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Physiotherapists' perspectives on factors affecting the scope of in-home palliative care treatments: a qualitative study. 物理治疗师对影响居家姑息关怀治疗范围的因素的看法:一项定性研究。
IF 1.6 4区 医学 Q2 REHABILITATION Pub Date : 2024-10-16 DOI: 10.1080/09593985.2024.2414111
Anat Woldman, Hadass Goldblatt, Michal Elboim-Gabyzon

Background: Physiotherapy has demonstrated significant benefits in enhancing quality of life and managing symptoms of people in need of palliative care (PC). Despite these benefits, palliative physiotherapy is infrequently integrated into community-based care, where most PC services are delivered. The limited prevalence of these treatments highlights the need to explore the factors influencing their delivery in home settings.

Objectives: This study‎ aimed to elucidate the factors that influence the scope of occasional in-home palliative physiotherapists' interventions as perceived by the physiotherapists who provide these treatments.

Methods: A qualitative study was conducted, involving 15 physiotherapists (nine women and six men), all employed by a Health Maintenance Organization (HMO), who typically work in community-based clinics but occasionally provide palliative physiotherapy treatments outside of their regular working hours. Data were collected via in-depth, semi-structured interviews, using an interview guide and analyzed using reflective thematic analysis.

Result: Two main themes emerged: (1) External factors influencing the scope of palliative physiotherapy treatments. These include patients' characteristics and their disposition toward palliative physiotherapy treatments, family dynamics amongst each other and with the physiotherapists, and interactions of the physiotherapists with the palliative multidisciplinary team; (2) Physiotherapists‎'‎ inclination to provide PC treatments. This theme encompasses the physiotherapists' knowledge, role perception, emotional experiences, and coping strategies during the provision of PC.

Conclusion: External and personal factors shape the scope of in-home PC treatments. Improving communication and addressing emotional challenges and coping strategies could enhance care delivery.

背景:物理治疗在提高需要姑息关怀(PC)的人的生活质量和控制症状方面具有显著的益处。尽管有这些益处,但姑息物理治疗很少被纳入社区护理中,而大多数姑息治疗服务都是在社区提供的。这些治疗方法的普及率有限,因此有必要探讨影响在家庭环境中提供这些治疗方法的因素:本研究旨在阐明提供居家姑息治疗的物理治疗师所认为的影响偶发性居家姑息物理治疗师干预范围的因素:我们开展了一项定性研究,涉及 15 名物理治疗师(9 名女性和 6 名男性),他们都受雇于一家健康维护组织 (HMO),通常在社区诊所工作,但偶尔会在正常工作时间之外提供姑息物理治疗。数据通过深入的半结构式访谈收集,采用访谈指南,并使用反思性主题分析法进行分析:结果:出现了两大主题:(1)影响姑息物理治疗范围的外部因素。这些因素包括患者的特征及其对姑息物理治疗的态度、患者家庭之间以及患者与物理治疗师之间的动态关系、物理治疗师与姑息多学科团队之间的互动;(2)物理治疗师提供 PC 治疗的倾向。这一主题包括物理治疗师在提供 PC 治疗过程中的知识、角色认知、情感体验和应对策略:外部和个人因素决定了居家 PC 治疗的范围。改善沟通、应对情绪挑战和应对策略可加强护理服务。
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引用次数: 0
Integrating physiotherapy into primary health care in Italy: qualitative focus group study examining perspectives of involved professionals. 意大利将物理治疗纳入初级医疗保健:焦点小组定性研究,探讨相关专业人员的观点。
IF 1.6 4区 医学 Q2 REHABILITATION Pub Date : 2024-10-14 DOI: 10.1080/09593985.2024.2414242
Matteo Paci, Andrea Quercioli, Samuele Natali, Lapo Bianchi, Elisa Buonandi, Laura Rosiello, Sandra Moretti

Introduction: The Community Physiotherapist model is an on-call service within the primary care setting, consisting of four consultations for people with chronic functional limitations. It was designed, developed and introduced as a project for the first time in Italy in 2021 and it has been shown to be effective and safe.

Purpose: Given the novelty of the model, this focus group study aims to explore the perspectives of involved physiotherapists, general practitioners and medical specialists on the perceived efficiency and quality of the service. A qualitative design was used with two balanced multidisciplinary focus groups of 12 participants. The Focus groups were audio recorded and transcribed verbatim. Data were analyzed using thematic analysis.

