Pub Date : 2020-07-01DOI: 10.1097/tld.0000000000000225
{"title":"Palliative Care and Speech–Language Pathologists: From Training to Practice","authors":"","doi":"10.1097/tld.0000000000000225","DOIUrl":"https://doi.org/10.1097/tld.0000000000000225","url":null,"abstract":"","PeriodicalId":51604,"journal":{"name":"Topics in Language Disorders","volume":" ","pages":""},"PeriodicalIF":1.4,"publicationDate":"2020-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43196885","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-07-01DOI: 10.1097/TLD.0000000000000224
N. Mahendra, M. Alonso
Palliative care is specialized medical care offered to persons with serious health conditions, with the goal to relieve or prevent pain and suffering, to manage burdensome symptoms, and to optimize as much as possible the quality of life of patients and their families (Institute of Medicine, 2015) Speech–language pathologists (SLPs) are not always recognized as key members of palliative care teams and speech–language pathology students seldom receive training in palliative care Yet, SLPs often have an influential role in ensuring that patients with cognitive–communicative and swallowing impairments have the best possible communicative access and quality of life, regardless of the severity of their diagnosis The purpose of this study is to report on 110 speech pathology students' awareness and knowledge about palliative care concepts and of the role of SLPs in palliative care This study utilized a participatory design approach for survey development to study student awareness and knowledge of select palliative care topics Study results revealed SLP students' high exposure to the construct of quality of life, with notably limited knowledge of and exposure to palliative care and advance directives Furthermore, SLP students frequently reported being familiar with a concept or term and yet were unable to explain the concept accurately These data were analyzed and offer critical insights into curriculum design for training SLP students about palliative care
{"title":"Knowledge of Palliative Care and Advance Directives Among Speech–Language Pathology Students","authors":"N. Mahendra, M. Alonso","doi":"10.1097/TLD.0000000000000224","DOIUrl":"https://doi.org/10.1097/TLD.0000000000000224","url":null,"abstract":"Palliative care is specialized medical care offered to persons with serious health conditions, with the goal to relieve or prevent pain and suffering, to manage burdensome symptoms, and to optimize as much as possible the quality of life of patients and their families (Institute of Medicine, 2015) Speech–language pathologists (SLPs) are not always recognized as key members of palliative care teams and speech–language pathology students seldom receive training in palliative care Yet, SLPs often have an influential role in ensuring that patients with cognitive–communicative and swallowing impairments have the best possible communicative access and quality of life, regardless of the severity of their diagnosis The purpose of this study is to report on 110 speech pathology students' awareness and knowledge about palliative care concepts and of the role of SLPs in palliative care This study utilized a participatory design approach for survey development to study student awareness and knowledge of select palliative care topics Study results revealed SLP students' high exposure to the construct of quality of life, with notably limited knowledge of and exposure to palliative care and advance directives Furthermore, SLP students frequently reported being familiar with a concept or term and yet were unable to explain the concept accurately These data were analyzed and offer critical insights into curriculum design for training SLP students about palliative care","PeriodicalId":51604,"journal":{"name":"Topics in Language Disorders","volume":" ","pages":""},"PeriodicalIF":1.4,"publicationDate":"2020-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1097/TLD.0000000000000224","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49519943","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-07-01DOI: 10.1097/TLD.0000000000000221
N. Mahendra, Ashlyn Tadokoro
Purpose: Nonfluent primary progressive aphasia (nfvPPA) is an established language-led dementia and a known variant of frontotemporal degeneration. The purpose of this article is to report the trajectory of a single case, AC, diagnosed with nfvPPA. We describe a range of interventions offered to AC over 3 years that aimed to support her communicative function, social participation, sense of identity, and emotional well-being. We offer reflections on how these interventions align with palliative care principles, highlighting their value for guiding communication and life participation interventions for persons with nfvPPA. Method: This study used a longitudinal analysis of impairment progression, traditional outcome measures, patient-reported outcome measures, and narrative description to report on patient and family response to interventions. Results: Individual and group interventions are critical for addressing the progressive communication impairments and life participation restrictions for persons affected by nfvPPA. Palliative care principles have intuitive appeal for informing the selection of intervention approaches while focusing on managing symptoms, upholding patient autonomy and dignity, and enhancing quality of life throughout the course of rapidly progressive conditions like primary progressive aphasia. Discussion/Conclusion: Speech–language pathologist-led interventions, grounded in palliative care principles, can optimize communicative function and quality of life for persons with nfvPPA.
