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Participation in physical activity and sport in adolescent girls from Middle Eastern backgrounds. 中东地区少女参加体育活动和运动的情况。
IF 2.6 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2024-10-01 Epub Date: 2024-07-10 DOI: 10.1080/13557858.2024.2376054
Nariman Dennaoui, Gregory S Kolt, Justin M Guagliano, Emma S George

Objectives: This study investigated the barriers and facilitators to physical activity and sport participation among adolescent girls from Middle Eastern backgrounds. These factors were explored through the perspectives of both adolescent girls and parents of adolescent girls, living in Australia.

Design: A qualitative study design was used to understand perceived barriers and facilitators to physical activity and sport in adolescent girls. Participants were 18 adolescent girls and 9 parents of adolescent girls, all of Middle Eastern backgrounds, living in Western Sydney, Australia. Data were collected through five focus groups and four one-on-one interviews, separated for girls and parents. Data were analysed using an inductive approach and thematic analysis.

Results: Three main themes (family, social support, religion and culture) and nine subthemes were identified. The main facilitators for physical activity and sport included the values and presence of an active family role model, religion to encourage lifelong physical activity skills, and promotion of physical activity from peers, school, and social media. The predominant barriers to physical activity and sport included established cultural norms and traditional gender roles, which were often influenced by religion and culture, and extended time using technology.

Conclusion: The findings of the current study show the complex relationships between family, religion, and culture when promoting physical and sport participation. Such factors highlight the need to develop culturally tailored physical activity interventions that consider the perceived barriers and facilitators for adolescent girls' participation from Middle Eastern backgrounds.

研究目的本研究调查了具有中东背景的少女参加体育活动和运动的障碍和促进因素。研究从居住在澳大利亚的少女和少女父母的角度探讨了这些因素:设计:采用定性研究设计来了解少女在参加体育锻炼和运动时所感受到的障碍和促进因素。研究对象包括居住在澳大利亚西悉尼的 18 名少女和 9 名少女家长,她们都有中东背景。数据是通过五个焦点小组和四次一对一访谈收集的,对女孩和家长的访谈是分开进行的。采用归纳法和主题分析法对数据进行了分析:结果:确定了三个主题(家庭、社会支持、宗教和文化)和九个次主题。体育锻炼和运动的主要促进因素包括积极的家庭榜样的价值观和存在,鼓励终身体育锻炼技能的宗教,以及同伴、学校和社交媒体对体育锻炼的推广。体育锻炼和运动的主要障碍包括既定的文化规范和传统的性别角色,这往往受到宗教和文化的影响,以及使用技术的时间延长:本研究的结果表明,在促进参与体育运动时,家庭、宗教和文化之间存在着复杂的关系。这些因素突出表明,有必要制定符合当地文化的体育活动干预措施,考虑到中东地区少女参与体育活动的障碍和促进因素。
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引用次数: 0
The interplay of social support and education on diabetes knowledge: a focus on Korean American women. 社会支持和教育对糖尿病知识的相互作用:以美籍韩裔妇女为重点。
IF 2.6 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2024-10-01 Epub Date: 2024-07-31 DOI: 10.1080/13557858.2024.2385109
Young Ji Yoon, Soonok An, Y Joon Choi, Hee Yun Lee

Objective: Although diabetes is one of the leading causes of death among Korean Americans, the levels and predictors of diabetes knowledge in this group have not been sufficiently reported. This study aimed to (1) describe the level of diabetes knowledge of Korean immigrant women in the U.S. and (2) examine whether there is an interaction effect between social support and education on diabetes knowledge.

Design: This study conducted a cross-sectional survey design. The sample included 227 Korean immigrant women living in the southeast region of the U.S. The fourteen items of the Diabetes Knowledge Test were used to assess the diabetes knowledge level of Korean American women. A multiple linear regression analysis was conducted to examine the interaction effect between social support and education on diabetes knowledge.

Results: Only 6% of the participants presented a good diabetes knowledge level, 12.5% had a poor level, and the majority (81.5%) had a moderate level. We found a significant interaction effect between social support and education on diabetes knowledge. The highest diabetes knowledge was observed when individuals with a lower education level had higher social support.

Conclusion: Future health practices and policies may focus on increasing knowledge among Korean American women with lower education levels and lower social support. Implementing peer-led initiatives can enhance diabetes knowledge and encourage better self-care practices within the community.

