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Beyond the challenge to research integrity: imposter participation in incentivised qualitative research and its impact on community engagement. 除了对研究诚信的挑战:冒名顶替者参与激励性定性研究及其对社区参与的影响。
IF 2.5 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2023-11-01 Epub Date: 2023-10-24 DOI: 10.1080/14461242.2023.2261433
Kerryn Drysdale, Nathanael Wells, Anthony K J Smith, Nilakshi Gunatillaka, Elizabeth Ann Sturgiss, Tim Wark

Participant recruitment for qualitative research often offers incentives (honoraria; financial compensation) to increase participation and to recognise lived expertise and time involved in research. While not necessarily a new concern for survey and other quantitative based research, 'spam', 'bot', and other inauthentic forms of research participation has rarely been an apparent issue for qualitative research, given it often involves levels of interaction with potential participants prior to the conduct of in-depth interviews and other methods of data generation. This is no longer the case. A troubling new occurrence has meant that recruitment calls for qualitative research with incentives on public-facing social media have attracted 'imposter' expressions of interest and research participation. In this commentary, we explore this challenge that goes beyond research integrity. In particular, we consider the risks of employing strategies to screen for legitimate participants and the importance of building trust and maintaining community engagement.

定性研究的参与者招募通常提供激励措施(酬金;经济补偿),以提高参与度,并认可参与研究的专业知识和时间。虽然“垃圾邮件”、“机器人”和其他不真实的研究参与形式不一定是调查和其他基于定量的研究的新问题,但对于定性研究来说,这很少是一个明显的问题,因为它通常涉及在进行深入访谈和其他数据生成方法之前与潜在参与者的互动水平。现在已经不是这样了。一个令人不安的新情况意味着,在面向公众的社交媒体上招聘定性研究的呼吁吸引了“冒名顶替者”表达兴趣和参与研究。在这篇评论中,我们探讨了这一超越研究诚信的挑战。特别是,我们考虑了采用策略筛选合法参与者的风险,以及建立信任和保持社区参与的重要性。
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引用次数: 0
The healthcare field as a marketplace: general practitioners, pharmaceutical companies, and profit-led prescribing in Pakistan. 作为市场的医疗保健领域:巴基斯坦全科医生、制药公司和以利润为导向的处方。
IF 3.6 2区 医学 Q1 Social Sciences Pub Date : 2023-07-01 DOI: 10.1080/14461242.2022.2139628
Muhammad Naveed Noor, Marco Liverani, Joanne Bryant, Afifah Rahman-Shepherd, Sabeen Sharif, Wafa Aftab, Sadia Shakoor, Mishal Khan, Rumina Hasan

Incentivisation of general practitioners (GPs) by pharmaceutical companies is thought to affect prescribing practices, often not in patients' interest. Using a Bourdieusian lens, we examine the socially structured conditions that underpin exchanges between pharmaceutical companies and GPs in Pakistan. The analysis of qualitative interviews with 28 GPs and 13 pharmaceutical sales representatives (PSRs) shows that GPs, through prescribing medicines, met pharmaceutical sales targets in exchange for various incentives. We argue that these practices can be given meaning through the concept of 'field' - a social space in which GPs, PSRs, and pharmacists were hierarchically positioned, with their unique capacities, to enable healthcare provision. However, structural forces like the intense competition between pharmaceutical companies, the presence of unqualified healthcare providers in the healthcare market, and a lack of regulation by the state institutions produced a context that enabled pharmaceutical companies and GPs to use the healthcare field, also, as space to maximise profits. GPs believed the effort to maximise incomes and meet socially desired standards were two key factors that encouraged profit-led prescribing. We conclude that understanding the healthcare field is an important step toward developing governance practices that can address profit-led prescribing.

