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Data as symptom: Doctors' responses to patient-provided data in general practice. 数据作为症状:医生对病人提供的数据的反应。
IF 3 2区 社会学 Q1 HISTORY & PHILOSOPHY OF SCIENCE Pub Date : 2023-08-01 DOI: 10.1177/03063127231164345
Christoffer Bjerre Haase, Rola Ajjawi, Margaret Bearman, John Brandt Brodersen, Torsten Risor, Klaus Hoeyer

People are increasingly able to generate their own health data through new technologies such as wearables and online symptom checkers. However, generating data is one thing, interpreting them another. General practitioners (GPs) are likely to be the first to help with interpretations. Policymakers in the European Union are investing heavily in infrastructures to provide GPs access to patient measurements. But there may be a disconnect between policy ambitions and the everyday practices of GPs. To investigate this, we conducted semi-structured interviews with 23 Danish GPs. According to the GPs, patients relatively rarely bring data to them. GPs mostly remember three types of patient-generated data that patients bring to them for interpretation: heart and sleep measurements from wearables and results from online symptom checkers. However, they also spoke extensively about data work with patient queries concerning measurements from the GPs' own online Patient Reported Outcome system and online access to laboratory results. We juxtapose GP reflections on these five data types and between policy ambitions and everyday practices. These data require substantial recontextualization work before the GPs ascribe them evidential value and act on them. Even when they perceived as actionable, patient-provided data are not approached as measurements, as suggested by policy frameworks. Rather, GPs treat them as analogous to symptoms-that is to say, GPs treat patient-provided data as subjective evidence rather than authoritative measures. Drawing on Science and Technology Studies (STS) literature,we suggest that GPs must be part of the conversation with policy makers and digital entrepreneurs around when and how to integrate patient-generated data into healthcare infrastructures.

人们越来越有能力通过可穿戴设备和在线症状检查器等新技术生成自己的健康数据。然而,生成数据是一回事,解释数据是另一回事。全科医生(gp)可能是第一个帮助解释的人。欧盟的政策制定者正在大力投资基础设施,使全科医生能够获得患者的测量结果。但在政策抱负和全科医生的日常实践之间可能存在脱节。为了调查这一点,我们对23名丹麦全科医生进行了半结构化访谈。根据全科医生的说法,病人很少向他们提供数据。全科医生通常会记住患者提供给他们的三种类型的数据:来自可穿戴设备的心脏和睡眠测量数据,以及来自在线症状检查器的结果。然而,他们也广泛地谈到了数据工作,患者询问来自全科医生自己的在线患者报告结果系统的测量结果,以及在线访问实验室结果。我们将GP对这五种数据类型的反思,以及政策抱负与日常实践之间的对比并置。在全科医生认为这些数据具有证据价值并据此采取行动之前,这些数据需要大量的重新背景化工作。即使患者提供的数据被认为是可采取行动的,也没有像政策框架所建议的那样,将其作为衡量标准。相反,全科医生把它们当作类似于症状的东西来对待——也就是说,全科医生把病人提供的数据当作主观证据,而不是权威的衡量标准。根据科学技术研究(STS)文献,我们建议全科医生必须与政策制定者和数字企业家就何时以及如何将患者生成的数据整合到医疗基础设施中进行对话。
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引用次数: 0
Infrastructuring European scientific integration: Heterogeneous meanings of the European biobanking infrastructure BBMRI-ERIC. 基础设施欧洲科学一体化:欧洲生物银行基础设施BBMRI-ERIC的异质含义。
IF 3 2区 社会学 Q1 HISTORY & PHILOSOPHY OF SCIENCE Pub Date : 2023-08-01 DOI: 10.1177/03063127231162629
Erik Aarden

