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Mothers’ Awareness of Sex Education and Training Programs for Children with Autism 母亲对自闭症儿童性教育和培训计划的认识
IF 1.5 4区 医学 Q3 REHABILITATION Pub Date : 2024-06-17 DOI: 10.1007/s11195-024-09859-6
Abed Alrazaq H. Alhassan, Mahmoud Gharaibeh

Individuals with autism require sex education more than others. In particular, mothers provide timely sexual education and safety orientation. However, since parents and caregivers do not understand their children’s sexual requirements, children with autism and other impairments generally get less comprehensive education. Training and assistance lessen the risk of sexual exploitation or abuse. It aimed to discover how much Jordanian mothers know about the sexual abuse of their children with autism and how a training program has helped them learn more. Also, a training program will be used to see how Jordanian mothers’ education level affects their children’s knowledge and development. The research instrument was administered to a random sample of 91 mothers of children with autism in the Ajloun governorate (Jordan). 56 paragraphs cover five dimensions of mothers’ level of knowledge. 12 mothers were trained to understand sexual assault. The awareness scale examined before and after the impact of the training program. The training boosted mothers’ comprehension of sexual abuse statistically. The research sample’s arithmetic means on each dimension of the mothers’ knowledge scale concerning sexual abuse and together owing to the mother’s educational qualification variable were statistically significant. Mothers with bachelor’s or postgraduate degrees learn more than those with secondary education. This study suggests that children with autism may benefit from sex education to lessen sexual assault risks, as well as opportunity to understand healthy sexuality. Parents and schools should provide sex education programs for specific interventions to assist children with autism in understanding their sexual needs.

自闭症患者比其他人更需要性教育。母亲尤其需要及时提供性教育和安全指导。然而,由于父母和看护人不了解子女的性要求,自闭症儿童和其他障碍儿童通常得不到较全面的教育。培训和援助降低了性剥削或性虐待的风险。该项目旨在了解约旦母亲对自闭症儿童遭受性虐待的了解程度,以及培训项目如何帮助她们了解更多。此外,培训项目还将用于了解约旦母亲的教育水平对其子女的知识和发展有何影响。研究工具对阿杰隆(Ajloun)省(约旦)91名自闭症儿童母亲进行了随机抽样。56 个段落涵盖了母亲知识水平的五个方面。12 名母亲接受了了解性侵犯的培训。认知量表检查了培训计划实施前后的影响。据统计,培训提高了母亲们对性侵犯的理解能力。研究样本在母亲性虐待知识量表各维度上的算术平均值以及母亲学历变量在一起的算术平均值均具有统计学意义。拥有学士学位或研究生学位的母亲比拥有中等教育程度的母亲学习得更多。这项研究表明,自闭症儿童可以从性教育中获益,从而降低性侵犯的风险,并有机会了解健康的性行为。家长和学校应为自闭症儿童提供性教育计划,采取具体的干预措施,帮助他们了解自己的性需求。
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引用次数: 0
The Linking of Artificial Intelligence with Sexuality and Disability 人工智能与性和残疾的联系
IF 1.5 4区 医学 Q2 Medicine Pub Date : 2024-06-05 DOI: 10.1007/s11195-024-09858-7
Sigmund Hough
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引用次数: 0
Exploring the Experience of Romantic Relationships and Sexuality Education in Neurodivergent and Neurotypical Young Individuals 探索神经分裂和神经畸形青少年的恋爱关系和性教育体验
IF 1.5 4区 医学 Q2 Medicine Pub Date : 2024-06-04 DOI: 10.1007/s11195-024-09857-8
Magdalena Smusz, Christopher Birkbeck, Amy Bidgood, Clare S. Allely

