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Racial disparities in the receipt of therapies for cancer, hypertension, and diabetes, and in mortality in a large population-based cohort of older men with prostate cancer. 在一个以人群为基础的前列腺癌老年男性队列中,癌症、高血压和糖尿病治疗的接受和死亡率的种族差异
IF 2.6 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2025-08-01 Epub Date: 2025-07-01 DOI: 10.1080/13557858.2025.2525791
Zhuoyun Li, Xianglin L Du

Background: Racial disparities in treatment and mortality were widely studied among prostate cancer patients; however, few studies considered the prevalence of hypertension and diabetes and their treatment status.

Objectives: To determine whether there are racial discrepancies in the use of anti-cancer, antihypertensive, and antidiabetic drugs in a cohort of long-term survivors of prostate cancer diagnosed in 2007-2015; and to examine racial disparities in mortality after adjustments for their differences in those treatments.

Methods: We used the SEER (Surveillance, Epidemiology, and End Results)-Medicare linked database and included records for patients with prostate cancer at age 65 years or older diagnosed from 2007 to 2015 in 17 SEER areas (n = 244,468).

Results: Among non-Hispanic Blacks with prostate cancer, 86.2% were affected by hypertension, with 62.1% taking antihypertensive medications. Additionally, 45.3% of individuals in this group had diabetes, and 41.1% of them received antidiabetic drugs to manage their respective health conditions. Non-Hispanic Blacks were less likely to receive antihypertensive drugs (adjusted odds ratio [aOR]: 0.94, 95% confidence interval [CI]: 0.89-0.99) and antidiabetic drugs (aOR:0.86, 95% CI:0.80-0.92) compared with non-Hispanic Whites. Hispanic and non-Hispanic Asians were significantly less likely to receive chemotherapy and hormone therapy, compared with non-Hispanic Whites. After adjusting for all factors including treatments, the risk of all-cause and cancer-specific mortality was significantly higher for non-Hispanic Blacks (hazard ratio: 1.22, 95% CI: 1.24-1.51 and 1.22, 95% CI:1.17-1.27) than that of non-Hispanic Whites.

Conclusions: There were substantial racial disparities in the receipt of cancer treatments and antihypertension and antidiabetic drugs. Non-Hispanic Black patients with prostate cancer still had a considerably higher risk of all-cause and cancer-specific mortality than non-Hispanic Whites after accounting for demographic, therapy, and tumor factors.

背景:前列腺癌患者在治疗和死亡率方面的种族差异被广泛研究;然而,很少有研究考虑高血压和糖尿病的患病率及其治疗状况。目的:确定2007-2015年诊断为前列腺癌的长期幸存者队列中抗癌、降压和降糖药物的使用是否存在种族差异;并在对这些治疗方法的差异进行调整后,研究死亡率的种族差异。方法:我们使用SEER(监测、流行病学和最终结果)-Medicare关联数据库,纳入了2007年至2015年在17个SEER地区诊断的65岁及以上前列腺癌患者的记录(n = 244,468)。结果:非西班牙裔黑人前列腺癌患者中,86.2%患有高血压,其中62.1%服用降压药物。此外,该组中45.3%的人患有糖尿病,41.1%的人接受抗糖尿病药物来控制他们各自的健康状况。与非西班牙裔白人相比,非西班牙裔黑人接受降压药物(调整优势比[aOR]: 0.94, 95%可信区间[CI]: 0.89-0.99)和降糖药(aOR:0.86, 95% CI:0.80-0.92)的可能性更低。与非西班牙裔白人相比,西班牙裔和非西班牙裔亚洲人接受化疗和激素治疗的可能性明显较低。在对包括治疗在内的所有因素进行调整后,非西班牙裔黑人的全因和癌症特异性死亡风险显著高于非西班牙裔白人(风险比:1.22,95% CI: 1.24-1.51和1.22,95% CI:1.17-1.27)。结论:在接受癌症治疗和降压降糖药物方面存在明显的种族差异。在考虑了人口统计学、治疗和肿瘤因素后,非西班牙裔黑人前列腺癌患者的全因死亡率和癌症特异性死亡率仍然比非西班牙裔白人高得多。
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引用次数: 0
Through the patient lens: exploring the lived experiences of African American and Latinx adults with Chronic Kidney Disease. 透过病人的镜头:探索非裔美国人和拉丁裔成人慢性肾脏疾病的生活经历。
IF 2.6 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2025-08-01 Epub Date: 2025-06-03 DOI: 10.1080/13557858.2025.2512577
Sadia Anjum Ashrafi, Minakshi Raj, Ana Selzer, Laura Quintero Silva, Rosalba Hernandez, Norman Hernandez, Katie Hopkins, Omar Ortiz, Michelle Martinez, Andiara Schwingel

Objective: Chronic Kidney Disease (CKD) disproportionately impacts African American and Latinx populations in the United States. This study utilized a participatory photo-elicitation approach to explore how African American and Latinx individuals with CKD perceive and navigate their disease journeys.

