Pub Date : 2020-11-05DOI: 10.32799/ijih.v15i1.34046
Jennifer Redvers
This research paper articulates a largely undefined cultural concept within mental health promotion and intervention, described as ‘land-based’ healing, which has been understood and taught for millennia by Indigenous knowledge holders. This knowledge is currently being revitalized by northern practitioners where ‘land’ is understood as a relational component of healing and wellbeing. Land-based activities such as harvesting, education, ceremony, recreation, and cultural-based counselling are all components of this integrative practice. Land-based practices are centered in Indigenous pedagogy and recognize that cultural identity is interwoven with and connected to ‘land.’ Directly cultivating this fundamental relationship, as assessed through a culturally relevant lens, increases positive mental health and wellness outcomes in Indigenous populations. In this study, qualitative narrative methods were used to document the experiences of eleven land-based program practitioners from the three northern territories in Canada. As experts in this field, practitioners’ narratives emphasized the need for a greater understanding and recognition of the value of land-based practices and programs within mainstream health. The development of working definitions, terminology, and framing of land-based practice as a common field are delineated from relevant literature and practitioner narratives in order to enable cross-cultural communication and understanding in psychology. Land-based healing is presented as a critical and culturally appropriate solution for mental health intervention and community resilience in northern Canada.
{"title":"“The land is a healer”: Perspectives on land-based healing from Indigenous practitioners in northern Canada","authors":"Jennifer Redvers","doi":"10.32799/ijih.v15i1.34046","DOIUrl":"https://doi.org/10.32799/ijih.v15i1.34046","url":null,"abstract":"This research paper articulates a largely undefined cultural concept within mental health promotion and intervention, described as ‘land-based’ healing, which has been understood and taught for millennia by Indigenous knowledge holders. This knowledge is currently being revitalized by northern practitioners where ‘land’ is understood as a relational component of healing and wellbeing. Land-based activities such as harvesting, education, ceremony, recreation, and cultural-based counselling are all components of this integrative practice. Land-based practices are centered in Indigenous pedagogy and recognize that cultural identity is interwoven with and connected to ‘land.’ Directly cultivating this fundamental relationship, as assessed through a culturally relevant lens, increases positive mental health and wellness outcomes in Indigenous populations. In this study, qualitative narrative methods were used to document the experiences of eleven land-based program practitioners from the three northern territories in Canada. As experts in this field, practitioners’ narratives emphasized the need for a greater understanding and recognition of the value of land-based practices and programs within mainstream health. The development of working definitions, terminology, and framing of land-based practice as a common field are delineated from relevant literature and practitioner narratives in order to enable cross-cultural communication and understanding in psychology. Land-based healing is presented as a critical and culturally appropriate solution for mental health intervention and community resilience in northern Canada.","PeriodicalId":54163,"journal":{"name":"International Journal of Indigenous Health","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2020-11-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43574027","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-11-05DOI: 10.32799/ijih.v15i1.34057
Sharon Yeung, H. Castleden, Pictou Landing First Nation
With over three decades of attention drawn to the health of Indigenous peoples in Canada and around the world, an outpouring of health research has been undertaken, much of which has emphasized the experience of disparity at the expense of recognizing strengths. In this case study, we challenge the damage-centred rhetoric of mainstream health research by reporting the findings of 20 qualitative interviews on community strength and health with members of Pictou Landing First Nation, a Mi’kmaw nation located in Nova Scotia, Canada. We then relate and compare these findings with the emerging conceptualization of Indigenous social capital, which is a concept that has been associated with positive health outcomes in a variety of contexts. Our findings indicate that Pictou Landing First Nation is strengthened by qualities of familiarity, reciprocity, safety, and solidarity, which are rooted in the value of family and embedded within a broader Mi’kmaw worldview. The nature of these strengths aligns in part with the concept of Indigenous social capital, which we suggest may be better harnessed to be a means for conducting strengths-based health research. To this end, our findings support the need for reworking social capital conceptualizations to more strongly centralize cultural identities and worldviews in order to authentically and comprehensively affirm Indigenous and decolonizing health research practices.
