首页 > 最新文献

Journal of Intellectual Disabilities最新文献

英文 中文
Triple-P: Interaction of mother-adolescent with intellectual and developmental disability. Triple-P:母亲与患有智力和发育障碍的青少年之间的互动。
IF 1.5 4区 医学 Q1 Health Professions Pub Date : 2023-12-21 DOI: 10.1177/17446295231224125
Seyyedeh Somayyeh Jalil-Abkenar

This study aimed to investigate the effect of a Positive Parenting Program (Triple-P) on the interaction of the mother-adolescent with intellectual disability. The pre-test and post-test randomized experimental design was used for this research. Thirty-four mothers of adolescents with intellectual disability took part in the present research and were assigned to experimental and control groups, each comprised of 17 people. The experimental group took part in an 8-session Triple-P and each session lasted 75 minutes, but the control group did not participate in this intervention. The data were analyzed using MANCOVA. The findings revealed that Triple-P intervention significantly influenced dependency, closeness, conflict, and positive interaction between the mother and the child with intellectual disability. The present study emphasized that Triple-P will improve the interaction of mother-adolescent with intellectual disability; therefore, Triple-P is a useful intervention.

本研究旨在探讨 "正面管教计划"(Triple-P)对智障母亲与智障青少年互动的影响。本研究采用了前测和后测随机实验设计。34 位智障青少年的母亲参加了本研究,并被分配到实验组和对照组,每组 17 人。实验组参加了为期 8 个课时的 Triple-P,每个课时 75 分钟,但对照组没有参加这项干预活动。数据采用 MANCOVA 方法进行分析。研究结果表明,Triple-P 干预对母亲与智障儿童之间的依赖性、亲密性、冲突和积极互动有明显影响。本研究强调,Triple-P 将改善智障母亲与智障青少年之间的互动,因此,Triple-P 是一种有用的干预措施。
{"title":"Triple-P: Interaction of mother-adolescent with intellectual and developmental disability.","authors":"Seyyedeh Somayyeh Jalil-Abkenar","doi":"10.1177/17446295231224125","DOIUrl":"https://doi.org/10.1177/17446295231224125","url":null,"abstract":"<p><p>This study aimed to investigate the effect of a Positive Parenting Program (Triple-P) on the interaction of the mother-adolescent with intellectual disability. The pre-test and post-test randomized experimental design was used for this research. Thirty-four mothers of adolescents with intellectual disability took part in the present research and were assigned to experimental and control groups, each comprised of 17 people. The experimental group took part in an 8-session Triple-P and each session lasted 75 minutes, but the control group did not participate in this intervention. The data were analyzed using MANCOVA. The findings revealed that Triple-P intervention significantly influenced dependency, closeness, conflict, and positive interaction between the mother and the child with intellectual disability. The present study emphasized that Triple-P will improve the interaction of mother-adolescent with intellectual disability; therefore, Triple-P is a useful intervention.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2023-12-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138832200","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Dietary pattern, physical activity and body composition of Children with and without Down Syndrome - A case control study. 唐氏综合症儿童和非唐氏综合症儿童的饮食模式、体力活动和身体成分--一项病例对照研究。
IF 1.5 4区 医学 Q1 Health Professions Pub Date : 2023-12-11 DOI: 10.1177/17446295231219618
Naimah AlDarwish, Afnan AlSaab, Dhay AlQusair, Ismail AlWahsh, Tunny Sebastian, Yasmin AlGindan

Background: Down syndrome (DS) is a known chromosomal disorder that results in changes in physical and clinical characteristics. Subjects with DS are more likely to be obese or overweight and have some recognized nutrition related problems. The objectives of this study are to compare body composition, food consumption pattern and physical activity level of children with and without DS. Methods: A case-control study of 82 participants (32 cases and 50 controls) was done. Anthropometric data related to weight, height, waist circumference, fat mass and fat free mass were obtained from the subjects. Food frequency questionnaire and survey were used to evaluate the dietary intake from 8 food groups and physical activity, respectively. Results: Children with DS exhibited significantly less intake of fruits and leafy vegetables (P < 0.05) compared to controls. There was no significant difference in the average number of sport activities that both children with DS and NDS were involved in, male with DS preferred dancing (P = 0.028) while NDS preferred football (P = 0.008). Statistically significant difference between the cases and controls was found in female fat mass (P = 0.043), waist circumference (P = 0.024, 0.007), hip circumference (P = 0.05, 0.011) and waist to height ratio (P < 0.001) of both male and female children with and without DS. Conclusion: Abdominal obesity is a major health concern among children with DS, indicating their increased risk of comorbidities associated with abdominal obesity such as insulin resistance. Their tendency to consume simple carbohydrate instead of fiber rich food, fruits and vegetables might further increase their risk of obesity. Perception of the dietary and physical activity preferences could help in the development of a life style program for higher quality of life.

