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The Role of Shared Resilience in Building Employment Pathways with People with a Disability 共同应变能力在为残疾人建立就业途径中的作用
Pub Date : 2024-01-30 DOI: 10.3390/disabilities4010008
Perri Campbell, Erin Wilson, Luke John Howie, Andrew Joyce, Jenny Crosbie, Robyn Eversole
For workers living with a disability, pathways to sustainable employment in the open labour market are inhibited by barriers operating at different structural and societal levels. The culture of Australia’s government employment services has applied a ‘work-first’ approach that emphasises finding people employment rather than supporting the acquisition of skills and education. The net effect of this approach is the preferencing of short-term employment solutions, with a focus on individual behaviour or so-called resilience and an emphasis on personal responsibility instead of addressing structural issues. In this paper, we explore how people with disability can be supported in finding employment through a shared resilience approach offered by a Work Integration Social Enterprise (WISE). We suggest that WISEs can provide the conditions for shared resilience by developing and sustaining networks needed to generate hybrid pathways to work and by role modelling inclusive work conditions in the open labour market.
对于残疾工人而言,在开放的劳动力市场中实现可持续就业的途径受到了不同结构和社会层面的障碍的阻碍。澳大利亚政府的就业服务文化采用了 "工作第一 "的方法,强调为人们找到工作,而不是支持他们获得技能和教育。这种方法的净效应是优先考虑短期就业解决方案,关注个人行为或所谓的复原力,强调个人责任,而不是解决结构性问题。在本文中,我们将探讨如何通过 "工作融入社会企业"(WISE)提供的共享复原力方法来支持残疾人就业。我们认为,工作融合社会企业可以通过发展和维持产生混合工作途径所需的网络,并通过在开放的劳动力市场上为包容性工作条件树立榜样,从而为共同抗逆力提供条件。
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引用次数: 0
Health Checks for People with Down Syndrome: A Pooled Analysis of Three Randomized Controlled Trials 唐氏综合症患者的健康检查:三项随机对照试验的汇总分析
Pub Date : 2024-01-26 DOI: 10.3390/disabilities4010007
Robert S. Ware, Catherine Franklin, Lyn McPherson, Nicholas G. Lennox
Health checks have beneficial effects on health outcomes in adults with intellectual disability; however, little is known about their effect on people with Down syndrome. The aim of this study was to assess the effect of receiving a health check on the unmet health needs of people with Down syndrome. A pooled analysis of three randomized trials conducted by the same Australian research team was undertaken. The trials used the same tools but differed by participant source (adults in 24 h supported accommodation, adults in private dwellings, adolescents living with parents). The intervention was a one-off health check, and the comparator was usual care. Among 216 participants, health actions were more likely to occur for those allocated to receive health checks, including increased hearing (odds ratio = 4.4; 95% confidence interval: 1.2, 16.4), vision (2.7; 1.1, 6.7), and thyroid (2.3; 1.3, 4.2) testing, and weight recording (4.7; 2.5, 8.8). Health checks conducted at the primary-care level produced substantially increased attention to the health needs of people with Down syndrome.
