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Ascertaining patients’ understandings of their condition: a conversation analysis of contradictory norms in cancer specialist consultations 确定患者对其病情的理解:癌症专科会诊中矛盾规范的对话分析
IF 3.6 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2019-07-29 DOI: 10.1080/14461242.2019.1633945
K. Dew, J. Barton, J. Stairmand, D. Sarfati, L. Signal
ABSTRACT Patient-centred care requires patients to be active participants in decision-making in consultations. Decision-making participation requires patients to understand their condition and to be able to convey their health literacy to medical specialists they encounter. Based on conversation analysis of 18 audio-recorded consultations between cancer patients and a range of cancer care specialists, this article analyses the ways cancer specialists attempt to ascertain their patient’s understanding of their disease. Cancer specialists routinely enquire about their patient’s understanding. In doing so, they phrase enquiries in different ways, resulting in different patient responses. How questions are phrased can require patients to deal with contradictory norms in the consultation, such as the patient being competent but not assuming medical expertise, and potentially hinder patient participation. Alternatively, questions can allow patients to draw on their own experience and so facilitate greater patient involvement. Questions aimed directly at the patient’s medical understanding result in minimal or negative responses. In contrast, questions directed at what the patient has been told or has experienced, elicit longer and more in-depth responses from the patient. This analysis illuminates the co-construction of cancer specialist consultations and suggests simple ways in which patient involvement in the consultation can be facilitated.
以患者为中心的护理要求患者积极参与咨询决策。参与决策要求患者了解自己的病情,并能够向他们遇到的医学专家传达他们的健康素养。本文通过对18段癌症患者与一系列癌症护理专家之间的咨询录音进行分析,分析了癌症专家试图确定患者对其疾病了解的方式。癌症专家通常会询问病人的理解程度。在这样做的过程中,他们以不同的方式表达询问,导致不同的患者反应。问题的措辞可能需要患者在咨询中处理相互矛盾的规范,例如患者有能力但不具备医疗专业知识,并可能阻碍患者的参与。另外,问题可以让患者借鉴自己的经验,从而促进更多的患者参与。直接针对患者医学理解的问题导致极少或消极的反应。相反,针对病人被告知或经历的问题,会引起病人更长、更深入的回答。这一分析阐明了癌症专科会诊的共同建设,并提出了简化患者参与会诊的方法。
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引用次数: 2
Beyond stress and coping: the relevance of critical theoretical perspectives to conceptualising racial discrimination in health research 超越压力和应对:批判性理论视角与健康研究中种族歧视概念化的相关性
IF 3.6 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2019-07-23 DOI: 10.1080/14461242.2019.1642124
C. Varcoe, A. Browne, Amélie Blanchet Garneau
ABSTRACT Racial discrimination is primarily conceptualised and dealt with at the individual level in health research and practice. Most conceptualisations, and the measures which follow, are grounded in stress-coping theories thus reinforcing individual level understandings. This draws attention away from how structures and systems reproduce racial discrimination, and further supports the very racial categorisations upon which racism depends. The purpose of this paper is to discuss the relevance of critical theoretical perspectives in conceptualising racial discrimination and how it is taken-up and measured in health research. Drawing on Indigenous, Black and material feminist, intersectional, critical race, postcolonial and political economy perspectives, we propose that racial discrimination can most usefully be understood as a relational socio-historical concept. Racial discrimination understood at the systemic level in research and measurement will support more effective policies and practices to mitigate intersecting forms of discrimination in healthcare. Critical theoretical approaches to studying racial discrimination in health research could inform future analyses needed to address and limit the harms perpetuated through individual and structural forms of discrimination.
