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Quality of life as a basis for system change 将生活质量作为系统变革的基础
Q3 Social Sciences Pub Date : 2024-04-16 DOI: 10.1921/swssr.v25i1.2297
Nina Maxwell
his paper celebrates Peter Huxley’s contribution to placing quality of life at the centre of service planning and responses. Drawing on our research findings with 81 patients from Community Mental Health Teams, this paper argues that patient outcomes are improved when their voices are used to inform service design. Using the Manchester Short Assessment Quality of Life (MANSA), patients prioritised three of the eight domains: employment, financial stability and leisure activities. These findings were used to inform system change by addressing patient needs to increase their financial and social inclusion. This paper seeks to demonstrate the continued relevance of Peter’s work with reference to two examples: mental health needs arising from COVID-19 and the needs of criminally exploited children and young people. It concludes that Peter’s legacy provides the tools needed to ensure that services work together efficiently and effectively to address unmet needs and enhance quality of life
本文旨在纪念彼得-赫胥黎(Peter Huxley)将生活质量置于服务规划和响应中心的贡献。根据我们对社区心理健康小组 81 名患者的研究结果,本文认为,当患者的意见被用来指导服务设计时,患者的治疗效果会得到改善。通过使用曼彻斯特生活质量短期评估(MANSA),患者将八个领域中的三个领域放在了首位:就业、经济稳定和休闲活动。这些研究结果被用来为系统改革提供信息,满足患者的需求,提高他们的经济和社会融入程度。本文试图通过两个例子来证明彼得的工作仍具有现实意义:COVID-19 引起的精神健康需求以及被犯罪分子利用的儿童和青少年的需求。本文的结论是,彼得的遗产提供了必要的工具,可确保各项服务高效、有效地协同工作,以满足未得到满足的需求并提高生活质量。
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引用次数: 0
Breaking boundaries 打破界限
Q3 Social Sciences Pub Date : 2024-04-16 DOI: 10.1921/swssr.v25i1.2294
Ben Hannigan
This paper begins with an overview of Peter Huxley’s work across four areas: access to mental health care; understanding mental health and illness through a biosocial lens; social inclusion; and quality of life. Interconnected themes revealed in this body of research are then addressed, focusing particularly on: the commitment to interdisciplinarity; the value of conducting investigations which have demonstrable real-world application; measurement; and collegiality. The paper then moves to a personal reflection on Peter Huxley’s rock-solid support for growing a programme of mental health services research in Wales, before concluding with a forward-looking account of the lasting impact of his contribution
本文首先概述了彼得-赫胥黎在以下四个领域的工作:获得心理健康护理;通过生物社会视角理解心理健康和疾病;社会包容;以及生活质量。然后论述了这些研究中揭示的相互关联的主题,尤其侧重于:对跨学科性的承诺;开展具有可证实的实际应用价值的调查;测量;以及同事关系。随后,论文对彼得-赫胥黎为威尔士心理健康服务研究计划的发展所提供的坚定支持进行了个人反思,最后前瞻性地阐述了彼得-赫胥黎的贡献所产生的持久影响。
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引用次数: 0
Entering into, departing from and working within the psychiatric domain 进入、离开精神病学领域并在其中工作
Q3 Social Sciences Pub Date : 2024-04-16 DOI: 10.1921/swssr.v25i1.2295
Wulf Livingston
This article is a Festschrift contribution which maps out the similarities in the career trajectories of Professor Peter Huxley and myself. It begins by exploring the key considerations of our common profession; social work, and its relationship with mental health. It then explores how a social orientation has enable us to reframe understandings of dual diagnosis. The second half of the article then explores the key lesson learnt from these interactions. The findings of the contribution are centred around the need for better understanding of the social detriments of mental health and substance use. In reaching these conclusions, the article summarises the importance of seeing individuals for the problems they encounter and working with them in partnership to arrive at more empowered responses.
