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Consent and Inclusion of People Living with Dementia (PLWD) in Research: Establishing a Canadian Agenda for Inclusive Rights-Based Practices. 痴呆症患者(PLWD)同意并参与研究:为基于权利的包容性实践制定加拿大议程》。
IF 1.7 4区 医学 Q3 GERONTOLOGY Pub Date : 2024-12-01 Epub Date: 2024-05-20 DOI: 10.1017/S0714980824000217
Amanda Grenier, Deborah O'Connor, Krista James, Daphne Imahori, Daniella Minchopoulos, Nicole Velev, Laura Tamblyn-Watts, Jim Mann

Background: People living with dementia (PLWD) may want to participate in research, but the guidelines and processes enacted across various contexts may prohibit this from happening.

Objective: Understanding the experiences of people with lived experiences of dementia requires meaningful inclusion in research, as is consistent with rights-based perspectives. Currently, the inclusion of PLWD in Canadian research is complex, and guidelines and conceptual frameworks have not been fully developed.

Methods: This research note outlines a three-year proof-of-concept grant on the inclusion and consent of PLWD in research.

Findings: It presents a brief report on some of the contradictions and challenges that exist in legislation, research guidelines, and research practices and raises a series of questions as part of an agenda on rights and inclusion of PLWD in research.

Discussion: It suggests conceptual, legal, and policy issues that need to be addressed and invites Canadian researchers to re-envision research practices and to advocate for law and policy reform that enables dementia research to align and respect the rights and personhood of PLWD.

背景:痴呆症患者(PLWD)可能希望参与研究,但各种情况下制定的指导方针和程序可能会禁止他们参与研究:目的:要了解痴呆症患者的经历,就必须让他们切实参与研究,这与基于权利的观点是一致的。目前,将 PLWD 纳入加拿大的研究工作十分复杂,指导方针和概念框架尚未完全制定:本研究说明概述了一项为期三年的概念验证补助金,内容涉及将 PLWD 纳入研究并征得其同意:研究结果:它简要报告了在立法、研究指南和研究实践中存在的一些矛盾和挑战,并提出了一系列问题,作为有关 PLWD 在研究中的权利和融入议程的一部分:讨论:本报告提出了需要解决的概念、法律和政策问题,并邀请加拿大研究人员重新审视研究实践,倡导法律和政策改革,使痴呆症研究与 PLWD 的权利和人格保持一致并尊重 PLWD 的权利和人格。
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引用次数: 0
Key Learnings from 'Seniors of Canada': A Community Project Aimed to Disrupt Ageism. 加拿大老年人 "的主要经验:旨在打破老龄歧视的社区项目。
IF 1.7 4区 医学 Q3 GERONTOLOGY Pub Date : 2024-12-01 Epub Date: 2024-04-29 DOI: 10.1017/S0714980824000151
Stephanie Hatzifilalithis, Rachel Weldrick, Kelsey Harvey

Visual representations of aging have historically relied upon binarized clichés: idealized youthfulness versus frailty and illness. To challenge these oversimplified depictions, graduate students developed a community outreach project titled 'Seniors of Canada'. The aim of this project was twofold: (1) share images and stories of people in later life; and (2) challenge dominant narratives and stereotypes of aging. In this note, we outline the prevailing discourse of what aging 'looks like', how we collected stories and images, and implications for knowledge mobilization and research in Canada. This article highlights insights gained since the inception of the project, including three key learnings: (1) Building bridges across academia and community, (2) Intergenerational connection and digital tools, and (3) The power of visual storytelling. We provide a practical overview of a successful knowledge mobilization/community outreach project and showcase the power of bridging academia and community for social change.

老龄化的视觉表现历来依赖于二元化的陈词滥调:理想化的年轻与虚弱和疾病。为了挑战这些过于简单化的描述,研究生们开发了一个名为 "加拿大老年人 "的社区推广项目。该项目的目的有两个:(1) 分享晚年生活的影像和故事;(2) 挑战关于老龄化的主流叙事和刻板印象。在本说明中,我们概述了关于老龄化 "面貌 "的主流说法、我们收集故事和图片的方式,以及对加拿大知识动员和研究的影响。本文重点介绍了自项目启动以来所获得的启示,包括三项关键经验:(1) 在学术界和社区之间架起桥梁;(2) 代际联系和数字工具;(3) 视觉故事的力量。我们提供了一个成功的知识动员/社区外联项目的实用概览,并展示了连接学术界和社区以促进社会变革的力量。
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引用次数: 0
Emergency Department Boarding Time Is Associated with Functional Decline in Older Adults Six Months Post Discharge. 急诊科住院时间与老年人出院后六个月的功能衰退有关。
IF 1.7 4区 医学 Q3 GERONTOLOGY Pub Date : 2024-12-01 Epub Date: 2024-09-18 DOI: 10.1017/S0714980824000199
Caroline L Duquette, Melissa K Andrew, George A Kuchel, Jo-Anne Clarke, Robert Ohle, Chris P Verschoor

