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Coping Mechanisms Used by Male Partners of Women Diagnosed with Cervical Cancer: An Explorative Qualitative Study at Ocean Road Cancer Institute in Dar es Salaam, Tanzania 确诊宫颈癌妇女的男性伴侣采用的应对机制:坦桑尼亚达累斯萨拉姆海洋路癌症研究所的定性探索研究
IF 2.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-05-03 DOI: 10.1155/2024/8879829
Emanueli Amosi Msengi, Emmanuel Z. Chona, Rashid A. Gosse, Joel S. Ambikile

Cervical cancer has a significant impact on the lives of caregivers of cervical cancer patients, including male partners. Disturbances in physical, psychological, sexual, spiritual, and socioeconomical aspects of life are reported by male partners of cervical cancer patients. To reduce the impact associated with cervical cancer, adaptive coping mechanisms are needed. In this regard, little is known about the coping mechanisms used by male partners of women diagnosed with cervical cancer in sub-Saharan African countries. Therefore, this study aimed to explore the coping mechanisms used by male partners of women diagnosed with cervical cancer at the Ocean Road Cancer Institute in Dar es Salaam, Tanzania. A descriptive cross-sectional study design with a qualitative approach was employed to explore coping strategies used by male partners of cervical cancer patients between December 2022 and March 2023. Participants were selected using a purposeful sampling technique guided by the principles of saturation. In-depth interviews with thirteen male partners of cervical cancer patients were carried out, and the interviews were audio-recorded and transcribed verbatim. The data were then analyzed using a thematic analysis approach. Four themes highlighting coping mechanisms used by male partners of cervical patients were identified after data analysis. They include religious coping, emotional expression and regulation strategies, support-seeking strategies, and problem-solving strategies. Male partners of cervical cancer patients used various mechanisms to cope with the stressful situations they encountered. While most of the coping mechanisms used by male partners of cervical cancer patients were adaptive, some were maladaptive. Therefore, regular assessment among this population needs to be done to identify maladaptive coping and provide relevant support.

宫颈癌对宫颈癌患者的照顾者(包括男性伴侣)的生活产生了重大影响。据报告,宫颈癌患者的男性伴侣在生理、心理、性、精神和社会经济生活等方面都受到了干扰。为了减少与宫颈癌相关的影响,需要有适应性的应对机制。在这方面,撒哈拉以南非洲国家对确诊宫颈癌妇女的男性伴侣所使用的应对机制知之甚少。因此,本研究旨在探讨坦桑尼亚达累斯萨拉姆海洋路癌症研究所确诊为宫颈癌妇女的男性伴侣所使用的应对机制。本研究采用了描述性横断面研究设计和定性方法,以探讨宫颈癌患者的男性伴侣在 2022 年 12 月至 2023 年 3 月期间所使用的应对策略。在饱和原则的指导下,采用有目的的抽样技术选取参与者。研究人员对 13 名宫颈癌患者的男性伴侣进行了深入访谈,并对访谈内容进行了录音和逐字记录。然后采用主题分析法对数据进行了分析。经过数据分析,确定了宫颈癌患者男性伴侣所使用的应对机制的四个主题。它们包括宗教应对、情绪表达和调节策略、寻求支持策略和解决问题策略。宫颈癌患者的男性伴侣使用了各种机制来应对他们所遇到的压力情况。虽然宫颈癌患者的男性伴侣所使用的大多数应对机制都是适应性的,但也有一些是不适应性的。因此,需要对这一人群进行定期评估,以识别适应不良的应对方式并提供相关支持。
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引用次数: 0
Community Engagement in Health Promotion: Results from a Realist Multiple Case Study 社区参与健康促进:现实主义多重案例研究的结果
IF 2.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-04-29 DOI: 10.1155/2024/2448483
Lette Hogeling, Maria Koelen, Lenneke Vaandrager

