Pub Date : 2024-01-04DOI: 10.1007/s11195-023-09821-y
Sevda Uzun, Sema Toker, İmren Erer
This study aimed to examine the disease burden encountered by individuals with COPD, with a comprehensive investigation of the effect of the disease on sexual life. In this study, a phenomenological research design, a qualitative research type, was employed. The study involved 36 individuals diagnosed with COPD. The data collection process involved conducting individual, face-to-face interviews. Colaizzi’s phenomenological analysis method was utilized for the data analysis. The analysis of the data yielded two categories (burdens of the disease and sexual life) and six primary themes (physical effects, mental effects, social effects, difficulties during sexual activity, the spouse’s perspective on the problems, and dealing with sexual problems). The outcomes of this study highlighted the significant burden of COPD on patients and its adverse impact on their sexual lives. Given the complex nature of COPD, a thorough and professional assessment of patients’ sexual well-being, coupled with timely identification of sexual dysfunctions and appropriate interventions, is of utmost importance.
{"title":"Disease Burden and Sexual Life Experiences of Individuals with Chronic Obstructive Pulmonary Disease: A Phenomenological Study","authors":"Sevda Uzun, Sema Toker, İmren Erer","doi":"10.1007/s11195-023-09821-y","DOIUrl":"https://doi.org/10.1007/s11195-023-09821-y","url":null,"abstract":"<p>This study aimed to examine the disease burden encountered by individuals with COPD, with a comprehensive investigation of the effect of the disease on sexual life. In this study, a phenomenological research design, a qualitative research type, was employed. The study involved 36 individuals diagnosed with COPD. The data collection process involved conducting individual, face-to-face interviews. Colaizzi’s phenomenological analysis method was utilized for the data analysis. The analysis of the data yielded two categories (burdens of the disease and sexual life) and six primary themes (physical effects, mental effects, social effects, difficulties during sexual activity, the spouse’s perspective on the problems, and dealing with sexual problems). The outcomes of this study highlighted the significant burden of COPD on patients and its adverse impact on their sexual lives. Given the complex nature of COPD, a thorough and professional assessment of patients’ sexual well-being, coupled with timely identification of sexual dysfunctions and appropriate interventions, is of utmost importance.</p>","PeriodicalId":51537,"journal":{"name":"Sexuality and Disability","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2024-01-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139375187","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Children with disabilities and their families should receive education appropriate for the needs of children with disabilities in order for them to lead a more independent life. The aim of this study is to evaluate the effectiveness of the sexual health education given to the parents of children with disabilities aged 10–19. This study, which used an experimental design with a pre-test and post-test control group, was conducted with the parents of children with disabilities enrolled at the Kozlu Disabled Association in Kozlu, district of Zonguldak province. The sample of the study consisted of 47 parents who met the inclusion criteria. Parents were assigned to the experimental (n = 23) and control (n = 24) groups with the randomization method. The data of the study were collected using “Introductory Information Form”, “Parental Self-Efficacy Scale” and “Knowledge Assessment Questionnaire”. Sexual health education including 8 modules and lasting for 8 weeks was given to the parents in the experimental group once a week for 30–45 min. While the mean score of the Parental Self-Efficacy Scale of the experimental group was 55.50 ± 23.16 before the education, it increased to 97.17 ± 7.88 after the education, and a statistically significant relationship was found between the two measurements (p < 0.05). When the scores of the Knowledge Assessment Questionnaire of the experimental group were evaluated after the education, the sub-dimension scores of the Self-care Knowledge, Sexual Behavior Control Knowledge, Sexual Abuse Knowledge and Communication Knowledge were determined to be statistically significant (p < 0.05). It was concluded in the study that the sexual health education given to parents of children with disabilities was effective in increasing the level of parental self-efficacy and sexual health knowledge.
