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Drug consumption stigma and patient legitimacy: experiences of people who use drugs seeking care for chronic non-cancer pain in Nigeria. 吸毒耻辱感与患者的合法性:尼日利亚吸毒者寻求慢性非癌性疼痛治疗的经历。
IF 2.5 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2024-11-04 DOI: 10.1080/14461242.2024.2413058
Ediomo-Ubong Nelson

This study explored how people who use drugs (PWUD) experience and respond to stigma in biomedical chronic non-cancer pain management. Thematic analysis of in-depth interviews with PWUD (n = 26) who had sought care for chronic non-cancer pain in public hospitals in Uyo, Nigeria, drew on the idea of stigma as process of social reproduction and the concept of borderwork. Accounts framed stigma as a normalised feature of healthcare that emerged under different circumstances and operated to position chronic non-cancer pain patients who were PWUD as illegitimate subjects underserving of care. Stigma was widely seen as something to be expected, and was often tolerated by PWUD due to its ubiquity. However, they enacted borderwork marking-off stigma experiences that violated values of fairness and humaneness as well as those that spurned traditional gender norms. Participants responded to intolerable stigma through various acts of resistance, including dropping out of care. Stigma creates barriers to adequate pain management and establishes a context where basic care is accessed at the cost of fundamental human rights and dignity. Routine toleration of stigma helps to naturalise the phenomenon and render it invisible. Resistance to stigma provides a basis for interventions to address all forms of stigma in healthcare.

本研究探讨了吸毒者(PWUD)在生物医学慢性非癌症疼痛治疗中如何体验和应对成见。对在尼日利亚乌约市公立医院寻求慢性非癌症疼痛治疗的吸毒者(PWUD,n = 26)的深入访谈进行了专题分析,借鉴了成见作为社会再生产过程的观点和边界工作的概念。这些叙述将成见视为医疗保健的正常化特征,在不同的情况下出现,并将属于残疾人的慢性非癌症疼痛患者定位为不值得治疗的不合法主体。人们普遍认为成见是可以预料的,而且由于成见无处不在,PWUD 通常可以容忍。然而,他们对那些违反公平和人道价值观以及传统性别规范的成见经历进行了边界标记。参与者通过各种反抗行为(包括放弃治疗)来应对无法忍受的成见。成见为适当的疼痛管理制造了障碍,并建立了一种以基本人权和尊严为代价获得基本护理的环境。对成见的例行容忍有助于使这一现象自然化,并使其不为人所见。抵制成见为干预措施提供了基础,以解决医疗保健中一切形式的成见。
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引用次数: 0
Gut feelings and lived experiences: a qualitative study of 'anti-diet' dietitians' and psychologists' motivations and experiences regarding the weight-neutral approach. 直觉和生活经验:"反节食 "营养师和心理学家对体重中立方法的动机和经验的定性研究。
IF 2.5 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2024-11-01 Epub Date: 2023-08-29 DOI: 10.1080/14461242.2023.2248080
Natalie Jovanovski, Tess Jaeger, Rosalind McDougall, Louise Keogh

This paper examines whether the motivations and experiences of 'anti-diet' dietitians and psychologists represent a paradigm shift in healthcare. We conducted four 2-hour, discipline-specific focus groups with a total of 16 female participants residing in Australia. Our reflexive thematic analysis generated four themes that we consider to be stages of a weight-neutral paradigm shift: (1) a recognition of a mismatch between one's weight-centred training and one's lived experience of diet culture, which subsequently informs (2) gut feelings that influence their decision to reject the weight-centric paradigm, thereby leading to (3) exploring the anti-diet knowledge base and then subsequently (4) promoting or advocating for the weight neutral paradigm. Our findings represent a four-stage paradigm shift in action; emphasising the significance of lived experience in the weight-neutral turn, as well as differences in symbolic power between health professionals. Future research should focus on potential ruptures or conflicts within the weight-neutral paradigm itself, and look more deeply into the experiences of other health professionals who are critical of the weight-centred approach.