本文是彼得-赫胥黎教授的一篇纪念文章,描绘了彼得-赫胥黎教授和我在职业生涯中的相似之处。文章首先探讨了我们共同的职业--社会工作及其与心理健康的关系。然后,文章探讨了社会导向如何使我们重新理解双重诊断。文章的后半部分探讨了从这些互动中学到的关键经验。文章的结论集中在需要更好地理解精神健康和药物使用的社会危害。在得出这些结论的过程中,文章总结了看到个人所遇到的问题并与他们合作以达成更有力的应对措施的重要性。
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引用次数: 0
social inclusion of mental health service users in Brazil: Applying SCOPE-B scale 巴西心理健康服务使用者的社会融入:应用 SCOPE-B 量表
Q3 Social Sciences Pub Date : 2024-04-16 DOI: 10.1921/swssr.v25i1.2302
Jussara Santos, Peter Huxley
The study aimed to culturally adapt and validate the SCOPE scale for Brazil, focusing on measuring social inclusion among adults in community psychosocial centers in São Paulo. Utilizing a cross-sectional sample survey and the adapted SCOPE-B scale, it assessed 255 patients, revealing their low social inclusion levels. Findings highlighted the negative correlation between social inclusion and aspects like race, economic status, and employment, alongside a positive association with physical and mental health. The SCOPE-B scale demonstrated reliability, internal consistency, and construct validity, supporting its application in diverse cultural contexts
这项研究旨在根据巴西文化对 SCOPE 量表进行调整和验证,重点是测量圣保罗社区社会心理中心中成年人的社会融入程度。研究利用横断面抽样调查和改编后的 SCOPE-B 量表,对 255 名患者进行了评估,揭示了他们较低的社会包容水平。研究结果表明,社会包容度与种族、经济状况和就业等方面呈负相关,与身心健康呈正相关。SCOPE-B 量表具有可靠性、内部一致性和建构有效性,支持其在不同文化背景下的应用。
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引用次数: 0
Historical applications of the Goldberg and Huxley Pathway to Psychiatric Care Model 戈德伯格和赫胥黎精神病治疗路径模式的历史应用
Q3 Social Sciences Pub Date : 2024-04-16 DOI: 10.1921/swssr.v25i1.2293
John Hall
The Pathway to Psychiatric care Model was published by David Goldberg and Peter Huxley in 1980, based on practice within the British NHS from 1948, and on epidemiological data mostly from Europe and the USA. The ‘filters’ in the model were derived from assumptions about practice, and levels of care, at that period. This paper explores the implications of applying the model historically to patterns of English psychiatric care firstly from 1834/1845 to 1959, with parallel public, philanthropic and private systems of healthcare; and secondly to patterns of care after c.2000. The model is a powerful conceptual tool for understanding how mental health systems function, and the central importance of referral and transition decisions. This analysis points to the influence of changing ‘regulatory cultures’, at one remove from the immediate clinical encounter, and to the implications of a much wider range of mental health practitioners than in 1980
戴维-戈德堡(David Goldberg)和彼得-赫胥黎(Peter Huxley)于 1980 年发表了《精神病治疗路径模型》,该模型基于英国国民医疗服务体系自 1948 年以来的实践,以及主要来自欧洲和美国的流行病学数据。该模型中的 "过滤器 "是根据当时的实践假设和护理水平得出的。本文首先探讨了将该模型应用于 1834/1845 年至 1959 年英国精神病治疗模式的历史意义,当时英国的公共、慈善和私人医疗体系并行;其次探讨了约 2000 年后英国精神病治疗模式的历史意义。该模型是一个强大的概念工具,可用于理解心理健康系统如何运作,以及转诊和转院决策的核心重要性。这一分析指出了不断变化的 "监管文化 "的影响,它与直接的临床接触相去甚远,也指出了比 1980 年更广泛的心理健康从业人员的影响。
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引用次数: 0
Health Variations Programme revisited 重新审视健康差异计划
Q3 Social Sciences Pub Date : 2024-04-16 DOI: 10.1921/swssr.v25i1.2299
Anne Rogers
This contribution focuses on a period between 2000 and 2004 and centres on collaborative work funded by the ESRC health variations programme. This programme of research represented a shift in Peter’s work away from mental health in formal health settings towards a focus on the social determinants and amelioration of mental health problems. The social origins of mental health problems and how to tackle them has traditionally been a poor relation to the medical clinical institutional way in which most research and attention is placed. Thus this study marked a departure from the study of mental anguish in the closed systems of medicine including primary care to more open systems of the causes and potential solutions of mental health problems. It came at a point of optimism about regeneration and the social democratic social and welfare policies of new labour.