背景:唐氏综合征(DS)是一种已知的染色体疾病,会导致身体和临床特征发生变化。患有唐氏综合症的受试者更容易肥胖或超重,并存在一些公认的营养相关问题。本研究旨在比较患有和未患有唐氏综合征的儿童的身体成分、食物摄入模式和体育锻炼水平。研究方法对 82 名参与者(32 例病例和 50 例对照)进行了病例对照研究。研究人员获得了受试者的体重、身高、腰围、脂肪量和无脂肪量等相关人体测量数据。食物频率问卷和调查分别用于评估 8 组食物的膳食摄入量和体力活动。结果显示与对照组相比,DS患儿的水果和绿叶蔬菜摄入量明显较少(P < 0.05)。DS患儿和NDS患儿参加体育活动的平均次数没有明显差异,DS患儿喜欢跳舞(P = 0.028),而NDS患儿喜欢足球(P = 0.008)。在女性脂肪量(P = 0.043)、腰围(P = 0.024,0.007)、臀围(P = 0.05,0.011)和腰围身高比(P < 0.001)方面,患有和未患有肢体瘫痪症的男女儿童与对照组之间存在明显统计学差异。结论腹部肥胖是 DS 儿童的主要健康问题,表明他们患腹部肥胖相关并发症(如胰岛素抵抗)的风险增加。他们倾向于摄入简单碳水化合物,而不是富含纤维的食物、水果和蔬菜,这可能会进一步增加他们肥胖的风险。对饮食和体育活动偏好的了解有助于制定生活方式计划,从而提高生活质量。
{"title":"Dietary pattern, physical activity and body composition of Children with and without Down Syndrome - A case control study.","authors":"Naimah AlDarwish, Afnan AlSaab, Dhay AlQusair, Ismail AlWahsh, Tunny Sebastian, Yasmin AlGindan","doi":"10.1177/17446295231219618","DOIUrl":"https://doi.org/10.1177/17446295231219618","url":null,"abstract":"<p><p><b>Background:</b> Down syndrome (DS) is a known chromosomal disorder that results in changes in physical and clinical characteristics. Subjects with DS are more likely to be obese or overweight and have some recognized nutrition related problems. The objectives of this study are to compare body composition, food consumption pattern and physical activity level of children with and without DS. <b>Methods:</b> A case-control study of 82 participants (32 cases and 50 controls) was done. Anthropometric data related to weight, height, waist circumference, fat mass and fat free mass were obtained from the subjects. Food frequency questionnaire and survey were used to evaluate the dietary intake from 8 food groups and physical activity, respectively. <b>Results:</b> Children with DS exhibited significantly less intake of fruits and leafy vegetables (P < 0.05) compared to controls. There was no significant difference in the average number of sport activities that both children with DS and NDS were involved in, male with DS preferred dancing (P = 0.028) while NDS preferred football (P = 0.008). Statistically significant difference between the cases and controls was found in female fat mass (P = 0.043), waist circumference (P = 0.024, 0.007), hip circumference (P = 0.05, 0.011) and waist to height ratio (P < 0.001) of both male and female children with and without DS. <b>Conclusion:</b> Abdominal obesity is a major health concern among children with DS, indicating their increased risk of comorbidities associated with abdominal obesity such as insulin resistance. Their tendency to consume simple carbohydrate instead of fiber rich food, fruits and vegetables might further increase their risk of obesity. Perception of the dietary and physical activity preferences could help in the development of a life style program for higher quality of life.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2023-12-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138801140","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Understanding the contribution of intellectual disabilities nurses. Paper 1 of 4 -Scoping literature review. 了解智障护士的贡献。论文 1 之 4 - 范围文献综述。
IF 1.5 4区 医学 Q1 Health Professions Pub Date : 2023-12-11 DOI: 10.1177/17446295231220432
Kay Mafuba, Hazel M Chapman, Marc Forster, Rebecca Chester, Joann Kiernan, Dorothy Kupara, Chiedza Kudita