本文探讨了 "反节食 "营养师和心理学家的动机和经历是否代表了医疗保健模式的转变。我们与居住在澳大利亚的 16 名女性参与者进行了四次长达 2 小时的学科焦点小组讨论。我们的反思性主题分析产生了四个主题,我们认为这些主题是体重中立范式转变的四个阶段:(1)认识到以体重为中心的培训与饮食文化的生活经验之间的不匹配,随后产生(2)直觉,影响她们拒绝以体重为中心的范式的决定,从而导致(3)探索反节食知识库,随后(4)促进或倡导体重中立范式。我们的研究结果代表了行动范式转变的四个阶段;强调了生活经验在体重中性转向中的重要性,以及卫生专业人员之间象征权力的差异。未来的研究应关注体重中立范式本身的潜在断裂或冲突,并更深入地研究其他对以体重为中心的方法持批评态度的医疗专业人员的经历。
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引用次数: 0
Masculine enhancement as health or pathology: gender and optimisation discourses in health promotion materials on performance and image-enhancing drugs (PIEDs). 作为健康或病理学的男性强化:有关提高表现和形象药物(PIEDs)的健康宣传材料中的性别和优化论述。
IF 2.5 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2024-11-01 Epub Date: 2024-01-29 DOI: 10.1080/14461242.2023.2297046
Gemma Nourse, Suzanne Fraser, David Moore

The consumption of performance and image-enhancing drugs (PIEDs) is commonly pathologised in public health discourse as stemming from an unhealthy relationship to masculinity, and is often framed as intrinsically 'risky' and fundamentally at odds with 'good health'. This article examines Australian health promotion materials on PIEDs to analyse their role in shaping notions of good health, normal gender and appropriate self-improvement. To do so, it draws on the work of Butler, Law and Latour to consider how these materials co-constitute men and their health, often in problematic ways. First, we examine the ways in which PIEDs are constituted via a politics of the 'natural', then consider how the health promotion materials on PIEDs participate in the regulation of appropriate, healthy masculinity, and conclude by examining how adolescent masculinity is co-constituted with PIEDs. We observe a key tension between health promotion's avowed interest in improvement and optimisation and its treatment of PIED consumers as aberrant, vulnerable and insecure subjects whose drive to enhance and optimise is characterised by pathology and addiction. We conclude by arguing that health promotion materials on PIEDs fail to acknowledge the exceedingly normative character of enhancement practices in contemporary society.

在公共卫生论述中,人们通常把消费提高表现和形象的药物(PIEDs)病理学化,认为这种行为源于与男子气概的不健康关系,而且往往被认为具有内在的 "风险性",从根本上与 "健康 "背道而驰。本文研究了澳大利亚有关 PIEDs 的健康宣传材料,分析了这些材料在塑造良好健康、正常性别和适当的自我完善观念方面所起的作用。为此,文章借鉴了巴特勒(Butler)、罗(Law)和拉图尔(Latour)的研究成果,探讨了这些材料是如何共同构成男性及其健康的,而且往往是以有问题的方式。首先,我们研究了通过 "自然 "政治来构成 "个人行为、设备和装置 "的方式,然后考虑了关于 "个人行为、设备和装置 "的健康宣传材料是如何参与调节适当的、健康的男性气质的,最后研究了青少年的男性气质是如何与 "个人行为、设备和装置 "共同构成的。我们发现,一方面,健康促进工作公开表示对改善和优化感兴趣,另一方面,它又将个人健康和教育产品消费者视为异常、脆弱和不安全的主体,而这些主体对改善和优化的驱动力是以病态和成瘾为特征的,这两者之间存在着一种关键的紧张关系。最后,我们认为,有关个人、教育和发展的健康宣传材料未能承认当代社会中的增强实践具有超乎寻常的规范性。
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引用次数: 0
Shifting solutions: tracking transformations of drugs, health and the 'human' through human rights processes in Australia. 转变解决方案:通过澳大利亚的人权进程跟踪毒品、健康和“人”的转变。
IF 2.5 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2024-11-01 Epub Date: 2023-09-20 DOI: 10.1080/14461242.2023.2254746
Kate Seear