While transnational research infrastructure projects long preceded the formal integration process that created the European Union, their advancement is an increasingly central part of EU research policy and of European integration in general. This paper analyses the Biobanking and Biomolecular Resources Research Infrastructure-European Research Infrastructure Consortium (BBMRI-ERIC) as a recent example of institutionalized scientific collaboration in Europe that has formally been established as part of EU science policy. BBMRI-ERIC, a network of European biobanks, is expected to contribute to both European science and European integration. Yet its achievements in these domains are interpreted differently by various actors involved. This paper draws on STS conceptualizations of infrastructures as relational, experimental, and promissory assemblages. These support the formulation of a working definition of research infrastructures that in turn helps to explore the heterogeneous meanings attributed to BBMRI-ERIC. The paper describes the creation of this distributed European research infrastructure, and divergent understandings of what it means for BBMRI-ERIC to be distributed, to be European and to be a research infrastructure. This analysis demonstrates how building a research infrastructure is also an effort to define what it means to be European-a process in which what is European about science and what science can do for Europe is continuously (re-)imagined, contested and negotiated.

虽然跨国研究基础设施项目早于创建欧盟的正式整合过程,但它们的进步越来越成为欧盟研究政策和整体欧洲一体化的核心部分。本文分析了生物银行和生物分子资源研究基础设施-欧洲研究基础设施联盟(BBMRI-ERIC)作为欧洲制度化科学合作的一个最近的例子,该合作已正式建立为欧盟科学政策的一部分。BBMRI-ERIC是一个欧洲生物银行网络,预计将为欧洲科学和欧洲一体化做出贡献。然而,有关各方对其在这些领域取得的成就有不同的解释。本文借鉴STS概念的基础设施作为关系的,实验的,和承诺的组合。这些支持制定研究基础设施的工作定义,从而有助于探索归因于BBMRI-ERIC的异构含义。这篇论文描述了这种分布式欧洲研究基础设施的创建,以及对BBMRI-ERIC的分布式、欧洲化和研究基础设施意味着什么的不同理解。这一分析表明,建立一个研究基础设施也是一种努力,它定义了什么是欧洲人——在这个过程中,欧洲人对科学的看法以及科学能为欧洲做些什么是不断(重新)想象、争论和谈判的。
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引用次数: 0
'Consent' as epistemic recognition: Indigenous knowledges, Canadian impact assessment, and the colonial liberal democratic order. 作为认识论认可的'同意':土著知识、加拿大影响评估和殖民地自由民主秩序。
IF 2.9 2区 社会学 Q1 HISTORY & PHILOSOPHY OF SCIENCE Pub Date : 2023-08-01 Epub Date: 2023-05-30 DOI: 10.1177/03063127231177311
Alana Lajoie-O'Malley, Kelly Bronson, Gwendolyn Blue

This article unpacks the logic of the equivalence invoked by the Government of Canada between Indigenous consent and the inclusion of Indigenous peoples and knowledges in impact assessment. We situate the logic within the politics of recognition in Canada-a politics that aims to shore up national unity in the face of regular challenges to it. We use the Canadian results from a recent scoping review on conceptions of environmental justice in impact assessment to highlight the challenges of invoking recognition, and we provide a theoretical analysis of these challenges. To do this, we highlight the ways in which 'we-making' is 'knowledge-making' and 'knowledge-making' is 'we-making'. In this sense, recognizing Indigenous knowledges is part of Canada's answer to the challenge of constructing and stabilizing a political 'we': a community of political subjects with shared connection to a nation state via the institutional, social, and cultural apparatuses that generate the kind of publicly visible legal and technical knowledge upon which the state's authority depends. We show how this project relies on actively obscuring the relationship between 'we-making' and 'knowledge-making' by treating 'knowledge-making' as neutral and un-situated, putting into practice a universalist logic. This logic shores up power because obscuring the situatedness of dominant knowledges also obscures the situatedness of the dominant political orders with which they are intertwined. We ultimately argue that Canada's approach to recognizing Indigenous knowledges helps consolidate power by sidestepping ongoing jurisdictional struggles with Indigenous peoples.

