Pub Date : 2024-11-01Epub Date: 2024-08-05DOI: 10.1080/13557858.2024.2387113
Pao-Hwa Lin, Ping Zhang, Jian Chen, Harold G Koenig, Marissa Mortiboy, Ping-Tzu Lee, Jennifer Young Tu, Kearston L Ingraham, Yi-Ju Li, Serena Lin, Nadine Barrett
Objectives: Mental health remains an unmet need among Chinese Americans. This study aims to identify specific needs and strategies that may address the needs.
Design: A total of 55 Chinese Americans consented and participated in online focus groups conducted in either Chinese or English using nominal group technique. Participants discussed the following questions, achieved themes, and provided ranking of themes in importance for each: (1) In general, what do people in the Chinese American community think about mental health or emotional well-being? (2) What have you found to be helpful for accessing mental health or emotional well-being services or care in the Chinese American population? And (3) What actions would you suggest to improve mental health and emotional well-being in the Chinese American population?
Results: Across the focus groups, we observed high consistency of top ranked themes including lack of knowledge and awareness, negative impression, lack of Chinese-speaking providers, and that the most helpful factor toward access to care was education and increased awareness. Seminars and trainings was the top actionable suggestion.
Conclusion: The findings are consistent with previous findings and continue to show that Chinese Americans need more education and training and that providers who can speak the language and understand the culture would be very helpful to increase access to care. This study emphasizes addressing mental health disparities in the Chinese American community through awareness, tailored interventions, and barrier removal. Promoting equal access also underscores the need for ongoing assessment and responsive strategies.
{"title":"Mental health needs and barriers to service in the Chinese American community: insights gained from focus groups.","authors":"Pao-Hwa Lin, Ping Zhang, Jian Chen, Harold G Koenig, Marissa Mortiboy, Ping-Tzu Lee, Jennifer Young Tu, Kearston L Ingraham, Yi-Ju Li, Serena Lin, Nadine Barrett","doi":"10.1080/13557858.2024.2387113","DOIUrl":"10.1080/13557858.2024.2387113","url":null,"abstract":"<p><strong>Objectives: </strong>Mental health remains an unmet need among Chinese Americans. This study aims to identify specific needs and strategies that may address the needs.</p><p><strong>Design: </strong>A total of 55 Chinese Americans consented and participated in online focus groups conducted in either Chinese or English using nominal group technique. Participants discussed the following questions, achieved themes, and provided ranking of themes in importance for each: (1) In general, what do people in the Chinese American community think about mental health or emotional well-being? (2) What have you found to be helpful for accessing mental health or emotional well-being services or care in the Chinese American population? And (3) What actions would you suggest to improve mental health and emotional well-being in the Chinese American population?</p><p><strong>Results: </strong>Across the focus groups, we observed high consistency of top ranked themes including lack of knowledge and awareness, negative impression, lack of Chinese-speaking providers, and that the most helpful factor toward access to care was education and increased awareness. Seminars and trainings was the top actionable suggestion.</p><p><strong>Conclusion: </strong>The findings are consistent with previous findings and continue to show that Chinese Americans need more education and training and that providers who can speak the language and understand the culture would be very helpful to increase access to care. This study emphasizes addressing mental health disparities in the Chinese American community through awareness, tailored interventions, and barrier removal. Promoting equal access also underscores the need for ongoing assessment and responsive strategies.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"1026-1035"},"PeriodicalIF":2.6,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141890814","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01Epub Date: 2024-08-06DOI: 10.1080/13557858.2024.2387111
Valerie Medina, Amber Watts, Monica Fracachán-Cabrera, Cameo Hazlewood, Mariana Ramirez-Mantilla, Eric D Vidoni, Jaime Perales-Puchalt
Objectives: To examine the associations between participant intensity of engagement with a text message intervention, CuidaTEXT, and socio-demographic factors, acceptability measures, and clinical outcomes among Latino/a caregivers of individuals with dementia.
Methods: CuidaTEXT is a six-month, bilingual, and bidirectional intervention. We enrolled 24 Latino/a caregivers in a one-arm feasibility trial. Participants received approximately one automatic daily text message and could engage with the intervention by texting specific keywords (e.g. STRESS to receive messages about stress-coping), and by chat-texting with a live coach. We used metrics and psychometric scales to quantify variables.
