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Early childhood sleep patterns and association with caregiver-child relationships in rural China: caregiver depression as a mediator. 中国农村儿童早期睡眠模式与照顾者-儿童关系的关系:照顾者抑郁的中介作用
IF 2.1 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2025-09-29 DOI: 10.1093/jpepsy/jsaf090
Yuyin Xiao, Boya Wang, Shanshan Li, Qi Jiang, Hanwen Zhang, Scott Rozelle

Background: Caregiver-child relationships are closely related to early childhood development outcomes. This study explores the association between child sleep patterns and the caregiver-child relationship in rural China and the mediating role of caregiver depression.

Method: Drawing on a survey of 776 children aged 5-25 months and their primary caregivers, we used ordinary least squares regression to analyze whether children's sleep patterns are associated with the caregiver-child relationship. We conducted mediation analyses to explore how caregiver depression mediated the association between children's sleep patterns and the caregiver-child relationship, and whether the association differed between mother- and grandmother-caregiving households. In analyzing the caregiver-child relationship, we used two of the most widely examined descriptive axes: care and control, where care is measured by the degree of warmth between the caregiver and the child, and control is measured by invasiveness (as opposed to autonomy), which reflects the degree to which the caregiver perceives the child as intrusive or overly demanding.

Results: Results show that caregivers of children with more sleep difficulties perceived less warmth and more invasion in their relationship with the child. Maternal depressive symptoms mediated the relationship between children's sleep and caregiver-child interactions by predicting caregivers' perceived invasion.

Conclusion: The findings provide new evidence on the relationship between children's sleep patterns and caregiver-child relationships in rural areas. Efforts to improve child development in low-resource settings should attend to both caregiver depression and child sleep quality.

背景:照顾者与儿童的关系与儿童早期发展结果密切相关。本研究旨在探讨中国农村儿童睡眠模式与照顾者-儿童关系的关系,以及照顾者抑郁的中介作用。方法:通过对776名5-25月龄儿童及其主要照顾者的调查,采用普通最小二乘回归分析儿童睡眠模式是否与照顾者-孩子关系相关。我们进行了中介分析,探讨照顾者抑郁如何介导儿童睡眠模式与照顾者-儿童关系之间的关联,以及这种关联在母亲和祖母照顾家庭之间是否存在差异。在分析照顾者与孩子的关系时,我们使用了两个最广泛研究的描述性轴:照顾和控制,其中照顾是通过照顾者和孩子之间的温暖程度来衡量的,而控制是通过侵入性(与自主性相反)来衡量的,这反映了照顾者认为孩子侵入或过度要求的程度。结果:结果表明,睡眠困难儿童的照顾者在与儿童的关系中感受到的温暖较少,侵犯较多。母亲抑郁症状通过预测照顾者的感知入侵来调节儿童睡眠与照顾者-儿童互动之间的关系。结论:研究结果为农村儿童睡眠模式与照料者关系的关系提供了新的证据。在资源匮乏的环境中,改善儿童发展的努力应该同时关注照顾者抑郁和儿童睡眠质量。
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引用次数: 0
Adolescents with diet-dependent chronic illness: motivation for healthy eating and well-being. 患有饮食依赖型慢性病的青少年:健康饮食和幸福的动机。
IF 2.1 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2025-09-25 DOI: 10.1093/jpepsy/jsaf080
Lika Hatzir, Rivka Tuval-Mashiach, Orit Pinhas-Hamiel, Mona Kidon, Tamar Silberg

Objective: Type 1 diabetes (T1D) and life-threatening food allergies (FAs) are two diet-dependent chronic illnesses (DDCIs) that require rigorous self-management centered on strict dietary monitoring. Grounded in self-determination theory, this study aimed to investigate differences in motivation for healthy eating and well-being among adolescents coping with DDCI, compared to individuals without DDCI. Additionally, it explored the mediating role of general health practices in the relationship between motivation for healthy eating and well-being.

Methods: A total of N = 116 adolescents, aged 10-18 years (T1D: N = 36, M±SD age = 15.28 ± 1.85; FA: N = 39, M±SD age = 13.31 ± 2.40; no-DDCI: N = 41, M±SD = 14.71 ± 1.76), completed questionnaires assessing motivation for healthy eating, general health practices, and well-being.

