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Insights from a COVID-era health needs assessment of rural Midwestern Latinos. 从 COVID 时代对中西部农村地区拉美人的健康需求评估中获得的启示。
IF 2.6 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2024-10-01 Epub Date: 2024-08-04 DOI: 10.1080/13557858.2024.2385108
Melinda Grismer, Nathalie Duval-Couetil, Soohyun Yi, Austin Dukes

Latino health and well-being are crucial to the growth and vibrancy of rural areas across the United States, particularly at a time when the demographics of many rural communities are transitioning from minority Latino to majority Latino populations. This manuscript details the findings of a study that explored the health and healthcare benefit status of 524 Latino households in rural Indiana during the COVID-19 pandemic. Via 20-minute, door-to-door interviews conducted by bilingual researchers, survey participants answered questions about access to healthcare services and benefits, dietary and safety habits, medical issues, and vaccination status. The study found that slightly more than half of those surveyed were enrolled in healthcare benefit plans; approximately a third were unsatisfied with their health/health status; almost two-thirds had not received a flu shot and were eating fast food/processed food on a daily basis. Top health concerns reported included: stress (52%), vision problems (34%), neck and back pain (30%), headaches/migraines (28%), anxiety and depression (28%) and weight problems (26%). The study also discovered that half of the respondents could not identify a primary healthcare provider (PCP) by name and that pregnant women faced a lack of resources for maternal health in the county where the study was conducted. The results indicate that Latinos in rural communities continue to endure significant health issues and barriers to healthcare. The study provides an excellent model of how a rural community can monitor the health of its residents, which can inform health interventions for underserved populations.

拉美裔的健康和福祉对美国农村地区的发展和活力至关重要,尤其是在许多农村社区的人口结构正从拉美裔少数人口向拉美裔多数人口过渡的时候。本手稿详细介绍了一项研究的结果,该研究探讨了 COVID-19 大流行期间印第安纳州农村地区 524 个拉丁裔家庭的健康和医疗福利状况。通过由双语研究人员进行的 20 分钟上门访谈,调查参与者回答了有关获得医疗保健服务和福利、饮食和安全习惯、医疗问题以及疫苗接种状况的问题。研究发现,略多于一半的受访者参加了医疗保健福利计划;约三分之一的人对自己的健康/卫生状况不满意;近三分之二的人没有接种过流感疫苗,并且每天都吃快餐/加工食品。报告的首要健康问题包括:压力(52%)、视力问题(34%)、颈部和背部疼痛(30%)、头痛/偏头痛(28%)、焦虑和抑郁(28%)以及体重问题(26%)。研究还发现,半数受访者无法指名初级保健提供者 (PCP),在开展研究的县,孕妇面临孕产妇保健资源匮乏的问题。研究结果表明,农村社区的拉美人仍然面临着严重的健康问题和医疗保健障碍。这项研究为农村社区如何监测其居民的健康状况提供了一个很好的范例,可以为服务不足人群的健康干预提供参考。
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引用次数: 0
The effects of smartphone addiction on the body in young adults in Turkey. 土耳其年轻人沉迷智能手机对身体的影响。
IF 2.6 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2024-10-01 Epub Date: 2024-07-09 DOI: 10.1080/13557858.2024.2376040
Aysun Yağci Şentürk, Ali Ceylan, Elif Okur

Objectives: The frequency of smartphone usage is increasing day by day in Turkey. This study was planned to reveal the level of smartphone addiction and the factors affecting smartphone addiction in young adults in Turkey.

Design: In the study, how long the young people had been using the smartphone and their daily usage times were recorded. The Smartphone Addiction Scale (SAS), Neck Disability Index (NDI), Body Awareness Scale (BAS), and Sedentary Behavior Questionnaire (SBQ) scales were employed as data collection tools.

