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A Call for Transformative Intersectional LPAA Intervention for Equity and Social Justice in Ethnosocially Diverse Post-Stroke Aphasia Services. 在不同种族社会的中风后失语症服务中,呼吁变革性交叉LPAA干预以促进公平和社会正义。
IF 1 4区 医学 Q2 Nursing Pub Date : 2024-01-01 Epub Date: 2023-12-06 DOI: 10.1055/s-0043-1777131
José G Centeno

The disproportionate health disparities in ethnoracial groups highlighted by the COVID-19 pandemic catalyzed a sociopolitical momentum for transformative approaches in health care. As the U.S. population progressively becomes more ethnoracially diverse and older, growing vulnerable ethnogeriatric groups of older individuals with contrasting ethnic/racial and social histories are estimated to experience age-related cardiovascular complications with resulting chronic disabilities, such as post-stroke aphasia. Grounded in principles of equity and social justice, transformative health care approaches use input from marginalized communities to inform service strategies to minimize health disparities. This article discusses the population scenario, principles, and possible strategies to support the call for stakeholder-informed intervention toward the social reintegration of ethnosocially mixed geriatric populations with aphasia in the United States. Based on the principles from the Life Participation Approach to Aphasia (LPAA) and intersectional narratives, we discuss how client and caregiver stories can inform culturally authentic individualized aphasia intervention for social readaptation. We conclude with future directions in aphasia education, research, and practice to promote stakeholder-informed strategies for culturally aligned social reintegration of older ethnosocially diverse aphasia populations in post-stroke care.

2019冠状病毒病大流行凸显的族裔群体中不成比例的健康差异,催生了医疗保健变革方法的社会政治势头。随着美国人口逐渐变得越来越多的种族多样化和老龄化,越来越多的易受伤害的老年民族/种族和社会历史差异较大的老年人估计会经历与年龄相关的心血管并发症,导致慢性残疾,如中风后失语症。以公平和社会正义原则为基础,变革性卫生保健办法利用边缘化社区的投入,为服务战略提供信息,以尽量减少卫生差距。本文讨论了人口情况、原则和可能的策略,以支持利益相关者知情干预的呼吁,以实现美国种族社会混合老年失语症人群的社会重新融合。基于失语症的生活参与方法(LPAA)和交叉叙事的原则,我们讨论了来访者和照顾者的故事如何为失语症的社会再适应提供文化上真实的个性化干预。我们总结了失语症教育、研究和实践的未来方向,以促进利益相关者了解的策略,使老年失语症患者在卒中后护理中与文化一致的社会融合。
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引用次数: 0
Intersectionality in Aphasia Services for Ethnosocially Diverse Adult Populations. 为种族社会多元化成人群体提供的失语症服务中的交叉性。
IF 1 4区 医学 Q2 Nursing Pub Date : 2024-01-01 Epub Date: 2024-01-17 DOI: 10.1055/s-0043-1778016
José G Centeno, Jacqueline S Laures-Gore
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引用次数: 0
The Intersection of Social Determinants of Health and Post-stroke Aphasia Outcomes: A Need for Intersectional Analysis. 健康和卒中后失语症结果的社会决定因素的交叉:需要进行交叉分析。
IF 1 4区 医学 Q2 Nursing Pub Date : 2024-01-01 Epub Date: 2023-09-26 DOI: 10.1055/s-0043-1774783
Elizabeth Evans, Molly Jacobs, Charles Ellis

Aphasia is a disorder that results from damage to portions of the brain that are responsible for language and can vary significantly by type and severity. Differences in aphasia outcomes are influenced by the social determinants of health (SDOH). The SDOH are structural, environmental, and personal determinants that influence health outcomes. Intersectionality, or how one's social and political identities interact to influence individual life outcomes and/or advantage in our society, provides a way to examine the varying levels of the SDOH. However, intersectionality is complex, difficult to measure, and has not yet been explored in post-stroke aphasia outcomes. This article reviews the relationship of race and aphasia outcomes and the SDOH and aphasia outcomes. Additionally, we provide a novel current approach to examine the SDOH and aphasia outcomes. Lastly, we discuss the need for evaluation of intersectionality in aphasia and aim to provide a leveled social-ecological framework to examine aphasia-related outcomes. With notable individual differences among aphasia outcomes, we present a framework to support optimizing research and clinical aphasia care in speech-language pathology.

