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Co-design of an mHealth application for family caregivers of people with dementia to address functional disability care needs. 为痴呆症患者的家庭照顾者共同设计移动健康应用程序,以解决功能性残疾护理需求。
IF 2.4 4区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2021-03-02 Epub Date: 2020-07-24 DOI: 10.1080/17538157.2020.1793347
Sarath Rathnayake, Wendy Moyle, Cindy Jones, Pauline Calleja

The co-design of a mobile health (mHealth) application for family caregivers of people with dementia to address functional disability care needs is presented. Participants included family caregivers of people with dementia, aged care nurses, physicians, occupational therapists, and information technology (IT) experts. The co-design process involved two phases: (1) needs assessment phase (an online survey and in-depth interviews with family caregivers and expert consultation); and (2) development of an mHealth application (content and prototype development). Data triangulation from phase one informed the content of the application. Data triangulation resulted in three content modules: "an overview of dementia and care," "management of daily living activities," and "caregivers' health and well-being." The content was based on contemporary literature, and care guidelines with input from family caregivers and dementia care experts. IT engineers developed the mHealth application. In this study, an Android-based mHealth application was designed to address the functional care needs of family caregivers and the co-design process ensured the incorporation of end-users' real-world experiences and the opinions and expertise of key stakeholders in the development of the application prototype.It is to be noted that before releasing the application into the app store, testing its feasibility and effectiveness is essential.

共同设计的移动医疗(mHealth)应用程序,为家庭护理人员的痴呆症患者,以解决功能性残疾护理需求。参与者包括痴呆症患者的家庭照顾者、老年护理护士、医生、职业治疗师和信息技术(IT)专家。协同设计过程包括两个阶段:(1)需求评估阶段(在线调查、家庭照顾者深度访谈和专家咨询);(2)移动健康应用程序的开发(内容和原型开发)。第一阶段的数据三角测量通知了应用程序的内容。数据三角分析产生了三个内容模块:“痴呆症和护理概述”、“日常生活活动管理”和“护理人员的健康和福祉”。内容是基于当代文献和护理指南与输入的家庭照顾者和痴呆症护理专家。IT工程师开发了移动医疗应用程序。在本研究中,设计了一个基于android的移动健康应用程序,以满足家庭照顾者的功能性护理需求,共同设计过程确保了在应用程序原型的开发中结合了最终用户的现实世界经验和关键利益相关者的意见和专业知识。需要注意的是,在将应用程序发布到应用商店之前,测试其可行性和有效性至关重要。
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引用次数: 14
Computerized Care-Pathways (CCPs) System to Support Person-Centered, Integrated, and Proactive Care in Home-Care Settings. 计算机化护理路径(CCPs)系统在家庭护理环境中支持以人为本、综合和主动的护理。
IF 2.4 4区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2021-03-02 Epub Date: 2021-01-06 DOI: 10.1080/17538157.2020.1865969
Nicole Dubuc, Simon Brière, Cinthia Corbin, Afiwa N'Bouke, Lucie Bonin, Nathalie Delli-Colli

This paper describes the software design/development process leading to an improved computerized clinical/management solution-RSIPA (2016 version)-integrating care pathways (CPs) specifically designed to meet the needs of frail and disabled older adults in home care. The development methodology used Soft Systems Methodology (SSM) for the initial system design and participatory design (PD) to involve stakeholders and end users, along with AGILE SCRUM methodology to provide rapid iterations in adapting to new requests. Given scarce project resources, we opted to combine methodologies to efficiently deliver a fully functional system for three of the five CP clinical phases. The development methodology aggregated assessment-based data to identify risk factors and assist in needs prioritization leading to care plans and addressed in the current system. The new Quebec RSIPA solution incorporating CCPs is a promising example of technologies that support person-centered care, clinical and management processes, and proactive care in home-care settings.