本文解读了加拿大政府在土著同意与将土著人民和知识纳入影响评估之间所援引的等同逻辑。我们将这一逻辑置于加拿大的认可政治之中--一种在国家统一经常受到挑战的情况下旨在巩固国家统一的政治。我们利用加拿大最近对影响评估中环境正义概念的范围审查结果,强调了援引认可所面临的挑战,并对这些挑战进行了理论分析。为此,我们强调了 "我们创造 "是 "知识创造 "和 "知识创造 "是 "我们创造 "的方式。从这个意义上讲,承认土著知识是加拿大应对构建和稳定政治 "我们 "这一挑战的一部分:通过制度、社会和文化机制,政治主体与民族国家建立共同联系,从而产生国家权威所依赖的、公众可见的法律和技术知识。我们展示了这一项目是如何通过将 "知识创造 "视为中性和无定位的方式,积极模糊 "我们创造 "与 "知识创造 "之间的关系,从而将普遍主义逻辑付诸实践的。这种逻辑支撑着权力,因为遮蔽主导知识的情景性也就遮蔽了与之交织在一起的主导政治秩序的情景性。我们最终认为,加拿大承认土著知识的做法避开了与土著人民正在进行的司法斗争,有助于巩固权力。
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引用次数: 0
Making a 'sex-difference fact': Ambien dosing at the interface of policy, regulation, women's health, and biology. 制造一个“性别差异事实”:安必恩剂量在政策、法规、妇女健康和生物学的界面。
IF 3 2区 社会学 Q1 HISTORY & PHILOSOPHY OF SCIENCE Pub Date : 2023-08-01 DOI: 10.1177/03063127231168371
Helen Zhao, Marina DiMarco, Kelsey Ichikawa, Marion Boulicault, Meg Perret, Kai Jillson, Alexandra Fair, Kai DeJesus, Sarah S Richardson

The U.S. Food and Drug Administration's (FDA) 2013 decision to lower recommended Ambien dosing for women has been widely cited as a hallmark example of the importance of sex differences in biomedicine. Using regulatory documents, scientific publications, and media coverage, this article analyzes the making of this highly influential and mobile 'sex-difference fact'. As we show, the FDA's decision was a contingent outcome of the drug approval process. Attending to how a contested sex-difference fact came to anchor elite women's health advocacy, this article excavates the role of regulatory processes, advocacy groups, and the media in producing perceptions of scientific agreement while foreclosing ongoing debate, ultimately enabling the stabilization of a binary, biological sex-difference fact and the distancing of this fact from its conditions of construction.

美国食品和药物管理局(FDA) 2013年决定降低女性安必恩的推荐剂量,这被广泛引用为生物医学中性别差异重要性的标志性例子。本文利用监管文件、科学出版物和媒体报道,分析了这一极具影响力和流动性的“性别差异事实”的形成。正如我们所示,FDA的决定是药物批准过程的偶然结果。关注有争议的性别差异事实是如何锚定精英女性健康倡导的,本文挖掘了监管过程、倡导团体和媒体在产生科学共识的感知方面的作用,同时阻止了正在进行的辩论,最终使二元生物性别差异事实稳定下来,并使这一事实与其构建条件保持距离。
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引用次数: 1
The multistability of predictive technology in nuclear disasters. 核灾害预测技术的多稳定性。
IF 3 2区 社会学 Q1 HISTORY & PHILOSOPHY OF SCIENCE Pub Date : 2023-08-01 DOI: 10.1177/03063127231161609
Shin-Etsu Sugawara