Results: Participants sent a total of 1847 messages to CuidaTEXT. Higher intensity of engagement was associated with higher intervention satisfaction (r = 0.6, p = 0.007), as were several other acceptability outcomes. We found no associations between intensity of engagement with CuidaTEXT and sociodemographic or clinical outcomes (p > 0.05).
Conclusion: Encouraging more intense engagement with CuidaTEXT might lead to higher levels of satisfaction with the intervention. However, it is possible that those who are highly satisfied, engage more intensely with CuidaTEXT. Future research should determine the directionality of these associations to optimize text message interventions.
Clinical implications: Creating more opportunities to increase the intensity of text message engagement with caregiver support interventions may improve caregiver satisfaction with them.
{"title":"Analysis of the intensity of engagement with <i>CuidaTEXT</i>, a text message intervention for dementia caregiver support among Latinos/as.","authors":"Valerie Medina, Amber Watts, Monica Fracachán-Cabrera, Cameo Hazlewood, Mariana Ramirez-Mantilla, Eric D Vidoni, Jaime Perales-Puchalt","doi":"10.1080/13557858.2024.2387111","DOIUrl":"10.1080/13557858.2024.2387111","url":null,"abstract":"<p><strong>Objectives: </strong>To examine the associations between participant intensity of engagement with a text message intervention, <i>CuidaTEXT</i>, and socio-demographic factors, acceptability measures, and clinical outcomes among Latino/a caregivers of individuals with dementia.</p><p><strong>Methods: </strong><i>CuidaTEXT</i> is a six-month, bilingual, and bidirectional intervention. We enrolled 24 Latino/a caregivers in a one-arm feasibility trial. Participants received approximately one automatic daily text message and could engage with the intervention by texting specific keywords (e.g. STRESS to receive messages about stress-coping), and by chat-texting with a live coach. We used metrics and psychometric scales to quantify variables.</p><p><strong>Results: </strong>Participants sent a total of 1847 messages to <i>CuidaTEXT</i>. Higher intensity of engagement was associated with higher intervention satisfaction (<i>r</i> = 0.6, <i>p</i> = 0.007), as were several other acceptability outcomes. We found no associations between intensity of engagement with <i>CuidaTEXT</i> and sociodemographic or clinical outcomes (<i>p</i> > 0.05).</p><p><strong>Conclusion: </strong>Encouraging more intense engagement with <i>CuidaTEXT</i> might lead to higher levels of satisfaction with the intervention. However, it is possible that those who are highly satisfied, engage more intensely with <i>CuidaTEXT</i>. Future research should determine the directionality of these associations to optimize text message interventions.</p><p><strong>Clinical implications: </strong>Creating more opportunities to increase the intensity of text message engagement with caregiver support interventions may improve caregiver satisfaction with them.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"924-945"},"PeriodicalIF":2.6,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11560709/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141898862","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01Epub Date: 2024-08-06DOI: 10.1080/13557858.2024.2387112
María Inés Sarmiento-Medina, Claudia Marcela Velásquez-Jiménez, Natalia Ortiz-Hernández
Objectives: Despite cervical cancer (CC) being a preventable disease, its incidence remains high in marginalized communities due to inequalities that restrict access to health services. This article investigates the experiences, perceptions, and attitudes regarding the screening of indigenous women in a region of the Colombian Amazon during a cervical cancer prevention initiative facilitated by community participation.
Design: Qualitative study based on interviews conducted with women and indigenous leaders from Paujil reserve. They participated in research focused on cervical cancer prevention, which employed a methodology of collaboration between academia and communities aimed at enhancing women's health and reducing inequalities in access to healthcare services. The analysis utilized a deductive and inductive approach.
Results: Five main themes were addressed: 'Barriers within health services'; 'Individual and cultural constraints'; 'Motivations and facilitators'; 'Positive experiences within the research framework'; and 'Suggestions for encouraging women's participation.' Challenges related to appointment scheduling and result delivery were frequently cited as obstacles to access. Misinformation, feelings of shame, fear, and distrust towards health services played significant roles in the reluctance to undergo screening. Factors such as support from family and community networks, respectful treatment, ease of scheduling appointments, the presence of female healthcare professionals, and involvement of leaders fluent in indigenous languages were identified as positive facilitators of screening acceptance.
Conclusion: Understanding the factors that influence access to screening is crucial for reducing inequalities in service delivery for indigenous women. The involvement of trained leaders who can identify these factors and motivate women can have a positive impact on the acceptance and guidance of cervical cancer prevention programs.