The objective of this scoping review was to summarise evidence on the contribution of intellectual disabilities nurses to improve the health and well-being of children, adults and older people with intellectual disability, now and for the future. The Preferred Reporting Items for Systematic Reviews and Meta-Analysis (for Scoping Reviews) (PRISMA-ScR) process and Joanna Briggs Institute (JBI) guidance was used. We included 54 publications. We identified 154 interventions undertaken by intellectual disability nurses. We categorised the intellectual disability nursing interventions into three themes: effectuating nursing procedures, enhancing impact of services, and enhancing quality of life.Findings point to high quality research being essential in determining the impact and effectiveness of intellectual disability nursing interventions across the lifespan. We recommend that a searchable online compendium of intellectual disability nurse interventions be established and regularly updated. This will provide opportunities to engage more effectively in evidence-based practice.

本范围综述旨在总结智障护士在当前和未来为改善智障儿童、成人和老年人的健康和福祉所做贡献的证据。我们采用了系统综述和荟萃分析(用于范围界定综述)的首选报告项目 (PRISMA-ScR) 流程和乔安娜-布里格斯研究所 (JBI) 指南。我们收录了 54 篇出版物。我们确定了 154 项由智障护士采取的干预措施。我们将智障护理干预措施分为三个主题:实施护理程序、提高服务影响力和改善生活质量。研究结果表明,高质量的研究对于确定智障护理干预措施在整个生命周期中的影响力和有效性至关重要。我们建议建立一个可搜索的智障护理干预在线简编,并定期更新。这将为更有效地参与循证实践提供机会。
{"title":"Understanding the contribution of intellectual disabilities nurses. Paper 1 of 4 -Scoping literature review.","authors":"Kay Mafuba, Hazel M Chapman, Marc Forster, Rebecca Chester, Joann Kiernan, Dorothy Kupara, Chiedza Kudita","doi":"10.1177/17446295231220432","DOIUrl":"https://doi.org/10.1177/17446295231220432","url":null,"abstract":"<p><p>The objective of this scoping review was to summarise evidence on the contribution of intellectual disabilities nurses to improve the health and well-being of children, adults and older people with intellectual disability, now and for the future. The Preferred Reporting Items for Systematic Reviews and Meta-Analysis (for Scoping Reviews) (PRISMA-ScR) process and Joanna Briggs Institute (JBI) guidance was used. We included 54 publications. We identified 154 interventions undertaken by intellectual disability nurses. We categorised the intellectual disability nursing interventions into three themes: effectuating nursing procedures, enhancing impact of services, and enhancing quality of life.Findings point to high quality research being essential in determining the impact and effectiveness of intellectual disability nursing interventions across the lifespan. We recommend that a searchable online compendium of intellectual disability nurse interventions be established and regularly updated. This will provide opportunities to engage more effectively in evidence-based practice.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2023-12-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138801354","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Preliminary psychometric properties of an inhibition task in young children with Down syndrome 唐氏综合征幼儿抑制任务的初步心理计量特性
IF 1.5 4区 医学 Q1 Health Professions Pub Date : 2023-12-08 DOI: 10.1177/17446295231218776
Madison M Walsh, K. Van Deusen, Mark A Prince, A. Esbensen, A. Thurman, Miranda E. Pinks, Lina R Patel, R. T. Feigles, Leonard Abbeduto, L. Daunhauer, D. Fidler
Background: Executive function (EF) skills are important treatment targets for people with Down syndrome (DS); however, few EF measures have been evaluated for use with young children in this population. Methods: The present study evaluated preliminary psychometric properties of a measure of the EF component of inhibition. Participants were 73 children with DS between 2.5 and 8.67 years old who completed an adapted ability to delay task using a desirable toy. Results: Across two separate trials, latencies to touch the toys were significantly correlated. Latencies increased overall with chronological and mental age, with caveats for the youngest and oldest participants. Conclusion: Findings suggest that an adapted prohibition task is an appropriate method of measuring inhibition for children with DS between 4 and 7 years old, though many children in this chronological age range are at early stages of acquiring this skill set.
背景:执行功能(EF)技能是唐氏综合征(DS)患者重要的治疗目标;然而,对这一人群中幼儿使用的EF测量方法很少进行评估。方法:本研究评估了抑制EF成分测量的初步心理测量特性。参与者是73名年龄在2.5至8.67岁之间的DS儿童,他们完成了使用理想玩具延迟任务的适应性能力。结果:在两个独立的实验中,触摸玩具的延迟时间显著相关。总的来说,潜伏期随着实际年龄和心理年龄的增长而增加,最年轻和最年长的参与者需要注意。结论:研究结果表明,适应性禁止任务是衡量4 - 7岁退行性痴呆儿童抑制能力的合适方法,尽管这个年龄段的许多儿童还处于获得这种技能的早期阶段。
{"title":"Preliminary psychometric properties of an inhibition task in young children with Down syndrome","authors":"Madison M Walsh, K. Van Deusen, Mark A Prince, A. Esbensen, A. Thurman, Miranda E. Pinks, Lina R Patel, R. T. Feigles, Leonard Abbeduto, L. Daunhauer, D. Fidler","doi":"10.1177/17446295231218776","DOIUrl":"https://doi.org/10.1177/17446295231218776","url":null,"abstract":"Background: Executive function (EF) skills are important treatment targets for people with Down syndrome (DS); however, few EF measures have been evaluated for use with young children in this population. Methods: The present study evaluated preliminary psychometric properties of a measure of the EF component of inhibition. Participants were 73 children with DS between 2.5 and 8.67 years old who completed an adapted ability to delay task using a desirable toy. Results: Across two separate trials, latencies to touch the toys were significantly correlated. Latencies increased overall with chronological and mental age, with caveats for the youngest and oldest participants. Conclusion: Findings suggest that an adapted prohibition task is an appropriate method of measuring inhibition for children with DS between 4 and 7 years old, though many children in this chronological age range are at early stages of acquiring this skill set.","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2023-12-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138588931","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Exploring the transformative power of dance: A scoping review of dance interventions for adults with intellectual disabilities. 探索舞蹈的变革力量:对智力残疾成人舞蹈干预的范围审查。
IF 1.5 4区 医学 Q1 Health Professions Pub Date : 2023-12-07 DOI: 10.1177/17446295231218781
Cristina Dumitru

