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Experiences of Children and Young People with a Disability in Out-of-Home Care in Australia: A Scoping Review 澳大利亚残疾儿童和青少年在家庭外托管机构的经历:范围审查
IF 2.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-05-23 DOI: 10.1155/2024/3456823
Kathomi Gatwiri, Lynne McPherson, Samara James

Children with disabilities in out-of-home care (OOHC) are an overrepresented group in Australia, yet little is known about their circumstances, needs, and experiences within OOHC. Utilising a systematic scoping review methodology, we explored the state of knowledge about the experiences of children and young people with a disability in out-of-home care in Australia. Findings in this review speak to the unmet needs and challanges that children with disabilities face in child welfare systems and how systemic failures can lead to institutional pipelines of further maltreatment, adversity, and marginalisation. The review discusses the key themes in the literature, including (i) compounding trauma and placement failures, (ii) concerns of safety, stability, and neglect, (iii) limited control and choice, and (iv) disability and multisystem involvement.

在澳大利亚,接受家庭外托儿服务(OOHC)的残疾儿童人数过多,但人们对他们在家庭外托儿服务中的情况、需求和经历却知之甚少。利用系统性的范围界定审查方法,我们探讨了有关澳大利亚接受家庭外照料的残疾儿童和青少年的经历的知识状况。本综述的研究结果说明了残疾儿童在儿童福利系统中未得到满足的需求和面临的挑战,以及系统性失误如何导致进一步的虐待、逆境和边缘化。综述讨论了文献中的关键主题,包括:(i) 复合创伤和安置失败,(ii) 安全、稳定和忽视问题,(iii) 有限的控制和选择,以及 (iv) 残疾和多系统参与。
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引用次数: 0
Challenges, Coping, and Personal Strengths during COVID-19: Lessons from the Experiences of at-Risk Young Adults in Israel COVID-19 期间的挑战、应对和个人优势:以色列高危青少年的经验教训
IF 2.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-05-22 DOI: 10.1155/2024/6699610
Yafit Sulimani-Aidan, Ilay Kovach

The COVID-19 pandemic significantly endangers the development of at-risk young adults across various life domains, with potential enduring consequences. Despite prior reporting on the pandemic’s adverse effects on these individuals, there is a lack of the empirical literature regarding their resilience. Building upon the stress process model (Pearlin, 1978), we explored the challenges of 20 at-risk young adults (aged 18–25 years) and the strategies and resources they employed to cope with these challenges during this period. Thematic analysis revealed that these young adults struggled with worsened family relationships, loneliness, mental health issues, and setbacks in their quest for independence and autonomy. However, resources and character strengths that facilitated coping strategies during this period also emerged, specifically the motivation to become a role model within their family, personal abilities, and the use of formal and informal support. Theoretical and practical implications are discussed.

COVID-19 大流行严重危害了处于危险中的年轻成年人在各个生活领域的发展,并可能造成持久的后果。尽管之前有报道称大流行病对这些人产生了不利影响,但关于他们的恢复能力的实证文献还很缺乏。在压力过程模型(Pearlin,1978 年)的基础上,我们探讨了 20 名高风险青年(18-25 岁)所面临的挑战,以及他们在此期间应对这些挑战的策略和资源。主题分析表明,这些年轻人在家庭关系恶化、孤独、心理健康问题以及追求独立和自主的过程中遭遇挫折等问题中挣扎。然而,在这一时期,也出现了有助于采取应对策略的资源和性格优势,特别是在家庭中成为榜样的动机、个人能力以及利用正式和非正式的支持。本文讨论了其理论和实践意义。
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引用次数: 0
Let Us Keep the Emergency Department Safe: National Disability Insurance Scheme Supports Workers’ Experiences When Supporting People with Psychosocial Disability in the Emergency Department 让我们确保急诊科的安全:国家残疾保险计划支持工作者在急诊科为社会心理残疾者提供支持时的经历
IF 2.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-05-22 DOI: 10.1155/2024/4643566
Heather McIntyre, Mark Loughhead, Laura Hayes, Caroline Allen, Dean Barton-Smith, Brooke Bickley, Louis Vega, Jewels Smith, Ursula Wharton, Nicholas Procter