Community engagement (CE) has long been endorsed by policy makers and health practitioners. However, uncertainties remain about the workings and outcomes of CE. This study aims to provide in-depth insights into them. In a multiple case study, we investigated three participatory health promotion projects for families in vulnerable situations in the Netherlands. We adopted a realist approach combined with a theory of change (ToC) model. We then analysed the qualitative data for context–mechanism–outcome (CMO) configurations to refine this ToC. Results show that CE can strengthen social networks, empower families, and increase perceived health. However, specific contexts in combination with CE project approaches may or may not trigger positive responses. Participants may feel that they matter when asked to actively contribute to a project, which in turn can enhance their self-confidence. In another context, we found that families were overwhelmed by the responsibilities given to them in the project, leading to feelings of stress and withdrawal from the project. We present a list of CMO configurations and refine the ToC accordingly. Our main conclusion is that flexibility is key when CE is implemented in health promotion. Also, our findings question physical health outcomes as a realistic ambition for CE projects with groups in vulnerable situations.

长期以来,社区参与(CE)一直得到政策制定者和卫生工作者的认可。然而,社区参与的运作和结果仍存在不确定性。本研究旨在深入探讨这些问题。在一项多案例研究中,我们调查了荷兰三个针对弱势家庭的参与式健康促进项目。我们采用了现实主义方法,并结合了变革理论(ToC)模型。然后,我们对定性数据进行了背景-机制-结果(CMO)配置分析,以完善这一 ToC。结果表明,社区参与可以加强社会网络、增强家庭能力并提高健康认知度。然而,特定的环境与 CE 项目方法相结合,可能会也可能不会引发积极的反应。当要求参与者积极为项目做出贡献时,他们可能会觉得自己很重要,这反过来又会增强他们的自信心。而在另一种情况下,我们发现家庭被项目赋予的责任压得喘不过气来,从而产生压力感并退出项目。我们列出了 CMO 配置清单,并据此完善了 ToC。我们的主要结论是,在健康促进项目中实施社区执行项目时,灵活性是关键。此外,我们的研究结果还质疑,身体健康结果是否是针对弱势群体的 CE 项目的现实目标。
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引用次数: 0
Understanding What Older People Value in the Design of a Community-Based Healthy Ageing Program, a Qualitative Study 了解老年人在设计社区健康老龄化计划中的价值,一项定性研究
IF 2.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-04-29 DOI: 10.1155/2024/6438553
Kristy Robson, Melissa T. Nott, Tana Cuming, Kylie Murphy, Michael Curtin, Rodney Pope

Older people who are wanting to support their own ability to age well may benefit from attending community-based group programs. However, many of these programs are designed and implemented by health professionals without direct input from older people, which may limit the opportunity to ensure such programs are authentically meeting the needs of this population group. A qualitative approach, using an interpretative phenomenological analysis (IPA), was undertaken with seven (six female and one male) participants, aged between 62 and 80 years to explore the experiences of participating in a pilot Ageing Well Program. Interviews were transcribed and analysed according to IPA principles. Three themes emerged from the analysis of the interview data: (1) The value of focusing on different aspects of ageing; (2) Learning new knowledge; and (3) Transferring skills to everyday life. Participants in the pilot of the Ageing Well Program highlighted that those aspects of the Program, such as the focus on adding value through targeting multiple aspects of ageing, as well as developing strategies to successfully learn, apply, and translate new knowledge into their everyday lives, were beneficial and supported engagement. However, future programs would benefit from the inclusion of clear and coherent written material to provide an aide in remembering the strategies and new information learnt during the Program. Findings support the importance and value of engaging with older people to assist with the development of community-based programs that are authentically designed to align with the expectations of older people, through a process of quality improvement.

