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Remote Training of Dental Students and Professionals to Promote Cooperative Behavior in Patients with Intellectual and Developmental Disabilities. 对牙科学生和专业人员进行远程培训,以促进智力和发育障碍患者的合作行为。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2023-01-01 Epub Date: 2022-04-02 DOI: 10.1007/s10882-022-09844-x
Marissa Matteucci, Dorothea C Lerman, Loukia Tsami, Samantha Boyle

Many individuals diagnosed with intellectual and developmental disabilities (IDD) are uncooperative during routine dental exams, leading to poor oral health in this population. Few studies have evaluated methodologies for preparing dental students and professionals to work effectively with patients diagnosed with IDD. In this study, experimenters used remote behavioral skills training (BST) to train dental students and professionals how to implement a practical intervention that included tell-show-do, contingent praise, and noncontingent reinforcement. Results suggested that group training conducted via videoconferencing was effective for teaching six of seven participants to implement the intervention in the absence of post-training feedback. This approach appears useful for quickly and efficiently training current and future dental professionals to implement behavior techniques to promote patient compliance.

许多被诊断为智力和发育障碍(IDD)的人在例行牙科检查时不合作,导致这一人群的口腔健康状况很差。很少有研究对牙科学生和专业人员如何准备与被诊断为 IDD 的患者有效合作的方法进行评估。在这项研究中,实验人员使用远程行为技能培训(BST)来培训牙科学生和专业人员如何实施一项实用的干预措施,其中包括 "告诉-展示-做"、有条件表扬和无条件强化。结果表明,在没有培训后反馈的情况下,通过视频会议进行的小组培训能有效地教会七名参与者中的六名实施干预。这种方法对于快速有效地培训当前和未来的牙科专业人员实施行为技术以促进患者依从性似乎很有用。
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引用次数: 0
A Qualitative Study Exploring Parental Perceptions of Telehealth in Early Intervention. 父母对远程医疗早期干预认知的质性研究。
IF 1.8 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2023-01-01 DOI: 10.1007/s10882-022-09853-w
W C Cheung, J Aleman-Tovar, A N Johnston, L M Little, M M Burke

Using telehealth as a mode of service delivery has the potential to address some long-standing challenges in early intervention (EI) services such as waiting lists to access services. Yet, little is known about parent perceptions of telehealth in EI based on their lived experiences partnering with EI practitioners. The purpose of this study was to explore parent perceptions on using telehealth, especially on family-professional partnerships and coaching. Interviews were conducted with 15 parents of children receiving EI services via telehealth from June to August of 2021. Almost half of the participants reflected under-represented racial and ethnic backgrounds. Constant comparative analysis and emergent coding were used for data analysis. The findings showed that the advantages outnumbered the disadvantages regarding telehealth. Participants reported that telehealth provided a safe and flexible option and eliminated the wait to access EI services. However, participants identified some disadvantages to telehealth including telehealth precluded substantive interactions with therapists and limited access to technology. The findings also indicated that telehealth enhanced family-professional partnerships. Nearly all participants valued coaching during telehealth. Participants suggested initial supports to facilitate EI via telehealth, including stable internet access, telehealth training, and an initial in-person visit. Implications for research and practice are discussed.

Supplementary information: The online version contains supplementary material available at 10.1007/s10882-022-09853-w.

将远程保健作为一种提供服务的模式,有可能解决早期干预服务方面的一些长期挑战,例如等待获得服务的名单。然而,基于父母与EI从业者合作的生活经验,他们对EI远程医疗的看法知之甚少。本研究的目的是探讨家长对使用远程医疗的看法,特别是对家庭-专业伙伴关系和辅导。2021年6月至8月,对15名通过远程医疗接受EI服务的儿童家长进行了访谈。几乎一半的参与者反映了未被充分代表的种族和民族背景。数据分析采用持续对比分析和紧急编码。调查结果表明,远程医疗的利大于弊。与会者报告说,远程保健提供了一种安全和灵活的选择,消除了获得电子医疗服务的等待时间。然而,与会者指出了远程保健的一些缺点,包括远程保健妨碍了与治疗师的实质性互动,以及获得技术的机会有限。调查结果还表明,远程保健增强了家庭-专业伙伴关系。几乎所有参与者都重视远程医疗期间的指导。与会者建议通过远程医疗为促进情商提供初步支持,包括稳定的互联网接入、远程医疗培训和最初的亲自访问。讨论了对研究和实践的启示。补充信息:在线版本包含补充信息,获取地址:10.1007/s10882-022-09853-w。
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引用次数: 8
The Efficacy of Using Telehealth to Coach Parents of Children with Autism Spectrum Disorder on How to Use Naturalistic Teaching to Increase Mands, Tacts and Intraverbals. 利用远程医疗技术指导自闭症谱系障碍儿童家长如何使用自然教学法来增加手势、动作和内部言语的有效性》(The Efficacy of Using Telehealth to Coach Parents of Children with Autism Spectrum Disorder on How to Use Naturalistic Teaching to Increase Mands, Tacts and Intraverbals.
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2023-01-01 Epub Date: 2022-07-29 DOI: 10.1007/s10882-022-09859-4
Jenny Ferguson, Katerina Dounavi, Emma A Craig