Results: Internal motivation for healthy eating was positively associated with general health practices in all 3 groups. A moderated-mediation model revealed that among adolescents with DDCI, internal motivation for healthy eating was positively associated with psychological well-being. Internal motivation was also positively associated with physical well-being, but only among adolescents with FA. Conversely, only among adolescents with T1D, external motivation for healthy eating was negatively associated with psychological and physical well-being. Lack of motivation for healthy eating was negatively associated with general health practices among adolescents with T1D and individuals without DDCI.

Conclusions: Adolescents with DDCI face challenges in adhering to healthy eating recommendations and translating knowledge into action. Targeted interventions are necessary to enhance internal and autonomously driven motivation for dietary changes. Personalized nutrition programs for adolescents living with DDCI may effectively promote self-management and overall well-being in this population.

目的:1型糖尿病(T1D)和危及生命的食物过敏(FAs)是两种饮食依赖型慢性疾病(DDCIs),需要严格的自我管理,以严格的饮食监测为中心。本研究以自我决定理论为基础,旨在探讨有DDCI的青少年与无DDCI的青少年在健康饮食动机和幸福感方面的差异。此外,它还探讨了一般健康实践在健康饮食动机和幸福感之间的关系中的中介作用。方法:共116例10-18岁青少年(T1D: N = 36, M±SD年龄= 15.28±1.85;FA: N = 39, M±SD年龄= 13.31±2.40;无ddci: N = 41, M±SD = 14.71±1.76),填写健康饮食动机、一般健康习惯和幸福感问卷。结果:在所有3组中,健康饮食的内在动机与一般健康习惯呈正相关。一个有调节的中介模型显示,在患有DDCI的青少年中,健康饮食的内在动机与心理健康呈正相关。内部动机也与身体健康呈正相关,但仅限于患有FA的青少年。相反,只有在患有T1D的青少年中,健康饮食的外部动机与心理和身体健康呈负相关。在患有T1D的青少年和没有DDCI的个体中,缺乏健康饮食的动机与一般健康习惯呈负相关。结论:患有DDCI的青少年在坚持健康饮食建议和将知识转化为行动方面面临挑战。有针对性的干预措施是必要的,以增强内部和自主驱动的饮食改变动机。针对患有DDCI的青少年的个性化营养计划可以有效地促进这一人群的自我管理和整体健康。
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引用次数: 0
Prospective associations between coping, benefit-finding and growth, and subjective well-being in youths with chronic health conditions: a two-wave cross-lagged analysis. 青少年慢性健康状况的应对、获益发现和成长与主观幸福感之间的前瞻性关联:两波交叉滞后分析
IF 2.1 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2025-09-24 DOI: 10.1093/jpepsy/jsaf087
Roman E von Rezori, Harald Baumeister, Reinhard W Holl, Thomas Meissner, Kirsten Minden, Annabel S Mueller-Stierlin, Svenja Temming, Petra Warschburger

Objective: Adolescents with chronic health conditions (CCs) face unique developmental challenges that affect their psychological well-being. Benefit-finding and growth (BFG) may serve as a psychological resource for this population. However, longitudinal evidence on the hypothesized predictors of BFG and its impact on subjective well-being (SWB) remains scarce. This study explores the reciprocal associations between emotion-focused coping, BFG, and SWB in adolescents with CCs.

Methods: The sample included 498 adolescents (aged 12-21 years) with type 1 diabetes, juvenile idiopathic arthritis, or cystic fibrosis receiving care in Germany. Using latent cross-lagged panel models, we analyzed the directionality of the relationships between coping strategies (acceptance, cognitive reappraisal, seeking social support), BFG, and SWB (satisfaction with life, positive well-being) over 1 year. Sociodemographic and disease-related variables were controlled.

Results: Seeking social support at T1 was significantly associated with higher levels of BFG at T2, whereas no significant prospective associations were observed for T1 acceptance and reappraisal. An inverse cross-lagged association was found between BFG at T1 and reappraisal at T2. Furthermore, BFG at T1 was significantly associated with higher satisfaction with life at T2.

Conclusions: This study provides the first longitudinal evidence of bidirectional relationships between emotion-focused coping and BFG, as well as BFG and SWB in adolescents with CCs. The findings highlight the crucial role of seeking social support in promoting BFG, which enhances adaptive emotion regulation and satisfaction with life. Future interventions should target social resources and cognitive coping strategies to improve psychological well-being in this population.