{"title":"Experiences of a group of indigenous women from the Colombian Amazon with cervical cancer prevention screening. Qualitative study in the context of participatory research to reduce inequalities.","authors":"María Inés Sarmiento-Medina, Claudia Marcela Velásquez-Jiménez, Natalia Ortiz-Hernández","doi":"10.1080/13557858.2024.2387112","DOIUrl":"10.1080/13557858.2024.2387112","url":null,"abstract":"<p><strong>Objectives: </strong>Despite cervical cancer (CC) being a preventable disease, its incidence remains high in marginalized communities due to inequalities that restrict access to health services. This article investigates the experiences, perceptions, and attitudes regarding the screening of indigenous women in a region of the Colombian Amazon during a cervical cancer prevention initiative facilitated by community participation.</p><p><strong>Design: </strong>Qualitative study based on interviews conducted with women and indigenous leaders from Paujil reserve. They participated in research focused on cervical cancer prevention, which employed a methodology of collaboration between academia and communities aimed at enhancing women's health and reducing inequalities in access to healthcare services. The analysis utilized a deductive and inductive approach.</p><p><strong>Results: </strong>Five main themes were addressed: 'Barriers within health services'; 'Individual and cultural constraints'; 'Motivations and facilitators'; 'Positive experiences within the research framework'; and 'Suggestions for encouraging women's participation.' Challenges related to appointment scheduling and result delivery were frequently cited as obstacles to access. Misinformation, feelings of shame, fear, and distrust towards health services played significant roles in the reluctance to undergo screening. Factors such as support from family and community networks, respectful treatment, ease of scheduling appointments, the presence of female healthcare professionals, and involvement of leaders fluent in indigenous languages were identified as positive facilitators of screening acceptance.</p><p><strong>Conclusion: </strong>Understanding the factors that influence access to screening is crucial for reducing inequalities in service delivery for indigenous women. The involvement of trained leaders who can identify these factors and motivate women can have a positive impact on the acceptance and guidance of cervical cancer prevention programs.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"893-907"},"PeriodicalIF":2.6,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141898863","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01Epub Date: 2024-07-30DOI: 10.1080/13557858.2024.2385110
Shana D Stites, Sharnita Midgett, Emily A Largent, Kristin Harkins, Rosalie Schumann, Pamela Sankar, Abba Krieger
Objective: We urgently need to understand Alzheimer's disease (AD) stigma among Black adults. Black communities bear a disproportionate burden of AD, and recent advances in early diagnosis using AD biomarkers may affect stigma associated with AD. The goal of our study is to characterize AD stigma within our cohort of self-identified Black participants and test how AD biomarker test results may affect this stigma.
Design: We surveyed a sample of 1,150 self-identified Black adults who were randomized to read a vignette describing a fictional person, who was described as either having a positive or negative biomarker test result. After reading the vignette, participants completed the modified Family Stigma in Alzheimer's Disease Scale (FS-ADS). We compared FS-ADS scores between groups defined by age, gender, and United States Census region. We examined interactions between these groupings and AD biomarker test result.
Results: Participants over age 65 had lower scores (lower stigma) on all 7 FS-ADS domains compared to those under 65: structural discrimination, negative severity attributions, negative aesthetic attributions, antipathy, support, pity, and social distance. In the biomarker positive condition, worries about structural discrimination were greater than in the biomarker negative condition and statistically similar in the two age groups (DOR, 0.39 [95%CI, 0.22-0.69]). This pattern of results was similar for negative symptom attributions (DOR, 0.51 [95%CI, 0.28-0.90]).
Conclusion: While older adults reported less AD stigma than younger adults, AD biomarker testing caused similarly high concerns about structural discrimination and negative severity attributions. Thus, use of AD biomarker diagnosis may increase AD stigma and exacerbate healthcare disparities known to effect AD diagnosis in some Black adults. Advances in AD diagnosis may interact with social and structural factors to differentially affect groups of Black adults.
