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Connecting, Serving, and Adapting: Perspectives on the Transition to Adulthood from Latino Young Adults with ASD, Parents, and Providers 连接、服务和适应:患有自闭症的拉丁裔青少年、家长和服务提供者对成年过渡期的看法
IF 1.8 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-06-24 DOI: 10.1007/s10882-024-09974-4
Antonio F. Pagán, Juliana L. Vanderburg, Katherine A. Loveland, Ron E. Acierno, Thomas D. Meyer

Advancing interventions and supports for individuals with autism spectrum disorder (ASD) requires understanding that ASD is a lifelong developmental difference. However, little is known about the unique experiences of autistic young adults, parents, and community providers in the Latino community. The purpose of this study was to improve access to inclusive community based setting by identifying and learning about barriers and needs experienced by young adults, parents, and community providers of autistic individuals across the lifespan, but particularly during the transition to adulthood. Ten community providers, eighteen parents of autistic children, and five young adult self-advocates participated in focus groups. Parents discussed difficulties in accessing services throughout their child’s life that made the transition to adulthood difficult. Themes highlighted important cultural values that can influence the transition to adulthood for Latinos and the difficulty in accessing bilingual service providers and services. Parents displayed significant advocacy skills and resourcefulness. We present recommendations shared by young adults, parents, and providers on ways to improve access to services and develop interventions for autistic young adults and parents. The present study has important implications regarding advancing interventions and supports for autistic young adults and their parents in the Latino community by developing culturally adapted services.

要推进对自闭症谱系障碍(ASD)患者的干预和支持,就必须了解自闭症谱系障碍是一种终身发展差异。然而,人们对拉丁裔社区中患有自闭症的年轻成年人、家长和社区提供者的独特经历知之甚少。本研究的目的是通过识别和了解自闭症青少年、家长和社区服务提供者在整个生命周期,尤其是在向成年过渡期间所遇到的障碍和需求,来改善包容性社区环境。10 名社区服务提供者、18 名自闭症儿童家长和 5 名年轻成人自我倡导者参加了焦点小组。家长们讨论了他们的孩子在整个生命过程中在获得服务方面遇到的困难,这些困难使得他们在向成年过渡时困难重重。讨论的主题突出了可能影响拉丁裔向成年过渡的重要文化价值观,以及获得双语服务提供者和服务的困难。家长们表现出了高超的宣传技巧和机智。我们就如何改善自闭症青少年和家长获得服务的途径并制定干预措施,提出了青少年、家长和服务提供者的共同建议。本研究对于通过开发适合拉丁裔社区文化的服务来推进对自闭症青少年及其父母的干预和支持具有重要意义。
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引用次数: 0
Peer-Mediated Interventions to Enhance Conversation Skills of Young Adults with Intellectual and Developmental Disabilities on a University Campus 以同伴为媒介的干预措施,提高大学校园中智障和发育障碍青少年的对话技能
IF 1.8 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-06-19 DOI: 10.1007/s10882-024-09979-z
Leslie Ann Bross, Emily Wall, Monique Pinczynski, Ashley Anderson, Thai Williams, Charles L. Wood, Fred Spooner

Young adults with intellectual and developmental disabilities (IDD) on college campuses are vulnerable to exclusion and a lack of social participation. However, peers can provide meaningful supports to young adults with IDD in the area of social/communication skills. The purpose of this study was to enhance the conversation skills of four young adults with IDD (ages 22–23) during their regular lunch breaks on a university campus. The dependent variable was percent of conversational engagement during 10-min audio recorded sessions as measured using partial interval recording procedures. Typically developing peers served as peer coaches and provided structured or natural supports. Experiment 1 used an alternating treatments design to compare the effects of peer coaching alone vs. peer coaching + goal setting with two adjacent baseline conditions and a final student-choice condition. Results for Experiment 1 indicated peer coaching alone and the additive effects of goal setting was more effective than natural supports only. Experiment 2 used a withdrawal design to compare the effects of young adults with IDD speaking with fellow classmates with disabilities vs. peers without disabilities. Participants in Experiment 2 demonstrated higher levels of conversational engagement when speaking with peers without disabilities in a natural manner. Social validity of the different peer-mediated interventions was overall high for all participant types as reported on questionnaires and exit interviews. We provide implications for practice and suggestions for future research related to peer-mediated interventions for young adults with IDD on college and university campuses.