{"title":"Evaluation of the Effectiveness of Sexual Health Education Given to Parents of Children with Disabilities","authors":"Gökçenur Gündoğdu, Meltem Kürtüncü, Türkan Akyol Güner","doi":"10.1007/s11195-023-09826-7","DOIUrl":"https://doi.org/10.1007/s11195-023-09826-7","url":null,"abstract":"<p>Children with disabilities and their families should receive education appropriate for the needs of children with disabilities in order for them to lead a more independent life. The aim of this study is to evaluate the effectiveness of the sexual health education given to the parents of children with disabilities aged 10–19. This study, which used an experimental design with a pre-test and post-test control group, was conducted with the parents of children with disabilities enrolled at the Kozlu Disabled Association in Kozlu, district of Zonguldak province. The sample of the study consisted of 47 parents who met the inclusion criteria. Parents were assigned to the experimental (n = 23) and control (n = 24) groups with the randomization method. The data of the study were collected using “Introductory Information Form”, “Parental Self-Efficacy Scale” and “Knowledge Assessment Questionnaire”. Sexual health education including 8 modules and lasting for 8 weeks was given to the parents in the experimental group once a week for 30–45 min. While the mean score of the Parental Self-Efficacy Scale of the experimental group was 55.50 ± 23.16 before the education, it increased to 97.17 ± 7.88 after the education, and a statistically significant relationship was found between the two measurements (<i>p</i> < 0.05). When the scores of the Knowledge Assessment Questionnaire of the experimental group were evaluated after the education, the sub-dimension scores of the Self-care Knowledge, Sexual Behavior Control Knowledge, Sexual Abuse Knowledge and Communication Knowledge were determined to be statistically significant (<i>p</i> < 0.05). It was concluded in the study that the sexual health education given to parents of children with disabilities was effective in increasing the level of parental self-efficacy and sexual health knowledge.</p>","PeriodicalId":51537,"journal":{"name":"Sexuality and Disability","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2023-12-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138823487","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-12-16DOI: 10.1007/s11195-023-09824-9
Abstract
Sexual cognitions are an important aspect of sexual well-being for all individuals; however, little is known about the sexual cognitions of autistic individuals. Therefore, our study aimed to explore the diversity, content, and frequencies of positive (PSC) and negative (NSC) sexual cognitions in this population. A total of 332 participants (57.5% women; 42.5% men) between the ages of 21 and 73 (M = 37.72, SD = 11.15) completed an online survey. Our results showed that almost all participants had experienced both positive and negative sexual cognitions. PSC were more diverse and experienced with greater frequency than NSC. In addition, gender (self-identified as being male) and having had relationship experience were associated with greater diversity and frequency of PSC, but not NSC. In terms of content, the most common experienced sexual cognitions for both men and women were intimacy-related. The men experienced 22 of the 56 PSC and 3 of the 56 NSC significantly more frequently than did the women; there were no cognitions that the women experienced more frequently than the men. A comparison to the results of studies of sexual cognitions among neurotypical individuals suggests that autistic individuals experience sexual cognitions in much the same way as their peers. However, sexual cognitions occur slightly less frequently and are somewhat less diverse. Nonetheless, the way in which they are experienced, and the content of the most frequent cognitions (mainly PSC about intimacy) may be indicative of sexual well-being.
