Pub Date : 2024-01-01DOI: 10.1177/16094069241237550
Ana Paula Provin, Anelise Leal Vieira Cubas, Ana Regina de Aguiar Dutra, Clarissa Carneiro Mussi, Ivone Junges, N. Nunes, Jacir Leonir Casagrande, José Baltazar Salgueirinho Osório de Andrade Guerra
Frugal innovation (FI) is a recent topic in the scientific literature and it was introduced in relation to management studies. According to scholars, FI is a promising way to serve low-income people who cannot afford conventional products, especially those in developing countries, and to address the urgent need to rethink how resources can be used effectively to operate a sustainable business in the emerging global scenario. This systematic literature review article investigates how the use of qualitative research in studies on FI can contribute to the theory and applicability of FI in society. Searches were conducted in the Scopus, ScienceDirect, SpringerLink and Web of Science databases. After surveying and sorting the documents found, 61 research articles dealing with the various aspects and concepts of FI and addressing the use of qualitative research were selected for this literature review.
节俭创新（FI）是科学文献中的一个最新话题，是在管理研究中提出的。学者们认为，节俭创新是为买不起传统产品的低收入人群（尤其是发展中国家的低收入人群）提供服务的一种很有前景的方式，也是解决重新思考如何在新兴的全球形势下有效利用资源以经营可持续企业的迫切需要。这篇系统的文献综述文章探讨了在有关金融创新的研究中使用定性研究如何有助于金融创新的理论和在社会中的应用。文章在 Scopus、ScienceDirect、SpringerLink 和 Web of Science 数据库中进行了搜索。在对找到的文献进行调查和分类后，本文献综述选取了 61 篇研究文章，这些文章涉及金融投资的各个方面和概念，并涉及定性研究的使用。
{"title":"Qualitative Research Parameters in Studies on Frugal Innovation","authors":"Ana Paula Provin, Anelise Leal Vieira Cubas, Ana Regina de Aguiar Dutra, Clarissa Carneiro Mussi, Ivone Junges, N. Nunes, Jacir Leonir Casagrande, José Baltazar Salgueirinho Osório de Andrade Guerra","doi":"10.1177/16094069241237550","DOIUrl":"https://doi.org/10.1177/16094069241237550","url":null,"abstract":"Frugal innovation (FI) is a recent topic in the scientific literature and it was introduced in relation to management studies. According to scholars, FI is a promising way to serve low-income people who cannot afford conventional products, especially those in developing countries, and to address the urgent need to rethink how resources can be used effectively to operate a sustainable business in the emerging global scenario. This systematic literature review article investigates how the use of qualitative research in studies on FI can contribute to the theory and applicability of FI in society. Searches were conducted in the Scopus, ScienceDirect, SpringerLink and Web of Science databases. After surveying and sorting the documents found, 61 research articles dealing with the various aspects and concepts of FI and addressing the use of qualitative research were selected for this literature review.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":null,"pages":null},"PeriodicalIF":5.4,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140522271","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-01-01DOI: 10.1177/16094069231224610
Annie Pullen Sansfaçon, Élio Gravel, Morgane A. Gelly
In the wake of COVID-19, numerous research projects moved to online data collection to comply with public health guidelines. Since then, many qualitative projects have continued to use online methods to collect data. While online methods facilitated research continuity, they also introduced new opportunities for deceptive behaviors, particularly misrepresentation and multiple participation. Drawing from a recent project that conducted online interviews with young people who detransition after a gender transition, this article describes how fraudulent interviews were identified and dealt with. We present 12 indicators of potential scams in qualitative interviews, including similarities between participants, the type of information provided, participants’ behaviors, and inconsistencies in the narratives. We discuss our overall experience and, in light of recent literature, present strategies to prevent and deal with scams in qualitative research.