The aim of this scoping literature review (SCR) was to analyze the impact of dance on adults with intellectual disabilities, specifically examining its influence on their mobility, interpersonal relationships, well-being, and overall quality of life. A total of 15 papers were reviewed in order to explore the effects of dance on the well-being and quality of life of adults with intellectual disabilities. The findings indicated significant improvements in body awareness, increased engagement in physical activity, and enhanced mental health. This SCR demonstrates that dance is an effective means of facilitating social interaction among adults with intellectual disabilities, both with their therapists and family members. Additionally, the review uncovered valuable data on dance therapy programs designed for adults with intellectual disabilities, highlighting their potential to promote physical activity and reduce stress levels.

本文献综述(SCR)的目的是分析舞蹈对智力残疾成人的影响,特别是对他们的行动能力、人际关系、幸福感和整体生活质量的影响。为了探讨舞蹈对智力障碍成人的幸福感和生活质量的影响,我们回顾了15篇论文。研究结果表明,他们的身体意识有了显著改善,体育锻炼的参与度增加了,心理健康也得到了改善。这一SCR表明,舞蹈是促进智力残疾成年人与他们的治疗师和家庭成员进行社会互动的有效手段。此外,该综述还发现了为智力残疾的成年人设计的舞蹈治疗项目的宝贵数据,强调了它们促进身体活动和降低压力水平的潜力。
{"title":"Exploring the transformative power of dance: A scoping review of dance interventions for adults with intellectual disabilities.","authors":"Cristina Dumitru","doi":"10.1177/17446295231218781","DOIUrl":"https://doi.org/10.1177/17446295231218781","url":null,"abstract":"<p><p>The aim of this scoping literature review (SCR) was to analyze the impact of dance on adults with intellectual disabilities, specifically examining its influence on their mobility, interpersonal relationships, well-being, and overall quality of life. A total of 15 papers were reviewed in order to explore the effects of dance on the well-being and quality of life of adults with intellectual disabilities. The findings indicated significant improvements in body awareness, increased engagement in physical activity, and enhanced mental health. This SCR demonstrates that dance is an effective means of facilitating social interaction among adults with intellectual disabilities, both with their therapists and family members. Additionally, the review uncovered valuable data on dance therapy programs designed for adults with intellectual disabilities, highlighting their potential to promote physical activity and reduce stress levels.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2023-12-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138499765","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Preparation for postsecondary education of transition aged youth with intellectual disability and autism spectrum disorder in the United States: An Analysis of data from the national longitudinal transition study 2012. 美国智障和自闭症谱系障碍过渡年龄青年的高等教育准备:2012年全国纵向过渡研究数据分析。
IF 1.5 4区 医学 Q1 Health Professions Pub Date : 2023-12-05 DOI: 10.1177/17446295231220093
Meg Grigal, Clare Papay, Alberto Migliore, Belkis Choiseul-Praslin, Jie Chen