Functional decline following hospitalization remains an important problem in health care, especially for frail older adults. Modifiable factors related to reduction in harms of hospitalization are not well described. One particularly pervasive factor is emergency department (ED) boarding time; time waiting from decision to admit, until transfer to an in-patient medical unit. We sought to investigate how the functional status of frail older adults correlated with the length of time spent boarded in the ED. We found that patients who waited for 24 hours or more exhibited functional decline in both the Barthel Index and Hierarchical Assessment of Balance and Mobility and an increase in the Clinical Frailty Scale from discharge to 6 months post discharge. In conclusion, there is a need for additional investigation into ED focused interventions to reduce ED boarding time for this population or to improve access to specialized geriatric services within the ED.

住院后的功能衰退仍然是医疗保健中的一个重要问题,尤其是对于体弱的老年人而言。与减少住院危害有关的可改变因素尚未得到很好的描述。一个特别普遍的因素是急诊科(ED)的住院时间,即从决定入院到转入住院医疗单位的等待时间。我们试图研究体弱老年人的功能状态与急诊科住院时间的相关性。我们发现,等待 24 小时或更长时间的患者在巴特尔指数(Barthel Index)和平衡与活动能力分层评估(Hierarchical Assessment of Balance and Mobility)方面都表现出功能下降,而且从出院到出院后 6 个月期间,临床虚弱量表(Clinical Frailty Scale)的数值都在上升。总之,有必要对以急诊室为重点的干预措施进行更多调查,以减少这类人群的急诊室登机时间,或改善急诊室内专门的老年病服务。
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引用次数: 0
Virtual care during COVID-19: The perspectives of older adults and their healthcare providers in a cardiac rehabilitation setting. COVID-19 期间的虚拟护理:心脏康复环境中老年人及其医疗服务提供者的观点。
IF 1.7 4区 医学 Q3 GERONTOLOGY Pub Date : 2024-12-01 Epub Date: 2024-02-23 DOI: 10.1017/S0714980824000102
Cecilia Flores-Sandoval, Shannon L Sibbald, Bridget L Ryan, Tracey L Adams, Neville Suskin, Robert McKelvie, Jacobi Elliott, Joseph B Orange

The present study aimed to explore the perspectives of older adults and health providers on cardiac rehabilitation care provided virtually during COVID-19. A qualitative exploratory methodology was used. Semi-structured interviews were conducted with 15 older adults and 6 healthcare providers. Five themes emerged from the data: (1) Lack of emotional intimacy when receiving virtual care, (2) Inadequacy of virtual platforms, (3) Saving time with virtual care, (4) Virtual care facilitated accessibility, and (5) Loss of connections with patients and colleagues. Given that virtual care continues to be implemented, and in some instances touted as an optimal option for the delivery of cardiac rehabilitation, it is critical to address the needs of older adults living with cardiovascular disease and their healthcare providers. This is particularly crucial related to issues accessing and using technology, as well as older adults' need to build trust and emotional connection with their providers.

本研究旨在探讨老年人和医疗服务提供者对 COVID-19 期间虚拟提供的心脏康复护理的看法。研究采用了定性探索方法。对 15 名老年人和 6 名医疗服务提供者进行了半结构化访谈。从数据中得出了五个主题:(1)接受虚拟治疗时缺乏情感上的亲密感;(2)虚拟平台的不足;(3)虚拟治疗节省了时间;(4)虚拟治疗促进了可及性;(5)失去了与患者和同事的联系。鉴于虚拟医疗在继续实施,并在某些情况下被吹捧为提供心脏康复的最佳选择,因此解决患有心血管疾病的老年人及其医疗服务提供者的需求至关重要。这一点对于技术的获取和使用问题以及老年人与医疗服务提供者建立信任和情感联系的需求尤为重要。
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引用次数: 0
The Association between Residential Environment and Self-Rated Mental Health among Older Canadians: The Moderating Effects of Education and Gender. 加拿大老年人居住环境与自评心理健康之间的关系:教育和性别的调节作用
IF 1.7 4区 医学 Q3 GERONTOLOGY Pub Date : 2024-12-01 Epub Date: 2024-05-23 DOI: 10.1017/S0714980824000230
Ethan Siu Leung Cheung

