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Educational Interventions on Sexuality for Parents of Children and Adolescents with Intellectual Disabilities: An Integrative Review 针对智障儿童和青少年家长的性教育干预:综合评论
IF 1.5 4区 医学 Q3 REHABILITATION Pub Date : 2024-01-17 DOI: 10.1007/s11195-023-09825-8
Tatiane Geralda André, Giovanna Cristina Machado-Kayzuka, Sara Carlitos Quinava, Nayara Gonçalves Barbosa, Márcia Regina Martins Alvarenga, Eduardo Espindola Fontoura-Junior, Milena de Lucca, Carolina Valdez-Montero, Maria Dolores Gil-Llario, Lucila Castanheira Nascimento

The aim of this article was to identify educational interventions on sexuality for parents of children and adolescents with intellectual disabilities. This is an integrative literature review. In May, 2023, searches were carried out in 12 databases using the keywords: intellectual disability, sexuality, sexual communication, intervention, program, and parents and Boolean operators AND and OR. The thematic analysis of the nine articles found resulted in the theme: Sex education programs and their interventions, and three sub-themes: (a) conceptualization and design of the programs; (b) from taboo to confidence: increasing self-perception of competence to approach sex education; and (c) speaking the same language: how sex education can contribute to improving communication between parents and children with intellectual disabilities. The results showed that the interventions were effective in promoting positive changes in self-efficacy, contributed to increasing knowledge about sexuality, improved the quality and frequency of communication about sexuality in the family context, and addressed parents' beliefs and attitudes, considering their cultural and personal context with a view to promoting positive changes in these areas. The development of sex education strategies prepares parents and families for handling and safely guiding children and adolescents with intellectual disabilities. The interventions showed a positive impact on parents and their children. Future investigations combining quantitative and qualitative approaches to the evaluation of these sex education programs are necessary, in order to provide a broader and deeper view of the results achieved.

本文旨在确定针对智障儿童和青少年父母的性教育干预措施。这是一篇综合性文献综述。2023 年 5 月,我们使用关键词:智障、性、性交流、干预、计划、父母以及布尔运算符 AND 和 OR 在 12 个数据库中进行了检索。对找到的 9 篇文章进行了主题分析,得出的主题是:性教育计划及其干预措施:性教育计划及其干预措施,以及三个次主题:(a) 计划的概念化和设计;(b) 从禁忌到自信:提高对性教育能力的自我认知;(c) 说同一种语言:性教育如何有助于改善父母与智障儿童之间的沟通。结果表明,这些干预措施有效地促进了自我效能的积极变化,有助于增加性知识,提高了家庭中性交流的质量和频率,并解决了父母的信仰和态度问题,考虑到了他们的文化和个人背景,以期促进这些领域的积极变化。性教育战略的制定为家长和家庭处理和安全指导智障儿童和青少年做好了准备。干预措施对父母及其子女产生了积极影响。今后有必要开展调查,结合定量和定性方法对这些性教育方案进行评估,以便更广泛、更深入地了解所取得的成果。
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引用次数: 0
Let’s Talk About Sex! Perspectives from People with Intellectual and Developmental Disabilities and Caregivers in Residential Institutions in Greenland 让我们谈谈性!格陵兰寄宿机构中的智力和发育障碍者及照顾者的观点
IF 1.5 4区 医学 Q3 REHABILITATION Pub Date : 2024-01-12 DOI: 10.1007/s11195-023-09828-5
Kamilla Nørtoft, Sofie Emma Rubin

This study explores how attitudes toward talking about sex and sexual matters influence practices regarding sexuality, sexual rights, and sexual abuse in residential institutions for people with disabilities in Greenland. 16 residents aged 17–62 and 29 managers and staff from 8 residential institutions have been interviewed about the ways sexual needs and rights are treated and discussed as well as how sexual harassment and violations are prevented or handled. The results of the study show that there are great variations between the residential institutions regarding meeting residents’ sexual needs, talking about sex, sex education, and knowledge of rules and policies in the area. While some managers and staff are quite comfortable talking to residents and each other about sex, boundaries, and the body, others find it extremely difficult and some even reject the thought of sex as a relevant topic for the residents. Regardless of the level of openness about sexual matters in the residential institutions, staff and managers express a need for more sex education with a focus on how they can best help, guide, and protect residents, but guidance about sex is much more available for residents when staff feel comfortable talking about sex. Sexual violations and illegal sexual contact might take place in residential institutions regardless of the local practices regarding sex and sex education. However, openness about sexual matters might help detect overstepped sexual boundaries and stop sexual harassment and violations earlier.