Results: Five themes emerged from the analysis, related to the speed of both referral and intervention, tailored interventions and perceived quality: Efficiency, Perceived quality, Project implementation, Training, and Project dissemination.

Conclusion: The study findings showed that the model was appreciated by the professionals involved, although some aspect about communication between professionals and with patients/caregivers, as well as some organizational aspects, needed improvement. Further research should address the perspectives of the patients/caregivers involved.

简介社区物理治疗师模式是基层医疗机构中的一种随叫随到的服务,包括为慢性功能障碍患者提供四次咨询。目的:鉴于该模式的新颖性,本焦点小组研究旨在探讨参与其中的物理治疗师、全科医生和医学专家对服务效率和质量的看法。研究采用了定性设计,设立了两个平衡的多学科焦点小组,共有 12 人参加。焦点小组进行了录音和逐字记录。采用主题分析法对数据进行分析:分析得出了五个主题,分别涉及转介和干预的速度、量身定制的干预措施和感知质量:效率、感知质量、项目实施、培训和项目传播:研究结果表明,该模式受到了相关专业人员的赞赏,但在专业人员之间以及与患者/护理人员之间的沟通方面,还有一些组织方面需要改进。进一步的研究应探讨相关患者/护理人员的观点。
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引用次数: 0
Evaluation of the Turkish version of measure of activity performance of the hand (MAP-Hand) in people with rheumatoid arthritis. 评估类风湿性关节炎患者手部活动能力测量(MAP-Hand)的土耳其版本。
IF 1.6 4区 医学 Q2 REHABILITATION Pub Date : 2024-10-13 DOI: 10.1080/09593985.2024.2415967
Devrim Can Sarac, Haluk Cinakli, Muhammet Baki Coban, Suheda Tosun, Seyma Dilan Altin, Altan Emircan Yarbuz, Annamaria Porreca, Dilek Solmaz, Servet Akar, Deniz Bayraktar

Background: Assessing hand function is essential for many people with rheumatoid arthritis (RA). The Measure of Activity Performance of the Hand (MAP-Hand) allows a rapid evaluation of the hand.

Objective: To translate the MAP-Hand into Turkish and investigate its psychometric properties.

Method: The MAP-Hand was translated into Turkish by using established translation guidelines. The questionnaire was pilot tested in 30 people with RA. Then, 185 adults with RA (150 women) participated in the study. Physical characteristics (age, sex, body mass index), socio-demographic information (education, employment, marital status), disease-related characteristics (RA medications, disease activity, duration of disease), hand strength (grip and pinch strengths), and patient reported outcome measures regarding pain, hand/upper extremity function, and general health status were collected. The Turkish MAP-Hand was re-administered to 109 participants in the following week.

Results: The Turkish MAP-Hand was acceptable and feasible to administer, and showed excellent internal consistency (Cronbach's α = 0.952, confidence interval, CI = 0.942 to 0.962, p < .001). The unidimensionality of the Turkish MAP-Hand was confirmed by Rasch Analysis. Test-retest reliability was excellent (Intraclass Correlation Coefficient = 0.908, CI = 0.868 to 0.936, p < .001). The Turkish MAP-Hand showed moderate negative correlations with hand strength (Pearson's r between -0.511 and -0.572, p < .05), and fair to excellent positive correlations with disease activity, pain, hand/upper extremity function, and general health status (Pearson's r between 0.437 and 0.915, p < .05).

Conclusion: The Turkish Map-Hand demonstrated adequate psychometric properties (internal consistency, structural validity, test-retest reliability, convergent validity) supporting the utility of its use for evaluating the activity performance of the hand in people with RA.

