Pub Date : 2023-12-21DOI: 10.1177/17446295231224125
Seyyedeh Somayyeh Jalil-Abkenar
This study aimed to investigate the effect of a Positive Parenting Program (Triple-P) on the interaction of the mother-adolescent with intellectual disability. The pre-test and post-test randomized experimental design was used for this research. Thirty-four mothers of adolescents with intellectual disability took part in the present research and were assigned to experimental and control groups, each comprised of 17 people. The experimental group took part in an 8-session Triple-P and each session lasted 75 minutes, but the control group did not participate in this intervention. The data were analyzed using MANCOVA. The findings revealed that Triple-P intervention significantly influenced dependency, closeness, conflict, and positive interaction between the mother and the child with intellectual disability. The present study emphasized that Triple-P will improve the interaction of mother-adolescent with intellectual disability; therefore, Triple-P is a useful intervention.
{"title":"Triple-P: Interaction of mother-adolescent with intellectual and developmental disability.","authors":"Seyyedeh Somayyeh Jalil-Abkenar","doi":"10.1177/17446295231224125","DOIUrl":"https://doi.org/10.1177/17446295231224125","url":null,"abstract":"<p><p>This study aimed to investigate the effect of a Positive Parenting Program (Triple-P) on the interaction of the mother-adolescent with intellectual disability. The pre-test and post-test randomized experimental design was used for this research. Thirty-four mothers of adolescents with intellectual disability took part in the present research and were assigned to experimental and control groups, each comprised of 17 people. The experimental group took part in an 8-session Triple-P and each session lasted 75 minutes, but the control group did not participate in this intervention. The data were analyzed using MANCOVA. The findings revealed that Triple-P intervention significantly influenced dependency, closeness, conflict, and positive interaction between the mother and the child with intellectual disability. The present study emphasized that Triple-P will improve the interaction of mother-adolescent with intellectual disability; therefore, Triple-P is a useful intervention.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2023-12-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138832200","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Background: Down syndrome (DS) is a known chromosomal disorder that results in changes in physical and clinical characteristics. Subjects with DS are more likely to be obese or overweight and have some recognized nutrition related problems. The objectives of this study are to compare body composition, food consumption pattern and physical activity level of children with and without DS. Methods: A case-control study of 82 participants (32 cases and 50 controls) was done. Anthropometric data related to weight, height, waist circumference, fat mass and fat free mass were obtained from the subjects. Food frequency questionnaire and survey were used to evaluate the dietary intake from 8 food groups and physical activity, respectively. Results: Children with DS exhibited significantly less intake of fruits and leafy vegetables (P < 0.05) compared to controls. There was no significant difference in the average number of sport activities that both children with DS and NDS were involved in, male with DS preferred dancing (P = 0.028) while NDS preferred football (P = 0.008). Statistically significant difference between the cases and controls was found in female fat mass (P = 0.043), waist circumference (P = 0.024, 0.007), hip circumference (P = 0.05, 0.011) and waist to height ratio (P < 0.001) of both male and female children with and without DS. Conclusion: Abdominal obesity is a major health concern among children with DS, indicating their increased risk of comorbidities associated with abdominal obesity such as insulin resistance. Their tendency to consume simple carbohydrate instead of fiber rich food, fruits and vegetables might further increase their risk of obesity. Perception of the dietary and physical activity preferences could help in the development of a life style program for higher quality of life.