Method: In this qualitative study, remote semi-structured interviews were conducted with a total of 20 African American and Latinx individuals with CKD, and the data were analyzed using reflexive thematic analysis.

Results: Participants' ages ranged from 30 to 67, with 60% identifying as women and 30% reporting annual incomes <$20,000. Data analysis uncovered four key themes: (1) 'The Burden of CKD,' highlighting the physical, social, and emotional toll on patients; (2) 'Navigating CKD with Positivity and Support,' showcasing strategies to cultivate psychological well-being; (3) 'Systemic Difficulties,' addressing barriers within the healthcare system; and (4) 'Building Bridges in the Kidney Community,' illustrating advocacy efforts to combat CKD.

Discussion: This study highlights the nuanced experiences of African American and Latinx individuals with CKD, highlighting their challenges and resilience. These findings emphasize the need for inclusive healthcare strategies that address these racially/ethnically diverse populations' unique needs to improve health outcomes.

目的:慢性肾脏疾病(CKD)不成比例地影响非裔美国人和拉丁裔美国人。本研究采用参与式照片启发方法来探索非裔美国人和拉丁裔CKD患者如何感知和导航他们的疾病旅程。方法:本定性研究采用远程半结构化访谈方式,对20名非裔美国人和拉丁裔慢性肾病患者进行访谈,并采用自反性主题分析方法对数据进行分析。结果:参与者的年龄从30岁到67岁不等,60%的人认为自己是女性,30%的人报告年收入是“慢性肾病的负担”,突出了患者的身体、社会和情感损失;(2)“以积极和支持引导慢性肾病”,展示培养心理健康的策略;(3)“系统性困难”,解决医疗系统内部的障碍;和(4)“在肾脏社区建立桥梁”,展示了抗击慢性肾病的宣传努力。讨论:本研究强调了非裔美国人和拉丁裔CKD患者的微妙经历,强调了他们的挑战和适应能力。这些发现强调需要制定包容性医疗保健战略,以解决这些种族/民族多样化人群改善健康结果的独特需求。
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引用次数: 0
MOCHA Moving Forward: findings and lessons learned from implementing a community-based chronic disease prevention study with middle-aged black men. MOCHA前进:在中年黑人男性中实施基于社区的慢性病预防研究的结果和经验教训。
IF 2 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2025-08-01 Epub Date: 2025-07-09 DOI: 10.1080/13557858.2025.2526752
Luis A Valdez, Jeffery Markham, Lamont Scott, Sharina Person, Jerrold Meyer, Dean Robinson, David R Buchanan

Objectives: Black men in the U.S. experience disproportionately high rates of diabetes, cardiovascular disease, and prostate cancer - conditions closely linked to chronic stressors such as racial discrimination, economic precarity, and gender role strain. In response, the Men of Color Health Awareness (MOCHA) program was developed to promote the physical, mental, social, and spiritual well-being of men of color through culturally grounded discussions on structural violence, coping, and masculinity. This paper presents findings and key implementation lessons from the MOCHA Moving Forward study, which tested two intervention models: the original MOCHA program (MO) and MOCHA+, an enhanced version incorporating culturally adapted narrative dialogue.

Design: This community-academic feasibility trial randomized 210 men aged 35-70 into MO or MOCHA+ groups. Both participated in a 10-week program focused on stress and chronic disease prevention.

Results: Among participants who completed the program, statistically significant reductions were found in self-reported stress, BMI, anxiety, and depression in the MO group. When combining MO and MOCHA+ participants, reductions in stress and BMI remained significant. However, high attrition and loss to follow-up (final sample: 38) posed challenges to feasibility and scalability.

Conclusion: Despite retention challenges, findings suggest MOCHA is a promising intervention for stress and chronic disease risk reduction among men of color. The significant outcomes observed among completers highlight the program's potential and provide critical insights for improving the feasibility of future community-based interventions. Future research should explore scalable adaptations and further refine MOCHA's culturally tailored content to better support structurally marginalized populations.

