Pub Date : 2021-01-01DOI: 10.20986/MEDPAL.2021.1260/2021
Ignacio Fernández Granell, J. B. Osuna, J. M. García, Lara Asencio Bordonaba
{"title":"Valoración y seguimiento de pacientes y familias por parte del equipo de psicólogos de cuidados paliativos","authors":"Ignacio Fernández Granell, J. B. Osuna, J. M. García, Lara Asencio Bordonaba","doi":"10.20986/MEDPAL.2021.1260/2021","DOIUrl":"https://doi.org/10.20986/MEDPAL.2021.1260/2021","url":null,"abstract":"","PeriodicalId":49831,"journal":{"name":"Medicina Paliativa","volume":"394 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"68136516","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-01-01DOI: 10.20986/medpal.2021.1275/2021
L. Arce Gálvez, Laura Andrea Ramírez Abadía, Isabel Cristina Londoño Ossa
{"title":"Sedación paliativa en el paciente pediátrico","authors":"L. Arce Gálvez, Laura Andrea Ramírez Abadía, Isabel Cristina Londoño Ossa","doi":"10.20986/medpal.2021.1275/2021","DOIUrl":"https://doi.org/10.20986/medpal.2021.1275/2021","url":null,"abstract":"","PeriodicalId":49831,"journal":{"name":"Medicina Paliativa","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"68136555","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-01-01DOI: 10.20986/medpal.2021.1306/2021
Manuel Ramón Castillo Padrós, Denise Pergolizzi
{"title":"Editorial de los coordinadores de las XIV Jornadas Internacionales SECPAL","authors":"Manuel Ramón Castillo Padrós, Denise Pergolizzi","doi":"10.20986/medpal.2021.1306/2021","DOIUrl":"https://doi.org/10.20986/medpal.2021.1306/2021","url":null,"abstract":"","PeriodicalId":49831,"journal":{"name":"Medicina Paliativa","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"68137710","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-01-01DOI: 10.20986/MEDPAL.2021.1149/2020
Ainhoa Unzurrunzaga Díaz, María Areses Manrique, Raquel Jaso Tejera, Esther Martínez Becerro, Mario Loureiro Sanchez, F. Benito
{"title":"Neumonía en pacientes con demencia avanzada: enfoque terapéutico adoptado en un servicio de medicina interna de un hospital de media larga estancia","authors":"Ainhoa Unzurrunzaga Díaz, María Areses Manrique, Raquel Jaso Tejera, Esther Martínez Becerro, Mario Loureiro Sanchez, F. Benito","doi":"10.20986/MEDPAL.2021.1149/2020","DOIUrl":"https://doi.org/10.20986/MEDPAL.2021.1149/2020","url":null,"abstract":"","PeriodicalId":49831,"journal":{"name":"Medicina Paliativa","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"68130746","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-01-01DOI: 10.20986/MEDPAL.2021.1192/2020
Alicia Freijo Martínez, Lorena García Cabrera, Alberto Artiles Medina, L. Cano
{"title":"Caso clínico: Atención integral de las necesidades paliativas en paciente nonagenario con cáncer de pene avanzado y úlcera tumoral","authors":"Alicia Freijo Martínez, Lorena García Cabrera, Alberto Artiles Medina, L. Cano","doi":"10.20986/MEDPAL.2021.1192/2020","DOIUrl":"https://doi.org/10.20986/MEDPAL.2021.1192/2020","url":null,"abstract":"","PeriodicalId":49831,"journal":{"name":"Medicina Paliativa","volume":"28 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"68131804","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-01-01DOI: 10.20986/MEDPAL.2021.1213/2020
Emília Comas Carbonell, M. P. Campdepadrós, Ester Busquets i Alibés, Dolors Mateo Ortega
Introduction: Cancer is considered a life-threatening disease as it implies the probability that the child will die prematurely. There is little information from the pediatric patient's perspective about their psychological experience in life-threatening situations. This study aims to expand knowledge in this area by presenting the experience of a child cancer survivor in life-threatening situations. Patient and methods: 9-year-old patient who was diagnosed with osteosarcoma in the femur. A case study design is followed, in which the information was collected through a semi-structured interview, and an interpretative phenomenological analysis was carried out with the resulting data. Results: The main feelings experienced in life-threatening situations were fear, sadness and impotence. One of the trigger factors was to think about the possibility of being separated from his parents. This experience had an impact on his life and shaped his identity. To deal with this difficult situation, he used approach coping strategies, such as emotional connection, and avoidance, such as distraction, humor, and forgetting. Discussion: The emotional reactions to the experience and the impact that this had on the minor's life can be interpreted within the Pediatric Medical Traumatic Stress model. Knowing the experience from the point of view of the pediatric patient, together with his way of coping with it, can help to reinforce or adapt the interventions for clinical practice.