This study examined the associations between residential environment and self-rated mental health (SRMH) among Canadians aged 65 or older (n = 16,304) and whether education and gender moderated the associations. Data came from the 2018 Canadian Housing Survey. Hierarchical multiple regressions were conducted to test the associations. Analyses revealed that increased dwelling size was associated with better SRMH among older women with high school education. Older adults with higher satisfaction with their dwelling design were more likely to report better SRMH, except for women with some college education. Feeling safer in the community was uniquely associated with better SRMH for men with high school education and women with a university degree. Results confirmed significant associations between specific home and residential environment features and SRMH for each gender-by-education group. Environmental programs designed to improve SRMH for older adult populations should consider within- and between-group diversity.

本研究考察了 65 岁或以上加拿大人(n = 16304 人)的居住环境与自评心理健康(SRMH)之间的关联,以及教育和性别是否会调节这种关联。数据来自 2018 年加拿大住房调查。我们进行了层次多元回归来检验两者之间的关联。分析表明,在受过高中教育的老年妇女中,住宅面积的增加与更好的SRMH有关。除了受过一些大学教育的女性外,对住宅设计满意度较高的老年人更有可能报告较好的 SRMH。对于受过高中教育的男性和受过大学教育的女性来说,在社区中感到更安全与更好的 SRMH 有着独特的联系。研究结果证实,在不同教育程度的性别组别中,特定的家庭和居住环境特征与 SRMH 之间存在着明显的关联。旨在改善老年人SRMH的环境计划应考虑到组内和组间的多样性。
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引用次数: 0
Social Isolation of Older Adults, Family, and Formal Caregivers During the COVID-19 Pandemic: Stories and Solutions Through Participatory Action Research. COVID-19 大流行期间老年人、家庭和正式护理人员的社会隔离:参与式行动研究的故事与解决方案》。
IF 1.9 4区 医学 Q3 GERONTOLOGY Pub Date : 2024-06-01 Epub Date: 2023-09-18 DOI: 10.1017/S071498082300048X
Ann MacLeod, Justine Levesque, Catherine Ward-Griffin

This participatory action research (PAR) aimed to understand the health implications of guidelines impacting social isolation among frail community-dwelling older adults and their family and formal caregivers during the coronavirus disease (COVID-19) pandemic. Reflexive thematic analysis (RTA) of data collected from 10 policy/procedural documents revealed four themes: valuing principles, identifying problem(s), setting priorities, and making recommendations. Interviews with 31 participants from Peterborough, Ontario, also revealed four themes: sacrificing social health, diminishing physical health, draining mental health, and defining supports. Recommendations to decision makers were finalized at a knowledge exchange event involving participants and members of Age-friendly Peterborough. Key findings demonstrate the need for Canadian governments and health and social service agencies to enhance access to technology-based interventions, and educational and financial resources for caregivers. Meaningful communication and collaboration between older adults, caregivers, and decision makers are also needed to reduce the gap between policy and practice when addressing social isolation.

这项参与式行动研究(PAR)旨在了解在冠状病毒病(COVID-19)大流行期间,影响居住在社区的体弱老年人及其家庭和正式护理人员社会隔离的指导方针对健康的影响。对从 10 份政策/程序文件中收集的数据进行的反思性主题分析(RTA)揭示了四个主题:重视原则、发现问题、确定优先事项和提出建议。对安大略省彼得伯勒市 31 名参与者的访谈也揭示了四个主题:牺牲社会健康、削弱身体健康、耗尽心理健康和界定支持。在一次由参与者和彼得伯勒老年友好组织成员参加的知识交流活动中,最终确定了向决策者提出的建议。主要研究结果表明,加拿大政府、卫生和社会服务机构需要加强技术干预,并为照顾者提供教育和财政资源。老年人、照顾者和决策者之间也需要进行有意义的沟通与合作,以缩小解决社会隔离问题时政策与实践之间的差距。
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引用次数: 0
Staff's Attitudes towards the Use of Mobile Telepresence Robots in Long-Term Care Homes in Canada. 加拿大长期护理院员工对使用移动远程呈现机器人的态度
IF 1.9 4区 医学 Q3 GERONTOLOGY Pub Date : 2024-06-01 Epub Date: 2023-11-17 DOI: 10.1017/S0714980823000697
Mineko Wada, Joey Wong, Evangeline Tsevis, Jim Mann, Hideaki Hanaoka, Lillian Hung