本文描述了软件设计/开发过程,导致改进的计算机化临床/管理解决方案- rsipa(2016版)-集成护理路径(CPs),专门设计用于满足体弱和残疾老年人在家庭护理中的需求。开发方法使用软系统方法(SSM)进行初始系统设计,参与式设计(PD)涉及利益相关者和最终用户,以及AGILE SCRUM方法提供快速迭代以适应新请求。鉴于稀缺的项目资源,我们选择结合方法,有效地为五个CP临床阶段中的三个阶段提供一个功能齐全的系统。发展方法汇总了基于评估的数据,以确定风险因素,并协助确定需求的优先次序,从而制定护理计划,并在当前系统中予以解决。新的魁北克RSIPA解决方案结合了ccp,是支持以人为中心的护理、临床和管理流程以及家庭护理环境中的主动护理的技术的一个很有前途的例子。
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引用次数: 6
An automated algorithm using free-text clinical notes to improve identification of transgender people. 一个使用自由文本临床记录的自动算法,以提高对变性人的识别。
IF 2.5 4区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2021-03-02 Epub Date: 2020-11-17 DOI: 10.1080/17538157.2020.1828890
Fagen Xie, Darios Getahun, Virginia P Quinn, Theresa M Im, Richard Contreras, Michael J Silverberg, Tisha C Baird, Rebecca Nash, Lee Cromwell, Douglas Roblin, Trenton Hoffman, Michael Goodman

Accurate identification of transgender persons is a critical first step in conducting transgender health studies. To develop an automated algorithm for identifying transgender individuals from electronic medical records (EMR) using free-text clinical notes. The development and validation of the algorithm was based on data from an integrated healthcare system that served as a participating site in the multicenter Study of Transition Outcomes and Gender. The training and test datasets each contained a total of 300 individuals identified between 2006 and 2014. Both datasets underwent a full medical record review by experienced research abstractors. The validated algorithm was then implemented to identify transgender individuals in the EMR using all clinical notes of patients that received care between January 1, 2015 and June 30, 2018. Validation of the algorithm against the full chart review demonstrated a high degree of accuracy with 97% sensitivity, 95% specificity, 94% positive predictive value, and 97% negative predictive value. The algorithm classified 7,409 individuals (3.5%) as "Definitely transgender" and 679 individuals (0.3%) as "Probably transgender" out of 212,138 candidates with a total of 378,641 clinical notes. The computerized NLP algorithm can support essential efforts to improve the health of transgender people.

准确识别跨性别者是开展跨性别健康研究的关键第一步。开发一种自动算法,用于使用自由文本临床记录从电子医疗记录(EMR)中识别跨性别者。该算法的开发和验证基于一个综合医疗保健系统的数据,该系统作为多中心过渡结果和性别研究的参与站点。训练和测试数据集各包含2006年至2014年间确定的300个个体。两个数据集都由经验丰富的研究摘要人员进行了完整的医疗记录审查。然后实施经过验证的算法,使用2015年1月1日至2018年6月30日期间接受治疗的患者的所有临床记录,在EMR中识别跨性别者。对整个图表的验证表明,该算法具有很高的准确性,灵敏度为97%,特异性为95%,阳性预测值为94%,阴性预测值为97%。该算法将212138名候选人中的7409人(3.5%)分类为“绝对跨性别者”,679人(0.3%)分类为“可能跨性别者”,总共有378641份临床记录。计算机化的NLP算法可以支持改善变性人健康的必要努力。
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引用次数: 0
A review and content analysis of national apps for COVID-19 management using Mobile Application Rating Scale (MARS). 基于移动应用程序评分量表(MARS)的国家COVID-19管理应用程序综述及内容分析
IF 2.4 4区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2021-03-02 Epub Date: 2020-11-09 DOI: 10.1080/17538157.2020.1837838
Simin Salehinejad, Sharareh R Niakan Kalhori, Sadrieh Hajesmaeel Gohari, Kambiz Bahaadinbeigy, Farhad Fatehi

The expansion of mobile health apps for the management of COVID-19 grew exponentially in recent months. However, no study has evaluated these apps. The objective of this study was to develop a reliable measure and rate the quality of COVID-19 mobile health apps, to eventually provide a roadmap for future mHealth app development. In this study, we used COVID-related keywords to identify apps for iOS and Android devices. 13 apps (13.5% of the total number of apps identified) were selected for evaluation. App quality was assessed independently using MARS by two reviewers. Search queries yielded a total of 97 potentially relevant apps, of which 13 met our final inclusion criteria. Kendall's coefficient of concordance value for the inter-rater agreement was 0.93 (p = .03). COVID-19 GOV PK app had the highest average MARS score (4.7/5), and all of the apps had acceptable MARS scores (> 3.0). This study suggests that most COVID-related apps meet acceptable criteria for quality, content, or functionality, and they must highlight esthetic and interesting features for overall quality improvement to be welcomed by users.