失语症是一种由大脑负责语言的部分受损引起的疾病,不同类型和严重程度会有很大差异。失语症结果的差异受到健康的社会决定因素(SDOH)的影响。SDOH是影响健康结果的结构、环境和个人决定因素。交叉性,或一个人的社会和政治身份如何相互作用,以影响我们社会中的个人生活结果和/或优势,提供了一种检查SDOH不同水平的方法。然而,交叉性是复杂的,难以测量,并且尚未在卒中后失语症的结果中进行探索。本文综述了种族和失语症结果以及SDOH和失语病结果之间的关系。此外,我们提供了一种新的当前方法来检查SDOH和失语症的结果。最后,我们讨论了评估失语症交叉性的必要性,并旨在提供一个水平的社会生态框架来检查失语症相关的结果。由于失语症结果之间存在显著的个体差异,我们提出了一个框架来支持言语语言病理学中优化研究和临床失语症护理。
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引用次数: 0
Understanding and Addressing the Individualized Emotional Impact of Aphasia: A Framework for Speech-Language Pathologists. 理解和处理失语症的个体化情绪影响:言语语言病理学家的框架。
IF 1 4区 医学 Q2 Nursing Pub Date : 2024-01-01 Epub Date: 2023-11-22 DOI: 10.1055/s-0043-1776418
Tyson G Harmon

Emotion plays an integral role in communication and has long been considered relevant to aphasia rehabilitation. Speech-language pathologists (SLPs), however, may sometimes wonder how or whether to address emotional responses. The purpose of this article was to (1) present a framework that clinicians can use to understand individualized emotional responses in aphasia and (2) discuss examples of how the framework informs practical strategies that SLPs can use to provide emotional support to people with aphasia (PWA). Drawing upon a cognitive-motivational-relational theory of emotions perspective combined with emerging research in aphasia, I show that emotion impacts and is impacted by both language processing and social participation, but this impact should be interpreted in light of individual variability. Personal characteristics, environmental conditions, and cognitive appraisal, considered within a specific cultural context, help account for individualized emotional responses. SLPs should consider interactions among emotional response, language processing, and social participation in aphasia while recognizing each person's unique perception of the situation and resources to cope with it. Additionally, the presented framework provides insights about how SLPs could offer emotional support to PWA. Specific examples related to harnessing situational demands to improve communication, employing active listening, facilitating reappraisal, and strengthening social support are discussed.

情绪在沟通中起着不可或缺的作用,长期以来被认为与失语康复有关。然而,语言病理学家(slp)有时可能想知道如何或是否处理情绪反应。本文的目的是:(1)提供一个框架,临床医生可以使用它来理解失语症患者的个性化情绪反应;(2)讨论该框架如何告知实用策略的示例,slp可以使用该框架为失语症患者提供情感支持。基于认知-动机-关系情绪理论的观点,结合失语症的新兴研究,我表明情绪影响并受到语言处理和社会参与的影响,但这种影响应根据个体差异来解释。在特定的文化背景下,个人特征、环境条件和认知评价有助于解释个性化的情绪反应。slp应考虑失语症患者的情绪反应、语言处理和社会参与之间的相互作用,同时认识到每个人对情况的独特感知和应对资源。此外,所提出的框架提供了关于slp如何为PWA提供情感支持的见解。本文讨论了利用情境需求来改善沟通、积极倾听、促进重新评估和加强社会支持的具体例子。
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引用次数: 0
The Impact of Parkinson's Disease on Social Communication: An Exploratory Questionnaire Study. 帕金森病对社会交往的影响:一项探索性问卷研究。
IF 1 4区 医学 Q2 Nursing Pub Date : 2023-11-01 Epub Date: 2023-09-14 DOI: 10.1055/s-0043-1773804
Saryu Sharma, Kimberly Fleck, Sherri Winslow, Kathrin Rothermich