{"title":"Positive and Negative Sexual Cognitions of Autistic Individuals","authors":"","doi":"10.1007/s11195-023-09824-9","DOIUrl":"https://doi.org/10.1007/s11195-023-09824-9","url":null,"abstract":"<h3>Abstract</h3> <p>Sexual cognitions are an important aspect of sexual well-being for all individuals; however, little is known about the sexual cognitions of autistic individuals. Therefore, our study aimed to explore the diversity, content, and frequencies of positive (PSC) and negative (NSC) sexual cognitions in this population. A total of 332 participants (57.5% women; 42.5% men) between the ages of 21 and 73 (<em>M</em> = 37.72, <em>SD</em> = 11.15) completed an online survey. Our results showed that almost all participants had experienced both positive and negative sexual cognitions. PSC were more diverse and experienced with greater frequency than NSC. In addition, gender (self-identified as being male) and having had relationship experience were associated with greater diversity and frequency of PSC, but not NSC. In terms of content, the most common experienced sexual cognitions for both men and women were intimacy-related. The men experienced 22 of the 56 PSC and 3 of the 56 NSC significantly more frequently than did the women; there were no cognitions that the women experienced more frequently than the men. A comparison to the results of studies of sexual cognitions among neurotypical individuals suggests that autistic individuals experience sexual cognitions in much the same way as their peers. However, sexual cognitions occur slightly less frequently and are somewhat less diverse. Nonetheless, the way in which they are experienced, and the content of the most frequent cognitions (mainly PSC about intimacy) may be indicative of sexual well-being.</p>","PeriodicalId":51537,"journal":{"name":"Sexuality and Disability","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2023-12-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138691736","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-30DOI: 10.1007/s11195-023-09820-z
Sibel Delican, Zeynep Güngörmüş
The aim of current study was to examine the sexual quality of life and problems of women with gynecological cancer in a Turkish Muslim population to evaluate them according to their treatment modalities. This study was conducted on 350 women who voluntarily accepted to participate in the study and were treated for gynecological cancer. Patients; who are aged from 18 to 65 years, have partners, sexually active, completed first treatment, not in the terminal period, without neurological and psychiatric disorders were included in the study. The research data were collected by using the descriptive characteristics form and Sexual Quality of Life Scale-Female (SQOLS-F). The quality of sexual life of women with gynecological cancer was very low (34.1 ± 10.2). The sexual quality of life of women with gynecological cancer differed according to the treatment methods and cancer types. Sexual quality of life was higher in those who received surgical treatment than those who received radiotherapy and chemotherapy treatment. In addition, pathological symptoms were observed more intensely, especially in the chemotherapy group. In addition, pathological symptoms were observed more intensely, especially in the chemotherapy group. In addition, most of the women did not receive information about sexuality from the health personnel during the treatment process and did not share their sexual problems with the health personnel.
{"title":"Sexual Quality of Life and Sexual Problems of Women with Gynecological Cancer: Evaluation According to Treatment Methods and Cancer Types","authors":"Sibel Delican, Zeynep Güngörmüş","doi":"10.1007/s11195-023-09820-z","DOIUrl":"https://doi.org/10.1007/s11195-023-09820-z","url":null,"abstract":"<p>The aim of current study was to examine the sexual quality of life and problems of women with gynecological cancer in a Turkish Muslim population to evaluate them according to their treatment modalities. This study was conducted on 350 women who voluntarily accepted to participate in the study and were treated for gynecological cancer. Patients; who are aged from 18 to 65 years, have partners, sexually active, completed first treatment, not in the terminal period, without neurological and psychiatric disorders were included in the study. The research data were collected by using the descriptive characteristics form and Sexual Quality of Life Scale-Female (SQOLS-F). The quality of sexual life of women with gynecological cancer was very low (34.1 ± 10.2). The sexual quality of life of women with gynecological cancer differed according to the treatment methods and cancer types. Sexual quality of life was higher in those who received surgical treatment than those who received radiotherapy and chemotherapy treatment. In addition, pathological symptoms were observed more intensely, especially in the chemotherapy group. In addition, pathological symptoms were observed more intensely, especially in the chemotherapy group. In addition, most of the women did not receive information about sexuality from the health personnel during the treatment process and did not share their sexual problems with the health personnel.</p>","PeriodicalId":51537,"journal":{"name":"Sexuality and Disability","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2023-11-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138534390","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Coronary artery disease (CAD) is one of the most common chronic diseases whose complications harm sexual functioning. Given the importance of sexual functioning and the effects of CAD on it, it is important to identify the factors that can affect sexual functioning. This study aimed to determine the predictive role of health literacy in the sexual functioning of women with CAD. This cross-sectional study was conducted in 2021 on 385 women with CAD who visited comprehensive health centers and doctors’ offices in Bushehr Province (Iran) and were selected via convenience sampling. The data were collected using a demographic information form, The Adults Functional Health Literacy questionnaire, and the Female Sexual Function Index. The data were then analyzed using descriptive statistics and logistic regression at the significance level of < 0.05. The mean age of the participants was 52.19 ± 12.15. The mean health literacy score was 72.25 + 24.18. The mean sexual function score was 17.75 + 8.80. Thirty-five percent of the participants had severe or moderate sexual dysfunction. The results showed that high health literacy reduces the risk of overall sexual dysfunction (p = 0.006). The results showed that high health literacy reduces the risk of overall sexual dysfunction and most of its domains. Healthcare and health education specialists should improve the health literacy of women with CAD by using simple and understandable training. It is necessary to conduct prospective studies to determine the causal relationship between the studied variables and confirm the results of the present study.