背景:对许多类风湿性关节炎(RA)患者来说,评估手部功能至关重要。手部活动表现测量法(MAP-Hand)可对手部进行快速评估:将 MAP-Hand 翻译成土耳其语,并研究其心理测量特性:方法:采用既定的翻译指南将 MAP-Hand 翻译成土耳其语。该问卷在 30 名 RA 患者中进行了试点测试。随后,185 名成人 RA 患者(150 名女性)参与了研究。研究收集了患者的身体特征(年龄、性别、体重指数)、社会人口信息(教育、就业、婚姻状况)、疾病相关特征(RA 药物、疾病活动、病程)、手部力量(握力和掐力),以及患者报告的疼痛、手部/上肢功能和总体健康状况等结果指标。在接下来的一周内,109 名参与者重新接受了土耳其 MAP-Hand 测试:结果:土耳其 MAP-Hand 可接受且可行,显示出良好的内部一致性(Cronbach's α = 0.952,置信区间 CI = 0.942 至 0.962,p p p p 结论):土耳其地图-手表现出了充分的心理测量特性(内部一致性、结构效度、测试-再测信度、收敛效度),支持将其用于评估RA患者的手部活动能力。
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引用次数: 0
Effects of telerehabilitation-implemented core stability exercises on patient-reported and performance-based outcomes in total knee arthroplasty patients: randomised controlled trial. 远程康复实施的核心稳定性练习对全膝关节置换术患者的患者报告结果和表现结果的影响:随机对照试验。
IF 1.6 4区 医学 Q2 REHABILITATION Pub Date : 2024-10-07 DOI: 10.1080/09593985.2024.2411312
Akın Süzer, Nihal Büker, Harun Reşit Güngör, Nusret Ök, Raziye Şavkin

Background: Face-to-face access to exercise programs, including standard exercises (SE) and core stability exercises (CSE), can be challenging for many total knee arthroplasty (TKA) patients.

Objectives: To investigate the effects of adding CSE to SE on patient-reported and performance-based outcomes in TKA patients using telerehabilitation (TR).

Methods: Group 1 (SE, n = 21) and Group 2 (SE+CSE, n = 21). Follow-up included videoconferences (1-8 weeks) and telephone calls (9-12 weeks). Assessments (preoperatively and at 1st, 2nd, and 3rd postoperative months) included; Western Ontario and McMaster Universities Osteoarthritis Index (WOMAC): functional level, Visual Analogue Scale (VAS): pain intensity, Copenhagen Knee Range of Motion (ROM) Scale (CKRS): knee ROM, Short Form-12 (SF-12) and World Health Organization Quality of Life Brief Version (WHOQOL-BREF): quality of life, 30-s Chair-Stand Test: muscle strength, and Stair Climb Test: locomotor performance.

Results: All assessments showed a significant improvement after treatment in group 1 (p < .001, Cohen's d = 0.315 to 0.959) and group 2 (p < .001, d = 0.445 to 0.901). There was no significant difference between groups in knee flexion ROM (p > .05). Group 2 achieved better results in functional level (p = .001 to 0.003,d = -0.334 to 1.207), pain intensity (p = .030,d = -0.334), knee extension ROM (p = .015,d = -0.374), quality of life (p = .001 to 0.046,d = -0.308 to -1.366), muscle strength (p = .002 to 0.016,d = -0.779 to -1.030), and locomotor performance (p = .004 to 0.009, d = 0.404 to 0.954).

Conclusion: SE and SE+CSE via TR enhance patient-reported and performance-based outcomes in post-operative TKA patients, with CSE providing additional benefits. These results support using CSE in TR programs for TKA and encourage further research on TR.

背景:对于许多全膝关节置换术(TKA)患者来说,面对面地参加包括标准运动(SE)和核心稳定性运动(CSE)在内的运动项目具有挑战性:目的:研究在 SE 基础上增加 CSE 对使用远程康复(TR)的全膝关节置换术(TKA)患者的患者报告结果和基于表现的结果的影响:第一组(SE,n = 21)和第二组(SE+CSE,n = 21)。随访包括视频会议(1-8 周)和电话(9-12 周)。评估(术前、术后第一、第二和第三个月)包括:西安大略和麦克马斯特大学骨关节炎指数(WOMAC):功能水平、视觉模拟量表(VAS):疼痛强度、哥本哈根膝关节活动范围量表(CKRS):膝关节活动范围、简表-12(SF-12)和世界卫生组织生活质量简明版(WHOQOL-BREF):生活质量、30 秒椅子站立测试:肌肉力量和爬楼梯测试:运动表现:结果:所有评估结果均显示,第 1 组在治疗后有明显改善(P P > .05)。第 2 组在功能水平(p = .001 to 0.003,d = -0.334 to 1.207)、疼痛强度(p = .030,d = -0.334)、膝关节伸展 ROM(p = .015,d = -0.374)、生活质量(p = .015,d = -0.374374)、生活质量(p = .001 至 0.046,d = -0.308 至 -1.366 )、肌肉力量(p = .002 至 0.016,d = -0.779 至 -1.030 )和运动表现(p = .004 至 0.009,d = 0.404 至 0.954):结论:通过TR进行SE和SE+CSE可提高TKA术后患者的患者报告结果和基于表现的结果,而CSE可带来额外的益处。这些结果支持在TKA的TR计划中使用CSE,并鼓励对TR进行进一步研究。
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引用次数: 0
Could aerobic exercise applied before constraint-induced movement therapy change circulating molecular biomarkers in chronic post-stroke? 在约束诱导运动疗法之前进行有氧运动,能否改变慢性中风后的循环分子生物标志物?
IF 1.6 4区 医学 Q2 REHABILITATION Pub Date : 2024-10-06 DOI: 10.1080/09593985.2024.2411311
Luisa Fernanda García-Salazar, Natalia Duarte Pereira, Erika Shirley Moreira Silva, Jean Alex Matos Ribeiro, Gabriela Nagai Ocamoto, Rafaella Mendes Zambetta, Simone Garcia de Oliveira, Aparecida Maria Catai, Alexandra Borstad, Thiago Luiz Russo

