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Journal of Intellectual Disabilities最新文献

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Protocol for optimizing robot-assisted autism therapy sessions through gaze analysis: A pilot study investigating optimal trial count for children with comorbid autism spectrum disorder and intellectual disability. 通过凝视分析优化机器人辅助自闭症治疗疗程的方案:一项调查共病自闭症谱系障碍和智力残疾儿童的最佳试验数量的试点研究。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2025-01-03 DOI: 10.1177/17446295241312053
Zunera Zahid, Sara Ali, Yasar Ayaz, Syed Mustafa Hassan, Raheel Nawaz

Background: Autism spectrum disorder poses challenges in social communication and behavior, while Intellectual disabilities are characterized by deficits in cognitive, social, and adaptive skills, frequently accompanied by stereotypies and challenging behaviors. Despite the progress made in autism spectrum disorder research, there is often a lack of research focusing on individuals with co-occurring autism spectrum disorder and intellectual disability. Robot-assisted autism therapies are effective in addressing these needs. However, there is a lack of consensus on the optimal number of therapy sessions required for effective outcomes, particularly in children with comorbid autism and intellectual disability.

Objectives: This study aims to investigate the optimal number of therapy sessions required for effective outcomes in robot-assisted autism therapy, specifically focusing on children with comorbid autism and intellectual disability. Gaze analysis metrics, including the average number of eye contact and average inter-eye contact delay, are utilized to assess therapy effectiveness.

Methods: This study integrates gaze analysis focusing on the average number of eye contact and average inter-eye contact delay as performance metrics. A pilot investigation was conducted to explore the critical temporal window for optimal trial count in robot-assisted autism therapy for children with autism. A mathematical model was introduced and validated for eight children with autism spectrum disorder, encompassing 56 experiments conducted over 7 weeks (one trial per week). Robots presented 8 cues in 3 categories (visual, speech, motion) with 16 cues per trial.

Results and conclusions: The results, validated using single-sample Wilcoxon signed-rank tests, revealed that the unsaturated state, with a median score of 3.44, exhibited significantly lower average inter-eye contact delay (p-value = 0.014, r = 0.86) and significantly higher average number of eye contact (p-value = 0.014, r = 0.87) compared to the hypothesized medians. These findings suggest that the unsaturated state occurring in the critical temporal window has significantly higher average number of eye contact and lower average inter-eye contact delay compared to the saturated state. This study underscores the importance of tailored and targeted interventions for children with autism spectrum disorder, facilitating the development of cost-effective, time-efficient, evidence-based treatments.

背景:自闭症谱系障碍在社会沟通和行为方面存在挑战,而智力障碍的特征是认知、社会和适应技能的缺陷,往往伴随着刻板印象和具有挑战性的行为。尽管自闭症谱系障碍的研究取得了一些进展,但对自闭症谱系障碍和智力障碍共同发生的个体的研究往往缺乏。机器人辅助的自闭症治疗在解决这些需求方面是有效的。然而,对于有效结果所需的最佳治疗次数缺乏共识,特别是对于患有自闭症和智力残疾的儿童。目的:本研究旨在探讨机器人辅助自闭症治疗有效效果所需的最佳治疗次数,特别是关注自闭症共病和智力残疾儿童。凝视分析指标,包括平均眼神接触次数和平均眼间接触延迟,用于评估治疗效果。方法:本研究采用注视分析方法,以平均眼神接触次数和平均眼神接触延迟为绩效指标。本研究旨在探讨机器人辅助自闭症儿童治疗中最佳试验次数的关键时间窗。引入并验证了8名自闭症谱系障碍儿童的数学模型,包括在7周内进行的56次实验(每周一次试验)。机器人在视觉、言语、动作3个类别中呈现8个线索,每组16个线索。结果与结论:单样本Wilcoxon符号秩检验结果显示,与假设中位数相比,不饱和状态中位数得分为3.44时,平均眼间接触延迟显著降低(p值= 0.014,r = 0.86),平均眼间接触次数显著增加(p值= 0.014,r = 0.87)。这些结果表明,在临界时间窗发生的不饱和状态比饱和状态有更高的平均眼神接触次数和更低的平均眼间接触延迟。这项研究强调了为自闭症谱系障碍儿童量身定制和有针对性的干预措施的重要性,有助于开发成本效益高、时间效率高、循证治疗方法。
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引用次数: 0
Inclusive universities for students with intellectual disabilities from a teacher's perspective. 从教师的角度来看,为智障学生提供包容性大学。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-26 DOI: 10.1177/17446295241310914
M Dolores Yerga-Míguez, Maria João Pena, Rosa María Díaz Jiménez, Maria Rita Mancaniello