Youth with intellectual disability and autism spectrum disorder increasingly access postsecondary education in many countries around the world. To ensure students are ready to access these options, preparation for postsecondary education must be part of their transition services. This study examines the postsecondary education preparation experiences of youth with intellectual disability and autism using the NLTS 2012 dataset to identify the extent to which these youth are accessing preparation activities and if this preparation differs from youth in other groups. Findings indicate few differences between the postsecondary education preparation of youth with intellectual disability and autism and autism without intellectual disability but highlight substantial differences in several preparation activities when compared with youth in other groups.

在世界许多国家,有智力残疾和自闭症谱系障碍的青年越来越多地接受中学后教育。为了确保学生准备好获得这些选择,为高等教育做准备必须是他们过渡服务的一部分。本研究使用NLTS 2012数据集考察了智障和自闭症青年的高等教育准备经历,以确定这些青年参与准备活动的程度,以及这种准备是否与其他群体的青年不同。研究结果表明,智障青少年、自闭症青少年和无智障自闭症青少年在中学后教育准备方面差异不大,但与其他群体的青少年相比,在一些准备活动上存在显著差异。
{"title":"Preparation for postsecondary education of transition aged youth with intellectual disability and autism spectrum disorder in the United States: An Analysis of data from the national longitudinal transition study 2012.","authors":"Meg Grigal, Clare Papay, Alberto Migliore, Belkis Choiseul-Praslin, Jie Chen","doi":"10.1177/17446295231220093","DOIUrl":"https://doi.org/10.1177/17446295231220093","url":null,"abstract":"<p><p>Youth with intellectual disability and autism spectrum disorder increasingly access postsecondary education in many countries around the world. To ensure students are ready to access these options, preparation for postsecondary education must be part of their transition services. This study examines the postsecondary education preparation experiences of youth with intellectual disability and autism using the NLTS 2012 dataset to identify the extent to which these youth are accessing preparation activities and if this preparation differs from youth in other groups. Findings indicate few differences between the postsecondary education preparation of youth with intellectual disability and autism and autism without intellectual disability but highlight substantial differences in several preparation activities when compared with youth in other groups.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2023-12-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138483211","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The first 1001 days: A scoping review of parenting interventions strengthening good enough parenting in parents with intellectual disabilities. 最初的1001天:对加强智力残疾父母良好教养的育儿干预的范围审查。
IF 1.5 4区 医学 Q1 Health Professions Pub Date : 2023-12-05 DOI: 10.1177/17446295231219301
Annick Zijlstra, Daniek Joosten, Maroesjka van Nieuwenhuijzen, Bram Orobio de Castro

There are concerns about parents' parenting skills with intellectual disabilities. However, it is reported that parents with intellectual disabilities show good enough parenting if they are supported effectively and in line with their needs. This scoping review identifies and critically evaluates preventive interventions for parents with intellectual disabilities and a cumulation of multiple and complex problems that aim to prepare them for good enough parenting. Six interventions were identified, with preliminary to strong indications of effectiveness. Although none of the interventions focused on all conditions of good enough parenting and only one intervention incorporated all seven key elements to effectively work with parents with intellectual disabilities, the limited evidence on the effectiveness of these interventions suggests that significant and societally relevant effects on parents' knowledge and skills can be attained. This suggests that more comprehensive early preventive interventions with rigorous evaluations can have a significant impact.