Background: Integrating aerobic exercise (AE) into rehabilitation programs for post-stroke individuals could enhance motor recovery and cardiovascular health by increasing brain-derived neurotrophic factor (BDNF) and the myokine irisin. Chronic stroke survivors typically exhibit elevated matrix metalloproteinase-9 (MMP-9) activity, which is negatively correlated with steps and time in medium cadence, although the impact of AE on this biomarker remains unclear.

Objective: To evaluate the effect of high-intensity AE training prior to modified constraint-induced movement therapy (mCIMT) on BDNF and irisin concentration, and on MMP-2 and MMP-9 activity in chronic post-stroke individuals and to associate these results with functional improvements.

Methods: Nine participants received AE combined with mCIMT for two weeks, while the control group (n = 7) received mCIMT alone. Manual dexterity and functional capacity were assessed before and after the intervention. Serum samples were analyzed for BDNF, irisin, MMP-2 and MMP-9.

Results: There were no significant main effects of assessment, group or interaction on molecular biomarkers. However, the AE group had a significant increase in MMP-9 activity post-intervention (p = .033; d = 0.67). For the Box and Block Test, there were significant main effects of assessment (F [1, 14] = 33.27, p = .000, ηp2 = 0.70) and group (F [1, 14] = 5.43, p = .035, ηp2 = .28). No correlations were found between biomarkers and clinical assessments.

Conclusion: AE prior to mCIMT did not influence circulating BDNF and irisin levels but did induce an acute rise in MMP-9 activity, suggesting potential effects on cardiovascular remodeling in this population.