Clinical trial registration: German Clinical Trials Register (DRKS), no. DRKS00025125. Registered on May 17, 2021.

目的:青少年慢性健康状况(CCs)面临独特的发展挑战,影响他们的心理健康。利益发现和成长(BFG)可能是这一群体的心理资源。然而,关于BFG的假设预测因素及其对主观幸福感(SWB)影响的纵向证据仍然很少。本研究旨在探讨青少年cc患者情绪聚焦型应对、好心性人格和主观幸福感之间的相互关系。方法:样本包括498名在德国接受治疗的患有1型糖尿病、青少年特发性关节炎或囊性纤维化的青少年(12-21岁)。利用潜在交叉滞后面板模型,我们分析了1年内应对策略(接受、认知重评、寻求社会支持)、心心血管性人格和生活满意度(生活满意度、积极幸福感)之间的关系。控制社会人口学和疾病相关变量。结果:T1阶段寻求社会支持与T2阶段较高的BFG水平显著相关,而T1阶段接受和重新评价没有显著的前瞻性关联。T1时的BFG与T2时的重评价呈负相关。此外,T1时的BFG与T2时较高的生活满意度显著相关。结论:本研究首次提供了青少年cc患者情绪聚焦应对与BFG、BFG与主观幸福感之间双向关系的纵向证据。研究结果强调了寻求社会支持在促进BFG的关键作用,BFG可以增强适应性情绪调节和对生活的满意度。未来的干预应针对社会资源和认知应对策略,以改善这一人群的心理健康。临床试验注册:德国临床试验注册(DRKS)号。DRKS00025125。于2021年5月17日注册。
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引用次数: 0
Commentary: Beyond the burn: addressing structural roots of trauma and healing in pediatric injury. 评论:超越烧伤:解决儿童创伤和愈合的结构性根源。
IF 2.1 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2025-09-13 DOI: 10.1093/jpepsy/jsaf076
Zena Ebrahim, Colette Gramszlo
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引用次数: 0
Examining prospective memory and well-being among parents of children with chronic conditions. 研究慢性病儿童父母的前瞻记忆和幸福感。
IF 2.1 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2025-09-03 DOI: 10.1093/jpepsy/jsaf077
Erin E Harrington, Christina M Sharkey, Frances P Cooke, Mary Rose Yockel

Objective: Much of the literature that examines well-being in parent caregivers of children with chronic conditions addresses psychosocial correlates. Yet, few studies address an integral cognitive aspect of daily life, prospective memory (PM), in association with parent well-being. The present work addressed this gap and examined parents' self-reported PM demands related to managing their child's chronic conditions and frequency of PM forgetting to well-being.

Methods: A sample of 149 parents of children with chronic conditions completed an online survey including measures of parent and family demographics, PM demands, PM forgetting, perceptions of parenting self-efficacy, and well-being: depressive symptoms, anxious symptoms, general stress, and parenting-related stress. Hierarchical regression analyses evaluated the unique contributions of PM demands and forgetting to each well-being outcome over-and-above other known demographic correlates and perceptions of parenting self-efficacy.

Results: Analyses suggested that PM experiences, particularly forgetting, explained a significantly greater proportion of variance in each well-being outcome beyond the demographic factors and perceptions of parenting self-efficacy. Additionally, exploratory analyses revealed that there was an indirect effect of PM forgetting on each wellbeing outcome via self-efficacy, suggesting that greater confidence in one's parenting may explain the link between perceived forgetfulness and detriments to well-being.

Conclusion: The present work adds to the literature by documenting the unique effects of everyday cognitive experiences (PM demands and forgetting) in relation to parent caregiver well-being. These findings have important implications for possible interventions to improve caregivers' everyday remembering and well-being.