健康检查对智障成人的健康状况有好处,但对唐氏综合症患者的影响却知之甚少。本研究旨在评估接受健康检查对唐氏综合症患者未满足的健康需求的影响。本研究对澳大利亚同一研究团队进行的三项随机试验进行了汇总分析。这些试验使用了相同的工具,但参与者来源不同(24 小时辅助住宿的成年人、私人住宅中的成年人、与父母同住的青少年)。干预措施是一次性的健康检查,而比较对象是常规护理。在 216 名参与者中,被分配接受健康检查的人更有可能采取健康行动,包括增加听力(几率比=4.4;95% 置信区间:1.2,16.4)、视力(2.7;1.1,6.7)和甲状腺(2.3;1.3,4.2)检测以及体重记录(4.7;2.5,8.8)。在初级保健层面进行的健康检查大大增加了对唐氏综合症患者健康需求的关注。
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引用次数: 0
Health and Comorbidities in Minority Ethnic Adults Living with Visual Impairment in the UK 英国少数族裔视力受损成年人的健康状况和并发症
Pub Date : 2024-01-24 DOI: 10.3390/disabilities4010006
Syeda F. Hussain, Nikki Heinze, Renata S. M. Gomes
Visual impairment has been associated with mental and physical comorbidities in older adults. Research into comorbidities within minority ethnic communities (MEC) with visual impairment is yet to be explored, despite the increase in numbers. A secondary analysis of survey data collected by UK-based sight loss charities provides the first insight into comorbid conditions in a matched control sample of 77 MEC and 77 White adults aged 18–85 years. Participants were matched based on age, gender, UK region, and urban/rural setting. Group differences were explored, and subgroup analysis was also carried out for the two largest subgroups within the MEC group: Asian (n = 46) and Black (n = 22). Response frequencies (n) and proportions (%) were calculated for all variables including eye conditions, vision difficulties, comorbid conditions, and exercise. The sample was predominantly young, and few significant differences were found. Sub-group analysis showed that Asian participants were more likely to report not doing any exercise, having bad health, and comorbidities including high blood pressure, dexterity, hearing and communication difficulties, and a recent emotional/psychological/mental health condition. Black participants, however, were more likely to report comorbidity, in particular physical conditions and mobility difficulties.
视力障碍与老年人的精神和身体合并症有关。尽管少数族裔社区(MEC)的视力受损人数在不断增加,但对其合并症的研究仍有待深入。通过对英国视力损失慈善机构收集的调查数据进行二次分析,我们首次对 77 名少数族裔视力障碍者和 77 名年龄在 18-85 岁之间的白人视力障碍者的合并症进行了深入研究。样本根据年龄、性别、英国地区和城乡环境进行匹配。研究人员对群体差异进行了探讨,并对 MEC 群体中两个最大的亚群体进行了分组分析:亚裔(n = 46)和黑人(n = 22)。我们计算了所有变量的响应频率(n)和比例(%),包括眼部状况、视力困难、合并症和运动。样本以年轻人为主,几乎没有发现明显的差异。分组分析表明,亚裔参与者更有可能报告自己不做任何运动、健康状况不佳以及合并症,包括高血压、手脚不灵活、听力和沟通困难以及最近的情绪/心理/精神健康状况。而黑人参与者则更有可能报告合并症,尤其是身体状况和行动不便。
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引用次数: 1
Fully Digital Audio Haptic Maps for Individuals with Blindness 为盲人设计的全数字音频触觉地图
Pub Date : 2024-01-09 DOI: 10.3390/disabilities4010005
Howard Kaplan, A. Pyayt
Tactile maps designed for individuals with blindness can greatly improve their mobility, safety and access to new locations. While 3D-printed maps have already been demonstrated to be a powerful tool for delivering spatial information, they might not always be available. Alternatively, a combination of audio and haptic information can be used to efficiently encode 2D maps. In this paper, we discuss the development and user-testing of a novel audio-haptic map creator application. Maps created using this application can provide people with blindness with a tool for understanding the navigational routes and layouts of spaces before physically visiting the site. Thirteen people with blindness tested various components of the virtual map application, such as audio, haptic feedback and navigation controls. Participants’ data and feedback were collected and analyzed to determine the effectiveness of the virtual maps as it relates to this user group’s readability and usability. The study showed that it was easy to use and that it efficiently delivered information about travel routes and landmarks that the participants could successfully understand.