在大学校园里,有智力和发育障碍(IDD)的年轻人很容易受到排斥和缺乏社会参与。然而,同伴可以在社交/沟通技能方面为智障青年提供有意义的支持。本研究的目的是提高四名患有 IDD 的年轻人(22-23 岁)在大学校园的正常午休时间的交谈技能。因变量是使用部分间隔录音程序测量的 10 分钟录音过程中的对话参与百分比。发育正常的同伴担任同伴辅导员,并提供结构化或自然的支持。实验 1 采用交替处理设计,比较了同伴辅导单独与同伴辅导 + 目标设定的效果,以及两个相邻的基线条件和最后的学生选择条件。实验 1 的结果表明,单纯的同伴辅导和目标设定的叠加效应比单纯的自然支持更有效。实验 2 采用抽离设计,比较了智障青少年与残疾同学和非残疾同学交谈的效果。实验 2 的参与者在以自然的方式与无残疾同学交谈时,表现出了更高的对话参与度。根据调查问卷和退出访谈的报告,对所有类型的参与者而言,不同同伴中介干预的社会有效性总体较高。我们提供了针对大专院校中智障青少年的同伴中介干预的实践意义和未来研究建议。
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引用次数: 0
Teaching Pool Side Safety Skills to Decrease Elopement-Related Incidents for Children with ASD 教授泳池边的安全技能,减少 ASD 儿童的越池事件
IF 1.8 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-06-18 DOI: 10.1007/s10882-024-09978-0
Michele Pullen, Leslie Neely, Marie Kirkpatrick, Adel Alaeddini

Water safety skills are vital for the safety and well-being of all individuals but especially for individuals with autism spectrum disorder (ASD). Research regarding on-deck water safety behaviors and water safety skills for individuals with ASD levels 2 and 3 is limited. Therefore, the purpose of this study was to evaluate the effects of behavior analytic strategies in teaching water safety skills to children diagnosed with ASD level 2 and 3. A multiple-probe design across three participants was utilized in which participants did not enter intervention until their baseline data were stable and the participant before had stable intervention data. Each participant engaged in 100% of the measured water safety behaviors by the end of the study. The results suggest that this intervention may increase safe on-deck behavior in a community pool setting. Suggestions for future research and implications for practice are discussed.

水上安全技能对所有人的安全和福祉都至关重要,对自闭症谱系障碍(ASD)患者更是如此。有关自闭症谱系障碍 2 级和 3 级患者在甲板上的水上安全行为和水上安全技能的研究十分有限。因此,本研究的目的是评估行为分析策略在教授自闭症谱系障碍 2 级和 3 级儿童水上安全技能方面的效果。本研究采用多重探究设计,对三名参与者进行研究,在参与者的基线数据稳定且之前的参与者有稳定的干预数据之前,不对其进行干预。研究结束时,每位参与者都100%地参与了所测量的水上安全行为。研究结果表明,在社区泳池环境中,这种干预措施可以提高甲板上的安全行为。本文讨论了对未来研究的建议和对实践的影响。
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引用次数: 0
Social Capital and People with Intellectual and Developmental Disabilities 社会资本与智力和发育障碍人士
IF 1.8 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-06-13 DOI: 10.1007/s10882-024-09975-3
Carli Friedman
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引用次数: 0
Teaching a Child to Wear Prescription Eyeglasses 教孩子佩戴处方眼镜
IF 1.8 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-06-13 DOI: 10.1007/s10882-024-09972-6
Ciobha A. McKeown, Timothy R. Vollmer
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引用次数: 0
Exploring Intersections of Culture and Challenging Behaviors: Perspectives from Korean Caregivers 探索文化与挑战行为的交叉点:韩国护理人员的观点
IF 1.8 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2024-06-10 DOI: 10.1007/s10882-024-09977-1
James D. Lee, Casey K. Kim, Christy D. Yoon, Moon Y. Chung
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引用次数: 0
Supporting Inclusion in Informal Education Settings for Children with Neurodevelopmental Disorders: A Scoping Review 支持神经发育障碍儿童在非正规教育环境中接受融合教育:范围审查
IF 1.8 4区 医学 Q2 Health Professions Pub Date : 2024-05-30 DOI: 10.1007/s10882-024-09970-8
Julia M. Ranieri, Nicole Neil, Monica Sadowski, Mohammad Azzam

Children with neurodevelopmental disabilities are among the most vulnerable to experiencing exclusion from community settings. Informal education settings (IES), such as camps, museums, and zoos, provide rich learning opportunities beyond the classroom, yet inclusion efforts have primarily focused on physical accessibility. A review of research is needed to identify practices that support the participation of children with neurodevelopmental disabilities in these settings. We used a scoping review framework to determine what research exists concerning the participation of individuals with neurodevelopmental disabilities in informal education settings, what practices are used to foster participation in informal education settings for children with neurodevelopmental disabilities and what are the outcomes of these practices on participation. Forty-six studies using quantitative, qualitative, and mixed methods designs were included, with 24 taking place in inclusive settings or programs. The review found that children with neurodevelopmental disabilities continue to experience barriers to inclusion in informal settings, and there are positive outcomes associated with specialized and therapeutic as well as inclusive camps. Moreover, behavioural supports result in increases in social skills and decreases in interfering behaviour in informal settings and caregivers and children with neurodevelopmental disabilities have positive attitudes toward specialized programming. Encouraging and sustaining a variety of options, including inclusive and specialized programs, is likely to support and enhance inclusion. Future studies on inclusive practices in IES should include measures of the degree and quality of participation, including measures of the subjective experiences of participants.