{"title":"Dealing With Scam in Online Qualitative Research: Strategies and Ethical Considerations","authors":"Annie Pullen Sansfaçon, Élio Gravel, Morgane A. Gelly","doi":"10.1177/16094069231224610","DOIUrl":"https://doi.org/10.1177/16094069231224610","url":null,"abstract":"In the wake of COVID-19, numerous research projects moved to online data collection to comply with public health guidelines. Since then, many qualitative projects have continued to use online methods to collect data. While online methods facilitated research continuity, they also introduced new opportunities for deceptive behaviors, particularly misrepresentation and multiple participation. Drawing from a recent project that conducted online interviews with young people who detransition after a gender transition, this article describes how fraudulent interviews were identified and dealt with. We present 12 indicators of potential scams in qualitative interviews, including similarities between participants, the type of information provided, participants’ behaviors, and inconsistencies in the narratives. We discuss our overall experience and, in light of recent literature, present strategies to prevent and deal with scams in qualitative research.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":null,"pages":null},"PeriodicalIF":5.4,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139454436","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-01-01DOI: 10.1177/16094069241226812
Angela Kraemer-Holland
This paper outlines my experience as an early career researcher engaging with my power and privilege embedded in my white, English-speaking identity while working with Mexican American male-identifying research participants. Utilizing critical race theory as a framework, this paper chronicles my reflections on un/hooking from whiteness within the context of scholarly inquiry. Specifically, I draw inspiration from a qualitative research project to anchor the discussion of privileged epistemologies and power structures embedded in the inquiry process and academia more broadly, and how race can intersect with how we negotiate our roles, methods, and subjectivities as qualitative scholars. More broadly, this paper explores notions of knowledge and agency in educational inquiry against the question of whose stories are told, how, for whom, and by whom. This paper contributes to the conversation and efforts toward disentangling from whiteness and the epistemologies around which research, higher education, and society are structured to instead magnify the voices and experiences of participants through more egalitarian inquiry practices.
{"title":"“Re-Hooking” in the Field: Negotiating Power, Privilege, and Whiteness in Qualitative Inquiry","authors":"Angela Kraemer-Holland","doi":"10.1177/16094069241226812","DOIUrl":"https://doi.org/10.1177/16094069241226812","url":null,"abstract":"This paper outlines my experience as an early career researcher engaging with my power and privilege embedded in my white, English-speaking identity while working with Mexican American male-identifying research participants. Utilizing critical race theory as a framework, this paper chronicles my reflections on un/hooking from whiteness within the context of scholarly inquiry. Specifically, I draw inspiration from a qualitative research project to anchor the discussion of privileged epistemologies and power structures embedded in the inquiry process and academia more broadly, and how race can intersect with how we negotiate our roles, methods, and subjectivities as qualitative scholars. More broadly, this paper explores notions of knowledge and agency in educational inquiry against the question of whose stories are told, how, for whom, and by whom. This paper contributes to the conversation and efforts toward disentangling from whiteness and the epistemologies around which research, higher education, and society are structured to instead magnify the voices and experiences of participants through more egalitarian inquiry practices.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":null,"pages":null},"PeriodicalIF":5.4,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139456179","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-01-01DOI: 10.1177/16094069231222143
Jane Dickson, Jessica Mesman, Bruce Guthrie, Suzanne Grant
Video-Reflexive Ethnography (VRE) is an innovative and participatory research and improvement methodology that involves videoing in-situ work practices and collaboratively analysing this footage with participants during reflexive sessions. This involves participants ‘slowing down’, engaging reflexively with their everyday working practices, and taking time out to discuss issues collectively. VRE has increasingly been used across a range of different healthcare settings. However, one setting that has received less attention is the Acute Medical Unit (AMU). AMUs are busy short-stay hospital departments with very high patient throughput and large multidisciplinary teams where patients receive initial assessment, diagnosis and treatment before being moved to other wards or settings. The aim of this study was to examine how VRE as a research and improvement methodology can be applied, in the busy and complex setting of an AMU. In this paper we outline some of the methodological challenges encountered in this setting and discuss how these were transformed into opportunities and solutions. Then, we evaluate our work by using the four guiding principles at the heart of VRE (care, collaboration, reflexivity and exnovation) to test if, and how, the methodology can be used in such a complex and busy setting without losing its methodological rigor and impact. We show how it is possible to initiate and achieve the core principles of VRE in the complex and busy AMU setting through careful planning, constant revision of data collection methods, remaining highly flexible and adaptable to the spatial and temporal rhythms of the ward and being sensitive to hierarchical inter- and intra-professional relationships and vulnerabilities. Finally, we share recommendations for using VRE in other busy and complex settings.