There is a growing body of evidence supporting the use of telehealth to provide parent training in behaviour analytic interventions and researchers have begun to focus on international demonstrations of this model. The current study assessed the efficacy of a training package focused on naturalistic teaching strategies designed to upskill parents of children with autism spectrum disorder and provide them with ready to use strategies to increase social communication behaviours across verbal operants. Two parent-child dyads were trained to increase mand, tact and intraverbals during play. Parents displayed increases in fidelity for each strategy and viewed the training favourably. Both children showed gains across verbal operants, as captured by a multiple baseline across behaviours design.

Supplementary information: The online version contains supplementary material available at 10.1007/s10882-022-09859-4.

越来越多的证据支持利用远程医疗为家长提供行为分析干预培训,研究人员已开始关注这一模式的国际示范。目前的研究评估了一套培训教材的效果,该教材侧重于自然教学策略,旨在提高自闭症谱系障碍儿童家长的技能,并为他们提供可随时使用的策略,以增加跨言语操作的社会交往行为。对两个亲子二人组进行了培训,以增加游戏过程中的指令、策略和内部言语。家长对每种策略的忠实度都有所提高,并对培训给予了好评。通过跨行为多基线设计,两个孩子在不同的言语操作中都有所提高:在线版本包含补充材料,可在 10.1007/s10882-022-09859-4上查阅。
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引用次数: 0
Correction to: The Efficacy of Using Telehealth to Coach Parents of Children with Autism Spectrum Disorder on How to Use Naturalistic Teaching to Increase Mands, Tacts and Intraverbals. 更正:使用远程医疗指导自闭症谱系障碍儿童父母如何使用自然主义教学来提高手、机智和言语的效果。
IF 1.8 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2023-01-01 DOI: 10.1007/s10882-022-09870-9
Jenny Ferguson, Katerina Dounavi, Emma A Craig

[This corrects the article DOI: 10.1007/s10882-022-09859-4.].

[这更正了文章DOI: 10.1007/s10882-022-09859-4]。
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引用次数: 0
Zoom-delivered Physical Activities Can Increase Perceived Physical Activity Level in Children with Autism Spectrum Disorder: a Pilot Study. 放大传递的体育活动可以提高自闭症谱系障碍儿童的感知体育活动水平:一项试点研究。
IF 1.8 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2023-01-01 DOI: 10.1007/s10882-022-09854-9
Erkan Yarımkaya, Oğuz Kaan Esentürk, Ekrem Levent İlhan, Serkan Kurtipek, Ayşe Türksoy Işım

Although the benefits of regular physical activity are clearly expressed, children with Autism Spectrum Disorder (ASD) are less physically active than their typically developing peers. Recent empirical studies have revealed that the level of physical activity of children with ASD has further decreased during the novel coronavirus (COVID-19) pandemic, which has adversely affected the whole world. The aim of this study was to evaluate the potential efficacy of a Zoom-delivered physical activities for children with Autism Spectrum Disorder (ASD). Twenty-two families (parent and child dyads) participated in the study. Families were assigned randomly to an experimental group (n = 11) and a control group (n = 11). Families in the experimental group were engaged in 10 weeks of the Zoom-delivered physical activities. Data were collected using multiple data collection strategies (Personal Information Form- Leisure Time Exercise Questionnaire-Semi-Structured Interview). After the Zoom-delivered physical activities, a significant increase was observed in the physical activity level of children with ASD in the experimental group (F = 95.396, p = 0.000, Ƞ 2  = 0.834). Parents reported that Zoom-delivered physical activities are a viable and useful intervention to increase the level of physical activity of children with ASD. The findings suggest that Zoom-delivered physical activities merit further investigation as an intervention to increase physical activity in children with ASD.