Internationally, community healthcare is provided by personal health budgets or personalised schemes as part of a consumer-directed care emphasis. Although the introduction of a personalised scheme in Australia has improved the lives of many, people with psychosocial disability (PSD) and their families have experienced many challenges with service integration. Six focus groups with 17 National Disability Insurance Scheme (NDIS) support workers were conducted between June and November 2022. Participants were asked semistructured questions about their engagement with emergency department (ED) clinicians when presenting with a person with PSD and NDIS plan. They were also asked how they contribute to service integration to improve communication practices between the two services. A qualitative, descriptive thematic analysis approach was used. Results indicate there is a need for improved service integration pathways between the ED and NDIS services. The thematic analyses identified five main themes: the ED is harmful and not safe, but nowhere else to go; make the ED safe; further training for ED staff; improving communication across services; and alternatives to the ED. This study reports NDIS support worker’s experience when supporting a person they are caring for in the ED. NDIS support workers have an understanding of the needs of the people they care for;their wisdom can contribute greatly to ED clinical responses in crisis care. Recommendations are offered to assist with service integration between the two systems.

在国际上,社区医疗保健是通过个人医疗预算或个性化计划来提供的,这也是以消费者为导向的护理重点的一部分。虽然澳大利亚推出的个性化计划改善了许多人的生活,但社会心理残疾(PSD)患者及其家人在服务整合方面也遇到了许多挑战。2022 年 6 月至 11 月期间,我们与 17 名国家伤残保险计划(NDIS)支持人员进行了六次焦点小组讨论。我们向参与者提出了一些半结构化问题,内容涉及他们与急诊科(ED)临床医生在接诊 PSD 患者和 NDIS 计划时的接触情况。他们还被问及如何促进服务整合,以改善两种服务之间的沟通方式。研究采用了定性、描述性主题分析方法。结果表明,有必要改进 ED 和 NDIS 服务之间的服务整合途径。主题分析确定了五大主题:急诊室既有害又不安全,但又无处可去;确保急诊室的安全;进一步培训急诊室工作人员;改善各服务部门之间的沟通;以及急诊室的替代方案。本研究报告介绍了 NDIS 支持人员在 ED 中为其照顾的人提供支持时的经验。NDIS 辅助人员了解他们所照顾的人的需求;他们的智慧可以极大地促进急诊室在危机护理方面的临床应对措施。本文提出了一些建议,以帮助两个系统之间的服务整合。
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引用次数: 0
Managing the Last Move: Older People’s Practical, Relational, and Emotional Work throughout the Transition from Home to a Nursing Home 管理最后一次搬家:老年人从家庭到养老院过渡期间的实际、关系和情感工作
IF 2.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-05-21 DOI: 10.1155/2024/6389133
Linda Arvidsson, Åsa Alftberg, Tove Harnett

Moving into a nursing home is a significant transition for older people which can be emotional and stressful. The literature on the decision to move and subsequent residential stress focuses on the time after admission; however, there is less understanding of older people’s management of the process. To fully understand and possibly reduce negative consequences and health-related risks, the aim of this article is to explore how older people manage the transition from home to nursing home. The study is based on 21 longitudinal interviews with seven older people during the process of moving. Following Dorothy Smith’s theory of work, the analysis finds three types of work—practical, relational, and emotional—that older people engage in during the transition process. The results highlight the importance of considering the entire transition process, not only experiences before or after, if we are to reduce the negative, stress-related consequences of relocations of this kind. The findings have practical implications for professionals in health and social care and point to the need to develop practical, relational, and emotional support for older people throughout the transition process.

