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Palliative Care and Speech–Language Pathologists: From Training to Practice 姑息治疗和语言病理学家:从培训到实践
IF 1.4 4区 医学 Q1 LINGUISTICS Pub Date : 2020-07-01 DOI: 10.1097/tld.0000000000000225
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引用次数: 0
Knowledge of Palliative Care and Advance Directives Among Speech–Language Pathology Students 言语-语言病理学专业学生的姑息治疗知识和高级指导
IF 1.4 4区 医学 Q1 LINGUISTICS Pub Date : 2020-07-01 DOI: 10.1097/TLD.0000000000000224
N. Mahendra, M. Alonso
Palliative care is specialized medical care offered to persons with serious health conditions, with the goal to relieve or prevent pain and suffering, to manage burdensome symptoms, and to optimize as much as possible the quality of life of patients and their families (Institute of Medicine, 2015) Speech–language pathologists (SLPs) are not always recognized as key members of palliative care teams and speech–language pathology students seldom receive training in palliative care Yet, SLPs often have an influential role in ensuring that patients with cognitive–communicative and swallowing impairments have the best possible communicative access and quality of life, regardless of the severity of their diagnosis The purpose of this study is to report on 110 speech pathology students' awareness and knowledge about palliative care concepts and of the role of SLPs in palliative care This study utilized a participatory design approach for survey development to study student awareness and knowledge of select palliative care topics Study results revealed SLP students' high exposure to the construct of quality of life, with notably limited knowledge of and exposure to palliative care and advance directives Furthermore, SLP students frequently reported being familiar with a concept or term and yet were unable to explain the concept accurately These data were analyzed and offer critical insights into curriculum design for training SLP students about palliative care
姑息治疗是为有严重健康状况的人提供的专业医疗护理,目的是减轻或预防疼痛和痛苦,控制沉重的症状,并尽可能优化患者及其家人的生活质量(医学研究所,2015)言语病理学家并不总是被认为是姑息治疗团队的关键成员,言语病理学学生很少接受姑息治疗培训。然而,SLP通常在确保认知-沟通和吞咽障碍患者获得尽可能好的沟通渠道和生活质量方面发挥着重要作用,本研究的目的是报告110名言语病理学学生对姑息治疗概念和SLP在姑息治疗中的作用的认识和知识学生对生活质量结构的高度接触,对姑息治疗和预先指示的了解和接触明显有限。此外,SLP学生经常报告说,他们熟悉一个概念或术语,但无法准确解释这个概念。这些数据经过分析,为SLP学生的姑息治疗培训课程设计提供了重要见解
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引用次数: 4
Nonfluent Primary Progressive Aphasia 非流质原发性进行性失语症
IF 1.4 4区 医学 Q1 LINGUISTICS Pub Date : 2020-07-01 DOI: 10.1097/TLD.0000000000000221
N. Mahendra, Ashlyn Tadokoro
Purpose: Nonfluent primary progressive aphasia (nfvPPA) is an established language-led dementia and a known variant of frontotemporal degeneration. The purpose of this article is to report the trajectory of a single case, AC, diagnosed with nfvPPA. We describe a range of interventions offered to AC over 3 years that aimed to support her communicative function, social participation, sense of identity, and emotional well-being. We offer reflections on how these interventions align with palliative care principles, highlighting their value for guiding communication and life participation interventions for persons with nfvPPA. Method: This study used a longitudinal analysis of impairment progression, traditional outcome measures, patient-reported outcome measures, and narrative description to report on patient and family response to interventions. Results: Individual and group interventions are critical for addressing the progressive communication impairments and life participation restrictions for persons affected by nfvPPA. Palliative care principles have intuitive appeal for informing the selection of intervention approaches while focusing on managing symptoms, upholding patient autonomy and dignity, and enhancing quality of life throughout the course of rapidly progressive conditions like primary progressive aphasia. Discussion/Conclusion: Speech–language pathologist-led interventions, grounded in palliative care principles, can optimize communicative function and quality of life for persons with nfvPPA.