Postphenomenological studies have explored technological mediation between the human body and the world by analysing the bodily experience of the world. Applying this analytical perspective to predictive technology requires some expansions because humans cannot directly experience the future world. I conceptualize pre-spectival focus, which refers to how human attention is directed to the making-future-present process, and which features or aspects of its process are foregrounded or backgrounded. Through the concept of pre-spectival focus and actor-network theory (ANT), this article examines the case of System for the Prediction of Environmental Emergency Dose Information (SPEEDI), a Japanese technology used to simulate the atmospheric dispersion of radionuclides released from nuclear reactors. SPEEDI provides prediction maps representing radiological consequences and was expected to support evacuation decisions during nuclear emergencies. However, this was not the case with the Fukushima disaster, which led to a socio-technical controversy regarding SPEEDI's usage. Based on bibliographic surveys and several interviews, I encapsulate four multistable uses of SPEEDI: prediction as supporting advice, prediction as a tool for evacuation drills, prediction as self-protection, and prediction as a source of misunderstanding. Relevant actors perceive the predictions of a nuclear disaster in each stability depending on the diversity of their pre-spectival foci, which is also related to the forms of life nourished through their professional and daily lives. A distinct rivalry can be observed between the two actor-networks around nuclear emergency management in which SPEEDI is differently enrolled: the social control network and self-determination network. In the former, the residents are constituted as passive selves who obediently follow governmental instructions; in the latter, residents are included as autonomous subjects who can actively decide protective actions. Moreover, I discuss future postphenomenology-ANT studies on predictive technologies based on these analyses.

后现象学研究通过分析人体对世界的体验,探索了人体与世界之间的技术中介。将这种分析视角应用于预测技术需要一些扩展,因为人类无法直接体验未来世界。我将pre- specix focus概念化,它指的是人类的注意力如何被引导到制造-未来-现在的过程,以及这个过程的哪些特征或方面是前景或背景。本文运用事前焦点和行动者网络理论(ANT)的概念,研究了日本用于模拟核反应堆释放的放射性核素在大气中扩散的技术——环境紧急剂量信息预测系统(SPEEDI)的案例。SPEEDI提供代表放射性后果的预测图,并有望在核紧急情况期间支持疏散决策。然而,福岛灾难的情况并非如此,这导致了关于SPEEDI使用的社会技术争议。基于文献调查和几次访谈,我总结了SPEEDI的四种多稳定用途:作为支持建议的预测,作为疏散演习工具的预测,作为自我保护的预测,以及作为误解来源的预测。相关行为者在每个稳定性中对核灾难的预测取决于其专业前焦点的多样性,这也与他们通过专业和日常生活所滋养的生活形式有关。围绕核应急管理的两个行动者网络(SPEEDI以不同方式参与其中)之间可以观察到明显的竞争:社会控制网络和自决网络。在前者中,居民被建构为服从政府指令的被动自我;在后者中,居民被纳入作为自主主体,可以主动决定保护行动。此外,我还讨论了基于这些分析的预测技术的未来后现象学- ant研究。
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引用次数: 0
Scientific conferences, socialization, and the Covid-19 pandemic: A conceptual and empirical enquiry. 科学会议、社会化和Covid-19大流行:概念和实证调查。
IF 3 2区 社会学 Q1 HISTORY & PHILOSOPHY OF SCIENCE Pub Date : 2023-06-01 DOI: 10.1177/03063127221138521
Harry Collins, Willow Leonard-Clarke, Will Mason-Wilkes

Since the 1970s social analysts have seen communication between scientists not solely as information exchange (the algorithmical model), but as a process of socialization into overlapping and mutually embedded scientific domains (the enculturational model). Under the algorithmical model, the impact of the Covid-19 shutdown on travel would be easily remedied by replacing face-to-face communication with online platforms. Conferences and similar gatherings are costly, elitist, and environmentally damaging, but under the enculturational model abandoning them could be disastrous for science, which depends on the development of cross-national trust and mutual agreements through face-to-face interaction and, in turn, disastrous for science's role in democracy. We explore the problem theoretically and empirically, arguing against recent proposals from some scientists for the wholesale and permanent replacement of conferences with remote communication.