老年人如果希望通过参加社区团体活动来提高自己的养老能力,可能会从中受益。然而,许多此类项目都是由卫生专业人员设计和实施的,没有老年人的直接参与,这可能会限制确保此类项目真正满足这一人群需求的机会。本研究采用解释现象学分析(IPA)的定性方法,对七位(六位女性和一位男性)年龄在 62 岁至 80 岁之间的参与者进行了访谈,以探讨他们参与 "老有所为 "试点计划的经历。根据 IPA 原则对访谈内容进行了转录和分析。通过对访谈资料的分析,我们发现了三个主题:(1)关注老龄化不同方面的价值;(2)学习新知识;(3)将技能运用到日常生活中。参与 "老有所为 "计划试点项目的人员强调,该计划的这些方面,例如通过关注老龄化的多个方面来增加价值,以及制定成功学习、应用新知识并将其转化到日常生活中的策略,都是有益的,有助于他们参与其中。不过,如果在未来的计划中加入清晰连贯的书面材料,以帮助记忆计划中的策略和学到的新信息,将对计划大有裨益。研究结果证明了与老年人接触的重要性和价值,通过质量改进过程,协助开发真正符合老年人期望的社区计划。
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引用次数: 0
Insights from Health and Social Care Professionals Supporting Children and Young Adults with a Parent Diagnosed with Dementia: An Interview Study 为父母被诊断患有痴呆症的儿童和青少年提供支持的医疗和社会护理专业人员的见解:访谈研究
IF 2.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-04-24 DOI: 10.1155/2024/8886299
Marie Tyrrell, Andreas Jönsson, Ulrika Södergren, Ragnhild Hedman, Jonas Sandberg, Åsa Gransjön Craftman

Dementia is recognised as one of the major global health and social care challenges of present times. When the onset of dementia occurs in midlife, there is an increased possibility that there are children and young adults involved who are dependent on the parent concerned. The aim of the study was to describe health and social care professionals’ experiences of identifying and supporting children and young adults with a parent with dementia. A qualitative descriptive approach was carried out with individual interviews of health and social care professionals, using a semistructured interview guide. Thirteen participants in rural and urban areas in Sweden were interviewed. The overarching theme, advocating a forgotten group with three categories were identified. They combine and reflect health and social care professionals’ experiences of identifying and supporting children and young adults with a parent with dementia. Health and social care professionals who encountered children and young adults with a parent with dementia described how they were not sufficiently trained in supporting this group and identified a general shortage of available appropriate support services. The children and young adults were also described as a forgotten and overlooked group in need of affirmation and support in a more systematic way.

痴呆症被认为是当今全球健康和社会护理方面的主要挑战之一。当痴呆症在中年发病时,子女和年轻人依赖父母的可能性就会增加。本研究旨在描述医疗和社会护理专业人员在识别和支持父母一方患有痴呆症的儿童和年轻成人方面的经验。研究采用定性描述的方法,使用半结构化访谈指南对医疗和社会护理专业人员进行个别访谈。对瑞典城乡地区的 13 名参与者进行了访谈。总的主题是倡导被遗忘的群体,并确定了三个类别。它们结合并反映了医疗和社会护理专业人员在识别和支持父母一方患有痴呆症的儿童和青少年方面的经验。遇到父母一方患有痴呆症的儿童和青少年的医疗和社会护理专业人员描述了他们如何在支持这一群体方面没有得到足够的培训,并指出可用的适当支持服务普遍不足。这些儿童和青少年也被描述为一个被遗忘和忽视的群体,他们需要得到更系统的肯定和支持。
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引用次数: 0
Enhancing Quality of Life in Pediatric Palliative Care: Insights, Challenges, and Future Directions—A Systematic Review 提高儿科姑息治疗的生活质量:见解、挑战和未来方向--系统综述
IF 2.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-04-23 DOI: 10.1155/2024/6532492
Laia Riera-Negre, Maria Rosa Rosselló, Sebastià Verger