背景:将有氧运动(AE)纳入脑卒中后患者的康复计划可通过增加脑源性神经营养因子(BDNF)和肌动素鸢尾素来促进运动恢复和心血管健康。慢性中风幸存者通常会表现出基质金属蛋白酶-9(MMP-9)活性升高,这与步数和中速时间呈负相关,但运动对这一生物标志物的影响仍不清楚:目的:评估在改良约束诱导运动疗法(mCIMT)之前进行高强度 AE 训练对慢性卒中后患者的 BDNF 和鸢尾素浓度以及 MMP-2 和 MMP-9 活性的影响,并将这些结果与功能改善联系起来:九名参与者接受为期两周的 AE 与 mCIMT 联合治疗,而对照组(n = 7)仅接受 mCIMT 治疗。在干预前后对手部灵活性和功能能力进行了评估。对血清样本进行了BDNF、鸢尾素、MMP-2和MMP-9分析:结果:评估、组别或交互作用对分子生物标志物没有明显的主效应。然而,干预后,AE 组的 MMP-9 活性显著增加(p = .033; d = 0.67)。在箱块测试中,评估(F [1, 14] = 33.27,p = .000,ηp2 = 0.70)和组别(F [1, 14] = 5.43,p = .035,ηp2 = .28)的主效应显著。生物标志物与临床评估之间没有相关性:结论:mCIMT前的AE不会影响循环中BDNF和鸢尾素的水平,但会引起MMP-9活性的急性上升,这表明AE对该人群的心血管重塑有潜在影响。
{"title":"Could aerobic exercise applied before constraint-induced movement therapy change circulating molecular biomarkers in chronic post-stroke?","authors":"Luisa Fernanda García-Salazar, Natalia Duarte Pereira, Erika Shirley Moreira Silva, Jean Alex Matos Ribeiro, Gabriela Nagai Ocamoto, Rafaella Mendes Zambetta, Simone Garcia de Oliveira, Aparecida Maria Catai, Alexandra Borstad, Thiago Luiz Russo","doi":"10.1080/09593985.2024.2411311","DOIUrl":"https://doi.org/10.1080/09593985.2024.2411311","url":null,"abstract":"<p><strong>Background: </strong>Integrating aerobic exercise (AE) into rehabilitation programs for post-stroke individuals could enhance motor recovery and cardiovascular health by increasing brain-derived neurotrophic factor (BDNF) and the myokine irisin. Chronic stroke survivors typically exhibit elevated matrix metalloproteinase-9 (MMP-9) activity, which is negatively correlated with steps and time in medium cadence, although the impact of AE on this biomarker remains unclear.</p><p><strong>Objective: </strong>To evaluate the effect of high-intensity AE training prior to modified constraint-induced movement therapy (mCIMT) on BDNF and irisin concentration, and on MMP-2 and MMP-9 activity in chronic post-stroke individuals and to associate these results with functional improvements.</p><p><strong>Methods: </strong>Nine participants received AE combined with mCIMT for two weeks, while the control group (<i>n</i> = 7) received mCIMT alone. Manual dexterity and functional capacity were assessed before and after the intervention. Serum samples were analyzed for BDNF, irisin, MMP-2 and MMP-9.</p><p><strong>Results: </strong>There were no significant main effects of assessment, group or interaction on molecular biomarkers. However, the AE group had a significant increase in MMP-9 activity post-intervention (<i>p</i> = .033; <i>d</i> = 0.67). For the Box and Block Test, there were significant main effects of assessment (<i>F</i> [1, 14] = 33.27, <i>p</i> = .000, <i>η</i><sub>p</sub><sup>2</sup> = 0.70) and group (<i>F</i> [1, 14] = 5.43, <i>p</i> = .035, <i>η</i><sub>p</sub><sup>2</sup> = .28). No correlations were found between biomarkers and clinical assessments.</p><p><strong>Conclusion: </strong>AE prior to mCIMT did not influence circulating BDNF and irisin levels but did induce an acute rise in MMP-9 activity, suggesting potential effects on cardiovascular remodeling in this population.</p>","PeriodicalId":48699,"journal":{"name":"Physiotherapy Theory and Practice","volume":" ","pages":"1-12"},"PeriodicalIF":1.6,"publicationDate":"2024-10-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142382084","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Progressive muscle relaxation, meditation, and mental practice-based interventions for the treatment of tremor after traumatic brain injury. 治疗脑外伤后震颤的渐进式肌肉放松、冥想和基于心理练习的干预措施。
IF 1.6 4区 医学 Q2 REHABILITATION Pub Date : 2024-10-01 Epub Date: 2023-08-08 DOI: 10.1080/09593985.2023.2243504
Ashley Hall Campbell, Kristen Barta, Michelle Sawtelle, Amy Walters

Background and purpose: Individuals post traumatic brain injury (TBI) are likely to experience cognitive, sensory, and motor impairments. Tremor is a common movement disorder that can affect this patient population. The purpose of this case report was to describe the effects that progressive muscle relaxation, meditation, and mental practice-based interventions have on the treatment of chronic right upper extremity tremor in a patient post-TBI.

Case description: A 47-year-old male with a traumatic brain injury presented with a resting and postural tremor of the right wrist flexors and deficits in cognition, sensation, proprioception, balance, and motor function. The patient's primary goal for therapy was to decrease the tremor to improve his quality of life and ability to perform activities of daily living.

Methods: Progressive muscle relaxation, breath-focused meditation, and mental practice-based intervention were administered to the patient. Active range of motion activities occurred during weekly in-person sessions and daily practice occurred at home.

Results: The patient demonstrated improvements in quality of life, self-ratings of tremor severity, ratings of tremor impact on ADL's, gross motor object manipulation, frequency of tremor via surface electromyography, and visual inspection of a spirograph.

Conclusion: A combination of progressive muscle relaxation, meditation, and mental practice-based interventions appeared to positively impact tremor across physical and psychosocial domains in a patient with a chronic tremor. Further investigation is needed to verify these findings.