{"title":"The Predictive Role of Health Literacy in the Sexual Dysfunction of Women with Coronary Artery Disease: A Cross-Sectional Study","authors":"Hakimeh Vahedparast, Parvin Zandi Rad, Razieh Bagherzadeh, Tayebeh Gharibi","doi":"10.1007/s11195-023-09819-6","DOIUrl":"https://doi.org/10.1007/s11195-023-09819-6","url":null,"abstract":"<p>Coronary artery disease (CAD) is one of the most common chronic diseases whose complications harm sexual functioning. Given the importance of sexual functioning and the effects of CAD on it, it is important to identify the factors that can affect sexual functioning. This study aimed to determine the predictive role of health literacy in the sexual functioning of women with CAD. This cross-sectional study was conducted in 2021 on 385 women with CAD who visited comprehensive health centers and doctors’ offices in Bushehr Province (Iran) and were selected via convenience sampling. The data were collected using a demographic information form, The Adults Functional Health Literacy questionnaire, and the Female Sexual Function Index. The data were then analyzed using descriptive statistics and logistic regression at the significance level of < 0.05. The mean age of the participants was 52.19 ± 12.15. The mean health literacy score was 72.25 + 24.18. The mean sexual function score was 17.75 + 8.80. Thirty-five percent of the participants had severe or moderate sexual dysfunction. The results showed that high health literacy reduces the risk of overall sexual dysfunction (<i>p</i> = 0.006). The results showed that high health literacy reduces the risk of overall sexual dysfunction and most of its domains. Healthcare and health education specialists should improve the health literacy of women with CAD by using simple and understandable training. It is necessary to conduct prospective studies to determine the causal relationship between the studied variables and confirm the results of the present study.</p>","PeriodicalId":51537,"journal":{"name":"Sexuality and Disability","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2023-11-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138534389","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-13DOI: 10.1007/s11195-023-09816-9
William Picard-Pageau, Ernesto Morales, Marie-Pierre Gagnon, Alicia Ruiz-Rodrigo
{"title":"Co-Design of an Educational Toolkit on Sexuality for Autistic Adolescents and Young Adults","authors":"William Picard-Pageau, Ernesto Morales, Marie-Pierre Gagnon, Alicia Ruiz-Rodrigo","doi":"10.1007/s11195-023-09816-9","DOIUrl":"https://doi.org/10.1007/s11195-023-09816-9","url":null,"abstract":"","PeriodicalId":51537,"journal":{"name":"Sexuality and Disability","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-11-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"136282447","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-11-09DOI: 10.1007/s11195-023-09813-y
Sha Foon Eliza Irene Hui
{"title":"Sexual Education for Adolescents and Adults with Intellectual Disabilities: Systematic Review","authors":"Sha Foon Eliza Irene Hui","doi":"10.1007/s11195-023-09813-y","DOIUrl":"https://doi.org/10.1007/s11195-023-09813-y","url":null,"abstract":"","PeriodicalId":51537,"journal":{"name":"Sexuality and Disability","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-11-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135240797","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-10-24DOI: 10.1007/s11195-023-09814-x
Mirthe C. Verbeek, Maartje Luijk, Joyce Weeland, Daphne van de Bongardt
Abstract This study aimed to (1) describe male mildly intellectually disabled (MID) adolescents’ general romantic and sexual development, education experience with topics on sexuality and relationships, and frequency of undesirable sexual behaviors and experiences; and (2) explore how sexuality related attitudes, self-esteem, sexual knowledge, and resilience to peer pressure link to MID male adolescents’ sexual and dating violence (SDV) perpetration, SDV victimization and sexual risk behavior. We used baseline data from a randomized controlled trial on a program for psychosexual health promotion and prevention of undesirable sexual experiences for MID male adolescents ( N = 