Purpose The literature indicates that sexuality education provided in schools/colleges in the United Kingdom (UK) may not be appropriate for people with Autism Spectrum Disorder (ASD). There appears to be a lack of understanding of the subject regarding young people with Attention-Deficit/Hyperactivity Disorder (ADHD) and a dual diagnosis (ASD co-occurring with ADHD). Research also suggests that compared to neurotypical peers, young people with ASD tend to receive less support on sexuality from their parents, who often feel that they lack the appropriate skills to help their children with some sex-related issues. Some young people with ASD and ADHD also report lacking an understanding of the social nuances of dating and intimacy, which is crucial for navigating romantic relationships. Design/methodology/approach This study explored sexuality education and romantic relationships in young people based on a semi-structured interview approach to the topic. Thematic Analysis (TA) was employed to analyze the data. Findings Six themes were developed from the participants’ narratives: Societal ideology about sexuality; Substandard school-based sexuality education; The role of adults in sexuality education; Pornography, as a very powerful alternative means of sexuality education; Young people and romance—a complicated world to navigate; Experience of abuse in the young neurodivergent population is a serious matter. Findings revealed that many neurodivergent and neurotypical young people received basic sex education in their schools/colleges and homes and encountered challenges navigating romantic relationships. Neurodivergent young people reported experiencing greater challenges related to their understanding of and building romantic relationships than their neurotypical peers. Originality/value To the researchers’ knowledge, this is the first exploration of romantic relationships and sexuality education in neurotypical young people as well as three groups of neurodivergent young people (with ASD, ADHD, and ASD co-occurring with ADHD).

目的 文献表明,英国学校/学院提供的性教育可能不适合自闭症谱系障碍(ASD)患者。对于患有注意力缺陷/多动障碍(ADHD)和双重诊断(自闭症谱系障碍并发注意力缺陷/多动障碍)的青少年,似乎缺乏对这一主题的了解。研究还表明,与神经正常的同龄人相比,患有 ASD 的青少年在性问题上从父母那里得到的支持往往较少,他们往往认为自己缺乏适当的技能来帮助孩子解决一些与性有关的问题。一些患有 ASD 和多动症的青少年还表示,他们对约会和亲密关系中的社会细微差别缺乏了解,而这对他们处理浪漫关系至关重要。设计/方法/途径 本研究以半结构式访谈为基础,探讨了青少年的性教育和恋爱关系。采用主题分析法(TA)对数据进行分析。研究结果 从参与者的叙述中提出了六个主题:关于性的社会意识形态;不达标的学校性教育;成人在性教育中的角色;色情,作为性教育的一种非常强大的替代手段;年轻人与恋情--一个需要驾驭的复杂世界;年轻的神经变异者遭受虐待的经历是一个严重的问题。研究结果表明,许多神经变异和神经畸形的年轻人在学校/学院和家庭中接受了基本的性教育,但在处理浪漫关系时遇到了挑战。与神经畸形青少年相比,神经发育异常青少年在理解和建立恋爱关系方面遇到了更大的挑战。原创性/价值 据研究人员所知,这是首次对神经典型青少年以及三组神经多变青少年(患有自闭症、多动症以及自闭症并发多动症)的恋爱关系和性教育进行探讨。
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引用次数: 0
The Perceptions and Attitudes of Undergraduate Students in Health-Related Fields Toward the Sexuality of Disabled People in Canada 加拿大健康相关领域本科生对残疾人性行为的看法和态度
IF 1.5 4区 医学 Q2 Medicine Pub Date : 2024-06-03 DOI: 10.1007/s11195-024-09852-z
Alan Santinele Martino, Erin Brennand, Kayley Schnare

The aim of this study was to explore the perceptions and attitudes of Canadian undergraduate students in health-related fields of study regarding the sexuality of disabled people. More specifically, we examine what is being taught to undergraduate students regarding the sexuality of disabled people, the sources of information that students rely upon to learn about this topic, and the current attitudes that these students hold. A modified version of the Attitudes to Sexuality Questionnaire was completed by 156 healthcare students from 30 different Canadian post-secondary institutions. Data analysis revealed that participants generally held non-restrictive views about parenting, sexual rights, non-reproductive sexual behavior, and sexual self-control of people with disabilities; however, over half of the participants noted that their post-secondary curriculum did not provide them with enough information regarding disability and sexuality. The results of this study speak to the need for more information about the sexuality of disabled people in healthcare education curricula.