目的:美国黑人男性患糖尿病、心血管疾病和前列腺癌的比例高得不成比例,这些疾病与种族歧视、经济不稳定和性别角色紧张等慢性压力源密切相关。作为回应,有色人种健康意识(MOCHA)项目被开发出来,通过对结构性暴力、应对和男子气概的文化基础讨论,促进有色人种的身体、心理、社会和精神健康。本文介绍了MOCHA Moving Forward研究的结果和关键的实施经验,该研究测试了两种干预模式:原始MOCHA计划(MO)和MOCHA+,一个包含文化适应性叙事对话的增强版本。设计:本社区-学术可行性试验将210名年龄在35-70岁的男性随机分为MO组或MOCHA+组。两人都参加了一个为期10周的项目,重点是压力和慢性疾病的预防。结果:在完成项目的参与者中,MO组在自我报告的压力、BMI、焦虑和抑郁方面有统计学上的显著降低。当将MO和MOCHA+参与者结合使用时,压力和BMI的降低仍然显著。然而,高流失率和后续损失(最终样本:38)对可行性和可扩展性提出了挑战。结论:尽管存在保留挑战,但研究结果表明,MOCHA是降低有色人种男性压力和慢性疾病风险的有希望的干预措施。在完成者中观察到的显著结果突出了该项目的潜力,并为提高未来社区干预措施的可行性提供了重要见解。未来的研究应该探索可扩展的适应性,并进一步完善MOCHA的文化定制内容,以更好地支持结构上边缘化的人群。
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引用次数: 0
Inclusive data practices: disaggregating race and assessing comorbidities among American Indian and Alaska Native individuals in PRAMS. 包容性数据实践:PRAMS中美国印第安人和阿拉斯加原住民个体的种族分类和合并症评估。
IF 2.6 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2025-08-01 Epub Date: 2025-07-04 DOI: 10.1080/13557858.2025.2525796
Micah Hartwell, KayLeigh Noblin, Jasha Lyons Echo-Hawk, Ashton Gatewood, Amy D Hendrix-Dicken

Importance: To assess potential misclassification or exclusion of American Indian and Alaska Native (AI/AN) individuals within the Pregnancy Risk Assessment Monitoring System (PRAMS) Phase 8, we compared differences between aggregated and self-reported race variables and their impact on maternal comorbidities.

Methods/design: We utilized several CDC-provided ethnoracial identity variables alongside a disaggregated variable we created. We then estimated comorbidity prevalences between these groupings to determine the impact of these methodological differences.

Results: PRAMS variables, MRACE_AMI and MAT_RACE_PU, included 13,341 (no distinction between AI and AN) and 7,494 AI (excluded AN altogether), respectively. Our constructed variable (n = 13,383) included 19 ethnoracial-subgroups and 42 tribal members not selecting AI/AN race. We found significant differences in the prevalence of comorbidities by these variables. For instance, the prevalence for diabetes with MAT_RACE_PU was 4.93%, with MRACE_AMI was 4.04%, but our subgroup AI (alone) was 5.46%, and AN (alone) was 1.37%.

Conclusion: Our results highlight significant disparities in maternal comorbidities among AI/AN women when different racial classification strategies are employed. Disaggregating these data revealed differences that are crucial for understanding the unique health challenges faced by various subgroups.

重要性:为了评估在妊娠风险评估监测系统(PRAMS)第8阶段中美国印第安人和阿拉斯加原住民(AI/AN)个体的潜在错误分类或排除,我们比较了汇总和自我报告的种族变量之间的差异及其对孕产妇合并症的影响。方法/设计:我们使用了几个cdc提供的种族身份变量以及我们创建的分类变量。然后,我们估计这些组之间的共病患病率,以确定这些方法差异的影响。结果:PRAMS变量MRACE_AMI和MAT_RACE_PU分别包含13341例(AI与AN无区别)和7494例AI(完全排除AN)。我们构建的变量(n = 13,383)包括19个种族亚群和42个不选择AI/AN种族的部落成员。我们发现这些变量在合并症患病率上存在显著差异。例如,糖尿病合并MAT_RACE_PU的患病率为4.93%,合并MRACE_AMI的患病率为4.04%,但我们的亚组AI(单独)患病率为5.46%,AN(单独)患病率为1.37%。结论:我们的研究结果突出了采用不同种族分类策略时AI/AN妇女产妇合并症的显著差异。对这些数据进行分类,揭示了对了解不同亚群体所面临的独特健康挑战至关重要的差异。
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引用次数: 0
Understanding the intersectionality of the rural Hispanic/Latino Veteran population: a scoping review of health-related challenges. 了解农村西班牙裔/拉丁裔退伍军人人口的交叉性:健康相关挑战的范围审查。
IF 2.6 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2025-07-01 Epub Date: 2025-04-03 DOI: 10.1080/13557858.2025.2486413
Kelsea LeBeau, Janet Lopez, Melanie Orejuela, Nathaniel Eliazar-Macke, I Magaly Freytes

Introduction: The rural Veteran population is becoming more racially and ethnically diverse, with Hispanic/Latino (H/L) Veterans representing a growing proportion of rural Veterans. Despite experiencing similar challenges to those of other rural Veteran populations, rural H/L Veterans face additional health-related challenges due to sociocultural factors. A gap in knowledge for rural H/L Veterans exists; thus, research on this population is warranted.

Objective: We conducted a scoping review to examine literature on rural H/L Veterans. We synthesized health-related issues, needs, and services for rural H/L Veterans, including health disparities, tailored interventions to address health disparities, and whether studies employed an intersectional approach to understand and address challenges for rural H/L Veterans.

Methods: We followed Arksey and O'Malley's framework. Inclusion criteria were limited to English language articles published between 2007-2024 focusing on rural H/L Veterans in the United States and U.S. state equivalents. Two reviewers assessed selected articles.