{"title":"A survey study of Alzheimer's stigma among Black adults: intersectionality of Black identity and biomarker diagnosis.","authors":"Shana D Stites, Sharnita Midgett, Emily A Largent, Kristin Harkins, Rosalie Schumann, Pamela Sankar, Abba Krieger","doi":"10.1080/13557858.2024.2385110","DOIUrl":"10.1080/13557858.2024.2385110","url":null,"abstract":"<p><strong>Objective: </strong>We urgently need to understand Alzheimer's disease (AD) stigma among Black adults. Black communities bear a disproportionate burden of AD, and recent advances in early diagnosis using AD biomarkers may affect stigma associated with AD. The goal of our study is to characterize AD stigma within our cohort of self-identified Black participants and test how AD biomarker test results may affect this stigma.</p><p><strong>Design: </strong>We surveyed a sample of 1,150 self-identified Black adults who were randomized to read a vignette describing a fictional person, who was described as either having a positive or negative biomarker test result. After reading the vignette, participants completed the modified <i>Family Stigma in Alzheimer's Disease Scale</i> (FS-ADS). We compared FS-ADS scores between groups defined by age, gender, and United States Census region. We examined interactions between these groupings and AD biomarker test result.</p><p><strong>Results: </strong>Participants over age 65 had lower scores (lower stigma) on all 7 FS-ADS domains compared to those under 65: <i>structural discrimination, negative severity attributions, negative aesthetic attributions, antipathy, support, pity,</i> and <i>social distance</i>. In the biomarker positive condition, worries about <i>structural discrimination</i> were greater than in the biomarker negative condition and statistically similar in the two age groups (DOR, 0.39 [95%CI, 0.22-0.69]). This pattern of results was similar for <i>negative symptom attributions</i> (DOR, 0.51 [95%CI, 0.28-0.90]).</p><p><strong>Conclusion: </strong>While older adults reported less AD stigma than younger adults, AD biomarker testing caused similarly high concerns about structural discrimination and negative severity attributions. Thus, use of AD biomarker diagnosis may increase AD stigma and exacerbate healthcare disparities known to effect AD diagnosis in some Black adults. Advances in AD diagnosis may interact with social and structural factors to differentially affect groups of Black adults.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"946-962"},"PeriodicalIF":2.6,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11560502/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141857052","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-11-01Epub Date: 2024-08-27DOI: 10.1080/13557858.2024.2396825
Zikun Li, Regine M Talleyrand, Amber B Sansbury
Objective: There is a noticeable underrepresentation of Black, Indigenous, and People of Color (BIPOC) men in the existing empirical literature examining the sociocultural influences on body image concerns. To fill the gap, this study aimed to gain a better understanding of how sociocultural factors correlated with body dissatisfaction among BIPOC men living within the U.S.
Design: Structural equation modeling was used to address this gap by examining how multiple sociocultural factors - interpersonal appearance pressure, media appearance pressure, ethnic-racial identity attitudes (including ethnic-racial salience, stereotype endorsement, and nationalistic assimilation) and ethnic self-hatred towards one's ethnic group - were linked to dissatisfaction with muscularity, body fat and height in a sample of 181 BIPOC men participants.
Results: The proposed cross-sectional path model achieved satisfactory model fit and explained 31.9% in muscularity dissatisfaction, 36.2% in body fat dissatisfaction, and 26.4% in height dissatisfaction. Among direct relationships, interpersonal appearance pressure emerged most prominently associated with height dissatisfaction, whereas media appearance pressure and ethnic self-hatred were more related to muscularity and body fat dissatisfaction. Regarding the mediation effects, media appearance pressure was found to partially mediate the relationship between interpersonal appearance pressure and body dissatisfaction, as well as the relationship between ethnic self-hatred and body dissatisfaction. Furthermore, ethnic self-hatred was found to be predicted by ethnic-racial identity attitudes.
Conclusion: This research profoundly expands our understanding of the ethnic and racial complexities surrounding body dissatisfaction among BIPOC men and encourages health practitioners to acknowledge the unique sociocultural and systemic dynamics (ethnic-racial identities and associated stressors) when working with BIPOC men who present with body image concerns.