这篇论文的重点是 2000 年至 2004 年期间由欧洲科学研究委员会健康变异计划资助的合作工作。这项研究计划标志着彼得的工作重心从正规医疗机构的心理健康转向心理健康问题的社会决定因素和改善。心理健康问题的社会根源以及如何解决这些问题,历来与医疗临床机构的研究方式关系不大。因此,这项研究标志着从封闭的医学系统(包括初级保健)中对精神痛苦的研究转向对精神健康问题的成因和潜在解决办法的更开放的系统。它的出现正值对复兴和新劳工的社会民主社会和福利政策持乐观态度之时。
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引用次数: 0
Web-based mindfulness course for staff working in care homes in Wales for older people with dementia 为威尔士老年痴呆症护理院的工作人员开设的网络正念课程
Q3 Social Sciences Pub Date : 2024-04-16 DOI: 10.1921/swssr.v25i1.2300
Christine Baker, Michael S. Dennis, Muhammad Saifal Islam, Ian T Russell, Peter Huxley
Design and intervention: Before-and-after evaluation of web-based mindfulness trainingfor staff caring for people living with dementia in care homes. Stepped-wedge clusterrandomised design.Setting and participants: Random sample of 31 care homes for people living with dementia.Homes started mindfulness training at a random time over 35 weeks. From thesehomes 172 staff volunteered, 151 (88%) started training, and 111 (67%) completedquestionnaires after 20 weeks.Methods: Questionnaires completed at baseline, 8 and 20 weeks included job stress (WSI)and health and well-being (SF-12).Results: There were significant reductions in job stress of 0.07 (95% confidence interval[CI]: 0.02, 0.13) at 8 weeks and 0.06 (95% CI: 0.01, 0.11) at 20 weeks; and improvementsof 2.49 points (95% CI: 0.81, 4.17) in the SF-12 Mental Component Score at 8 weeksand 3.41 (95% CI: 1.88, 4.94) at 20 weeks.Conclusions: Web-based mindfulness training improved the psychological well-beingof care home staff and reduced their stress with small to moderate effects in both shortand medium term
设计与干预:对护理院中痴呆症患者的员工进行基于网络的正念培训的前后评估。阶梯式分组随机设计:31家痴呆症患者护理院的随机抽样。护理院在随机时间开始正念训练,为期35周。其中有 172 名员工自愿报名,151 人(88%)开始接受培训,111 人(67%)在 20 周后完成了问卷调查:方法:在基线、8 周和 20 周完成的问卷包括工作压力(WSI)和健康与幸福感(SF-12):结果:工作压力在 8 周时明显降低了 0.07 分(95% 置信区间[CI]:0.02, 0.13),在 20 周时明显降低了 0.06 分(95% 置信区间:0.01, 0.11);SF-12 心理成分得分在 8 周时提高了 2.49 分(95% 置信区间:0.81, 4.17),在 20 周时提高了 3.41 分(95% 置信区间:1.88, 4.94):基于网络的正念培训改善了疗养院员工的心理健康并减轻了他们的压力,在短期和中期都有小到中等的效果。
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引用次数: 0
Families and Recovery: Beyond clinical and social inclusion perspectives 家庭与康复:超越临床和社会包容视角
Q3 Social Sciences Pub Date : 2024-04-16 DOI: 10.1921/swssr.v25i1.2303
Robert Bland, Marianne Wyder
This paper explores the theoretical connections between principles of social inclusion and the recovery moment in mental health, identifying points of convergence and divergence. Social inclusion and recovery, while developing from different starting points, converge in recognizing the broader personal, family and community contexts, in which mental health problems emerge, and the impacts of those problems. A significant part of the context for recovery and measures to achieve social inclusion, remains the person’s family. Current models of recovery probably overlook the distress of families in the recovery journey. The paper considers the extent to which families have a role both in supporting the recovery of a family member, and in making their own recovery journey. The paper further suggests the need for ongoing research to explore the way the family recovery journey changes over time