{"title":"Dietary pattern, physical activity and body composition of Children with and without Down Syndrome - A case control study.","authors":"Naimah AlDarwish, Afnan AlSaab, Dhay AlQusair, Ismail AlWahsh, Tunny Sebastian, Yasmin AlGindan","doi":"10.1177/17446295231219618","DOIUrl":"https://doi.org/10.1177/17446295231219618","url":null,"abstract":"<p><p><b>Background:</b> Down syndrome (DS) is a known chromosomal disorder that results in changes in physical and clinical characteristics. Subjects with DS are more likely to be obese or overweight and have some recognized nutrition related problems. The objectives of this study are to compare body composition, food consumption pattern and physical activity level of children with and without DS. <b>Methods:</b> A case-control study of 82 participants (32 cases and 50 controls) was done. Anthropometric data related to weight, height, waist circumference, fat mass and fat free mass were obtained from the subjects. Food frequency questionnaire and survey were used to evaluate the dietary intake from 8 food groups and physical activity, respectively. <b>Results:</b> Children with DS exhibited significantly less intake of fruits and leafy vegetables (P < 0.05) compared to controls. There was no significant difference in the average number of sport activities that both children with DS and NDS were involved in, male with DS preferred dancing (P = 0.028) while NDS preferred football (P = 0.008). Statistically significant difference between the cases and controls was found in female fat mass (P = 0.043), waist circumference (P = 0.024, 0.007), hip circumference (P = 0.05, 0.011) and waist to height ratio (P < 0.001) of both male and female children with and without DS. <b>Conclusion:</b> Abdominal obesity is a major health concern among children with DS, indicating their increased risk of comorbidities associated with abdominal obesity such as insulin resistance. Their tendency to consume simple carbohydrate instead of fiber rich food, fruits and vegetables might further increase their risk of obesity. Perception of the dietary and physical activity preferences could help in the development of a life style program for higher quality of life.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2023-12-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138801140","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-11DOI: 10.1177/17446295231220432
Kay Mafuba, Hazel M Chapman, Marc Forster, Rebecca Chester, Joann Kiernan, Dorothy Kupara, Chiedza Kudita
The objective of this scoping review was to summarise evidence on the contribution of intellectual disabilities nurses to improve the health and well-being of children, adults and older people with intellectual disability, now and for the future. The Preferred Reporting Items for Systematic Reviews and Meta-Analysis (for Scoping Reviews) (PRISMA-ScR) process and Joanna Briggs Institute (JBI) guidance was used. We included 54 publications. We identified 154 interventions undertaken by intellectual disability nurses. We categorised the intellectual disability nursing interventions into three themes: effectuating nursing procedures, enhancing impact of services, and enhancing quality of life.Findings point to high quality research being essential in determining the impact and effectiveness of intellectual disability nursing interventions across the lifespan. We recommend that a searchable online compendium of intellectual disability nurse interventions be established and regularly updated. This will provide opportunities to engage more effectively in evidence-based practice.
{"title":"Understanding the contribution of intellectual disabilities nurses. Paper 1 of 4 -Scoping literature review.","authors":"Kay Mafuba, Hazel M Chapman, Marc Forster, Rebecca Chester, Joann Kiernan, Dorothy Kupara, Chiedza Kudita","doi":"10.1177/17446295231220432","DOIUrl":"https://doi.org/10.1177/17446295231220432","url":null,"abstract":"<p><p>The objective of this scoping review was to summarise evidence on the contribution of intellectual disabilities nurses to improve the health and well-being of children, adults and older people with intellectual disability, now and for the future. The Preferred Reporting Items for Systematic Reviews and Meta-Analysis (for Scoping Reviews) (PRISMA-ScR) process and Joanna Briggs Institute (JBI) guidance was used. We included 54 publications. We identified 154 interventions undertaken by intellectual disability nurses. We categorised the intellectual disability nursing interventions into three themes: effectuating nursing procedures, enhancing impact of services, and enhancing quality of life.Findings point to high quality research being essential in determining the impact and effectiveness of intellectual disability nursing interventions across the lifespan. We recommend that a searchable online compendium of intellectual disability nurse interventions be established and regularly updated. This will provide opportunities to engage more effectively in evidence-based practice.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2023-12-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138801354","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-08DOI: 10.1177/17446295231218776
Madison M Walsh, K. Van Deusen, Mark A Prince, A. Esbensen, A. Thurman, Miranda E. Pinks, Lina R Patel, R. T. Feigles, Leonard Abbeduto, L. Daunhauer, D. Fidler
Background: Executive function (EF) skills are important treatment targets for people with Down syndrome (DS); however, few EF measures have been evaluated for use with young children in this population. Methods: The present study evaluated preliminary psychometric properties of a measure of the EF component of inhibition. Participants were 73 children with DS between 2.5 and 8.67 years old who completed an adapted ability to delay task using a desirable toy. Results: Across two separate trials, latencies to touch the toys were significantly correlated. Latencies increased overall with chronological and mental age, with caveats for the youngest and oldest participants. Conclusion: Findings suggest that an adapted prohibition task is an appropriate method of measuring inhibition for children with DS between 4 and 7 years old, though many children in this chronological age range are at early stages of acquiring this skill set.