Results: Sixteen articles were included. Most articles (75%) were retrospective cohort or retrospective cross-sectional studies. Studies examined health disparities related to diabetes, suicide, depression, traumatic brain injury, PTSD, chronic pain, COVID-19 vaccination, primary care access, goals of care documentation, and multimorbidity. 'Hispanic' and/or 'Latino' terms were often used as descriptive characteristics and/or covariates and lacked clear definitions. Few studies thoroughly highlighted the intersectionality of geographic location and H/L ethnicity for Veterans. Additionally, limitations in data were noted by some studies.

Conclusions: Increased research on health-related challenges experienced by rural H/L Veterans is needed. Of specific importance is research that emphasizes the intersectionality of rural H/L Veterans, acknowledges intra-ethnic diversity and cultural influence, prioritizes culturally relevant interventions, addresses data limitations, and focuses on providing equitable care. Knowledge gained can inform the development of Veteran-centric and culturally appropriate policies and practices to improve the health outcomes of rural H/L Veterans and achieve health equity.

导言:农村退伍军人在种族和民族方面越来越多样化,其中西班牙裔/拉丁美洲裔退伍军人在农村退伍军人中所占比例越来越大。尽管与其他农村退伍军人群体面临着类似的挑战,但由于社会文化因素,农村 H/L 退伍军人面临着更多与健康相关的挑战。有关农村 H/L 退伍军人的知识存在空白;因此,有必要对这一人群进行研究:我们进行了一次范围界定审查,以研究有关农村 H/L 退伍军人的文献。我们综合了与农村 H/L 退伍军人健康相关的问题、需求和服务,包括健康差异、解决健康差异的定制干预措施,以及研究是否采用了交叉方法来理解和解决农村 H/L 退伍军人面临的挑战:我们遵循 Arksey 和 O'Malley 的框架。纳入标准仅限于 2007-2024 年间发表的以美国及美国同等州的农村 H/L 退伍军人为研究对象的英文文章。两名审稿人对所选文章进行了评估:结果:共纳入 16 篇文章。大多数文章(75%)是回顾性队列研究或回顾性横断面研究。研究探讨了与糖尿病、自杀、抑郁症、创伤性脑损伤、创伤后应激障碍、慢性疼痛、COVID-19 疫苗接种、初级保健机会、保健目标记录和多病症相关的健康差异。西班牙裔 "和/或 "拉丁裔 "通常被用作描述性特征和/或协变量,缺乏明确的定义。很少有研究彻底强调退伍军人的地理位置和 H/L 族裔的交叉性。此外,一些研究还指出了数据的局限性:需要加强对农村 H/L 退伍军人所经历的健康相关挑战的研究。特别重要的是,研究应强调农村 H/L 退伍军人的交叉性,承认种族内的多样性和文化影响,优先考虑与文化相关的干预措施,解决数据限制问题,并注重提供公平的护理。所获得的知识可为制定以退伍军人为中心、文化上适当的政策和实践提供信息,从而改善农村 H/L 退伍军人的健康状况,实现健康公平。
{"title":"Understanding the intersectionality of the rural Hispanic/Latino Veteran population: a scoping review of health-related challenges.","authors":"Kelsea LeBeau, Janet Lopez, Melanie Orejuela, Nathaniel Eliazar-Macke, I Magaly Freytes","doi":"10.1080/13557858.2025.2486413","DOIUrl":"10.1080/13557858.2025.2486413","url":null,"abstract":"<p><strong>Introduction: </strong>The rural Veteran population is becoming more racially and ethnically diverse, with Hispanic/Latino (H/L) Veterans representing a growing proportion of rural Veterans. Despite experiencing similar challenges to those of other rural Veteran populations, rural H/L Veterans face additional health-related challenges due to sociocultural factors. A gap in knowledge for rural H/L Veterans exists; thus, research on this population is warranted.</p><p><strong>Objective: </strong>We conducted a scoping review to examine literature on rural H/L Veterans. We synthesized health-related issues, needs, and services for rural H/L Veterans, including health disparities, tailored interventions to address health disparities, and whether studies employed an intersectional approach to understand and address challenges for rural H/L Veterans.</p><p><strong>Methods: </strong>We followed Arksey and O'Malley's framework. Inclusion criteria were limited to English language articles published between 2007-2024 focusing on rural H/L Veterans in the United States and U.S. state equivalents. Two reviewers assessed selected articles.</p><p><strong>Results: </strong>Sixteen articles were included. Most articles (75%) were retrospective cohort or retrospective cross-sectional studies. Studies examined health disparities related to diabetes, suicide, depression, traumatic brain injury, PTSD, chronic pain, COVID-19 vaccination, primary care access, goals of care documentation, and multimorbidity. 'Hispanic' and/or 'Latino' terms were often used as descriptive characteristics and/or covariates and lacked clear definitions. Few studies thoroughly highlighted the intersectionality of geographic location and H/L ethnicity for Veterans. Additionally, limitations in data were noted by some studies.</p><p><strong>Conclusions: </strong>Increased research on health-related challenges experienced by rural H/L Veterans is needed. Of specific importance is research that emphasizes the intersectionality of rural H/L Veterans, acknowledges intra-ethnic diversity and cultural influence, prioritizes culturally relevant interventions, addresses data limitations, and focuses on providing equitable care. Knowledge gained can inform the development of Veteran-centric and culturally appropriate policies and practices to improve the health outcomes of rural H/L Veterans and achieve health equity.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"553-580"},"PeriodicalIF":2.6,"publicationDate":"2025-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143774849","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The model isn't made for us: Ghanaian and Nigerian youths' experiences in London's mental health system: a qualitative study. 这个模型不是为我们做的:加纳和尼日利亚青年在伦敦心理健康系统中的经历:一项定性研究。
IF 2.6 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2025-07-01 Epub Date: 2025-05-29 DOI: 10.1080/13557858.2025.2511631
Anthony Isiwele, Carol Rivas, Gillian Stokes