人们担心智力残疾的父母的育儿技巧。然而,据报道,如果智力残疾的父母得到有效的支持,并符合他们的需求,他们就会表现出足够好的养育能力。这项范围审查确定并批判性地评估了针对智力残疾父母的预防性干预措施,以及旨在为他们做好足够好的养育准备的多重复杂问题的积累。确定了六项干预措施,具有初步到强烈的有效性迹象。虽然没有一项干预措施侧重于足够好的养育方式的所有条件,只有一项干预措施纳入了所有七个关键要素,以有效地与智障父母合作,但有关这些干预措施有效性的有限证据表明,可以对父母的知识和技能产生重大的社会相关影响。这表明,经过严格评估的更全面的早期预防干预措施可以产生重大影响。
{"title":"The first 1001 days: A scoping review of parenting interventions strengthening good enough parenting in parents with intellectual disabilities.","authors":"Annick Zijlstra, Daniek Joosten, Maroesjka van Nieuwenhuijzen, Bram Orobio de Castro","doi":"10.1177/17446295231219301","DOIUrl":"https://doi.org/10.1177/17446295231219301","url":null,"abstract":"<p><p>There are concerns about parents' parenting skills with intellectual disabilities. However, it is reported that parents with intellectual disabilities show good enough parenting if they are supported effectively and in line with their needs. This scoping review identifies and critically evaluates preventive interventions for parents with intellectual disabilities <i>and</i> a cumulation of multiple and complex problems that aim to prepare them for good enough parenting. Six interventions were identified, with preliminary to strong indications of effectiveness. Although none of the interventions focused on all conditions of good enough parenting and only one intervention incorporated all seven key elements to effectively work with parents with intellectual disabilities, the limited evidence on the effectiveness of these interventions suggests that significant and societally relevant effects on parents' knowledge and skills can be attained. This suggests that more comprehensive early preventive interventions with rigorous evaluations can have a significant impact.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2023-12-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138483212","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Effect of dance movement therapy on balance in adults with Down Syndrome. A pilot study. 舞蹈运动疗法对唐氏综合症成人平衡能力的影响。试点研究。
IF 1.5 4区 医学 Q1 Health Professions Pub Date : 2023-12-05 DOI: 10.1177/17446295231220429
Paulina Aleksander-Szymanowicz, Katarzyna Filar-Mierzwa, Agnieszka Skiba

Systematic participation in dance therapy may improve balance and reduce risk of falls. The aim of this study was to assess the effect of dance therapy on balance and risk of falls in adults with Down syndrome. Study participants comprised 23 persons with Down syndrome aged 26- 49 years who underwent dance therapy. Before and after the therapy, all participants were measured on a BioSway balance platform using three tests: postural stability, limits of stability, and M-CTSIB fall risk. Mean result was lower following intervention (2.40 ± 1.81 vs. 1.65 ± 1.32; p = .006) in the postural stability test. The limits of stability test found a statistically significant difference (26.30 ± 8.99 vs. 37.90 ± 12.54; p < .001). The results of this study only partially supported the hypothesis that dance therapy improves balancing skills in adults with Down Syndrome.

系统地参与舞蹈治疗可以改善平衡能力并降低跌倒风险。本研究旨在评估舞蹈疗法对患有唐氏综合症的成年人的平衡能力和跌倒风险的影响。研究参与者包括 23 名接受舞蹈治疗的唐氏综合症患者,年龄在 26-49 岁之间。治疗前后,所有参与者都在 BioSway 平衡平台上接受了三项测试:姿势稳定性、稳定性极限和 M-CTSIB 跌倒风险。干预后,姿势稳定性测试的平均结果较低(2.40 ± 1.81 vs. 1.65 ± 1.32; p = .006)。在稳定性极限测试中发现了统计学上的显著差异(26.30 ± 8.99 vs. 37.90 ± 12.54; p < .001)。这项研究的结果仅部分支持了舞蹈疗法能提高唐氏综合症成人平衡能力的假设。
{"title":"Effect of dance movement therapy on balance in adults with Down Syndrome. A pilot study.","authors":"Paulina Aleksander-Szymanowicz, Katarzyna Filar-Mierzwa, Agnieszka Skiba","doi":"10.1177/17446295231220429","DOIUrl":"https://doi.org/10.1177/17446295231220429","url":null,"abstract":"<p><p>Systematic participation in dance therapy may improve balance and reduce risk of falls. The aim of this study was to assess the effect of dance therapy on balance and risk of falls in adults with Down syndrome. Study participants comprised 23 persons with Down syndrome aged 26- 49 years who underwent dance therapy. Before and after the therapy, all participants were measured on a BioSway balance platform using three tests: postural stability, limits of stability, and M-CTSIB fall risk. Mean result was lower following intervention (2.40 ± 1.81 vs. 1.65 ± 1.32; p = .006) in the postural stability test. The limits of stability test found a statistically significant difference (26.30 ± 8.99 vs. 37.90 ± 12.54; p < .001). The results of this study only partially supported the hypothesis that dance therapy improves balancing skills in adults with Down Syndrome.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2023-12-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138488758","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
An integrated practical placement programme for students with disability: A pilot study. 残疾学生综合实习安置计划:试点研究。
IF 1.5 4区 医学 Q1 Health Professions Pub Date : 2023-12-01 Epub Date: 2022-07-13 DOI: 10.1177/17446295221114490
Debra Kiegaldie, Louise Shaw, Stuart Hunter, Jan Davis, Helen Siddel, Mike O'Brien