This cross-sectional study investigated staff's attitudes towards the use of mobile telepresence robots in long-term care (LTC) homes in western Canada. We drew on a Health Technology Assessment Core Model 3.0 to design a survey examining attitudes towards nine domains of mobile telepresence robots. Staff, including nurses, care staff, and managers, from two LTC homes were invited to participate. Statistical analysis of survey data from 181 participants revealed that overall, participants showed positive attitudes towards features and characteristics, self-efficacy on technology use, organizational aspects, clinical effectiveness, and residents and social aspects; neutral attitudes towards residents' ability to use technology, and costs; and negative attitudes towards safety and privacy. Participants who disclosed their demographic backgrounds tended to exhibit more positive attitudes than participants who did not. Content analysis of textual data identified specific concerns and benefits of using the robots. We discuss options for implementing mobile telepresence robots in LTC.

这项横断面研究调查了加拿大西部长期护理(LTC)家庭中工作人员对使用移动远程呈现机器人的态度。我们利用健康技术评估核心模型3.0设计了一项调查,调查人们对移动远程呈现机器人的九个领域的态度。两家LTC疗养院的工作人员,包括护士、护理人员和管理人员被邀请参加。对181名被调查者的调查数据进行统计分析,结果显示,被调查者对特征和特征、技术使用的自我效能、组织方面的自我效能、临床效果、住院医师和社会方面的自我效能表现出积极的态度;对居民使用技术的能力和成本持中立态度;以及对安全和隐私的消极态度。披露其人口统计背景的参与者往往比没有披露的参与者表现出更积极的态度。文本数据的内容分析确定了使用机器人的具体关注点和好处。我们讨论了在LTC中实现移动远程呈现机器人的选项。
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引用次数: 0
[Les effets de la méditation de pleine conscience sur les symptômes cognitivo- émotionnels dans le trouble cognitif léger et la maladie d'Alzheimer : une revue de littérature narrative]. [正念冥想对轻度认知障碍和阿尔茨海默病认知情感症状的影响:叙事性文献综述]。
IF 1.7 4区 医学 Q3 GERONTOLOGY Pub Date : 2024-06-01 Epub Date: 2023-12-22 DOI: 10.1017/S0714980823000612
Sandrine Kalenzaga, David Clarys

La maladie d'Alzheimer se manifeste par des troubles de la mémoire et un déclin cognitif plus général, le plus souvent associés à des troubles de l'humeur et du comportement. Les traitements médicamenteux ayant une efficacité assez modeste, il apparaît nécessaire de leur associer une prise en charge non pharmacologique. La méditation de pleine conscience, qui a des effets bénéfiques sur le fonctionnement cognitif et sur l'état émotionnel, semble être une piste intéressante. Cette revue de littérature narrative se propose de recenser les études ayant testé l'efficacité d'une intervention basée sur la pleine conscience auprès de personnes souffrant de la maladie d'Alzheimer ou à risque de développer cette maladie. Il apparaît que ces interventions présentent un intérêt pour réduire les symptômes cognitifs (troubles attentionnels et mnésiques notamment) et émotionnels (affects dépressifs et anxiété en particulier). Cependant, elles nécessitent un certain nombre de modifications pour être adaptées à ce public.