Objectives: This study explores the lived experiences of Ghanaian and Nigerian youth in London's mental health system, highlighting systemic barriers, cultural misalignment, and practitioner perspectives on care models. Standardised approaches, such as Cognitive Behavioral Therapy (CBT), often fail to accommodate the cultural and systemic needs of these communities, contributing to disparities in access and engagement.

Design: A qualitative study employing Interpretative Phenomenological Analysis (IPA) was conducted with 12 participants, including Ghanaian and Nigerian youth (n = 5), parents (n = 2), and mental health practitioners (n = 5). Semi-structured interviews facilitated an in-depth exploration of personal and shared experiences, analysed using idiographic and group-level thematic approaches.

Results: Three overarching themes emerged: (1) 'They didn't really help me' - highlighting system-level barriers such as long wait times, unfulfilled referrals, and marginalisation; (2) Cross-racial therapeutic dynamics and practitioners' observations - revealing tensions between cultural differences in therapy, mixed practitioner experiences, and challenges in building rapport; (3) There hasn't been enough in the model of care - illustrating the rigidity and cultural insensitivity of standardised therapeutic approaches, particularly within NHS Talking Therapy (formerly IAPT).

Conclusion: The study highlights the need for a shift from cultural competence to cultural humility in mental healthcare. Addressing systemic barriers requires integrating cultural humility in practitioner training, adapting care models to accommodate diverse experiences, and fostering inclusive mental health policies. These findings advocate for rethinking mental health service delivery to ensure equitable and effective care for Ghanaian, Nigerian and diverse youth in London.

目的:本研究探讨了伦敦精神卫生系统中加纳和尼日利亚青年的生活经历,突出了系统障碍、文化错位和从业者对护理模式的看法。认知行为疗法(CBT)等标准化方法往往无法适应这些社区的文化和系统需求,导致在获取和参与方面存在差异。设计:采用解释现象学分析(IPA)对12名参与者进行定性研究,包括加纳和尼日利亚青年(n = 5)、父母(n = 2)和精神卫生从业人员(n = 5)。半结构化访谈促进了对个人和共同经历的深入探索,并使用具体和小组层面的主题方法进行了分析。结果:出现了三个总体主题:(1)“他们并没有真正帮助我”——强调系统层面的障碍,如漫长的等待时间、未完成的转诊和边缘化;(2)跨种族治疗动态和从业者的观察——揭示了治疗中文化差异、不同从业者经验和建立融洽关系的挑战之间的紧张关系;(3)护理模式还不够——说明了标准化治疗方法的僵化和文化不敏感,特别是在NHS谈话治疗(以前的IAPT)中。结论:本研究强调了心理健康从文化能力到文化谦逊的转变。解决系统性障碍需要在从业者培训中融入文化谦逊,调整护理模式以适应不同的经历,并促进包容性精神卫生政策。这些发现提倡重新思考精神卫生服务的提供,以确保公平和有效地照顾伦敦的加纳、尼日利亚和不同的青年。
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引用次数: 0
Knowledge and awareness of healthcare systems and the uptake of diabetic services among Chinese people diagnosed with type 2 diabetes in the UK. 在英国诊断为2型糖尿病的中国人对医疗保健系统的了解和意识以及糖尿病服务的吸收情况。
IF 2.6 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2025-07-01 Epub Date: 2025-04-23 DOI: 10.1080/13557858.2025.2496188
Tarnjit Sehmbi, Ran Cao, Raju Sapkota, Shahina Pardhan

Objectives: Diabetes poses a significant public health challenge. The Chinese community has unique cultural characteristics that can influence their understanding of the diabetes healthcare system and engagement with services. This study aims to explore the knowledge and awareness of the diabetes healthcare system and the uptake of healthcare services in the UK Chinese population.

Design: This study adopted a qualitative design. Three focus group discussions (FGDs) were conducted on Zoom with 22 Chinese participants with self-reported type 2 diabetes living in the UK. Participants ranged from 24 to 85 years (mean age = 66 years, SD = 17.1). A purposive sample was recruited through study adverts in Chinese community centres and snowball sampling. Data were analysed using Braun and Clarke's thematic analysis (TA).