近几个月来,用于管理COVID-19的移动健康应用程序呈指数级增长。然而,没有研究评估过这些应用程序。本研究的目的是开发一种可靠的措施和评估COVID-19移动健康应用程序的质量,最终为未来的移动健康应用程序开发提供路线图。在本研究中,我们使用与covid相关的关键词来识别iOS和Android设备上的应用程序。13个应用程序(占识别的应用程序总数的13.5%)被选中进行评估。应用质量由两名评论者使用MARS独立评估。搜索结果总共产生了97个潜在的相关应用,其中13个符合我们的最终纳入标准。评价间一致性的肯德尔协调系数值为0.93 (p = 0.03)。COVID-19 GOV PK应用程序的MARS平均得分最高(4.7/5),所有应用程序的MARS得分均为可接受的(> 3.0)。这项研究表明,大多数与新冠病毒相关的应用程序在质量、内容或功能方面都符合可接受的标准,它们必须突出美观和有趣的功能,以使整体质量得到提高,从而受到用户的欢迎。
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引用次数: 33
Use of the Internet by pregnant women to seek information about pregnancy and childbirth. 孕妇使用因特网查找有关怀孕和分娩的信息。
IF 2.4 4区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2020-10-01 Epub Date: 2020-06-02 DOI: 10.1080/17538157.2020.1769106
Leila Ahmadian, Reza Khajouei, Sudabeh Kamali, Moghaddameh Mirzaee

Pregnant women get information about pregnancy andchild-birth from many sources, including the Internet. There is alack of evidence about the extent to which pregnant women usethis source. This study aimed to investigate the use of the Internetby pregnant women to search for information about pregnancyand childbirth. This study was conducted in Kerman, Iran. Threehundred eighty-five pregnant women waiting for their appointmentswith obstetricians/gynecologists participated in the survey byfilling out a questionnaire. The most common searched topicswere nutrition in pregnancy (81%), fetal development (67%), andcomplications of pregnancy (49%). The most popular sources ofinformation were physicians (61%), the Internet (51%), and printedsources (41%), respectively. More than half of the participantsdid not share the retrieved information from the Internet with theirhealth professionals. After being examined by a physician, 43% ofthe participants searched the Internet about the discussed topic.Beside physicians, the Internet is the second common source ofpregnancy and childbirth information for Iranian pregnant women.Future studies are needed to analyze the quality and accuracy ofonline pregnancy and childbirth information.

孕妇可以从包括互联网在内的许多渠道获取有关怀孕和分娩的信息。没有证据表明孕妇在多大程度上使用这种来源。本研究旨在调查孕妇使用互联网搜索有关怀孕和分娩信息的情况。这项研究是在伊朗的克尔曼进行的。385名等待与妇产科医生预约的孕妇通过填写问卷参与了调查。最常见的搜索主题是孕期营养(81%)、胎儿发育(67%)和妊娠并发症(49%)。最受欢迎的信息来源分别是医生(61%)、互联网(51%)和印刷材料(41%)。超过一半的参与者没有与他们的健康专业人员分享从互联网上检索到的信息。在接受医生检查后,43%的参与者在网上搜索讨论的话题。除了医生,互联网是伊朗孕妇获得怀孕和分娩信息的第二个常见来源。未来的研究需要分析在线妊娠和分娩信息的质量和准确性。
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引用次数: 12
Therapeutic utilization of meditation resources by people with multiple sclerosis: insights from an online patient discussion forum. 多发性硬化症患者对冥想资源的治疗性利用:来自在线患者讨论论坛的见解。
IF 2.4 4区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2020-10-01 Epub Date: 2020-06-08 DOI: 10.1080/17538157.2020.1755975
Jodi Millicent O'Donnell, George Alexander Jelinek, Kathleen Mary Gray, Alysha De Livera, Chelsea Rae Brown, Sandra Leanne Neate, Emily Louise O'Kearney, Keryn Louise Taylor, William Bevens, Tracey Joy Weiland