目的:尽管糖尿病是导致美籍韩裔美国人死亡的主要原因之一,但有关这一群体的糖尿病知识水平和预测因素的报道还不够充分。本研究旨在:(1) 描述美国韩裔移民妇女的糖尿病知识水平;(2) 研究社会支持和教育对糖尿病知识是否有交互影响:本研究采用横断面调查设计。样本包括 227 名居住在美国东南部地区的韩裔移民妇女。糖尿病知识测试的 14 个项目用于评估美国韩裔妇女的糖尿病知识水平。研究人员进行了多元线性回归分析,以检验社会支持和教育对糖尿病知识的交互影响:结果:只有 6% 的参与者对糖尿病知识的掌握程度较好,12.5% 的参与者掌握程度较差,大多数参与者(81.5%)掌握程度中等。我们发现,社会支持和教育对糖尿病知识的影响有明显的交互作用。当教育水平较低的人拥有较高的社会支持时,其糖尿病知识水平最高:结论:未来的健康实践和政策可侧重于提高教育水平较低、社会支持较少的美籍韩裔妇女的糖尿病知识水平。实施由同龄人主导的倡议可以在社区内提高糖尿病知识,鼓励更好的自我保健做法。
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引用次数: 0
Acculturation, acculturative stress, and tobacco/nicotine use of Latin American immigrants. 拉丁美洲移民的文化适应、文化压力和烟草/尼古丁使用情况。
IF 2.6 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2024-10-01 Epub Date: 2024-07-20 DOI: 10.1080/13557858.2024.2379489
Brian E McCabe, Jewel Scott, Shirnelle Wilks, Marcel de Dios, Rosa M Gonzalez-Guarda

Objective: US Hispanics have several health disparities, greater tobacco/nicotine-related illnesses, lower access to smoking cessation, and lower rates of cessation. Understanding cultural constructs linked to tobacco/nicotine use may provide a greater understanding of future cultural adaptations of cessation interventions. This study used a multidimensional acculturation framework, with cultural practices, identity, and values, to test links between measures of acculturation stress, multidimensional acculturation (language-based enculturation and acculturation, cultural identity, familism), and tobacco/nicotine use, and interactions with gender.

Design: Participants were 391 adult Latin American immigrants (69% women); 12% self-reported tobacco/nicotine use in the past six months.

Results: Path analysis showed acculturative stress, β = .16, and acculturation, β = .20, were positively related to tobacco/nicotine use. Enculturation, familism, and Hispanic cultural identity were not related to tobacco/nicotine use. There were no significant acculturation by enculturation or gender interactions, but women were less likely to use tobacco/nicotine than men, β = -.36.

Conclusion: Findings suggest that tobacco/nicotine cessation interventions for Latino immigrants may be enhanced with an emphasis on the mitigation of acculturative stress, attention to the adoption of US cultural practices, and gender. Future research should examine specific sources of acculturative stress or social norms related to tobacco/nicotine use.

目的:美国的西班牙裔在健康方面存在一些差异,与烟草/尼古丁相关的疾病较多,获得戒烟服务的机会较少,戒烟率也较低。了解与烟草/尼古丁使用相关的文化结构,有助于更好地理解未来戒烟干预措施的文化适应性。本研究采用了一个包含文化习俗、身份认同和价值观的多维文化适应框架,以检验文化适应压力测量、多维文化适应(基于语言的文化适应和文化适应、文化认同、家庭主义)、烟草/尼古丁使用之间的联系,以及与性别的相互作用:设计:参与者为 391 名成年拉美移民(69% 为女性);12% 自我报告在过去 6 个月中使用过烟草/尼古丁:路径分析显示,文化适应压力(β = .16)和文化适应度(β = .20)与烟草/尼古丁使用呈正相关。文化共融、家庭主义和西班牙文化认同与烟草/尼古丁使用无关。文化程度和性别之间没有明显的相互作用,但女性使用烟草/尼古丁的可能性低于男性(β = -.36):研究结果表明,针对拉丁裔移民的戒烟/戒尼古丁干预措施可以通过强调减轻文化适应压力、关注美国文化习俗的采用和性别来加强。未来的研究应探讨与烟草/尼古丁使用相关的文化适应压力或社会规范的具体来源。
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引用次数: 0
Insights from a COVID-era health needs assessment of rural Midwestern Latinos. 从 COVID 时代对中西部农村地区拉美人的健康需求评估中获得的启示。
IF 2.6 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2024-10-01 Epub Date: 2024-08-04 DOI: 10.1080/13557858.2024.2385108
Melinda Grismer, Nathalie Duval-Couetil, Soohyun Yi, Austin Dukes