对于老年人来说,入住养老院是一个重要的过渡,可能会给他们带来情绪和压力。有关搬家决定和随后的居住压力的文献主要集中在入院后的时间,但对老年人如何处理这一过程的了解较少。为了充分了解并尽可能减少负面影响和与健康相关的风险,本文旨在探讨老年人如何处理从家庭到养老院的过渡。本研究基于在搬家过程中对七位老年人进行的 21 次纵向访谈。根据多萝西-史密斯(Dorothy Smith)的工作理论,分析发现了老年人在过渡过程中从事的三种工作--实际工作、关系工作和情感工作。分析结果突出了考虑整个过渡过程的重要性,而不仅仅是考虑搬迁前后的经历,这样才能减少此类搬迁带来的负面、与压力相关的后果。研究结果对健康和社会护理领域的专业人员具有实际意义,并指出有必要在整个过渡过程中为老年人提供实际、关系和情感支持。
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引用次数: 0
Gender Gaps in Strategies for Maintaining the Social Participation and Interaction of Older Adults with People in a Local Community 老年人与当地社区居民保持社会参与和互动战略中的性别差距
IF 2.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-05-21 DOI: 10.1155/2024/3572577
Kenta Nomura, Norikazu Kobayashi

Purpose. This study aims to elucidate the gender gaps in the strategies for maintaining the social participation and interaction of older adults with people in a local community. Methods. The subjects were 130 older adults aged 65 years or older and independently living in their homes in Saitama, Saitama Prefecture, Japan. The authors conducted an anonymous questionnaire survey on paper and performed multiple regression analysis for men and women separately using the Lubben Social Network Scale-6 (LSNS-6) as the dependent variable. Results. Among the independent variables used for the analysis, those that significantly influenced LSNS-6 in men were social activities related to the daily life satisfaction of the elderly (SARDS). The independent variables that significantly influenced LSNS-6 in women were SARDS, sense of coherence-13 (SOC-13), and the number of family members living with the subjects. Discussion. Health promotion is not associated with interaction with people in men compared with women.

研究目的本研究旨在阐明老年人与当地社区居民保持社会参与和互动的策略中存在的性别差距。研究方法研究对象为日本埼玉县埼玉市的 130 名 65 岁或以上、在家中独立生活的老年人。作者进行了匿名纸质问卷调查,并以 Lubben Social Network Scale-6 (LSNS-6) 为因变量,分别对男性和女性进行了多元回归分析。分析结果在用于分析的自变量中,对男性 LSNS-6 有显著影响的是与老年人日常生活满意度相关的社会活动(SARDS)。对女性 LSNS-6 有明显影响的自变量是 SARDS、连贯感-13(SOC-13)和与受试者同住的家庭成员数量。讨论与女性相比,男性的健康促进与人际交往无关。
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引用次数: 0
Organizational Factors Associated with Regulation Noncompliance in Home Care Services and Service Housing Facilities: An Exploratory Cross-Sectional Study 与家庭护理服务和房屋服务设施不遵守法规相关的组织因素:一项探索性横断面研究
IF 2.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-05-20 DOI: 10.1155/2024/9994777
Laura Corneliusson, Salla Ruotsalainen, Tiina Pesonen, Juhani Sulander, Timo Sinervo

Rationale. Recent studies have highlighted organizational issues, work stressors, and moral distress as prevalent problems among staff working within care services for older people, but factors influencing regulatory compliance in care services for older people are currently uncharted. Aims and Objectives. The aim of this exploratory study was to investigate how organizational factors, the clinical characteristics of the clients, and perceived organizational factors are associated with staff regulation noncompliance within home care services and service housing facilities. Methods. A self-report survey was sent to practical and registered nurses working in home care services and service housing in Finland in October 2021. The sample consisted of 352 home care and 555 service housing staff members. Separate models were calculated for home care services and service housing facilities. The data were analyzed using logistic regression models. CROSS reporting guidelines were followed. Results. The results show that in service housing facilities, higher numbers of disruptions, lower team autonomy, and working for a private employer increased the odds of regulation noncompliance. In home care services, higher numbers of visits during a day, higher numbers of disruptions, and lower team autonomy increased the odds of regulation noncompliance, while attending to clients requiring less resources decreased the odds of regulation noncompliance. Perceived lack of time and resources were influential factors in both contexts. Conclusion. Allocating more time to attend to tasks, ensuring adequate staffing, as well as supporting team autonomy, may increase regulation compliance within care services for older people.