Pediatric palliative care (PPC) programs are essential in encompassing not only the affected children but also their family system and the healthcare and educational professionals involved. Despite the field’s significance, there is a notable scarcity in current literature, which underscores the pressing need for further research into the attributes of PPC programs that effectively enhance the quality of life (QoL) for pediatric patients. This study particularly emphasizes the pivotal role of schools as key community resources within this framework, highlighting the crucial aspect of educational integration in PPC. Through a systematic review of relevant literature and applying stringent inclusion and exclusion criteria, we identified pertinent studies across various databases. Of these, 30 articles met our criteria and were subject to a thorough qualitative analysis. Our findings indicate that while PPC programs may vary in their methodologies, they consistently share certain core elements that significantly boost the QoL for pediatric patients. These include a holistic approach that addresses the physical, emotional, psychosocial, and spiritual facets of care; encourages the active involvement of the patient in decision-making processes; and ensures timely access to PPC services. Importantly, our analysis identified the critical role of educational settings in enhancing QoL, shedding light on the vital need for educational inclusion and the integration of schools into the broader spectrum of PPC services. The distinct individual perceptions of QoL and the varied international practices in PPC underscore the imperative to tailor successful strategies to specific local contexts, thereby fostering the global well-being of pediatric palliative care patients.

儿科姑息关怀(PPC)项目不仅对患儿,而且对其家庭系统以及相关的医疗和教育专业人员都至关重要。尽管该领域意义重大,但目前的文献资料却明显不足,这突出表明迫切需要进一步研究有效提高儿科患者生活质量(QoL)的姑息关怀项目的特性。本研究特别强调了学校作为关键社区资源在这一框架中的关键作用,突出了教育整合在儿童疾病防治中的重要性。通过对相关文献进行系统回顾,并采用严格的纳入和排除标准,我们在各种数据库中找到了相关研究。其中有 30 篇文章符合我们的标准,并接受了全面的定性分析。我们的研究结果表明,虽然儿童疾病预防和治疗项目的方法可能各不相同,但它们都有一些共同的核心要素,能够显著提高儿科患者的生活质量。这些要素包括:采用整体方法,解决身体、情感、社会心理和精神方面的护理问题;鼓励患者积极参与决策过程;以及确保及时获得 PPC 服务。重要的是,我们的分析确定了教育环境在提高 QoL 方面的关键作用,揭示了教育包容和将学校纳入更广泛的 PPC 服务的迫切需要。个人对 QoL 的不同看法以及国际上在姑息治疗方面的不同做法都强调了根据当地具体情况制定成功策略的必要性,从而促进儿科姑息治疗患者的全球福祉。
{"title":"Enhancing Quality of Life in Pediatric Palliative Care: Insights, Challenges, and Future Directions—A Systematic Review","authors":"Laia Riera-Negre,&nbsp;Maria Rosa Rosselló,&nbsp;Sebastià Verger","doi":"10.1155/2024/6532492","DOIUrl":"10.1155/2024/6532492","url":null,"abstract":"<div>\u0000 <p>Pediatric palliative care (PPC) programs are essential in encompassing not only the affected children but also their family system and the healthcare and educational professionals involved. Despite the field’s significance, there is a notable scarcity in current literature, which underscores the pressing need for further research into the attributes of PPC programs that effectively enhance the quality of life (QoL) for pediatric patients. This study particularly emphasizes the pivotal role of schools as key community resources within this framework, highlighting the crucial aspect of educational integration in PPC. Through a systematic review of relevant literature and applying stringent inclusion and exclusion criteria, we identified pertinent studies across various databases. Of these, 30 articles met our criteria and were subject to a thorough qualitative analysis. Our findings indicate that while PPC programs may vary in their methodologies, they consistently share certain core elements that significantly boost the QoL for pediatric patients. These include a holistic approach that addresses the physical, emotional, psychosocial, and spiritual facets of care; encourages the active involvement of the patient in decision-making processes; and ensures timely access to PPC services. Importantly, our analysis identified the critical role of educational settings in enhancing QoL, shedding light on the vital need for educational inclusion and the integration of schools into the broader spectrum of PPC services. The distinct individual perceptions of QoL and the varied international practices in PPC underscore the imperative to tailor successful strategies to specific local contexts, thereby fostering the global well-being of pediatric palliative care patients.</p>\u0000 </div>","PeriodicalId":48195,"journal":{"name":"Health & Social Care in the Community","volume":"2024 1","pages":""},"PeriodicalIF":2.4,"publicationDate":"2024-04-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1155/2024/6532492","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140668643","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Public Attitudes for Quality and Funding of Long-Term Care: Findings from an Australian Survey 公众对长期护理质量和资金的态度:澳大利亚调查的结果
IF 2.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-04-20 DOI: 10.1155/2024/5798242
Rachel Milte, Julie Ratcliffe, Sheela Kumaran, Claire Hutchinson, Gang Chen, Billingsley Kaambwa, Jyoti Khadka