30多年来,人们对加拿大和世界各地土著人民的健康问题给予了关注,开展了大量的健康研究,其中许多研究强调了差距的经验,而忽视了优势。在本案例研究中,我们对主流健康研究中以损害为中心的修辞提出了挑战,报告了20次对Pictou Landing First Nation(位于加拿大新斯科舍省的一个米克马族民族)成员进行的社区力量和健康定性访谈的结果。然后,我们将这些发现与土著社会资本的新兴概念联系起来并进行比较,土著社会资本是一个在各种情况下与积极健康结果相关的概念。我们的研究结果表明,熟悉、互惠、安全和团结的品质强化了皮图登陆第一民族,这些品质根植于家庭的价值,并嵌入到更广泛的米克马世界观中。这些优势的性质在一定程度上与土著社会资本的概念相一致,我们认为可以更好地利用土著社会资本作为开展基于优势的健康研究的手段。为此,我们的研究结果支持需要重新设计社会资本概念,以更强烈地集中文化身份和世界观,以便真实和全面地肯定土著和非殖民化的健康研究实践。
{"title":"“We all know each other”: A Strengths-based Approach to Understanding Social Capital in Pictou Landing First Nation","authors":"Sharon Yeung, H. Castleden, Pictou Landing First Nation","doi":"10.32799/ijih.v15i1.34057","DOIUrl":"https://doi.org/10.32799/ijih.v15i1.34057","url":null,"abstract":"With over three decades of attention drawn to the health of Indigenous peoples in Canada and around the world, an outpouring of health research has been undertaken, much of which has emphasized the experience of disparity at the expense of recognizing strengths. In this case study, we challenge the damage-centred rhetoric of mainstream health research by reporting the findings of 20 qualitative interviews on community strength and health with members of Pictou Landing First Nation, a Mi’kmaw nation located in Nova Scotia, Canada. We then relate and compare these findings with the emerging conceptualization of Indigenous social capital, which is a concept that has been associated with positive health outcomes in a variety of contexts. Our findings indicate that Pictou Landing First Nation is strengthened by qualities of familiarity, reciprocity, safety, and solidarity, which are rooted in the value of family and embedded within a broader Mi’kmaw worldview. The nature of these strengths aligns in part with the concept of Indigenous social capital, which we suggest may be better harnessed to be a means for conducting strengths-based health research. To this end, our findings support the need for reworking social capital conceptualizations to more strongly centralize cultural identities and worldviews in order to authentically and comprehensively affirm Indigenous and decolonizing health research practices.","PeriodicalId":54163,"journal":{"name":"International Journal of Indigenous Health","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2020-11-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48881911","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-11-05DOI: 10.32799/ijih.v15i1.34976
S. Stewart
As an Indigenous person, I came into the world of Indigenous health scholarship in the 1990s with a personal view that focused on the strength and solutions of our peoples and our cultures. Over the next two decades in research and clinical environments, I observed how biomedicine remained firmly entrenched as the dominant model of care for Indigenous individuals and communities, with traditional knowledges and medicines as an aside or non- existent entirely. I have built my life’s work as a researcher and clinician in centering Indigenous knowledges and healing in both research and health care. Yet today in 2020, biomedicine and Western academic research still dismiss Indigenous knowledges and remain mostly in command of Indigenous health. There are wonderful pockets of Indigenous researchers and practitioners, supported by Indigenous communities that continue to have very little real autonomy or self- determination from colonialism, who are making a difference in Indigenous health by reducing health disparities, using our strengths such as culture, spirituality, medicines, the land, Elders, youth, and more. This issue highlights some of the work by researchers that are making a strong impact on Indigenous health, uplifting our communities.
