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Dementia-International Journal of Social Research and Practice最新文献

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Knowledge gains and intent to change practice patterns after the Leveraging Existing Abilities in Dementia (LEAD)™ Training Program 在利用痴呆症的现有能力(LEAD)™培训计划后,知识的获得和改变实践模式的意图
IF 2.4 3区 社会学 Q2 GERONTOLOGY Pub Date : 2019-12-04 DOI: 10.1177/1471301219891562
Nicole T. Dawson, K. Judge, Ashleigh Trapuzzano
Few investigations have examined dementia training programs for rehabilitation professionals. To address this, the Leveraging Existing Abilities in Dementia (LEAD) program was developed and examined with a pilot study. LEAD addressed dementia knowledge; the Strength-Based Approach; strategies for communication, recognizing behaviors, and learning techniques; and documentation. Participants completed pre-program, post-program, and three-month follow-up questionnaires assessing confidence, practice patterns, and dementia knowledge. Confidence and use of treatment strategies increased through the three-month follow-up and dementia knowledge significantly increased following training. LEAD positively impacted rehabilitation professionals’ knowledge, confidence, and use of evidence-based treatment strategies. Implications of LEAD and future research are discussed.
很少有调查研究针对痴呆症康复专业人员的培训项目。为了解决这个问题,开发了利用痴呆症现有能力(LEAD)计划,并进行了试点研究。LEAD涉及痴呆症知识;基于强度的方法;沟通策略、识别行为和学习技巧;和文档。参与者完成了项目前、项目后和三个月的随访问卷,评估信心、练习模式和痴呆症知识。通过三个月的随访,信心和治疗策略的使用增加了,培训后痴呆知识显著增加。LEAD积极影响康复专业人员的知识、信心和循证治疗策略的使用。讨论了铅的意义和未来的研究。
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引用次数: 1
The East Lancashire Clinic Model: Supporting care homes to understand reactive behaviours (Innovative Practice) 东兰开夏诊所模式:支持护理院了解反应性行为(创新实践)
IF 2.4 3区 社会学 Q2 GERONTOLOGY Pub Date : 2019-11-26 DOI: 10.1177/1471301219891021
Michael Smith, Kelly Sayer
The East Lancashire Clinic model is a consultancy-based approach to supporting care home staff to assess and respond to reactive behaviours of people with dementia and reduce the need to refer into secondary mental health services. The clinics are person centred and solution focused, aiming to promote recognition of unmet needs and early interventions implemented by staff. The pilot was able to resolve most cases and reduce referral rates into secondary care services. Through working collaboratively, it empowers staff to improve the care of all their residents, improves relationship with secondary care services and has potential to offer efficiency savings.
东兰开夏郡诊所模式是一种基于咨询的方法,旨在支持护理院工作人员评估和应对痴呆症患者的反应行为,并减少转介至二级心理健康服务的需要。诊所以人为中心,以解决方案为重点,旨在促进对未满足需求的认识和工作人员实施的早期干预。该试点能够解决大多数病例,并降低二级护理服务的转诊率。通过合作,它使工作人员能够改善对所有居民的护理,改善与二级护理服务的关系,并有可能提高效率。
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引用次数: 1
Evaluation of AID-COM, a communication-focused program for family carers of people with early-stage Alzheimer’s disease: A pilot study (innovative practice) 针对早期阿尔茨海默病患者的家庭照护者的以沟通为重点的项目AID-COM的评估:一项试点研究(创新实践)
IF 2.4 3区 社会学 Q2 GERONTOLOGY Pub Date : 2019-11-19 DOI: 10.1177/1471301219887038
Sophie Chesneau, C. Faucher, Gabrielle Morin, G. Le Dorze
Families providing care to relatives with Alzheimer’s disease are quickly destabilized by changes that disrupt communication. This pilot mixed-design study aimed to provide a quantitative and qualitative evaluation of a communication-based training program for carers of people with early-stage Alzheimer’s disease. Five participants received three training sessions. The use of communication strategies by participants and their effectiveness were evaluated before and after the training, and a focus group was conducted to gather participants’ impressions about the impacts of the training on communication with the person they cared for. The AID-COM (AID for COMmunication) program appears to have met expectations.