Latino health and well-being are crucial to the growth and vibrancy of rural areas across the United States, particularly at a time when the demographics of many rural communities are transitioning from minority Latino to majority Latino populations. This manuscript details the findings of a study that explored the health and healthcare benefit status of 524 Latino households in rural Indiana during the COVID-19 pandemic. Via 20-minute, door-to-door interviews conducted by bilingual researchers, survey participants answered questions about access to healthcare services and benefits, dietary and safety habits, medical issues, and vaccination status. The study found that slightly more than half of those surveyed were enrolled in healthcare benefit plans; approximately a third were unsatisfied with their health/health status; almost two-thirds had not received a flu shot and were eating fast food/processed food on a daily basis. Top health concerns reported included: stress (52%), vision problems (34%), neck and back pain (30%), headaches/migraines (28%), anxiety and depression (28%) and weight problems (26%). The study also discovered that half of the respondents could not identify a primary healthcare provider (PCP) by name and that pregnant women faced a lack of resources for maternal health in the county where the study was conducted. The results indicate that Latinos in rural communities continue to endure significant health issues and barriers to healthcare. The study provides an excellent model of how a rural community can monitor the health of its residents, which can inform health interventions for underserved populations.

拉美裔的健康和福祉对美国农村地区的发展和活力至关重要,尤其是在许多农村社区的人口结构正从拉美裔少数人口向拉美裔多数人口过渡的时候。本手稿详细介绍了一项研究的结果,该研究探讨了 COVID-19 大流行期间印第安纳州农村地区 524 个拉丁裔家庭的健康和医疗福利状况。通过由双语研究人员进行的 20 分钟上门访谈,调查参与者回答了有关获得医疗保健服务和福利、饮食和安全习惯、医疗问题以及疫苗接种状况的问题。研究发现,略多于一半的受访者参加了医疗保健福利计划;约三分之一的人对自己的健康/卫生状况不满意;近三分之二的人没有接种过流感疫苗,并且每天都吃快餐/加工食品。报告的首要健康问题包括:压力(52%)、视力问题(34%)、颈部和背部疼痛(30%)、头痛/偏头痛(28%)、焦虑和抑郁(28%)以及体重问题(26%)。研究还发现,半数受访者无法指名初级保健提供者 (PCP),在开展研究的县,孕妇面临孕产妇保健资源匮乏的问题。研究结果表明,农村社区的拉美人仍然面临着严重的健康问题和医疗保健障碍。这项研究为农村社区如何监测其居民的健康状况提供了一个很好的范例,可以为服务不足人群的健康干预提供参考。
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引用次数: 0
The effects of smartphone addiction on the body in young adults in Turkey. 土耳其年轻人沉迷智能手机对身体的影响。
IF 2.6 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2024-10-01 Epub Date: 2024-07-09 DOI: 10.1080/13557858.2024.2376040
Aysun Yağci Şentürk, Ali Ceylan, Elif Okur

Objectives: The frequency of smartphone usage is increasing day by day in Turkey. This study was planned to reveal the level of smartphone addiction and the factors affecting smartphone addiction in young adults in Turkey.

Design: In the study, how long the young people had been using the smartphone and their daily usage times were recorded. The Smartphone Addiction Scale (SAS), Neck Disability Index (NDI), Body Awareness Scale (BAS), and Sedentary Behavior Questionnaire (SBQ) scales were employed as data collection tools.

Results: The study was conducted with 1000 participants aged 18-45, and 807 were female. 85.6% of the participants have been using smartphones for at least 3 years and 77.3% of all participants use smartphones for more than 4 hours a day. According to the SAS scale, 34.8% of the participants had smartphone addiction. Smartphone addiction is higher especially in those who have a sedentary life or individuals with neck disabilities (p = 0.005; p < 0.001 respectively). No significant difference was found between body awareness and smartphone addiction (p = 0.380). However, body awareness scores were higher in the group without smartphone addiction. There was a significant difference between the groups in terms of the SAS, BAS, NDI, and SBQ scores in the participants classified by smartphone usage time.