{"title":"Addressing Strengths and Disparities in Indigenous Health","authors":"S. Stewart","doi":"10.32799/ijih.v15i1.34976","DOIUrl":"https://doi.org/10.32799/ijih.v15i1.34976","url":null,"abstract":"As an Indigenous person, I came into the world of Indigenous health scholarship in the 1990s with a personal view that focused on the strength and solutions of our peoples and our cultures. Over the next two decades in research and clinical environments, I observed how biomedicine remained firmly entrenched as the dominant model of care for Indigenous individuals and communities, with traditional knowledges and medicines as an aside or non- existent entirely. I have built my life’s work as a researcher and clinician in centering Indigenous knowledges and healing in both research and health care. Yet today in 2020, biomedicine and Western academic research still dismiss Indigenous knowledges and remain mostly in command of Indigenous health. There are wonderful pockets of Indigenous researchers and practitioners, supported by Indigenous communities that continue to have very little real autonomy or self- determination from colonialism, who are making a difference in Indigenous health by reducing health disparities, using our strengths such as culture, spirituality, medicines, the land, Elders, youth, and more. This issue highlights some of the work by researchers that are making a strong impact on Indigenous health, uplifting our communities.","PeriodicalId":54163,"journal":{"name":"International Journal of Indigenous Health","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2020-11-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42213993","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-11-05DOI: 10.32799/ijih.v15i1.34085
Diana Lewis, H. Castleden, R. Apostle, Sheila Francis, Kim Francis-Strickland
From 1967 until 2020, [Community] has had 85 million litres of pulp and paper mill effluent dumped every day into an estuary that borders the community. Despite long-term concerns about cancer in the community, a federal government appointed Joint Environmental Health Monitoring Committee, mandated to oversee the health of the community, has never addressed [Community] concerns. In this study we accessed the 2013 Canadian Cancer Registry microfile data, and using the standard geographical classification code, accessed the cancer data for [Community], and provided comparable data for all Nova Scotia First Nations, as well as the county, provincial, and national population level data. We determined that digestive organ cancers, respiratory organ cancers, male genital organ cancers, and urinary tract cancers are higher in [Community] than at all comparable levels. Female breast and genital organ cancers are lowest in [Community] than at all other comparable levels. We note the limitation of this study as not being able to capture cancer data for off-reserve members at the time of diagnosis and the lapse in availability of up-to-date CCR data. This study demonstrates that cancer data can be compiled for First Nation communities using the standard geographic code, and although not a comprehensive count of all diagnoses for the registered members of [Community], it is the first study to provide data for those who lived in [Community] at the time of diagnosis. Moreover, it highlights the lack of capacity (or will) by Joint Environmental Health Monitoring Committee to uphold their fiduciary duty.
{"title":"Governmental Fiduciary Failure in Indigenous Environmental Health Justice: The Case of Pictou Landing First Nation","authors":"Diana Lewis, H. Castleden, R. Apostle, Sheila Francis, Kim Francis-Strickland","doi":"10.32799/ijih.v15i1.34085","DOIUrl":"https://doi.org/10.32799/ijih.v15i1.34085","url":null,"abstract":"From 1967 until 2020, [Community] has had 85 million litres of pulp and paper mill effluent dumped every day into an estuary that borders the community. Despite long-term concerns about cancer in the community, a federal government appointed Joint Environmental Health Monitoring Committee, mandated to oversee the health of the community, has never addressed [Community] concerns. In this study we accessed the 2013 Canadian Cancer Registry microfile data, and using the standard geographical classification code, accessed the cancer data for [Community], and provided comparable data for all Nova Scotia First Nations, as well as the county, provincial, and national population level data. We determined that digestive organ cancers, respiratory organ cancers, male genital organ cancers, and urinary tract cancers are higher in [Community] than at all comparable levels. Female breast and genital organ cancers are lowest in [Community] than at all other comparable levels. We note the limitation of this study as not being able to capture cancer data for off-reserve members at the time of diagnosis and the lapse in availability of up-to-date CCR data. This study demonstrates that cancer data can be compiled for First Nation communities using the standard geographic code, and although not a comprehensive count of all diagnoses for the registered members of [Community], it is the first study to provide data for those who lived in [Community] at the time of diagnosis. Moreover, it highlights the lack of capacity (or will) by Joint Environmental Health Monitoring Committee to uphold their fiduciary duty.","PeriodicalId":54163,"journal":{"name":"International Journal of Indigenous Health","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2020-11-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49331156","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-11-05DOI: 10.32799/ijih.v15i1.33991
A. Gerlach, M. Sangster, Vandna Sinha, First Nations Health Consortium
In 2016 Canada was ordered to implement Jordan’s Principle by the Canadian Human Rights Tribunal. In response to the order Canada created the Child First Initiative to provide federal funding for provincial and territorial organizations supporting First Nation’s children’s health, education, and social service needs, including service coordination. In the shifting national landscape of Child First Initiative funding, there is a lack of evidence on how pediatric healthcare services are addressing the serious health and healthcare inequities experienced by many First Nations children. This paper describes the implementation of a Child First Initiative by the First Nations Health Consortium in the Alberta region, and research findings that provide insights into the complexity and challenges of advancing First Nations children’s health and health equity within the current federal Child First Initiative mandate in this province. This paper highlights the need for transformative pediatric healthcare approaches that expand beyond an individual and demand-driven system and orient towards practices and policies that are socially-responsive. Also, that First Nations leaders and Jordan’s Principle initiatives play a leading role in the design and delivery of all pediatric healthcare services with First Nation communities, families and children across Canada.