{"title":"Sociocultural influences on body image concerns in men of color - a structural equation modeling study.","authors":"Zikun Li, Regine M Talleyrand, Amber B Sansbury","doi":"10.1080/13557858.2024.2396825","DOIUrl":"10.1080/13557858.2024.2396825","url":null,"abstract":"<p><strong>Objective: </strong>There is a noticeable underrepresentation of Black, Indigenous, and People of Color (BIPOC) men in the existing empirical literature examining the sociocultural influences on body image concerns. To fill the gap, this study aimed to gain a better understanding of how sociocultural factors correlated with body dissatisfaction among BIPOC men living within the U.S.</p><p><strong>Design: </strong>Structural equation modeling was used to address this gap by examining how multiple sociocultural factors - interpersonal appearance pressure, media appearance pressure, ethnic-racial identity attitudes (including ethnic-racial salience, stereotype endorsement, and nationalistic assimilation) and ethnic self-hatred towards one's ethnic group - were linked to dissatisfaction with muscularity, body fat and height in a sample of 181 BIPOC men participants.</p><p><strong>Results: </strong>The proposed cross-sectional path model achieved satisfactory model fit and explained 31.9% in muscularity dissatisfaction, 36.2% in body fat dissatisfaction, and 26.4% in height dissatisfaction. Among direct relationships, interpersonal appearance pressure emerged most prominently associated with height dissatisfaction, whereas media appearance pressure and ethnic self-hatred were more related to muscularity and body fat dissatisfaction. Regarding the mediation effects, media appearance pressure was found to partially mediate the relationship between interpersonal appearance pressure and body dissatisfaction, as well as the relationship between ethnic self-hatred and body dissatisfaction. Furthermore, ethnic self-hatred was found to be predicted by ethnic-racial identity attitudes.</p><p><strong>Conclusion: </strong>This research profoundly expands our understanding of the ethnic and racial complexities surrounding body dissatisfaction among BIPOC men and encourages health practitioners to acknowledge the unique sociocultural and systemic dynamics (ethnic-racial identities and associated stressors) when working with BIPOC men who present with body image concerns.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"1008-1025"},"PeriodicalIF":2.6,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142074493","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-22DOI: 10.1080/13557858.2024.2417382
Carolina Gomez Grimaldi, Elizabeth C Stewart, Kathryn Edwards, Claudia Barajas, Jennifer Cunningham-Erves
Objective: We explored HPV vaccine concerns and healthcare provider communication among Hispanic/Latinx hesitant parents during the COVID-19 pandemic, and how those concerns and provider communications compared for influenza and COVID-19 vaccines. As a secondary aim, we explored communication needs and strategies for these recommended vaccines.
Design: We applied a concurrent, multi-method study design (survey and interview) with 23 Hispanic/Latinx American parents of adolescents aged 11-18 years. An inductive deductive thematic approach was used to interpret interview data. Descriptives were used to analyze survey data.
Results: Overall, most parents (77%) perceived that their child was receiving too many vaccines. Regarding hesitancy for the HPV vaccine, major parental concerns related to vaccine effectiveness (83%), vaccine necessity (83%), and vaccine safety (80%). For the COVID vaccine, major concerns were the newness of vaccine (83%), vaccine safety (77%), low perceived effectiveness (77%), and low perceived need (77%). For influenza vaccines, major parental concerns were vaccine safety (73%), low perceived need (73%), and preference for natural over vaccine-induced immunity (73%). Parents had overall positive views towards vaccination. Some parents prioritized school-required vaccines, and others ranked the recommended vaccines- HPV, COVID-19, and influenza vaccines- for their children. They saw the benefits of recommended vaccines; however, there were concerns. The majority received a provider's recommendation for HPV vaccination for their child, while over half had not received a recommendation for COVID-19 and influenza vaccines. Recommended communication strategies were diverse with parents highlighting the need for providers to capitalize on waiting and clinic rooms to provide education.
Conclusion: Healthcare providers should take advantage of missed opportunities, improve healthcare interactions with a strong recommendation and persistent communication, and offer diverse communication strategies and messaging for vaccines. Future work should further explore multi-vaccine concerns and how addressing these concerns through healthcare-provider communication could improve HPV vaccination along with COVID-19 and influenza vaccination.
