professionals who span the two worlds of CAM practice and academia. How do they navigate between these domains, and how are their collective and individual professional identities constructed? Drawing on 47 semi-structured interviews, this paper explores the professional identities of academics working in three university-based CAM disciplines in Australia and the UK: osteopathy, chiropractic and Chinese medicine. By analysing these individuals’ accounts, and building on prior research on health professions in the academy, the paper contributes to understanding how contests about professionalism and professional knowledge take place against the academic-practice divide. By focussing on a domain where knowledge claims are conspicuously contested, it highlights the salience of navigating ‘epistemic stress’ for both group and individual professional identity.
{"title":"Professional identity and epistemic stress: complementary medicine in the academy","authors":"Caragh Brosnan, A. Cribb","doi":"10.1080/14461242.2019.1678397","DOIUrl":"https://doi.org/10.1080/14461242.2019.1678397","url":null,"abstract":"ABSTRACT Complementary and alternative medicine (CAM) degrees in Australian and British universities have come under attack from sceptics who argue that such courses teach only ‘pseudoscience’. Moreover, CAM academics have themselves been publicly labelled ‘quacks’. Comparatively little is known about this group of health professionals who span the two worlds of CAM practice and academia. How do they navigate between these domains, and how are their collective and individual professional identities constructed? Drawing on 47 semi-structured interviews, this paper explores the professional identities of academics working in three university-based CAM disciplines in Australia and the UK: osteopathy, chiropractic and Chinese medicine. By analysing these individuals’ accounts, and building on prior research on health professions in the academy, the paper contributes to understanding how contests about professionalism and professional knowledge take place against the academic-practice divide. By focussing on a domain where knowledge claims are conspicuously contested, it highlights the salience of navigating ‘epistemic stress’ for both group and individual professional identity.","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"28 1","pages":"307 - 322"},"PeriodicalIF":3.6,"publicationDate":"2019-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/14461242.2019.1678397","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49268074","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2019-09-02DOI: 10.1080/14461242.2019.1670090
A. Gilbert, J. Antoniades, Zazie Bowen, Bianca Brijnath
ABSTRACT This article deploys a legitimacy framework to explore how Anglo-Australian and Indian-Australian community members living in Melbourne, Australia, interpret the diagnosis and treatment of depression. Examining community beliefs about depression illuminates the lay-discourses that people living with depression encounter when they disclose their experiences to others. Based on 10 focus groups with 77 community members from Indian-Australian and Anglo-Australian backgrounds, we deploy three frames of legitimacy through which depression is described: biomedical, situational, and moral. Indian-Australian participants were less likely to see depression as a legitimate biomedical condition, describing it primarily in situational terms often connected to migration experiences. Additionally, Indian-Australians often described succumbing to depression as a sign of individual weakness, suggesting that disclosing depression within their community risks loss of moral legitimacy. Anglo-Australians more readily recognised the biomedical legitimacy of depression but offered lay-critiques of medical diagnoses and treatment with antidepressants. In cases of long-term depression, there was a potential loss of moral legitimacy within both communities. The findings illustrate variation in the ways and degrees to which depression and its treatment are socially legitimised across two communities, which manifests in a continuum of diverse approaches to help-seeking.