Results: The study was conducted with 1000 participants aged 18-45, and 807 were female. 85.6% of the participants have been using smartphones for at least 3 years and 77.3% of all participants use smartphones for more than 4 hours a day. According to the SAS scale, 34.8% of the participants had smartphone addiction. Smartphone addiction is higher especially in those who have a sedentary life or individuals with neck disabilities (p = 0.005; p < 0.001 respectively). No significant difference was found between body awareness and smartphone addiction (p = 0.380). However, body awareness scores were higher in the group without smartphone addiction. There was a significant difference between the groups in terms of the SAS, BAS, NDI, and SBQ scores in the participants classified by smartphone usage time.

Conclusion: Female gender, daily usage of a smartphone for more than 4 hours a day, having a smartphone for at least 3 years, presence of sedentary behavior, and neck disability were the factors affecting smartphone addiction in young people. No relationship was found between body awareness and smartphone addiction. Further studies on the awareness of the effects of intensive smartphone usage on the body should be conducted among young people in Turkey.

目的:在土耳其,智能手机的使用频率与日俱增。本研究计划揭示土耳其年轻人的智能手机成瘾程度以及影响智能手机成瘾的因素:在研究中,记录了年轻人使用智能手机的时间和每天的使用时间。数据收集工具包括智能手机成瘾量表(SAS)、颈部残疾指数(NDI)、身体意识量表(BAS)和久坐行为问卷(SBQ):研究对象为 1000 名 18-45 岁的参与者,其中 807 人为女性。85.6%的参与者使用智能手机至少3年,77.3%的参与者每天使用智能手机超过4小时。根据 SAS 量表,34.8% 的参与者有智能手机成瘾症。尤其是那些久坐不动的人或颈部有残疾的人,智能手机成瘾的比例更高(P = 0.005; P P = 0.380)。然而,在没有智能手机成瘾的群体中,身体意识得分更高。按智能手机使用时间分类的参与者的SAS、BAS、NDI和SBQ得分在组间存在明显差异:结论:女性性别、每天使用智能手机超过 4 小时、使用智能手机至少 3 年、存在久坐行为和颈部残疾是影响青少年智能手机成瘾的因素。在身体意识和智能手机成瘾之间没有发现任何关系。应在土耳其的年轻人中进一步开展有关密集使用智能手机对身体影响的认识的研究。
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引用次数: 0
Interactions among neighborhood conditions, sleep quality, and episodic memory across the adult lifespan. 邻里关系、睡眠质量与成年人一生中的外显记忆之间的相互作用。
IF 2.6 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2024-10-01 Epub Date: 2024-07-23 DOI: 10.1080/13557858.2024.2379116
Emily Hokett, Patrick Lao, Justina Avila-Rieger, Indira C Turney, Paris B Adkins-Jackson, Dayna A Johnson, Per Davidson, Ruijia Chen, Ari Shechter, Ricardo S Osorio, Adam M Brickman, Priya Palta, Jennifer J Manly

Objectives: On average, adults racialized as non-Hispanic Black and Hispanic sleep more poorly than adults racialized as non-Hispanic White (hereafter, Black, Hispanic, White), but associations between factors that may moderate sleep-memory associations in these groups, such as neighborhood conditions, are unclear. Poorer neighborhood conditions (e.g. lower neighborhood cohesion) may be negatively associated with sleep quality and multiplicatively influence sleep-memory associations. We hypothesized lower ratings of neighborhood conditions would be associated with poorer sleep quality and moderate the association between sleep quality and episodic memory, especially in Black and Hispanic adults, who are disproportionately situated in poor neighborhood conditions.

Design: Seven-hundred-thirty-six adults across the adult lifespan (27-89 years) were recruited from the northern Manhattan community as a part of the Offspring Study of Racial and Ethnic Disparities in Alzheimer's disease. Sleep quality was assessed using a modified version of the Pittsburgh Sleep Quality Index, and episodic memory was evaluated with the Buschke Selective Reminding Test. With multiple regression models, we measured associations between perceived neighborhood conditions and sleep quality and the interaction between sleep quality and neighborhood conditions on episodic memory stratified by racial/ethnic and gender identity groups.