本研究旨在探讨加拿大健康相关专业的本科生对残疾人性行为的看法和态度。更具体地说,我们研究了本科生所学到的有关残疾人性行为的知识、学生了解这一主题所依赖的信息来源,以及这些学生目前所持的态度。来自加拿大 30 所不同大专院校的 156 名医护专业学生填写了一份经过修改的 "对性的态度 "问卷。数据分析显示,参与者普遍对为人父母、性权利、非生殖性行为和残疾人的性自控力持有非限制性的观点;然而,超过一半的参与者指出,他们的大专课程没有为他们提供足够的有关残疾和性的信息。这项研究的结果表明,有必要在医疗保健教育课程中提供更多有关残疾人性行为的信息。
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引用次数: 0
Changes in Heterosexual Couples’ Sexuality During the First Two Years After Breast Cancer Surgery: A Longitudinal Descriptive Study 乳腺癌手术后两年内异性夫妇性生活的变化:纵向描述性研究
IF 1.5 4区 医学 Q2 Medicine Pub Date : 2024-05-31 DOI: 10.1007/s11195-024-09854-x
Sarah Cairo Notari, Thierry Mathieu, Nicolas Favez, Françoise Adam

The study aims to describe couples’ changes in sexuality after non-metastatic breast cancer from a longitudinal perspective. Our research question was: how do couples experience the cancer-induced change in sexual frequency and what are the reasons evoked to explain this kind of change over time? Forty heterosexual couples participated in a semi-structured interview three months and two years after surgery. A reflexive thematic analysis was conducted on a specific question about sexuality from a larger interview guide. The results showed that couples follow multiple trajectories regarding sexuality after the onset of oncological treatment. Most couples experienced temporary or more lasting changes, mainly associated with altered body image and pain. Some stopped having sexual activities at the beginning of treatment but resumed sexuality two years later; others were unable to restore sexuality. However, some couples stayed sexually active all along the cancer journey, showing that cessation of any sexual activity is not inevitable. Sexuality represents a significant long-term issue for breast cancer survivors and their partners. Prompt treatment can prevent sexual difficulties from crystallizing, while preserving the individual well-being and the quality of the couple’s relationship. Health professionals should be aware of the need to screen early for sexual changes, while reevaluating the couple’s situation regularly during care.

本研究旨在从纵向角度描述非转移性乳腺癌术后夫妻在性生活方面的变化。我们的研究问题是:夫妻如何体验癌症引起的性生活频率的变化,随着时间的推移,有哪些原因可以解释这种变化?40 对异性夫妇参加了术后三个月和两年的半结构式访谈。对大型访谈指南中有关性生活的具体问题进行了反思性主题分析。结果显示,夫妻在接受肿瘤治疗后,在性生活方面经历了多种轨迹。大多数夫妇都经历了暂时或较为持久的变化,主要与身体形象的改变和疼痛有关。有些人在治疗初期停止了性活动,但两年后又恢复了性生活;有些人则无法恢复性生活。然而,有些夫妇在癌症治疗过程中一直保持性生活活跃,这表明停止任何性活动并非不可避免。对于乳腺癌幸存者及其伴侣来说,性生活是一个重要的长期问题。及时的治疗可以防止性生活困难的固化,同时维护个人的幸福和夫妻关系的质量。医护人员应意识到需要及早筛查性变化,同时在护理期间定期重新评估夫妻双方的情况。
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引用次数: 0
Breast and Cervical Cancer Screening Experiences and Barriers Among Visually Impaired Women: A Mixed Method Study 视障妇女的乳腺癌和宫颈癌筛查经历与障碍:混合方法研究
IF 1.5 4区 医学 Q2 Medicine Pub Date : 2024-05-30 DOI: 10.1007/s11195-024-09853-y
Meltem Ugurlu, Derya Yuksel Kocak

This study aims to identify the experiences of visually impaired women regarding breast and cervical cancer screening and the barriers they encounter. A mixed-method approach was employed using surveys and semi-structured interviews. The survey questionnaire investigated the participation and knowledge of visually impaired women in breast and cervical cancer screenings, while the interviews supported the survey results and provided insights into women’s experiences and barriers related to breast and cervical cancer screening. The quantitative part of the research was completed with 210 visually impaired women, while the qualitative part was completed with 15 participants. It was determined that 13.3% of the participants undergo breast self-examination (BSE) monthly, 4.7% undergo clinical breast examination (CBE) annually, and 33.3% of women aged 40 and above regularly undergo mammography. Additionally, 18.1% of the participants reported having regular gynecological examinations, and 31.3% reported having regular pap smears. The interview data revealed three main themes: personal factors, environmental factors, and barriers and facilitators. Participants face difficulties such as lack of knowledge about accessing healthcare facilities, screening, and preventive measures, limited mobility, economic challenges, negative attitudes of healthcare personnel, and inadequate environmental adjustments for disabled individuals. The study has revealed that visually impaired women in Turkey may not have sufficient participation in breast and cervical cancer screenings.