目的:非流利性原发性进行性失语症(nfvPPA)是一种确定的语言导致的痴呆,也是额颞叶变性的一种已知变体。本文的目的是报告一例确诊为nfvPPA的AC的发展轨迹。我们描述了一系列的干预提供给AC超过3年,旨在支持她的沟通功能,社会参与,认同感和情感健康。我们对这些干预措施如何与姑息治疗原则保持一致进行了反思,强调了它们在指导nfvPPA患者沟通和生活参与干预方面的价值。方法:本研究采用损伤进展、传统结果测量、患者报告结果测量和叙述性描述的纵向分析来报告患者和家属对干预措施的反应。结果:个体和群体干预对于解决nfvPPA患者进行性沟通障碍和生活参与限制至关重要。姑息治疗原则具有直观的吸引力,可以为干预方法的选择提供信息,同时注重控制症状,维护患者的自主权和尊严,并在整个快速进展的疾病(如原发性进行性失语症)过程中提高生活质量。讨论/结论:基于姑息治疗原则的语言病理学家主导的干预可以优化nfvPPA患者的沟通功能和生活质量。
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引用次数: 5
A Great Run: Remembering Dr. Joel Stark (November 18, 1930–May 4, 2020) 伟大的奔跑:纪念乔尔·斯塔克博士(1930年11月18日- 2020年5月4日)
IF 1.4 4区 医学 Q1 LINGUISTICS Pub Date : 2020-07-01 DOI: 10.1097/tld.0000000000000230
N. Nelson
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引用次数: 0
Training Future Speech–Language Pathologists for Work in End-of-Life and Palliative Care 培训未来的言语病理学家从事临终关怀和姑息治疗工作
IF 1.4 4区 医学 Q1 LINGUISTICS Pub Date : 2020-07-01 DOI: 10.1097/TLD.0000000000000219
Amanda Stead, Kyla Dirks, Melissa Fryer, S. Wong
Speech–language pathologists often lack preparation for palliative care practice and this lack of training can lead to poor outcomes for patients. Lack of training can additionally lead to burnout and compassion fatigue in clinicians. Careful implementation of training is necessary to increase the knowledge base for palliative practice and careful attention must also be paid to the emotional component of end-of-life care. The history and current practice of palliative care education across health care disciplines are examined. Finally, a pilot study evaluating a course module on palliative and end-of-life care for speech–language pathologist graduate students is presented. Results from the pilot indicate that students improved both their knowledge and comfort related to issues of end-of-life care topics. In addition, students responded positively to the opportunity to learn about the topic and the instructional strategies used within the course module.
语言病理学家通常缺乏对姑息治疗实践的准备,这种缺乏培训可能导致患者预后不佳。缺乏培训还会导致临床医生倦怠和同情疲劳。认真实施培训是必要的,以增加姑息治疗实践的知识基础,还必须仔细注意临终关怀的情感成分。历史和当前的实践姑息治疗教育跨卫生保健学科进行审查。最后,一项试点研究评估课程模块的缓和和临终关怀的语言病理学研究生提出。从试点结果表明,学生提高了他们的知识和舒适度有关的临终关怀话题的问题。此外,学生们积极回应有机会了解主题和课程模块中使用的教学策略。
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引用次数: 5
Facilitating Client Ability to Communicate in Palliative End-of-Life Care 促进客户在临终关怀中的沟通能力
IF 1.4 4区 医学 Q1 LINGUISTICS Pub Date : 2020-07-01 DOI: 10.1097/TLD.0000000000000220
Robin D. Pollens
The client's ability to communicate is key to providing quality palliative end-of-life care. A speech–language pathologist (SLP) can facilitate the patient's ability to communicate concerns or preferences in order to (1) improve the health care team's ability to manage symptoms and engage in end-of-life discussions, and (2) support the patient and family's ability to maintain social connectivity. This article describes methods for implementing speech–language pathology communication consults in palliative or end-of life care. The information is illustrated with patient vignettes and supported by literature resources. Specific participation goals and outcomes illustrate the impact of the SLP treatment on the interprofessional team palliative care outcomes. Approaches to advocating for speech–language pathology communication consults in palliative end-of-life care are highlighted. Ongoing research and advocacy may result in valuable skilled speech–language pathology services for patients with communication barriers in palliative or end-of-life care.