{"title":"Nonfluent Primary Progressive Aphasia","authors":"N. Mahendra, Ashlyn Tadokoro","doi":"10.1097/TLD.0000000000000221","DOIUrl":"https://doi.org/10.1097/TLD.0000000000000221","url":null,"abstract":"Purpose: Nonfluent primary progressive aphasia (nfvPPA) is an established language-led dementia and a known variant of frontotemporal degeneration. The purpose of this article is to report the trajectory of a single case, AC, diagnosed with nfvPPA. We describe a range of interventions offered to AC over 3 years that aimed to support her communicative function, social participation, sense of identity, and emotional well-being. We offer reflections on how these interventions align with palliative care principles, highlighting their value for guiding communication and life participation interventions for persons with nfvPPA. Method: This study used a longitudinal analysis of impairment progression, traditional outcome measures, patient-reported outcome measures, and narrative description to report on patient and family response to interventions. Results: Individual and group interventions are critical for addressing the progressive communication impairments and life participation restrictions for persons affected by nfvPPA. Palliative care principles have intuitive appeal for informing the selection of intervention approaches while focusing on managing symptoms, upholding patient autonomy and dignity, and enhancing quality of life throughout the course of rapidly progressive conditions like primary progressive aphasia. Discussion/Conclusion: Speech–language pathologist-led interventions, grounded in palliative care principles, can optimize communicative function and quality of life for persons with nfvPPA.","PeriodicalId":51604,"journal":{"name":"Topics in Language Disorders","volume":"40 1","pages":"E7 - E24"},"PeriodicalIF":1.4,"publicationDate":"2020-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1097/TLD.0000000000000221","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48877025","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-07-01DOI: 10.1097/tld.0000000000000230
N. Nelson
{"title":"A Great Run: Remembering Dr. Joel Stark (November 18, 1930–May 4, 2020)","authors":"N. Nelson","doi":"10.1097/tld.0000000000000230","DOIUrl":"https://doi.org/10.1097/tld.0000000000000230","url":null,"abstract":"","PeriodicalId":51604,"journal":{"name":"Topics in Language Disorders","volume":" ","pages":""},"PeriodicalIF":1.4,"publicationDate":"2020-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43298788","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-07-01DOI: 10.1097/TLD.0000000000000219
Amanda Stead, Kyla Dirks, Melissa Fryer, S. Wong
Speech–language pathologists often lack preparation for palliative care practice and this lack of training can lead to poor outcomes for patients. Lack of training can additionally lead to burnout and compassion fatigue in clinicians. Careful implementation of training is necessary to increase the knowledge base for palliative practice and careful attention must also be paid to the emotional component of end-of-life care. The history and current practice of palliative care education across health care disciplines are examined. Finally, a pilot study evaluating a course module on palliative and end-of-life care for speech–language pathologist graduate students is presented. Results from the pilot indicate that students improved both their knowledge and comfort related to issues of end-of-life care topics. In addition, students responded positively to the opportunity to learn about the topic and the instructional strategies used within the course module.