120, M age = 15.03 years), assessed with self-report questionnaires. We examined cross-sectional associations with correlations and (logistic) regression analyses between sexuality-related attitudes, global self-esteem, sexual knowledge, and resilience to peer pressure with SDV perpetration, SDV victimization and behavioral intentions following sexual rejection. Results indicated that male MID adolescents were romantically and sexually active, and reported unsafe sex, 47.7% experienced SDV perpetration and 33.9% victimization. Positive attitudes towards dating violence were associated with having experienced both SDV perpetration and victimization, and more adherence to heterosexual double standards was related to more negative and fewer positive behavioral intentions upon sexual rejection. Participants who experienced SDV victimization had more sexual knowledge. Self-esteem and resilience to peer pressure were unrelated to SDV. Concluding, male MID adolescents are similarly sexually active to the general population but may need more guidance in the form of timely, tailored prevention and education. We provide concrete suggestions such as focusing on changing attitudes and practicing skills.
{"title":"Male Adolescents with Mild Intellectual Disabilities: Normative Sexual Development and Factors Associated with Sexual Risks","authors":"Mirthe C. Verbeek, Maartje Luijk, Joyce Weeland, Daphne van de Bongardt","doi":"10.1007/s11195-023-09814-x","DOIUrl":"https://doi.org/10.1007/s11195-023-09814-x","url":null,"abstract":"Abstract This study aimed to (1) describe male mildly intellectually disabled (MID) adolescents’ general romantic and sexual development, education experience with topics on sexuality and relationships, and frequency of undesirable sexual behaviors and experiences; and (2) explore how sexuality related attitudes, self-esteem, sexual knowledge, and resilience to peer pressure link to MID male adolescents’ sexual and dating violence (SDV) perpetration, SDV victimization and sexual risk behavior. We used baseline data from a randomized controlled trial on a program for psychosexual health promotion and prevention of undesirable sexual experiences for MID male adolescents ( N = 120, M age = 15.03 years), assessed with self-report questionnaires. We examined cross-sectional associations with correlations and (logistic) regression analyses between sexuality-related attitudes, global self-esteem, sexual knowledge, and resilience to peer pressure with SDV perpetration, SDV victimization and behavioral intentions following sexual rejection. Results indicated that male MID adolescents were romantically and sexually active, and reported unsafe sex, 47.7% experienced SDV perpetration and 33.9% victimization. Positive attitudes towards dating violence were associated with having experienced both SDV perpetration and victimization, and more adherence to heterosexual double standards was related to more negative and fewer positive behavioral intentions upon sexual rejection. Participants who experienced SDV victimization had more sexual knowledge. Self-esteem and resilience to peer pressure were unrelated to SDV. Concluding, male MID adolescents are similarly sexually active to the general population but may need more guidance in the form of timely, tailored prevention and education. We provide concrete suggestions such as focusing on changing attitudes and practicing skills.","PeriodicalId":51537,"journal":{"name":"Sexuality and Disability","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-10-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135268096","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-10-24DOI: 10.1007/s11195-023-09817-8
Sigmund Hough
{"title":"From the Editor of Sexuality and Disability: Artificial Intelligence has Arrived, is the Door Open or Closed?","authors":"Sigmund Hough","doi":"10.1007/s11195-023-09817-8","DOIUrl":"https://doi.org/10.1007/s11195-023-09817-8","url":null,"abstract":"","PeriodicalId":51537,"journal":{"name":"Sexuality and Disability","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2023-10-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"135273585","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}