{"title":"Attitudes, healthcare interactions, and communication preferences for HPV vaccines among hesitant Hispanic/Latinx parents: how does this compare with influenza and COVID-19 vaccines?","authors":"Carolina Gomez Grimaldi, Elizabeth C Stewart, Kathryn Edwards, Claudia Barajas, Jennifer Cunningham-Erves","doi":"10.1080/13557858.2024.2417382","DOIUrl":"https://doi.org/10.1080/13557858.2024.2417382","url":null,"abstract":"<p><strong>Objective: </strong>We explored HPV vaccine concerns and healthcare provider communication among Hispanic/Latinx hesitant parents during the COVID-19 pandemic, and how those concerns and provider communications compared for influenza and COVID-19 vaccines. As a secondary aim, we explored communication needs and strategies for these recommended vaccines.</p><p><strong>Design: </strong>We applied a concurrent, multi-method study design (survey and interview) with 23 Hispanic/Latinx American parents of adolescents aged 11-18 years. An inductive deductive thematic approach was used to interpret interview data. Descriptives were used to analyze survey data.</p><p><strong>Results: </strong>Overall, most parents (77%) perceived that their child was receiving too many vaccines. Regarding hesitancy for the HPV vaccine, major parental concerns related to vaccine effectiveness (83%), vaccine necessity (83%), and vaccine safety (80%). For the COVID vaccine, major concerns were the newness of vaccine (83%), vaccine safety (77%), low perceived effectiveness (77%), and low perceived need (77%). For influenza vaccines, major parental concerns were vaccine safety (73%), low perceived need (73%), and preference for natural over vaccine-induced immunity (73%). Parents had overall positive views towards vaccination. Some parents prioritized school-required vaccines, and others ranked the recommended vaccines- HPV, COVID-19, and influenza vaccines- for their children. They saw the benefits of recommended vaccines; however, there were concerns. The majority received a provider's recommendation for HPV vaccination for their child, while over half had not received a recommendation for COVID-19 and influenza vaccines. Recommended communication strategies were diverse with parents highlighting the need for providers to capitalize on waiting and clinic rooms to provide education.</p><p><strong>Conclusion: </strong>Healthcare providers should take advantage of missed opportunities, improve healthcare interactions with a strong recommendation and persistent communication, and offer diverse communication strategies and messaging for vaccines. Future work should further explore multi-vaccine concerns and how addressing these concerns through healthcare-provider communication could improve HPV vaccination along with COVID-19 and influenza vaccination.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"1-22"},"PeriodicalIF":2.6,"publicationDate":"2024-10-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142512469","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-19DOI: 10.1080/13557858.2024.2417392
Rachel McPherson, Barbara Resnick, Elizabeth Galik, Ann L Gruber-Baldini, Sarah Holmes, Nancy Kusmaul
Objective: The resident population in nursing homes is increasingly racially diverse. The purpose of this study was to assess racial differences in the quality of care interactions among nursing home residents with dementia.
Design: The study utilized baseline data from the Testing the Evidence Integration Triangle for Behavioral and Psychological Symptoms of Dementia (EIT-4-BPSD), a randomized controlled pragmatic trial. The Quality of Interaction Scale (QuIS) was used to measure quality of staff-resident care interactions. The sample included 531 residents. An analysis of covariance was conducted to address the aim.
Results: The majority of interactions were positive social (42%) or positive care (37%). Black residents living with dementia had higher QuIS scores (M = 5.98, SD = 1.66) than White residents with dementia (M = 5.40, SD = 1.75), whereas higher QuIS scores indicating more positive interactions. However, the results of the analysis of covariance indicated that there was not a significant difference in QuIS scores between Black versus White residents living with dementia (p =.203).
Conclusion: The findings suggest that care interactions in nursing homes are consistent between Black residents and White residents. Future research should evaluate the impact of staff race on the quality of care interaction among nursing home residents.
{"title":"Racial differences in the quality of care interactions among nursing home residents with dementia.","authors":"Rachel McPherson, Barbara Resnick, Elizabeth Galik, Ann L Gruber-Baldini, Sarah Holmes, Nancy Kusmaul","doi":"10.1080/13557858.2024.2417392","DOIUrl":"https://doi.org/10.1080/13557858.2024.2417392","url":null,"abstract":"<p><strong>Objective: </strong>The resident population in nursing homes is increasingly racially diverse. The purpose of this study was to assess racial differences in the quality of care interactions among nursing home residents with dementia.</p><p><strong>Design: </strong>The study utilized baseline data from the Testing the Evidence Integration Triangle for Behavioral and Psychological Symptoms of Dementia (EIT-4-BPSD), a randomized controlled pragmatic trial. The Quality of Interaction Scale (QuIS) was used to measure quality of staff-resident care interactions. The sample included 531 residents. An analysis of covariance was conducted to address the aim.</p><p><strong>Results: </strong>The majority of interactions were positive social (42%) or positive care (37%). Black residents living with dementia had higher QuIS scores (<i>M </i>= 5.98, <i>SD </i>= 1.66) than White residents with dementia (<i>M </i>= 5.40, <i>SD </i>= 1.75), whereas higher QuIS scores indicating more positive interactions. However, the results of the analysis of covariance indicated that there was not a significant difference in QuIS scores between Black versus White residents living with dementia (<i>p </i>=.203).</p><p><strong>Conclusion: </strong>The findings suggest that care interactions in nursing homes are consistent between Black residents and White residents. Future research should evaluate the impact of staff race on the quality of care interaction among nursing home residents.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"1-12"},"PeriodicalIF":2.6,"publicationDate":"2024-10-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142480096","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-12DOI: 10.1080/13557858.2024.2412850
Laura Redwine, Acadia W Buro, Diana Rancourt, Kyaien Conner, Heewon L Gray, Carmen Rodriguez, Rocio Bailey, Kevin Roman Candelaria, Marilyn Stern
Background: Identifying factors impacting vaccination and testing for COVID-19 is crucial to reduce health disparities, especially for rural/agricultural, low access and high poverty Latino communities disproportionately affected by the pandemic. This study examined differences in perceived barriers and facilitators (such as values, beliefs, and concerns) to COVID-19 vaccine uptake and testing intention by vaccination status and testing hesitancy among rural Latino community members in Southwest Florida.