本研究旨在了解视障妇女在乳腺癌和宫颈癌筛查方面的经历以及遇到的障碍。研究采用了调查和半结构化访谈的混合方法。调查问卷调查了视障妇女参与乳腺癌和宫颈癌筛查的情况和对筛查的了解程度,而访谈则为调查结果提供了支持,并深入了解了妇女在乳腺癌和宫颈癌筛查方面的经历和遇到的障碍。研究的定量部分由 210 名视障妇女完成,定性部分由 15 名参与者完成。结果显示,13.3%的参与者每月进行一次乳房自我检查(BSE),4.7%的参与者每年进行一次临床乳房检查(CBE),33.3%的 40 岁及以上女性定期进行乳房 X 光检查。此外,18.1% 的参与者表示定期进行妇科检查,31.3% 表示定期进行子宫颈抹片检查。访谈数据揭示了三大主题:个人因素、环境因素以及障碍和促进因素。参与者面临的困难包括:缺乏使用医疗设施、筛查和预防措施的知识,行动不便,经济困难,医护人员的消极态度,以及为残疾人提供的环境调整不足。研究显示,土耳其的视障妇女可能无法充分参与乳腺癌和宫颈癌筛查。
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引用次数: 0
“Killjoys and Thrilljoys” – A Crip Theoretical Perspective on Sex Education in Special Schools "杀戮与快感"--瘸子对特殊学校性教育的理论透视
IF 1.5 4区 医学 Q2 Medicine Pub Date : 2024-05-30 DOI: 10.1007/s11195-024-09845-y
Lotta Löfgren

Sex education geared towards people with intellectual disability often focuses sexual risks and reproduction. However, research shows that students at special schools often find this inadequate and irrelevant. This conceptual article examines this issue from a crip theoretical perspective, combined with the classical concept of stigma. Furthermore, the term killjoy is added to the analysis; a term located at the intersection between queer and feminist theories. Might those in the environment surrounding individuals with ID, i.e., staff and family members, function as “killjoys” in relation to sexuality and intellectual disability? Or might they develop into “thrilljoys”, i.e., individuals who facilitate the embracement of stigma, with a focus on enjoyment rather than apparent problems in relation to sexuality and people with ID? The aim of this article is to highlight the significance of the social environment for these young people’s needs and life conditions, and to challenge presumptions that have to date been taken för granted. The result shows that assuming the role of thrilljoy means listening in a flexible and relevant way to the wishes that people with ID themselves express. This might in turn also make it easier for people with ID to themselves adopt a crip theoretical perspective and to really embrace that which has up until now been defined as a stigma. Developing new ways of looking at non-normative intellectual functionality and sexuality could contribute to develop sex education geared towards this goal group in a sufficient way.

针对智障人士的性教育通常侧重于性风险和生殖。然而,研究表明,特殊教育学校的学生往往认为这种教育不够充分,也不相关。这篇概念性文章从 Crip 理论的角度,结合经典的成见概念,对这一问题进行了研究。此外,分析中还加入了 "扫兴"(killjoy)一词;这是一个介于同性恋理论和女权主义理论之间的术语。智障人士周围环境中的人,即工作人员和家庭成员,是否会在性行为和智障问题上扮演 "扫兴鬼 "的角色?或者,他们是否会发展成为 "快活人",即促进接受污名的人,在性行为和智障人士问题上注重享受而非明显的问题?本文旨在强调社会环境对这些年轻人的需求和生活条件的重要性,并对迄今为止被视为理所当然的假设提出质疑。研究结果表明,要想扮演好 "刺激者 "的角色,就必须以灵活、贴切的方式倾听智障人士自己表达的愿望。反过来,这可能也会使智障人士更容易采用携程的理论视角,并真正接受迄今为止一直被定义为耻辱的东西。开发看待非正常智力功能和性行为的新方法,有助于充分发展针对这一目标群体的性教育。
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引用次数: 0
A Bibliometric Analysis of the Scientific Research on Erectile Dysfunction 勃起功能障碍科学研究的文献计量分析
IF 1.5 4区 医学 Q2 Medicine Pub Date : 2024-05-29 DOI: 10.1007/s11195-024-09849-8
Abdulaziz Ali Y. Alzharani, Ali M. Alshami, Muhammad Ajmal Khan, Nadeem Siddique, Turki Abualait