{"title":"Preliminary psychometric properties of an inhibition task in young children with Down syndrome","authors":"Madison M Walsh, K. Van Deusen, Mark A Prince, A. Esbensen, A. Thurman, Miranda E. Pinks, Lina R Patel, R. T. Feigles, Leonard Abbeduto, L. Daunhauer, D. Fidler","doi":"10.1177/17446295231218776","DOIUrl":"https://doi.org/10.1177/17446295231218776","url":null,"abstract":"Background: Executive function (EF) skills are important treatment targets for people with Down syndrome (DS); however, few EF measures have been evaluated for use with young children in this population. Methods: The present study evaluated preliminary psychometric properties of a measure of the EF component of inhibition. Participants were 73 children with DS between 2.5 and 8.67 years old who completed an adapted ability to delay task using a desirable toy. Results: Across two separate trials, latencies to touch the toys were significantly correlated. Latencies increased overall with chronological and mental age, with caveats for the youngest and oldest participants. Conclusion: Findings suggest that an adapted prohibition task is an appropriate method of measuring inhibition for children with DS between 4 and 7 years old, though many children in this chronological age range are at early stages of acquiring this skill set.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2023-12-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138588931","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-07DOI: 10.1177/17446295231218781
Cristina Dumitru
The aim of this scoping literature review (SCR) was to analyze the impact of dance on adults with intellectual disabilities, specifically examining its influence on their mobility, interpersonal relationships, well-being, and overall quality of life. A total of 15 papers were reviewed in order to explore the effects of dance on the well-being and quality of life of adults with intellectual disabilities. The findings indicated significant improvements in body awareness, increased engagement in physical activity, and enhanced mental health. This SCR demonstrates that dance is an effective means of facilitating social interaction among adults with intellectual disabilities, both with their therapists and family members. Additionally, the review uncovered valuable data on dance therapy programs designed for adults with intellectual disabilities, highlighting their potential to promote physical activity and reduce stress levels.
{"title":"Exploring the transformative power of dance: A scoping review of dance interventions for adults with intellectual disabilities.","authors":"Cristina Dumitru","doi":"10.1177/17446295231218781","DOIUrl":"https://doi.org/10.1177/17446295231218781","url":null,"abstract":"<p><p>The aim of this scoping literature review (SCR) was to analyze the impact of dance on adults with intellectual disabilities, specifically examining its influence on their mobility, interpersonal relationships, well-being, and overall quality of life. A total of 15 papers were reviewed in order to explore the effects of dance on the well-being and quality of life of adults with intellectual disabilities. The findings indicated significant improvements in body awareness, increased engagement in physical activity, and enhanced mental health. This SCR demonstrates that dance is an effective means of facilitating social interaction among adults with intellectual disabilities, both with their therapists and family members. Additionally, the review uncovered valuable data on dance therapy programs designed for adults with intellectual disabilities, highlighting their potential to promote physical activity and reduce stress levels.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2023-12-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138499765","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-05DOI: 10.1177/17446295231220093
Meg Grigal, Clare Papay, Alberto Migliore, Belkis Choiseul-Praslin, Jie Chen
Youth with intellectual disability and autism spectrum disorder increasingly access postsecondary education in many countries around the world. To ensure students are ready to access these options, preparation for postsecondary education must be part of their transition services. This study examines the postsecondary education preparation experiences of youth with intellectual disability and autism using the NLTS 2012 dataset to identify the extent to which these youth are accessing preparation activities and if this preparation differs from youth in other groups. Findings indicate few differences between the postsecondary education preparation of youth with intellectual disability and autism and autism without intellectual disability but highlight substantial differences in several preparation activities when compared with youth in other groups.
{"title":"Preparation for postsecondary education of transition aged youth with intellectual disability and autism spectrum disorder in the United States: An Analysis of data from the national longitudinal transition study 2012.","authors":"Meg Grigal, Clare Papay, Alberto Migliore, Belkis Choiseul-Praslin, Jie Chen","doi":"10.1177/17446295231220093","DOIUrl":"https://doi.org/10.1177/17446295231220093","url":null,"abstract":"<p><p>Youth with intellectual disability and autism spectrum disorder increasingly access postsecondary education in many countries around the world. To ensure students are ready to access these options, preparation for postsecondary education must be part of their transition services. This study examines the postsecondary education preparation experiences of youth with intellectual disability and autism using the NLTS 2012 dataset to identify the extent to which these youth are accessing preparation activities and if this preparation differs from youth in other groups. Findings indicate few differences between the postsecondary education preparation of youth with intellectual disability and autism and autism without intellectual disability but highlight substantial differences in several preparation activities when compared with youth in other groups.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2023-12-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138483211","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-05DOI: 10.1177/17446295231219301
Annick Zijlstra, Daniek Joosten, Maroesjka van Nieuwenhuijzen, Bram Orobio de Castro
There are concerns about parents' parenting skills with intellectual disabilities. However, it is reported that parents with intellectual disabilities show good enough parenting if they are supported effectively and in line with their needs. This scoping review identifies and critically evaluates preventive interventions for parents with intellectual disabilities and a cumulation of multiple and complex problems that aim to prepare them for good enough parenting. Six interventions were identified, with preliminary to strong indications of effectiveness. Although none of the interventions focused on all conditions of good enough parenting and only one intervention incorporated all seven key elements to effectively work with parents with intellectual disabilities, the limited evidence on the effectiveness of these interventions suggests that significant and societally relevant effects on parents' knowledge and skills can be attained. This suggests that more comprehensive early preventive interventions with rigorous evaluations can have a significant impact.