Results: Overall, poorer neighborhood conditions were associated with poorer sleep quality. In Black and Hispanic women, the sleep-memory association was moderated by neighborhood conditions. With more favorable neighborhood conditions, Black women showed an association between higher sleep quality and higher memory performance, and Hispanic women showed a protective effect of neighborhood (higher memory even when sleep quality was poor).

Conclusion: Poorer neighborhood experiences may contribute to poorer sleep quality across groups. In Black and Hispanic women, the association between sleep quality and episodic memory performance was dependent upon neighborhood conditions. These findings may inform tailored, structural level sleep interventions, aimed to improve neighborhood experiences and thereby sleep quality and episodic memory.

目标:平均而言,非西班牙裔黑人和西班牙裔成年人的睡眠质量比非西班牙裔白人成年人(以下简称黑人、西班牙裔和白人)的睡眠质量更差,但这些群体中可能会缓和睡眠记忆关联的因素(如邻里条件)之间的关联尚不清楚。较差的邻里条件(如较低的邻里凝聚力)可能与睡眠质量呈负相关,并对睡眠记忆相关性产生多重影响。我们假设对邻里条件的较低评价将与较差的睡眠质量相关,并缓和睡眠质量与外显记忆之间的关联,尤其是在黑人和西班牙裔成年人中,因为他们所处的邻里条件较差的比例过高:作为阿尔茨海默病种族和民族差异后代研究(Offspring Study of Racial and Ethnic Disparities in Alzheimer's disease)的一部分,我们从曼哈顿北部社区招募了七百三十六名成年人(27-89 岁)。我们使用改良版的匹兹堡睡眠质量指数对睡眠质量进行了评估,并使用布施克选择性记忆测试(Buschke Selective Reminding Test)对外显记忆进行了评估。通过多元回归模型,我们测量了感知的邻里条件与睡眠质量之间的关系,以及睡眠质量与邻里条件之间的相互作用,并按种族/民族和性别身份组进行了分层:总体而言,较差的社区条件与较差的睡眠质量有关。在黑人妇女和西班牙裔妇女中,睡眠与记忆的关系受邻里条件的调节。在邻里条件较好的情况下,黑人妇女的睡眠质量越高,记忆力越好,而西班牙裔妇女则显示出邻里的保护作用(即使睡眠质量较差,记忆力也较好):结论:较差的邻里关系可能会导致不同群体的睡眠质量较差。在黑人和西班牙裔女性中,睡眠质量与外显记忆表现之间的关系取决于邻里条件。这些发现可为量身定制的结构性睡眠干预提供依据,旨在改善邻里关系,从而提高睡眠质量和记忆力。
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引用次数: 0
Cultural tailoring advance care planning for an American Indian community: make your wishes about you. 为美国印第安人社区的预先护理规划进行文化定制:让你的愿望与你有关。
IF 3.1 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2024-09-18 DOI: 10.1080/13557858.2024.2401830
R Turner Goins,Emily A Haozous,Elizabeth Anderson,Blythe Winchester
BACKGROUNDAdvance care planning empowers people by allowing them some control over certain healthcare decisions in the event they are unable. Yet, advance care planning rates in the American Indian and Alaska Native populations are low. Thus, we culturally tailored the Make Your Wishes About You (MY WAY), an intervention to improve advance care planning access and completion for American Indian peoples.METHODSIn partnership with an American Indian Tribe, the project took a community-based participatory orientation and relied on a Community Advisory Board and a Professional Advisory Board. The culturally tailoring was a 15-step process. These steps allowed us to ensure that the tailoring reflects community-specific norms and preferences, greater reliance on visual images and local idioms of expression, more appropriate attention to family roles, and inclusion of spiritual elements.RESULTSA four-phase cultural tailoring framework emerged with each phase centering around listening, learning, and analyzing with tailoring