{"title":"Using Video-Reflexive Ethnography on an Acute Medical Unit: Methodological Challenges, Solutions and Opportunities within a Complex and Busy Clinical Setting","authors":"Jane Dickson, Jessica Mesman, Bruce Guthrie, Suzanne Grant","doi":"10.1177/16094069231222143","DOIUrl":"https://doi.org/10.1177/16094069231222143","url":null,"abstract":"Video-Reflexive Ethnography (VRE) is an innovative and participatory research and improvement methodology that involves videoing in-situ work practices and collaboratively analysing this footage with participants during reflexive sessions. This involves participants ‘slowing down’, engaging reflexively with their everyday working practices, and taking time out to discuss issues collectively. VRE has increasingly been used across a range of different healthcare settings. However, one setting that has received less attention is the Acute Medical Unit (AMU). AMUs are busy short-stay hospital departments with very high patient throughput and large multidisciplinary teams where patients receive initial assessment, diagnosis and treatment before being moved to other wards or settings. The aim of this study was to examine how VRE as a research and improvement methodology can be applied, in the busy and complex setting of an AMU. In this paper we outline some of the methodological challenges encountered in this setting and discuss how these were transformed into opportunities and solutions. Then, we evaluate our work by using the four guiding principles at the heart of VRE (care, collaboration, reflexivity and exnovation) to test if, and how, the methodology can be used in such a complex and busy setting without losing its methodological rigor and impact. We show how it is possible to initiate and achieve the core principles of VRE in the complex and busy AMU setting through careful planning, constant revision of data collection methods, remaining highly flexible and adaptable to the spatial and temporal rhythms of the ward and being sensitive to hierarchical inter- and intra-professional relationships and vulnerabilities. Finally, we share recommendations for using VRE in other busy and complex settings.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":null,"pages":null},"PeriodicalIF":5.4,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139537737","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-01-01DOI: 10.1177/16094069241244859
Danielle T. Just, Hannah M. O’Rourke, Whitney B. Berta, Lisa A. Cranley
With the COVID-19 pandemic halting all in-person research in March 2020, many researchers adopted virtual methods to continue their work amid this global crisis. As the pandemic persisted and the safety of participants and researchers remained a priority, virtual research grew in popularity for qualitative researchers. This in turn led to methodological insights on the application and advantages of conducting qualitative research using virtual methods. Virtual methods have been found to enhance participant comfort, facilitate open discussion of sensitive topics, alleviate fatigue in participants and researchers, and result in more engaging and focused interviews. While the body of evidence supporting virtual methods of data collection for nursing and other healthcare disciplines continues to grow, its application in the long-term care (LTC) setting remains underreported. In this paper, we discuss the virtual methods that we developed and implemented to successfully conduct a virtual qualitative single case study in a Canadian LTC home during the COVID-19 pandemic. Considerations from existing literature on virtual methods are discussed in parallel with strategies we implemented to successfully conduct a virtual study in LTC. This paper contributes to the growing body of literature on methodological insights into conducting virtual qualitative research in LTC. We provide evidence-based strategies for the virtual recruitment of study sites, study participants including residents, team members and families, and virtual data collection methods. These recommendations offer insights to overcome challenges and maximize the advantages of virtual methods, to enhance the quality and rigour of virtual qualitative research conducted within LTC settings.