背景和目的:创伤性脑损伤(TBI)后患者可能会出现认知、感官和运动障碍。震颤是一种常见的运动障碍,可能会影响这类患者。本病例报告旨在描述渐进式肌肉放松、冥想和基于心理练习的干预措施对治疗一名脑外伤后患者慢性右上肢震颤的效果:一名 47 岁的男性脑外伤患者出现右腕屈肌静止性和姿势性震颤,并伴有认知、感觉、本体感觉、平衡和运动功能障碍。患者治疗的首要目标是减少震颤,以提高生活质量和日常生活能力:方法:对患者进行渐进式肌肉放松、呼吸冥想和基于心理练习的干预。结果:患者的生活质量有所改善:结果:患者的生活质量、震颤严重程度的自我评分、震颤对日常活动能力影响的评分、粗大运动物体操作、表面肌电图显示的震颤频率以及蛛网膜视觉检查均有所改善:结论:结合渐进式肌肉放松、冥想和心理练习的干预措施似乎对慢性震颤患者的身体和社会心理领域产生了积极影响。要验证这些发现,还需要进一步的研究。
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引用次数: 0
The views and experiences of people with myeloma referred for autologous stem cell transplantation, who declined to participate in a physiotherapist-led exercise trial: a qualitative study. 拒绝参加物理治疗师指导的运动试验的骨髓瘤患者的观点和经历:一项定性研究。
IF 1.6 4区 医学 Q2 REHABILITATION Pub Date : 2024-10-01 Epub Date: 2023-08-09 DOI: 10.1080/09593985.2023.2244068
Orla McCourt, Abigail Fisher, Joanne Land, Gita Ramdharry, Kwee Yong

Background: Recruitment rates to rehabilitation trials are variable among cancer survivors, and deeper investigation into the causes for declining participation is needed. The aim of this study was to qualitatively explore the experiences of people with myeloma referred for autologous stem cell transplant who were approached to take part in a physiotherapist-led exercise trial but declined.

Methods: Participants were asked to participate in this qualitative study after declining to participate in a trial conducted at a UK tertiary cancer center. Semi-structured interviews were conducted. Data was analyzed inductively using reflexive thematic analysis.

Results: Interviews from 18 myeloma patients (56% male, mean age 62 years) were analyzed. Four themes were identified: 1) Traveling to the specialist center is challenging, not just logistically; 2) Individualized approach valued but recall of research information variable; 3) Being less active has profound impact yet ameliorative support is lacking; and 4) Common side-effects of treatment are expected and endured but personal impact underestimated and unaddressed.

Conclusion: A number of barriers to participation were identified. Travel, a commonly cited reason for declining research participation, is more than a logistical issue for cancer survivors experiencing side-effects and the time burden of clinical appointments. Expectation or knowledge of the typical side-effects from myeloma and its treatment may lead to under-reporting of concerns to care providers, despite their impact upon daily activities and quality of life. Approaches used for research recruitment should consider the timing and consequences of ongoing cancer treatment to reduce potential barriers to participation.

背景:在癌症幸存者中,康复试验的招募率参差不齐,因此需要对拒绝参与试验的原因进行更深入的调查。本研究旨在从定性角度探讨因自体干细胞移植而转诊的骨髓瘤患者的经历,这些患者曾被邀请参加理疗师指导的运动试验,但遭到拒绝:方法:参与者在拒绝参加英国一家三级癌症中心开展的试验后,被要求参加这项定性研究。研究人员进行了半结构化访谈。采用反思性主题分析法对数据进行归纳分析:对 18 名骨髓瘤患者(56% 为男性,平均年龄 62 岁)的访谈进行了分析。确定了四个主题1)前往专科中心具有挑战性,不仅仅是在后勤方面;2)个性化方法受到重视,但对研究信息的回忆却不尽相同;3)不太活跃会产生深远影响,但却缺乏改善支持;以及4)治疗的常见副作用是可以预期和忍受的,但个人影响却被低估且未得到解决:研究发现了一些阻碍参与的因素。旅行是癌症幸存者拒绝参与研究的一个常见原因,但对于经历过副作用和临床预约时间负担的癌症幸存者来说,旅行不仅仅是一个后勤问题。对骨髓瘤及其治疗的典型副作用的预期或了解可能会导致向护理提供者报告的问题不足,尽管这些副作用会影响日常活动和生活质量。用于研究招募的方法应考虑到正在进行的癌症治疗的时间和后果,以减少参与研究的潜在障碍。
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引用次数: 0
Physiotherapy provided for patients undergoing thoracic surgery in Sweden - a national survey of practice. 瑞典为胸外科手术患者提供的物理治疗--全国实践调查。
IF 1.6 4区 医学 Q2 REHABILITATION Pub Date : 2024-10-01 Epub Date: 2023-07-14 DOI: 10.1080/09593985.2023.2233596
Marcus Jonsson, Elisabeth Westerdahl, Julie Reeve

Introduction: Patients undergoing thoracic surgery commonly receive perioperative physio-therapy, typically consisting of education, mobilization, breathing exercises, and mobility exercises. To date, no study has described physiotherapy practice for patients undergoing thoracic surgery in Sweden.