Conclusion: Female gender, daily usage of a smartphone for more than 4 hours a day, having a smartphone for at least 3 years, presence of sedentary behavior, and neck disability were the factors affecting smartphone addiction in young people. No relationship was found between body awareness and smartphone addiction. Further studies on the awareness of the effects of intensive smartphone usage on the body should be conducted among young people in Turkey.

目的:在土耳其,智能手机的使用频率与日俱增。本研究计划揭示土耳其年轻人的智能手机成瘾程度以及影响智能手机成瘾的因素:在研究中,记录了年轻人使用智能手机的时间和每天的使用时间。数据收集工具包括智能手机成瘾量表(SAS)、颈部残疾指数(NDI)、身体意识量表(BAS)和久坐行为问卷(SBQ):研究对象为 1000 名 18-45 岁的参与者,其中 807 人为女性。85.6%的参与者使用智能手机至少3年,77.3%的参与者每天使用智能手机超过4小时。根据 SAS 量表,34.8% 的参与者有智能手机成瘾症。尤其是那些久坐不动的人或颈部有残疾的人,智能手机成瘾的比例更高(P = 0.005; P P = 0.380)。然而,在没有智能手机成瘾的群体中,身体意识得分更高。按智能手机使用时间分类的参与者的SAS、BAS、NDI和SBQ得分在组间存在明显差异:结论:女性性别、每天使用智能手机超过 4 小时、使用智能手机至少 3 年、存在久坐行为和颈部残疾是影响青少年智能手机成瘾的因素。在身体意识和智能手机成瘾之间没有发现任何关系。应在土耳其的年轻人中进一步开展有关密集使用智能手机对身体影响的认识的研究。
{"title":"The effects of smartphone addiction on the body in young adults in Turkey.","authors":"Aysun Yağci Şentürk, Ali Ceylan, Elif Okur","doi":"10.1080/13557858.2024.2376040","DOIUrl":"10.1080/13557858.2024.2376040","url":null,"abstract":"<p><strong>Objectives: </strong>The frequency of smartphone usage is increasing day by day in Turkey. This study was planned to reveal the level of smartphone addiction and the factors affecting smartphone addiction in young adults in Turkey.</p><p><strong>Design: </strong>In the study, how long the young people had been using the smartphone and their daily usage times were recorded. The Smartphone Addiction Scale (SAS), Neck Disability Index (NDI), Body Awareness Scale (BAS), and Sedentary Behavior Questionnaire (SBQ) scales were employed as data collection tools.</p><p><strong>Results: </strong>The study was conducted with 1000 participants aged 18-45, and 807 were female. 85.6% of the participants have been using smartphones for at least 3 years and 77.3% of all participants use smartphones for more than 4 hours a day. According to the SAS scale, 34.8% of the participants had smartphone addiction. Smartphone addiction is higher especially in those who have a sedentary life or individuals with neck disabilities (<i>p</i> = 0.005; <i>p</i> < 0.001 respectively). No significant difference was found between body awareness and smartphone addiction (<i>p</i> = 0.380). However, body awareness scores were higher in the group without smartphone addiction. There was a significant difference between the groups in terms of the SAS, BAS, NDI, and SBQ scores in the participants classified by smartphone usage time.</p><p><strong>Conclusion: </strong>Female gender, daily usage of a smartphone for more than 4 hours a day, having a smartphone for at least 3 years, presence of sedentary behavior, and neck disability were the factors affecting smartphone addiction in young people. No relationship was found between body awareness and smartphone addiction. Further studies on the awareness of the effects of intensive smartphone usage on the body should be conducted among young people in Turkey.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"745-755"},"PeriodicalIF":2.6,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141565080","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Interactions among neighborhood conditions, sleep quality, and episodic memory across the adult lifespan. 邻里关系、睡眠质量与成年人一生中的外显记忆之间的相互作用。
IF 2.6 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2024-10-01 Epub Date: 2024-07-23 DOI: 10.1080/13557858.2024.2379116
Emily Hokett, Patrick Lao, Justina Avila-Rieger, Indira C Turney, Paris B Adkins-Jackson, Dayna A Johnson, Per Davidson, Ruijia Chen, Ari Shechter, Ricardo S Osorio, Adam M Brickman, Priya Palta, Jennifer J Manly