虽然经常锻炼身体的好处是显而易见的,但患有自闭症谱系障碍(ASD)的儿童比正常发育的同龄人更少锻炼。最近的实证研究表明,在新型冠状病毒(COVID-19)大流行期间,ASD儿童的身体活动水平进一步下降,这对整个世界产生了不利影响。本研究的目的是评估zoom传递的体育活动对自闭症谱系障碍(ASD)儿童的潜在功效。22个家庭(父母和孩子成对)参与了这项研究。将家庭随机分为实验组(n = 11)和对照组(n = 11)。实验组的家庭参与了为期10周的zoom提供的体育活动。采用多种数据收集策略(个人信息表-休闲时间运动问卷-半结构化访谈)收集数据。在zoom提供体育活动后,实验组ASD儿童的体育活动水平显著提高(F = 95.396, p = 0.000, Ƞ 2 = 0.834)。家长们报告说,zoom提供的体育活动是一种可行和有用的干预措施,可以提高自闭症儿童的体育活动水平。研究结果表明,zoom提供的体育活动值得进一步研究,作为增加自闭症儿童体育活动的干预措施。
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引用次数: 5
Effectiveness of a Brief Functional Analysis and Functional Communication Training Conducted Through Telehealth. 通过远程医疗进行简要功能分析和功能性沟通培训的效果。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2023-01-01 Epub Date: 2022-08-08 DOI: 10.1007/s10882-022-09857-6
Emma A Craig, Katerina Dounavi, Jenny Ferguson

This study evaluates the effectiveness of a brief functional analysis and functional communication training conducted via telehealth. Three interventionist-child dyads took part in the study including one speech and language pathologist and two school teaching assistants, each working with one child with autism spectrum disorder. Interventionists were trained using didactic training to implement a brief functional analysis as well as synchronous coaching from a BCBA® to implement functional communication training. A multiple baseline across participants design was utilised to evaluate if interventionists could implement functional communication training to decrease challenging behaviours that included aggression, elopement and disruption. Sessions concluded earlier than planned due to school closures mandated by the COVID-19 outbreak for two of the three participants; however, existing data provide evidence that telehealth is a valid model for enabling clinicians to work in collaboration with school personnel to effectively deliver assessment and intervention procedures remotely via telehealth.

本研究评估了通过远程医疗进行简短功能分析和功能性沟通训练的效果。三名干预者-儿童二人组参加了研究,包括一名言语和语言病理学家和两名学校助教,每人负责一名患有自闭症谱系障碍的儿童。干预人员接受了实施简短功能分析的说教式培训,以及 BCBA® 实施功能性沟通训练的同步辅导。我们采用了跨参与者的多基线设计,以评估干预人员能否通过实施功能性沟通训练来减少攻击、逃跑和干扰等挑战性行为。由于 COVID-19 疫情爆发,三名参与者中有两名被迫停课,因此课程提前结束;不过,现有数据证明,远程医疗是一种有效的模式,可使临床医生与学校人员合作,通过远程医疗有效地远程提供评估和干预程序。
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引用次数: 0
"Everybody Wants to be Included": Experiences with 'Inclusive' Strategies in Physical Education. “人人都想被包容”:体育教学中“包容”策略的经验。
IF 1.8 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2023-01-01 DOI: 10.1007/s10882-022-09852-x
Katherine Holland, Justin A Haegele, Xihe Zhu, Jonna Bobzien

This study examined how students with orthopedic impairments experienced strategies identified in the literature to support 'inclusion'. An interpretative phenomenological analysis research approach was used, and six students with orthopedic impairments (age 10-14 years) served as participants. Data sources were written prompts, semi-structured, audiotaped interviews, and reflective interview notes. Based on thematic data analysis, four themes were constructed: "It's kind of embarrassing": experiences with support; "I don't want to be different": equipment, activity, and rule modifications; "I like to be a part of the conversation": autonomy and choice in PE; and "I would rather be like the other students": discussing disability. The experiences portrayed through these themes highlighted the differential effects of these explicated strategies, where each strategy contributed to feelings of inclusion, as well as marginalization among participants. As such, the findings indicated that 'inclusive' strategies should not be considered as blanket recommendations; instead, attempts to promote 'inclusion' of students with disabilities should start with a reflexive look at the unique needs of each individual student.