制药公司对全科医生(gp)的激励被认为会影响开处方的做法,而这往往不符合患者的利益。利用布尔迪厄的视角,我们考察了支撑巴基斯坦制药公司和普通合伙人之间交流的社会结构条件。对28名全科医生和13名药品销售代表(psr)的定性访谈分析表明,全科医生通过开药来实现药品销售目标,以换取各种奖励。我们认为,这些实践可以通过“领域”的概念来赋予意义——一个社会空间,在这个社会空间中,全科医生、公共服务医师和药剂师以其独特的能力被分层定位,以实现医疗保健提供。然而,制药公司之间的激烈竞争、医疗保健市场上存在不合格的医疗保健提供者以及国家机构缺乏监管等结构性力量,造成了一种环境,使制药公司和普通合伙人也能够利用医疗保健领域作为利润最大化的空间。全科医生认为,收入最大化和满足社会期望标准的努力是鼓励以利润为导向的处方的两个关键因素。我们的结论是,了解医疗保健领域是发展治理实践的重要一步,可以解决利润导向的处方。
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引用次数: 1
Sedative administration in Spanish hospitals in the context of perinatal loss: findings from a mixed-methods study. 围产期损失背景下西班牙医院的镇静管理:一项混合方法研究的结果
IF 3.6 2区 医学 Q1 Social Sciences Pub Date : 2023-07-01 DOI: 10.1080/14461242.2022.2131456
Paul Richard Cassidy, Ángel Gordo, Ibone Olza, Jillian Cassidy

This article explores the contexts, processes and motivations behind the administration of sedatives (minor tranquilisers) in the time around perinatal loss. Using a mixed methods design, an online survey of 796 women and 13 narrative interviews were conducted. The participants had experienced a stillbirth or termination of pregnancy from 16 weeks or a neonatal death in Spanish hospitals. The quantitative (univariate and CHAID decision-tree) and qualitative (narrative-linguistic) analysis found that sedative administration was pervasive across care contexts and appears to be naturalised despite contradicting practice recommendations. Sedative administration was associated with emotional control and avoidance of loss, lack of accompaniment and on occasion with managing disruptive patients. Lack of informed consent was very common, with little explanation of side-effects prior to administration. In the participants' narratives, health professionals tended to construct sedatives as benign, but for some women the effects were counterproductive to loss and grief and related to persistent regrets about decisions. The study concludes that, in the context of perinatal loss, sedative administration was highly integrated into the fabric of medicalised care. As a socio-political and cultural practice underscored by gender-based care dynamics, there seems to be an imbalance between benefit and risk to women's welfare.

这篇文章探讨的背景,过程和动机背后的管理镇静(轻微镇静剂)在围产期损失的时间。采用混合方法设计,对796名女性进行了在线调查和13次叙述性访谈。参与者在西班牙医院经历过死产或16周后终止妊娠或新生儿死亡。定量(单变量和CHAID决策树)和定性(叙事语言)分析发现,镇静管理在整个护理环境中普遍存在,尽管实践建议相互矛盾,但镇静管理似乎已被归化。镇静管理与情绪控制、避免损失、缺乏陪伴以及有时与管理破坏性患者有关。缺乏知情同意是很常见的,在给药前很少解释副作用。在参与者的叙述中,健康专业人员倾向于将镇静剂描述为良性的,但对一些女性来说,镇静剂对失去和悲伤的影响适得其反,并与对决定的持续后悔有关。该研究的结论是,在围产期损失的背景下,镇静管理高度整合到医疗保健的结构中。作为基于性别的护理动态所强调的社会政治和文化实践,妇女福利的利益和风险之间似乎存在不平衡。
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引用次数: 0
Relationship between social cohesion and basic public health services utilisation among Chinese internal migrants: a perspective of socioeconomic status differentiation. 中国流动人口社会凝聚力与基本公共卫生服务利用的关系:一个社会经济地位分化的视角
IF 3.6 2区 医学 Q1 Social Sciences Pub Date : 2023-07-01 DOI: 10.1080/14461242.2022.2112410
Junfeng Jiang