本研究探讨了格陵兰残疾人寄宿机构中,人们对谈论性和性问题的态度如何影响有关性、性权利和性虐待的做法。16 名年龄在 17-62 岁之间的入住者和来自 8 家寄宿机构的 29 名管理人员和工作人员接受了访谈,内容涉及如何对待和讨论性需求和性权利,以及如何预防或处理性骚扰和性侵犯。研究结果表明,各养老机构在满足入住者的性需求、谈论性、性教育以及对相关规则和政策的了解等方面存在很大差异。有些管理者和员工在与住客和住客之间谈论性、界限和身体时非常自在,而有些管理者和员工则认为这非常困难,有些管理者和员工甚至拒绝将性作为与住客相关的话题。无论寄宿机构对性问题的开放程度如何,工作人员和管理人员都表示需要更多的性教育,重点是如何才能更好地帮助、指导和保护住户,但当工作人员对性问题感到轻松自如时,住户就更容易获得性方面的指导。无论当地在性和性教育方面的做法如何,性侵犯和非法性接触都可能在寄宿机构中发生。然而,公开谈论性问题可能有助于发现逾越的性界限,及早制止性骚扰和性侵犯行为。
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引用次数: 0
Sexual and Reproductive Health Services Utilization and Associated Factors among Disabled Students in Selected Public Universities of Ethiopia 埃塞俄比亚部分公立大学残疾学生的性健康和生殖健康服务利用情况及相关因素
IF 1.5 4区 医学 Q3 REHABILITATION Pub Date : 2024-01-09 DOI: 10.1007/s11195-023-09822-x
Fentahun Tamene Zeleke, Melaku Admas, Fentahun Alemnew Chekole, Kassa Genetu Alem, Shegaw Geze Tenaw, Daniel Tsega Tefera, Bitew Tefera Zewde, Bogale Chekole, Hirut Dinku Jiru, Mebratu Demissie, Ambaye Minayehu Zegeye, Seboka Abebe Sori

There is limited information regarding the level of sexual and reproductive health service utilization among disabled students in Ethiopia. Therefore, this study aimed to assess the magnitude of sexual and reproductive health services utilization and its associated factors among disabled students in selected Universities in Ethiopia. An institutional-based cross-sectional study design was conducted. A simple random sampling method was used to draw study participants. EpiData version 3.1 and SPSS version 25.0 were used for data entry and analysis respectively. Statistical significance was declared at a p-value of < 0.05. The overall utilization of sexual and reproductive health services was 36.22% among 557 disabled participants. Marital status (AOR = 5.50; 95% CI: 2.64, 11.46), discussing sexual and reproductive health issues (AOR = 3.84; 95% CI: 2.596, 5.689), knowledge about sexual and reproductive health (AOR = 2.23; 95% CI: 1.16, 4.28), and attitude towards sexual and reproductive health (AOR = 2.87; 95% CI: 1.94, 4.23) were statistically associated with utilization of sexual and reproductive health services. This study showed a low proportion of disabled students had utilized sexual and reproductive health services. The most utilized services were voluntary testing and counseling followed by family planning.

有关埃塞俄比亚残疾学生利用性健康和生殖健康服务水平的信息十分有限。因此,本研究旨在评估埃塞俄比亚部分大学中残疾学生利用性健康和生殖健康服务的程度及其相关因素。研究采用了基于机构的横断面研究设计。研究采用简单随机抽样法抽取参与者。数据录入和分析分别使用 EpiData 3.1 版和 SPSS 25.0 版。统计学意义以 p 值为 0.05 为准。在 557 名残疾参与者中,性健康和生殖健康服务的总体利用率为 36.22%。婚姻状况(AOR = 5.50;95% CI:2.64, 11.46)、讨论性健康和生殖健康问题(AOR = 3.84;95% CI:2.596, 5.689)、性健康和生殖健康知识(AOR = 2.23;95% CI:1.16, 4.28)以及对性健康和生殖健康的态度(AOR = 2.87;95% CI:1.94, 4.23)与性健康和生殖健康服务的利用率存在统计学相关性。这项研究表明,利用过性健康和生殖健康服务的残疾学生比例较低。使用最多的服务是自愿检测和咨询,其次是计划生育。
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引用次数: 0
Impression Formation Following Self-disclosure of an Invisible (Non-apparent) Disability to a Romantic Partner 向恋爱伴侣自我披露隐形(非显性)残疾后的印象形成
IF 1.5 4区 医学 Q3 REHABILITATION Pub Date : 2024-01-05 DOI: 10.1007/s11195-023-09829-4
Elie Mimoun, Meni Koslowsky, Daniella Margalit, Amichai Ben Ari