Results: This paper discusses 4 themes: Awareness and understanding of diabetes, healthcare access and utilisation, attitudes towards diabetes prevention programmes and Chinese medicine vs. Western medicine. Limited knowledge and awareness of diabetes was highlighted, with cultural factors impacting this. Factors which impacted healthcare access and utilisation were linguistic/ communication challenges, and trust and perception of the NHS. Participants were unaware of diabetes prevention programmes and highlighted that these were culturally inappropriate. Generational preferences were noted in the way participants wished to receive diabetes education. The western medical system was viewed as medication focused, therefore the older Chinese community trusted familiar natural methods of illness management.

Conclusion: These findings highlight the importance of ensuring diabetes education is culturally appropriate. Generational differences in education preference should be recognised by healthcare professionals to increase healthcare engagement. These findings demonstrate the important need to educate UK healthcare professionals with the unique sociocultural contexts for this ethnic group. This study uncovers gaps in awareness and service uptake, highlighting the need for co-development of interventions that promote health equity and improve diabetes management within this population.

目的:糖尿病是一项重大的公共卫生挑战。华人社区具有独特的文化特征,这可能会影响他们对糖尿病医疗保健系统的理解和对服务的参与。本研究旨在探讨英国华人对糖尿病医疗保健系统的认识和认知,以及对医疗保健服务的接受情况。设计:本研究采用定性设计。在Zoom上进行了三次焦点小组讨论(fgd), 22名居住在英国的自报告2型糖尿病的中国参与者。参与者年龄从24岁到85岁不等(平均年龄= 66岁,SD = 17.1)。通过中国社区中心的学习广告和滚雪球抽样来招募有目的的样本。数据分析采用Braun和Clarke的主题分析(TA)。结果:本文讨论了4个主题:对糖尿病的认识和理解、医疗保健的获取和利用、对糖尿病预防计划的态度以及中医与西医的对比。强调了对糖尿病的有限知识和意识,文化因素影响了这一点。影响医疗保健获取和利用的因素是语言/沟通挑战,以及对NHS的信任和看法。参与者不了解糖尿病预防项目,并强调这些项目在文化上是不合适的。参与者希望接受糖尿病教育的方式显示了代际偏好。西方的医疗系统被认为是以药物治疗为中心的,因此老的中国社区相信熟悉的自然疾病管理方法。结论:这些发现强调了确保糖尿病教育在文化上适当的重要性。医疗保健专业人员应认识到教育偏好的代际差异,以提高医疗保健参与度。这些发现表明,有必要对英国医疗保健专业人员进行独特的社会文化背景的教育。这项研究揭示了在认识和服务吸收方面的差距,强调了共同开发干预措施以促进这一人群的卫生公平和改善糖尿病管理的必要性。
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引用次数: 0
Differences in chronic disease prevalence by ethno-racial identity among Canadians: analyses of nationally representative self-report data. 加拿大人慢性疾病患病率的民族-种族认同差异:全国代表性自我报告数据分析
IF 2.6 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2025-07-01 Epub Date: 2025-06-05 DOI: 10.1080/13557858.2025.2511621
Ramez Salama, Todd Coleman

Objective: In 2015, chronic diseases accounted for approximately three-quarters of deaths in Ontario, with the most common conditions being cancer, cardiovascular diseases, diabetes, and chronic lower respiratory diseases. Despite Canada's diversity, there is limited health research on chronic disease prevalence among visible minority populations. This study aimed to examine the relationship between visible minority status and the prevalence of chronic diseases in Canada, with a focus on self-identified ethnoracial identity.

Design: Data were drawn from the 2017/18 combined cycle of the Canadian Community Health Survey (n = 113,290), accessed through the Statistics Canada Research Data Centre. Each enumerated visible minority group was analysed separately, except for Chinese, Korean, and Japanese participants, who were grouped into a single category due to sample size constraints. Chronic conditions were self-reported with binary 'yes/no' responses, with the exception of obesity, which was derived from reported weight and height data. Logistic regression was used to calculate bivariate and multivariable odds ratios (OR) with 95% confidence intervals (CI). Analyses were stratified by sex (male/female, as measured by the CCHS).

Results: Multivariable analyses indicated that visible minority males had higher odds of reporting high cholesterol, type II diabetes, and hypertension, but lower odds of arthritis and cancer, compared white males. Filipino males had the highest odds for hypertension (OR: 2.36; 95%CI: 1.40-3.99), while South Asian males had the lowest odds of cancer (OR: 0.09; 95%CI: 0.04-0.19). Indigenous males and females consistently reported higher odds of most chronic conditions.

Conclusion: Several ethno-racial groups exhibited elevated odds of specific chronic conditions, though not uniformly across all tested outcomes. These findings underscore the importance for healthcare providers, public health practitioners, and policymakers to consider the nuanced relationship between ethnoracial identity and chronic conditions. Culturally competent care and targeted health interventions should reflect this complexity.