{"title":"Legitimising depression: community perspectives and the help-seeking continuum","authors":"A. Gilbert, J. Antoniades, Zazie Bowen, Bianca Brijnath","doi":"10.1080/14461242.2019.1670090","DOIUrl":"https://doi.org/10.1080/14461242.2019.1670090","url":null,"abstract":"ABSTRACT This article deploys a legitimacy framework to explore how Anglo-Australian and Indian-Australian community members living in Melbourne, Australia, interpret the diagnosis and treatment of depression. Examining community beliefs about depression illuminates the lay-discourses that people living with depression encounter when they disclose their experiences to others. Based on 10 focus groups with 77 community members from Indian-Australian and Anglo-Australian backgrounds, we deploy three frames of legitimacy through which depression is described: biomedical, situational, and moral. Indian-Australian participants were less likely to see depression as a legitimate biomedical condition, describing it primarily in situational terms often connected to migration experiences. Additionally, Indian-Australians often described succumbing to depression as a sign of individual weakness, suggesting that disclosing depression within their community risks loss of moral legitimacy. Anglo-Australians more readily recognised the biomedical legitimacy of depression but offered lay-critiques of medical diagnoses and treatment with antidepressants. In cases of long-term depression, there was a potential loss of moral legitimacy within both communities. The findings illustrate variation in the ways and degrees to which depression and its treatment are socially legitimised across two communities, which manifests in a continuum of diverse approaches to help-seeking.","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"28 1","pages":"291 - 306"},"PeriodicalIF":3.6,"publicationDate":"2019-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/14461242.2019.1670090","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42688917","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2019-09-02DOI: 10.1080/14461242.2019.1659154
L. Jackson, S. Price, Pauline Gardiner Barber, A. Kruisselbrink, M. Leiter, Shiva Nourpanah, I. Bourgeault
ABSTRACT Many healthcare workers are ‘on the move’ as part of their employment, travelling often great distances to such places as patients’/clients’ homes and community clinics. Healthcare workers’ experiences of this employment-related geographic mobility have been relatively invisible even though mobility is necessary for home and community care. Interviews with professional (e.g. nurses) and paraprofessional (e.g. personal care assistants) healthcare workers in Nova Scotia (Canada) found that mobility includes safety risks, and health and economic costs, although a few professionals had employment contracts that helped to protect them against such risks and costs. Paraprofessionals appear to be most impacted by the economic costs given their lower incomes. Many healthcare workers also experienced travel positively, as time away from fixed sites, and associated this time with freedom. The risks of mobility were understood by some workers as part of a duty to care, but a few suggested that the health and economic costs are an undue burden, pointing to an opening for challenging these conditions. There is a need for regulations to ensure all healthcare workers are safe as they are mobile to and from fixed sites, and do not have to shoulder the health or economic costs of mobility.
{"title":"Healthcare workers ‘on the move’: making visible the employment-related geographic mobility of healthcare workers","authors":"L. Jackson, S. Price, Pauline Gardiner Barber, A. Kruisselbrink, M. Leiter, Shiva Nourpanah, I. Bourgeault","doi":"10.1080/14461242.2019.1659154","DOIUrl":"https://doi.org/10.1080/14461242.2019.1659154","url":null,"abstract":"ABSTRACT Many healthcare workers are ‘on the move’ as part of their employment, travelling often great distances to such places as patients’/clients’ homes and community clinics. Healthcare workers’ experiences of this employment-related geographic mobility have been relatively invisible even though mobility is necessary for home and community care. Interviews with professional (e.g. nurses) and paraprofessional (e.g. personal care assistants) healthcare workers in Nova Scotia (Canada) found that mobility includes safety risks, and health and economic costs, although a few professionals had employment contracts that helped to protect them against such risks and costs. Paraprofessionals appear to be most impacted by the economic costs given their lower incomes. Many healthcare workers also experienced travel positively, as time away from fixed sites, and associated this time with freedom. The risks of mobility were understood by some workers as part of a duty to care, but a few suggested that the health and economic costs are an undue burden, pointing to an opening for challenging these conditions. There is a need for regulations to ensure all healthcare workers are safe as they are mobile to and from fixed sites, and do not have to shoulder the health or economic costs of mobility.","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"28 1","pages":"277 - 290"},"PeriodicalIF":3.6,"publicationDate":"2019-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/14461242.2019.1659154","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43118733","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2019-09-02DOI: 10.1080/14461242.2019.1678398
Renae Fomiatti, J. Latham, S. Fraser, D. Moore, Kate Seear, C. Aitken
ABSTRACT Anabolic-androgenic steroids are synthetic derivatives of testosterone. They are thought to be the most commonly used performance and image-enhancing drugs (PIEDs) in Australia. However, the motivations for men’s use of steroids and other PIEDs are poorly understood. Established ways of understanding these motivations highlight men’s performance and/or image-related concerns, in the context of contemporary masculinities and gender norms. Researchers have paid little attention to how the social and political features of testosterone shape and transform steroid use. Instead, testosterone tends to be taken for granted as a ‘messenger of sex’ that acts on the body in predictable and routinised ways. This article takes a different approach. Drawing on feminist science studies and interviews conducted for an Australian research project, we investigate how the cultural and symbolic meanings assigned to testosterone shape the ontological politics of men’s steroid consumption. Approaching testosterone as an emergent social and biopolitical gathering rather than as a stable sex hormone allows us to better understand how men’s PIED consumption is mediated, particularly by pervasive ideas about sexual difference and the biology of gender. In concluding, we consider ways of better engaging men who consume steroids in health initiatives, in keeping with their concerns and perspectives.