为阿尔茨海默病患者亲属提供护理的家庭很快就会因沟通中断而变得不稳定。这项试点混合设计研究旨在为早期阿尔茨海默病患者的护理人员提供基于沟通的培训计划的定量和定性评估。五名参与者接受了三次培训。在培训前后评估了参与者对沟通策略的使用及其有效性,并成立了一个焦点小组,收集参与者对培训对与他们所关心的人沟通的影响的印象。AID-COM(通信AID)计划似乎达到了预期。
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引用次数: 2
‘Buddy Pairs’: A novel pilot scheme crafting knowledge exchange between biomedical dementia researchers and people affected by dementia – Innovative practice “Buddy Pairs”:一项新的试点计划,在生物医学痴呆症研究人员和痴呆症患者之间进行知识交流——创新实践
IF 2.4 3区 社会学 Q2 GERONTOLOGY Pub Date : 2019-11-12 DOI: 10.1177/1471301219885543
Lilian Kennedy, H. Wilkinson, C. Henstridge
The ‘Buddy Pairs’ pilot project, launched at the University of Edinburgh, created opportunities for people affected by dementia (people living with a diagnosis and care partners) and dementia lab researchers to participate in knowledge exchange conversations through experiential lab tours. The primary aims were to raise awareness and understanding of current dementia research and its practices, as well as allow biomedical researchers to learn about the lived experiences and research concerns of those affected by dementia. This scheme found success by flipping normative ‘speaker-audience’ communication set-ups and foregrounding the expertise held by, and communication needs of, people affected by dementia.
爱丁堡大学启动的“伙伴配对”试点项目为痴呆症患者(与诊断和护理伙伴一起生活的人)和痴呆症实验室研究人员创造了通过体验式实验室参观参与知识交流对话的机会。主要目的是提高对当前痴呆症研究及其实践的认识和理解,并使生物医学研究人员能够了解痴呆症患者的生活经历和研究问题。该计划通过颠覆规范的“演讲者-听众”沟通设置,突出痴呆症患者的专业知识和沟通需求,取得了成功。
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引用次数: 2
Experiences of rural life among community-dwelling older men with dementia and their implications for social inclusion 社区老年痴呆患者的农村生活经历及其对社会包容的影响
IF 2.4 3区 社会学 Q2 GERONTOLOGY Pub Date : 2019-11-12 DOI: 10.1177/1471301219887586
B. Hicks, A. Innes, S. Nyman
Current international dementia care policies focus on creating ‘dementia-friendly’ communities that aim to support the social inclusion of people with dementia. Although it is known that the geo-socio-cultural rural environment can impact on the experiences of people living with dementia, this can be overlooked when exploring and implementing social inclusion policies. This paper addresses an important gap in the literature by exploring the perceptions of daily life for older men (65+ years) living with dementia in three rural areas of England. Open interviews were conducted with 17 rural-dwelling older men with dementia and the data elicited were analysed thematically to construct two higher order themes. The first focussed on ‘Cracking on with life in a rural idyll’ and highlighted the benefits of rural living including the pleasant, natural environment, supportive informal networks and some accessible formal dementia support. The second presented ‘A challenge to the idyll’ and outlined difficulties the men faced including a lack of dementia awareness amongst their family and the wider rural community as well as the physical and internal motivational barriers associated with the rural landscape and their dementia. The findings were interpreted through a lens of social inclusion and demonstrated how the geo-socio-cultural rural environment both enabled and inhibited facets of the men’s experiences of life in their communities. Based on these findings, the paper offers recommendations for practitioners, researchers and policy makers wishing to promote social inclusion in rural-dwelling older men living with dementia.
目前的国际痴呆症护理政策侧重于创建“对痴呆症友好”的社区,旨在支持痴呆症患者的社会包容。虽然我们知道,农村的地缘社会文化环境会影响痴呆症患者的经历,但在探索和实施社会包容政策时,这一点可能会被忽视。本文通过探讨老年男性(65岁以上)生活与痴呆症在英格兰的三个农村地区的日常生活的看法,解决了文献中的一个重要差距。对17名农村老年痴呆症患者进行了公开访谈,并对所得数据进行了主题分析,构建了两个更高层次的主题。第一个主题是“乡村田园生活”,并强调了农村生活的好处,包括宜人的自然环境、支持性的非正式网络和一些可获得的正式痴呆症支持。第二篇文章提出了“对田园诗的挑战”,并概述了这些男性面临的困难,包括他们的家庭和更广泛的农村社区缺乏对痴呆症的认识,以及与农村景观和他们的痴呆症相关的物理和内部动机障碍。研究结果是通过社会包容的视角来解释的,并展示了地缘社会文化农村环境如何促进和抑制男性在社区生活体验的各个方面。基于这些发现,本文为希望促进农村老年痴呆症患者社会包容的从业人员、研究人员和政策制定者提供了建议。
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引用次数: 14
Training people with dementia/cognitive impairment and their carers in the use of web-based supportive technologies (Innovative practice) 培训痴呆症/认知障碍患者及其护理人员使用基于网络的支持技术(创新实践)
IF 2.4 3区 社会学 Q2 GERONTOLOGY Pub Date : 2019-11-12 DOI: 10.1177/1471301219887592
Kate Cunnah, David Howe, J. Thorpe, R. Dunn, Rebecca Platt, C. White, K. Paulson, E. Wolverson
Little is known about the training and support people with dementia and their carers need to use digital solutions. This paper shares learning from a bespoke programme that successfully trained people with dementia or mild cognitive impairment and their informal carers to use a social networking website. This work was undertaken as part of the European Horizon 2020 Caregiverspro-mmd trial (ISRCTN15654731). The training methods described offer an improved understanding of how best to deliver digital skills training that meets the needs of a diverse client group. The effectiveness of the programme is evidenced with qualitative and quantitative data.