目的:许多研究慢性病儿童的父母照顾者的福祉的文献解决了社会心理相关问题。然而,很少有研究涉及日常生活的整体认知方面,前瞻记忆(PM),与父母的幸福。目前的工作解决了这一差距,并检查了父母自我报告的PM需求,这些需求与管理孩子的慢性疾病和PM遗忘的频率有关。方法:149名慢性疾病儿童的父母完成了一项在线调查,包括父母和家庭人口统计数据、PM需求、PM遗忘、育儿自我效能感和幸福感:抑郁症状、焦虑症状、一般压力和育儿相关压力。层次回归分析评估了PM需求和遗忘对每个幸福结果的独特贡献,超过了其他已知的人口统计学相关因素和父母自我效能感的感知。结果:分析表明,PM经历,特别是遗忘,解释了每个幸福结果中显著更大比例的差异,超出了人口因素和父母自我效能感的感知。此外,探索性分析显示,通过自我效能感,PM遗忘对每个幸福结果都有间接影响,这表明对父母的更大信心可能解释了感知健忘与幸福感损害之间的联系。结论:目前的工作通过记录日常认知体验(PM需求和遗忘)对父母照顾者幸福感的独特影响,增加了文献。这些发现对可能的干预措施有重要意义,可以改善照顾者的日常记忆和幸福感。
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引用次数: 0
Reported and observed daily feeding coparenting: links to marital quality among mothers and fathers of preschoolers. 报告和观察的日常喂养父母:学龄前儿童的父母之间的婚姻质量的联系。
IF 2.1 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2025-09-01 DOI: 10.1093/jpepsy/jsaf058
Lily M Messenger, William A Pickrell, Shayla C Holub, Jackie A Nelson

Objective: Parents' ability to cooperate and work as a team in feeding their children relates to positive health and relational outcomes. However, our understanding of feeding coparenting largely relies on parents' perceptions. It is unclear how mothers' and fathers' perceptions of feeding coparenting relate to objective ratings of these behaviors at mealtime and whether features of the marital relationship relate to measurements of feeding coparenting and discrepancies in couple members' perceptions of these dynamics.

Methods: The current study analyzed daily self-reports and observer ratings of feeding coparenting among dyads for 1 week, along with parent perceptions of marital quality, in a sample of 63 mother-father dyads present at their preschool-age child's dinner meal (266 dinner observations).

Results: Using a series a multilevel models, results showed mothers' daily perceptions of feeding coparenting related to ratings of feeding coparenting balance; parents' perceptions of daily feeding coparenting related to their reports of marital quality; and lower maternal feeding coparenting perceptions relative to their partner's perceptions related to lower mother-reported marital quality and higher father-reported marital quality.

Conclusions: Findings are discussed in terms of measurement considerations and contextual factors impacting feeding coparenting.

目的:父母在喂养孩子方面的合作和团队工作能力与积极的健康和关系结果有关。然而,我们对喂养父母的理解很大程度上依赖于父母的观念。目前尚不清楚母亲和父亲对喂养父母的看法如何与进餐时这些行为的客观评分有关,以及婚姻关系的特征是否与喂养父母的测量和夫妻成员对这些动态的看法的差异有关。方法:本研究分析了为期一周的每日自我报告和观察评分,以及父母对婚姻质量的看法,研究对象是63对出现在学龄前儿童晚餐上的父母对(266次晚餐观察)。结果:采用一系列的a -多水平模型,结果显示母亲的日常喂养父母的感知与喂养父母的平衡评分相关;父母对日常喂养父母的看法与其报告的婚姻质量相关;母亲对养育子女的认知相对于伴侣的认知较低与母亲报告的较低的婚姻质量和父亲报告的较高的婚姻质量有关。结论:研究结果讨论了测量考虑和环境因素影响喂养共育。
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引用次数: 0
Diabetes distress among caregivers of adolescents with type 1 diabetes. 1型糖尿病青少年照顾者的糖尿病困扰
IF 2.1 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2025-09-01 DOI: 10.1093/jpepsy/jsaf051
Tabitha McCarty, Hailey Inverso, Randi Streisand, Sydney Garretson, Emma Straton, Nkemjika Okonkwo, Sarah S Jaser

Objective: Diabetes distress (DD), the negative emotional response related to the burdens of diabetes management, has been studied primarily in adults with type 2 diabetes and youth with type 1 diabetes (T1D), but less is known about DD among caregivers of youth with T1D.

Methods: Caregivers of adolescents with T1D (n = 198, Mage = 45.6 ± 7.3, 84% female, 66% non-Hispanic White) were enrolled in a two-site randomized clinical trial aimed at treating DD among adolescents. The current study is a secondary analysis of baseline data to examine factors associated with DD among caregivers. Caregivers completed measures of DD, diabetes-related family conflict, and adolescents' diabetes self-management behaviors. Caregivers also reported on demographic factors, and clinical data were extracted from adolescents' medical records.