{"title":"La experiencia psicológica de un paciente pediátrico con cáncer en momentos de amenaza vital: Estudio de caso","authors":"Emília Comas Carbonell, M. P. Campdepadrós, Ester Busquets i Alibés, Dolors Mateo Ortega","doi":"10.20986/MEDPAL.2021.1213/2020","DOIUrl":"https://doi.org/10.20986/MEDPAL.2021.1213/2020","url":null,"abstract":"Introduction: Cancer is considered a life-threatening disease as it implies the probability that the child will die prematurely. There is little information from the pediatric patient's perspective about their psychological experience in life-threatening situations. This study aims to expand knowledge in this area by presenting the experience of a child cancer survivor in life-threatening situations. Patient and methods: 9-year-old patient who was diagnosed with osteosarcoma in the femur. A case study design is followed, in which the information was collected through a semi-structured interview, and an interpretative phenomenological analysis was carried out with the resulting data. Results: The main feelings experienced in life-threatening situations were fear, sadness and impotence. One of the trigger factors was to think about the possibility of being separated from his parents. This experience had an impact on his life and shaped his identity. To deal with this difficult situation, he used approach coping strategies, such as emotional connection, and avoidance, such as distraction, humor, and forgetting. Discussion: The emotional reactions to the experience and the impact that this had on the minor's life can be interpreted within the Pediatric Medical Traumatic Stress model. Knowing the experience from the point of view of the pediatric patient, together with his way of coping with it, can help to reinforce or adapt the interventions for clinical practice.","PeriodicalId":49831,"journal":{"name":"Medicina Paliativa","volume":"28 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"68133257","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-01-01DOI: 10.20986/medpal.2021.1243/2021
Valérie Buscemi, M. López, O. Bosch, S. Crespo, Xavier Costa, Sara Eda Persentili, Carlota Noguera
{"title":"Aprendiendo de la experiencia del duelo en el contexto de la pandemia por el COVID-19.","authors":"Valérie Buscemi, M. López, O. Bosch, S. Crespo, Xavier Costa, Sara Eda Persentili, Carlota Noguera","doi":"10.20986/medpal.2021.1243/2021","DOIUrl":"https://doi.org/10.20986/medpal.2021.1243/2021","url":null,"abstract":"","PeriodicalId":49831,"journal":{"name":"Medicina Paliativa","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"68134349","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-01-01DOI: 10.20986/medpal.2021.1246/2021
Victoria Valdebenito Mac Farlane, Renata Sánchez Egaña
Objective: The aim of this research is to understand the perceptions of families about the effects of hospital clowns on the quality of life of children and families in an Oncological Palliative Care Unit of a Chilean public hospital. Method: Under a qualitative, emergent, cross-sectional design and strict ethical considerations, we used in-depth interview technique and discussion group. Sixteen mothers who went through the experience of palliative care with their children were interviewed using a script based on 6 quality of life dimensions: perception of physical activity and health, psychological state, self-esteem, family, friends and school. In addition, a discussion group was held to consolidate the topics of the analysis of the interviews. The transcripts and documents were first analyzed separately and then a data triangulation process was performed. An interpretivist paradigm guides the analysis, through discourse analysis and grounded theory techniques. Results: The discourses of participants reveal that the presence of clowns produces psychological effects on emotional regulation, as well as being a mechanism to cope with both periods of palliative care and those after death by establishing “family” ties with clowns. Likewise, both the clowns and the space they occupy in the hospital affect the construction of community in this health context, an aspect of great relevance for families in the care provided. Conclusions: The presence of clowns has impacts especially in 2 of the 6 quality of life dimensions, psychological state and family relationships, being also highly relevant in the context to deliver humanized care, helping mothers to cope with the situation during palliative care and after death of their children.
