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Disease Burden and Sexual Life Experiences of Individuals with Chronic Obstructive Pulmonary Disease: A Phenomenological Study 慢性阻塞性肺病患者的疾病负担和性生活经历:现象学研究
IF 1.5 4区 医学 Q2 Medicine Pub Date : 2024-01-04 DOI: 10.1007/s11195-023-09821-y
Sevda Uzun, Sema Toker, İmren Erer

This study aimed to examine the disease burden encountered by individuals with COPD, with a comprehensive investigation of the effect of the disease on sexual life. In this study, a phenomenological research design, a qualitative research type, was employed. The study involved 36 individuals diagnosed with COPD. The data collection process involved conducting individual, face-to-face interviews. Colaizzi’s phenomenological analysis method was utilized for the data analysis. The analysis of the data yielded two categories (burdens of the disease and sexual life) and six primary themes (physical effects, mental effects, social effects, difficulties during sexual activity, the spouse’s perspective on the problems, and dealing with sexual problems). The outcomes of this study highlighted the significant burden of COPD on patients and its adverse impact on their sexual lives. Given the complex nature of COPD, a thorough and professional assessment of patients’ sexual well-being, coupled with timely identification of sexual dysfunctions and appropriate interventions, is of utmost importance.

本研究旨在探讨慢性阻塞性肺病患者所承受的疾病负担,全面调查疾病对性生活的影响。本研究采用了定性研究中的现象学研究设计。研究涉及 36 名慢性阻塞性肺病患者。数据收集过程包括进行面对面的个人访谈。数据分析采用了科莱兹的现象学分析方法。数据分析得出了两个类别(疾病负担和性生活)和六个主要主题(身体影响、精神影响、社会影响、性活动中的困难、配偶对问题的看法以及处理性问题)。这项研究的结果凸显了慢性阻塞性肺病给患者带来的沉重负担以及对他们性生活的不利影响。鉴于慢性阻塞性肺病的复杂性,对患者的性健康进行全面、专业的评估,及时发现性功能障碍并采取适当的干预措施至关重要。
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引用次数: 0
Evaluation of the Effectiveness of Sexual Health Education Given to Parents of Children with Disabilities 对残疾儿童家长进行性健康教育的效果评估
IF 1.5 4区 医学 Q2 Medicine Pub Date : 2023-12-21 DOI: 10.1007/s11195-023-09826-7
Gökçenur Gündoğdu, Meltem Kürtüncü, Türkan Akyol Güner

Children with disabilities and their families should receive education appropriate for the needs of children with disabilities in order for them to lead a more independent life. The aim of this study is to evaluate the effectiveness of the sexual health education given to the parents of children with disabilities aged 10–19. This study, which used an experimental design with a pre-test and post-test control group, was conducted with the parents of children with disabilities enrolled at the Kozlu Disabled Association in Kozlu, district of Zonguldak province. The sample of the study consisted of 47 parents who met the inclusion criteria. Parents were assigned to the experimental (n = 23) and control (n = 24) groups with the randomization method. The data of the study were collected using “Introductory Information Form”, “Parental Self-Efficacy Scale” and “Knowledge Assessment Questionnaire”. Sexual health education including 8 modules and lasting for 8 weeks was given to the parents in the experimental group once a week for 30–45 min. While the mean score of the Parental Self-Efficacy Scale of the experimental group was 55.50 ± 23.16 before the education, it increased to 97.17 ± 7.88 after the education, and a statistically significant relationship was found between the two measurements (p < 0.05). When the scores of the Knowledge Assessment Questionnaire of the experimental group were evaluated after the education, the sub-dimension scores of the Self-care Knowledge, Sexual Behavior Control Knowledge, Sexual Abuse Knowledge and Communication Knowledge were determined to be statistically significant (p < 0.05). It was concluded in the study that the sexual health education given to parents of children with disabilities was effective in increasing the level of parental self-efficacy and sexual health knowledge.