理由。最近的研究强调,组织问题、工作压力和道德困扰是老年人护理服务机构中工作人员普遍存在的问题,但影响老年人护理服务机构遵守法规的因素目前尚不清楚。目的和目标。这项探索性研究旨在调查组织因素、服务对象的临床特征以及感知到的组织因素与居家护理服务和服务性住房设施中员工不遵守规章制度的相关性。研究方法2021 年 10 月,研究人员向在芬兰家庭护理服务机构和服务公寓工作的执业护士和注册护士发送了一份自我报告调查表。样本包括 352 名居家护理人员和 555 名住房服务人员。针对居家护理服务和服务公寓设施分别计算了不同的模型。数据采用逻辑回归模型进行分析。遵循 CROSS 报告指南。结果结果表明,在住房服务机构中,干扰次数较多、团队自主性较低以及为私人雇主工作的员工发生违规行为的几率较高。在家庭护理服务中,一天中的访问次数越多、中断次数越多、团队自主性越低,不遵守规定的几率就越高,而为需要较少资源的客户提供服务则会降低不遵守规定的几率。在这两种情况下,认为缺乏时间和资源都是影响因素。结论在老年人护理服务中,分配更多的时间处理任务、确保充足的人员配备以及支持团队自主性,可以提高规章的合规性。
{"title":"Organizational Factors Associated with Regulation Noncompliance in Home Care Services and Service Housing Facilities: An Exploratory Cross-Sectional Study","authors":"Laura Corneliusson,&nbsp;Salla Ruotsalainen,&nbsp;Tiina Pesonen,&nbsp;Juhani Sulander,&nbsp;Timo Sinervo","doi":"10.1155/2024/9994777","DOIUrl":"10.1155/2024/9994777","url":null,"abstract":"<div>\u0000 <p><i>Rationale</i>. Recent studies have highlighted organizational issues, work stressors, and moral distress as prevalent problems among staff working within care services for older people, but factors influencing regulatory compliance in care services for older people are currently uncharted. <i>Aims and Objectives</i>. The aim of this exploratory study was to investigate how organizational factors, the clinical characteristics of the clients, and perceived organizational factors are associated with staff regulation noncompliance within home care services and service housing facilities. <i>Methods</i>. A self-report survey was sent to practical and registered nurses working in home care services and service housing in Finland in October 2021. The sample consisted of 352 home care and 555 service housing staff members. Separate models were calculated for home care services and service housing facilities. The data were analyzed using logistic regression models. CROSS reporting guidelines were followed. <i>Results</i>. The results show that in service housing facilities, higher numbers of disruptions, lower team autonomy, and working for a private employer increased the odds of regulation noncompliance. In home care services, higher numbers of visits during a day, higher numbers of disruptions, and lower team autonomy increased the odds of regulation noncompliance, while attending to clients requiring less resources decreased the odds of regulation noncompliance. Perceived lack of time and resources were influential factors in both contexts. <i>Conclusion</i>. Allocating more time to attend to tasks, ensuring adequate staffing, as well as supporting team autonomy, may increase regulation compliance within care services for older people.</p>\u0000 </div>","PeriodicalId":48195,"journal":{"name":"Health & Social Care in the Community","volume":"2024 1","pages":""},"PeriodicalIF":2.4,"publicationDate":"2024-05-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1155/2024/9994777","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141122049","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Investigation of Early Maladaptive Schemas and Coping Strategies in Turkish Adults under Probation 调查土耳其缓刑期成年人的早期适应不良模式和应对策略
IF 2.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-05-17 DOI: 10.1155/2024/8953611
Ozlem Gulder Altuner, Gorkem Yararbas