{"title":"Efectos del clown de hospital en la calidad de vida de personas en una Unidad de Cuidados Paliativos Pediátricos Oncológicos","authors":"Victoria Valdebenito Mac Farlane, Renata Sánchez Egaña","doi":"10.20986/medpal.2021.1246/2021","DOIUrl":"https://doi.org/10.20986/medpal.2021.1246/2021","url":null,"abstract":"Objective: The aim of this research is to understand the perceptions of families about the effects of hospital clowns on the quality of life of children and families in an Oncological Palliative Care Unit of a Chilean public hospital. Method: Under a qualitative, emergent, cross-sectional design and strict ethical considerations, we used in-depth interview technique and discussion group. Sixteen mothers who went through the experience of palliative care with their children were interviewed using a script based on 6 quality of life dimensions: perception of physical activity and health, psychological state, self-esteem, family, friends and school. In addition, a discussion group was held to consolidate the topics of the analysis of the interviews. The transcripts and documents were first analyzed separately and then a data triangulation process was performed. An interpretivist paradigm guides the analysis, through discourse analysis and grounded theory techniques. Results: The discourses of participants reveal that the presence of clowns produces psychological effects on emotional regulation, as well as being a mechanism to cope with both periods of palliative care and those after death by establishing “family” ties with clowns. Likewise, both the clowns and the space they occupy in the hospital affect the construction of community in this health context, an aspect of great relevance for families in the care provided. Conclusions: The presence of clowns has impacts especially in 2 of the 6 quality of life dimensions, psychological state and family relationships, being also highly relevant in the context to deliver humanized care, helping mothers to cope with the situation during palliative care and after death of their children.","PeriodicalId":49831,"journal":{"name":"Medicina Paliativa","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"68135226","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-01-01DOI: 10.20986/medpal.2021.1250/2021
Sebastián Suarez-Marcos, Rodrigo Corcuera-Ciudad, Fernando M. Runzer-Colmenares
Los cuidados paliativos es un enfoque que mejora la calidad de vida en pacientes terminales. En los siguientes años habrá una gran necesidad de este servicio debido al aumento en la población adulto mayor y a las enfermedades que afectan a este grupo. No todos los países de Latinoamérica y El Caribe tienen políticas nacionales de cuidados paliativos. El objetivo de este estudio es describir la producción científica sobre cuidados paliativos en Latinoamérica y El Caribe. Se realizó un estudio bibliométrico sobre cuidados paliativos en la base de datos Scopus entre 1990 y 2019 cuyos autores tengan al menos una filiación de Latinoamérica y El Caribe. Se obtuvo un total de 2030 documentos, observándose un crecimiento sostenido desde el 2000. Los países con la mayor cantidad de artículos publicados fueron Brasil con 948 (45.65%), México con 373 (18.36%) y Argentina con 274 (13.48%). El conglomerado por palabras clave nos mostró la formación de tres grupos: terapia paliativa, terapia paliativa en cáncer y grupo etario. Si bien en los últimos años ha habido un aumento en el número de artículos publicados, el aporte de cada país es desigual, los tres primeros países aportan más del 75% del total de publicaciones. Se debe promover las políticas nacionales y la investigación en cuidados paliativos con el objetivo de encontrar otros enfoques y terapias para pacientes que requieran cuidados paliativos.
{"title":"Análisis bibliométrico de la producción científica sobre cuidados paliativos en Scopus","authors":"Sebastián Suarez-Marcos, Rodrigo Corcuera-Ciudad, Fernando M. Runzer-Colmenares","doi":"10.20986/medpal.2021.1250/2021","DOIUrl":"https://doi.org/10.20986/medpal.2021.1250/2021","url":null,"abstract":"Los cuidados paliativos es un enfoque que mejora la calidad de vida en pacientes terminales. En los siguientes años habrá una gran necesidad de este servicio debido al aumento en la población adulto mayor y a las enfermedades que afectan a este grupo. No todos los países de Latinoamérica y El Caribe tienen políticas nacionales de cuidados paliativos. El objetivo de este estudio es describir la producción científica sobre cuidados paliativos en Latinoamérica y El Caribe. Se realizó un estudio bibliométrico sobre cuidados paliativos en la base de datos Scopus entre 1990 y 2019 cuyos autores tengan al menos una filiación de Latinoamérica y El Caribe. Se obtuvo un total de 2030 documentos, observándose un crecimiento sostenido desde el 2000. Los países con la mayor cantidad de artículos publicados fueron Brasil con 948 (45.65%), México con 373 (18.36%) y Argentina con 274 (13.48%). El conglomerado por palabras clave nos mostró la formación de tres grupos: terapia paliativa, terapia paliativa en cáncer y grupo etario. Si bien en los últimos años ha habido un aumento en el número de artículos publicados, el aporte de cada país es desigual, los tres primeros países aportan más del 75% del total de publicaciones. Se debe promover las políticas nacionales y la investigación en cuidados paliativos con el objetivo de encontrar otros enfoques y terapias para pacientes que requieran cuidados paliativos.","PeriodicalId":49831,"journal":{"name":"Medicina Paliativa","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"68135763","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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