专为失明人士设计的触觉地图可以大大提高他们的行动能力、安全性和进入新地点的能力。虽然三维打印地图已被证明是提供空间信息的有力工具,但它们并不总是可用。另外,还可以将音频和触觉信息结合起来,对二维地图进行有效编码。在本文中,我们将讨论一款新颖的音频-触觉地图创建应用程序的开发和用户测试。使用该应用程序创建的地图可以为盲人提供一种工具,让他们在实际参观景点之前就能了解导航路线和空间布局。13 位盲人测试了虚拟地图应用程序的各种组件,如音频、触觉反馈和导航控制。我们收集并分析了参与者的数据和反馈,以确定虚拟地图在该用户群体的可读性和可用性方面的有效性。研究结果表明,虚拟地图易于使用,并能有效地提供旅行路线和地标信息,参与者能够成功地理解这些信息。
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引用次数: 0
Queer and Disabled: Exploring the Experiences of People Who Identify as LGBT and Live with Disabilities 同性恋与残疾人探索认同为女同性恋、男同性恋、双性恋和变性者的残疾人的经历
Pub Date : 2023-12-30 DOI: 10.3390/disabilities4010004
Theofilos Kempapidis, Nikki Heinze, Asharee K. Green, Renata S. M. Gomes
As a minority within a minority, individuals who have a disability and identify as LGBT are at the intersection of multiple stigmatised identities. This brings with it unique challenges, including the possibility of oppression and rejection by both the LGBT and disability communities, which can impact on identity and wider life experiences. While previous reviews have explored issues relating to intersectionality, multiple oppression, identity, acceptance, and sexuality, an overview of the impact on wider life experiences is missing. This narrative review presents empirical findings published since 2000 about the wider everyday experiences relating to attitudes and discrimination, education, employment, finances, health and well-being, support, and intimate relationships among people who identify as LGBT and have a disability.
作为少数群体中的少数群体,身患残疾并认定自己是女同性恋、男同性恋、双性恋和变性者的个人处于多重污名化身份的交汇点上。这就带来了独特的挑战,包括可能受到 LGBT 群体和残疾群体的压迫和排斥,从而影响其身份认同和更广泛的生活体验。虽然之前的综述探讨了与交叉性、多重压迫、身份、接受和性行为有关的问题,但缺少对更广泛的生活经历所受影响的概述。这篇叙述性综述介绍了自 2000 年以来发表的有关更广泛日常生活经验的实证研究结果,这些经验涉及到认同为女同性恋、男同性恋、双性恋和变性者的残疾人在态度和歧视、教育、就业、经济、健康和幸福、支持以及亲密关系等方面的情况。
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引用次数: 0
Perceived Barriers and Facilitators to Implementation of Inclusive Policy, Systems, and Environmental Changes 实施全纳政策、制度和环境变革的障碍和促进因素
Pub Date : 2023-12-28 DOI: 10.3390/disabilities4010003
Cassandra Herman, Kerri Vanderbom, Karma Edwards, Yochai Eisenberg
People with disabilities (PWDs) are often excluded from health-promoting activities in their communities. Inclusive policy, systems, and environmental (PSE) changes can promote access to healthy lifestyle choices for PWDs. However, implementation of inclusive PSEs in community-based settings is challenging and we lack an understanding of what factors impact implementation of inclusive PSEs. The purpose of this study was to examine barriers and facilitators experienced by community coaches while planning and implementing inclusive PSEs. Semi-structured interviews (n = 10) were conducted with coaches as part of the Reaching People with Disabilities through Healthy Communities project. Interviews were coded using directed content analysis guided by the Theoretical Domains Framework and were categorized into barriers and facilitators within the COM-B framework (which identifies Capability, Opportunity, and Motivations as components that can impact Behavior). The opportunities domain, consisting of social influences and environmental context and resources, most impacted disability-inclusive PSE implementation. Within this domain, facilitators included community support, strong partnerships, technical assistance from experts, and alignment with ongoing initiatives. Barriers included the community’s lack of knowledge about disability, fear regarding resources needed for inclusive changes, and lack of resources (time, staff, funding). Supports addressing the opportunities domain should be considered to facilitate the implementation of disability-inclusive PSEs to build healthy, accessible communities for all.