{"title":"Navigating the Virtual Landscape: Methodological Considerations for Qualitative Research in Long-Term Care","authors":"Danielle T. Just, Hannah M. O’Rourke, Whitney B. Berta, Lisa A. Cranley","doi":"10.1177/16094069241244859","DOIUrl":"https://doi.org/10.1177/16094069241244859","url":null,"abstract":"With the COVID-19 pandemic halting all in-person research in March 2020, many researchers adopted virtual methods to continue their work amid this global crisis. As the pandemic persisted and the safety of participants and researchers remained a priority, virtual research grew in popularity for qualitative researchers. This in turn led to methodological insights on the application and advantages of conducting qualitative research using virtual methods. Virtual methods have been found to enhance participant comfort, facilitate open discussion of sensitive topics, alleviate fatigue in participants and researchers, and result in more engaging and focused interviews. While the body of evidence supporting virtual methods of data collection for nursing and other healthcare disciplines continues to grow, its application in the long-term care (LTC) setting remains underreported. In this paper, we discuss the virtual methods that we developed and implemented to successfully conduct a virtual qualitative single case study in a Canadian LTC home during the COVID-19 pandemic. Considerations from existing literature on virtual methods are discussed in parallel with strategies we implemented to successfully conduct a virtual study in LTC. This paper contributes to the growing body of literature on methodological insights into conducting virtual qualitative research in LTC. We provide evidence-based strategies for the virtual recruitment of study sites, study participants including residents, team members and families, and virtual data collection methods. These recommendations offer insights to overcome challenges and maximize the advantages of virtual methods, to enhance the quality and rigour of virtual qualitative research conducted within LTC settings.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":null,"pages":null},"PeriodicalIF":5.4,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140520315","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-01-01DOI: 10.1177/16094069241244863
A. Soundy
Objective: The objective of this review was to establish a modified meta-ethnography framework by integrating the traditional phases with methods from social constructivist grounded theory. The modified version was required to identify methods which can ensure analytic generalisability and honour critical inquiry. Method: A narrative synthesis review was undertaken using 4 electronic databases. Articles were located that described the methods and methodologies of meta-ethnography and social constructivist grounded theory. A synthesis was undertaken which integrated the methods of social constructivist grounded theory. Results: The meta-ethnography was undertaken in 5 phases: (1) The positionality of the researcher and the area of interest identified. (2) Identifying what is relevant. (3) Reading the included studies and determining how studies are related. (4) The iterative process of idea generation required for theory generation. And (5) Expression of the theory, model, or process. Conclusion: The current review has been able to create a social constructivist meta-ethnographic framework for reviewing empirical qualitative research. This framework will support the development of a substantive theory (a theory in one area) which can be used then to consider its application in other areas. This approach will help create new lines of research and aid the explanation of problems in other areas.
{"title":"Social Constructivist Meta-Ethnography - – A Framework Construction","authors":"A. Soundy","doi":"10.1177/16094069241244863","DOIUrl":"https://doi.org/10.1177/16094069241244863","url":null,"abstract":"Objective: The objective of this review was to establish a modified meta-ethnography framework by integrating the traditional phases with methods from social constructivist grounded theory. The modified version was required to identify methods which can ensure analytic generalisability and honour critical inquiry. Method: A narrative synthesis review was undertaken using 4 electronic databases. Articles were located that described the methods and methodologies of meta-ethnography and social constructivist grounded theory. A synthesis was undertaken which integrated the methods of social constructivist grounded theory. Results: The meta-ethnography was undertaken in 5 phases: (1) The positionality of the researcher and the area of interest identified. (2) Identifying what is relevant. (3) Reading the included studies and determining how studies are related. (4) The iterative process of idea generation required for theory generation. And (5) Expression of the theory, model, or process. Conclusion: The current review has been able to create a social constructivist meta-ethnographic framework for reviewing empirical qualitative research. This framework will support the development of a substantive theory (a theory in one area) which can be used then to consider its application in other areas. This approach will help create new lines of research and aid the explanation of problems in other areas.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":null,"pages":null},"PeriodicalIF":5.4,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140521007","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-01-01DOI: 10.1177/16094069241230407
M. Verhage, J. Lindenberg, Mariëtte Bussemaker, T. Abma
This article explores the potential and challenges of inclusive research methodologies when working with older individuals with lower literacy levels. We present inclusive approaches developed during our research and discuss their implications for methodology and individual well-being among older adults with lower literacy levels. Our key insight is that the promise of inclusive research lies in relational design and praxis. Prioritizing meaningful relationships between researchers and participants, we emphasize the importance of considering participants as active contributors rather than mere informants. Creating a safe and supportive environment fosters trust, empowerment, and meaningful contributions from participants. Flexibility and adaptability in research approaches, including phased informed consent and the minimizing of written language, enhance participants’ self-confidence and trust in their own voices. This approach empowers participants in co-creating knowledge, which strengthens the trustworthiness and validity of research results. Inclusive research, while promising, requires researchers to navigate ethical dilemmas, invest time in building rapport, and adapt to participants’ needs. It challenges traditional research norms, emphasizing ethical engagement, meaningful participation, and tangible outcomes that benefit both researchers and participants. Employing inclusive research strategies, despite their departure from traditional praxis, ensures that the voices of older individuals with lower literacy levels are respected. This shift enhances the validity of knowledge, promotes co-creation, and fosters feelings of inclusiveness and empowerment. These promises underscore the importance of embracing inclusive research methodologies in contemporary research practices.