occurring between each phase. A culturally tailored MY WAY was created, which was delivered in a manner that reflected Tribal citizenss' preferences. Materials included Tribal language, local idioms of expression, attention to family roles, and appropriate inclusion of spiritual elements. The materials were rated high on a content validity index by the advisory board members.CONCLUSIONThere is a growing interest in tailoring existing evidence-based programs with relatively little in the literature offering guidance. By sharing our efforts and experiences in culturally tailoring an advance care planning program for an American Indian Tribe, we hope that it will serve useful for future efforts in ensuring that evidence-based programming reaches those in greatest need. While this project was rooted in the core Indigenous values of community, ceremony or spirituality, language, and place it also lends itself to broader translation across different populations.
背景预先护理计划可以让人们在无法做出某些医疗决定时拥有一定的控制权,从而增强他们的能力。然而,美国印第安人和阿拉斯加原住民的预先护理规划率却很低。因此,我们对 "实现你的愿望"(MY WAY)项目进行了文化上的定制,这是一项旨在改善美国印第安人获取和完成预先护理规划的干预措施。方法 该项目与美国印第安部落合作,以社区参与为导向,并依靠社区顾问委员会和专业顾问委员会。文化定制过程分为 15 个步骤。这些步骤使我们能够确保量身定制反映出特定社区的规范和偏好,更多地依赖视觉图像和当地的表达习惯,更适当地关注家庭角色,并纳入精神元素。结果形成了一个四阶段文化量身定制框架,每个阶段都围绕倾听、学习和分析,并在每个阶段之间进行量身定制。创建了一个文化定制的 MY WAY,以反映部落公民喜好的方式提供。材料包括部落语言、当地的表达习惯、对家庭角色的关注以及适当的精神元素。咨询委员会成员对这些材料的内容有效性指数给予了很高的评价。结论人们对定制现有循证计划的兴趣日益浓厚,但提供指导的文献却相对较少。通过分享我们为一个美国印第安部落量身定制预先护理计划的努力和经验,我们希望这将有助于未来的工作,确保循证计划能够惠及最需要的人群。虽然该项目植根于社区、仪式或灵性、语言和地点等土著核心价值观,但它也适合在不同人群中进行更广泛的转化。
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引用次数: 0
Experiences of service and diagnosis among immigrant families of young children with suspected or diagnosed developmental disabilities. 有疑似或确诊发育障碍幼儿的移民家庭在服务和诊断方面的经验。
IF 3.1 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2024-09-17 DOI: 10.1080/13557858.2024.2402537
Emma Pearson,Maxwell Peprah Opoku
OBJECTIVESWhile early diagnosis is fundamental to the development of children with developmental disabilities (DD), limited attention has been paid to immigrant parents' experience of early encounters with systems when they begin seeking supports for their children with DD. This study aimed to contribute to better understanding of immigrant parents' experiences of early encounters with services for families and children with suspected or diagnosed DD.DESIGNA longitudinal, qualitative approach was adopted. Over 12 months, multiple interviews were conducted with four immigrant families with children aged between two and four years who were attending a mobile playgroup offering early learning supports for children with suspected or diagnosed DD in communities with low access to formal supports. During the first three months of the study, families were accompanied by the first author on weekly visits to the playgroup. Participant observations and informal discussions with staff delivering early intervention supports via the playgroup provided further insight into families' initial