Individuals with Parkinson's disease (PD) often show breakdown in the production and interpretation of aspects of social communication. However, there is no current method of assessment for evaluating social communication dysfunction in individuals with PD. The aim of this study was to develop a self-report questionnaire for individuals with PD to identify their social communication skills, and further recognize the impact of PD on social communication. Fifty-one individuals with Parkinson's disease answered 28 survey questions. These questions pertained to emotional expression and perception, social communication, sarcasm/humor, and pragmatic skills. Exploratory factor analysis and reliability analysis were conducted to identify items loading onto the factors and to check the internal consistency of the items. Individuals with PD reported changes in emotional expression and perception, social communication, sarcasm and humor, and pragmatic skill domains post-PD diagnosis. No correlations were found between age or time since diagnosis and emotional expression, social communication, sarcasm, and humor. This study provides self-reported evidence that individuals with PD experience social communication challenges. Future research should further quantify these challenges, study their impact on daily communicative functioning, and use the results to develop social communication interventions that improve the quality of life for persons with PD.

帕金森氏症(PD)患者经常表现出社会沟通方面的生产和解释的崩溃。然而,目前尚无评估PD患者社交障碍的方法。本研究旨在为PD患者编制一份自我报告问卷,以了解PD患者的社会沟通能力,并进一步了解PD对社会沟通的影响。51名帕金森病患者回答了28个调查问题。这些问题涉及情感表达和感知、社会沟通、讽刺/幽默和实用技巧。进行探索性因子分析和信度分析,识别各因子上的加载项,并检验各因子的内部一致性。PD患者报告了PD诊断后情绪表达和感知、社会沟通、讽刺和幽默以及实用技能领域的变化。年龄或诊断后的时间与情绪表达、社会沟通、讽刺和幽默之间没有相关性。本研究提供了PD患者经历社会沟通挑战的自我报告证据。未来的研究应该进一步量化这些挑战,研究它们对日常交流功能的影响,并利用结果开发改善PD患者生活质量的社会交流干预措施。
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引用次数: 0
Strategies for Teaching Verbs to Children with and without Language Impairment. 语言障碍儿童和非语言障碍儿童动词教学策略。
IF 1 4区 医学 Q2 Nursing Pub Date : 2023-11-01 Epub Date: 2023-09-27 DOI: 10.1055/s-0043-1773785
Alison Prahl, Jena McDaniel

The aim of this feasibility study was to extend the current evidence base on intransitive verb learning by evaluating and comparing three strategies (syntactic cues, semantic cues, combined cues) for teaching novel verbs to expand the vocabularies of children with and without language impairment. Twenty-three children with typical development, seven children with developmental language disorder, and eight children with Down syndrome participated in Studies 1, 2, and 3, respectively. They were taught novel, intransitive verbs using syntactic, semantic, and combined cues and then asked to receptively identify and expressively label the novel verbs. Across all conditions, participants learned novel verbs receptively with large effect sizes and participants with typical development and Down syndrome also learned the verbs expressively with large effect sizes. There were no significant differences between conditions. This study extends word-learning research by evaluating not only receptive but also expressive intransitive verb learning to expand one's vocabulary. The results provide positive evidence for three effective strategies for teaching intransitive verbs to children with and without language impairment.