Purpose: To investigate physiotherapy interventions for patients undergoing thoracic surgery in Sweden.

Methods: All physiotherapists currently working in thoracic surgery units in Sweden (n = 8) were eligible to participate. A survey was e-mailed to the physiotherapists, to determine physiotherapy interventions offered to patients undergoing thoracoscopy or open thoracic surgery. Of 21 physiotherapists, 13 (62%) responded, representing seven hospitals.

Results: Physiotherapists reported routinely providing preoperative education and postoperative treatment for all patients undergoing thoracic surgery. Breathing exercises and mobilization were usually initiated on the day of surgery or the first postoperative day. Common treatments were deep breathing exercises, with or without positive expiratory pressure, and airway clearance techniques. Upper limb and shoulder exercises were typically initiated on the first or second day after surgery. The most important factor reported to influence treatment choice was personal experience of the attending physiotherapist. No routine post-discharge rehabilitation was provided.

Conclusion: Physiotherapists in Sweden reported routinely treating patients scheduled for thoracic surgery, both pre and postoperatively. Prehabilitation or post-discharge rehabilitation was not routinely provided.

简介:接受胸外科手术的患者通常会接受围手术期物理治疗,通常包括教育、动员、呼吸练习和活动练习。目的:调查瑞典胸外科手术患者的物理治疗干预措施:所有目前在瑞典胸外科工作的物理治疗师(n = 8)均有资格参与。我们通过电子邮件向物理治疗师发送了一份调查问卷,以确定为胸腔镜手术或开胸手术患者提供的物理治疗干预措施。在 21 位物理治疗师中,有 13 位(62%)代表 7 家医院做出了回复:结果:物理治疗师报告称,他们为所有接受胸腔镜手术的患者提供常规的术前教育和术后治疗。呼吸练习和活动通常在手术当天或术后第一天开始。常见的治疗方法有深呼吸练习、呼气正压或不呼气正压以及气道清理技术。上肢和肩部运动通常在术后第一天或第二天开始。据报道,影响治疗选择的最重要因素是主治物理治疗师的个人经验。没有提供常规的出院后康复治疗:结论:瑞典的物理治疗师报告称,他们会对计划接受胸部手术的患者进行术前和术后的常规治疗。没有提供常规的术前康复或出院后康复治疗。
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引用次数: 0
The circular paradox of including people with severe brain injuries and reduced decisional capacity in research: A feasibility study exploring randomized research, consent-based recruitment biases, and the resultant health inequities. 将严重脑损伤和决策能力下降的人纳入研究的循环悖论:一项可行性研究,探索随机研究、基于同意的招募偏差以及由此导致的健康不平等。
IF 1.6 4区 医学 Q2 REHABILITATION Pub Date : 2024-10-01 Epub Date: 2023-07-21 DOI: 10.1080/09593985.2023.2236194
Teresa Clark, Agnieszka Lewko, Melania Calestani

Background: People with severe brain injuries (PSBI) and reduced capacity to consent (CTC) frequently develop muscle contractures. Standard care includes prolonged stretch (PS) but there is limited condition-specific evidence from randomized controlled trials (RCTs).

Purpose: Identify factors affecting the inclusion of PSBI and reduced CTC in a PS RCT and methodologies more capable of generating condition-specific outcomes.

Methods: Mixed-method feasibility studies, including a pilot RCT (PSBI, adults with reduced CTC) comparing PS treatments (serial casting and splinting) and focus groups/interviews with physiotherapists involved in PS treatment. Reflexive thematic analysis developed themes.

Results: Two PSBI were included in the pilot RCT with no significant safety concerns or adverse effects. Twelve physiotherapists participated in two focus groups and two interviews. Four themes were identified: 1) complexity of contracture management; 2) burden of decision making; 3) lack of evidence and uncertainty; and 4) challenges to RCT acceptability and feasibility.