Objectives: On average, adults racialized as non-Hispanic Black and Hispanic sleep more poorly than adults racialized as non-Hispanic White (hereafter, Black, Hispanic, White), but associations between factors that may moderate sleep-memory associations in these groups, such as neighborhood conditions, are unclear. Poorer neighborhood conditions (e.g. lower neighborhood cohesion) may be negatively associated with sleep quality and multiplicatively influence sleep-memory associations. We hypothesized lower ratings of neighborhood conditions would be associated with poorer sleep quality and moderate the association between sleep quality and episodic memory, especially in Black and Hispanic adults, who are disproportionately situated in poor neighborhood conditions.

Design: Seven-hundred-thirty-six adults across the adult lifespan (27-89 years) were recruited from the northern Manhattan community as a part of the Offspring Study of Racial and Ethnic Disparities in Alzheimer's disease. Sleep quality was assessed using a modified version of the Pittsburgh Sleep Quality Index, and episodic memory was evaluated with the Buschke Selective Reminding Test. With multiple regression models, we measured associations between perceived neighborhood conditions and sleep quality and the interaction between sleep quality and neighborhood conditions on episodic memory stratified by racial/ethnic and gender identity groups.

Results: Overall, poorer neighborhood conditions were associated with poorer sleep quality. In Black and Hispanic women, the sleep-memory association was moderated by neighborhood conditions. With more favorable neighborhood conditions, Black women showed an association between higher sleep quality and higher memory performance, and Hispanic women showed a protective effect of neighborhood (higher memory even when sleep quality was poor).

Conclusion: Poorer neighborhood experiences may contribute to poorer sleep quality across groups. In Black and Hispanic women, the association between sleep quality and episodic memory performance was dependent upon neighborhood conditions. These findings may inform tailored, structural level sleep interventions, aimed to improve neighborhood experiences and thereby sleep quality and episodic memory.