{"title":"The first 1001 days: A scoping review of parenting interventions strengthening good enough parenting in parents with intellectual disabilities.","authors":"Annick Zijlstra, Daniek Joosten, Maroesjka van Nieuwenhuijzen, Bram Orobio de Castro","doi":"10.1177/17446295231219301","DOIUrl":"https://doi.org/10.1177/17446295231219301","url":null,"abstract":"<p><p>There are concerns about parents' parenting skills with intellectual disabilities. However, it is reported that parents with intellectual disabilities show good enough parenting if they are supported effectively and in line with their needs. This scoping review identifies and critically evaluates preventive interventions for parents with intellectual disabilities <i>and</i> a cumulation of multiple and complex problems that aim to prepare them for good enough parenting. Six interventions were identified, with preliminary to strong indications of effectiveness. Although none of the interventions focused on all conditions of good enough parenting and only one intervention incorporated all seven key elements to effectively work with parents with intellectual disabilities, the limited evidence on the effectiveness of these interventions suggests that significant and societally relevant effects on parents' knowledge and skills can be attained. This suggests that more comprehensive early preventive interventions with rigorous evaluations can have a significant impact.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2023-12-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138483212","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-05DOI: 10.1177/17446295231220429
Paulina Aleksander-Szymanowicz, Katarzyna Filar-Mierzwa, Agnieszka Skiba
Systematic participation in dance therapy may improve balance and reduce risk of falls. The aim of this study was to assess the effect of dance therapy on balance and risk of falls in adults with Down syndrome. Study participants comprised 23 persons with Down syndrome aged 26- 49 years who underwent dance therapy. Before and after the therapy, all participants were measured on a BioSway balance platform using three tests: postural stability, limits of stability, and M-CTSIB fall risk. Mean result was lower following intervention (2.40 ± 1.81 vs. 1.65 ± 1.32; p = .006) in the postural stability test. The limits of stability test found a statistically significant difference (26.30 ± 8.99 vs. 37.90 ± 12.54; p < .001). The results of this study only partially supported the hypothesis that dance therapy improves balancing skills in adults with Down Syndrome.
系统地参与舞蹈治疗可以改善平衡能力并降低跌倒风险。本研究旨在评估舞蹈疗法对患有唐氏综合症的成年人的平衡能力和跌倒风险的影响。研究参与者包括 23 名接受舞蹈治疗的唐氏综合症患者,年龄在 26-49 岁之间。治疗前后,所有参与者都在 BioSway 平衡平台上接受了三项测试:姿势稳定性、稳定性极限和 M-CTSIB 跌倒风险。干预后,姿势稳定性测试的平均结果较低(2.40 ± 1.81 vs. 1.65 ± 1.32; p = .006)。在稳定性极限测试中发现了统计学上的显著差异(26.30 ± 8.99 vs. 37.90 ± 12.54; p < .001)。这项研究的结果仅部分支持了舞蹈疗法能提高唐氏综合症成人平衡能力的假设。
{"title":"Effect of dance movement therapy on balance in adults with Down Syndrome. A pilot study.","authors":"Paulina Aleksander-Szymanowicz, Katarzyna Filar-Mierzwa, Agnieszka Skiba","doi":"10.1177/17446295231220429","DOIUrl":"https://doi.org/10.1177/17446295231220429","url":null,"abstract":"<p><p>Systematic participation in dance therapy may improve balance and reduce risk of falls. The aim of this study was to assess the effect of dance therapy on balance and risk of falls in adults with Down syndrome. Study participants comprised 23 persons with Down syndrome aged 26- 49 years who underwent dance therapy. Before and after the therapy, all participants were measured on a BioSway balance platform using three tests: postural stability, limits of stability, and M-CTSIB fall risk. Mean result was lower following intervention (2.40 ± 1.81 vs. 1.65 ± 1.32; p = .006) in the postural stability test. The limits of stability test found a statistically significant difference (26.30 ± 8.99 vs. 37.90 ± 12.54; p < .001). The results of this study only partially supported the hypothesis that dance therapy improves balancing skills in adults with Down Syndrome.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2023-12-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138488758","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-01Epub Date: 2022-07-13DOI: 10.1177/17446295221114490
Debra Kiegaldie, Louise Shaw, Stuart Hunter, Jan Davis, Helen Siddel, Mike O'Brien