Methods: Rural Latino community members (N = 493) completed a cross-sectional survey in Spanish (86.0%) or English (14.0%) on perceived COVID-19 vaccine/testing barriers and facilitators, as well as demographics, mental health, medical history, health perceptions, and health literacy.
Results: At the time of the survey, approximately 43% of participants were unvaccinated and 46.4% were testing hesitant. Significantly more vaccinated participants acknowledged keeping their family (d = .25), community (d = .27), and themselves (d = .22) safe as facilitators to vaccination (ps < .001). Among the unvaccinated participants, the most common concerns for getting vaccinated were side effects (d = -.53) and lack of knowledge about how the vaccine works (d = -.35, ps < .001). Testing hesitant participants reported concerns including not knowing where to get tested (d = -.25, p = 0.01) and less confidence in a positive test result (d = -.40, p < 0.001). Doctors and faith leaders were ranked as the most trusted information sources across groups. In logistic regression models, vaccination was linked to age, gender, education, and protecting others, while concerns about needles and side effects reduced odds; testing was driven by education, anxiety, hope, and safety concerns.
Conclusion: Promoting family and community safety may be effective facilitators influencing vaccine and testing intention in rural Latino communities. Enhanced education by trusted information sources, such as doctors and faith leaders may alleviate associated concerns. Our findings may inform actions for future pandemics. Further studies should determine the generalizability of our findings across other rural migrant communities and other vaccines.
{"title":"Exploring differences in perceived barriers and facilitators to COVID-19 vaccine uptake and testing intention by vaccination status and testing hesitancy among rural Latino communities in Southwest Florida.","authors":"Laura Redwine, Acadia W Buro, Diana Rancourt, Kyaien Conner, Heewon L Gray, Carmen Rodriguez, Rocio Bailey, Kevin Roman Candelaria, Marilyn Stern","doi":"10.1080/13557858.2024.2412850","DOIUrl":"10.1080/13557858.2024.2412850","url":null,"abstract":"<p><strong>Background: </strong>Identifying factors impacting vaccination and testing for COVID-19 is crucial to reduce health disparities, especially for rural/agricultural, low access and high poverty Latino communities disproportionately affected by the pandemic. This study examined differences in perceived barriers and facilitators (such as values, beliefs, and concerns) to COVID-19 vaccine uptake and testing intention by vaccination status and testing hesitancy among rural Latino community members in Southwest Florida.</p><p><strong>Methods: </strong>Rural Latino community members (<i>N</i> = 493) completed a cross-sectional survey in Spanish (86.0%) or English (14.0%) on perceived COVID-19 vaccine/testing barriers and facilitators, as well as demographics, mental health, medical history, health perceptions, and health literacy.</p><p><strong>Results: </strong>At the time of the survey, approximately 43% of participants were unvaccinated and 46.4% were testing hesitant. Significantly more vaccinated participants acknowledged keeping their family (<i>d</i> = .25), community (<i>d</i> = .27), and themselves (<i>d</i> = .22) safe as facilitators to vaccination (ps < .001). Among the unvaccinated participants, the most common concerns for getting vaccinated were side effects (<i>d</i> = -.53) and lack of knowledge about how the vaccine works (<i>d</i> = -.35, <i>p</i>s < .001). Testing hesitant participants reported concerns including not knowing where to get tested (<i>d</i> = -.25, <i>p</i> = 0.01) and less confidence in a positive test result (<i>d</i> = -.40, <i>p</i> < 0.001). Doctors and faith leaders were ranked as the most trusted information sources across groups. In logistic regression models, vaccination was linked to age, gender, education, and protecting others, while concerns about needles and side effects reduced odds; testing was driven by education, anxiety, hope, and safety concerns.</p><p><strong>Conclusion: </strong>Promoting family and community safety may be effective facilitators influencing vaccine and testing intention in rural Latino communities. Enhanced education by trusted information sources, such as doctors and faith leaders may alleviate associated concerns. Our findings may inform actions for future pandemics. Further studies should determine the generalizability of our findings across other rural migrant communities and other vaccines.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"1-19"},"PeriodicalIF":2.6,"publicationDate":"2024-10-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142480095","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-12DOI: 10.1080/13557858.2024.2412858
Aisha Nathoo, Sierra Gaspari, Gaitree Oogarah, Stephen Kirby, Eva Purkey, Susan A Bartels, Melanie Walker
Introduction: Visible minorities, a growing segment of Canada's population, have voiced concerns about experiencing racism while receiving care in the emergency department (ED). Understanding the ED care experiences of visible minorities is crucial to improving care and reducing health disparities.