Global drug policy is in a period of change. Human rights can play an important role in such change, but more work is needed to understand the how rights work and why they might come to matter. Drawing on insights from a major study on drug policy and human rights, I argue that important new dynamics in respect of how drugs are thought to relate to health are emerging, including a conceptualisation of some drugs as capable of generating or improving health, rather than undermining it. Drugs are in some cases coming to be understood not as the origin of social problems but as the solution for them. I introduce the concept of 'solutionisation' as a tool for understanding the mechanisms by which human rights shapes ontologies, positioning 'solutionisation' as corollary and counterpart to Carol Bacchi's work on policy 'problematisation' (Bacchi [2009]. Analysing Policy: What is the Problem Represented To Be? Pearson). I argue that both 'problematisation' and 'solutionisation' have value for sociological analyses of human rights and that we need to pay careful attention to the co-constitutive dimensions of drugs and human rights, to understand how norms about health, self and subjects are made, sustained, and brought under pressure.

全球毒品政策正处于变革时期。人权可以在这种变化中发挥重要作用,但还需要做更多的工作来了解权利是如何运作的,以及为什么它们会变得重要。根据一项关于药物政策和人权的重大研究的见解,我认为,在药物与健康的关系方面,重要的新动态正在出现,包括将一些药物概念化为能够产生或改善健康,而不是破坏健康。在某些情况下,毒品不是社会问题的根源,而是解决问题的办法。我引入了“解决方案”的概念,将其作为理解人权塑造本体的机制的工具,将“解决方案化”定位为必然结果,并与Carol Bacchi关于政策“问题化”的工作相对应(Bacchi[2009]。《分析政策:代表未来的问题是什么?培生》)。我认为,“问题化”和“解决方案化”对人权的社会学分析都有价值,我们需要仔细关注毒品和人权的共同构成维度,以了解健康、自我和主体的规范是如何形成、维持和承受压力的。
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引用次数: 0
Medication use for the management of professional performance: between invisibility and social normalisation. 为管理职业表现而使用药物:在隐蔽性和社会正常化之间。
IF 2.5 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2024-11-01 Epub Date: 2024-06-26 DOI: 10.1080/14461242.2024.2362174
Noémia Lopes, David Tavares, Elsa Pegado, Hélder Raposo, Carla Rodrigues

This article aims to explore pharmaceuticalisation processes in professional work contexts. The approach focuses on identifying patterns of medicine and dietary supplement use for managing work performance, and on discussing the relationship between these consumption practices and work-related pressure factors. This analysis adapts the notions of 'normalisation' to understand the extent of cultural acceptability of these practices, and the notion of 'differentiated normalisation' to capture the tension between the trend towards normalisation of such consumption and its partial social (in)visibility within work settings. Empirical support for this analysis is based on a sociological study conducted in Portugal on professions under high performance pressures. The study involved three professional groups - nurses, journalists and police officers. A mixed methods approach was used, including focus groups, questionnaires and semi-structured interviews. Overall, the results show a trend towards the use of medicines and supplements for performance management, which reveals itself as a cultural response to work-related social pressures. Such consumption coexists with irregular patterns of either occasional or long-term use, as well as heterogeneous processes of 'normalisation' and 'hidden' consumption. Conclusions point to a social interconnection between the intensification of work pressures and the pharmaceuticalisation of work performance.

本文旨在探讨专业工作环境中的药品化过程。分析的重点是确定为管理工作表现而使用药品和膳食补充剂的模式,并讨论这些消费行为与工作相关压力因素之间的关系。本分析采用了 "正常化 "的概念来理解这些做法在文化上的可接受程度,并采用了 "有区别的正常化 "的概念来捕捉这种消费的正常化趋势与其在工作环境中的部分社会(不)可见性之间的矛盾。在葡萄牙进行的一项关于面临高绩效压力的职业的社会学研究为这一分析提供了经验支持。这项研究涉及三个职业群体--护士、记者和警察。研究采用了混合方法,包括焦点小组、问卷调查和半结构化访谈。总体而言,研究结果显示了一种使用药品和保健品进行绩效管理的趋势,这本身就是对与工作有关的社会压力的一种文化反应。这种消费与偶尔使用或长期使用的不规则模式以及 "正常化 "和 "隐性 "消费的不同过程并存。结论表明,工作压力的加剧与工作绩效的药物化之间存在着社会联系。
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引用次数: 0
Healthism, rural individualism and self-help: youth mental health in Northwest Tasmania. 健康主义、农村个人主义和自助:塔斯马尼亚西北部的青少年心理健康。
IF 2.5 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2024-11-01 Epub Date: 2024-06-30 DOI: 10.1080/14461242.2024.2356871
Mikaylah Howard, Ruby Grant, Merete Schmidt