The aim of this research is to analyse the elements necessary for the construction of inclusive universities in the European context from the perspective of university professors. Three focus groups are conducted in different countries: Spain, Italy and Portugal. The discourses have been analysed following Grounded Theory. The codes obtained were subjected to a centrality analysis in which rank, intermediation and proximity were analysed. The results show inclusion, teaching, experience and well-being as central elements of the discourses. Two large semantic blocks are obtained, one referring to educational factors and the other to social and emotional factors. Educational factors refer to how methodologies, assessment and support elements should be configured. In relation to social and emotional factors, issues related to inclusion, inclusive experiences, support and accompaniment and the role of families are presented. It concludes with the need to address both factors with a commitment from the entire university community.

本研究的目的是从大学教授的角度分析欧洲背景下建设包容性大学所需要的要素。三个焦点小组在不同的国家进行:西班牙,意大利和葡萄牙。运用扎根理论对话语进行了分析。获得的代码受到中心性分析,其中秩,中介和接近性进行了分析。结果表明,包容、教学、体验和幸福是话语的核心要素。得到了两大语义块,一个是教育因素,另一个是社会和情感因素。教育因素指的是如何配置方法、评估和支持要素。在社会和情感因素方面,提出了与包容、包容体验、支持和陪伴以及家庭角色相关的问题。它的结论是,需要整个大学社区的承诺来解决这两个因素。
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引用次数: 0
MTSS implementation in residential and day habilitation settings: A scoping review. MTSS在住宅和日间康复环境中的实施:范围审查。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-26 DOI: 10.1177/17446295241312058
Gary E Schaffer, Beth Boone

Although Multi-Tiered Systems of Support (MTSS) has been used in schools, its success has prompted recommendations for its adoption in group home and day habilitation settings. This scoping review examines the literature on implementing MTSS in group home and day habilitation settings for individuals with intellectual and developmental disabilities. Of the 15 studies reviewed, most focused on Positive Behavior Interventions and Supports (PBIS) rather than a comprehensive MTSS framework, raising questions about the alignment of interventions with the three-tiered structure of MTSS. Additionally, PBIS in these settings appears restricted to an individualized approach to minimizing behavior instead of the comprehensive framework used in schools. Benefits of implementing PBIS include a reduction in challenging behavior, decreased use of restrictive interventions, and staff-related advantages such as improved organization and reduced turnover. Challenges are noted in time and resource constraints. Suggestions for implementing MTSS in residential and day habilitation settings are provided.

虽然多层支持系统(MTSS)已经在学校中使用,但它的成功促使人们建议在集体家庭和日间康复环境中采用它。本综述研究了在智力和发育障碍个体的集体家庭和日间康复环境中实施MTSS的文献。在回顾的15项研究中,大多数集中在积极行为干预和支持(PBIS)上,而不是一个全面的MTSS框架,这提出了关于干预与MTSS三层结构的一致性的问题。此外,PBIS在这些环境中似乎仅限于个性化的方法来减少行为,而不是学校使用的综合框架。实施PBIS的好处包括减少具有挑战性的行为,减少限制性干预措施的使用,以及员工相关的优势,如改进组织和减少人员流失。挑战在于时间和资源的限制。提出了在住宅和日间康复机构实施MTSS的建议。
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引用次数: 0
An educational money management program for undergraduate students with intellectual disabilities: A pilot study. 针对智障本科生的教育性理财计划:试点研究。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-13 DOI: 10.1177/17446295241308977
Carmela B Ataviado, Sara K Frye, Kristy L Meyer

This pilot study evaluated a money management skills program for students within the scope of occupational therapy practice. Three undergraduate students with intellectual disabilities attended sessions twice weekly for six weeks, learning financial concepts and applying knowledge through technology-based activities. The students were nonrandomly selected through a program that works to support college students with intellectual disabilities. Perceptions of money management skills pre- and post-intervention were assessed using a novel developed quantitative questionnaire. The Kohlman Evaluation of Living Skills (KELS) Assessment (money management section) was used to score and assess the participants' money management skills using descriptive indicators. The results demonstrated improvements in KELS Assessment and Likert-question scores from pre- to post-program implementation. Further research should be conducted to draw significant statistical conclusions on the effectiveness of a technology-based money management program for college students with intellectual disabilities.