Results: Female caregivers, caregivers of younger adolescents, caregivers reporting lower household income, caregivers of lower subjective social status, and single/nonpartnered caregivers reported significantly higher caregiver DD. Further, after adjusting for demographic factors, higher diabetes-related family conflict and lower adolescent diabetes self-management behaviors were associated with significantly higher caregiver DD.

Conclusions: Correlates of caregiver DD provide insight into potential risks and modifiable factors that may help clinicians develop interventions to target caregiver DD to improve outcomes in both caregivers and adolescents with T1D.

目的:糖尿病困扰(DD)是一种与糖尿病管理负担相关的负性情绪反应,主要在2型糖尿病成人和1型糖尿病青年(T1D)中进行了研究,但对T1D青年护理者的DD了解较少。方法:将青少年T1D患者的护理人员(n = 198, Mage = 45.6±7.3,84%为女性,66%为非西班牙裔白人)纳入一项旨在治疗青少年DD的双中心随机临床试验。目前的研究是对基线数据的二次分析,以检查护理人员中与DD相关的因素。照顾者完成了DD、糖尿病相关家庭冲突和青少年糖尿病自我管理行为的测量。护理人员还报告了人口统计因素,并从青少年的医疗记录中提取了临床数据。结果:女性照护者、低龄青少年照护者、家庭收入较低的照护者、主观社会地位较低的照护者和单身/无伴侣照护者的照护者DD显著较高。此外,在调整人口统计学因素后,较高的糖尿病相关家庭冲突和较低的青少年糖尿病自我管理行为与较高的照护者DD显著相关。照顾者DD的相关因素提供了对潜在风险和可改变因素的洞察,这可能有助于临床医生制定针对照顾者DD的干预措施,以改善照顾者和患有T1D的青少年的结局。
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引用次数: 0
Anxiety in children and adolescents with chronic physical health conditions: an updated meta-analysis. 患有慢性身体健康状况的儿童和青少年的焦虑:一项最新的荟萃分析
IF 2.1 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2025-09-01 DOI: 10.1093/jpepsy/jsaf048
Martin Pinquart, Alexander Thorwarth

Objective: The present meta-analysis aimed to test whether young people with chronic physical health conditions (CPHC) show elevated anxiety levels.

Methods: Studies were included if they (a) compared levels of anxiety symptoms or the prevalence of anxiety disorders between young people with CPHC and their peers without such conditions or test norms, or they provided sufficient information for comparison with test norms or a control group from that country with a similar mean age, (b) assessed children or adolescents (≤18 years), and (c) were published or made available by September 2024. Risk for bias was evaluated using the Mixed Methods Appraisal Tool. A systematic search in the electronic databases, PsycInfo, MEDLINE, Google Scholar, and PSYNDEX, and cross-referencing identified 1,251 papers for inclusion in the multi-level meta-analysis.

Results: On average, children with CPHC had higher anxiety symptoms compared to controls (g = 0.31), with the highest effect sizes observed in young people with thalassemia (g = 0.80), chronic headache (g = 0.60), chronic fatigue syndrome (g = 0.54), and hearing impairment (g = 0.51). Higher between-group differences were observed in observer-ratings compared to self-ratings, in studies comparing participants with peers rather than test norms, in samples with higher proportions of female participants and ethnic minorities, and in studies from developing countries. Results also varied depending on which anxiety measure was used and certain indicators of study quality.

Conclusions: Efforts are needed to screen young people with CPHC for anxiety symptoms and implement measures to prevent or reduce elevated symptoms.