Purpose. The aim of the study was to examine the relationships of early maladaptive schemas, overcompensation, and avoidant behaviors with sociodemographic, psychological, legal, and substance use status of individuals under probation due to illicit substance use. Methods. The data of this cross-sectional study were collected from adults under probation through self-report. The dependent variables were early maladaptive schemas, overcompensation, and avoidant behaviors. Sociodemographic, legal, and psychological characteristics and characteristics related to illicit substance use were the independent variables of the study. Student-t test and ANOVA or Mann–Whitney-U and Kruskal–Wallis tests were used in bivariate analyses. Multiple linear regression analysis was used in multivariate analyses. Results. A total of 300 adult individuals under probation participated in the study, and the inclusion rate was 93.5%. The mean age of the study group was 27.96 ± 6.40 years. The amount of smoking (B = 0.65 (95% CI: 0.04–1.27), p = 0.038), frequency of illicit substance use (B = 12.15 (95% CI: 2.04–22.25), p = 0.019), and childhood violence (B = 29.24 (95% CI: 16.92–41.56), p < 0.001) were explanatory for schema scores (R2: 0.240). Frequency of illicit substance use (B = 7.06 (95% CI: 0.58–13.54), p = 0.033) and childhood violence (B = 9.18 (95% CI: 1.36–17.00), p = 0.022) were explanatory for compensation scores (R2: 0.083). The amount of smoking (B = 0.49 (95% CI: 0.22–0.76), p = 0.001), frequency of illicit substance use (B = 5.16 (95% CI: 0.67–9.65), p = 0.025), being treated for substance use disorder (B = 6.74 (95% CI: 0.30–13.17), p = 0.040), and experiencing violence in childhood (B = 6.02 (95% CI: 0.59–11.45), p = 0.030) were explanatory for avoidant scores (R2:0.169). Conclusion. Childhood violence and frequency of illicit substance use were associated with early maladaptive schemas, overcompensation, and avoidance. Smoking appears to be a behavioral way of coping with both early maladaptive schemas and schemas through avoidance.