目标:平均而言,非西班牙裔黑人和西班牙裔成年人的睡眠质量比非西班牙裔白人成年人(以下简称黑人、西班牙裔和白人)的睡眠质量更差,但这些群体中可能会缓和睡眠记忆关联的因素(如邻里条件)之间的关联尚不清楚。较差的邻里条件(如较低的邻里凝聚力)可能与睡眠质量呈负相关,并对睡眠记忆相关性产生多重影响。我们假设对邻里条件的较低评价将与较差的睡眠质量相关,并缓和睡眠质量与外显记忆之间的关联,尤其是在黑人和西班牙裔成年人中,因为他们所处的邻里条件较差的比例过高:作为阿尔茨海默病种族和民族差异后代研究(Offspring Study of Racial and Ethnic Disparities in Alzheimer's disease)的一部分,我们从曼哈顿北部社区招募了七百三十六名成年人(27-89 岁)。我们使用改良版的匹兹堡睡眠质量指数对睡眠质量进行了评估,并使用布施克选择性记忆测试(Buschke Selective Reminding Test)对外显记忆进行了评估。通过多元回归模型,我们测量了感知的邻里条件与睡眠质量之间的关系,以及睡眠质量与邻里条件之间的相互作用,并按种族/民族和性别身份组进行了分层:总体而言,较差的社区条件与较差的睡眠质量有关。在黑人妇女和西班牙裔妇女中,睡眠与记忆的关系受邻里条件的调节。在邻里条件较好的情况下,黑人妇女的睡眠质量越高,记忆力越好,而西班牙裔妇女则显示出邻里的保护作用(即使睡眠质量较差,记忆力也较好):结论:较差的邻里关系可能会导致不同群体的睡眠质量较差。在黑人和西班牙裔女性中,睡眠质量与外显记忆表现之间的关系取决于邻里条件。这些发现可为量身定制的结构性睡眠干预提供依据,旨在改善邻里关系,从而提高睡眠质量和记忆力。
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引用次数: 0
Cultural tailoring advance care planning for an American Indian community: make your wishes about you. 为美国印第安人社区的预先护理规划进行文化定制:让你的愿望与你有关。
IF 3.1 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2024-09-18 DOI: 10.1080/13557858.2024.2401830
R Turner Goins,Emily A Haozous,Elizabeth Anderson,Blythe Winchester
BACKGROUNDAdvance care planning empowers people by allowing them some control over certain healthcare decisions in the event they are unable. Yet, advance care planning rates in the American Indian and Alaska Native populations are low. Thus, we culturally tailored the Make Your Wishes About You (MY WAY), an intervention to improve advance care planning access and completion for American Indian peoples.METHODSIn partnership with an American Indian Tribe, the project took a community-based participatory orientation and relied on a Community Advisory Board and a Professional Advisory Board. The culturally tailoring was a 15-step process. These steps allowed us to ensure that the tailoring reflects community-specific norms and preferences, greater reliance on visual images and local idioms of expression, more appropriate attention to family roles, and inclusion of spiritual elements.RESULTSA four-phase cultural tailoring framework emerged with each phase centering around listening, learning, and analyzing with tailoring occurring between each phase. A culturally tailored MY WAY was created, which was delivered in a manner that reflected Tribal citizenss' preferences. Materials included Tribal language, local idioms of expression, attention to family roles, and appropriate inclusion of spiritual elements. The materials were rated high on a content validity index by the advisory board members.CONCLUSIONThere is a growing interest in tailoring existing evidence-based programs with relatively little in the literature offering guidance. By sharing our efforts and experiences in culturally tailoring an advance care planning program for an American Indian Tribe, we hope that it will serve useful for future efforts in ensuring that evidence-based programming reaches those in greatest need. While this project was rooted in the core Indigenous values of community, ceremony or spirituality, language, and place it also lends itself to broader translation across different populations.
背景预先护理计划可以让人们在无法做出某些医疗决定时拥有一定的控制权,从而增强他们的能力。然而,美国印第安人和阿拉斯加原住民的预先护理规划率却很低。因此,我们对 "实现你的愿望"(MY WAY)项目进行了文化上的定制,这是一项旨在改善美国印第安人获取和完成预先护理规划的干预措施。方法 该项目与美国印第安部落合作,以社区参与为导向,并依靠社区顾问委员会和专业顾问委员会。文化定制过程分为 15 个步骤。这些步骤使我们能够确保量身定制反映出特定社区的规范和偏好,更多地依赖视觉图像和当地的表达习惯,更适当地关注家庭角色,并纳入精神元素。结果形成了一个四阶段文化量身定制框架,每个阶段都围绕倾听、学习和分析,并在每个阶段之间进行量身定制。创建了一个文化定制的 MY WAY,以反映部落公民喜好的方式提供。材料包括部落语言、当地的表达习惯、对家庭角色的关注以及适当的精神元素。咨询委员会成员对这些材料的内容有效性指数给予了很高的评价。结论人们对定制现有循证计划的兴趣日益浓厚,但提供指导的文献却相对较少。通过分享我们为一个美国印第安部落量身定制预先护理计划的努力和经验,我们希望这将有助于未来的工作,确保循证计划能够惠及最需要的人群。虽然该项目植根于社区、仪式或灵性、语言和地点等土著核心价值观,但它也适合在不同人群中进行更广泛的转化。
{"title":"Cultural tailoring advance care planning for an American Indian community: make your wishes about you.","authors":"R Turner Goins,Emily A Haozous,Elizabeth Anderson,Blythe Winchester","doi":"10.1080/13557858.2024.2401830","DOIUrl":"https://doi.org/10.1080/13557858.2024.2401830","url":null,"abstract":"BACKGROUNDAdvance care planning empowers people by allowing them some control over certain healthcare decisions in the event they are unable. Yet, advance care planning rates in the American Indian and Alaska Native populations are low. Thus, we culturally tailored the Make Your Wishes About You (MY WAY), an intervention to improve advance care planning access and completion for American Indian peoples.METHODSIn partnership with an American Indian Tribe, the project took a community-based participatory orientation and relied on a Community Advisory Board and a Professional Advisory Board. The culturally tailoring was a 15-step process. These steps allowed us to ensure that the tailoring reflects community-specific norms and preferences, greater reliance on visual images and local idioms of expression, more appropriate attention to family roles, and inclusion of spiritual elements.RESULTSA four-phase cultural tailoring framework emerged with each phase centering around listening, learning, and analyzing with tailoring occurring between each phase. A culturally tailored MY WAY was created, which was delivered in a manner that reflected Tribal citizenss' preferences. Materials included Tribal language, local idioms of expression, attention to family roles, and appropriate inclusion of spiritual elements. The