本试点研究评估了职业治疗实践范围内学生的资金管理技能计划。三名智障本科生每周参加两次课程,为期六周,学习金融概念,并通过科技活动应用知识。这些学生是通过一个支持智障大学生的项目非随机选择的。干预前后对资金管理技能的看法使用一种新的开发定量问卷进行评估。采用Kohlman生活技能评估(KELS)评估(资金管理部分),采用描述性指标对参与者的资金管理技能进行评分和评估。结果表明,从计划实施前到实施后,KELS评估和李克特问题得分有所改善。对于基于技术的智力障碍大学生理财项目的有效性,需要进一步的研究来得出有意义的统计结论。
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引用次数: 0
Implementing the Multi-Disciplinary Expertise Team method to reduce involuntary care in intellectual disability care: multi-methods study evaluating adaptation and effectiveness. 实施多学科专家团队方法减少智障护理中的非自愿护理:多方法适应性和有效性评估研究。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-09 DOI: 10.1177/17446295241307061
Esther Bisschops, Lianne Bakkum, J Clasien de Schipper, Britt Metselaar, Simone van der Plas, Petri Embregts, Carlo Schuengel

Involuntary care in intellectual disability care may be reduced by deployment of multidisciplinary consultation. The Multi-Disciplinary Expertise Team (MDET) method proved effective in a previous trial on increasing involuntary care reduction. The current study aimed to examine how four organizations adapted MDET during implementation, and tested whether these versions were also effective. Semi-structured interviews with MDET-coordinators were analyzed using the Framework Reporting Adaptions and Modifications-Expanded. A quasi-experimental interrupted time-series design tested change in weekly counts of involuntary care recordings from before to during MDET implementation, in care homes that implemented MDET (n = 24) compared to care homes providing care-as-usual (CAU). Adaptations to MDET varied. These included implementing MDET without an independent MDET-team and loosening recordings of involuntary care. No differential changes in recordings were found between the implementation- and CAU-groups. Scaling-out MDET to other organizations led to adaptations that may have undermined its effects on reducing involuntary care.

通过多学科咨询的部署,可以减少智力残疾护理中的非自愿护理。多学科专家小组(MDET)方法在之前的试验中证明是有效的,可以增加非自愿护理的减少。目前的研究旨在检查四个组织在实施过程中如何适应MDET,并测试这些版本是否有效。对mdet协调员的半结构化访谈使用框架报告改编和修改-扩展进行分析。准实验中断时间序列设计测试了在实施MDET的养老院(n = 24)与提供照护的养老院(CAU)相比,在实施MDET之前和实施MDET期间,每周非自愿护理记录计数的变化。对MDET的适应各不相同。这些措施包括在没有独立MDET团队的情况下实施MDET,以及放松对非自愿护理的记录。在实施组和cac组之间没有发现记录的差异变化。将MDET推广到其他组织导致了可能削弱其减少非自愿护理效果的适应。
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引用次数: 0
Barriers and facilitators to implementing transition services for students with intellectual disabilities in the kingdom of Saudi Arabia: A systematic review. 沙特阿拉伯王国实施智力残疾学生过渡服务的障碍和促进因素:一项系统综述。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-04 DOI: 10.1177/17446295241301853
Sarah Alfawzan, Norah Almulhim

In the Kingdom of Saudi Arabia, a deficiency exists in comprehensive assessments of transitional programs and services tailored for students with intellectual disabilities. The present research is a systematic review to discuss the barriers to planning and implementing transitional services for students with intellectual disabilities in the Kingdom of Saudi Arabia and possible facilitators. Consequently, a thorough systematic review and exploration were conducted across ERIC - ProQuest, Education Journals - ProQuest, Google Scholar, EBSCO, Web of Science, and Scopus. The findings spotlighted various barriers from the perspective of stakeholders, categorising them as educational, familial, societal, and functional barriers. Among these, educational obstacles emerged as the most significant challenges impeding the employment prospects of students with intellectual disabilities. The results further disclosed several suggested facilitators to address these challenges, encompassing educational interventions and collaborative practices. This study furnishes decision-makers in the Kingdom, along with professionals in the realm of special education and parents, with valuable insights into the prevailing challenges illuminated by recent studies in the field, as well as the most prominent proposed solutions.