and on-going encounters with services and supports. During the remaining nine months, multiple interviews were conducted with participating families, to document their on-going experiences and encounters with medical practitioners and therapists.RESULTSThematic analysis of data generated four key themes: Initial encounters with medical professionals, Confusion and 'missed' diagnosis, Gaps in understanding, collaboration and communication, and Families' desire to learn and implement strategies.CONCLUSIONFamilies made concerted efforts to locate appropriate supports. They also faced barriers including a lack of openness and genuine consultation, particularly in their encounters with health professionals. These barriers resulted in a level of mistrust and detachment from formalised supports. Results highlight the critical importance for health professionals of 'tuning into' family concerns through relationship-based approaches, in order to establish shared understanding and mutual respect between professionals and families, particularly for immigrant families seeking support for their young children.
目的虽然早期诊断对发育障碍(DD)儿童的发展至关重要,但人们对移民父母在开始为发育障碍儿童寻求支持时与系统早期接触的经历关注有限。本研究旨在帮助人们更好地了解移民家长在为疑似或确诊为发育障碍的家庭和儿童提供服务时的早期经历。在 12 个月的时间里,我们对四个移民家庭进行了多次访谈,这些家庭的孩子年龄在两岁到四岁之间,他们参加了一个流动游戏小组,该小组在正规支持较少的社区为疑似或确诊残疾儿童提供早期学习支持。在研究的前三个月,第一作者每周都会陪同这些家庭到游戏小组进行探访。对参与者的观察以及与通过游戏小组提供早期干预支持的工作人员进行的非正式讨论,让我们进一步了解了家庭与服务和支持的最初和持续接触情况。在余下的九个月中,对参与家庭进行了多次访谈,记录他们与医疗从业人员和治疗师的持续经历和接触:最初与医疗专业人员的接触,混淆和 "漏诊",理解、合作和沟通方面的差距,以及家庭学习和实施策略的愿望。他们也面临着一些障碍,包括缺乏开放性和真正的咨询,特别是在与医疗专业人员的接触中。这些障碍导致了对正规支持的不信任和疏远。研究结果凸显了卫生专业人员通过基于关系的方法 "倾听 "家庭的关切,从而在专业人员和家庭之间建立共同理解和相互尊重的重要性,尤其是对于为年幼子女寻求支持的移民家庭而言。
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引用次数: 0
Looking out across the front yard: aboriginal peoples’ views of frailty in the community – A qualitative study 眺望前院:原住民对社区中体弱问题的看法--定性研究
IF 3.1 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2024-09-15 DOI: 10.1080/13557858.2024.2402527
Ebony T. Lewis, Leanne Howard, Uncle Robert Carroll, Adam Howie, Gail Kenning, Adrienne Withall, Kenneth Rockwood, Magnolia Cardona, Kylie Radford, Katherine Schreyenberg, Ruth Peters
Frailty is one of the most significant challenges to healthy ageing. Aboriginal Australians experience some of the highest levels of frailty worldwide, and despite this, no studies have explored fr...
虚弱是健康老龄化面临的最严峻挑战之一。澳大利亚原住民是世界上体弱程度最高的人群之一,尽管如此,却没有任何研究对他们的健康状况进行探讨。
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引用次数: 0
When I can be my whole authentic self, I feel safe and know that I belong: a photovoice study exploring what culturally safe pregnancy care is to Karen women of refugee background in Victoria, Australia. 当我能做完整真实的自己时,我感到安全,并知道我属于这里:一项摄影选择研究,探索对澳大利亚维多利亚州有难民背景的卡伦妇女而言,什么是文化安全的孕期保健。
IF 2.6 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2024-08-01 Epub Date: 2024-06-12 DOI: 10.1080/13557858.2024.2359388
Rowena Coe, Shadow Toke, Heather Wallace, Elisha Riggs, Stephanie J Brown, Josef Szwarc, Laura J Biggs