摘要种族歧视主要是在个人层面的健康研究和实践中被概念化和处理的。大多数概念化以及随后的措施都基于压力应对理论,从而加强了个人层面的理解。这使人们不再关注结构和制度如何再现种族歧视,并进一步支持种族主义所依赖的种族分类。本文的目的是讨论批判性理论视角在种族歧视概念化中的相关性,以及在健康研究中如何看待和衡量种族歧视。根据土著、黑人和物质女权主义、交叉、批判性种族、后殖民和政治经济学的观点,我们认为种族歧视可以最有效地理解为一个关系社会历史概念。在研究和测量的系统层面上理解种族歧视将支持更有效的政策和做法,以减轻医疗保健中交叉形式的歧视。在健康研究中研究种族歧视的关键理论方法可以为未来的分析提供信息,以解决和限制个人和结构性歧视形式造成的伤害。
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引用次数: 11
New Editorial Team for Health Sociology Review 《健康社会学评论》新编辑团队
IF 3.6 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2019-05-04 DOI: 10.1080/14461242.2019.1614859
K. Willis, S. Maclean
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引用次数: 0
Fat acceptance 101: Midwestern American women’s perspective on cultural body acceptance 脂肪接受101:美国中西部女性对文化身体接受的看法
IF 3.6 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2019-04-15 DOI: 10.1080/14461242.2019.1604150
A. Bombak, A. Meadows, J. Billette
ABSTRACT Weight stigma is pervasive in the US, with body size being pathologised and weight loss urged for those of higher weights. However, there is a growing movement for fat acceptance and body positivity. The present study explored perceptions and experiences of cultural body acceptance trends among Midwestern American women who are trying to, or have tried to, ‘accept’ their bodies. Participants (n = 18) are self-identified women who have ever been labelled ‘obese’ on the Body Mass Index and have ever tried to develop a more positive relationship with their bodies. Participants were interviewed three times over the course of approximately one year using a semi-structured interview guide that explored their perceptions of how society represented and treated those of a higher weight. Interviews were recorded and transcribed verbatim, and interviews and field-notes analysed thematically. Emergent themes included greater (mixed) representation, lip service, and inclusive cultures. Ultimately, participants positioned shifting attitudes towards fat bodies within wider social trends toward greater inclusion and diversity in general, but remained frustrated by ceilings of acceptable size, disingenuous messaging, and cultural backsliding.
摘要体重污名在美国普遍存在,体型被病理化,体重较高的人被敦促减肥。然而,人们对脂肪的接受和身体的积极性越来越强烈。本研究探讨了试图或曾经试图“接受”自己身体的中西部美国女性对文化身体接受趋势的看法和经历。参与者(n = 18) 都是自我认同的女性,她们曾在体重指数上被贴上“肥胖”的标签,并试图与自己的身体建立更积极的关系。参与者在大约一年的时间里接受了三次采访,使用半结构化的采访指南,探讨了他们对社会如何代表和对待权重较高的人的看法。访谈被逐字记录和转录,访谈和现场笔记按主题进行分析。新出现的主题包括更大(混合)的代表性、口头上的服务和包容性的文化。最终,参与者将对肥胖身体的态度转变定位于更广泛的社会趋势中,以实现更大的包容性和多样性,但仍对可接受的体型上限、虚伪的信息传递和文化倒退感到沮丧。
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引用次数: 9
The (re)production of health inequalities through the process of disseminating preventive innovations: the dynamic influence of socioeconomic status 通过传播预防性创新的过程(重新)产生保健不平等:社会经济地位的动态影响
IF 3.6 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2019-04-11 DOI: 10.1080/14461242.2019.1601027
Ángel R. Zapata-Moya, Barbara Willems, Piet Bracke
ABSTRACT Fundamental Cause Theory suggests the replacement of mechanisms that produce the persistent relationship between socioeconomic status and health over time. Understanding how this process operates is central to explaining the reproduction of health inequality. We use data from the Onco-barometer survey (2010) to test a set of hypotheses derived from FCT, Diffusion Of Innovations theory and the intersection between these theories to examine how socioeconomic inequality emerges and evolves across the cycle of diffusion of six relevant preventive practices in Spain: faecal occult blood tests, prostate-specific antigen tests, Papanicolaou tests, mammograms, cholesterol readings and blood-pressure checks. Because these preventive measures are characterised by differing rates of spontaneous knowledge and use amongst the Spanish population, we assume that they are at different stages in the diffusion cycle. Results suggest that SES has a dynamic influence according to the diffusion stage of each preventive measure. We argue that the conjunction of these theories offers a dynamic ‘imagery’ that can help to explain the generation and diminishment of inequalities. Moreover, this integration has the potential to bring ‘social change’ back into the study of health inequalities, which is essential to understanding equitable (and inequitable) returns produced by preventive innovations.