{"title":"Insights from a Jordan’s Principle Child First Initiative in Alberta","authors":"A. Gerlach, M. Sangster, Vandna Sinha, First Nations Health Consortium","doi":"10.32799/ijih.v15i1.33991","DOIUrl":"https://doi.org/10.32799/ijih.v15i1.33991","url":null,"abstract":"In 2016 Canada was ordered to implement Jordan’s Principle by the Canadian Human Rights Tribunal. In response to the order Canada created the Child First Initiative to provide federal funding for provincial and territorial organizations supporting First Nation’s children’s health, education, and social service needs, including service coordination. In the shifting national landscape of Child First Initiative funding, there is a lack of evidence on how pediatric healthcare services are addressing the serious health and healthcare inequities experienced by many First Nations children. This paper describes the implementation of a Child First Initiative by the First Nations Health Consortium in the Alberta region, and research findings that provide insights into the complexity and challenges of advancing First Nations children’s health and health equity within the current federal Child First Initiative mandate in this province. This paper highlights the need for transformative pediatric healthcare approaches that expand beyond an individual and demand-driven system and orient towards practices and policies that are socially-responsive. Also, that First Nations leaders and Jordan’s Principle initiatives play a leading role in the design and delivery of all pediatric healthcare services with First Nation communities, families and children across Canada.","PeriodicalId":54163,"journal":{"name":"International Journal of Indigenous Health","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2020-11-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41812602","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-11-05DOI: 10.32799/ijih.v15i1.33985
Nickoo Merati, J. Salsberg, Joey Saganash, Joshua Iserhoff, Kaitlynn Hester Moses, S. Law
Indigenous communities experience a greater burden of ill health than all other communities in Canada. Across the (Indigenous Region), all nine (Name) communities experience similar health challenges. In 2014, the (REGIONAL_BOARD) supported an initiative to stimulate local community prioritization for health change. While many challenges identified were specific to youth (10-29 years of age), youth’s perspectives in these reports to date have been limited. We sought to understand how (Indigenous) youth perceived youth health and their engagement in health and health planning across (Region). As part of a (REGIONAL_BOARD-University) partnership, this qualitative descriptive study adopted a community-based participatory research approach. Ten (Indigenous) youth participated in two focus groups, and five (Indigenous) youth coordinators participated in key informant interviews. Thematic analysis was conducted and inductive codes were grouped into themes. (Indigenous) participants characterized youth engagement into the following levels: participation in community and recreational activities; membership in youth councils at the local and regional levels; and, in decision-making as planners of health-related initiatives. (Indigenous) youth recommended greater use of social media, youth assemblies, and youth planners to strengthen their engagement and youth health in the region. Our findings revealed an interconnectedness between youth health and youth engagement; (Indigenous) youth described how they need to be engaged to be healthy, and need to be healthy to be engaged. (Indigenous) participants contributed novel and practical insights to engage Indigenous youth in health planning across Canada.