This study aimed to delve into the intricate dynamics of disclosing invisible disabilities within romantic relationships through the lens of Impression Management Theory. Specifically, we examined how disclosing an invisible disability influences the impression formed by the partner, as indicated by the willingness to continue the relationship. A total of 732 college students without disabilities were randomly assigned to read a scenario in which the main character was told of the current partner’s invisible disability (asthma, epilepsy, or schizophrenia), at different times of disclosure (second date/ three months into a relationship/six months into a relationship). Participants then completed the Positive and Negative Affect Schedule (PANAS) to measure their affective responses following the disclosure. Finally, they rated the main character’s degree of willingness to continue the relationship. Results indicate that negative affect mediated the association between disability type and relationship continuity willingness. Gender-based emotional responses varied, with disclosure timing moderating these effects. For women, revealing schizophrenia later in the relationship correlated with stronger negative emotions and a greater willingness of the partners to continue the relationship. These findings contribute to our comprehension of how disclosing invisible disabilities influences partner impressions, highlighting role of gender dynamics. By applying Impression Management Theory, we have shed light on the multifaceted nature of self-presentation and societal attitudes that shapes the dynamics of romantic relationships. Our findings hold practical implications for individuals navigating the disclosure of disabilities in intimate relationships, while also offering theoretical insights into the complex interplay between societal perceptions and individual experiences.

本研究旨在通过 "印象管理理论"(Impression Management Theory)的视角,深入探讨在恋爱关系中披露隐形残疾所带来的错综复杂的动态变化。具体来说,我们研究了披露隐形残疾是如何影响伴侣形成的印象的,这种印象表现在继续交往的意愿上。我们随机分配了 732 名无残疾的大学生来阅读一个场景,在这个场景中,主角被告知现任伴侣有隐形残疾(哮喘、癫痫或精神分裂症),并在不同的披露时间(第二次约会/恋爱三个月后/恋爱六个月后)进行披露。然后,参与者完成积极和消极情绪表(PANAS),以测量他们在披露后的情绪反应。最后,他们对主角继续交往的意愿程度进行评分。结果表明,负性情绪在残疾类型和关系延续意愿之间起到了中介作用。基于性别的情绪反应各不相同,披露时间也会调节这些影响。对于女性来说,在关系的后期披露精神分裂症与较强的负面情绪和伴侣继续保持关系的意愿相关。这些发现有助于我们理解披露隐形残疾是如何影响伴侣印象的,并突出了性别动态的作用。通过应用印象管理理论,我们揭示了影响恋爱关系动态的自我展示和社会态度的多面性。我们的研究结果对个人在亲密关系中披露残疾信息具有实际意义,同时也为社会观念和个人经历之间复杂的相互作用提供了理论见解。
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引用次数: 0
Disease Burden and Sexual Life Experiences of Individuals with Chronic Obstructive Pulmonary Disease: A Phenomenological Study 慢性阻塞性肺病患者的疾病负担和性生活经历:现象学研究
IF 1.5 4区 医学 Q3 REHABILITATION Pub Date : 2024-01-04 DOI: 10.1007/s11195-023-09821-y
Sevda Uzun, Sema Toker, İmren Erer

This study aimed to examine the disease burden encountered by individuals with COPD, with a comprehensive investigation of the effect of the disease on sexual life. In this study, a phenomenological research design, a qualitative research type, was employed. The study involved 36 individuals diagnosed with COPD. The data collection process involved conducting individual, face-to-face interviews. Colaizzi’s phenomenological analysis method was utilized for the data analysis. The analysis of the data yielded two categories (burdens of the disease and sexual life) and six primary themes (physical effects, mental effects, social effects, difficulties during sexual activity, the spouse’s perspective on the problems, and dealing with sexual problems). The outcomes of this study highlighted the significant burden of COPD on patients and its adverse impact on their sexual lives. Given the complex nature of COPD, a thorough and professional assessment of patients’ sexual well-being, coupled with timely identification of sexual dysfunctions and appropriate interventions, is of utmost importance.