Social cohesion and socioeconomic status (SES) have been widely considered important factors influencing health services utilisation, but little is known about the association between social cohesion and health services utilisation across different SES groups. Based on a nationally representative survey, this study explores the influence of social cohesion on basic public health services utilisation in Chinese internal migrants at different SES levels. It is observed that objective and subjective cohesion forms have different effects on health record establishment and health education receipt. The positive effect of objective cohesion on health services utilisation is significantly larger than that of subjective cohesion, but two cohesion forms show similar effect sizes on health services utilisation among poor-SES migrants. With the promotion of SES, the effect size of objective cohesion gradually increases while that of subjective cohesion declines, showing a distribution of 'scissors gap'. For basic public health services utilisation, migrants not only have the agency to receive but are constrained by their SES. For migrants with poor SES, strong structural constraints hinder the utilisation of basic public health services.

社会凝聚力和社会经济地位(SES)被广泛认为是影响卫生服务利用的重要因素,但人们对不同社会经济地位群体的社会凝聚力和卫生服务利用之间的关系知之甚少。基于一项具有全国代表性的调查,本研究探讨了社会凝聚力对不同社会经济地位的中国内部流动人口基本公共卫生服务利用的影响。客观和主观衔接形式对健康档案的建立和健康教育的接受有不同的影响。客观凝聚力对卫生服务利用的积极影响显著大于主观凝聚力,但两种凝聚力形式对贫困ses移民卫生服务利用的影响程度相似。随着SES的提升,客观衔接的效应量逐渐增加,主观衔接的效应量逐渐下降,呈现出“剪刀缝”的分布。在利用基本公共卫生服务方面,移徙者不仅可以获得机构,而且还受到其社会经济状况的限制。对于社会经济状况较差的移徙者来说,强大的结构性限制阻碍了他们利用基本公共卫生服务。
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引用次数: 0
How French children food representations and tastes vary according to their social backgrounds: a study of disparities in food habitus. 法国儿童的食物表现和口味如何根据他们的社会背景而变化:一项关于食物习惯差异的研究。
IF 3.6 2区 医学 Q1 Social Sciences Pub Date : 2023-07-01 DOI: 10.1080/14461242.2022.2148832
Louis Lebredonchel, Anthony Fardet

The diet of individuals is influenced by social and cultural factors. Children's food tastes and representations, being principally transmitted by their parents, are likely to depend on their social backgrounds. As it is known that parents' feeding strategies and food education differ depending on their social positions, this study aimed at examining how food representations and tastes vary among children. A qualitative sociological study, using semi-structured interviews, was conducted with 40 children, aged from 9 to 11 years, from four French elementary schools. Results showed that children from disadvantaged social backgrounds mentioned less foods, seemed to have a less varied diet, to consume less vegetables, and to enjoy eating ultra-processed foods more than other children. Different food habitus were found, that can be put into perspective using Bourdieu's distinction theory, including different preoccupations regarding health and necessity among social groups. Disparities in children's food habitus could be theoretically linked with observed and growing social inequalities in health, when taking into consideration the potential practises that these habitus imply, and their probable effects on health. Participatory food education classes at school could aim to reduce such disparities, although some concerns and limits must be acknowledged.

个体的饮食受到社会和文化因素的影响。儿童的食物口味和表现主要是由父母传递的,可能取决于他们的社会背景。众所周知,父母的喂养策略和食物教育因其社会地位而异,本研究旨在研究儿童的食物表现和口味如何不同。采用半结构化访谈的定性社会学研究,对来自法国四所小学的40名9至11岁的儿童进行了研究。结果显示,来自弱势社会背景的儿童提到的食物较少,饮食种类较少,蔬菜摄入较少,而且比其他儿童更喜欢吃超加工食品。不同的饮食习惯被发现,这可以用布迪厄的区分理论来看待,包括不同社会群体对健康和必要性的不同关注。考虑到儿童饮食习惯的潜在做法及其对健康的可能影响,从理论上讲,儿童饮食习惯的差异可能与观察到的日益严重的健康方面的社会不平等有关。学校的参与式食品教育课程可以旨在减少这种差距,尽管必须承认一些关切和限制。
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引用次数: 1
All-cause mortality risk for men and women in the United States: the role of partner's education relative to own education. 美国男性和女性的全因死亡风险:伴侣的教育程度相对于自己的教育程度的作用。
IF 3.6 2区 医学 Q1 Social Sciences Pub Date : 2023-07-01 DOI: 10.1080/14461242.2022.2113907
Sandte L Stanley, Justin T Denney