研究目的本研究旨在探讨因使用非法药物而被缓刑的人的早期适应不良模式、过度补偿和回避行为与社会人口学、心理学、法律和药物使用状况之间的关系。研究方法这项横断面研究的数据是通过自我报告的方式从被判缓刑的成年人中收集的。因变量为早期适应不良模式、过度补偿和回避行为。社会人口学、法律和心理特征以及与非法药物使用相关的特征是本研究的自变量。双变量分析采用了Student-t检验和方差分析,或Mann-Whitney-U检验和Kruskal-Wallis检验。多元线性回归分析用于多变量分析。结果。共有 300 名成年缓刑犯参与了研究,纳入率为 93.5%。研究对象的平均年龄为(27.96 ± 6.40)岁。吸烟量(B = 0.65 (95% CI: 0.04-1.27),p=0.038)、非法药物使用频率(B = 12.15 (95% CI: 2.04-22.25),p=0.019)和童年暴力(B = 29.24 (95% CI: 16.92-41.56),p<0.001)对模式得分有解释作用(R2:0.240)。使用非法药物的频率(B=7.06(95% CI:0.58-13.54),p=0.033)和童年暴力(B=9.18(95% CI:1.36-17.00),p=0.022)可解释补偿得分(R2:0.083)。吸烟量(B = 0.49 (95% CI: 0.22-0.76), p=0.001)、使用非法药物的频率(B = 5.16 (95% CI: 0.67-9.65), p=0.025)、接受药物使用障碍治疗(B = 6.74(95% CI:0.30-13.17),p=0.040)和童年遭受暴力(B=6.02(95% CI:0.59-11.45),p=0.030)对回避评分有解释作用(R2:0.169)。结论童年暴力和非法药物使用频率与早期适应不良模式、过度补偿和回避有关。吸烟似乎是一种通过回避来应对早期适应不良图式和图式的行为方式。
{"title":"Investigation of Early Maladaptive Schemas and Coping Strategies in Turkish Adults under Probation","authors":"Ozlem Gulder Altuner,&nbsp;Gorkem Yararbas","doi":"10.1155/2024/8953611","DOIUrl":"10.1155/2024/8953611","url":null,"abstract":"<div>\u0000 <p><i>Purpose</i>. The aim of the study was to examine the relationships of early maladaptive schemas, overcompensation, and avoidant behaviors with sociodemographic, psychological, legal, and substance use status of individuals under probation due to illicit substance use. <i>Methods</i>. The data of this cross-sectional study were collected from adults under probation through self-report. The dependent variables were early maladaptive schemas, overcompensation, and avoidant behaviors. Sociodemographic, legal, and psychological characteristics and characteristics related to illicit substance use were the independent variables of the study. Student-t test and ANOVA or Mann–Whitney-<i>U</i> and Kruskal–Wallis tests were used in bivariate analyses. Multiple linear regression analysis was used in multivariate analyses. <i>Results</i>. A total of 300 adult individuals under probation participated in the study, and the inclusion rate was 93.5%. The mean age of the study group was 27.96 ± 6.40 years. The amount of smoking (<i>B</i> = 0.65 (95% CI: 0.04–1.27), <i>p</i> = 0.038), frequency of illicit substance use (<i>B</i> = 12.15 (95% CI: 2.04–22.25), <i>p</i> = 0.019), and childhood violence (<i>B</i> = 29.24 (95% CI: 16.92–41.56), <i>p</i> &lt; 0.001) were explanatory for schema scores (<i>R</i><sup>2</sup>: 0.240). Frequency of illicit substance use (<i>B</i> = 7.06 (95% CI: 0.58–13.54), <i>p</i> = 0.033) and childhood violence (<i>B</i> = 9.18 (95% CI: 1.36–17.00), <i>p</i> = 0.022) were explanatory for compensation scores (<i>R</i><sup>2</sup>: 0.083). The amount of smoking (<i>B</i> = 0.49 (95% CI: 0.22–0.76), <i>p</i> = 0.001), frequency of illicit substance use (<i>B</i> = 5.16 (95% CI: 0.67–9.65), <i>p</i> = 0.025), being treated for substance use disorder (<i>B</i> = 6.74 (95% CI: 0.30–13.17), <i>p</i> = 0.040), and experiencing violence in childhood (<i>B</i> = 6.02 (95% CI: 0.59–11.45), <i>p</i> = 0.030) were explanatory for avoidant scores (<i>R</i><sup>2</sup>:0.169). <i>Conclusion</i>. Childhood violence and frequency of illicit substance use were associated with early maladaptive schemas, overcompensation, and avoidance. Smoking appears to be a behavioral way of coping with both early maladaptive schemas and schemas through avoidance.</p>\u0000 </div>","PeriodicalId":48195,"journal":{"name":"Health & Social Care in the Community","volume":"2024 1","pages":""},"PeriodicalIF":2.4,"publicationDate":"2024-05-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1155/2024/8953611","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141127304","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Problematizing Dominant Assumptions about Unpaid Support through Exploring Case Study Profiles of Older Home Care Clients 通过探索老年家庭护理客户的案例研究,对无偿支持的主流假设提出质疑
IF 2.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-05-16 DOI: 10.1155/2024/3707796
L. Funk, K. Kuryk, L. Spring, J. Keefe

Despite efforts to acknowledge diversity among unpaid caregivers, Canadian research, advocacy, practice, and policy tend to be based in and to reproduce dominant social and institutional expectations and assumptions about who provides unpaid support and why, and what this support looks like. The objective of thtudinal, qualitative research study. In that study, qualitative case study interviews were conducted with twelve home care clients, their identified family or friend caregiver, home care aide, case coordinator, and agency supervisor (129 interviews in total). Case study profiles compiled over time generated deeper information about the availability and capacity of informal sources of support for these clients, which prompted abductive analysis in relation to dominant assumptions typically made about caregivers in research, policy, and practice. Specifically, only one case (participant) had a caregiver whose profile closely matched dominant conceptualizations. In the remaining eleven cases, we found situations wherein: (a) caregivers grappled with physical or mental health challenges limiting their participation in care (sometimes meaning the client is themselves a caregiver, or the caregiver is also receiving home care services); (b) caregivers facing burnout sought to delimit their participation in care; (c) caregivers’ participation was limited by older adults’ reluctance to accept their help; (d) caregivers were largely unavailable, unreliable, or peripheral; or (e) client’s unpaid support networks were diffuse without a clearly central or identifiable “caregiver.” Findings are used to nuance and problematize widely held assumptions about caregivers, particularly their availability and capacity. Discussion highlights the need for research, policy, and programs related to unpaid caregiving to better reflect the lived realities of this support for older adults and often overlooked sources of diversity in caregiver circumstances and roles.