Conclusions: Reduced CTC contributes to the exclusion of PSBI from experimental research, and a circular paradox where poor research inclusion contributes to generalized healthcare and "evidence-biased medicine." Due to the complexity of their condition, simply including PSBI in randomized research is unlikely to create meaningful health outcomes. Improving their care requires a paradigm shift toward pluralistic methods of knowledge generation.

背景:严重脑损伤(PSBI)和同意能力下降(CTC)的患者经常会出现肌肉挛缩。标准护理包括长时间拉伸(PS),但随机对照试验(RCT)中针对具体情况的证据有限。目的:确定影响将 PSBI 和 CTC 能力下降者纳入 PS RCT 的因素,以及更能产生针对具体情况结果的方法:混合方法可行性研究,包括一项试验性 RCT(PSBI,CTC 减少的成人),比较 PS 治疗(连续铸造和夹板)和焦点小组/参与 PS 治疗的理疗师访谈。结果:两项 PSBI 被纳入试验性 RCT,无重大安全问题或不良反应。12 名物理治疗师参加了两个焦点小组和两次访谈。确定了四个主题:1)挛缩管理的复杂性;2)决策负担;3)缺乏证据和不确定性;4)RCT可接受性和可行性面临的挑战:结论:CTC 的减少导致 PSBI 被排除在实验研究之外,并形成了一个循环悖论,即不良的研究纳入导致了普遍的医疗保健和 "证据偏倚医学"。由于 PSBI 病情的复杂性,简单地将其纳入随机研究不太可能产生有意义的健康结果。要改善对他们的护理,就必须转变模式,采用多元化的知识生成方法。
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引用次数: 0
Influence of home-based pulmonary rehabilitation program among people with interstitial lung disease: A pre-post study. 家庭肺康复计划对间质性肺病患者的影响:一项前后研究。
IF 1.6 4区 医学 Q2 REHABILITATION Pub Date : 2024-10-01 Epub Date: 2023-08-21 DOI: 10.1080/09593985.2023.2245878
Revati Amin, K Vaishali, G Arun Maiya, Aswini Kumar Mohapatra, Vishak Acharya, R Vani Lakshmi

Introduction: Access to interstitial lung disease programs may not be available in rural settings. Home-based pulmonary rehabilitation (PR) programs have been proposed as an alternative to hospital-based programs.

Method: Forty participants with ILD underwent a structured unsupervised home-based pulmonary rehabilitation program from September 2020 to September 2022. Quality of life was assessed using St. George Respiratory Questionnaire (SGRQ) and functional capacity using 6-minute walk test (6MWT). The outcome measures were assessed at baseline and 4 weeks post-unsupervised home-based PR program.

Result: We recruited 40 participants with ILD. There was statistically significant improvement in the 6-minute walk distance (353.8 m and 368 m, effect size - 0.5, p ≤ .001) and quality of life using SGRQ total score (38.6 and 42.35, effect size - 2.5, p ≤ .001) between before and after receiving home-based PR among all 40 participants with ILD.

Conclusion: Four weeks of home-based PR program, using minimal resources, deliver short-term improvements in functional exercise capacity and quality of life among ILD participants. Our home-based PR program resulted in a quarter percentage improvement in functional capacity, and we believe that if consistency is maintained, it will result in similar changes corresponding to the already established Minimal Clinically Important Difference (MCID) of 35 m.

引言:在农村地区可能无法获得间质性肺病项目。基于家庭的肺部康复(PR)计划已被提议作为基于医院的计划的替代方案。方法:从2020年9月到2022年9月,40名ILD参与者接受了一项结构化的无监督家庭肺部康复计划。使用圣乔治呼吸问卷(SGRQ)评估生活质量,使用6分钟步行测试(6MWT)评估功能能力。在基线和4 无监督的家庭公关计划后数周。结果:我们招募了40名患有ILD的参与者。6分钟步行距离有统计学意义的改善(353.8 m和368 m、 效果大小-0.5,p ≤ .001)和使用SGRQ总分的生活质量(38.6和42.35,效应大小-2.5,p ≤ .001)。结论:为期四周的家庭公关计划,使用最少的资源,可以在短期内改善ILD参与者的功能锻炼能力和生活质量。我们的家庭公关计划使功能能力提高了四分之一,我们相信,如果保持一致性,将导致类似的变化,对应于已经确定的35米的最小临床重要差异(MCID)。
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Physiotherapy Theory and Practice
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