神经发育障碍儿童是最容易被排斥在社区环境之外的群体之一。营地、博物馆和动物园等非正规教育场所(IES)提供了课堂之外的丰富学习机会,然而全纳教育的工作却主要集中在实际的无障碍环境方面。我们需要对相关研究进行综述,以确定支持神经发育障碍儿童参与这些环境的做法。我们采用了一个范围审查框架,以确定有哪些研究涉及神经发育障碍人士在非正式教育环境中的参与,有哪些实践用于促进神经发育障碍儿童在非正式教育环境中的参与,以及这些实践对参与的结果如何。研究共纳入了 46 项采用定量、定性和混合方法设计的研究,其中 24 项研究是在全纳环境或项目中进行的。综述发现,神经发育障碍儿童在非正式环境中仍会遇到融入障碍,而专门的治疗性营地和全纳性营地则会产生积极的结果。此外,行为支持可提高社交技能,减少在非正式环境中的干扰行为,照顾者和神经发育障碍儿童对专门课程持积极态度。鼓励和维持各种选择,包括全纳和专门计划,很可能会支持和加强全纳。今后对国际教育系统包容性做法的研究应包括对参与程度和质量的衡量,包括对参与者主观体验的衡量。
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引用次数: 0
Effects of Initial versus Frequent Preference Assessments on Skill Acquisition 初始偏好评估与频繁偏好评估对技能学习的影响
IF 1.8 4区 医学 Q2 Health Professions Pub Date : 2024-05-23 DOI: 10.1007/s10882-024-09971-7
Yanerys León, Claudia Campos, Stephania Baratz, Courtney Gorman, Amanda Price, Iser DeLeon
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引用次数: 0
Exploring the Motivation, Process, and Barriers for Replication of a Special Education Advocacy Program 探索推广特殊教育宣传计划的动机、过程和障碍
IF 1.8 4区 医学 Q2 Health Professions Pub Date : 2024-05-17 DOI: 10.1007/s10882-024-09964-6
Meghan M. Burke, Samantha E. Goldman
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引用次数: 0
Mealtime Skill Independence: from Pouch-to-Spoon Fading to Using Chopsticks 独立用餐技能:从用餐袋到用餐勺再到使用筷子
IF 1.8 4区 医学 Q2 Health Professions Pub Date : 2024-05-09 DOI: 10.1007/s10882-024-09968-2
Tessa Taylor

Compared to solids, less paediatric feeding research has targeted liquids, medication, and teaching independence skills (e.g., fork, chopsticks). No research to our knowledge has reported transitioning from spout squeeze ‘baby food’ pouches, increasing finger-feeding, and teaching steps in scooping, sipping, and biting off portions. We detail a clinical case and depict data teaching comprehensive mealtime independence using multi-element and multiple-baseline designs. A 3-year-old male with paediatric feeding disorder, avoidant/restrictive food intake disorder (ARFID), and autism spectrum disorder (level 3) had only one independent skill (yogurt pouch via spout). He did not finger-feed, self-spoon-feed, self-drink, or cup-drink. He participated in a home-based intensive 2-week behaviour-analytic treatment programme. We conducted an assessment comparing novel pouch transition apparatuses, then used pouch-to-spoon fading to teach spoon self-feeding. We taught independence in finger-feeding, open-cup drinking, and four methods of medication administration, then open-cup bolus sipping, self-scooping, biting off portions, fork, and chopsticks (11 skills). He met 100% of goals. Caregivers reported high social validity and relevant culturally significant information, and gains generalised and maintained in follow-up.

与固体食物相比,针对液体、药物和独立技能(如叉子、筷子)的儿科喂养研究较少。据我们所知,目前还没有研究报道过从挤压式 "婴儿食品 "袋过渡、增加手指喂养以及教授舀、啜和咬碎食物的步骤。我们详细介绍了一个临床病例,并通过多元素和多基线设计描绘了教授全面进餐时间独立性的数据。一名患有儿科喂养障碍、回避/限制性食物摄入障碍(ARFID)和自闭症谱系障碍(3 级)的 3 岁男童只有一项独立技能(用嘴舀酸奶)。他不会用手指喂食、用勺子喂食、自己喝水或用杯子喝水。他参加了为期两周的家庭行为分析强化治疗项目。我们对新颖的小袋过渡装置进行了评估比较,然后使用小袋到勺子的渐变来教他用勺子自行喂食。我们教他学会独立用手指喂食、开杯喝水和四种给药方法,然后是开杯啜饮、自我舀水、咬碎食物、用叉子和筷子(11 项技能)。他 100%达到了目标。护理人员报告说,该项目具有很高的社会有效性和相关的文化意义信息,所取得的成果在随访中得到了推广和保持。
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Journal of Developmental and Physical Disabilities
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