残疾儿童及其家庭应接受适合残疾儿童需要的教育,以便他们过上更加独立的生活。本研究旨在评估为 10-19 岁残疾儿童的父母提供性健康教育的效果。本研究采用实验设计,分为前测对照组和后测对照组,对象是宗古尔达克省科兹卢区科兹卢残疾人协会的残疾儿童家长。研究样本包括符合纳入标准的 47 名家长。家长被随机分配到实验组(23 人)和对照组(24 人)。研究数据通过 "介绍信息表"、"家长自我效能感量表 "和 "知识评估问卷 "收集。实验组的家长每周接受一次为期 8 周、包括 8 个单元的性健康教育,每次 30-45 分钟。教育前,实验组家长的 "家长自我效能感量表 "平均得分为(55.50±23.16)分,教育后则增至(97.17±7.88)分,两项测量之间存在显著的统计学关系(p <0.05)。教育后对实验组的知识评估问卷得分进行评估,发现自我保健知识、性行为控制知识、性虐待知识和沟通知识的分维度得分均有统计学意义(p <0.05)。研究认为,对残疾儿童家长进行性健康教育能有效提高家长的自我效能感水平和性健康知识水平。
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引用次数: 0
Positive and Negative Sexual Cognitions of Autistic Individuals 自闭症患者的积极和消极性认知
IF 1.5 4区 医学 Q2 Medicine Pub Date : 2023-12-16 DOI: 10.1007/s11195-023-09824-9

Abstract

Sexual cognitions are an important aspect of sexual well-being for all individuals; however, little is known about the sexual cognitions of autistic individuals. Therefore, our study aimed to explore the diversity, content, and frequencies of positive (PSC) and negative (NSC) sexual cognitions in this population. A total of 332 participants (57.5% women; 42.5% men) between the ages of 21 and 73 (M = 37.72, SD = 11.15) completed an online survey. Our results showed that almost all participants had experienced both positive and negative sexual cognitions. PSC were more diverse and experienced with greater frequency than NSC. In addition, gender (self-identified as being male) and having had relationship experience were associated with greater diversity and frequency of PSC, but not NSC. In terms of content, the most common experienced sexual cognitions for both men and women were intimacy-related. The men experienced 22 of the 56 PSC and 3 of the 56 NSC significantly more frequently than did the women; there were no cognitions that the women experienced more frequently than the men. A comparison to the results of studies of sexual cognitions among neurotypical individuals suggests that autistic individuals experience sexual cognitions in much the same way as their peers. However, sexual cognitions occur slightly less frequently and are somewhat less diverse. Nonetheless, the way in which they are experienced, and the content of the most frequent cognitions (mainly PSC about intimacy) may be indicative of sexual well-being.

摘要 性认知是所有人性健康的一个重要方面,然而,人们对自闭症患者的性认知知之甚少。因此,我们的研究旨在探讨自闭症患者积极(PSC)和消极(NSC)性认知的多样性、内容和频率。共有 332 名年龄在 21 岁至 73 岁之间的参与者(女性占 57.5%;男性占 42.5%)(M=37.72,SD=11.15)完成了在线调查。结果显示,几乎所有参与者都经历过积极和消极的性认知。与消极性认知相比,积极性认知更加多样化,经历的频率也更高。此外,性别(自我认同为男性)和恋爱经历与 PSC 的多样性和频率有关,但与 NSC 无关。就内容而言,男性和女性最常见的性认知都与亲密关系有关。在 56 种 PSC 和 56 种 NSC 中,男性经历 22 种和 3 种的频率明显高于女性;没有任何一种认知是女性经历的频率高于男性的。与神经畸形人的性认知研究结果相比,自闭症患者的性认知与他们的同龄人大致相同。不过,自闭症患者的性认知出现的频率略低,种类也较少。尽管如此,自闭症患者体验性认知的方式,以及最常见的认知内容(主要是关于亲密关系的 PSC),都可能表明他们的性福程度。
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引用次数: 0
Sexual Quality of Life and Sexual Problems of Women with Gynecological Cancer: Evaluation According to Treatment Methods and Cancer Types 妇科癌症患者的性生活质量和性问题:根据治疗方法和癌症类型的评估
IF 1.5 4区 医学 Q2 Medicine Pub Date : 2023-11-30 DOI: 10.1007/s11195-023-09820-z
Sibel Delican, Zeynep Güngörmüş

The aim of current study was to examine the sexual quality of life and problems of women with gynecological cancer in a Turkish Muslim population to evaluate them according to their treatment modalities. This study was conducted on 350 women who voluntarily accepted to participate in the study and were treated for gynecological cancer. Patients; who are aged from 18 to 65 years, have partners, sexually active, completed first treatment, not in the terminal period, without neurological and psychiatric disorders were included in the study. The research data were collected by using the descriptive characteristics form and Sexual Quality of Life Scale-Female (SQOLS-F). The quality of sexual life of women with gynecological cancer was very low (34.1 ± 10.2). The sexual quality of life of women with gynecological cancer differed according to the treatment methods and cancer types. Sexual quality of life was higher in those who received surgical treatment than those who received radiotherapy and chemotherapy treatment. In addition, pathological symptoms were observed more intensely, especially in the chemotherapy group. In addition, pathological symptoms were observed more intensely, especially in the chemotherapy group. In addition, most of the women did not receive information about sexuality from the health personnel during the treatment process and did not share their sexual problems with the health personnel.