本文探讨了社会包容原则与心理健康中的康复时刻之间的理论联系,确定了两者的共同点和分歧点。社会包容和康复虽然出发点不同,但在认识到精神健康问题产生的更广泛的个人、家庭和社区背景以及这些问题的影响方面是一致的。康复和实现社会包容措施的一个重要组成部分仍然是患者的家庭。目前的康复模式可能忽视了家庭在康复过程中的困扰。本文探讨了家庭在支持家庭成员康复和自身康复过程中的作用。本文进一步建议,有必要持续开展研究,探索家庭康复历程随时间推移而变化的方式。
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引用次数: 0
Improving mental health and wellbeing of communities in the modern world: New approaches 改善现代社会中社区的心理健康和福祉:新方法
Q3 Social Sciences Pub Date : 2024-04-16 DOI: 10.1921/swssr.v25i1.2304
Vimal Sharma
Services for people with mental disorders in the communities around the world remain less than satisfactory. This service gap can be reduced by enhancing skowledge and skills of frontline health workers in detection and managing mental ill-health of the people they serve. GMHAT/PC tool and training package, as outlined in the article, if used by primary care health workers, can be a way forward to implement community mental health programs.
世界各地社区为精神障碍患者提供的服务仍不尽如人意。要缩小这一服务差距,就必须提高一线医务工作者在检测和管理精神疾病方面的知识和技能。文章中概述的 GMHAT/PC 工具和培训教材,如果能被初级保健卫生工作者使用,将成为实施社区心理健康计划的一个前进方向。
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引用次数: 0
Measuring quality of life of people with severe mental illness: Evaluation of the Dutch version of the Manchester Short Assessment of Quality of Life (MANSA) in three different populations and a look into innovative opportunitiesMeasuring quality of life 衡量重症精神病患者的生活质量:在三种不同人群中对荷兰版曼彻斯特生活质量简短评估(MANSA)的评估以及对创新机会的展望衡量生活质量
Q3 Social Sciences Pub Date : 2024-04-16 DOI: 10.1921/swssr.v25i1.2301
Ch van Nieuwenhuizen, M. Annet Nugter, I. Bongers
Purpose. The Manchester Short Assessment of Quality of Life (MANSA; Priebe et al., 1999) is one of the most widely used QoL-measures in psychiatry. We aimed to investigate the psychometric properties of the Dutch version of the MANSA in a broad sample of people with severe mental illnesses (SMI). Method. QoL-data from three studies were available (total n = 806). Internal consistency and construct validity were assessed. Furthermore, it was investigated whether the 12 subjective MANSA-items were capable of discriminating between specific psychiatric disorders. Results. Cronbach’s alpha ranges from 0.78 to 0.85; overall convergent and divergent validity of the MANSA is good. For people with SMI, their financial situation, mental health and life as whole are the most important QoL-domains. Conclusions. The psychometric properties of the MANSA are good and the instrument can be used to discriminate between important QoL domains within people with SMI.  
目的曼彻斯特生活质量简短评估(MANSA;Priebe 等人,1999 年)是精神病学中使用最广泛的生活质量测量方法之一。我们旨在对荷兰版 MANSA 的心理测量特性进行调查,调查对象为重症精神病患者(SMI)。研究方法。我们获得了三项研究的 QoL 数据(总人数 = 806)。对其内部一致性和构建有效性进行了评估。此外,还调查了 MANSA 的 12 个主观项目是否能够区分特定的精神疾病。结果显示Cronbach'sα值在0.78至0.85之间;MANSA的整体收敛性和发散性良好。对于 SMI 患者来说,他们的财务状况、心理健康和整体生活是最重要的 QoL 领域。结论MANSA 的心理测量特性良好,可用于区分 SMI 患者的重要 QoL 领域。
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引用次数: 0
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Social Work and Social Sciences Review
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