在沙特阿拉伯王国,对为智障学生量身定制的过渡项目和服务的全面评估存在缺陷。本研究是一项系统的综述,讨论了在沙特阿拉伯王国为智力残疾学生规划和实施过渡性服务的障碍和可能的促进者。因此,对ERIC - ProQuest、教育期刊- ProQuest、b谷歌Scholar、EBSCO、Web of Science和Scopus进行了全面的系统审查和探索。从利益相关者的角度来看,研究结果突出了各种障碍,将其分类为教育、家庭、社会和功能障碍。其中,教育障碍成为阻碍智障学生就业前景的最重大挑战。研究结果进一步揭示了应对这些挑战的几个建议促进因素,包括教育干预和合作实践。这项研究为英国的决策者、特殊教育领域的专业人士和家长提供了宝贵的见解,让他们了解该领域最近的研究所揭示的普遍挑战,以及最突出的解决方案。
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引用次数: 0
Transition from sheltered workplace: Vocational skills are not the main concern. 从庇护工作场所过渡:职业技能不是主要问题。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-01 Epub Date: 2023-08-02 DOI: 10.1177/17446295231193190
Ahmet Bilal Özbek, Alev Girli

The aim of this study was to investigate the transition of employees with intellectual disabilities to inclusive work environments from sheltered workplaces. The study was conducted in a sheltered workplace in Turkey for people with intellectual disabilities. Data was collected from 71 participants in interviews. Interviews were conducted with employees (n = 28), families of employees (n = 24), company human resource managers (n = 8), sheltered workshop foremen (n = 7), and special education teachers (n = 4). The study group asked about the future of the sheltered workplace and participants' views on transition to inclusive work environments. The answers of the participants were analysed using thematic analysis. Findings showed that many participants had positive views about transition along with concerns about accidents and security problems that may occur in inclusive environments. It was observed that negative attitudes and views were related with lack of knowledge about inclusive work environment conditions.

本研究旨在调查智障员工从庇护性工作场所向包容性工作环境过渡的情况。研究在土耳其一家为智障人士提供庇护的工作场所进行。通过访谈收集了 71 名参与者的数据。访谈对象包括员工(28 人)、员工家属(24 人)、公司人力资源经理(8 人)、庇护工场领班(7 人)和特殊教育教师(4 人)。研究小组询问了庇护工作场所的未来以及参与者对过渡到全纳工作环境的看法。使用主题分析法对参与者的回答进行了分析。研究结果表明,许多参与者对过渡持积极态度,同时也对包容性环境中可能发生的事故和安全问题表示担忧。据观察,消极的态度和观点与缺乏对包容性工作环境条件的了解有关。
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引用次数: 0
Pushing the boundaries of digital social contact: Experiences of people with disabilities and their social networks during the COVID-19 pandemic. 突破数字社交接触的界限:新冠肺炎大流行期间残疾人及其社交网络的经历。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-01 Epub Date: 2023-10-25 DOI: 10.1177/17446295231210021
Lianne Bakkum, Lotte Piekema, Linda Douma, Carlo Schuengel, Paula Sterkenburg, Esmee Adam, Annet Ten Brug, Noud Frielink, Petri Embregts, Anne Tharner

During the COVID-19 pandemic, many people with intellectual disabilities living in care facilities could not receive visitors. Health authorities suggested the use of digital social contact as an alternative for in-person visits. We examined how people with intellectual disabilities living in care facilities experienced the use of digital social contact with their informal social network throughout 2020. Residents, their relatives, volunteer visitors, direct support staff, and care facility managers (N = 283) completed an online questionnaire, of whom 35 participated in an interview. Video calling and in-person visits were among the most common forms of staying in touch. Experiences with digital social contact depended on residents' abilities and support needs, and on preconditions, such as staff availability. The first phases of the pandemic led to experiences of possibilities and benefits of using digital social contact as complementary to in-person contact for people with different levels of intellectual disability, also after the pandemic.