There has been growing interest in exploring factors that influence the success or otherwise of welfare policies in democratic countries, such as the interrelationships between the proposed policy and the context it will be introduced into, such as the sociodemographic characteristics of the population and the population’s previous experience with welfare policies. However, there has been little exploration of factors that could influence general population support for long-term care for older people. The aim of this study was to investigate the general population’s attitudes for determinants of high-quality aged care and different mechanisms for funding and any impact of individual characteristics on these. A representative sample of the Australian general population aged 18 years and over (N = 10,315, 52% female, 22% aged 65 years and over) drawn via quota sampling participated in the survey online. Participants were asked to rate the importance of a list of 10 determinants of quality care and their support for four models of funding, both using a five-point Likert scale. We identified consistently high expectations for long-term care services across the general population, especially among older people, females, those with a family member in care, and those living in rural or regional areas. In terms of how governments practically fund a high-quality long-term care system, we also identified broad support among the general population for both payment of a co-contribution towards the cost of care by older people using services and increased government funding for the system. Over 40% of participants said they would be willing to pay additional tax to improve access and quality of aged care services. While often neglected by governments in the past who assumed voter apathy on the topic, by comparison, our findings indicate that there is currently a strong appetite among the general population for improvements to the quality of care provided and that they are willing to consider changes to the funding model.

人们越来越有兴趣探讨影响民主国家福利政策成功与否的因素,如拟议政策与将引入政策的环境之间的相互关系,如人口的社会人口特征和人口以往在福利政策方面的经验。然而,对于可能影响普通民众对老年人长期护理的支持的因素却鲜有探讨。本研究旨在调查普通民众对高质量老年护理的决定因素和不同资助机制的态度,以及个人特征对这些因素的影响。通过配额抽样法从澳大利亚 18 岁及以上的普通人群中抽取了一个具有代表性的样本(样本数 = 10,315 人,52% 为女性,22% 为 65 岁及以上的老年人)参与了在线调查。调查要求参与者对高质量护理的 10 项决定因素的重要性以及对四种资助模式的支持程度进行评分,评分均采用李克特五点量表。我们发现,普通人群对长期护理服务的期望值一直很高,尤其是老年人、女性、有家人需要护理的人群以及居住在农村或地区的人群。在政府如何为高质量的长期护理系统提供实际资金方面,我们也发现普通民众普遍支持由使用服务的老年人共同承担护理费用,以及增加政府对该系统的资金投入。超过 40% 的参与者表示,他们愿意支付额外的税款来改善老年护理服务的可及性和质量。过去,政府往往认为选民对这一问题漠不关心,因而忽视了这一问题,但相比之下,我们的调查结果表明,目前普通民众对改善护理质量有着强烈的愿望,并且愿意考虑改变供资模式。
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引用次数: 0
The Impact of Positive Self-Perceptions of Aging on Subjective Well-Being through the Mediation of Psychological Resilience among Community-Dwelling Older Adults during COVID-19 in Taiwan 在 COVID-19 期间,台湾社区居住的老年人通过心理复原力的中介作用,对老龄化的积极自我认知对主观幸福感的影响
IF 2.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-04-18 DOI: 10.1155/2024/4755146
Jia-Jen Chen, Li-Fan Liu, Jeanne Laraine Shea