Methods: From June to August 2021, we collected data from participants in Kingston, Ontario using a sensemaking approach. Individuals who had accessed emergency care or accompanied someone else to the ED in the prior 24 months were eligible to participate. After sharing a brief narrative about their care experience, participants interpreted the experience by plotting their perspectives on a variety of pre-determined questions. Here, we conducted a thematic analysis of narratives involving patients who identified as visible minorities and complemented it with quantitative analysis of the participants' interpretative responses. This mixed-methods approach highlighted the distinct experiences of visible minority participants in relation to a comparison group.
Results: Of the 1973 unique participants, 117 identified as a visible minority and 949 participants did not identify with an equity-deserving group (comparison group). Visible minority participants were more likely to report that too little attention was paid to their identity and more likely to express a desire for a balance between receiving the best medical care and being treated with kindness and respect. Visible minorities' ED experiences were also more likely to be impacted by how emergency staff behaved. Qualitative analysis revealed negative experiences of feeling uninformed and disempowered, facing judgement and discrimination, and experiencing language barriers. Positive experiences of receiving compassionate care from staff also emerged.
Conclusion: Visible minority perceptions of ED care were often negative and mainly focused on staff treatment. Cultural competency and language translation services are key areas for improvement to make ED care more accessible and equitable.
{"title":"'Where is the diversity in this facility?' Experiences of emergency care among visible minority individuals in Kingston, Ontario.","authors":"Aisha Nathoo, Sierra Gaspari, Gaitree Oogarah, Stephen Kirby, Eva Purkey, Susan A Bartels, Melanie Walker","doi":"10.1080/13557858.2024.2412858","DOIUrl":"https://doi.org/10.1080/13557858.2024.2412858","url":null,"abstract":"<p><strong>Introduction: </strong>Visible minorities, a growing segment of Canada's population, have voiced concerns about experiencing racism while receiving care in the emergency department (ED). Understanding the ED care experiences of visible minorities is crucial to improving care and reducing health disparities.</p><p><strong>Methods: </strong>From June to August 2021, we collected data from participants in Kingston, Ontario using a sensemaking approach. Individuals who had accessed emergency care or accompanied someone else to the ED in the prior 24 months were eligible to participate. After sharing a brief narrative about their care experience, participants interpreted the experience by plotting their perspectives on a variety of pre-determined questions. Here, we conducted a thematic analysis of narratives involving patients who identified as visible minorities and complemented it with quantitative analysis of the participants' interpretative responses. This mixed-methods approach highlighted the distinct experiences of visible minority participants in relation to a comparison group.</p><p><strong>Results: </strong>Of the 1973 unique participants, 117 identified as a visible minority and 949 participants did not identify with an equity-deserving group (comparison group). Visible minority participants were more likely to report that too little attention was paid to their identity and more likely to express a desire for a balance between receiving the best medical care and being treated with kindness and respect. Visible minorities' ED experiences were also more likely to be impacted by how emergency staff behaved. Qualitative analysis revealed negative experiences of feeling uninformed and disempowered, facing judgement and discrimination, and experiencing language barriers. Positive experiences of receiving compassionate care from staff also emerged.</p><p><strong>Conclusion: </strong>Visible minority perceptions of ED care were often negative and mainly focused on staff treatment. Cultural competency and language translation services are key areas for improvement to make ED care more accessible and equitable.</p>","PeriodicalId":51038,"journal":{"name":"Ethnicity & Health","volume":" ","pages":"1-22"},"PeriodicalIF":2.6,"publicationDate":"2024-10-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142480097","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}