尽管加拿大努力承认无酬照护者的多样性,但研究、宣传、实践和政策往往基于并再现主流社会和机构对谁提供无酬支持、为什么以及这种支持是什么样子的期望和假设。这项研究的目标是进行定性研究。在这项研究中,我们对 12 名居家护理客户、他们确认的家人或朋友照顾者、居家护理助理、个案协调员和机构主管进行了定性个案研究访谈(共 129 次访谈)。随着时间的推移,案例研究的概况产生了关于这些客户的非正式支持来源的可用性和能力的更深层次的信息,这促使我们对研究、政策和实践中通常对照顾者的主流假设进行归纳分析。具体来说,只有一个案例(参与者)的照顾者的特征与主流概念非常吻合。在其余 11 个案例中,我们发现了以下情况(a) 照顾者面临身体或精神健康方面的挑战,这限制了他们参与照顾工作(有时意味着客户本身就是照顾者,或者照顾者也在接受家庭照顾服务);(b) 面临职业倦怠的照顾者试图限制他们参与照顾工作;(c) 老年人不愿意接受护理人员的帮助,从而限制了护理人员的参与;(d) 护理人员基本上没有时间、不可靠或处于边缘地位;或(e) 服务对象的无偿支持网络分散,没有一个明确的中心或可识别的 "护理人员"。"研究结果被用来细化和质疑关于照顾者的广泛假设,特别是他们的可用性和能力。讨论强调,与无偿护理相关的研究、政策和计划需要更好地反映出为老年人提供这种支持的生活现实,以及经常被忽视的护理人员环境和角色多样性的来源。
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引用次数: 0
Applying a Human Rights-Based Approach to Formal Care and Support Provided in the Home: A Narrative Review 将基于人权的方法应用于家庭中提供的正式护理和支持:叙述性评论
IF 2.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-05-11 DOI: 10.1155/2024/6632018
Yvonne Kelly, Judy Gannon, Carolina Bassul, Michelle Williams, David Morrissey, Joyce McKee, Laura M. Keyes, Niamh O’Rourke, Rachel Flynn

Providing formal care and support in the home has many benefits. Applying a human rights-based approach places the person and their human rights at the centre of all that a health and social care service does. There is a paucity of evidence on how to apply a human rights-based approach in practice when providing homecare. Increasing knowledge and understanding of human rights will empower health and social care practitioners to protect and promote human rights in formal homecare. The aim of this narrative review was to identify and describe human rights-based approaches in homecare, in order to promote awareness and understanding of a human rights-based approach. Five bibliographic databases were searched. Primary research studies pertaining to the delivery of formal homecare that included a human rights-based approach were eligible for inclusion. Sixteen articles were identified for inclusion. Quality appraisal and data extraction were conducted on included studies. A deductive framework analysis was used and concepts of a human rights-based approach that emerged from the literature as relevant to homecare were as follows: dignity and respect, autonomy, equality, participation, and communication. We found that homecare planning and delivery requires the integration of human rights, using approaches, such as person-centred care, partnerships in decision-making, supporting independence, and acknowledging a person’s beliefs and cultures, in everyday practice. Findings from this review can support and enable service providers to apply human rights in everyday practice, ultimately for the benefit of people using homecare services.