残疾人(PWDs)经常被排斥在社区促进健康的活动之外。包容性政策、系统和环境(PSE)变革可以促进残疾人选择健康的生活方式。然而,在以社区为基础的环境中实施全纳性 PSE 具有挑战性,我们对影响全纳性 PSE 实施的因素缺乏了解。本研究旨在探讨社区教练在计划和实施包容性 PSE 时遇到的障碍和促进因素。作为 "通过健康社区接触残障人士 "项目的一部分,我们对教练进行了半结构式访谈(n = 10)。在 "理论领域框架"(Theoretical Domains Framework)的指导下,采用定向内容分析法对访谈进行了编码,并在 COM-B 框架(该框架将能力、机会和动机确定为可影响行为的组成部分)内将访谈分为障碍和促进因素两类。机会领域由社会影响、环境背景和资源组成,对残疾包容性 PSE 的实施影响最大。在这一领域,促进因素包括社区支持、强有力的合作伙伴关系、专家提供的技术援助以及与正在实施的计划保持一致。障碍包括社区缺乏对残疾问题的了解、对全纳改革所需资源的恐惧,以及缺乏资源(时间、人员、资金)。应考虑针对机会领域提供支持,以促进实施兼顾残疾问题的 PSE,为所有人建设健康、无障碍的社区。
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引用次数: 0
“Giving the People Who Use the Service a Voice”: Student Experiences of University Disability Services "让使用服务的人有发言权":学生对大学残疾人服务的体验
Pub Date : 2023-12-22 DOI: 10.3390/disabilities4010001
Beth Witham, Gayle Brewer
Disabled students are systematically disadvantaged compared to their non-disabled peers and Disability Services can provide important access to accommodations and support. Such services are not, however, without issues. The present study investigates student experiences with University Disability Services in order to identify shared barriers to inclusion and recommendations for practice. Individual semi-structured online interviews were conducted with twelve female students. Each student discussed their engagement with Disability Services as an undergraduate or postgraduate student, and each student disclosed a long-term, nonvisible condition. A thematic analysis was used to identify three themes. These were (1) Identity and Legitimacy (Identification as Disabled, Perceived Legitimacy, The Importance of Evidence), (2) Knowledge and Understanding (Knowledge of Specific Conditions, Knowledge of Disability Services, Disability Services Staff Knowledge and Understanding, Peer Knowledge and Understanding), and (3) Independence and Support (Desire for Autonomy, The Importance of Self-Advocacy, Additional Support). The findings highlight shared barriers to support experienced by students with different diagnoses who engage with University Disability Services. A range of recommendations are provided to improve Disability Services provision (e.g., universities are advised to review the language used to advertise Disability Services).
与非残疾学生相比,残疾学生在制度上处于不利地位,残疾服务可以为他们提供重要的便利和支持。然而,这些服务并非没有问题。本研究调查了学生在大学残障服务方面的经历,以确定实现包容的共同障碍,并为实践提出建议。我们对 12 名女学生进行了个人半结构化在线访谈。每名学生都讨论了他们作为本科生或研究生参与残障服务的情况,每名学生都透露了自己的长期、非显性病症。通过主题分析,确定了三个主题。这三个主题分别是:(1)身份与合法性(残疾人身份认同、感知的合法性、证据的重要性);(2)知识与理解(对具体状况的了解、对残障服务的了解、对残障服务人员的了解和理解、对同伴的了解和理解);以及(3)独立与支持(对自主的渴望、自我倡导的重要性、额外支持)。研究结果强调了不同诊断结果的学生在接受大学残疾服务时所遇到的共同障碍。研究还提出了一系列改善残障服务的建议(例如,建议大学重新审视宣传残障服务所使用的语言)。
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引用次数: 0
Social Participation and Perceived Quality of Environment of Adults with Disabilities 残疾成年人的社会参与和感知环境质量
Pub Date : 2023-12-18 DOI: 10.3390/disabilities3040044
Alice Pellichero, Maud Nezan, M. Lamontagne, F. Routhier, Willy Allègre, Myriam Le Goff-Pronost