Objectives: Inequitable pregnancy care experiences and outcomes disproportionately affect refugee background women in Australia. Culturally safe care is essential for achieving health equity, however, cultural safety can only be determined by the person receiving care. To our knowledge, women of refugee background in Australia are yet to be asked what culturally safe pregnancy care is to them. Specifically, this study aimed to explore what culturally safe pregnancy care is to Karen women (from Burma) of refugee background.

Design: A photovoice study founded on community-based participatory research principles was undertaken with a Karen community of refugee background living in Victoria, Australia. A community advisory group was established, guiding study design and conduct. Five S'gaw Karen-speaking women with experience of pregnancy care in Australia were invited to take photos within their community. Participants shared their photos and stories with each other in four online discussion groups.

Results: Reflexive thematic analysis guided by a critical constructionist lens developed three themes: Building foundations for belonging; cultivating reciprocal curiosity; and storytelling as an expression of self and shared power. These themes sit within the overarching theme When I can be my whole authentic self, I feel safe and know that I belong.

Conclusion: When Karen women can embrace their cultural and spiritual identity without fear of discrimination, including racism, culturally safe pregnancy care is possible. This study contributes to the design and delivery of maternity services by providing insights that can enhance equitable and culturally safe pregnancy care for Karen women of refugee background.

目的:不公平的孕期保健经历和结果对澳大利亚有难民背景的妇女造成了极大的影响。文化安全护理对实现健康公平至关重要,然而,文化安全只能由接受护理的人来决定。据我们所知,澳大利亚的难民背景妇女尚未被问及对她们来说什么是文化安全的孕期保健。具体而言,本研究旨在探讨对具有难民背景的克伦族妇女(来自缅甸)而言,什么是文化安全的孕期保健:设计:在基于社区的参与式研究原则基础上,对居住在澳大利亚维多利亚州的克伦族难民社区进行了一项摄影选题研究。成立了一个社区咨询小组,负责指导研究的设计和实施。五名讲 S'gaw 克伦语、在澳大利亚有孕期保健经验的妇女应邀在社区内拍摄照片。参与者在四个在线讨论小组中分享了她们的照片和故事:以批判建构主义视角为指导的反思性主题分析提出了三个主题:建立归属感的基础;培养互惠的好奇心;以及将讲故事作为自我和共享权力的一种表达方式。这些主题都属于总主题 "当我能做完整真实的自我时,我感到安全并知道我属于这里":当卡伦妇女能够拥抱自己的文化和精神身份,而不用担心歧视(包括种族主义)时,文化安全的孕期保健就成为可能。本研究有助于设计和提供孕产妇服务,为有难民背景的克伦族妇女提供更公平和文化安全的孕期保健服务。
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引用次数: 0
Chronic stress exposure, social support, and sleep quality among African Americans: findings from the National Survey of American Life-Reinterview. 非裔美国人的慢性压力暴露、社会支持和睡眠质量:美国生活全国调查--再访谈的结果。
IF 2.6 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2024-08-01 Epub Date: 2024-06-26 DOI: 10.1080/13557858.2024.2367976
Ann W Nguyen, Omonigho M Bubu, Kedong Ding, Karen D Lincoln

Objective: The purpose of this study was to determine whether social support from extended family and church members moderate the association between chronic stress exposure and sleep quality in a nationally representative sample of African American adults.

Design: Data from African American respondents aged 18 and older were drawn from the National Survey of American Life-Reinterview. The analytic sample for this study included 1,372 African American adults who attended religious services at least a few times a year, as the church-based relationship measures were only assessed for these individuals. Self-reported sleep quality was assessed by sleep satisfaction, trouble falling asleep, and restless sleep. Chronic stress exposure was measured by a nine-item index. OLS and logistic regression were used to estimate the relationship between chronic stress exposure, extended family and church relationships, and sleep quality.

Results: The data indicated that chronic stress exposure was associated with decreased sleep satisfaction, increased likelihood of trouble falling asleep and restless sleep. Receiving emotional support from family and more frequent contact with church members were associated with decreased restless sleep. Emotional family support moderated the associations between chronic stress exposure and trouble falling asleep and restless sleep. The positive associations between chronic stress exposure and these two sleep quality measures were attenuated among respondents who received high levels of emotional support from their family.

Conclusions: Together, these findings underscore the detriment of chronic stress exposure to African Americans' sleep quality and suggest that extended family members are effective stress coping resources and play an important role in this population's sleep quality.