人们对痴呆症患者及其护理人员使用数字解决方案所需的培训和支持知之甚少。本文分享了一项定制计划的经验,该计划成功地培训了痴呆症或轻度认知障碍患者及其非正式护理人员使用社交网站。这项工作是作为欧洲地平线2020 Caregiverspro mmd试验(ISRCTN15654731)的一部分进行的。所描述的培训方法提高了对如何最好地提供数字技能培训的理解,以满足不同客户群体的需求。定性和定量数据证明了该方案的有效性。
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引用次数: 6
Pilot study of a psychotherapeutic intervention for reducing guilt feelings in highly distressed dementia family caregivers (Innovative practice) 减少高度痛苦痴呆症家庭照顾者内疚感的心理治疗干预的初步研究(创新实践)
IF 2.4 3区 社会学 Q2 GERONTOLOGY Pub Date : 2019-11-10 DOI: 10.1177/1471301219886761
Laura Gallego-Alberto, M. Márquez-González, R. Romero-Moreno, Isabel Cabrera, A. Losada
Many caregivers of people with dementia experience guilt but few interventions have been designed to help them with these feelings. This study aimed to describe a psychological intervention specifically developed for decreasing caregivers´ guilt. The sample was composed of four caregivers, individually interviewed before and after the intervention. The intervention consisted of eight group-based sessions and was based on cognitive-behavioral, acceptance and self-compassion techniques. Three participants reported clinically reliable change in guilt. Clinically significant changes were also observed in their levels of anxiety and depression. The results suggest that carers might benefit from interventions designed to reduce their feelings of guilt.
许多痴呆症患者的护理人员都会感到内疚,但很少有干预措施能帮助他们缓解这种感觉。本研究旨在描述一种专门为减少照顾者内疚感而开发的心理干预措施。样本由四名护理人员组成,他们在干预前后分别接受了访谈。干预包括八次基于小组的会议,基于认知行为、接受和自我同情技术。三名参与者报告了临床上可靠的内疚感变化。他们的焦虑和抑郁水平也发生了临床上显著的变化。研究结果表明,护理人员可能会从旨在减少内疚感的干预措施中受益。
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引用次数: 15
Macao Dementia Policy: Challenges and prospects (innovative practice) 澳门痴呆症政策:挑战与展望(创新实践)
IF 2.4 3区 社会学 Q2 GERONTOLOGY Pub Date : 2019-11-10 DOI: 10.1177/1471301219887612
Lo Iek Long, Zeng Wen, Lei Chin Ion, Lam Chong, Lou Hong Lei
This paper highlights the challenges and prospects of older people with dementia in Macao. Macao Dementia Policy was launched in 2016 as the 27th globally, aligned with World Health Organization Global Action Plan on the Public Health Response to Dementia 2017–2025, includes a 10-year strategic framework to establish dementia friendly communities across the region. Dementia Working Group, cognitive assessment network in Health Centers, Dementia Medical Center, and Dementia Support Center were established subsequently. These initiatives manifest that Macao Government has taken great strides to improve waiting times, diagnosis rates, integrated care, and dementia friendliness through a seamless dementia service network.