Supported work internship programmes for young adults with disability are an evidence-based model, leading to greater employment outcomes. This mixed methods pilot study evaluated the experiences of students, supervisors and a project coordinator, who participated in an Integrated Practical Placement (IPP) programme for students with disability in Australia. Intervention students (n = 10) completed 3, 9-week rotations, and accessed personal placement support and employment coaches. Comparison students (n = 38) completed 3, 2-week placements without additional support. Intervention students perceived significantly greater initial changes in work skills (p < 0.01) and work readiness (p < 0.05). Intervention students reported development of communication and self-organisational skills and stressed the value of staff support. Post programme 70% of intervention students gained employment, compared with 15.4% of comparison students. The findings suggest an evidence-based supported employment programme emphasising personalised assessment and training, could provide individuals with disability the required skills to enable successful employment.

针对残疾青年的支持性工作实习项目是一种循证模式,可带来更好的就业成果。这项混合方法的试点研究评估了参加澳大利亚残疾学生综合实践安置(IPP)计划的学生、导师和项目协调员的经验。干预学生(n = 10)完成了3,9周的轮岗,并获得了个人安置支持和就业教练。比较学生(n = 38)在没有额外支持的情况下完成了为期3周的实习。干预学生在工作技能(p < 0.01)和工作准备(p < 0.05)方面的初始变化显著增加。参与干预的学生报告了沟通和自我组织能力的发展,并强调了员工支持的价值。项目结束后,70%的干预学生获得了就业,而对照组学生的就业率为15.4%。研究结果表明,基于证据的就业支持计划强调个性化评估和培训,可以为残疾人提供成功就业所需的技能。
{"title":"An integrated practical placement programme for students with disability: A pilot study.","authors":"Debra Kiegaldie, Louise Shaw, Stuart Hunter, Jan Davis, Helen Siddel, Mike O'Brien","doi":"10.1177/17446295221114490","DOIUrl":"10.1177/17446295221114490","url":null,"abstract":"<p><p><b>S</b>upported work internship programmes for young adults with disability are an evidence-based model, leading to greater employment outcomes. This mixed methods pilot study evaluated the experiences of students, supervisors and a project coordinator, who participated in an Integrated Practical Placement (IPP) programme for students with disability in Australia. Intervention students (n = 10) completed 3, 9-week rotations, and accessed personal placement support and employment coaches. Comparison students (n = 38) completed 3, 2-week placements without additional support. Intervention students perceived significantly greater initial changes in work skills (<i>p</i> < 0.01) and work readiness (<i>p</i> < 0.05). Intervention students reported development of communication and self-organisational skills and stressed the value of staff support. Post programme 70% of intervention students gained employment, compared with 15.4% of comparison students. The findings suggest an evidence-based supported employment programme emphasising personalised assessment and training, could provide individuals with disability the required skills to enable successful employment.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40518531","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
No ordinary adult life: Living conditions from the perspective of adults with intellectual disabilities. 不平凡的成人生活:智障成人视角下的生活状况。
IF 1.5 4区 医学 Q1 Health Professions Pub Date : 2023-12-01 Epub Date: 2022-06-11 DOI: 10.1177/17446295221107284
Õie Umb Carlsson, Päivi Adolfsson

This study focuses on the subjective experience of the living conditions of adults with intellectual disabilities as related to the Uppsala Quality of Life model (UQoL2). Eleven semi-structured interviews were conducted to study issues raised by people with intellectual disabilities. Study participants had their own home, either in an ordinary dwelling or group home. The findings show that the dependence on support in daily life infringes on the sense of adult social status and control of life. Staff and family had a mandate to define Quality of Life, which countered the possibilities of a life based on the preferences of those with intellectual disabilities. Knowledge about factors that affect living conditions, one of the social determinants of health, has implications for public health in general and the development of society's efforts for people who are in lifelong dependence on support and service from others.