{"title":"Cree Youth Engagement in Health Planning","authors":"Nickoo Merati, J. Salsberg, Joey Saganash, Joshua Iserhoff, Kaitlynn Hester Moses, S. Law","doi":"10.32799/ijih.v15i1.33985","DOIUrl":"https://doi.org/10.32799/ijih.v15i1.33985","url":null,"abstract":"Indigenous communities experience a greater burden of ill health than all other communities in Canada. Across the (Indigenous Region), all nine (Name) communities experience similar health challenges. In 2014, the (REGIONAL_BOARD) supported an initiative to stimulate local community prioritization for health change. While many challenges identified were specific to youth (10-29 years of age), youth’s perspectives in these reports to date have been limited. We sought to understand how (Indigenous) youth perceived youth health and their engagement in health and health planning across (Region). As part of a (REGIONAL_BOARD-University) partnership, this qualitative descriptive study adopted a community-based participatory research approach. Ten (Indigenous) youth participated in two focus groups, and five (Indigenous) youth coordinators participated in key informant interviews. Thematic analysis was conducted and inductive codes were grouped into themes. (Indigenous) participants characterized youth engagement into the following levels: participation in community and recreational activities; membership in youth councils at the local and regional levels; and, in decision-making as planners of health-related initiatives. (Indigenous) youth recommended greater use of social media, youth assemblies, and youth planners to strengthen their engagement and youth health in the region. Our findings revealed an interconnectedness between youth health and youth engagement; (Indigenous) youth described how they need to be engaged to be healthy, and need to be healthy to be engaged. (Indigenous) participants contributed novel and practical insights to engage Indigenous youth in health planning across Canada.","PeriodicalId":54163,"journal":{"name":"International Journal of Indigenous Health","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2020-11-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45020788","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-11-05DOI: 10.32799/ijih.v15i1.34001
S. Hillier, E. Winkler, L. Lavallee
Indigenous Peoples in settler colonial nations, like Canada, continue to experience the intergenerational trauma, racism, socioeconomic disadvantages, and pervasive health disparities resulting from centuries of systemic oppression. Among these is the disproportionate burden of HIV in Canada’s Indigenous population, coupled with a lack of access to care and services. One method of assessing systems-level gaps is by using the HIV care cascade, whereby individuals are diagnosed, antiretroviral treatment is initiated, and viral suppression is achieved and maintained. The cascade, as it stands today, does not yield positive outcomes for Indigenous Peoples living with HIV. In order to close existing gaps, the authors sought to decolonise the HIV care cascade by rooting it in funding and policy recommendations provided directly by Indigenous Peoples living with HIV. This research presents 29 recommendations that arose when First Nations participants living with HIV partook in traditional storytelling interviews to share their life’s journey and offer suggestions for improving access to care and services. Said recommendations are to localize testing and diagnosis (while upholding confidentiality), improve access to culturally-appropriate care and services, provide targeted programming for Indigenous women and heterosexual men, and increase funding for provincial disability benefits; important steps in decolonising the HIV care cascade.
{"title":"Decolonising the HIV Care Cascade: Policy and Funding Recommendations from Indigenous Peoples Living with HIV and AIDS","authors":"S. Hillier, E. Winkler, L. Lavallee","doi":"10.32799/ijih.v15i1.34001","DOIUrl":"https://doi.org/10.32799/ijih.v15i1.34001","url":null,"abstract":"Indigenous Peoples in settler colonial nations, like Canada, continue to experience the intergenerational trauma, racism, socioeconomic disadvantages, and pervasive health disparities resulting from centuries of systemic oppression. Among these is the disproportionate burden of HIV in Canada’s Indigenous population, coupled with a lack of access to care and services. One method of assessing systems-level gaps is by using the HIV care cascade, whereby individuals are diagnosed, antiretroviral treatment is initiated, and viral suppression is achieved and maintained. The cascade, as it stands today, does not yield positive outcomes for Indigenous Peoples living with HIV. In order to close existing gaps, the authors sought to decolonise the HIV care cascade by rooting it in funding and policy recommendations provided directly by Indigenous Peoples living with HIV. This research presents 29 recommendations that arose when First Nations participants living with HIV partook in traditional storytelling interviews to share their life’s journey and offer suggestions for improving access to care and services. Said recommendations are to localize testing and diagnosis (while upholding confidentiality), improve access to culturally-appropriate care and services, provide targeted programming for Indigenous women and heterosexual men, and increase funding for provincial disability benefits; important steps in decolonising the HIV care cascade.","PeriodicalId":54163,"journal":{"name":"International Journal of Indigenous Health","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2020-11-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42615672","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-02-20DOI: 10.32799/ijih.v14i2.31995
A. Sheppard
First Nations, Inuit and Metis peoples have been living in accordance to a holistic approach, which includes physical, mental, spiritual and emotional wellness. It is only recently that some Western systems are making space for incorporating these Indigenous ways. The Aboriginal Navigator role, within Cancer Care Ontario, models such a method. This paper presents a review of the Navigator role outside of Ontario then presents the scope of the role and its impact in the provincial cancer system context. While cancer risk factors and outcomes are increasing over time among the First Nations, Inuit and Metis populations in Ontario, highlighting promising practices that are relevant and show improved wellbeing are needed to share.