Background: Social participation is a fundamental right; however, restrictions often arise due to environmental barriers, both physical and social. The ‘Handicap Innovation Territoire’ (HIT) project aims to enhance social participation for individuals with disabilities living in Brittany, France. To gain insight into the desired areas of intervention and evaluate the HIT project, an initial experiment was conducted to assess the level of social participation and perceived environmental quality among people with disabilities. Methods: A cross-sectional investigation was performed, utilizing the Assessment of Life Habits (LIFE-H) and Measure of the Quality of the Environment (MQE). Results: Twenty-five individuals with disabilities, with an average age of 46.0 ± 23.6 years, were recruited. The results indicated an overall high level of social participation, while work, education, and leisure showed participation restrictions. The MQE scores revealed variations in the environmental perception across disability groups concerning work environment (p = 0.035), stores and services (p = 0.014), health care services (p = 0.006), education (p = 0.043), access to radio and television (p = 0.002), road accessibility (p = 0.003), and time allowed for tasks (p = 0.001). Conclusion: The study identified factors that influence social participation among individuals with disabilities living in Brittany, and highlighted the actions implemented within the HIT project to address the challenges related to social participation.
背景:社会参与是一项基本权利;然而,由于环境障碍(包括物理和社会障碍),社会参与往往受到限制。残疾人创新领地"(HIT)项目旨在提高居住在法国布列塔尼的残疾人的社会参与度。为了深入了解预期的干预领域并评估 HIT 项目,我们进行了一项初步实验,以评估残疾人的社会参与水平和感知的环境质量。实验方法采用生活习惯评估(LIFE-H)和环境质量测量(MQE)进行横断面调查。结果共招募了 25 名残疾人,平均年龄为 46.0 ± 23.6 岁。结果表明,残疾人参与社会活动的总体水平较高,但在工作、教育和休闲方面受到限制。MQE 分数显示,不同残疾群体对工作环境 (p = 0.035)、商店和服务 (p = 0.014)、医疗保健服务 (p = 0.006)、教育 (p = 0.043)、收听广播和收看电视 (p = 0.002)、道路通达性 (p = 0.003) 和完成任务的时间 (p = 0.001) 的环境感知存在差异。结论本研究确定了影响布列塔尼残疾人社会参与的因素,并强调了在 HIT 项目中为应对社会参与方面的挑战而实施的行动。
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引用次数: 0
Implementation of Universal Design for Learning in Low- and Middle-Income Countries: ‘I Thought These Principles Could Have Been Written by Me’ 在中低收入国家实施通用学习设计:"我认为这些原则可以由我来写
Pub Date : 2023-12-14 DOI: 10.3390/disabilities3040043
Judith McKenzie, Amani Karisa, Callista Kahonde
UNESCO’s Global Education Monitoring Report (2020) strongly recommends the adoption of Universal Design for Learning (UDL) at the government level so that it becomes an integral part of countries’ inclusive education policies. However, UDL has largely been developed in high-income countries with technology as a central theme. The question is whether the purported benefits of the UDL approach can translate into low and middle-income country (LMIC) contexts. This study explores the relevance and fit of UDL to LMIC contexts by use of interviews (either individual or group) with 12 representatives of international agencies, non-governmental organizations (NGOs), and UDL experts who have experience in providing inclusive education services in LMICs. Three themes are reported: understanding of UDL, UDL supporting inclusive education, and UDL in teacher-training initiatives and capacity building. The concept of UDL is not new in LMICs, although the name may be. The potential for UDL to support inclusive education in LMICs is recognized. UDL needs to be mainstreamed in teacher training programs, and its implementation should be adapted to respond to the contextual realities of LMICs. The encounter between UDL proponents from high-income countries and education stakeholders in LMICs should be mutually enriching rather than imposing the approach from high-income countries on those in LMICs.