自20世纪70年代以来,社会分析人士认为科学家之间的交流不仅是信息交换(算法模型),而且是一个进入重叠和相互嵌入的科学领域的社会化过程(文化模型)。在算法模型下,通过在线平台取代面对面交流,可以很容易地弥补新冠肺炎疫情对旅行的影响。会议和类似的聚会是昂贵的、精英主义的,而且对环境有害,但在文化模式下,放弃它们对科学来说可能是灾难性的,因为科学依赖于通过面对面的互动发展跨国信任和相互协议,反过来,对科学在民主中的作用也是灾难性的。我们从理论上和经验上探讨了这个问题,反对一些科学家最近提出的用远程通信大规模和永久性地取代会议的建议。
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引用次数: 3
Mistrust: Community engagement in global health research in coastal Kenya. 不信任:肯尼亚沿海社区参与全球健康研究。
IF 3 2区 社会学 Q1 HISTORY & PHILOSOPHY OF SCIENCE Pub Date : 2023-06-01 Epub Date: 2023-04-01 DOI: 10.1177/03063127231162082
Salla Sariola

This article explores a case of mistrust in global health research and community engagement. It uses ethnographic material collected in 2014 and 2016 in Kenya, concerning community engagement by a HIV vaccine research group working with men who have sex with men and transgender women. In 2010, the research group was attacked by members of the wider community. Following the attack, the research group set up an engagement program to reduce mistrust and re-build relationships. Analysis focusing on mistrust shows the dynamics underlying the conflict: Norms around gender and sexuality, political support for LGBTIQ+ rights, and resources disparities were all at stake for those embroiled in the conflict, including researchers, study participants, religious leaders, and LGBTIQ+ activists in the region. Rather than a normative good with liberatory potential, community engagement in this paper is discussed as a relational tool with which mistrust was managed, highlighting the fragility of participation.

本文探讨了全球健康研究和社区参与中的一个不信任案例。文章采用了 2014 年和 2016 年在肯尼亚收集的人种学材料,涉及一个与男男性行为者和变性女性合作的艾滋病疫苗研究小组的社区参与情况。2010 年,该研究小组遭到更广泛社区成员的攻击。袭击发生后,研究小组制定了一项参与计划,以减少不信任并重建关系。以不信任为重点的分析表明了冲突背后的动力:对于卷入冲突的人来说,包括研究人员、研究参与者、宗教领袖和该地区的 LGBTIQ+ 活动家在内,性别和性行为规范、对 LGBTIQ+ 权利的政治支持以及资源差异都岌岌可危。本文所讨论的社区参与并不是一种具有解放潜力的规范,而是一种处理不信任的关系工具,凸显了参与的脆弱性。
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引用次数: 0
Let's agree to agree: The situational academic quality of the UK REF as consensual public knowledge. 让我们达成一致:作为公众共识的英国 REF 的学术质量。
IF 2.9 2区 社会学 Q1 HISTORY & PHILOSOPHY OF SCIENCE Pub Date : 2023-06-01 Epub Date: 2023-02-06 DOI: 10.1177/03063127231152915
Sveta Milyaeva, Daniel Neyland

The Research Excellence Framework (REF) is a UK policy tool for distributing government funding and an important indicator of the academic status of a UK university. The legitimacy of the policy comes from peers' consensus on what academic quality is. We are interested in how the REF enables this funding distribution by determining the academic quality of a broad array of different forms of research through a single peer-review process. As they search for academic quality that is contingent to a specific epistemology and requires more time than the REF allows, how do academics agree to agree, and within constraints of a given timeframe? Interviews with REF panellists and their accounts of the process lead us to suggest that the consensus is enacted by setting up a situation: the mechanics of the REF with its practices of benchmarking, scoring, calibrating, and normalizing. This situation sets the boundaries of reviewing and, in doing so, propels peers to shift from assessment contingent on epistemic commitments to evaluation on a single scale. We argue that this shift renders academic quality distinct from scientific or epistemic quality.