Rural Australian youth exhibit high rates of mental ill-health, exacerbated by reduced access to mental health services. While the need for innovative solutions is well-established rural youth themselves are frequently excluded from the dialogue, creating a significant gap in evidence and the development of relevant service provision that reflects young people's lived experiences. Drawing on the concepts of individualism and healthism and research highlighting the continuing importance of relationships and trust in the lives of young people in a digital society, we aim to better understand how rural youth understand mental health and navigate mental health services and information. Using a qualitative methodology, we held 2 small focus groups with a total of 8 young people in rural Tasmania to identify aspects of rural mental healthcare that require improvement and to contribute to developing new and innovative solutions. Findings indicate that rural Tasmanian youth face numerous structural, social, and cultural barriers to positive mental health. Rural self-reliance and generational differences in attitudes towards mental health can negatively affect youths' help-seeking behaviours. Findings from this study suggest a need to combine technology-and community-based approaches creating a multi-generational approach to combat mental ill-health among rural youth.

澳大利亚农村青年的心理疾病发病率很高,而心理健康服务的减少又加剧了这一问题。虽然创新解决方案的必要性已经得到了充分肯定,但农村青年本身却经常被排除在对话之外,这就造成了在提供证据和开发反映青年生活经历的相关服务方面的巨大差距。借鉴个人主义和健康主义的概念,以及强调在数字社会中关系和信任在年轻人生活中的持续重要性的研究,我们旨在更好地了解农村青年是如何理解心理健康以及如何获取心理健康服务和信息的。我们采用定性方法,与塔斯马尼亚州农村地区的共 8 名年轻人举行了两次小型焦点小组会议,以确定农村地区心理保健需要改进的方面,并为开发新的创新解决方案做出贡献。研究结果表明,塔斯马尼亚农村地区的年轻人在积极心理健康方面面临着许多结构性、社会性和文化性障碍。农村的自力更生和各代人对心理健康态度的不同会对青少年的求助行为产生负面影响。研究结果表明,有必要将技术和基于社区的方法结合起来,创造出一种多代共存的方法,以消除农村青少年的心理疾病。
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引用次数: 0
The good pain patient: a critical evaluation of patients' self-presentations in specialist pain clinics. 好的疼痛患者:对疼痛专科门诊中患者自我表述的批判性评估。
IF 2.5 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2024-11-01 Epub Date: 2024-05-23 DOI: 10.1080/14461242.2024.2350501
Morgan Dudley, Rebecca E Olson, Karime Mescouto, Jenny Setchell

Established research supports collaborative patient-clinician communication as a means of improving pain management and decreasing opioid use by patients with chronic pain. However, much of this scholarship emphasises clinicians' capacities to shape and improve communication; limited research investigates patients' roles in this process. Drawing on 40 ethnographic observations of patient-clinician interactions, clinical spaces and case conferences within one specialist pain clinic in Brisbane, Australia, this paper investigates how and why patients present themselves in particular ways within consultations. Our theoretical lens combines concepts from Goffman on patienthood and stigma with Foucauldian theories of pastoral and disciplinary power. Findings suggest that elements of the clinical environment - namely posters - usher patients towards presenting in what we conceptualise as the 'good pain patient' role. In this role, patients demonstrate that they are moral, responsible, and contributing members of society. Yet, such a role is problematic to opening communication, with the role constraining what is socially acceptable for patients with chronic pain to say, do, or feel. In recognising how clinical contexts facilitate problematic good pain patient presentations, this paper directs attention to the spatial and relational nature of implicit clinical expectations and constrained good pain patient presentations.