Erectile dysfunction (ED) is a prevalent condition affecting over 150 million men worldwide. While there is a wealth of publications and research in the field of ED, there is a noticeable scarcity of bibliometric analyses of the literature on this topic. This study aims to analyze the scientific activity and research trends related to ED. We conducted a comprehensive search of the Scopus database to identify potentially relevant studies on ED published from 1841 to November 12, 2022. We used the primary keywords “erectile dysfunction” or “impotence” for the search. Several software tools were employed for data calculation and visualization. Analysis of variance (ANOVA) and linear correlation statistical test were used. The main outcomes of interest included the number of publications, year of publication, document type, country of origin, affiliated organizations, and journals of publication. Our search revealed a total of 30,634 publications with a cumulative 657,894 citations in the field of ED literature over the past 18 decades. “Original Article” emerged as the most common document type, accounting for 22,292 records. The United States stood out as the most prolific country, contributing 8809 publications (25% of the total). The University of California in the United States led in research output with 581 publications. Notably, the ‘Journal of Sexual Medicine’ was the leading publication source, with 1715 publications associated with it. Clinicians and experts in sexual medicine should take authorship trends into account when they review ED articles to improve patient care. A primary strength of our study is that it presents a comprehensive bibliometric review of ED reports spanning 18 decades. Results are limited to ED literature published in the sexual medicine journals and the urology analyzed. The publication volume on ED literature witnessed a substantial increase from 1975 to 2022. The findings from this bibliometric analysis provide valuable insights into research hotspots and emerging trends in the field of ED, which can aid researchers in gaining a better understanding of this topic.

勃起功能障碍(ED)是一种影响全球 1.5 亿多男性的常见疾病。虽然在 ED 领域有大量的出版物和研究,但有关该主题的文献计量分析却明显不足。本研究旨在分析与 ED 相关的科学活动和研究趋势。我们对 Scopus 数据库进行了全面检索,以确定 1841 年至 2022 年 11 月 12 日期间发表的与 ED 相关的潜在研究。我们使用的主要关键词是 "勃起功能障碍 "或 "阳痿"。数据计算和可视化采用了多种软件工具。采用方差分析(ANOVA)和线性相关统计检验。主要结果包括论文数量、发表年份、文献类型、来源国、附属机构和发表期刊。我们的搜索结果显示,在过去的 18 年中,ED 文献领域共有 30,634 篇出版物,累计被引用 657,894 次。"原创文章 "是最常见的文献类型,共有 22,292 条记录。美国是发表论文最多的国家,共发表了 8809 篇论文(占总数的 25%)。美国加利福尼亚大学的研究成果最多,发表了 581 篇论文。值得注意的是,"性医学杂志 "是最主要的出版物来源,共发表了 1715 篇相关论文。临床医生和性医学专家在审阅有关 ED 的文章时应考虑到作者趋势,以改善对患者的护理。我们这项研究的主要优势在于,它对 18 个年代的 ED 报告进行了全面的文献计量学回顾。研究结果仅限于发表在性医学期刊和泌尿学分析期刊上的 ED 文献。从 1975 年到 2022 年,ED 文献的发表量出现了大幅增长。这项文献计量学分析的结果为了解 ED 领域的研究热点和新兴趋势提供了有价值的见解,有助于研究人员更好地了解这一主题。
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引用次数: 0
Self-Esteem, Depression and Sexual Quality of Life in Turkish Women with Gynecological Cancer 土耳其妇科癌症妇女的自尊、抑郁和性生活质量
IF 1.5 4区 医学 Q2 Medicine Pub Date : 2024-05-21 DOI: 10.1007/s11195-024-09846-x
Sahar Sabouri, D. Anuk, Sedat Özkan
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引用次数: 0
Correction: Disease Burden and Sexual Life Experiences of Individuals with Chronic Obstructive Pulmonary Disease: A Phenomenological Study 更正:慢性阻塞性肺病患者的疾病负担和性生活经历:现象学研究
IF 1.5 4区 医学 Q2 Medicine Pub Date : 2024-05-16 DOI: 10.1007/s11195-024-09848-9
Sevda Uzun, Sema Toker, İmren Erer
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引用次数: 0
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Sexuality and Disability
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