{"title":"Training Future Speech–Language Pathologists for Work in End-of-Life and Palliative Care","authors":"Amanda Stead, Kyla Dirks, Melissa Fryer, S. Wong","doi":"10.1097/TLD.0000000000000219","DOIUrl":"https://doi.org/10.1097/TLD.0000000000000219","url":null,"abstract":"Speech–language pathologists often lack preparation for palliative care practice and this lack of training can lead to poor outcomes for patients. Lack of training can additionally lead to burnout and compassion fatigue in clinicians. Careful implementation of training is necessary to increase the knowledge base for palliative practice and careful attention must also be paid to the emotional component of end-of-life care. The history and current practice of palliative care education across health care disciplines are examined. Finally, a pilot study evaluating a course module on palliative and end-of-life care for speech–language pathologist graduate students is presented. Results from the pilot indicate that students improved both their knowledge and comfort related to issues of end-of-life care topics. In addition, students responded positively to the opportunity to learn about the topic and the instructional strategies used within the course module.","PeriodicalId":51604,"journal":{"name":"Topics in Language Disorders","volume":"40 1","pages":"233 - 247"},"PeriodicalIF":1.4,"publicationDate":"2020-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1097/TLD.0000000000000219","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44508991","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-07-01DOI: 10.1097/TLD.0000000000000220
Robin D. Pollens
The client's ability to communicate is key to providing quality palliative end-of-life care. A speech–language pathologist (SLP) can facilitate the patient's ability to communicate concerns or preferences in order to (1) improve the health care team's ability to manage symptoms and engage in end-of-life discussions, and (2) support the patient and family's ability to maintain social connectivity. This article describes methods for implementing speech–language pathology communication consults in palliative or end-of life care. The information is illustrated with patient vignettes and supported by literature resources. Specific participation goals and outcomes illustrate the impact of the SLP treatment on the interprofessional team palliative care outcomes. Approaches to advocating for speech–language pathology communication consults in palliative end-of-life care are highlighted. Ongoing research and advocacy may result in valuable skilled speech–language pathology services for patients with communication barriers in palliative or end-of-life care.
{"title":"Facilitating Client Ability to Communicate in Palliative End-of-Life Care","authors":"Robin D. Pollens","doi":"10.1097/TLD.0000000000000220","DOIUrl":"https://doi.org/10.1097/TLD.0000000000000220","url":null,"abstract":"The client's ability to communicate is key to providing quality palliative end-of-life care. A speech–language pathologist (SLP) can facilitate the patient's ability to communicate concerns or preferences in order to (1) improve the health care team's ability to manage symptoms and engage in end-of-life discussions, and (2) support the patient and family's ability to maintain social connectivity. This article describes methods for implementing speech–language pathology communication consults in palliative or end-of life care. The information is illustrated with patient vignettes and supported by literature resources. Specific participation goals and outcomes illustrate the impact of the SLP treatment on the interprofessional team palliative care outcomes. Approaches to advocating for speech–language pathology communication consults in palliative end-of-life care are highlighted. Ongoing research and advocacy may result in valuable skilled speech–language pathology services for patients with communication barriers in palliative or end-of-life care.","PeriodicalId":51604,"journal":{"name":"Topics in Language Disorders","volume":"40 1","pages":"264 - 277"},"PeriodicalIF":1.4,"publicationDate":"2020-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1097/TLD.0000000000000220","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47248007","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-06-01DOI: 10.1097/TLD.0000000000000226
M. Ireland, S. Mcleod, K. Farquharson, Kathryn Crowe
More than half of U.S. speech–language pathologists (SLPs) currently practice in the school setting and 92.6% of SLPs who work in schools provide services focused on children’s speech sound production (articulation and/or phonology). This article describes evaluation and eligibility requirements for children with speech sound disorders in the United States focusing on four sources of information: (1) federal requirements, specifically the Individuals with Disabilities Education Act (IDEA), (2) state and local requirements and guidance, (3) other sources of guidance (e.g., from professional associations), and (4) research. To be eligible to receive services under the IDEA, three conditions must be met: (1) the student has an impairment, (2) that impairment results in an educational impact, and (3) the student requires specially designed instruction to make progress. Civil rights and diversity (cultural, linguistic, and gender) within these contexts also are considered. Case examples are provided to highlight eligibility criteria and to guide SLP practice. The information and examples provided in this article will enable SLPs in the United States to navigate IDEA evaluation and eligibility requirements to ensure children with speech sound disorders who are eligible under the IDEA receive appropriate services.