本研究考察了患有骨科损伤的学生如何体验文献中确定的支持“包容”的策略。采用解释性现象学分析研究方法,选取6名10-14岁的骨科损伤学生作为研究对象。数据来源包括书面提示、半结构化访谈、录音访谈和反思性访谈笔记。基于主题数据分析,构建了四个主题:“有点尴尬”:有支持的经历;“我不想与众不同”:设备、活动和规则修改;“我喜欢成为对话的一部分”:体育中的自主和选择;和“我宁愿像其他学生一样”:讨论残疾。通过这些主题描绘的经验突出了这些明确战略的不同效果,每种战略都有助于参与者的包容感和边缘化感。因此,调查结果表明,“包容性”战略不应被视为一揽子建议;相反,促进残疾学生“包容”的尝试应该从反思每个学生的独特需求开始。
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引用次数: 2
A Report on the Increased Payment Rates for HCBS for People with Intellectual and Developmental Disabilities During the COVID-19 Pandemic. 关于在 COVID-19 大流行期间提高智力和发育障碍人士 HCBS 支付率的报告。
IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2022-12-29 DOI: 10.1007/s10882-022-09886-1
Carli Friedman

Recognizing the crisis the COVID-19 pandemic represents to the Home- and Community-Based Services (HCBS) service system and the health, safety, and quality of life of people with intellectual and developmental disabilities (IDD), states temporarily amended their HCBS programs to strengthen service delivery. States are able to temporarily amend their HCBS 1915(c) waiver programs by submitting Appendix K: Emergency Preparedness and Response Waivers to the Centers for Medicare and Medicaid Services (CMS). The aim of this study was to examine if, and how, states increased their reimbursement rates for HCBS IDD waiver services during the COVID-19 pandemic. To do so, we analyzed 294 Appendix Ks which amended HCBS 1915(c) waivers for people with IDD between the start of the pandemic and April 2022. During the pandemic, 34 states and the District of Columbia increased reimbursement rates for 2,435 services provided by 82 HCBS waivers for people with IDD. Increase in reimbursement rates ranged from 3.5% to 160.7%, with an average increase of 23.3%. States most frequently increased reimbursement for supports to live in one's own home, residential habilitation, and health and professional services. In addition, 12 states and the District of Columbia offered one-time supplemental payments through 25 HCBS waivers for people with IDD. While increasing payments during the pandemic likely helped stabilize the HCBS service system during this period of crisis, what remains to be seen is how the IDD service system will function when this additional funding is discontinued.

各州认识到 COVID-19 大流行对家庭和社区服务 (HCBS) 服务系统以及智力和发育障碍人士 (IDD) 的健康、安全和生活质量造成的危机,因此临时修改了他们的 HCBS 计划,以加强服务的提供。各州可通过向医疗保险和医疗补助服务中心(CMS)提交附录 K:应急准备和响应豁免,临时修改其 1915(c)年的 HCBS 豁免计划。本研究的目的是检查在 COVID-19 大流行期间,各州是否以及如何提高其对 HCBS IDD 减免服务的补偿率。为此,我们分析了 294 份附录 K,这些附录 K 在大流行开始至 2022 年 4 月期间修订了针对 IDD 患者的 HCBS 1915(c) 减免计划。在大流行期间,34 个州和哥伦比亚特区提高了 82 个针对 IDD 患者的 HCBS 特例所提供的 2,435 项服务的报销率。报销率的增幅从 3.5% 到 160.7% 不等,平均增幅为 23.3%。各州最常增加的是对在自己家中生活的支持、住宿适应训练以及健康和专业服务的补偿。此外,12 个州和哥伦比亚特区还通过 25 项针对 IDD 患者的 HCBS 减免计划提供一次性补充付款。虽然在大流行期间增加支付可能有助于在这一危机时期稳定住户照护和康复服务系统,但仍有待观察的是,当这些额外资金停止提供时,IDD 服务系统将如何运作。
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引用次数: 0
Pain characteristics in people with Prader-Willi, Williams, and Fragile-X syndromes: an international survey of caregivers’ perspective Prader-Willi, Williams和Fragile-X综合征患者的疼痛特征:一项护理者视角的国际调查
IF 1.8 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2022-11-09 DOI: 10.1007/s10882-022-09876-3
Nanda de Knegt
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引用次数: 0
Interventions to Teach Intimate Care Skills to Individuals with Autism and Other Developmental Disabilities: A Systematic Synthesis of the Literature 向自闭症和其他发育障碍患者传授亲密护理技能的干预措施:文献的系统综合
IF 1.8 4区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2022-11-07 DOI: 10.1007/s10882-022-09884-3
Molly K. Oshinski, Terry S. Falcomata, Patricio Erhard
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引用次数: 0
期刊
Journal of Developmental and Physical Disabilities
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