客户的沟通能力是提供优质姑息性临终关怀的关键。言语病理学家(SLP)可以促进患者沟通担忧或偏好的能力,以(1)提高医疗团队管理症状和参与临终讨论的能力,以及(2)支持患者和家人保持社会联系的能力。本文描述了在姑息治疗或临终关怀中实施言语-语言病理学沟通咨询的方法。该信息以患者小插曲为例,并得到文献资源的支持。具体的参与目标和结果说明了SLP治疗对跨专业团队姑息治疗结果的影响。强调了在姑息性临终关怀中倡导言语-语言病理学沟通咨询的方法。正在进行的研究和宣传可能会为姑息治疗或临终关怀中存在沟通障碍的患者提供有价值的熟练言语病理学服务。
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引用次数: 7
Evaluating Children in U.S. Public Schools With Speech Sound Disorders 美国公立学校言语声音障碍儿童的评估
IF 1.4 4区 医学 Q1 LINGUISTICS Pub Date : 2020-06-01 DOI: 10.1097/TLD.0000000000000226
M. Ireland, S. Mcleod, K. Farquharson, Kathryn Crowe
More than half of U.S. speech–language pathologists (SLPs) currently practice in the school setting and 92.6% of SLPs who work in schools provide services focused on children’s speech sound production (articulation and/or phonology). This article describes evaluation and eligibility requirements for children with speech sound disorders in the United States focusing on four sources of information: (1) federal requirements, specifically the Individuals with Disabilities Education Act (IDEA), (2) state and local requirements and guidance, (3) other sources of guidance (e.g., from professional associations), and (4) research. To be eligible to receive services under the IDEA, three conditions must be met: (1) the student has an impairment, (2) that impairment results in an educational impact, and (3) the student requires specially designed instruction to make progress. Civil rights and diversity (cultural, linguistic, and gender) within these contexts also are considered. Case examples are provided to highlight eligibility criteria and to guide SLP practice. The information and examples provided in this article will enable SLPs in the United States to navigate IDEA evaluation and eligibility requirements to ensure children with speech sound disorders who are eligible under the IDEA receive appropriate services.
超过一半的美国语言病理学家(slp)目前在学校工作,92.6%的slp在学校工作,提供专注于儿童语音产生(发音和/或音韵学)的服务。本文介绍了美国对言语障碍儿童的评估和资格要求,重点关注四个信息来源:(1)联邦要求,特别是《残疾人教育法》(IDEA),(2)州和地方要求和指导,(3)其他指导来源(例如,来自专业协会),(4)研究。要有资格获得IDEA下的服务,必须满足三个条件:(1)学生有缺陷,(2)缺陷导致教育影响,以及(3)学生需要特别设计的指导才能取得进步。这些背景下的公民权利和多样性(文化、语言和性别)也被考虑在内。提供了一些案例,以突出资格标准并指导SLP实践。本文提供的信息和示例将使美国的特殊语言服务提供者能够指导IDEA评估和资格要求,以确保符合IDEA条件的语音障碍儿童获得适当的服务。
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引用次数: 4
Using General Language Performance Measures to Assess Grammar Learning 使用通用语言表现方法评估语法学习
IF 1.4 4区 医学 Q1 LINGUISTICS Pub Date : 2020-04-01 DOI: 10.1097/TLD.0000000000000214
S. Eisenberg
Grammar is an important goal area for children with language impairment. The current article considers the use of General Language Performance Measures (GLPMs) to assess outcomes for this basic goal area and for 3 intermediate grammar goals that contribute to children’s developing ability to construct increasingly longer and more complex sentences: production of word combinations, production of sentences with required and optional constituents, and production of complex sentences. These goals are very important because they address a significant deficit area for children with language impairment and enable these children to increase the informativeness of their utterances. Using GLPMs in addition to session data and probes enables speech–language pathologists to determine whether these forms are being incorporated into conversational speech.
语法是语言障碍儿童的一个重要目标领域。本文考虑使用通用语言表现测量(GLPM)来评估这一基本目标领域和三个中间语法目标的结果,这三个目标有助于儿童发展构建越来越长、越来越复杂的句子的能力:单词组合的产生、具有必需和可选成分的句子的产生、,以及复句的产生。这些目标非常重要,因为它们解决了语言障碍儿童的一个重要缺陷领域,并使这些儿童能够提高他们话语的信息性。除了会话数据和探针外,使用GLPM还可以使言语病理学家确定这些形式是否被纳入会话言语中。
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引用次数: 4
Alternatives to Traditional Language Sample Measures with Emergent Bilingual Preschoolers. 新兴双语学龄前儿童传统语言样本测量的替代方法。
IF 1.4 4区 医学 Q1 LINGUISTICS Pub Date : 2020-04-01 DOI: 10.1097/tld.0000000000000208
Mark Guiberson
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引用次数: 3
Language Sample Analysis: New and Neglected Clinical Applications 语言样本分析:新的和被忽视的临床应用
IF 1.4 4区 医学 Q1 LINGUISTICS Pub Date : 2020-04-01 DOI: 10.1097/tld.0000000000000215
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引用次数: 0
期刊
Topics in Language Disorders
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