目标:2015年,慢性疾病约占安大略省死亡人数的四分之三,最常见的疾病是癌症、心血管疾病、糖尿病和慢性下呼吸道疾病。尽管加拿大具有多样性,但对少数族裔人群慢性病患病率的健康研究有限。本研究旨在研究加拿大可见少数民族地位与慢性病患病率之间的关系,重点关注自我认同的种族认同。设计:数据来自加拿大社区卫生调查的2017/18联合周期(n = 113,290),通过加拿大统计局研究数据中心获取。每个被列举的少数族裔都被单独分析,除了中国、韩国和日本参与者,由于样本量的限制,他们被归为一个类别。慢性疾病以“是/否”的二元回答自我报告,但肥胖除外,它来源于报告的体重和身高数据。采用Logistic回归计算双变量和多变量优势比(OR), 95%置信区间(CI)。分析按性别(男性/女性,由CCHS测量)分层。结果:多变量分析表明,与白人男性相比,少数族裔男性报告高胆固醇、II型糖尿病和高血压的几率更高,但患关节炎和癌症的几率更低。菲律宾男性患高血压的几率最高(OR: 2.36;95%CI: 1.40-3.99),而南亚男性患癌症的几率最低(OR: 0.09;95%置信区间:0.04—-0.19)。土著男性和女性一直报告大多数慢性病的发病率较高。结论:几个种族群体表现出特定慢性疾病的高几率,尽管在所有测试结果中并不一致。这些发现强调了医疗保健提供者、公共卫生从业人员和政策制定者考虑种族认同与慢性病之间微妙关系的重要性。文化上合格的护理和有针对性的卫生干预措施应反映这种复杂性。
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引用次数: 0
Parent's experiences of the impact of ethnicity and skin pigmentation on perinatal care. 父母的经验,种族和皮肤色素对围产期护理的影响。
IF 2.6 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2025-07-01 Epub Date: 2025-04-25 DOI: 10.1080/13557858.2025.2488893
Frankie Fair, Amy Furness, Gina Higginbottom, Sam Oddie, Hora Soltani

Objectives: This study aimed to explore the perceived impact of ethnicity and race on perinatal care among parents from diverse ethnic minority backgrounds or who had a Black, Asian, or ethnic minority child born in the UK within the last five years to better understand areas of ethnic inequality within perinatal care.

Design: This study employed a focused ethnography, recruiting a purposive sample through posters, professional organisations, and social media platforms. Efforts to ensure maximum phenomenon variation included diverse ethnic and geographical representation. Semi-structured interviews using the digital platform, Zoom, explored experiences of accessing and receiving care, with a focus on challenges and perceptions related to ethnicity, race or skin pigmentation. Interview schedules underwent stakeholder validation and pilot testing. NVivo software facilitated qualitative analysis, employing an inductive approach with rigorous coding and thematic analysis.

Results: Ethnic minority parental experiences (n = 24) revealed significant systemic challenges within the healthcare system. Three major themes were observed: Parent's voices not being heard, Systemic factors and Discrimination. Participants expressed feelings of marginalisation and inadequate communication with healthcare providers. Instances where concerns were dismissed or belittled, coupled with issues related to consent, highlighted pervasive systemic shortcomings. Structural barriers such as difficulties in scheduling appointments and perceived organisational neglect further compounded these challenges. Discriminatory attitudes and racial stereotypes also influenced the quality of care received, contributing to disparities in health outcomes and maternal wellbeing. Participants noted feelings of social isolation, exacerbated by pandemic-related restrictions and a lack of tailored support networks.

Conclusion: These findings underscore the urgent need for systemic reforms aimed at ensuring culturally safe and anti-racist practice, addressing communication barriers, and reducing discriminatory practices to enhance healthcare experiences and outcomes for ethnic minority parents. This includes training all healthcare staff around cultural safety.

目的:本研究旨在探讨种族和种族对不同少数民族背景的父母或在过去五年内在英国出生的黑人,亚洲人或少数民族儿童的父母的围产期护理的感知影响,以更好地了解围产期护理中的种族不平等领域。设计:本研究采用了重点人种学,通过海报、专业组织和社交媒体平台招募有目的的样本。确保现象最大程度变化的努力包括多样化的种族和地域代表性。使用数字平台Zoom的半结构化访谈探讨了获得和接受护理的经历,重点关注与种族、种族或皮肤色素沉着相关的挑战和看法。面试计划经过了利益相关者的验证和试点测试。NVivo软件促进定性分析,采用归纳方法与严格的编码和专题分析。结果:少数民族父母的经历(n = 24)揭示了医疗保健系统内的重大系统性挑战。观察到三个主要主题:父母的声音没有被听到,体制因素和歧视。参与者表达了被边缘化和与医疗保健提供者沟通不足的感觉。这些担忧被忽视或轻视的例子,再加上与同意相关的问题,凸显了普遍存在的系统缺陷。结构性障碍,如安排约会的困难和组织的忽视,进一步加剧了这些挑战。歧视态度和种族陈规定型观念也影响到所接受护理的质量,造成保健结果和孕产妇福祉方面的差异。与会者指出,与大流行有关的限制和缺乏量身定制的支持网络加剧了社会孤立感。结论:这些发现强调了迫切需要进行系统性改革,以确保文化安全和反种族主义做法,解决沟通障碍,减少歧视性做法,以提高少数民族父母的医疗体验和结果。这包括围绕文化安全对所有医护人员进行培训。
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引用次数: 0
'Doing what I need to do': sustaining mental health, medication adherence, and engagement in care among Black women living with HIV during the COVID-19 onset of 2020. 做我需要做的":在 2020 年 COVID-19 开始期间,保持感染 HIV 的黑人女性的心理健康、坚持服药和参与护理。
IF 2 3区 医学 Q1 ETHNIC STUDIES Pub Date : 2025-05-01 Epub Date: 2025-03-24 DOI: 10.1080/13557858.2025.2482625
Sannisha K Dale, Peyton R Willie, Naysha N Shahid, Maria Fernanda Silva, Reyanna St Juste, Amanda Ponce, Nadine Gardner, Felicia O Casanova