{"title":"The Promises of Inclusive Research Methodologies: Relational Design and Praxis","authors":"M. Verhage, J. Lindenberg, Mariëtte Bussemaker, T. Abma","doi":"10.1177/16094069241230407","DOIUrl":"https://doi.org/10.1177/16094069241230407","url":null,"abstract":"This article explores the potential and challenges of inclusive research methodologies when working with older individuals with lower literacy levels. We present inclusive approaches developed during our research and discuss their implications for methodology and individual well-being among older adults with lower literacy levels. Our key insight is that the promise of inclusive research lies in relational design and praxis. Prioritizing meaningful relationships between researchers and participants, we emphasize the importance of considering participants as active contributors rather than mere informants. Creating a safe and supportive environment fosters trust, empowerment, and meaningful contributions from participants. Flexibility and adaptability in research approaches, including phased informed consent and the minimizing of written language, enhance participants’ self-confidence and trust in their own voices. This approach empowers participants in co-creating knowledge, which strengthens the trustworthiness and validity of research results. Inclusive research, while promising, requires researchers to navigate ethical dilemmas, invest time in building rapport, and adapt to participants’ needs. It challenges traditional research norms, emphasizing ethical engagement, meaningful participation, and tangible outcomes that benefit both researchers and participants. Employing inclusive research strategies, despite their departure from traditional praxis, ensures that the voices of older individuals with lower literacy levels are respected. This shift enhances the validity of knowledge, promotes co-creation, and fosters feelings of inclusiveness and empowerment. These promises underscore the importance of embracing inclusive research methodologies in contemporary research practices.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":null,"pages":null},"PeriodicalIF":5.4,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139640112","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-01-01DOI: 10.1177/16094069241234190
Megan Walsh, Izzi Harman, Penny Manning, Brenton Ponza, Shirley Wong, Brodie Shaw, Darryl Sellwood, Kate Anderson, D. Reddihough, Margaret Wallen
People who use augmentative and alternative communication (AAC) are frequently excluded from research, yet their voices can significantly enhance the applicability, acceptability, and translation of qualitative research findings. Accessible and adapted research methods welcome and empower participants who use AAC, and enable meaningful involvement. In this article, we describe the collaborative development of a framework to conceptualise inclusive research and aspects of an accompanying inclusive research toolkit. The framework identifies balancing power as a critical factor, primarily achieved by ensuring that research methods and materials are accessible to people who use AAC. We propose that this is achieved through three interacting elements: collaboration with AAC users, skills and knowledge to achieve accessibility, and ensuring adequate time is available to achieve involvement. We identify five areas where applying these elements has impact for AAC users: recruiting AAC users, working with communication supporters, adapting research methods, securing ethics approval, and consent. In presenting the framework, we demonstrate how qualitative researchers can foster a research environment that values and actively includes AAC users, ultimately advancing the field towards more comprehensive and inclusive research practices. While our work is situated in the cerebral palsy and AAC communities, our proposed framework and toolkit can be applied by researchers seeking perspectives from individuals with communication disabilities more broadly. We have created a corresponding plain language video of this article as an additional means of optimising accessibility of the content. See supplemental material .