During the COVID-19 pandemic, the well-being of older adults has been highlighted as a significant public health concern. In this study, we investigated the role of psychological resilience in mediating the relationship between positive self-perceptions of aging (SPA) and the subjective well-being (SWB) of community-dwelling older adults in Taiwan during the pandemic. We collected data through face-to-face interviews conducted from October 2021 to February 2022, involving 1,095 participants aged 50 years or above residing in a southern city in Taiwan. More than half of the study participants were female, aged 65 or older, and had less than a high school education. More than two thirds were married and/or living with partners. More than a third had two or more noncommunicable diseases. We calculated scores for SWB, positive SPA, and psychological resilience and examined correlations among the outcome and predictor variables. Our findings indicated that higher positive SPA was significantly associated with better SWB among community-dwelling older adults in Taiwan and that this association was mediated by psychological resilience. Specifically, after controlling for covariates, structural equation modeling (SEM) analysis revealed a significant main effect of positive SPA on SWB (b = 0.412, β = 0187, and p  <  0.001), while bootstrap mediation analysis showed a statistically significant indirect mediating effect from positive SPA on SWB via psychological resilience (0.597, 95% bootstrap CIs = [0.445, 0.749], and p  <  0.001). These findings highlight the potential importance of cultivating positive self-perceptions of aging and implementing resilience-centered interventions to promote well-being among Chinese older adults in the community.

在 COVID-19 大流行期间,老年人的幸福感已被强调为一个重要的公共卫生问题。在本研究中,我们探讨了心理复原力在大流行期间调解台湾社区老年人对衰老的积极自我认知(SPA)与主观幸福感(SWB)之间关系的作用。我们在 2021 年 10 月至 2022 年 2 月期间进行了面对面访谈,收集了 1095 名居住在台湾南部城市、年龄在 50 岁或以上的参与者的数据。超过半数的研究参与者为女性,年龄在 65 岁或以上,教育程度在高中以下。三分之二以上已婚和/或与伴侣同住。超过三分之一的人患有两种或两种以上的非传染性疾病。我们计算了 SWB、积极 SPA 和心理复原力的得分,并研究了结果变量和预测变量之间的相关性。我们的研究结果表明,在台湾社区居住的老年人中,较高的积极 SPA 与较好的 SWB 显著相关,并且这种关联是由心理复原力中介的。具体来说,在控制了协变量后,结构方程建模(SEM)分析表明,积极的SPA对SWB有显著的主效应(b = 0.412,β = 0187,p < 0.001),而自举中介分析表明,积极的SPA通过心理复原力对SWB有统计学上显著的间接中介效应(0.597,95%自举CIs = [0.445,0.749],p < 0.001)。这些发现凸显了培养积极的老龄化自我认知和实施以抗逆力为中心的干预措施对于促进中国社区老年人福祉的潜在重要性。
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引用次数: 0
Service Users’ and Providers’ Experiences and Perceptions of Mental Health Accommodation Services: A Rapid Qualitative Synthesis of International Evidence 服务使用者和提供者对心理健康住宿服务的体验和看法:国际证据的快速定性综述
IF 2.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-04-13 DOI: 10.1155/2024/7971386
Samantha Mhlanga, Frances Griffiths, Campion Zharima, Lesley Robertson, Saira Abdulla, Jane Goudge

Background. There is a high prevalence of homeless people with psychotic disorders and supported housing is often required. However, there is little evidence about supported housing services, especially in low-middle income countries. This rapid review synthesizes evidence about the experiences of users and providers of community-based accommodation services for people living with serious mental illness internationally to understand priorities for policy and practice. Methods. PubMed, PsycINFO, Google Scholar, and reference lists were searched to identify 1344 studies. The inclusion criteria specified qualitative studies about users’ and/or providers’ views of the accommodation services for adults aged 18+ years with serious mental illness. Title, abstract, and full-text screening were conducted in duplicate, and quality appraisal was conducted using the standard for reporting qualitative research tool. Data extraction was conducted using both Excel and Word documents, and we used thematic analysis to report findings. Results. Only 43 studies were identified for inclusion. Service users’ and providers’ experiences of accommodation services from high income countries and low-middle income countries were similar. Both the service providers and users appreciated housing, and service providers mentioned it was not a sufficient step towards independent living. Shortage of resources in low-middle income countries made it challenging for some service providers to provide care because they had to choose between buying medicine or food. While service users needed greater availability of service providers, providers were at risk of burnout. Although some service providers were trained to respond to stigmatizing events, some users continued to experience stigma from their family members, society, and service providers. Conclusions. People living with serious mental illness and service providers value the housing provision but globally their experience of this provision is relatively poor compared to mainstream society, suggesting people living with serious mental illness remain disadvantaged. Further research should explore low-cost housing options that will provide quality person-centered care for people living with serious mental illness.