{"title":"“In a good way”: Going beyond patient navigation to ensure culturally relevant care in the cancer system for First Nations, Inuit, and Métis patients in Ontario","authors":"A. Sheppard","doi":"10.32799/ijih.v14i2.31995","DOIUrl":"https://doi.org/10.32799/ijih.v14i2.31995","url":null,"abstract":"First Nations, Inuit and Metis peoples have been living in accordance to a holistic approach, which includes physical, mental, spiritual and emotional wellness. It is only recently that some Western systems are making space for incorporating these Indigenous ways. The Aboriginal Navigator role, within Cancer Care Ontario, models such a method. This paper presents a review of the Navigator role outside of Ontario then presents the scope of the role and its impact in the provincial cancer system context. While cancer risk factors and outcomes are increasing over time among the First Nations, Inuit and Metis populations in Ontario, highlighting promising practices that are relevant and show improved wellbeing are needed to share.","PeriodicalId":54163,"journal":{"name":"International Journal of Indigenous Health","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2020-02-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45074121","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2019-10-31DOI: 10.32799/ijih.v14i2.31707
Elise Duwe
This paper will explore the difficult conversations and places of tension in the lived experience of chronic pain for urban American Indians from a larger study discerning relationships between chronic pain and colonization. A concurrent transformative mixed methods design with in-depth interviews and a survey was used for the larger study. This paper concerns only the qualitative data. Forty self-identified American Indian adults living in Indiana, Chicago, and Tulsa who reported pain for greater than three months provided their chronic pain illness experiences for this paper. The paper uses three data-derived themes to encompass the broad reaching social, psychological, and cultural suffering inherent in coping with chronic pain: invisibility, psychological peace, and warrior strength. American Indian chronic pain sufferers in this study struggle with the multiplicative invisibility of both their chronic pain and their native identity. The invisibility leads to passing as white in environments hostile to people of color. It also results in family disconnection, loneliness, and isolation. In order to survive socially-mediated assaults, American Indian chronic pain sufferers keep their psyche at peace through stress management, cultural engagement, and non-negativity. They also call upon warrior strength—their understanding that American Indians as peoples have always survived bolsters their individual strength to push through the pain. They seek to function without further debility and to maintain their economic, spiritual, social, and physical wellness. Ultimately the participants in this research tell a profound, critical, and world-changing story that requires attention in overcoming barriers to full thriving with chronic pain.