materials were rated high on a content validity index by the advisory board members.CONCLUSIONThere is a growing interest in tailoring existing evidence-based programs with relatively little in the literature offering guidance. By sharing our efforts and experiences in culturally tailoring an advance care planning program for an American Indian Tribe, we hope that it will serve useful for future efforts in ensuring that evidence-based programming reaches those in greatest need. While this project was rooted in the core Indigenous values of community, ceremony or spirituality, language, and place it also lends itself to broader translation across different populations.","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":"64 1","pages":"1-16"},"PeriodicalIF":3.1,"publicationDate":"2024-09-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142266790","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Experiences of service and diagnosis among immigrant families of young children with suspected or diagnosed developmental disabilities. 有疑似或确诊发育障碍幼儿的移民家庭在服务和诊断方面的经验。
IF 3.1 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2024-09-17 DOI: 10.1080/13557858.2024.2402537
Emma Pearson,Maxwell Peprah Opoku
OBJECTIVESWhile early diagnosis is fundamental to the development of children with developmental disabilities (DD), limited attention has been paid to immigrant parents' experience of early encounters with systems when they begin seeking supports for their children with DD. This study aimed to contribute to better understanding of immigrant parents' experiences of early encounters with services for families and children with suspected or diagnosed DD.DESIGNA longitudinal, qualitative approach was adopted. Over 12 months, multiple interviews were conducted with four immigrant families with children aged between two and four years who were attending a mobile playgroup offering early learning supports for children with suspected or diagnosed DD in communities with low access to formal supports. During the first three months of the study, families were accompanied by the first author on weekly visits to the playgroup. Participant observations and informal discussions with staff delivering early intervention supports via the playgroup provided further insight into families' initial and on-going encounters with services and supports. During the remaining nine months, multiple interviews were conducted with participating families, to document their on-going experiences and encounters with medical practitioners and therapists.RESULTSThematic analysis of data generated four key themes: Initial encounters with medical professionals, Confusion and 'missed' diagnosis, Gaps in understanding, collaboration and communication, and Families' desire to learn and implement strategies.CONCLUSIONFamilies made concerted efforts to locate appropriate supports. They also faced barriers including a lack of openness and genuine consultation, particularly in their encounters with health professionals. These barriers resulted in a level of mistrust and detachment from formalised supports. Results highlight the critical importance for health professionals of 'tuning into' family concerns through relationship-based approaches, in order to establish shared understanding and mutual respect between professionals and families, particularly for immigrant families seeking support for their young children.
目的虽然早期诊断对发育障碍(DD)儿童的发展至关重要,但人们对移民父母在开始为发育障碍儿童寻求支持时与系统早期接触的经历关注有限。本研究旨在帮助人们更好地了解移民家长在为疑似或确诊为发育障碍的家庭和儿童提供服务时的早期经历。在 12 个月的时间里,我们对四个移民家庭进行了多次访谈,这些家庭的孩子年龄在两岁到四岁之间,他们参加了一个流动游戏小组,该小组在正规支持较少的社区为疑似或确诊残疾儿童提供早期学习支持。在研究的前三个月,第一作者每周都会陪同这些家庭到游戏小组进行探访。对参与者的观察以及与通过游戏小组提供早期干预支持的工作人员进行的非正式讨论,让我们进一步了解了家庭与服务和支持的最初和持续接触情况。在余下的九个月中,对参与家庭进行了多次访谈,记录他们与医疗从业人员和治疗师的持续经历和接触:最初与医疗专业人员的接触,混淆和 "漏诊",理解、合作和沟通方面的差距,以及家庭学习和实施策略的愿望。他们也面临着一些障碍,包括缺乏开放性和真正的咨询,特别是在与医疗专业人员的接触中。这些障碍导致了对正规支持的不信任和疏远。研究结果凸显了卫生专业人员通过基于关系的方法 "倾听 "家庭的关切,从而在专业人员和家庭之间建立共同理解和相互尊重的重要性,尤其是对于为年幼子女寻求支持的移民家庭而言。
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引用次数: 0
Looking out across the front yard: aboriginal peoples’ views of frailty in the community – A qualitative study 眺望前院:原住民对社区中体弱问题的看法--定性研究
IF 3.1 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2024-09-15 DOI: 10.1080/13557858.2024.2402527
Ebony T. Lewis, Leanne Howard, Uncle Robert Carroll, Adam Howie, Gail Kenning, Adrienne Withall, Kenneth Rockwood, Magnolia Cardona, Kylie Radford, Katherine Schreyenberg, Ruth Peters
Frailty is one of the most significant challenges to healthy ageing. Aboriginal Australians experience some of the highest levels of frailty worldwide, and despite this, no studies have explored fr...
虚弱是健康老龄化面临的最严峻挑战之一。澳大利亚原住民是世界上体弱程度最高的人群之一,尽管如此,却没有任何研究对他们的健康状况进行探讨。
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引用次数: 0
When I can be my whole authentic self, I feel safe and know that I belong: a photovoice study exploring what culturally safe pregnancy care is to Karen women of refugee background in Victoria, Australia. 当我能做完整真实的自己时,我感到安全,并知道我属于这里:一项摄影选择研究,探索对澳大利亚维多利亚州有难民背景的卡伦妇女而言,什么是文化安全的孕期保健。
IF 2.6 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2024-08-01 Epub Date: 2024-06-12 DOI: 10.1080/13557858.2024.2359388
Rowena Coe, Shadow Toke, Heather Wallace, Elisha Riggs, Stephanie J Brown, Josef Szwarc, Laura J Biggs