{"title":"Evaluating Children in U.S. Public Schools With Speech Sound Disorders","authors":"M. Ireland, S. Mcleod, K. Farquharson, Kathryn Crowe","doi":"10.1097/TLD.0000000000000226","DOIUrl":"https://doi.org/10.1097/TLD.0000000000000226","url":null,"abstract":"More than half of U.S. speech–language pathologists (SLPs) currently practice in the school setting and 92.6% of SLPs who work in schools provide services focused on children’s speech sound production (articulation and/or phonology). This article describes evaluation and eligibility requirements for children with speech sound disorders in the United States focusing on four sources of information: (1) federal requirements, specifically the Individuals with Disabilities Education Act (IDEA), (2) state and local requirements and guidance, (3) other sources of guidance (e.g., from professional associations), and (4) research. To be eligible to receive services under the IDEA, three conditions must be met: (1) the student has an impairment, (2) that impairment results in an educational impact, and (3) the student requires specially designed instruction to make progress. Civil rights and diversity (cultural, linguistic, and gender) within these contexts also are considered. Case examples are provided to highlight eligibility criteria and to guide SLP practice. The information and examples provided in this article will enable SLPs in the United States to navigate IDEA evaluation and eligibility requirements to ensure children with speech sound disorders who are eligible under the IDEA receive appropriate services.","PeriodicalId":51604,"journal":{"name":"Topics in Language Disorders","volume":" ","pages":""},"PeriodicalIF":1.4,"publicationDate":"2020-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1097/TLD.0000000000000226","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43726447","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-04-01DOI: 10.1097/TLD.0000000000000214
S. Eisenberg
Grammar is an important goal area for children with language impairment. The current article considers the use of General Language Performance Measures (GLPMs) to assess outcomes for this basic goal area and for 3 intermediate grammar goals that contribute to children’s developing ability to construct increasingly longer and more complex sentences: production of word combinations, production of sentences with required and optional constituents, and production of complex sentences. These goals are very important because they address a significant deficit area for children with language impairment and enable these children to increase the informativeness of their utterances. Using GLPMs in addition to session data and probes enables speech–language pathologists to determine whether these forms are being incorporated into conversational speech.
{"title":"Using General Language Performance Measures to Assess Grammar Learning","authors":"S. Eisenberg","doi":"10.1097/TLD.0000000000000214","DOIUrl":"https://doi.org/10.1097/TLD.0000000000000214","url":null,"abstract":"Grammar is an important goal area for children with language impairment. The current article considers the use of General Language Performance Measures (GLPMs) to assess outcomes for this basic goal area and for 3 intermediate grammar goals that contribute to children’s developing ability to construct increasingly longer and more complex sentences: production of word combinations, production of sentences with required and optional constituents, and production of complex sentences. These goals are very important because they address a significant deficit area for children with language impairment and enable these children to increase the informativeness of their utterances. Using GLPMs in addition to session data and probes enables speech–language pathologists to determine whether these forms are being incorporated into conversational speech.","PeriodicalId":51604,"journal":{"name":"Topics in Language Disorders","volume":" ","pages":""},"PeriodicalIF":1.4,"publicationDate":"2020-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1097/TLD.0000000000000214","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43718139","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-04-01DOI: 10.1097/tld.0000000000000208
Mark Guiberson
{"title":"Alternatives to Traditional Language Sample Measures with Emergent Bilingual Preschoolers.","authors":"Mark Guiberson","doi":"10.1097/tld.0000000000000208","DOIUrl":"https://doi.org/10.1097/tld.0000000000000208","url":null,"abstract":"","PeriodicalId":51604,"journal":{"name":"Topics in Language Disorders","volume":"40 2","pages":"E1-E6"},"PeriodicalIF":1.4,"publicationDate":"2020-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1097/tld.0000000000000208","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38820546","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-04-01DOI: 10.1097/tld.0000000000000215
{"title":"Language Sample Analysis: New and Neglected Clinical Applications","authors":"","doi":"10.1097/tld.0000000000000215","DOIUrl":"https://doi.org/10.1097/tld.0000000000000215","url":null,"abstract":"","PeriodicalId":51604,"journal":{"name":"Topics in Language Disorders","volume":" ","pages":""},"PeriodicalIF":1.4,"publicationDate":"2020-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47455635","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}