目的:本荟萃分析旨在检验患有慢性身体健康状况(CPHC)的年轻人是否表现出焦虑水平升高。方法:纳入以下研究:(a)比较年轻CPHC患者与没有此类条件或测试规范的同龄人之间的焦虑症状水平或焦虑障碍的患病率,或提供足够的信息与测试规范或来自该国的平均年龄相似的对照组进行比较,(b)评估的儿童或青少年(≤18岁),以及(c)在2024年9月之前发表或提供。使用混合方法评估工具评估偏倚风险。系统检索电子数据库,PsycInfo, MEDLINE,谷歌Scholar和PSYNDEX,并交叉参考确定了1251篇论文纳入多层次元分析。结果:平均而言,与对照组相比,患有CPHC的儿童有更高的焦虑症状(g = 0.31),在地中海贫血(g = 0.80)、慢性头痛(g = 0.60)、慢性疲劳综合征(g = 0.54)和听力障碍(g = 0.51)的年轻人中观察到的效应量最高。与自我评价相比,在观察者评价中观察到更大的组间差异,在比较参与者与同伴而不是测试规范的研究中,在女性参与者和少数民族比例较高的样本中,以及在来自发展中国家的研究中。结果也取决于使用的焦虑测量方法和研究质量的某些指标。结论:需要努力筛查青少年CPHC患者的焦虑症状,并采取措施预防或减少症状升高。
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引用次数: 0
Commentary: Moving from research to clinical support for caregivers of children with cleft lip and/or palate. 评论:从研究到对唇裂和/或腭裂儿童护理人员的临床支持。
IF 2.1 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2025-09-01 DOI: 10.1093/jpepsy/jsaf046
Frances P R Cooke, Christina M Sharkey
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引用次数: 0
Longitudinal psychological well-being in caregivers of young children with cleft lip and/or palate. 纵向心理健康的照顾幼儿与唇裂和/或腭裂。
IF 2.1 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2025-09-01 DOI: 10.1093/jpepsy/jsaf029
Nicola M Stock, Debora Blaso, Paul White, Laura Shepherd, Bruna Costa, Karine Edme, Richa Aspland, Matthew Hotton

Objective: Caregivers of children with chronic conditions can experience psychological distress and an impact on quality of life (QoL). Cleft lip and/or palate (CL/P) is one of the most common congenital conditions worldwide. Utilizing data extracted from The Cleft Collective cohort studies in the United Kingdom, this study investigated longitudinal psychological well-being in caregivers of young children with CL/P, to inform screening practices and early intervention.

Methods: Baseline (post-diagnosis) and 5-year questionnaire data were extracted for 525 caregivers (342 biological mothers, 183 fathers/partners). Outcome measures included the PedsQL-Family Impact Module, the Perceived Stress Scale, and the Hospital Anxiety and Depression Scale.

Results: QoL significantly improved from T1 (post-birth) to T2 (5 years) as reported by mothers and fathers/partners. At T2, scores on all measures were aligned with, or more favorable than, norms. A minority continued to report clinically significant levels of distress at 5 years. Predictors of poorer outcomes on all measures included a less positive life orientation, more negative appraisals of CL/P, less favorable baseline scores, lower healthcare satisfaction, and prior mental health conditions. Outcomes were also less favorable for caregivers of children with combined cleft lip and palate compared to other cleft types. Reductions in negative appraisals of CL/P were significantly associated with improved QoL over time.

Conclusions: QoL and psychological well-being in caregivers is generally positive at 5 years. A minority experienced poorer outcomes and routine assessment by a multidisciplinary team is therefore recommended. Targeting early negative appraisals may help to facilitate long-term caregiver adjustment.

目的:慢性疾病儿童的照顾者会经历心理困扰并影响其生活质量。唇裂和/或腭裂(CL/P)是世界上最常见的先天性疾病之一。利用英国Cleft集体队列研究的数据,本研究调查了CL/P幼儿照顾者的纵向心理健康状况,为筛查实践和早期干预提供信息。方法:提取525名照顾者(342名生母,183名父亲/伴侣)的基线(诊断后)和5年问卷数据。结果测量包括pedsql -家庭影响模块、感知压力量表和医院焦虑和抑郁量表。结果:母亲和父亲/伴侣报告的生活质量从T1(产后)到T2(5年)显著改善。在T2阶段,所有指标的得分都与标准一致,或者高于标准。少数患者在5年后仍有明显的临床痛苦水平。所有测量结果较差的预测因子包括较不积极的生活取向、较消极的CL/P评价、较不有利的基线评分、较低的医疗保健满意度和先前的精神健康状况。与其他类型的唇腭裂相比,照顾合并唇腭裂儿童的人的结果也不太好。随着时间的推移,CL/P负面评价的减少与生活质量的改善显著相关。结论:护理人员5年时的生活质量和心理健康状况总体为正。少数患者的预后较差,因此建议由多学科小组进行常规评估。针对早期的负面评价可能有助于促进长期照顾者的适应。
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引用次数: 0
期刊
Journal of Pediatric Psychology
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