卓越研究框架(REF)是英国政府分配资金的政策工具,也是衡量英国大学学术地位的重要指标。该政策的合法性来自于同行对学术质量的共识。我们感兴趣的是,REF 如何通过单一的同行评审程序来确定各种不同形式研究的学术质量,从而实现资金分配。学术界如何在特定时间框架的限制下达成一致意见?通过与 REF 小组成员的访谈以及他们对这一过程的描述,我们认为,共识是通过设置一种情境而达成的:REF 的机制及其基准、评分、校准和规范化的实践。这种情况设定了评审的界限,并以此推动同行从以认识论承诺为前提的评估转向单一尺度的评估。我们认为,这种转变使学术质量有别于科学或认识论质量。
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引用次数: 0
Mobile researchers, immobile data: Managing data (producers). 移动研究人员,固定数据:管理数据(生产者)。
IF 3 2区 社会学 Q1 HISTORY & PHILOSOPHY OF SCIENCE Pub Date : 2023-06-01 DOI: 10.1177/03063127231156862
Stefan Reichmann

Scientific institutions have increasingly embraced formalized research data management strategies, which involve complex social practices of codifying the tacit dimensions of data practices. Several guidelines to facilitate these practices have been introduced in recent years, for example, the FAIR guiding principles. The aim of these practices is to foster transparency and reproducibility through 'data sharing,' the public release of data for unbounded reuse. However, a closer look suggests that many scientists' practices of data release might be better described as what I call data handovers. These practices are not rooted in the lofty ideals of good scientific practice and global data reuse but in the more mundane necessities of research continuity, which have become more urgent in light of increasing academic mobility. The Austrian scientists interviewed for this study reinterpreted defining features of research data management - such as ensuring findability - as techniques for managing the effects of researcher mobility. This suggests that the adoption of Open Science practices might be dissociated from its stated epistemic goals, and explains why many Open Science initiatives at present are administratively strong but normatively weak.

科研机构越来越多地采用形式化的研究数据管理策略,这涉及到编纂数据实践的隐性维度的复杂社会实践。近年来提出了若干促进这些做法的指导方针,例如《公平原则》。这些实践的目的是通过“数据共享”,即公开发布数据以无限制地重用,来促进透明度和可重复性。然而,仔细观察就会发现,许多科学家发布数据的做法可能更适合用我所说的“数据移交”来形容。这些做法并非源于良好的科学实践和全球数据重用的崇高理想,而是源于研究连续性的更世俗的必要性,鉴于学术流动性的增加,这一点变得更加紧迫。为这项研究接受采访的奥地利科学家重新解释了研究数据管理的定义特征——比如确保可查找性——作为管理研究人员流动性影响的技术。这表明开放科学实践的采用可能与其所陈述的认知目标分离,并解释了为什么目前许多开放科学倡议在管理上很强,但在规范上很弱。
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引用次数: 0
Training scenes: Taking science studies to the classroom. 训练场景:将科学研究带入课堂。
IF 3 2区 社会学 Q1 HISTORY & PHILOSOPHY OF SCIENCE Pub Date : 2023-06-01 DOI: 10.1177/03063127231164583
Kris Decker, Christoph Hoffmann

Academic training, especially at the undergraduate level, is a marginal topic in science studies today. Scientific practices have commonly been approached through studies of research contexts-most visibly, the lab-and only sporadically through studies of the classroom or other teaching contexts. In this article, we draw attention to the pivotal role that academic training plays in the formation and reproduction of thought collectives. Such training, in shaping what students think about their field and what they understand as proper ways of doing science, is an important site of what we call epistemological enculturation. Based on a comprehensive literature review, we make several suggestions on how epistemological enculturation can be studied at the level of training scenes, a concept we develop in the article. This includes a discussion of the methodological as well as theoretical difficulties that occur when analysing academic training in action.

学术训练,特别是在本科阶段,是当今科学研究中的一个边缘话题。科学实践通常是通过研究环境(最明显的是实验室)的研究来进行的,只有偶尔通过课堂或其他教学环境的研究。在本文中,我们注意到学术训练在思想集体的形成和再生产中所起的关键作用。这种训练,在塑造学生对他们的领域的看法以及他们所理解的正确的科学研究方法方面,是我们所说的认识论文化化的一个重要场所。在综合文献综述的基础上,我们就如何在训练场景层面研究认识论文化适应提出了几点建议,这是我们在文章中提出的一个概念。这包括讨论在分析实际的学术培训时出现的方法和理论困难。
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引用次数: 0
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Social Studies of Science
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