已有研究支持将患者与医生之间的合作交流作为改善疼痛管理和减少慢性疼痛患者使用阿片类药物的一种手段。然而,这些研究大多强调临床医生塑造和改善沟通的能力,而对患者在这一过程中所扮演角色的研究却十分有限。本文通过对澳大利亚布里斯班一家疼痛专科诊所中患者与临床医生的互动、临床空间和病例会议进行的 40 次人种学观察,研究了患者在会诊中如何以及为何以特定方式展示自己。我们的理论视角结合了戈夫曼关于病人身份和耻辱的概念,以及福柯尔德关于牧师权力和纪律权力的理论。研究结果表明,临床环境中的一些因素--即海报--引导患者以我们所认为的 "优秀疼痛患者 "的角色出现。在这一角色中,患者展示了他们是有道德、有责任感和对社会有贡献的成员。然而,这种角色对于开放式交流是有问题的,因为这种角色限制了慢性疼痛患者在社会上可以说的话、做的事或感受到的东西。在认识到临床环境是如何促进有问题的良好疼痛患者表现时,本文引导人们关注隐性临床期望和受限的良好疼痛患者表现的空间和关系性质。
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引用次数: 0
Inclusive language in health policy - a timely case (study) of cervical screening in Australia. 卫生政策中的包容性语言--澳大利亚宫颈癌筛查的及时案例(研究)。
IF 2.5 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2024-11-01 Epub Date: 2024-06-05 DOI: 10.1080/14461242.2024.2356868
Kerryn Drysdale, Nicola S Creagh, Claire Nightingale, Lisa J Whop, Angela Kelly-Hanku

Language is important in health policy development. Policy changes in Australia to increase cervical screening offers a timely case example to explore the function of inclusive language in health policy. Gender and sexuality diverse people with a cervix have been largely invisible within health promotion programs, which has led to reduced awareness of, and access to, cervical screening. Twenty-eight semi-structured interviews were conducted with 29 key informants between April and October 2022 about the role of inclusive language in cervical screening policy, promotion, and delivery in the context of a national program to promote cervical screening. Three themes were identified from what key informants believed to be the role of inclusive language: (1) the common goal of inclusive language as policy advocacy for broader inclusivity; (2) the inevitable partiality of inclusive language in policy as an opportunity to start conversation; and (3) policy as a bridge between essential but diffuse components of the health sector with multidirectional influences. Inclusive language was seen to operationalise equity in health policy within the broader aim of eliminating cervical cancer among under-screened populations.

语言在卫生政策制定中非常重要。澳大利亚为增加宫颈筛查而进行的政策调整为我们提供了一个及时的案例,来探讨包容性语言在卫生政策中的作用。在健康促进项目中,有子宫颈的性别和性取向不同的人在很大程度上被忽视了,这导致人们对子宫颈筛查的认识和接受程度降低。在 2022 年 4 月至 10 月期间,我们对 29 位关键信息提供者进行了 28 次半结构式访谈,内容涉及包容性语言在宫颈筛查政策、推广和实施过程中的作用。主要信息提供者认为包容性语言的作用有三个主题:(1) 包容性语言的共同目标是倡导更广泛的包容性政策;(2) 包容性语言在政策中不可避免的片面性是开启对话的契机;(3) 政策是卫生部门重要但分散的组成部分之间的桥梁,具有多向影响。包容性语言被视为在消除筛查不足人群的宫颈癌这一更广泛的目标范围内,在卫生政策中实现公平。
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引用次数: 0
'Just because I'm smiling doesn't mean I'm not in pain': navigating the layered stigma of chronic pain and suicidality in social worlds. 我在微笑并不意味着我不痛苦":在社会世界中驾驭慢性疼痛和自杀的多层污名。
IF 2.5 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2024-09-15 DOI: 10.1080/14461242.2024.2398250
Kate LaForge

This article aims to provide an illustrated account of layered stigmatisation processes and consequences for those who experience chronic pain and accompanying suicidality. Using constructivist grounded theory, I draw from 20 in-depth interviews conducted from 2022 to 2023 to explore how chronic pain and suicidality operate within people's social worlds. Findings demonstrate how layered stigmatising processes, occurring based on chronic pain and suicidality, operate consistently across multiple social arenas to create interactional troubles, which result in enduring negative social, emotional, and financial impacts. Three themes were constructed, including (1) self-stigma and the multiple roles of the family, (2) missed connections, and (3) anticipated stigma and workplace discrimination. Taken together, themes support the overarching category, 'interactional troubles'. Findings suggest a need for attunement to stigmatising processes' omnipresence and the depth of their consequences. Clinical interventions may benefit from emphasizing participants' social worlds and incorporating the complexity of navigating social arenas given layered stigmatisation. Moreover, policies that support those with chronic pain and mental illness could offset the long-term negative economic consequences of discrimination.