【摘要】根本原因理论认为,随着时间的推移,产生社会经济地位与健康之间持续关系的机制将被取代。了解这一过程是如何运作的,对于解释健康不平等的再现至关重要。我们使用来自肿瘤晴雨表调查(2010)的数据来检验一系列假设,这些假设来自于FCT、创新扩散理论以及这些理论之间的交叉,以检验西班牙六种相关预防措施(粪便潜血检查、前列腺特异性抗原检查、帕帕尼柯拉氏检查、乳房x光检查、胆固醇读数和血压检查)的传播周期中社会经济不平等是如何出现和演变的。由于这些预防措施的特点是在西班牙人口中自发认识和使用的比率不同,我们假设它们处于传播周期的不同阶段。结果表明,根据各预防措施的扩散阶段,SES的影响是动态的。我们认为,这些理论的结合提供了一个动态的“意象”,可以帮助解释不平等的产生和减少。此外,这种整合有可能将“社会变革”重新纳入对卫生不平等的研究,这对于理解预防性创新产生的公平(和不公平)回报至关重要。
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引用次数: 14
Interprofessional role boundaries in diabetes education in Australia 澳大利亚糖尿病教育中的跨专业角色界限
IF 3.6 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2019-04-02 DOI: 10.1080/14461242.2019.1600380
Olivia A. King, S. Nancarrow, S. Grace, A. Borthwick
ABSTRACT Diabetes presents a challenge to healthcare services worldwide. Diabetes educators work with individuals and communities to reduce the impact of diabetes. In Australia, diabetes educators derive from one of several primary qualifications including nursing, medicine or a specified allied health background, and have an accredited postgraduate qualification in diabetes education. The peak professional body, the Australian Diabetes Educators Association (ADEA), promotes equivalence of all diabetes educators in terms of their scope of practice. However, in practice, there is evidence of inequities, particularly between those from nursing and allied health backgrounds. This paper uses a neo-Weberian lens to explore the interprofessional role dynamics of a ‘postprofessional’ group of practitioners, who adopt a common role and title to create a professional identity at post-qualifying level. Data were collected via individual interviews with 19 stakeholders and analysed using an abductive template approach. Differential role boundaries between nurse and allied health diabetes educators were established and reinforced in several ways. Diabetes education is considered a sub-specialty of nursing only; access to education and credentialing has been restricted for allied health; reinforcement of professional stereotypes and perceived professional values; and perceived legislative differences in access to medication management for nurse and allied health diabetes educators.
摘要糖尿病对全球医疗服务提出了挑战。糖尿病教育工作者与个人和社区合作,以减少糖尿病的影响。在澳大利亚,糖尿病教育工作者具有护理、医学或特定的联合健康背景等多种初级资格之一,并拥有糖尿病教育的认证研究生资格。最高专业机构,澳大利亚糖尿病教育工作者协会(ADEA),在其实践范围方面促进所有糖尿病教育工作者的平等。然而,在实践中,有证据表明存在不公平现象,尤其是来自护理和相关健康背景的人之间。本文使用新韦伯视角来探索“专业后”从业者群体的跨专业角色动态,他们采用共同的角色和头衔来创造职位资格级别的职业身份。数据是通过对19名利益相关者的个人访谈收集的,并使用溯因模板方法进行分析。在护士和专职健康糖尿病教育工作者之间建立并加强了不同的角色界限。糖尿病教育仅被认为是护理的一个子专业;联合健康方面的教育和资格认证受到限制;强化职业陈规定型观念和公认的职业价值观;以及护士和专职健康糖尿病教育工作者在获得药物管理方面的立法差异。
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引用次数: 9
Determinants of migrants’ knowledge about their healthcare rights 移民保健权利知识的决定因素
IF 3.6 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2019-02-18 DOI: 10.1080/14461242.2019.1581988
V. Seibel
ABSTRACT Although an increasing number of studies emphasise migrants’ knowledge about their healthcare rights as crucial for their healthcare usage, almost none examine the conditions under which migrants acquire this knowledge. This study contributes to the literature by studying the main determinants of migrants’ knowledge about their healthcare rights: Self-interest and necessity, human capital, and social capital. I use unique data collected through the project Migrants’ Welfare State Attitudes (MIFARE), where we surveyed 10 different migrant groups within Denmark, the Netherlands, and Germany on their relation to the welfare state, including healthcare. Analysing a total sample of 6,864 migrants using multinomial logistic regression analyses I find that migrants’ knowledge about their healthcare rights depends mainly on their education and language skills. Both factors enable migrants to grasp health-related information and to become informed about their healthcare rights. I also observe a network effect since healthcare experiences of family members contribute to migrants’ healthcare knowledge. Social ties to the co-ethnic community, however, do not explain why some migrants know more about their healthcare rights than others. Lastly, I find large differences between migrant groups, which remain even after controlling for all relevant factors.