This study examines the association between educational attainment, relative to that of an intimate partner, and all-cause mortality for men and women in different-sex relationships. Research suggests some health benefits for partnered adults that arise from economic benefits and improved access to health-promoting tools. One way these benefits could be gained is through the pairing of the highly educated. While high individual educational attainment lowers mortality risk, less is known about the risks of mortality associated with one's education, relative to their partner's education. Using National Health Interview Survey Linked Mortality Files (NHIS-LMF) for the years 1999-2014 with prospective mortality follow-up through December 2015 (N = 347,994), we document the association between relative educational attainment and mortality for men and women with different-sex partners in the United States. Fully adjusted Cox proportional hazard models revealed a higher risk of all-cause mortality for men and women who have more education than their partner, relative to those having the same education as their partner. For women only, having less education than their male partner was associated with a lower risk of all-cause mortality. A better understanding of relative status within different-sex partnerships provides insights into partnered adult's mortality risks.

这项研究考察了受教育程度(相对于亲密伴侣的受教育程度)与不同性别关系中男女全因死亡率之间的关系。研究表明,经济利益和改善获得促进健康工具的机会对有伴侣的成年人产生了一些健康益处。获得这些好处的一种方式是将受过高等教育的人配对。虽然较高的个人受教育程度会降低死亡风险,但相对于伴侣的受教育程度,人们对自己受教育程度与死亡风险之间的关系知之甚少。利用1999-2014年国家健康访谈调查相关死亡率档案(NHIS-LMF)和2015年12月的前瞻性死亡率随访(N = 347,994),我们记录了美国不同性别伴侣的男性和女性的相对受教育程度与死亡率之间的关系。完全调整后的Cox比例风险模型显示,与受教育程度相同的伴侣相比,受教育程度高于伴侣的男性和女性的全因死亡率更高。仅对女性而言,受教育程度低于其男性伴侣与全因死亡率风险较低有关。更好地了解不同性别伙伴关系中的相对地位有助于深入了解有伴侣的成年人的死亡风险。
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引用次数: 0
'I've got no idea': an ethnography of Critical Care Nurses' nuanced and ambiguous professional identities in regional Australia. “我不知道”:澳大利亚地区重症护理护士微妙而模糊的职业身份的民族志。
IF 3.6 2区 医学 Q1 Social Sciences Pub Date : 2023-07-01 DOI: 10.1080/14461242.2022.2091947
Melissa-Jane Belle, Peta S Cook

Historical sociological perspectives posit professional identity to emerge from socialisation and attainment of 'traits' considered unique to and distinguishing of a profession. Such essentialist understandings, however, cannot account for group heterogeneity, nurses' lived experiences, nor the fluidity of professional and personal identity. This article conceptualises professional identity as being both individual and collective, influenced by context, involving subjective meaning-making, and membership to a specific professional group. Drawing on ethnographic data gathered through participant observation and semi-structured interviews with Critical Care Nurses in an Intensive Care Unit in regional Australia, we identify four themes that reveal different aspects of professional identity: conceptualising professional identity; professional identity as a title and legislative requirement; professional identity as qualifications and training; and professional identity as a social performance. The findings demonstrate that Critical Care Nurses hold multifaceted perceptions of professional identity. While they collectively distinguish their nursing training, knowledge, and practice from other nurses, they struggle to articulate what professional identity is, while creating boundaries between different forms of nursing education and qualifications to construct their professional identity. These uncertain and diverse meanings of professional identity contribute to nurse identity ambiguity, while also reflecting the necessity of flexible individual and collective nursing identities.