背景。精神病患者中无家可归者的比例很高,他们通常需要辅助住房。然而,有关辅助住房服务的证据却很少,尤其是在中低收入国家。本快速综述总结了国际上重性精神病患者社区住宿服务的使用者和提供者的经验,以了解政策和实践的重点。方法对 PubMed、PsycINFO、Google Scholar 和参考文献列表进行了检索,以确定 1344 项研究。纳入标准规定了有关用户和/或提供者对 18 岁以上成年重性精神病患者住宿服务看法的定性研究。标题、摘要和全文筛选一式两份,并使用定性研究报告标准工具进行质量评估。我们使用 Excel 和 Word 文档进行数据提取,并使用主题分析法报告研究结果。结果仅有 43 项研究被确定为研究对象。来自高收入国家和中低收入国家的服务使用者和提供者对住宿服务的体验相似。服务提供者和使用者都对住房表示赞赏,而服务提供者则提到,住房并不是实现独立生活的充分步骤。在中低收入国家,由于资源短缺,一些服务提供者不得不在购买药品或食品之间做出选择,这给他们提供护理带来了挑战。虽然服务使用者需要更多的服务提供者,但服务提供者也面临职业倦怠的风险。尽管一些服务提供者接受过应对污名化事件的培训,但一些使用者仍然会受到来自家庭成员、社会和服务提供者的污名化。结论重性精神病患者和服务提供者都很重视住房的提供,但从全球范围来看,与主流社会相比,他们对住房提供的体验相对较差,这表明重性精神病患者仍然处于弱势地位。进一步的研究应该探索低成本住房方案,为重性精神病患者提供以人为本的优质护理服务。
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引用次数: 0
A Scoping Review of Income Support Programs Offered to Older Adults Living in South Asian Countries between 2000 and 2021 对 2000 年至 2021 年期间南亚国家为老年人提供的收入支持计划的范围审查
IF 2.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-04-12 DOI: 10.1155/2024/1711756
Eti Rajwar, Prachi Pundir, Sanjana Challa, Alyssa Maria Prince, Shradha S. Parsekar, Tobias Vogt

Income support programs (ISPs) are important social policy measures to reduce the risk of poverty among older adults. Over the years, developing countries including South Asian countries have introduced various ISPs to support the older population. This scoping review will provide information on ISPs for older adults in South Asia and will map the evidence available on the impact of these programs. This scoping review uses the Joanna Briggs Institute’s (JBI) methodology. Older adults living in South Asia were included, and ISPs were considered as the “concept.” Eight electronic databases and organizational/governmental websites were searched for English language publications from January 2000 to May 2021. Four authors independently screened and extracted the data and analyzed it by descriptive statistics. A total of 115 studies provided information on ISPs for older adults and 25 on the impact of these programs. The identified studies covered all types of ISPs; however, government-sponsored or pillar 0 (ISP classification) programs were the most common. They also covered a vast spectrum of all types of study designs. The most common schemes are social pensions that work towards sustainable development goals (Goal 1.3) of social protection for all. Future research should focus on studying the impact of ISPs and expanding the ISPs for older adults in low-coverage countries.