本研究的目的是检查土耳其穆斯林人口中患有妇科癌症的妇女的性生活质量和问题,并根据其治疗方式对其进行评估。这项研究是对350名自愿接受研究并接受妇科癌症治疗的妇女进行的。病人;年龄在18岁到65岁之间,有伴侣,性生活活跃,完成了第一次治疗,不在终末期,没有神经和精神疾病的人被纳入研究。研究数据采用描述性特征表和性生活质量量表-女性(SQOLS-F)收集。妇科肿瘤患者性生活质量极低(34.1±10.2)。妇科癌症患者的性生活质量因治疗方法和癌症类型的不同而不同。接受手术治疗的患者性生活质量高于接受放疗和化疗的患者。此外,病理症状更强烈,尤其是化疗组。此外,病理症状更强烈,尤其是化疗组。此外,大多数妇女在治疗过程中没有从保健人员那里得到关于性的信息,也没有与保健人员分享她们的性问题。
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引用次数: 0
The Predictive Role of Health Literacy in the Sexual Dysfunction of Women with Coronary Artery Disease: A Cross-Sectional Study 健康素养对冠心病女性性功能障碍的预测作用:一项横断面研究
IF 1.5 4区 医学 Q2 Medicine Pub Date : 2023-11-25 DOI: 10.1007/s11195-023-09819-6
Hakimeh Vahedparast, Parvin Zandi Rad, Razieh Bagherzadeh, Tayebeh Gharibi

Coronary artery disease (CAD) is one of the most common chronic diseases whose complications harm sexual functioning. Given the importance of sexual functioning and the effects of CAD on it, it is important to identify the factors that can affect sexual functioning. This study aimed to determine the predictive role of health literacy in the sexual functioning of women with CAD. This cross-sectional study was conducted in 2021 on 385 women with CAD who visited comprehensive health centers and doctors’ offices in Bushehr Province (Iran) and were selected via convenience sampling. The data were collected using a demographic information form, The Adults Functional Health Literacy questionnaire, and the Female Sexual Function Index. The data were then analyzed using descriptive statistics and logistic regression at the significance level of < 0.05. The mean age of the participants was 52.19 ± 12.15. The mean health literacy score was 72.25 + 24.18. The mean sexual function score was 17.75 + 8.80. Thirty-five percent of the participants had severe or moderate sexual dysfunction. The results showed that high health literacy reduces the risk of overall sexual dysfunction (p = 0.006). The results showed that high health literacy reduces the risk of overall sexual dysfunction and most of its domains. Healthcare and health education specialists should improve the health literacy of women with CAD by using simple and understandable training. It is necessary to conduct prospective studies to determine the causal relationship between the studied variables and confirm the results of the present study.