本文旨在以图文并茂的方式阐述对那些经历过慢性疼痛并伴有自杀倾向的人的多层次污名化过程和后果。我运用建构主义基础理论,从 2022 年至 2023 年进行的 20 次深入访谈中,探索了慢性疼痛和自杀是如何在人们的社会世界中发生作用的。研究结果表明,基于慢性疼痛和自杀的多层次污名化过程是如何在多个社会领域持续运作,从而产生互动问题,并导致持久的负面社会、情感和经济影响。研究构建了三个主题,包括(1)自我成见和家庭的多重角色,(2)错过的联系,以及(3)预期的成见和工作场所的歧视。综合来看,这些主题支持 "互动困扰 "这一总体类别。研究结果表明,有必要关注污名化过程的无处不在及其后果的严重性。临床干预可能会受益于强调参与者的社会世界,以及在多层次鄙视的情况下融入社会舞台的复杂性。此外,支持慢性疼痛和精神疾病患者的政策可以抵消歧视带来的长期负面经济后果。
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引用次数: 0
The emotional labour of peer work: encountering stigma in mental healthcare spaces. 同伴工作中的情感劳动:在精神医疗空间中遭遇耻辱。
IF 2.5 2区 医学 Q2 HEALTH POLICY & SERVICES Pub Date : 2024-08-19 DOI: 10.1080/14461242.2024.2391437
Emma-Louise Seal, Jacinthe Flore, Renata Kokanović, Tamara Borovica, Cameron Duff, Stuart D M Thomas, Sathya Rao, Andrew Chanen

This article focuses on the workplace experiences of peer workers with a diagnosis of borderline personality disorder (BPD) in mental healthcare settings in Australia. Our article is located at the intersection of political, social, cultural, and legislative forces that have fostered the development of peer work as a paid profession. We draw on the concept of stigma to analyse findings from qualitative interviews with peer workers conducted in [state], Australia. By examining peer work in the broader context of lifeworlds of BPD, we address the interplay of work and professional identity, and the experience of a profoundly stigmatised diagnosis at this intersection.Our findings demonstrate the physical and emotional effects of stigma and how it produces boundaries and inequalities between peer workers and other health practitioners. These boundaries are reinforced by invisible markers that delineate what is expected, 'normal' and deemed professional in the workplace. Moreover, these same medico-socio-political relations help shape peer workers' identities and experiences. The development of peer workforces in mental healthcare service delivery is a prominent area of reform in Australia and internationally. Our research highlights the urgency of efforts to transform current socio-cultural-political relations that inhibit peer workers in their roles and impact workplace experiences.

本文主要介绍了澳大利亚精神医疗机构中被诊断为边缘型人格障碍(BPD)的同伴工作者的工作经历。我们的文章位于政治、社会、文化和立法力量的交汇处,这些力量促进了同伴工作作为一种有偿职业的发展。我们借鉴污名化的概念,分析了在澳大利亚[州]对同伴工作者进行的定性访谈结果。我们的研究结果表明了成见对身体和情感的影响,以及它如何在同伴工作者和其他医疗从业者之间制造界限和不平等。这些界限被无形的标记所强化,这些标记划定了工作场所的预期、"正常 "和专业。此外,这些医疗-社会-政治关系也有助于塑造同伴工作者的身份和经历。在精神卫生保健服务中发展同伴工作者队伍是澳大利亚和国际上一个突出的改革领域。我们的研究凸显了改变当前社会文化政治关系的紧迫性,这些关系阻碍了同伴工作者发挥作用,并影响了他们的工作体验。
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引用次数: 0
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