在新冠肺炎大流行期间,许多居住在护理机构的智障人士无法接待访客。卫生当局建议使用数字社交联系作为面对面访问的替代方式。我们研究了生活在护理机构中的智障人士在2020年全年如何通过其非正式社交网络体验数字社交联系。居民、他们的亲属、志愿者访客、直接支持人员和护理机构管理人员(N=283)完成了一份在线问卷,其中35人参加了访谈。视频通话和面对面访问是保持联系的最常见形式。数字社交接触的体验取决于居民的能力和支持需求,以及员工可用性等先决条件。疫情的第一阶段,也在疫情之后,让不同程度智力残疾的人体验到了使用数字社交联系作为面对面接触的补充的可能性和好处。
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引用次数: 0
Intellectual deficits and restoration to competency to stand trial: An examination of IQ cut off scores. 智力缺陷和恢复接受审判的能力:一项IQ考试扣分。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-01 Epub Date: 2023-11-27 DOI: 10.1177/17446295231218782
Karen Grabowski, Robert Morgan, Faith Scanlon

Intellectual functioning impacts defendants' competence to stand trial, though research on this population remains limited. This study replicated and advanced prior work, focusing on defendants' demographic, clinical, cognitive, and criminal justice variables and their association with length of hospitalization and restoration determinations. Participants were 74 male and female criminal defendants in a midwestern state who were adjudicated incompetent to stand trial, had a diagnosis related to intellectual deficits, and completed competency restoration. Most defendants (83.7%) were restored to competency. Demographic factors were unrelated to restoration outcomes; violence of alleged offense predicted shorter hospitalization. Receiver Operating Characteristic Curve analyses determined an IQ score cut-off of 63.5 for which participants were of greater likelihood to be determined restored, providing guidance on the likelihood of restoration for defendants with intellectual disability related diagnoses. Specifically, this score can be used with clinical data to inform competency determinations for defendants with cognitive deficits.

智力功能影响被告接受审判的能力,尽管对这一人群的研究仍然有限。这项研究复制并推进了先前的工作,重点关注被告的人口统计学、临床、认知和刑事司法变量及其与住院时间和康复决定的关系。参与者是中西部一个州的74名男性和女性刑事被告,他们被裁定没有能力受审,被诊断为智力缺陷,并完成了能力恢复。大多数被告(83.7%)被恢复诉讼能力。人口统计学因素与修复结果无关;据称犯罪的暴力预示着更短的住院时间。接受者工作特征曲线分析确定了智商分数的临界值为63.5,参与者更有可能被确定恢复,这为患有智力残疾相关诊断的被告提供了恢复可能性的指导。具体来说,这个分数可以与临床数据一起使用,以告知认知缺陷被告的能力决定。
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引用次数: 0
Assessing inter-rater agreement of the intellectual disability-frailty index short form: A descriptive pilot study. 评估智力残疾虚弱指数简表的评分者间一致性:一项描述性试点研究。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-12-01 Epub Date: 2023-11-03 DOI: 10.1177/17446295231213436
Heather Hirst, Jennifer Campbell, Samantha Chamberlin, Ibukun Olagunju, Frank Bird, James K Luiselli

Frailty is a health concern for many adults with intellectual disability and should be measured to detect at-risk conditions, monitor disease, plan treatment, and gauge mortality. This descriptive pilot study evaluated measurement consistency (inter-rater agreement) of the Intellectual Disability-Frailty Index Short Form among multiple assessors with 20 adults (M age = 48.3 years) who had intellectual and multiple disabilities. Agreement percentages were computed for (a) non-frail, pre-frail, and frail categories derived from total index scores, and (b) each of 17 deficits listed on the form. Low average inter-rater agreement (<85%) was obtained on the index frail categories, several of the assessed deficits had acceptable inter-rater agreement (84.2-100%), while the majority of deficits were associated with moderate-to-low agreement percentages. Though research supports the Intellectual Disability-Frailty Index Short Form as a valid and practical frailty assessment instrument, our findings suggest that full-scale inter-rater agreement must be improved by adding more specificity to the form, clarifying instructions for assessors, and providing competency-based training in assessment implementation.

虚弱是许多智力残疾成年人的健康问题,应该进行测量,以检测风险状况、监测疾病、计划治疗和衡量死亡率。这项描述性试点研究评估了20名患有智力和多重残疾的成年人(男性年龄=48.3岁)的多名评估员对智力残疾脆弱指数简表的测量一致性(评分者之间的一致性)。协议百分比是为(a)根据总指数得分得出的非脆弱、前期脆弱和脆弱类别计算的,以及(b)表格上列出的17个赤字中的每一个(
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引用次数: 0
期刊
Journal of Intellectual Disabilities
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