历史社会学的观点认为,职业身份是由社会化和“特征”的实现产生的,这些特征被认为是职业的独特和区别。然而,这种本质主义的理解不能解释群体异质性、护士的生活经历,也不能解释职业和个人身份的流动性。这篇文章将职业认同定义为个人和集体,受语境影响,涉及主观意义创造,以及特定专业群体的成员身份。通过参与者观察和对澳大利亚地区重症监护病房重症监护护士的半结构化访谈收集的人种学数据,我们确定了揭示职业认同不同方面的四个主题:概念化职业认同;职业身份作为职称和法律要求;职业身份作为资格和培训;而职业认同作为一种社会表现。研究结果表明,重症监护护士对职业认同的认知是多方面的。虽然她们共同将自己的护理培训、知识和实践与其他护士区分开来,但她们努力阐明什么是职业身份,同时在不同形式的护理教育和资格之间建立界限,以构建自己的职业身份。这些职业认同的不确定性和多样性导致了护士认同的模糊性,同时也反映了灵活的个人和集体护理认同的必要性。
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引用次数: 0
Professional perspectives on serodiscordant family service provision in the context of blood-borne viruses. 血源性病毒背景下血清不协调家庭服务提供的专业观点。
IF 3.6 2区 医学 Q1 Social Sciences Pub Date : 2023-07-01 DOI: 10.1080/14461242.2022.2110922
Kerryn Drysdale, Asha Persson, Anthony K J Smith, Jack Wallace, Kylie Valentine, Rebecca M Gray, Joanne Bryant, Myra Hamilton, Christy E Newman

In recognition of the broader relational aspects of viral infections, family support is considered important when someone is diagnosed with a blood-borne virus (BBV), such as HIV, hepatitis C (HCV) and hepatitis B (HBV). However, families' own support needs are often not a priority in service provision within the BBV sector. In this article, we draw on qualitative interviews with 20 key informants working in various professional capacities in health, social policy, care and advocacy sectors in Australia, and explore their experiences and perspectives on family inclusivity in their services. Overall, key informants acknowledged the diversity of what constitutes family, and consistently viewed family engagement as beneficial to both diagnosed individuals and the wider familial networks affected by a diagnosis. However, prioritising individual care in support services presented barriers to engaging families, which are further complicated by the role of stigma in shaping the social realities of living with a BBV. Increasing understanding in service provision settings that serodiscordance can be a family experience has the potential to widen this analytic lens to consider the support needs of families in their own right.

认识到病毒感染的更广泛的关系方面,当有人被诊断患有血源性病毒(BBV),如艾滋病毒、丙型肝炎(HCV)和乙型肝炎(HBV)时,家庭支持被认为是重要的。然而,家庭自身的支持需求往往不是BBV部门提供服务的优先事项。在本文中,我们对20名在澳大利亚卫生、社会政策、护理和宣传部门从事各种专业工作的关键举报人进行了定性访谈,并探讨了他们在服务中对家庭包容性的经验和观点。总体而言,关键信息提供者承认家庭构成的多样性,并始终认为家庭参与对诊断个体和受诊断影响的更广泛的家庭网络都是有益的。然而,在支持服务中优先考虑个人护理给家庭参与带来了障碍,而在塑造与BBV一起生活的社会现实中,耻辱的作用使情况进一步复杂化。在提供服务的环境中,越来越多地认识到血清不一致可能是一种家庭经历,这有可能扩大这一分析视角,以考虑家庭本身的支持需求。
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引用次数: 1
Communicating the complex lives of families that include a child with Down syndrome. 沟通有唐氏综合症患儿的家庭的复杂生活。
IF 2.5 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2023-03-01 Epub Date: 2023-02-07 DOI: 10.1080/14461242.2022.2161405
Emma Cooke, Laetitia Coles, Sally Staton, Karen Thorpe, Jasneek Chawla