研究目的本研究旨在确定来自大家庭和教会成员的社会支持是否会缓和具有全国代表性的非裔美国成年人样本中的慢性压力暴露与睡眠质量之间的关联:设计:18 岁及以上非裔美国受访者的数据来自《美国生活全国调查-再访谈》(National Survey of American Life-Reinterview)。本研究的分析样本包括 1,372 名每年至少参加几次宗教活动的非裔美国成年人,因为仅对这些人进行了基于教会关系的评估。自我报告的睡眠质量通过睡眠满意度、入睡困难和睡眠不安进行评估。慢性压力暴露通过九个项目的指数进行测量。使用OLS和逻辑回归估计慢性压力暴露、大家庭和教会关系与睡眠质量之间的关系:数据显示,长期压力与睡眠满意度下降、入睡困难和睡眠不安的可能性增加有关。获得家人的情感支持以及与教会成员更频繁的接触与睡眠不安的减少有关。家庭情感支持调节了慢性压力暴露与入睡困难和睡眠不安之间的关联。在得到家人情感支持较多的受访者中,慢性压力暴露与这两项睡眠质量测量之间的正相关关系有所减弱:总之,这些发现强调了慢性压力暴露对非裔美国人睡眠质量的不利影响,并表明大家庭成员是有效的压力应对资源,对该人群的睡眠质量起着重要作用。
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引用次数: 0
Capturing the perspectives of African American informal dementia caregivers: a phenomenological study. 捕捉非裔美国人非正式痴呆症照护者的视角:一项现象学研究。
IF 2.6 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2024-08-01 Epub Date: 2024-06-27 DOI: 10.1080/13557858.2024.2367986
Araya Dimtsu Assfaw, Kerstin M Reinschmidt, Thomas A Teasdale, Lancer Stephens, Keith L Kleszynski, Kathleen Dwyer

Dementia can be overwhelming to families and their caregivers. Informal caregiving is a widespread mode of providing dementia care in African American communities, yet impact of caregiving on informal or family caregivers in African American communities is burdensome. This study aimed to describe the lived experiences of informal caregivers of African American People Living with Dementia (PLWD) to understand their perceptions of dementia and dementia care, caregiver support needs, and service needs. Interpretive phenomenological qualitative inquiry guided this study to understand caregivers' experiences and needs. Ten family caregivers of African American PLWD in the community participated in this study. Data were collected through in-depth interviews and a diary study approach to document and interpret caregivers' experiences. The data analysis was based on procedures of content analysis. Four major themes emerged from the in-depth interviews: caregiver burden, familism, lack of information and community-based resources, and desire and need for culturally appropriate community-based resources. Triangulated diary entry data complemented the in-depth interviews with similar themes. This study highlights how African American informal caregivers of PLWD face various caregiving needs and challenges in dementia care including lack of culturally appropriate community resources and information. The study illustrates that African American cultural beliefs of familism are significant aspects of their caregiving experience and their coping strategies. These study results provide a useful foundation for various stakeholders to develop culturally targeted interventions and programs to support African American informal caregivers and their family members with dementia.

痴呆症可能会让家庭及其照护者不堪重负。在非裔美国人社区,非正规护理是提供痴呆症护理的一种普遍模式,但在非裔美国人社区,护理工作对非正规护理者或家庭护理者的影响是沉重的。本研究旨在描述非裔美国人痴呆症患者(PLWD)的非正式照护者的生活经历,以了解他们对痴呆症和痴呆症照护的看法、照护者的支持需求以及服务需求。本研究以解释性现象学定性调查为指导,以了解照护者的经历和需求。社区中十位非裔美国人老年痴呆症患者的家庭照护者参与了本研究。研究人员通过深入访谈和日记研究的方法收集数据,记录和解释照顾者的经历。数据分析以内容分析程序为基础。深度访谈中出现了四大主题:照顾者的负担、家庭主义、缺乏信息和社区资源,以及对文化上适当的社区资源的渴望和需求。经过三角测量的日记记录数据以类似的主题对深度访谈进行了补充。本研究强调了非裔美国人非正式照顾者如何在痴呆症护理中面临各种护理需求和挑战,包括缺乏文化上适当的社区资源和信息。研究表明,非裔美国人的家庭主义文化信仰是他们护理经验和应对策略的重要方面。这些研究结果为各利益相关方提供了一个有用的基础,以制定具有文化针对性的干预措施和计划,为非裔美国人非正规照护者及其痴呆症家庭成员提供支持。
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引用次数: 0
Ethnic differences in physical activity participation when managing gestational diabetes mellitus: a mixed-methods study comparing ethnic Chinese migrants and Australian women. 管理妊娠糖尿病时参与体育活动的种族差异:一项比较中国移民和澳大利亚妇女的混合方法研究。
IF 2.6 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2024-08-01 Epub Date: 2024-05-28 DOI: 10.1080/13557858.2024.2359379
Ching Shan Wan, Helena Teede, Alison Nankervis, Rosalie Aroni