本研究旨在探讨慢性阻塞性肺病患者所承受的疾病负担,全面调查疾病对性生活的影响。本研究采用了定性研究中的现象学研究设计。研究涉及 36 名慢性阻塞性肺病患者。数据收集过程包括进行面对面的个人访谈。数据分析采用了科莱兹的现象学分析方法。数据分析得出了两个类别(疾病负担和性生活)和六个主要主题(身体影响、精神影响、社会影响、性活动中的困难、配偶对问题的看法以及处理性问题)。这项研究的结果凸显了慢性阻塞性肺病给患者带来的沉重负担以及对他们性生活的不利影响。鉴于慢性阻塞性肺病的复杂性,对患者的性健康进行全面、专业的评估,及时发现性功能障碍并采取适当的干预措施至关重要。
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引用次数: 0
Evaluation of the Effectiveness of Sexual Health Education Given to Parents of Children with Disabilities 对残疾儿童家长进行性健康教育的效果评估
IF 1.5 4区 医学 Q3 REHABILITATION Pub Date : 2023-12-21 DOI: 10.1007/s11195-023-09826-7
Gökçenur Gündoğdu, Meltem Kürtüncü, Türkan Akyol Güner

Children with disabilities and their families should receive education appropriate for the needs of children with disabilities in order for them to lead a more independent life. The aim of this study is to evaluate the effectiveness of the sexual health education given to the parents of children with disabilities aged 10–19. This study, which used an experimental design with a pre-test and post-test control group, was conducted with the parents of children with disabilities enrolled at the Kozlu Disabled Association in Kozlu, district of Zonguldak province. The sample of the study consisted of 47 parents who met the inclusion criteria. Parents were assigned to the experimental (n = 23) and control (n = 24) groups with the randomization method. The data of the study were collected using “Introductory Information Form”, “Parental Self-Efficacy Scale” and “Knowledge Assessment Questionnaire”. Sexual health education including 8 modules and lasting for 8 weeks was given to the parents in the experimental group once a week for 30–45 min. While the mean score of the Parental Self-Efficacy Scale of the experimental group was 55.50 ± 23.16 before the education, it increased to 97.17 ± 7.88 after the education, and a statistically significant relationship was found between the two measurements (p < 0.05). When the scores of the Knowledge Assessment Questionnaire of the experimental group were evaluated after the education, the sub-dimension scores of the Self-care Knowledge, Sexual Behavior Control Knowledge, Sexual Abuse Knowledge and Communication Knowledge were determined to be statistically significant (p < 0.05). It was concluded in the study that the sexual health education given to parents of children with disabilities was effective in increasing the level of parental self-efficacy and sexual health knowledge.

残疾儿童及其家庭应接受适合残疾儿童需要的教育,以便他们过上更加独立的生活。本研究旨在评估为 10-19 岁残疾儿童的父母提供性健康教育的效果。本研究采用实验设计,分为前测对照组和后测对照组,对象是宗古尔达克省科兹卢区科兹卢残疾人协会的残疾儿童家长。研究样本包括符合纳入标准的 47 名家长。家长被随机分配到实验组(23 人)和对照组(24 人)。研究数据通过 "介绍信息表"、"家长自我效能感量表 "和 "知识评估问卷 "收集。实验组的家长每周接受一次为期 8 周、包括 8 个单元的性健康教育,每次 30-45 分钟。教育前,实验组家长的 "家长自我效能感量表 "平均得分为(55.50±23.16)分,教育后则增至(97.17±7.88)分,两项测量之间存在显著的统计学关系(p <0.05)。教育后对实验组的知识评估问卷得分进行评估,发现自我保健知识、性行为控制知识、性虐待知识和沟通知识的分维度得分均有统计学意义(p <0.05)。研究认为,对残疾儿童家长进行性健康教育能有效提高家长的自我效能感水平和性健康知识水平。
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引用次数: 0
Positive and Negative Sexual Cognitions of Autistic Individuals 自闭症患者的积极和消极性认知
IF 1.5 4区 医学 Q3 REHABILITATION Pub Date : 2023-12-16 DOI: 10.1007/s11195-023-09824-9