Objectives: Inequitable pregnancy care experiences and outcomes disproportionately affect refugee background women in Australia. Culturally safe care is essential for achieving health equity, however, cultural safety can only be determined by the person receiving care. To our knowledge, women of refugee background in Australia are yet to be asked what culturally safe pregnancy care is to them. Specifically, this study aimed to explore what culturally safe pregnancy care is to Karen women (from Burma) of refugee background.

Design: A photovoice study founded on community-based participatory research principles was undertaken with a Karen community of refugee background living in Victoria, Australia. A community advisory group was established, guiding study design and conduct. Five S'gaw Karen-speaking women with experience of pregnancy care in Australia were invited to take photos within their community. Participants shared their photos and stories with each other in four online discussion groups.

Results: Reflexive thematic analysis guided by a critical constructionist lens developed three themes: Building foundations for belonging; cultivating reciprocal curiosity; and storytelling as an expression of self and shared power. These themes sit within the overarching theme When I can be my whole authentic self, I feel safe and know that I belong.

Conclusion: When Karen women can embrace their cultural and spiritual identity without fear of discrimination, including racism, culturally safe pregnancy care is possible. This study contributes to the design and delivery of maternity services by providing insights that can enhance equitable and culturally safe pregnancy care for Karen women of refugee background.

目的:不公平的孕期保健经历和结果对澳大利亚有难民背景的妇女造成了极大的影响。文化安全护理对实现健康公平至关重要,然而,文化安全只能由接受护理的人来决定。据我们所知,澳大利亚的难民背景妇女尚未被问及对她们来说什么是文化安全的孕期保健。具体而言,本研究旨在探讨对具有难民背景的克伦族妇女(来自缅甸)而言,什么是文化安全的孕期保健:设计:在基于社区的参与式研究原则基础上,对居住在澳大利亚维多利亚州的克伦族难民社区进行了一项摄影选题研究。成立了一个社区咨询小组,负责指导研究的设计和实施。五名讲 S'gaw 克伦语、在澳大利亚有孕期保健经验的妇女应邀在社区内拍摄照片。参与者在四个在线讨论小组中分享了她们的照片和故事:以批判建构主义视角为指导的反思性主题分析提出了三个主题:建立归属感的基础;培养互惠的好奇心;以及将讲故事作为自我和共享权力的一种表达方式。这些主题都属于总主题 "当我能做完整真实的自我时,我感到安全并知道我属于这里":当卡伦妇女能够拥抱自己的文化和精神身份,而不用担心歧视(包括种族主义)时,文化安全的孕期保健就成为可能。本研究有助于设计和提供孕产妇服务,为有难民背景的克伦族妇女提供更公平和文化安全的孕期保健服务。
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Ethnicity & Health
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