本文着重介绍澳门老年痴呆症患者面临的挑战和前景。澳门痴呆症政策于2016年启动,是全球第27项政策,与世界卫生组织《2017-2025年公共卫生应对痴呆症全球行动计划》相一致,其中包括在整个地区建立痴呆症友好社区的10年战略框架。随后成立了痴呆症工作组、健康中心认知评估网络、痴呆症医疗中心和痴呆症支持中心。这些举措表明,澳门政府通过无缝的痴呆症服务网络,在改善等待时间、诊断率、综合护理和痴呆症友好性方面取得了长足进步。
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引用次数: 3
Australian long-term care personnel’s knowledge and attitudes regarding palliative care for people with advanced dementia 澳大利亚长期护理人员对晚期痴呆患者姑息治疗的知识和态度
IF 2.4 3区 社会学 Q2 GERONTOLOGY Pub Date : 2019-11-10 DOI: 10.1177/1471301219886768
T. Luckett, G. Luscombe, J. Phillips, E. Beattie, L. Chenoweth, P. Davidson, S. Goodall, D. Pond, G. Mitchell, M. Agar
This study aimed to describe Australian long-term care (LTC) personnel’s knowledge and attitudes concerning palliative care for residents with advanced dementia, and explore relationships with LTC facility/personnel characteristics. An analysis was undertaken of baseline data from a cluster randomised controlled trial of facilitated family case conferencing for improving palliative care of LTC residents with advanced dementia (the ‘IDEAL Study’). Participants included any LTC personnel directly involved in residents’ care. Knowledge and attitudes concerning palliative care for people with advanced dementia were measured using the questionnaire on Palliative Care for Advanced Dementia. Univariate and multivariate analyses explored relationships between personnel knowledge/attitudes and facility/personnel characteristics. Of 307 personnel in the IDEAL Study, 290 (94.5%) from 19/20 LTCFs provided sufficient data for inclusion. Participants included 9 (2.8%) nurse managers, 59 (20.5%) registered nurses, 25 (8.7%) enrolled nurses, 187 (64.9%) assistants in nursing/personal care assistants and 9 (3.1%) care service employees. In multivariate analyses, a facility policy not to rotate personnel through dementia units was the only variable associated with more favourable overall personnel knowledge and attitudes. Other variables associated with favourable knowledge were a designation of nursing manager or registered or enrolled nurse, and having a preferred language of English. Other variables associated with favourable attitudes were tertiary level of education and greater experience in dementia care. Like previous international research, this study found Australian LTC personnel knowledge and attitudes regarding palliative care for people with advanced dementia to be associated with both facility and personnel characteristics. Future longitudinal research is needed to better understand the relationships between knowledge and attitudes, as well as between these attributes and quality of care.
本研究旨在描述澳洲长期照护(LTC)人员对晚期痴呆患者姑息治疗的知识和态度,并探讨与LTC设施/人员特征的关系。对促进家庭病例会议以改善晚期痴呆LTC患者姑息治疗的聚类随机对照试验(“IDEAL研究”)的基线数据进行了分析。参与者包括任何直接参与居民护理的LTC人员。采用《晚期痴呆患者姑息治疗问卷》对晚期痴呆患者姑息治疗的知识和态度进行测量。单变量和多变量分析探讨了人员知识/态度与设施/人员特征之间的关系。在IDEAL研究的307名人员中,来自19/20个ltcf的290名(94.5%)提供了足够的数据纳入。研究对象包括护理经理9名(2.8%)、注册护士59名(20.5%)、注册护士25名(8.7%)、护理助理/个人护理助理187名(64.9%)和护理服务人员9名(3.1%)。在多变量分析中,不通过痴呆症病房轮换人员的设施政策是与更有利的总体人员知识和态度相关的唯一变量。其他与有利知识相关的变量是指定的护理经理或注册或注册护士,以及首选的语言是英语。与积极态度相关的其他变量是高等教育程度和更多的痴呆症护理经验。与以往的国际研究一样,本研究发现澳大利亚LTC人员对晚期痴呆患者姑息治疗的知识和态度与设施和人员特征有关。未来的纵向研究需要更好地理解知识和态度之间的关系,以及这些属性和护理质量之间的关系。
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引用次数: 6
Chris and Sally’s House: Adapting a home for people living with dementia (innovative practice) 克里斯和莎莉之家:为痴呆症患者改造家园(创新实践)
IF 2.4 3区 社会学 Q2 GERONTOLOGY Pub Date : 2019-11-07 DOI: 10.1177/1471301219887040
C. Jais, S. Hignett, William Halsall, David H Kelly, Malcolm Cook, E. Hogervorst
How can domestic housing be adapted to support people living with dementia staying in their own homes for as long as they choose? This paper describes the innovative practice of using evidence-based design personas in a building refurbishment project (Chris and Sally’s House) with a multidisciplinary team of architects, ergonomists, psychologists and experts. A 100 sqm Victorian two bedroom house was adapted to help educate house builders, carers and relatives on how to better support those living with dementia to live in their own home for longer. The design principles include clear sight lines, mobility support and provision for overnight carers.
如何调整家庭住房,以支持痴呆症患者选择住多久就住多久?本文描述了在建筑翻新项目(Chris and Sally’s House)中使用基于证据的设计人物角色的创新实践,该项目由建筑师、人体工程学专家、心理学家和专家组成。一个100平方米的维多利亚式两卧室的房子被改造,以帮助教育房屋建筑商,护理人员和亲属如何更好地支持痴呆症患者在自己的家中生活更长时间。设计原则包括清晰的视线,移动支持和提供过夜护理人员。
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引用次数: 1
期刊
Dementia-International Journal of Social Research and Practice
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