Abstract

Sexual cognitions are an important aspect of sexual well-being for all individuals; however, little is known about the sexual cognitions of autistic individuals. Therefore, our study aimed to explore the diversity, content, and frequencies of positive (PSC) and negative (NSC) sexual cognitions in this population. A total of 332 participants (57.5% women; 42.5% men) between the ages of 21 and 73 (M = 37.72, SD = 11.15) completed an online survey. Our results showed that almost all participants had experienced both positive and negative sexual cognitions. PSC were more diverse and experienced with greater frequency than NSC. In addition, gender (self-identified as being male) and having had relationship experience were associated with greater diversity and frequency of PSC, but not NSC. In terms of content, the most common experienced sexual cognitions for both men and women were intimacy-related. The men experienced 22 of the 56 PSC and 3 of the 56 NSC significantly more frequently than did the women; there were no cognitions that the women experienced more frequently than the men. A comparison to the results of studies of sexual cognitions among neurotypical individuals suggests that autistic individuals experience sexual cognitions in much the same way as their peers. However, sexual cognitions occur slightly less frequently and are somewhat less diverse. Nonetheless, the way in which they are experienced, and the content of the most frequent cognitions (mainly PSC about intimacy) may be indicative of sexual well-being.

摘要 性认知是所有人性健康的一个重要方面,然而,人们对自闭症患者的性认知知之甚少。因此,我们的研究旨在探讨自闭症患者积极(PSC)和消极(NSC)性认知的多样性、内容和频率。共有 332 名年龄在 21 岁至 73 岁之间的参与者(女性占 57.5%;男性占 42.5%)(M=37.72,SD=11.15)完成了在线调查。结果显示,几乎所有参与者都经历过积极和消极的性认知。与消极性认知相比,积极性认知更加多样化,经历的频率也更高。此外,性别(自我认同为男性)和恋爱经历与 PSC 的多样性和频率有关,但与 NSC 无关。就内容而言,男性和女性最常见的性认知都与亲密关系有关。在 56 种 PSC 和 56 种 NSC 中,男性经历 22 种和 3 种的频率明显高于女性;没有任何一种认知是女性经历的频率高于男性的。与神经畸形人的性认知研究结果相比,自闭症患者的性认知与他们的同龄人大致相同。不过,自闭症患者的性认知出现的频率略低,种类也较少。尽管如此,自闭症患者体验性认知的方式,以及最常见的认知内容(主要是关于亲密关系的 PSC),都可能表明他们的性福程度。
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引用次数: 0
Sexual Quality of Life and Sexual Problems of Women with Gynecological Cancer: Evaluation According to Treatment Methods and Cancer Types 妇科癌症患者的性生活质量和性问题:根据治疗方法和癌症类型的评估
IF 1.5 4区 医学 Q3 REHABILITATION Pub Date : 2023-11-30 DOI: 10.1007/s11195-023-09820-z
Sibel Delican, Zeynep Güngörmüş

The aim of current study was to examine the sexual quality of life and problems of women with gynecological cancer in a Turkish Muslim population to evaluate them according to their treatment modalities. This study was conducted on 350 women who voluntarily accepted to participate in the study and were treated for gynecological cancer. Patients; who are aged from 18 to 65 years, have partners, sexually active, completed first treatment, not in the terminal period, without neurological and psychiatric disorders were included in the study. The research data were collected by using the descriptive characteristics form and Sexual Quality of Life Scale-Female (SQOLS-F). The quality of sexual life of women with gynecological cancer was very low (34.1 ± 10.2). The sexual quality of life of women with gynecological cancer differed according to the treatment methods and cancer types. Sexual quality of life was higher in those who received surgical treatment than those who received radiotherapy and chemotherapy treatment. In addition, pathological symptoms were observed more intensely, especially in the chemotherapy group. In addition, pathological symptoms were observed more intensely, especially in the chemotherapy group. In addition, most of the women did not receive information about sexuality from the health personnel during the treatment process and did not share their sexual problems with the health personnel.