Supported work internship programmes for young adults with disability are an evidence-based model, leading to greater employment outcomes. This mixed methods pilot study evaluated the experiences of students, supervisors and a project coordinator, who participated in an Integrated Practical Placement (IPP) programme for students with disability in Australia. Intervention students (n = 10) completed 3, 9-week rotations, and accessed personal placement support and employment coaches. Comparison students (n = 38) completed 3, 2-week placements without additional support. Intervention students perceived significantly greater initial changes in work skills (p < 0.01) and work readiness (p < 0.05). Intervention students reported development of communication and self-organisational skills and stressed the value of staff support. Post programme 70% of intervention students gained employment, compared with 15.4% of comparison students. The findings suggest an evidence-based supported employment programme emphasising personalised assessment and training, could provide individuals with disability the required skills to enable successful employment.
{"title":"An integrated practical placement programme for students with disability: A pilot study.","authors":"Debra Kiegaldie, Louise Shaw, Stuart Hunter, Jan Davis, Helen Siddel, Mike O'Brien","doi":"10.1177/17446295221114490","DOIUrl":"10.1177/17446295221114490","url":null,"abstract":"<p><p><b>S</b>upported work internship programmes for young adults with disability are an evidence-based model, leading to greater employment outcomes. This mixed methods pilot study evaluated the experiences of students, supervisors and a project coordinator, who participated in an Integrated Practical Placement (IPP) programme for students with disability in Australia. Intervention students (n = 10) completed 3, 9-week rotations, and accessed personal placement support and employment coaches. Comparison students (n = 38) completed 3, 2-week placements without additional support. Intervention students perceived significantly greater initial changes in work skills (<i>p</i> < 0.01) and work readiness (<i>p</i> < 0.05). Intervention students reported development of communication and self-organisational skills and stressed the value of staff support. Post programme 70% of intervention students gained employment, compared with 15.4% of comparison students. The findings suggest an evidence-based supported employment programme emphasising personalised assessment and training, could provide individuals with disability the required skills to enable successful employment.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40518531","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-01Epub Date: 2022-06-11DOI: 10.1177/17446295221107284
Õie Umb Carlsson, Päivi Adolfsson
This study focuses on the subjective experience of the living conditions of adults with intellectual disabilities as related to the Uppsala Quality of Life model (UQoL2). Eleven semi-structured interviews were conducted to study issues raised by people with intellectual disabilities. Study participants had their own home, either in an ordinary dwelling or group home. The findings show that the dependence on support in daily life infringes on the sense of adult social status and control of life. Staff and family had a mandate to define Quality of Life, which countered the possibilities of a life based on the preferences of those with intellectual disabilities. Knowledge about factors that affect living conditions, one of the social determinants of health, has implications for public health in general and the development of society's efforts for people who are in lifelong dependence on support and service from others.
{"title":"No ordinary adult life: Living conditions from the perspective of adults with intellectual disabilities.","authors":"Õie Umb Carlsson, Päivi Adolfsson","doi":"10.1177/17446295221107284","DOIUrl":"10.1177/17446295221107284","url":null,"abstract":"<p><p>This study focuses on the subjective experience of the living conditions of adults with intellectual disabilities as related to the Uppsala Quality of Life model (UQoL2). Eleven semi-structured interviews were conducted to study issues raised by people with intellectual disabilities. Study participants had their own home, either in an ordinary dwelling or group home. The findings show that the dependence on support in daily life infringes on the sense of adult social status and control of life. Staff and family had a mandate to define Quality of Life, which countered the possibilities of a life based on the preferences of those with intellectual disabilities. Knowledge about factors that affect living conditions, one of the social determinants of health, has implications for public health in general and the development of society's efforts for people who are in lifelong dependence on support and service from others.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10647887/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"107592514","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}