Background: Physical activity is a key component in gestational diabetes mellitus management to optimise glycaemic control and reduce adverse pregnancy outcomes. However, inadequate physical activity during pregnancy is common. Underpinned by a woman-centred pregnancy care model, appropriate strategies targeting patients' cultural needs may facilitate physical activity participation. Ethnic Chinese migrants have a four-fold higher risk of gestational diabetes mellitus than the Australian Caucasian host population. To identify potentially effective disease management strategies to improve physical activity participation, understanding and comparing ethnic Chinese migrants' and Caucasian women's views will provide insights into developing an end-user-informed intervention.

Aims: This study aimed to compare perceptions and practices around physical activity participation during pregnancy between 44 ethnic Chinese migrants and 39 Australian-born Caucasian women with gestational diabetes mellitus.

Methods: This mixed-methods study used in-depth, semi-structured audio-recorded interviews, validated pregnancy physical activity questionnaires and pedometers. Qualitative data were thematically analysed and compared between ethnicities. SPSS (SPSS Inc) was used in quantitative data analysis. Data triangulation was made to identify patterns in participant characteristics, physical activity beliefs and participation.

Results: Despite both ethnic groups doing less physical activity than recommended, Chinese participants were less physically active than Caucasian participants. Chinese participants expressed greater safety concerns about physical activity and opted for a more sedentary lifestyle. Data triangulation indicated that non-Australian-born Chinese participants whose husbands were Asian were overcautious about miscarriage risk related to physical activity, which promoted a sedentary lifestyle. Chinese participants suggested individualised, specific physical activity advice on safe physical activity during pregnancy would mitigate their concerns. Caucasian participants reported that digital step measurement technologies motivated their participation in physical activity.

Conclusion: Different strategies are suggested by Chinese and Caucasian participants to improve physical activity participation to manage gestational diabetes mellitus among ethnic Chinese and Caucasian populations, which will be evaluated in future interventions.

背景:体育锻炼是妊娠糖尿病管理的关键组成部分,可优化血糖控制并减少不良妊娠结局。然而,孕期体育锻炼不足的情况很普遍。在以妇女为中心的孕期保健模式的基础上,针对患者的文化需求采取适当的策略可促进其参与体育锻炼。华裔移民患妊娠糖尿病的风险比澳大利亚白种人高出四倍。为了确定潜在有效的疾病管理策略以提高体育锻炼的参与率,了解并比较华裔移民和高加索妇女的观点将为制定最终用户知情的干预措施提供启示。目的:本研究旨在比较 44 名华裔移民和 39 名澳大利亚出生的妊娠期糖尿病高加索妇女对孕期参加体育锻炼的看法和做法:这项混合方法研究采用了深入的半结构化录音访谈、经过验证的孕期体力活动调查问卷和计步器。对定性数据进行了专题分析,并对不同种族的数据进行了比较。定量数据分析使用了 SPSS(SPSS 公司)。对数据进行了三角分析,以确定参与者的特征、体育锻炼信念和参与模式:结果:尽管两个种族群体的体育活动量都少于推荐量,但华裔参与者的体育活动量少于白种人参与者。华裔参与者对体育锻炼表示出更大的安全顾虑,并选择了更久坐的生活方式。数据三角分析表明,丈夫为亚裔的非澳大利亚出生的华裔参与者对与体育锻炼有关的流产风险过于谨慎,这促进了久坐不动的生活方式。华裔参与者建议,针对孕期安全体育活动的个性化、具体的体育活动建议将减轻他们的担忧。白种人参与者则表示,数字步数测量技术能激励他们参加体育锻炼:华裔和白种人参与者提出了不同的策略,以提高华裔和白种人参与体育锻炼的积极性,从而控制妊娠糖尿病。
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Ethnicity & Health
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