{"title":"Including People Who Use Augmentative and Alternative Communication in Qualitative Research: Can You Hear Us?","authors":"Megan Walsh, Izzi Harman, Penny Manning, Brenton Ponza, Shirley Wong, Brodie Shaw, Darryl Sellwood, Kate Anderson, D. Reddihough, Margaret Wallen","doi":"10.1177/16094069241234190","DOIUrl":"https://doi.org/10.1177/16094069241234190","url":null,"abstract":"People who use augmentative and alternative communication (AAC) are frequently excluded from research, yet their voices can significantly enhance the applicability, acceptability, and translation of qualitative research findings. Accessible and adapted research methods welcome and empower participants who use AAC, and enable meaningful involvement. In this article, we describe the collaborative development of a framework to conceptualise inclusive research and aspects of an accompanying inclusive research toolkit. The framework identifies balancing power as a critical factor, primarily achieved by ensuring that research methods and materials are accessible to people who use AAC. We propose that this is achieved through three interacting elements: collaboration with AAC users, skills and knowledge to achieve accessibility, and ensuring adequate time is available to achieve involvement. We identify five areas where applying these elements has impact for AAC users: recruiting AAC users, working with communication supporters, adapting research methods, securing ethics approval, and consent. In presenting the framework, we demonstrate how qualitative researchers can foster a research environment that values and actively includes AAC users, ultimately advancing the field towards more comprehensive and inclusive research practices. While our work is situated in the cerebral palsy and AAC communities, our proposed framework and toolkit can be applied by researchers seeking perspectives from individuals with communication disabilities more broadly. We have created a corresponding plain language video of this article as an additional means of optimising accessibility of the content. See supplemental material .","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":null,"pages":null},"PeriodicalIF":5.4,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140525017","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-01-01DOI: 10.1177/16094069241235563
Emilie Francis-Auton, Colleen Cheek, E. Austin, Natália Ransolin, Lieke Richardson, Mariam Safi, Nematullah Hayba, Luke Testa, Reema Harrison, Jeffrey Braithwaite, R. Clay-Williams
Enhancing user and provider experience are central tenets of value-based healthcare. Gaining access to personal and distinct experiential knowledge is the first stage of an experience-based codesign (EBCD) approach, underpinning the second stage of codesigned improvement: the codesign itself. This state-of-the-art review synthesised the evolving scope and nature of methods to gather experiential knowledge reported in the EBCD literature. Fifty-three of 64 (83%) scholarly EBCD articles reviewed were published since 2017. Methods are evolving to promote inclusivity of diverse user groups and move more rapidly to codesign. However, omitted steps in the methodology undermined fulfilment of core principles of the EBCD approach which may diminish its value as an accepted form of codesign. Experiential knowledge is crucial for designing user-centred health care. The challenge lies in making healthcare experience methods accessible. This review provides guidance on key steps in the first stage of the EBCD approach and modifications that may overcome barriers while upholding core principles and meeting the objectives of the inquiry.
{"title":"Exploring and Understanding the ‘Experience’ in Experience-Based Codesign: A State-of-The-Art Review","authors":"Emilie Francis-Auton, Colleen Cheek, E. Austin, Natália Ransolin, Lieke Richardson, Mariam Safi, Nematullah Hayba, Luke Testa, Reema Harrison, Jeffrey Braithwaite, R. Clay-Williams","doi":"10.1177/16094069241235563","DOIUrl":"https://doi.org/10.1177/16094069241235563","url":null,"abstract":"Enhancing user and provider experience are central tenets of value-based healthcare. Gaining access to personal and distinct experiential knowledge is the first stage of an experience-based codesign (EBCD) approach, underpinning the second stage of codesigned improvement: the codesign itself. This state-of-the-art review synthesised the evolving scope and nature of methods to gather experiential knowledge reported in the EBCD literature. Fifty-three of 64 (83%) scholarly EBCD articles reviewed were published since 2017. Methods are evolving to promote inclusivity of diverse user groups and move more rapidly to codesign. However, omitted steps in the methodology undermined fulfilment of core principles of the EBCD approach which may diminish its value as an accepted form of codesign. Experiential knowledge is crucial for designing user-centred health care. The challenge lies in making healthcare experience methods accessible. This review provides guidance on key steps in the first stage of the EBCD approach and modifications that may overcome barriers while upholding core principles and meeting the objectives of the inquiry.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":null,"pages":null},"PeriodicalIF":5.4,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140516737","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-01-01DOI: 10.1177/16094069241232346
Nora Berner, Andreas Hohmann, Betül Yilmaz, S. Teupen
Stigma based on younger-onset dementia (YOD) is a significant challenge for individuals living with the condition and their significant others (i.e., family and/or friends) as well as for a society that aspires to be inclusive, ensure social participation, and enable all people to exercise their civil and human rights. The STELDA study aims to develop a theoretical framework of YOD stigma and stigmatization that is empirically grounded in the lived experience of people living with younger-onset dementia (PlwYOD) and their significant others and to identify ways of counteracting YOD stigmatization processes in the sociocultural context of Germany on a lifeworld level. The research question is as follows: How do PlwYOD and their adult significant others experience stigma and stigmatization based on YOD in their lifeworlds, and what implications do these experiences have for their actions in their lifeworlds? The study is designed as a constructivist grounded theory (CGT) study. Qualitative episodic interviews with community-dwelling PlwYOD and their adult significant others will be conducted to give participants the opportunity to share their individual narratives and express their subjective views. As an outcome, recommendations for action will be developed for the public and for professionals in diverse settings. On a methodological level, novel insights will be gained regarding specific issues related to qualitative research with PlwYOD and their significant others.