本可行性研究的目的是通过评估和比较三种策略(句法线索、语义线索、组合线索)来扩展当前不及物动词学习的证据基础,以扩展有语言障碍和无语言障碍儿童的词汇量。23名典型发育儿童、7名发育性语言障碍儿童和8名唐氏综合症儿童分别参加了研究1、2和3。他们被教导使用句法、语义和组合线索的新颖的不及物动词,然后被要求接受地识别和表达地标记新颖的动词。在所有条件下,参与者都能接受地学习具有较大效果大小的新动词,而具有典型发展和唐氏综合症的参与者也能表达地学习具有大效果大小的动词。两种情况之间没有显著差异。本研究扩展了单词学习研究,不仅评估了接受动词的学习,还评估了表达不及物动词的学习以扩展词汇量。研究结果为向有和无语言障碍的儿童教授不及物动词的三种有效策略提供了积极的证据。
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引用次数: 0
Foreword. 前言。
IF 1 4区 医学 Q2 Nursing Pub Date : 2023-11-01 Epub Date: 2023-12-06 DOI: 10.1055/s-0043-1777085
Kaitlin Lansford, Anthony D Koutsoftas
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引用次数: 0
Students' Perception of a Virtual Dissection Laboratory in Undergraduate Anatomy and Physiology of Speech and Hearing: A Focus Group Study. 本科生语音生理解剖学虚拟解剖实验室的学生感知:一项焦点小组研究。
IF 1 4区 医学 Q2 Nursing Pub Date : 2023-11-01 Epub Date: 2023-11-08 DOI: 10.1055/s-0043-1776354
Erin J Bush, Erika Jones, Richelle Dietz, Katelyn J Kotlarek

Hands-on laboratory experience that allows for manipulation of realistic and relevant materials in course curricula has been shown to improve students' learning, understanding, and critical thinking skills. The purpose of this study was to gain insight into the experiences of students who engaged in laboratory coursework using a virtual dissection (VD) table as part of an undergraduate course in anatomy and physiology of speech and hearing. Undergraduate students enrolled in an anatomy and physiology of speech and hearing course at a single university for the fall 2021 semester consented to participate. Nine students, divided into two focus groups, were encouraged to describe their experiences and perspectives about the VD table and corresponding laboratory assignments. Following verbatim transcription of the data, the authors conducted a thematic analysis. Five themes emerged from the body of data: (1) using the VD table, (2) completing the VD lab assignments, (3) preparation for laboratory sessions, (4) suggested modifications, and (5) enriched learning. Students believed using the VD table aided in a better understanding of course material than traditional methods. Moreover, they surmised that this method of learning, particularly for speech-language pathologists, may be superior to learning through models and cadavers.

实践实验室经验,允许在课程中操作现实和相关的材料,已被证明可以提高学生的学习、理解和批判性思维技能。本研究的目的是深入了解在语音和听力解剖学和生理学本科生课程中使用虚拟解剖(VD)表进行实验室课程的学生的经历。2021年秋季学期在一所大学注册的语音和听力解剖学和生理学课程的本科生同意参加。九名学生被分为两个重点小组,他们被鼓励描述自己对VD表和相应实验室作业的经验和看法。在逐字记录数据之后,作者进行了专题分析。数据中出现了五个主题:(1)使用VD表,(2)完成VD实验室作业,(3)为实验室会议做准备,(4)建议修改,以及(5)丰富学习。学生们认为,使用VD表比传统方法有助于更好地理解课程材料。此外,他们推测,这种学习方法,尤其是对言语语言病理学家来说,可能比通过模型和尸体学习要好。
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引用次数: 0
Transadaptation and Validation of the Telugu Version of the Dysphagia Handicap Index. 泰卢固语版吞咽困难障碍指数的转换和验证。
IF 1 4区 医学 Q2 Nursing Pub Date : 2023-08-01 Epub Date: 2023-07-31 DOI: 10.1055/s-0043-1771510
Philemon Benison Dasari, Himanshu Verma, Harisha Madishetty, Jothirmai Pagidimarri, Janaki Balaji