本研究的目的是检查土耳其穆斯林人口中患有妇科癌症的妇女的性生活质量和问题,并根据其治疗方式对其进行评估。这项研究是对350名自愿接受研究并接受妇科癌症治疗的妇女进行的。病人;年龄在18岁到65岁之间,有伴侣,性生活活跃,完成了第一次治疗,不在终末期,没有神经和精神疾病的人被纳入研究。研究数据采用描述性特征表和性生活质量量表-女性(SQOLS-F)收集。妇科肿瘤患者性生活质量极低(34.1±10.2)。妇科癌症患者的性生活质量因治疗方法和癌症类型的不同而不同。接受手术治疗的患者性生活质量高于接受放疗和化疗的患者。此外,病理症状更强烈,尤其是化疗组。此外,病理症状更强烈,尤其是化疗组。此外,大多数妇女在治疗过程中没有从保健人员那里得到关于性的信息,也没有与保健人员分享她们的性问题。
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引用次数: 0
The Predictive Role of Health Literacy in the Sexual Dysfunction of Women with Coronary Artery Disease: A Cross-Sectional Study 健康素养对冠心病女性性功能障碍的预测作用:一项横断面研究
IF 1.5 4区 医学 Q3 REHABILITATION Pub Date : 2023-11-25 DOI: 10.1007/s11195-023-09819-6
Hakimeh Vahedparast, Parvin Zandi Rad, Razieh Bagherzadeh, Tayebeh Gharibi

Coronary artery disease (CAD) is one of the most common chronic diseases whose complications harm sexual functioning. Given the importance of sexual functioning and the effects of CAD on it, it is important to identify the factors that can affect sexual functioning. This study aimed to determine the predictive role of health literacy in the sexual functioning of women with CAD. This cross-sectional study was conducted in 2021 on 385 women with CAD who visited comprehensive health centers and doctors’ offices in Bushehr Province (Iran) and were selected via convenience sampling. The data were collected using a demographic information form, The Adults Functional Health Literacy questionnaire, and the Female Sexual Function Index. The data were then analyzed using descriptive statistics and logistic regression at the significance level of < 0.05. The mean age of the participants was 52.19 ± 12.15. The mean health literacy score was 72.25 + 24.18. The mean sexual function score was 17.75 + 8.80. Thirty-five percent of the participants had severe or moderate sexual dysfunction. The results showed that high health literacy reduces the risk of overall sexual dysfunction (p = 0.006). The results showed that high health literacy reduces the risk of overall sexual dysfunction and most of its domains. Healthcare and health education specialists should improve the health literacy of women with CAD by using simple and understandable training. It is necessary to conduct prospective studies to determine the causal relationship between the studied variables and confirm the results of the present study.

冠状动脉疾病(CAD)是最常见的慢性疾病之一,其并发症损害性功能。鉴于性功能的重要性和CAD对性功能的影响,确定影响性功能的因素是很重要的。本研究旨在确定健康素养对CAD女性性功能的预测作用。这项横断面研究于2021年对在布什尔省(伊朗)访问综合保健中心和医生办公室的385名CAD妇女进行了研究,并通过方便抽样进行了选择。数据采用人口统计信息表、成人功能健康素养问卷和女性性功能指数收集。采用描述性统计和logistic回归分析,显著性水平为< 0.05。参与者平均年龄为52.19±12.15岁。平均健康素养得分为72.25 + 24.18。性功能评分平均为17.75 + 8.80。35%的参与者有严重或中度性功能障碍。结果显示,高健康素养降低了整体性功能障碍的风险(p = 0.006)。结果表明,较高的健康素养降低了整体性功能障碍及其大部分领域的风险。保健和健康教育专家应通过简单易懂的培训提高冠心病妇女的健康素养。有必要进行前瞻性研究,以确定所研究变量之间的因果关系,并确认本研究的结果。
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引用次数: 0
Co-Design of an Educational Toolkit on Sexuality for Autistic Adolescents and Young Adults 参与设计自闭症青少年及青少年性教育工具
4区 医学 Q3 REHABILITATION Pub Date : 2023-11-13 DOI: 10.1007/s11195-023-09816-9
William Picard-Pageau, Ernesto Morales, Marie-Pierre Gagnon, Alicia Ruiz-Rodrigo
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引用次数: 0
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Sexuality and Disability
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