{"title":"Suffering Like a Broken Toy","authors":"Elise Duwe","doi":"10.32799/ijih.v14i2.31707","DOIUrl":"https://doi.org/10.32799/ijih.v14i2.31707","url":null,"abstract":"This paper will explore the difficult conversations and places of tension in the lived experience of chronic pain for urban American Indians from a larger study discerning relationships between chronic pain and colonization. A concurrent transformative mixed methods design with in-depth interviews and a survey was used for the larger study. This paper concerns only the qualitative data. Forty self-identified American Indian adults living in Indiana, Chicago, and Tulsa who reported pain for greater than three months provided their chronic pain illness experiences for this paper. The paper uses three data-derived themes to encompass the broad reaching social, psychological, and cultural suffering inherent in coping with chronic pain: invisibility, psychological peace, and warrior strength. American Indian chronic pain sufferers in this study struggle with the multiplicative invisibility of both their chronic pain and their native identity. The invisibility leads to passing as white in environments hostile to people of color. It also results in family disconnection, loneliness, and isolation. In order to survive socially-mediated assaults, American Indian chronic pain sufferers keep their psyche at peace through stress management, cultural engagement, and non-negativity. They also call upon warrior strength—their understanding that American Indians as peoples have always survived bolsters their individual strength to push through the pain. They seek to function without further debility and to maintain their economic, spiritual, social, and physical wellness. Ultimately the participants in this research tell a profound, critical, and world-changing story that requires attention in overcoming barriers to full thriving with chronic pain.","PeriodicalId":54163,"journal":{"name":"International Journal of Indigenous Health","volume":null,"pages":null},"PeriodicalIF":1.5,"publicationDate":"2019-10-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44763654","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2019-10-31Epub Date: 2019-08-13DOI: 10.32799/ijih.v14i2.31920
Naomi R Lee, Carolyn J Noonan, Lonnie Nelson, Jason G Umans
American Indian and Alaska Native women had approximately twice the incidence of cervical cancer as white women. Preventive measures for cervical cancer rely on screening and HPV vaccination. However, vaccine series completion and catch-up vaccinations for eligible adults are low across all racial/ethnic groups. Therefore, the aim of this study was to identify gaps in knowledge and evaluate the attitudes toward HPV and the vaccine among AIANs with various levels of training in the STEM and health-related fields. A survey was used to collect data from audience members at two national conferences geared towards American Indian and Alaska Natives in health and STEM fields in September 2017. A vignette study was administered via a live electronic poll to test knowledge (true/false questions), attitudes, and to collect demographic information. Respondents self-identified as primarily American Indian and Alaska Native (74%), pursuing or completed a graduate degree (67%), and female (85%). Most respondents (86%) were aware of HPV-associated cancer in men. However, most (48-90%) answered incorrectly to detailed true/false statements about HPV and available vaccines. After educational information was provided, opinions collected via vignettes highlighted mainly positive attitudes toward vaccination; specifically, that vaccines are safe and all eligible community members should be vaccinated (75% and 84%, respectively). We observed that our respondents with higher educational attainment still lacked accurate knowledge pertaining to HPV and the vaccine. Overall, continued education about HPV and the vaccine is needed across all levels of education including American Indian and Alaska Native community members and health professionals.
{"title":"HPV Knowledge and Attitudes Among American Indian and Alaska Native Health and STEM Conference Attendees.","authors":"Naomi R Lee, Carolyn J Noonan, Lonnie Nelson, Jason G Umans","doi":"10.32799/ijih.v14i2.31920","DOIUrl":"10.32799/ijih.v14i2.31920","url":null,"abstract":"<p><p>American Indian and Alaska Native women had approximately twice the incidence of cervical cancer as white women. Preventive measures for cervical cancer rely on screening and HPV vaccination. However, vaccine series completion and catch-up vaccinations for eligible adults are low across all racial/ethnic groups. Therefore, the aim of this study was to identify gaps in knowledge and evaluate the attitudes toward HPV and the vaccine among AIANs with various levels of training in the STEM and health-related fields. A survey was used to collect data from audience members at two national conferences geared towards American Indian and Alaska Natives in health and STEM fields in September 2017. A vignette study was administered via a live electronic poll to test knowledge (true/false questions), attitudes, and to collect demographic information. Respondents self-identified as primarily American Indian and Alaska Native (74%), pursuing or completed a graduate degree (67%), and female (85%). Most respondents (86%) were aware of HPV-associated cancer in men. However, most (48-90%) answered incorrectly to detailed true/false statements about HPV and available vaccines. After educational information was provided, opinions collected via vignettes highlighted mainly positive attitudes toward vaccination; specifically, that vaccines are safe and all eligible community members should be vaccinated (75% and 84%, respectively). We observed that our respondents with higher educational attainment still lacked accurate knowledge pertaining to HPV and the vaccine. Overall, continued education about HPV and the vaccine is needed across all levels of education including American Indian and Alaska Native community members and health professionals.</p>","PeriodicalId":54163,"journal":{"name":"International Journal of Indigenous Health","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2019-10-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/38/ef/nihms-1583037.PMC7199482.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"37905316","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}