摘要尽管越来越多的研究强调移民对其医疗保健权利的了解对他们的医疗保健使用至关重要,但几乎没有一项研究考察移民获得这些知识的条件。本研究通过研究移民了解其医疗保健权利的主要决定因素:自我利益和必要性、人力资本和社会资本,为文献做出了贡献。我使用了通过移民福利国家态度项目(MIFARE)收集的独特数据,在该项目中,我们调查了丹麦、荷兰和德国的10个不同移民群体与福利国家的关系,包括医疗保健。我使用多项逻辑回归分析对6864名移民的总样本进行了分析,发现移民对其医疗保健权利的了解主要取决于他们的教育和语言技能。这两个因素都使移民能够掌握与健康相关的信息,并了解他们的医疗保健权利。我还观察到了网络效应,因为家庭成员的医疗保健经历有助于移民的医疗保健知识。然而,与同种族社区的社会关系并不能解释为什么一些移民比其他人更了解自己的医疗保健权利。最后,我发现移民群体之间存在很大差异,即使在控制了所有相关因素后,这种差异仍然存在。
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引用次数: 9
The urge to work: normative ordering in the narratives of people on long-term sick leave 工作的冲动:长期病假人群叙事中的规范秩序
IF 3.6 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2019-02-18 DOI: 10.1080/14461242.2019.1579664
H. Hanisch, P. Solvang
ABSTRACT This study analyses the narratives of people on long-term sick leave due to low back pain. We draw upon the theory of justification – as developed by the French sociologists Luc Boltanski and Laurent Thévenot – to investigate how the informants’ narratives evoke and rely upon three ‘orders of worth’. These are the industrial order concerning being a productive citizen, the domestic order of home and family, and the civic order positioning the citizen in the regulations of the welfare state. In-depth interview interpretations map a strongly normative urge to work. The interviews also demonstrate how this urge in interwoven with social interactions in specific arenas: a troubled home life when not working, ways of keeping in touch with work, and complex negotiations of the possibility of non-work. The different orders of worth do more than point towards their ‘own’ arena: Norms and values of the domestic order, in particular, point toward the need for return to work rather than towards life at home (non-work). We conclude that the narratives deal more with the trouble of sick leave than with the enjoyment of work. Hence, the urge to work is just as much a turn away from non-work.
摘要本研究分析了人们因腰痛而长期病假的情况。我们借鉴法国社会学家Luc Boltanski和Laurent Thévenot提出的正当性理论,研究线人的叙述如何唤起和依赖三种“价值顺序”。这些是关于成为一个有生产力的公民的工业秩序,家庭和家庭的国内秩序,以及在福利国家的规定中定位公民的公民秩序。深入的访谈解读映射出强烈的工作规范冲动。采访还表明,这种冲动是如何与特定领域的社交互动交织在一起的:不工作时的家庭生活陷入困境,与工作保持联系的方式,以及对不工作可能性的复杂谈判。不同的价值顺序不仅仅指向他们自己的舞台:尤其是国内秩序的规范和价值观,指向重返工作岗位的必要性,而不是在家生活(非工作)。我们得出的结论是,这些故事更多地涉及病假的麻烦,而不是工作的乐趣。因此,工作的冲动与非工作的冲动一样大。
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引用次数: 2
The vulnerable-empowered mother of academic food discourses: a qualitative meta-synthesis of studies of low-income mothers and food provisioning 学术食物话语的脆弱授权之母:低收入母亲和食物供应研究的定性综合
IF 3.6 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2019-02-12 DOI: 10.1080/14461242.2019.1578984
Natalie Jovanovski, K. Cook
ABSTRACT The nutritional health and wellbeing of children, and by extension their weight, is a heated topic in contemporary discussions of food and health, particularly for low-income populations. Despite contrary understandings, there remains a dominant societal framing that parents – in particular low-income mothers – are solely responsible for the status of their children’s health and wellbeing. In this paper, we examine how low-income mothers are positioned within the academic literature to reveal where responsibility for children’s health and well-being is positioned. We present a meta-synthesis of 18 qualitative studies to identify how mothers’ food choices and feeding are positioned, and the recommendations that researchers identify for promoting child health within this discursive terrain. We found that low-income mothers faced multiple challenges relating to cost, convenience, concerns about health and wellbeing. However, many of the recommendations made by researchers focused extensively on behavioural interventions aimed at the vulnerable mother rather than structural interventions to support mothers’ feeding practices. We argue that discourses of low-income motherhood must recommend structural, and not just individual, change to counteract dominant constructions of the ‘vulnerable-empowered mother’.