Dysphagia Handicap Index (DHI) is a clinically effective, concise, and user-friendly tool for assessing the functional impact of dysphagia in clinical populations. The present study aims to trans-adapt the DHI in the Telugu language and assesses its psychometric properties. The present study was conducted in two phases. The first phase includes translating and adapting the DHI tool into Telugu (T-DHI). The second phase includes an analysis of the psychometric properties of the trans-adapted Telugu version of the DHI. The DHI was translated into the Telugu language using the forward-backward translation method. The psychometric analysis was done on 100 participants. All the participants underwent a detailed clinical swallow examination after filling the T-DHI. The overall internal consistency and Guttmann split-half reliability for the Telugu version of the DHI were good. The correlation between the T-DHI subscales and the self-perceived severity of dysphagia was found to be high. The comparison of the T-DHI scores of the control and experimental groups revealed a significant difference. The T-DHI is a reliable and valid tool to assess the quality of life of the Telugu-speaking dysphagia population.

吞咽困难障碍指数(DHI)是一种临床有效、简洁、用户友好的工具,用于评估临床人群中吞咽困难的功能影响。本研究旨在对泰卢固语中的DHI进行改写,并评估其心理测量特性。本研究分两个阶段进行。第一阶段包括将DHI工具翻译成泰卢固语(T-DHI)。第二阶段包括对经翻译的泰卢固语版DHI的心理测量特性的分析。DHI采用前后翻译法翻译成泰卢固语。对100名参与者进行了心理测量分析。所有参与者在填充T-DHI后都接受了详细的临床吞咽检查。泰卢固语版DHI的整体内部一致性和Guttmann分半可靠性良好。T-DHI分量表与吞咽困难的自我感知严重程度之间的相关性很高。对照组和实验组的T-DHI评分比较显示出显著差异。T-DHI是评估泰卢固语吞咽困难人群生活质量的可靠有效工具。
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引用次数: 0
Exploring the Caregiver-Reported Impact of the COVID-19 Pandemic on Children with Traumatic Brain Injury. 探讨新冠肺炎大流行对创伤性脑损伤儿童护理人员报告的影响。
IF 1 4区 医学 Q2 Nursing Pub Date : 2023-08-01 Epub Date: 2023-06-16 DOI: 10.1055/s-0043-1770346
Jessica Salley Riccardi

The COVID-19 pandemic is expected to have a persistent, negative, and disproportionate impact on children with disabilities. Children with traumatic brain injury (TBI) may be expected to experience a disproportionate impact given the deficits often associated with childhood TBI (e.g., family functioning, fatigue, executive functioning, quality of life). This study aimed to explore the impact of the COVID-19 pandemic on children with TBI and their families, compared to typically developing (TD) children and their families. Thirty caregivers (TBI = 15; TD = 15) completed a series of electronic survey measures. Overall, caregivers reported no negative impact of the COVID-19 pandemic on their family's or child's functioning and association with demographic factors and domains of functioning showed no clear patterns. The findings of this exploratory study support continued longitudinal investigation with larger sample sizes of the provision of supports for all families and children in light of the COVID-19 pandemic. Additional research is needed to understand the effectiveness of targeted services for students with TBI in domains of functioning that are significantly poorer than TD children (e.g., quality of life, executive functioning, fatigue).

预计新冠肺炎大流行将对残疾儿童产生持续、负面和不成比例的影响。考虑到与儿童创伤性脑损伤相关的缺陷(例如,家庭功能、疲劳、执行功能、生活质量),患有创伤性脑损伤(TBI)的儿童可能会受到不成比例的影响。本研究旨在探讨新冠肺炎大流行对TBI儿童及其家庭的影响,与典型发育中(TD)儿童及其家庭相比。30名护理人员(TBI = 15;TD = 15) 完成了一系列电子调查措施。总体而言,护理人员报告新冠肺炎大流行对其家庭或儿童的功能没有负面影响,与人口统计学因素和功能领域的关联也没有显示出明确的模式。这项探索性研究的结果支持了在新冠肺炎大流行的背景下,通过更大的样本量为所有家庭和儿童提供支持的持续纵向调查。需要进行更多的研究,以了解针对TBI学生的功能领域(如生活质量、执行功能、疲劳)的有效性。
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引用次数: 0
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Seminars in Speech and Language
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