{"title":"A ‘messenger of sex’? Making testosterone matter in motivations for anabolic-androgenic steroid injecting","authors":"Renae Fomiatti, J. Latham, S. Fraser, D. Moore, Kate Seear, C. Aitken","doi":"10.1080/14461242.2019.1678398","DOIUrl":"https://doi.org/10.1080/14461242.2019.1678398","url":null,"abstract":"ABSTRACT Anabolic-androgenic steroids are synthetic derivatives of testosterone. They are thought to be the most commonly used performance and image-enhancing drugs (PIEDs) in Australia. However, the motivations for men’s use of steroids and other PIEDs are poorly understood. Established ways of understanding these motivations highlight men’s performance and/or image-related concerns, in the context of contemporary masculinities and gender norms. Researchers have paid little attention to how the social and political features of testosterone shape and transform steroid use. Instead, testosterone tends to be taken for granted as a ‘messenger of sex’ that acts on the body in predictable and routinised ways. This article takes a different approach. Drawing on feminist science studies and interviews conducted for an Australian research project, we investigate how the cultural and symbolic meanings assigned to testosterone shape the ontological politics of men’s steroid consumption. Approaching testosterone as an emergent social and biopolitical gathering rather than as a stable sex hormone allows us to better understand how men’s PIED consumption is mediated, particularly by pervasive ideas about sexual difference and the biology of gender. In concluding, we consider ways of better engaging men who consume steroids in health initiatives, in keeping with their concerns and perspectives.","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"28 1","pages":"323 - 338"},"PeriodicalIF":3.6,"publicationDate":"2019-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/14461242.2019.1678398","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45998534","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2019-07-29DOI: 10.1080/14461242.2019.1633945
K. Dew, J. Barton, J. Stairmand, D. Sarfati, L. Signal
ABSTRACT Patient-centred care requires patients to be active participants in decision-making in consultations. Decision-making participation requires patients to understand their condition and to be able to convey their health literacy to medical specialists they encounter. Based on conversation analysis of 18 audio-recorded consultations between cancer patients and a range of cancer care specialists, this article analyses the ways cancer specialists attempt to ascertain their patient’s understanding of their disease. Cancer specialists routinely enquire about their patient’s understanding. In doing so, they phrase enquiries in different ways, resulting in different patient responses. How questions are phrased can require patients to deal with contradictory norms in the consultation, such as the patient being competent but not assuming medical expertise, and potentially hinder patient participation. Alternatively, questions can allow patients to draw on their own experience and so facilitate greater patient involvement. Questions aimed directly at the patient’s medical understanding result in minimal or negative responses. In contrast, questions directed at what the patient has been told or has experienced, elicit longer and more in-depth responses from the patient. This analysis illuminates the co-construction of cancer specialist consultations and suggests simple ways in which patient involvement in the consultation can be facilitated.
{"title":"Ascertaining patients’ understandings of their condition: a conversation analysis of contradictory norms in cancer specialist consultations","authors":"K. Dew, J. Barton, J. Stairmand, D. Sarfati, L. Signal","doi":"10.1080/14461242.2019.1633945","DOIUrl":"https://doi.org/10.1080/14461242.2019.1633945","url":null,"abstract":"ABSTRACT Patient-centred care requires patients to be active participants in decision-making in consultations. Decision-making participation requires patients to understand their condition and to be able to convey their health literacy to medical specialists they encounter. Based on conversation analysis of 18 audio-recorded consultations between cancer patients and a range of cancer care specialists, this article analyses the ways cancer specialists attempt to ascertain their patient’s understanding of their disease. Cancer specialists routinely enquire about their patient’s understanding. In doing so, they phrase enquiries in different ways, resulting in different patient responses. How questions are phrased can require patients to deal with contradictory norms in the consultation, such as the patient being competent but not assuming medical expertise, and potentially hinder patient participation. Alternatively, questions can allow patients to draw on their own experience and so facilitate greater patient involvement. Questions aimed directly at the patient’s medical understanding result in minimal or negative responses. In contrast, questions directed at what the patient has been told or has experienced, elicit longer and more in-depth responses from the patient. This analysis illuminates the co-construction of cancer specialist consultations and suggests simple ways in which patient involvement in the consultation can be facilitated.","PeriodicalId":46833,"journal":{"name":"Health Sociology Review","volume":"28 1","pages":"229 - 244"},"PeriodicalIF":3.6,"publicationDate":"2019-07-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/14461242.2019.1633945","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43484747","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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