儿童的营养健康和福祉,以及他们的体重,是当代食品和健康讨论中的一个热门话题,特别是对于低收入人群。尽管有相反的理解,但仍然存在一种占主导地位的社会框架,即父母,特别是低收入母亲,对子女的健康和福祉状况全权负责。在本文中,我们研究了低收入母亲如何在学术文献中定位,以揭示儿童健康和福祉的责任定位。我们提出了18项定性研究的综合研究,以确定母亲的食物选择和喂养是如何定位的,以及研究人员在这一话语领域为促进儿童健康所提出的建议。我们发现,低收入母亲面临着与成本、便利、健康和福祉有关的多重挑战。然而,研究人员提出的许多建议广泛侧重于针对弱势母亲的行为干预,而不是支持母亲喂养做法的结构性干预。我们认为,低收入母亲的话语必须建议结构性的,而不仅仅是个人的,改变,以抵消“弱势母亲”的主导结构。
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引用次数: 7
Is living well with dementia a credible aspiration for spousal carers? 对于配偶护理人员来说,与痴呆症患者过上幸福的生活是一个可靠的愿望吗?
IF 3.6 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2019-01-02 DOI: 10.1080/14461242.2018.1475249
E. Tolhurst, M. Carey, Bernhard Weicht, P. Kingston
ABSTRACT In England there has been substantial policy development and an academic drive to promote the goal of ‘living well’ for people with dementia and their family members. This article critically evaluates the feasibility of this intention, with reference to the experience of those caring for people with the condition. Qualitative data are utilised from a study which explored how couples negotiate relationships and care. The focus of this paper is the perspectives of spousal carers and the challenges they encounter within their caring role. Views were obtained via semi-structured joint interviews where the carer participated alongside the person with dementia. The extent to which living well with dementia is a credible aspiration for carers is examined via three themes: identity subsumed under care responsibilities; the couple as an isolated family unit; and barriers to professional support. The findings highlight that experience of caring is highly complex and fraught with multiple practical, emotional and moral pressures. It is asserted that research into dementia and care relationships must avoid a zero sum situation, prompted by living well discourses, where attempts to bolster the position of people with dementia compound the marginalisation and stigmatisation of informal carers.
摘要在英国,为了促进痴呆症患者及其家人“过上好日子”的目标,已经制定了大量的政策并开展了学术活动。本文参考那些照顾患有这种疾病的人的经验,批判性地评估了这一意图的可行性。定性数据来自一项研究,该研究探讨了夫妻如何协商关系和护理。本文的重点是配偶照顾者的观点以及他们在照顾角色中遇到的挑战。通过半结构化的联合访谈获得意见,护理人员与痴呆症患者一起参与访谈。通过三个主题考察了护理人员对痴呆症患者的良好生活的可信期望:护理责任下的身份;这对夫妇是一个孤立的家庭单元;以及获得专业支持的障碍。研究结果强调,关爱的经历是高度复杂的,充满了多重的现实、情感和道德压力。有人断言,对痴呆症和护理关系的研究必须避免零和的情况,这种情况是由生活良好的话语引发的,在这种情况下,试图支持痴呆症患者的地位会加剧非正规护理人员的边缘化和污名化。
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引用次数: 14
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