本研究的重点是与Uppsala生活质量模型(UQoL2)相关的智力残疾成人生活条件的主观体验。我们进行了11次半结构化访谈,以研究智障人士提出的问题。研究参与者有自己的家,要么是普通住宅,要么是集体之家。研究结果表明,日常生活中对支持的依赖侵犯了成人的社会地位感和生活控制感。工作人员和家庭有责任定义生活质量,这与基于智力残疾者偏好的生活的可能性相反。影响生活条件的因素是健康的社会决定因素之一,了解这些因素对一般公共卫生和社会为终身依赖他人支持和服务的人所作努力的发展具有影响。
{"title":"No ordinary adult life: Living conditions from the perspective of adults with intellectual disabilities.","authors":"Õie Umb Carlsson, Päivi Adolfsson","doi":"10.1177/17446295221107284","DOIUrl":"10.1177/17446295221107284","url":null,"abstract":"<p><p>This study focuses on the subjective experience of the living conditions of adults with intellectual disabilities as related to the Uppsala Quality of Life model (UQoL2). Eleven semi-structured interviews were conducted to study issues raised by people with intellectual disabilities. Study participants had their own home, either in an ordinary dwelling or group home. The findings show that the dependence on support in daily life infringes on the sense of adult social status and control of life. Staff and family had a mandate to define Quality of Life, which countered the possibilities of a life based on the preferences of those with intellectual disabilities. Knowledge about factors that affect living conditions, one of the social determinants of health, has implications for public health in general and the development of society's efforts for people who are in lifelong dependence on support and service from others.</p>","PeriodicalId":46904,"journal":{"name":"Journal of Intellectual Disabilities","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10647887/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"107592514","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Journal of Intellectual Disabilities
全部 Acc. Chem. Res. ACS Applied Bio Materials ACS Appl. Electron. Mater. ACS Appl. Energy Mater. ACS Appl. Mater. Interfaces ACS Appl. Nano Mater. ACS Appl. Polym. Mater. ACS BIOMATER-SCI ENG ACS Catal. ACS Cent. Sci. ACS Chem. Biol. ACS Chemical Health & Safety ACS Chem. Neurosci. ACS Comb. Sci. ACS Earth Space Chem. ACS Energy Lett. ACS Infect. Dis. ACS Macro Lett. ACS Mater. Lett. ACS Med. Chem. Lett. ACS Nano ACS Omega ACS Photonics ACS Sens. ACS Sustainable Chem. Eng. ACS Synth. Biol. Anal. Chem. BIOCHEMISTRY-US Bioconjugate Chem. BIOMACROMOLECULES Chem. Res. Toxicol. Chem. Rev. Chem. Mater. CRYST GROWTH DES ENERG FUEL Environ. Sci. Technol. Environ. Sci. Technol. Lett. Eur. J. Inorg. Chem. IND ENG CHEM RES Inorg. Chem. J. Agric. Food. Chem. J. Chem. Eng. Data J. Chem. Educ. J. Chem. Inf. Model. J. Chem. Theory Comput. J. Med. Chem. J. Nat. Prod. J PROTEOME RES J. Am. Chem. Soc. LANGMUIR MACROMOLECULES Mol. Pharmaceutics Nano Lett. Org. Lett. ORG PROCESS RES DEV ORGANOMETALLICS J. Org. Chem. J. Phys. Chem. J. Phys. Chem. A J. Phys. Chem. B J. Phys. Chem. C J. Phys. Chem. Lett. Analyst Anal. Methods Biomater. Sci. Catal. Sci. Technol. Chem. Commun. Chem. Soc. Rev. CHEM EDUC RES PRACT CRYSTENGCOMM Dalton Trans. Energy Environ. Sci. ENVIRON SCI-NANO ENVIRON SCI-PROC IMP ENVIRON SCI-WAT RES Faraday Discuss. Food Funct. Green Chem. Inorg. Chem. Front. Integr. Biol. J. Anal. At. Spectrom. J. Mater. Chem. A J. Mater. Chem. B J. Mater. Chem. C Lab Chip Mater. Chem. Front. Mater. Horiz. MEDCHEMCOMM Metallomics Mol. Biosyst. Mol. Syst. Des. Eng. Nanoscale Nanoscale Horiz. Nat. Prod. Rep. New J. Chem. Org. Biomol. Chem. Org. Chem. Front. PHOTOCH PHOTOBIO SCI PCCP Polym. Chem.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1