教科文组织《全球教育监测报告》(2020 年)强烈建议在政府层面采用通用学习设计 (UDL),使其成为各国全纳教育政策的组成部分。然而,UDL 主要是在高收入国家发展起来的,以技术为核心主题。问题是,"无障碍通行证 "方法所宣称的益处能否转化到中低收入国家(LMIC)的环境中。本研究通过对 12 名国际机构、非政府组织(NGOs)的代表以及在中低收入国家提供全纳教育服务方面具有经验的通识教育专家进行访谈(个人访谈或小组访谈),探讨了通识教育法与中低收入国家的相关性和适应性。报告了三个主题:对通识教育的理解、支持全纳教育的通识教育,以及教师培训活动和能力建设中的通识教育。在低收入国家,通识教育并不是一个新概念,尽管其名称可能是新的。在低收入国家,通识教育支持全纳教育的潜力已得到公认。需要将通识教育纳入师资培训计划的主流,其实施应根据低收入与中等收入国家的实际情况加以调整。高收入国家的通识教育倡导者与低收入与中等收入国家的教育利益相关者之间的交流应当是相互促进的,而不是将高收入国家的方法强加给低收入与中等收入国家。
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引用次数: 0
Multiple-Stakeholder Perspectives on Accessibility Data and the Use of Socio-Technical Tools to Improve Sidewalk Accessibility 多方利益相关者对无障碍数据和使用社会技术工具改善人行道无障碍环境的看法
Pub Date : 2023-11-28 DOI: 10.3390/disabilities3040040
D. Labbé, Yochai Eisenberg, Devon Snyder, Judy L. Shanley, Joy M. Hammel, Jon E. Froehlich
For people with disabilities, accessible pedestrian infrastructure can support independence, mobility, and improved quality of life. Yet, most pedestrian infrastructure presents barriers that impede movement. A major challenge for cities to improve pedestrian accessibility is the lack of reliable data on sidewalk accessibility. Little is known about the type of data needed for cities, as well as how different stakeholders perceive and use sidewalk data. Therefore, this study seeks to explore the perceptions of multiple stakeholders on the use, gathering, and application of sidewalk accessibility data. We conducted a series of workshops with 51 participants, including people with disabilities, caregivers, Americans with Disabilities Act (ADA) coordinators, and urban planners, to discuss sidewalk accessibility data and data collection tools. We used the socio-technological tool Project Sidewalk as an example. Participants identified various uses for the accessibility data such as route planning, barrier removal plans, and advocacy, and discussed issues of usability, trust, access, and accessibility of the data and tools. Our findings contribute to a better understanding of important factors that impact the use and application of accessibility data and how to implement accessibility data collection initiatives that utilize socio-technological approaches such as crowdsourcing.
对于残疾人来说,无障碍的行人基础设施可以帮助他们实现独立、提高行动能力和生活质量。然而,大多数行人基础设施都存在阻碍通行的障碍。城市在改善行人无障碍环境方面面临的一大挑战是缺乏有关人行道无障碍环境的可靠数据。人们对城市所需的数据类型以及不同利益相关者如何看待和使用人行道数据知之甚少。因此,本研究试图探讨多个利益相关者对人行道无障碍数据的使用、收集和应用的看法。我们与 51 名参与者(包括残疾人、护理人员、《美国残疾人法案》(ADA)协调员和城市规划者)举行了一系列研讨会,讨论人行道无障碍数据和数据收集工具。我们以社会技术工具 "人行道项目 "为例。与会者确定了无障碍数据的各种用途,如路线规划、障碍清除计划和宣传,并讨论了数据和工具的可用性、信任度、可及性和无障碍性等问题。我们的研究结果有助于更好地理解影响无障碍数据使用和应用的重要因素,以及如何利用众包等社会技术方法实施无障碍数据收集计划。
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引用次数: 0
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