冠状动脉疾病(CAD)是最常见的慢性疾病之一,其并发症损害性功能。鉴于性功能的重要性和CAD对性功能的影响,确定影响性功能的因素是很重要的。本研究旨在确定健康素养对CAD女性性功能的预测作用。这项横断面研究于2021年对在布什尔省(伊朗)访问综合保健中心和医生办公室的385名CAD妇女进行了研究,并通过方便抽样进行了选择。数据采用人口统计信息表、成人功能健康素养问卷和女性性功能指数收集。采用描述性统计和logistic回归分析,显著性水平为< 0.05。参与者平均年龄为52.19±12.15岁。平均健康素养得分为72.25 + 24.18。性功能评分平均为17.75 + 8.80。35%的参与者有严重或中度性功能障碍。结果显示,高健康素养降低了整体性功能障碍的风险(p = 0.006)。结果表明,较高的健康素养降低了整体性功能障碍及其大部分领域的风险。保健和健康教育专家应通过简单易懂的培训提高冠心病妇女的健康素养。有必要进行前瞻性研究,以确定所研究变量之间的因果关系,并确认本研究的结果。
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引用次数: 0
Co-Design of an Educational Toolkit on Sexuality for Autistic Adolescents and Young Adults 参与设计自闭症青少年及青少年性教育工具
4区 医学 Q2 Medicine Pub Date : 2023-11-13 DOI: 10.1007/s11195-023-09816-9
William Picard-Pageau, Ernesto Morales, Marie-Pierre Gagnon, Alicia Ruiz-Rodrigo
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引用次数: 0
Sexual Education for Adolescents and Adults with Intellectual Disabilities: Systematic Review 智障青少年和成人的性教育:系统回顾
4区 医学 Q2 Medicine Pub Date : 2023-11-09 DOI: 10.1007/s11195-023-09813-y
Sha Foon Eliza Irene Hui
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引用次数: 0
Professional Educational Opportunities 专业教育机会
4区 医学 Q2 Medicine Pub Date : 2023-10-24 DOI: 10.1007/s11195-023-09818-7
Sigmund Hough
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引用次数: 0
Male Adolescents with Mild Intellectual Disabilities: Normative Sexual Development and Factors Associated with Sexual Risks 轻度智障男性青少年:规范性发育及性风险相关因素
4区 医学 Q2 Medicine Pub Date : 2023-10-24 DOI: 10.1007/s11195-023-09814-x
Mirthe C. Verbeek, Maartje Luijk, Joyce Weeland, Daphne van de Bongardt
Abstract This study aimed to (1) describe male mildly intellectually disabled (MID) adolescents’ general romantic and sexual development, education experience with topics on sexuality and relationships, and frequency of undesirable sexual behaviors and experiences; and (2) explore how sexuality related attitudes, self-esteem, sexual knowledge, and resilience to peer pressure link to MID male adolescents’ sexual and dating violence (SDV) perpetration, SDV victimization and sexual risk behavior. We used baseline data from a randomized controlled trial on a program for psychosexual health promotion and prevention of undesirable sexual experiences for MID male adolescents ( N = 120, M age = 15.03 years), assessed with self-report questionnaires. We examined cross-sectional associations with correlations and (logistic) regression analyses between sexuality-related attitudes, global self-esteem, sexual knowledge, and resilience to peer pressure with SDV perpetration, SDV victimization and behavioral intentions following sexual rejection. Results indicated that male MID adolescents were romantically and sexually active, and reported unsafe sex, 47.7% experienced SDV perpetration and 33.9% victimization. Positive attitudes towards dating violence were associated with having experienced both SDV perpetration and victimization, and more adherence to heterosexual double standards was related to more negative and fewer positive behavioral intentions upon sexual rejection. Participants who experienced SDV victimization had more sexual knowledge. Self-esteem and resilience to peer pressure were unrelated to SDV. Concluding, male MID adolescents are similarly sexually active to the general population but may need more guidance in the form of timely, tailored prevention and education. We provide concrete suggestions such as focusing on changing attitudes and practicing skills.
摘要:本研究旨在(1)了解男性轻度智力障碍青少年的一般恋爱和性发展、性和人际关系教育经历、不良性行为和性经历的频率;(2)探讨性相关态度、自尊、性知识和同伴压力复原力与中部男性青少年性与约会暴力(SDV)犯罪、SDV受害和性风险行为的关系。我们使用了一项随机对照试验的基线数据,该试验旨在促进MID男性青少年的性心理健康和预防不良性经历(N = 120, M年龄= 15.03岁),并采用自我报告问卷进行评估。我们检验了与性相关的态度、整体自尊、性知识和同伴压力复原力与SDV实施、SDV受害和性拒绝后的行为意图之间的相关性和(逻辑)回归分析。结果表明:中部地区男性青少年恋爱活跃、性行为活跃,存在不安全性行为,有SDV行为的分别占47.7%和33.9%。对约会暴力的积极态度与经历过SDV的实施和受害有关,而对异性恋双重标准的坚持与性拒绝时更多的消极和更少的积极行为意图有关。经历过SDV受害者的参与者性知识更多。自尊和对同伴压力的适应能力与SDV无关。结论是,男性MID青少年的性活跃程度与一般人群相似,但可能需要更多及时、量身定制的预防和教育指导。我们提供了具体的建议,比如注重改变态度和练习技能。
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引用次数: 0
From the Editor of Sexuality and Disability: Artificial Intelligence has Arrived, is the Door Open or Closed? 来自《性与残疾》编辑:人工智能已经到来,门是开着还是关着?
4区 医学 Q2 Medicine Pub Date : 2023-10-24 DOI: 10.1007/s11195-023-09817-8
Sigmund Hough
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引用次数: 0
期刊
Sexuality and Disability
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