Background: The HIV epidemic and COVID-19 are disproportionately impacting Black communities. For Black women living with HIV (BWLWH), 2020 COVID-19 mandates (e.g. stay-at-home orders) may have had implications for HIV medication adherence, engagement in care, and mental health.

Method: In April 2020 during COVID-19 spikes in the US, thirty Black women living with HIV in Miami, FL participated in qualitative semi-structured interviews that asked about COVID-related concerns, HIV medication adherence, engagement in care, and mental health. Interviews were audio recorded, transcribed, and coded using thematic content analysis.

Results: Qualitative analyses highlighted themes around concerns (e.g. whether HIV placed them at increased risk for COVID-19, feeling confined and restricted); mental health (e.g. feeling anxious, depressed); medication adherence (adhering to HIV medication despite COVID-19); engagement in care (e.g. providers canceling appointments, being persistent in contacting providers); adaptive coping (e.g. cleaning/chores, watching series/videos, seeking/receiving social support, praying/watching virtual church services, limiting news consumption, social distancing and wearing masks); minimal use of unhelpful coping strategies (e.g. substance use, eating more unhealthy food); losses/deaths; and the need for financial, food, mental health, and community level (e.g. testing sites) resources. Additionally, survey responses to quantitative measures indicated that a significant portion of women (between 20% and 47%) had difficulties such as getting food, paying bills, getting hand sanitizer and cleaning supplies, communicating with loved ones, reduced wages/work hours, and transportation barriers.

Conclusion: Our findings indicate that in the context of COVID-19 stay-at-home orders BWLWH were moderately impacted, shared concerns and mental health symptoms, and voiced the shortfalls of medical providers. Further, BWLWH exhibited resilience with regard to medication adherence and the use of adaptive coping strategies while echoing the need for additional resources and structural interventions.

背景:艾滋病疫情和 COVID-19 对黑人社区的影响尤为严重。对于感染艾滋病毒的黑人妇女(BWLWH)而言,2020 年 COVID-19 的规定(如留在家中的命令)可能会对艾滋病毒药物治疗的依从性、参与护理和心理健康产生影响:2020 年 4 月,在美国 COVID-19 峰会期间,佛罗里达州迈阿密的 30 名感染 HIV 的黑人女性参加了半结构化定性访谈,询问了 COVID 相关问题、HIV 服药依从性、护理参与度和心理健康。对访谈进行了录音、转录,并使用主题内容分析法进行了编码:定性分析突出了以下方面的主题:担忧(例如,艾滋病是否会增加他们感染 COVID-19 的风险,感觉被束缚和限制);心理健康(例如,感觉焦虑、抑郁);坚持服药(尽管感染了 COVID-19,但仍坚持服用艾滋病药物);参与护理(例如,护理提供者取消预约,坚持联系护理提供者);适应性应对(例如,打扫卫生/做家务,看电视)。例如:清洁/盥洗、观看连续剧/视频、寻求/接受社会支持、祈祷/观看虚拟教堂服务、限制新闻消费、疏远社会和戴面具);尽量少使用无益的应对策略(例如:使用药物、吃更多不健康的食物);损失/死亡;以及对经济、食物、心理健康和社区层面(例如:检测点)资源的需求。此外,对定量措施的调查反馈表明,相当一部分妇女(20% 至 47%)在获取食物、支付账单、获取洗手液和清洁用品、与亲人沟通、工资/工作时间减少以及交通障碍等方面遇到困难:我们的研究结果表明,在 COVID-19 留守家庭订单的背景下,BWLWH 受到了一定程度的影响,他们有共同的担忧和心理健康症状,并表达了医疗服务提供者的不足之处。此外,BWLWH 在坚持用药和使用适应性应对策略方面表现出了韧性,同时也表示需要更多的资源和结构性干预措施。
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引用次数: 0
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Ethnicity & Health
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