阿尔茨海默病表现为记忆问题和更普遍的认知能力下降,最常见的是伴有情绪和行为障碍。由于药物治疗效果一般,因此需要结合非药物治疗。正念冥想对认知功能和情绪状态具有有益的影响,似乎是一种有趣的方法。本叙述性文献综述旨在列出测试正念干预对阿尔茨海默氏症患者或有患病风险者的有效性的研究。这些干预措施似乎有助于减轻认知症状(尤其是注意力和记忆问题)和情绪症状(尤其是抑郁和焦虑)。然而,如果要使这些干预措施适用于这一人群,还需要对其进行一些修改。
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引用次数: 0
A Good Investment: Expanding Capacity to Care for Older Adults in the Home and Community Care Sector Through Increased Personal Support Worker Wages. 良好的投资:通过提高个人支持工作者的工资,扩大家庭和社区护理部门护理老年人的能力。
IF 1.7 4区 医学 Q3 GERONTOLOGY Pub Date : 2024-06-01 Epub Date: 2023-09-18 DOI: 10.1017/S0714980823000557
Katherine A P Zagrodney, Emily C King, Deborah Simon, Kathryn A Nichol, Sandra M McKay

Most older adults prefer to age in place, which for many will require home and community care (HCC) support. Unfortunately, HCC capacity is insufficient to meet demand due in part to low wages, particularly for personal support workers (PSWs) who provide the majority of paid care. Using Ontario as a case study, this paper estimates the cost and capacity impacts of implementing wage parity between PSWs employed in HCC and institutional long-term care (ILTC). Specifically, we consider the cost of increased HCC PSW wages versus expected savings from avoiding unnecessary ILTC placement for those accommodated by HCC capacity growth. The expected increase in HCC PSW retention would create HCC capacity for approximately 160,000 people, reduce annual health system costs by approximately $7 billion, and provide an 88 per cent return on investment. Updating wage structures to reduce turnover and enable HCC capacity growth is a cost-efficient option for expanding health system capacity.

大多数老年人喜欢居家养老,这对许多老年人来说需要家庭和社区护理(HCC)支持。遗憾的是,家庭和社区护理能力不足以满足需求,部分原因是工资低,特别是提供大部分有偿护理的个人支持工作者(PSW)。本文以安大略省为例,估算了在高龄老人护理中心和机构长期护理中心(ILTC)雇用的个人支持工作者之间实施工资平等的成本和能力影响。具体而言,我们考虑了增加居家护理中心 PSW 工资的成本与因居家护理中心容量增长而避免不必要的 ILTC 安置所带来的预期节省。预计增加的 HCC PSW 保留率将为大约 160,000 人创造 HCC 容量,每年减少大约 70 亿美元的医疗系统成本,并提供 88% 的投资回报。更新工资结构以降低人员流动率并实现 HCC 能力增长,是扩大医疗系统能力的一种具有成本效益的选择。
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引用次数: 0
Age-Friendly Communities: Are they also "Friendly" for Death, Dying, Grief, and Bereavement? 老年友好社区:它们对死亡、濒死、悲伤和丧亲也 "友好 "吗?
IF 1.9 4区 医学 Q3 GERONTOLOGY Pub Date : 2024-06-01 Epub Date: 2023-12-11 DOI: 10.1017/S0714980823000624
Julia Brassolotto, Albert Banerjee

The age-friendly movement aims to ensure that people can live healthy and meaningful lives as they age. It is committed to activity and inclusion, with policies, services, and structures that enable older adults to remain engaged in activities that they value. We suggest that there is further opportunity for communities to increase inclusion and reduce ageism by improving their "death-friendliness". A death-friendly approach could lay the groundwork for a community in which people do not fear getting old or alienate those who have. To this end, we consider the merits of the compassionate communities framework which has emerged out of palliative care and critical public health. Compassionate communities focus on end-of-life planning, bereavement support, and improved understandings about aging, dying, death, loss, and care. The age-friendly and compassionate communities initiatives are complementary in their objectives but have not yet converged in practice. We suggest that they should.

老年友好运动旨在确保人们在步入老年后能够过上健康而有意义的生活。它致力于活动和包容,通过政策、服务和结构使老年人能够继续参与他们所重视的活动。我们认为,社区还有机会通过提高 "死亡友好度 "来增强包容性和减少老龄歧视。对死亡友好的方法可以为社区奠定基础,在这样的社区中,人们不会害怕变老,也不会疏远那些已经变老的人。为此,我们考虑了从姑息治疗和关键公共卫生中产生的富有同情心的社区框架的优点。富有同情心的社区侧重于临终规划、丧亲之痛的支持,以及对衰老、死亡、死亡、丧失和护理的更好理解。老年友好型社区和富有同情心的社区倡议在目标上是互补的,但在实践中尚未融合。我们建议它们应该实现融合。
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引用次数: 0
期刊
Canadian Journal on Aging-Revue Canadienne Du Vieillissement
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