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Journal of Developmental and Physical Disabilities最新文献

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Impact of Child Behavior Problems on Parenting Stress and Depressive Symptoms Among Mothers of Children with Autism Spectrum Disorder: Mediation of Coping Strategies 儿童行为问题对自闭症谱系障碍患儿母亲父母压力和抑郁症状的影响:应对策略的中介作用
IF 1.8 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2023-07-10 DOI: 10.1007/s10882-023-09919-3
Kuan-ling Chen, Lai-Sang Iao, C. Wu
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引用次数: 0
Comparison of Single Instruction and Varied Instructions to Teach Expressive Labels via Direct Telehealth for Children with Autism Spectrum Disorder 单指令与多指令直接远程医疗对自闭症谱系障碍儿童表达性标签教学的比较
IF 1.8 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2023-07-07 DOI: 10.1007/s10882-023-09921-9
W. Aljohani, J. L. Ferguson, Joseph H. Cihon, R. K. Ross, M. Weiss, Justin B. Leaf
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引用次数: 0
Examining Effective Intervention Strategies in a Play-Based Program for Children with Prader-Willi Syndrome 以游戏为基础的普瑞德-威利综合症儿童干预策略研究
IF 1.8 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2023-07-07 DOI: 10.1007/s10882-023-09920-w
R. Gordon, S. Russ, A. Dimitropoulos
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引用次数: 0
Conducting a Randomized Controlled Trial to Evaluate a Comprehensive School-Based Intervention for Students on the Autism Spectrum: Challenges and Mitigation Strategies 开展一项随机对照试验以评估对自闭症学生的综合校本干预:挑战和缓解策略
IF 1.8 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2023-07-07 DOI: 10.1007/s10882-023-09918-4
Ryan J. Martin, Suzannah Iadarola, Rose Iovannone, Brenna M Cavanaugh, Krystal Fontechia, L. Levato, C. Anderson
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引用次数: 0
Measuring what Matters: Considerations for the Measurement of Services for Individuals with Autism 衡量什么是重要的:对自闭症个体服务衡量的考虑
IF 1.8 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2023-06-27 DOI: 10.1007/s10882-023-09916-6
M. Burke, W. Cheung, M. Best, L. DaWalt, J. Taylor
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引用次数: 1
Teaching Children with Autism Through Sibling Interventionists Coached via Telehealth 通过远程健康指导的兄弟姐妹干预师教授自闭症儿童
IF 1.8 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2023-06-14 DOI: 10.1007/s10882-023-09917-5
Chengan Yuan, Lanqi Wang, Natalija Milutinovic, Qiuyu Min
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引用次数: 0
Relations among Screen Time and Commonly Co-occurring Conditions in Autistic Youth 自闭症青少年屏幕时间与常见共现条件的关系
IF 1.8 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2023-06-09 DOI: 10.1007/s10882-023-09915-7
Michelle Menezes, J. Pappagianopoulos, R. Cross, M. Mazurek
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引用次数: 0
Behavior Analytic Technologies Mediated via Augmented Reality for Autism: A Systematic Review 行为分析技术介导的增强现实自闭症:系统回顾
IF 1.8 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2023-05-23 DOI: 10.1007/s10882-023-09912-w
Leslie C. Neely, Amarie Carnett, J. Quarles, Se-Woong Park, Michelle P. Kelly
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引用次数: 0
A Systematic Review of Longitudinal Trajectories of Mental Health Problems in Children with Neurodevelopmental Disabilities 神经发育障碍儿童心理健康问题纵向轨迹的系统评价
IF 1.8 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2023-05-20 DOI: 10.1007/s10882-023-09914-8
H. Danielsson, C. Imms, Magnus Ivarsson, L. Almqvist, L. Lundqvist, G. King, Liz Adams Lyngbäck, A. Andersson, S. Arnell, P. Arvidsson, L. Augustine, R. Brooks, M. Eldh, Lisa Engde, Helena Engkvist, I. Gimbler Berglund, D. Green, K. Huus, Charlotte Karlsson, F. Lygnegård, Linda Sjödin, M. Granlund
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引用次数: 1
Me, My Tics and I: An Exploration of Self-Identity and its Implications for Psychological Wellbeing in Young Women with Tourette's Syndrome. 我、我的Tics和我:探讨抽动秽语综合征年轻女性的自我认同及其对心理健康的影响。
IF 1.8 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2023-05-12 DOI: 10.1007/s10882-023-09911-x
Janine Coleman, Yvonne Melia

Women with Tourette's syndrome (TS) continue to be under-researched, despite female sex being associated with increased tic-related impairment in adulthood. Existing literature indicates that individuals with TS are more likely than the general population to report self-stigma, but little is known about the subjective identities of women with TS and how this relates to psychological wellbeing. Semi-structured interviews were conducted via Zoom with a purposive sample of 11 females. All were diagnosed with TS and aged 18-28. Data was transcribed verbatim and thematic analysis applied. Five themes were established: "I'm not normal", "I just want to be me", I'm a "people pleaser", seeing oneself as an "outsider", and "it's just part of me…it's not going anywhere". Difficulties with self-acceptance and the autonomy to be one's true self were noted and appeared to be intensified by stereotypical gender roles and attempts to conceal tics. Findings also suggested that personal growth and feelings of mastery can be achieved through embracing TS as part of one's identity, or recognising it as just one aspect of the self. Psychological support focused on accepting and living with tics rather than reducing them may benefit this population and is currently difficult to access. Consideration should also be given to improving the availability of support groups where women with TS can meet others like themselves.

Supplementary information: The online version contains supplementary material available at 10.1007/s10882-023-09911-x.

患有抽动秽语综合征(TS)的女性仍然没有得到充分的研究,尽管女性在成年后与抽动秽语相关的障碍增加有关。现有文献表明,TS患者比普通人群更有可能报告自我污名,但对TS女性的主观身份以及这与心理健康的关系知之甚少。通过Zoom对11名女性进行了半结构化访谈。所有患者均被诊断为TS,年龄18-28岁。数据逐字逐句转录,并进行专题分析。确立了五个主题:“我不正常”、“我只想成为我自己”、“取悦他人”、将自己视为“局外人”和“这只是我的一部分……它不会去任何地方”。人们注意到了自我接纳和自主成为真实自我的困难,而且刻板的性别角色和掩盖抽搐的企图似乎加剧了这种困难。研究结果还表明,个人成长和掌控感可以通过将TS视为身份的一部分,或将其视为自我的一个方面来实现。专注于接受和生活抽搐而不是减少抽搐的心理支持可能会使这一人群受益,目前很难获得。还应考虑改善支持团体的可用性,让患有TS的妇女能够与像自己一样的人见面。补充信息:在线版本包含补充材料,可访问10.1007/s10882-023-09911-x。
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引用次数: 0
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Journal of Developmental and Physical Disabilities
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