Families of children with Down syndrome experience complex lives and needs, yet the few existing studies on these families are written in conventional academic prose that is not optimal for knowledge translation beyond academia, particularly for busy healthcare professionals. In this paper, we Depart Radically in Academic Writing (DRAW) (Mackinlay, 2022) and present data poetry and two case studies that draw upon semi-structured interviews with mothers, fathers, and siblings, who were interviewed separately about their experiences of having a child/sibling with Down syndrome. We introduce our interdisciplinary team that includes academics and clinicians to contextualise our focus on research translation. We demonstrate that writing with creative criticality (i.e. 'DRAWing') contributes an embodied and affective understanding of research participants' stories, which is largely lacking in the academic literature on families of children with Down syndrome and the sociology of health and illness field more broadly. Moreover, DRAWing can impact audiences emotionally as well as intellectually (Richardson, 2003, p. 924), which has important knowledge translation implications for both healthcare professionals and these families. DRAWing can capture healthcare professionals' attention, prompting them to critically reflect on their practices and opportunities for improving care and treatment for these families.

唐氏综合症患儿的家庭经历着复杂的生活和需求,然而,现有的关于这些家庭的研究很少是以传统的学术散文形式撰写的,这不利于将知识转化为学术以外的知识,尤其是对于繁忙的医疗保健专业人员而言。在本文中,我们以学术写作(DRAW)(Mackinlay,2022 年)的方式进行了彻底的改革,并根据对母亲、父亲和兄弟姐妹进行的半结构化访谈,介绍了数据诗和两个案例研究,这些访谈分别讲述了他们拥有唐氏综合症患儿/兄弟姐妹的经历。我们介绍了我们的跨学科团队,其中包括学者和临床医生,以说明我们对研究转化的关注。我们证明,具有创造性批判性的写作(即 "DRAWing")有助于对研究参与者的故事进行体现性和情感性的理解,而这在有关唐氏综合症患儿家庭的学术文献以及更广泛的健康与疾病社会学领域中是非常缺乏的。此外,DRAWing 还能从情感和智力上影响受众(Richardson, 2003, 第 924 页),这对医疗保健专业人员和这些家庭都具有重要的知识转化意义。DRAWing 可以吸引医疗保健专业人员的注意力,促使他们批判性地反思自己的做法以及改善对这些家庭的护理和治疗的机会。
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引用次数: 0
Health information in creative translation: establishing a collaborative project of research and exhibition making. 创意翻译中的健康信息:建立研究和展览制作合作项目。
IF 2.5 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2023-03-01 Epub Date: 2023-02-09 DOI: 10.1080/14461242.2023.2171802
Ash Watson, Vaughan Wozniak-O'Connor, Deborah Lupton

There are numerous ways that researchers can creatively approach social research and translation. This article discusses elements from the first stages of a novel project that centres social research translation in the form of a public exhibition. 'Creative Approaches to Health Information Ecologies' is a project by a multidisciplinary research team in collaboration with an Australian health consumer organisation. The project uses creative workshop methods to explore how people learn, think, and feel about their bodies and health states, and brings attention to the significance of communities, places, spaces, objects, and other living things - the 'ecologies' of health information. It then builds on these insights to create an interactive exhibition of materials designed for public engagement. This reflexive article unpacks how this creative translation-centred collaboration contributed to the make-up of the project team, the project's research methods, and the process of making exhibition materials. We discuss what the research team learned from the process about creative collaboration, research-creation, and research translation.

研究人员可以通过多种方式创造性地开展社会研究和翻译工作。本文讨论了一个新颖项目第一阶段的内容,该项目以公共展览的形式将社会研究成果转化为中心。健康信息生态的创造性方法 "是一个多学科研究团队与澳大利亚健康消费者组织合作开展的项目。该项目采用创意工作坊的方法来探索人们如何学习、思考和感受自己的身体和健康状况,并让人们关注社区、地点、空间、物体和其他有生命的事物--健康信息 "生态 "的重要性。然后,文章以这些见解为基础,设计了一个供公众参与的互动式资料展览。这篇具有反思性的文章探讨了这种以翻译为中心的创造性合作如何促进了项目团队的组成、项目的研究方法以及展览材料的制作过程。我们讨论了研究团队从这一过程中学到的有关创造性合作、研究创作和研究翻译的知识。
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引用次数: 0
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Health Sociology Review
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