收入支持计划(ISPs)是降低老年人贫困风险的重要社会政策措施。多年来,包括南亚国家在内的发展中国家引入了各种 ISP,为老年人口提供支持。本范围界定综述将提供有关南亚老年人综合服务计划的信息,并将对这些计划的影响进行证据分析。本范围界定审查采用乔安娜-布里格斯研究所(JBI)的方法。研究对象包括生活在南亚的老年人,ISP 被视为 "概念"。我们在八个电子数据库和组织/政府网站上搜索了 2000 年 1 月至 2021 年 5 月期间的英文出版物。四位作者独立筛选和提取数据,并通过描述性统计进行分析。共有 115 项研究提供了有关老年人 ISP 的信息,25 项研究提供了有关这些计划影响的信息。已确定的研究涵盖了所有类型的综合服务计划;但是,政府资助或支柱 0(综合服务计划分类)计划最为常见。这些研究还涵盖了各种类型的研究设计。最常见的计划是社会养老金,这些计划致力于实现人人享有社会保护的可持续发展目标(目标 1.3)。未来的研究应侧重于研究综合服务计划的影响,并扩大低覆盖率国家老年人的综合服务计划。
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引用次数: 0
Involvement of Lay Assessors in the Inspection and Regulation of Public Services: A Systematic Review 非专业评审员参与公共服务的检查和监管:系统回顾
IF 2.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-04-12 DOI: 10.1155/2024/1282674
Deborah Chinn, Katy Brickley, Andrew Power

Public services have increasingly sought to use lay assessors (often known as “experts by experience”) as members of inspection teams in health, social care, and education settings. This involvement has been credited as giving more influence to users over how services ought to run. Yet, little is known about the process or outcome of engaging with lay assessors. We conducted a systematic review to understand the benefits and challenges of involving lay assessors in the inspection of public services. Following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines, we searched the literature in English using five bibliographic databases with the date of publication limited to 2000 onward. Across 27 eligible studies, results suggest that including diverse views and perspectives is a strength, yet little consideration is given to issues of “representativeness” of lay assessors or the power differentials within mixed groups that can shape which perspectives gain dominance. Despite a frequent rehearsal of the many benefits of involving lay assessors in inspections as a potential force to drive up the quality of inspections and inspected services, the impact of including lay assessors in inspections in terms of improving services was hard to determine. When designing training for lay assessors, services needed to carefully consider the tension between maintaining the assessor’s “naive eye” versus becoming “professionalised.” It was also apparent that expectations are often not clearly shared over how lay perspectives could be included in final inspection reports, thus risking disengagement. Involving lay assessors is still a fairly novel, yet rich and meaningful way to improve services, yet a lack of clear expectations, and typical exclusion of lay assessors in setting standards for regulation, can still act as barriers to meaningful involvement, preventing lay views from being heard and acted upon.

公共服务部门越来越多地使用非专业评估员(通常被称为 "经验专家")作为卫生、社会保健和教育机构检查小组的成员。这种参与被认为能让用户对服务的运行方式产生更大的影响。然而,人们对非专业评审员的参与过程或结果知之甚少。我们进行了一项系统性综述,以了解让非专业评审员参与公共服务检查的益处和挑战。根据系统综述和元分析首选报告项目(PRISMA)指南,我们使用五个文献数据库检索了英文文献,文献发表日期仅限于 2000 年以后。在 27 项符合条件的研究中,结果表明,纳入不同的观点和视角是一个优势,但却很少考虑到非专业评估者的 "代表性 "问题或混合群体中的权力差异问题,而这些问题可能会影响哪些观点占据主导地位。尽管经常反复强调让非专业评审员参与检查有很多好处,是提高检查和被检查服务质量的潜在力量,但很难确定让非专业评审员参与检查对改善服务的影响。在为非专业评审员设计培训时,服务部门需要仔细考虑保持评审员 "天真的眼光 "与变得 "专业化 "之间的矛盾。同样明显的是,对于如何将非专业人员的观点纳入最终检查报告,往往没有明确的共同期望,因此存在脱离的风险。让非专业评审员参与进来仍然是一种相当新颖、丰富和有意义的改善服务的方式,但缺乏明确的期望,以及在制定监管标准时通常将非专业评审员排除在外,仍然会成为有意义参与的障碍,阻碍非专业评审员的意见被听取和采纳。
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Health & Social Care in the Community
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