在家中提供正规的护理和支持有很多好处。采用基于人权的方法将个人及其人权置于医疗和社会护理服务的中心位置。关于如何在提供家庭护理的实践中应用以人权为本的方法,目前还缺乏相关的证据。提高对人权的认识和理解将增强健康和社会护理从业人员在正规家庭护理中保护和促进人权的能力。本叙述性综述旨在确定和描述家庭护理中基于人权的方法,以促进对基于人权方法的认识和理解。我们搜索了五个文献数据库。与提供正规家庭护理有关的、包含以人权为本的方法的初级研究符合纳入条件。共确定了 16 篇纳入研究的文章。对纳入的研究进行了质量评估和数据提取。我们采用了演绎框架分析法,从文献中得出的与家庭护理相关的人权方法概念如下:尊严与尊重、自主、平等、参与和沟通。我们发现,家庭护理的规划和实施需要结合人权,在日常实践中使用以人为本的护理、决策中的伙伴关系、支持独立以及承认个人信仰和文化等方法。本次审查的结果可以支持并帮助服务提供者在日常实践中应用人权,最终使使用家庭护理服务的人受益。
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引用次数: 0
Delivering a Specialised Best Practice Service for People with Functional Neurological Disorder: An Australian Qualitative Descriptive Study 为功能性神经障碍者提供最佳专业服务:澳大利亚定性描述研究
IF 2.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2024-05-03 DOI: 10.1155/2024/5547318
Lauren N. Pearce, Peta Prindiville, Charlotte Scroggie, Georgia Taylor, Alice Clarke, Abby Foster, Sarah C. Milne

Specialised functional neurological disorder (FND) clinics are emerging as the preferred way of providing best practice care to people with FND. However, questions remain around optimal care pathways, service provision, and resources. This study aimed to identify (1) service characteristics of Australian FND models of care; (2) barriers and enablers to implementing a specialised FND service; and (3) enablers and barriers to providing best practice management for people living with FND. Clinicians were recruited from Australian public and private healthcare organisations identified as leading best practice for adults with FND. Clinicians completed a structured interview via phone. A descriptive content analysis was used. Five out of 12 healthcare organisations interviewed had a specialised multidisciplinary FND service. All specialised FND services were outpatient programs, but the structure and referral pathways varied. Barriers identified by organisations with an FND service included “funding” and “staff and service fragility,” while enablers included “engaging stakeholders” and having a clear “service driver.” “Diagnosis delay” and “insufficient access to staff” were identified as barriers to implementing best practice by organisations without a specialised FND service. Despite specialised clinics being recognised as a practical way to deliver care to people with FND, only a few services operate in Australia. Timely and educated diagnosis and access to an interdisciplinary team consisting of neurology, physiotherapy, and psychology are central pillars for FND services. Further work to establish clinically and economically effective delivery models is required to facilitate the provision of best practice care for people living with FND.

功能性神经紊乱(FND)专科门诊正在成为向功能性神经紊乱患者提供最佳治疗的首选方式。然而,围绕最佳治疗路径、服务提供和资源等问题依然存在。本研究旨在确定 (1) 澳大利亚 FND 护理模式的服务特点;(2) 实施 FND 专门服务的障碍和推动因素;以及 (3) 为 FND 患者提供最佳管理的推动因素和障碍。临床医生来自澳大利亚的公立和私立医疗机构,这些机构被认为是为患有 FND 的成年人提供最佳服务的领先机构。临床医生通过电话完成了结构化访谈。采用了描述性内容分析法。在接受访谈的 12 家医疗机构中,有 5 家设有专门的多学科 FND 服务。所有专门的 FND 服务都是门诊项目,但其结构和转诊途径各不相同。提供 FND 服务的机构指出的障碍包括 "资金 "和 "人员与服务的脆弱性",而促进因素包括 "利益相关者的参与 "和明确的 "服务驱动力"。没有 FND 专门服务的机构认为,"诊断延迟 "和 "人员不足 "是实施最佳做法的障碍。尽管专科门诊被认为是为 FND 患者提供护理的实用方法,但在澳大利亚仅有少数几家专科门诊在运营。及时、有针对性的诊断以及由神经病学、物理治疗和心理学组成的跨学科团队是 FND 服务的核心支柱。需要进一步开展工作,建立临床和经济上有效的服务模式,以便为 FND 患者提供最佳护理服务。
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Health & Social Care in the Community
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