对年轻痴呆症（YOD）患者及其重要他人（即家人和/或朋友）来说，基于年轻痴呆症（YOD）的污名化是一项重大挑战，而对于一个希望具有包容性、确保社会参与并使所有人都能行使其公民权利和人权的社会来说，这也是一项重大挑战。STELDA 研究旨在根据年轻痴呆症患者（PlwYOD）及其重要他人的生活经验，建立一个关于年轻痴呆症患者污名化和污名化的理论框架，并在德国的社会文化背景下，从生活世界的层面找出抵制年轻痴呆症患者污名化过程的方法。研究问题如下PlwYOD 及其成年重要他人在其生活世界中如何体验基于 YOD 的成见和鄙视，这些体验对他们在其生活世界中的行动有何影响？本研究设计为建构主义基础理论（CGT）研究。我们将对居住在社区的 PlwYOD 及其成年重要他人进行定性的片段式访谈，让参与者有机会分享他们的个人叙事并表达他们的主观观点。研究结果将为公众和不同环境中的专业人员提供行动建议。在方法论层面上，我们将就与 PlwYOD 及其重要他人的定性研究相关的具体问题获得新的见解。
{"title":"Experience of Younger-Onset Dementia Stigma: Protocol for a Constructivist Grounded Theory Study Based on Qualitative Episodic Interviews With People Living With Dementia and Their Significant Others","authors":"Nora Berner, Andreas Hohmann, Betül Yilmaz, S. Teupen","doi":"10.1177/16094069241232346","DOIUrl":"https://doi.org/10.1177/16094069241232346","url":null,"abstract":"Stigma based on younger-onset dementia (YOD) is a significant challenge for individuals living with the condition and their significant others (i.e., family and/or friends) as well as for a society that aspires to be inclusive, ensure social participation, and enable all people to exercise their civil and human rights. The STELDA study aims to develop a theoretical framework of YOD stigma and stigmatization that is empirically grounded in the lived experience of people living with younger-onset dementia (PlwYOD) and their significant others and to identify ways of counteracting YOD stigmatization processes in the sociocultural context of Germany on a lifeworld level. The research question is as follows: How do PlwYOD and their adult significant others experience stigma and stigmatization based on YOD in their lifeworlds, and what implications do these experiences have for their actions in their lifeworlds? The study is designed as a constructivist grounded theory (CGT) study. Qualitative episodic interviews with community-dwelling PlwYOD and their adult significant others will be conducted to give participants the opportunity to share their individual narratives and express their subjective views. As an outcome, recommendations for action will be developed for the public and for professionals in diverse settings. On a methodological level, novel insights will be gained regarding specific issues related to qualitative research with PlwYOD and their significant others.","PeriodicalId":48220,"journal":{"name":"International Journal of Qualitative Methods","volume":null,"pages":null},"PeriodicalIF":5.4,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140527278","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
京公网安备 11010802042870号
京ICP备2023020795号-1
扫码关注我们
求助内容：
应助结果提醒方式：