We aimed to describe website traffic and qualitatively analyze an e-health community discussion forum. Participants in this study were people affected by multiple sclerosis visiting the Overcoming Multiple Sclerosis (OMS) website. This mixed methods study combined descriptive analysis of website traffic over 7 years and 1 month, and qualitative analysis of 1 week of posts in the meditation topic, coded into theme groups using qualitative thematic analysis. There were 166 meditation topics posted with 21,530 initial views of primary post and 785 sub-post responses. Meditation posts and sub-posts received 368,713 replies. Number of views increased from 4,684 in 2011 to over 80,000 in 2017, a considerably greater rate of increase than overall traffic. Qualitative analysis of posts on the meditation forum identified themes of barriers and enablers to utilization of meditation resources. Enablement themes dominated, observed across six of the seven theme groups with various forms of positive social and emotional support to learn and practice meditation. One theme, negative emotion, was identified as a barrier. The OMS peer-to-peer patient online discussion forum serves important functions in encouraging, educating and enabling its growing online community. Our analysis may help improve and innovate online support for lifestyle management in many chronic diseases.

我们的目的是描述网站流量并定性分析一个电子健康社区论坛。本研究的参与者是访问克服多发性硬化症(OMS)网站的多发性硬化症患者。这项混合方法的研究结合了对7年零1个月网站流量的描述性分析,以及对冥想主题中1周帖子的定性分析,并使用定性主题分析将其编码为主题组。共发表了166个冥想主题,其中有21,530个初级帖子的初步浏览和785个次级帖子的回复。冥想帖子和分帖子收到了368,713个回复。观看次数从2011年的4684次增加到2017年的超过8万次,远远高于整体流量的增长速度。对冥想论坛上的帖子进行定性分析,确定了冥想资源利用的障碍和促进因素。使能主题占主导地位,在七个主题组中的六个中观察到各种形式的积极社会和情感支持来学习和练习冥想。其中一个主题,消极情绪,被认为是一种障碍。OMS点对点患者在线讨论论坛在鼓励、教育和支持其不断增长的在线社区方面发挥着重要作用。我们的分析可能有助于改善和创新许多慢性病生活方式管理的在线支持。
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引用次数: 5
Mobile health applications for people with dementia: a systematic review and synthesis of qualitative studies. 针对痴呆症患者的移动医疗应用程序:定性研究的系统审查和综合。
IF 2.4 4区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2020-10-01 Epub Date: 2020-04-01 DOI: 10.1080/17538157.2020.1728536
Andrew Brown, Siobhan O'Connor

Objective: To review the qualitative literature on mobile health applications for people with dementia.

Methods: A systematic review was undertaken. Five databases were searched using relevant keywords. Titles, abstracts and full-text papers were screened independently by two reviewers. Data extraction and quality assessment were conducted. Analysis was guided by framework synthesis and underpinned by the Digital Health Engagement Model.

Results: Nine studies were included. Three themes emerged around the experiences of people with dementia when using health apps. The technology seemed to improve some aspects of physical, mental and social health such as stimulating cognitive function and communication skills. When implementing health applications with persons with dementia six themes came to light. How well an application or mobile device was designed and the quality of information on it, seemed to influence use. Digital knowledge and skills were also needed to engage with the technology. One's personal lifestyle and agency were other relevant factors affecting implementation, along with the health of an individual with dementia.

Conclusion: Further research examining the efficacy of health apps for people with dementia is required. Utilizing co-design approaches to create mobile technology with those with dementia should also be considered.

Prospero registration number: CRD42015029846.

目的:回顾有关痴呆症患者移动健康应用程序的定性文献。方法:进行系统评价。使用相关关键词检索5个数据库。题目、摘要和全文论文由两位审稿人独立筛选。进行数据提取和质量评价。分析以框架综合为指导,并以数字卫生参与模型为基础。结果:纳入9项研究。围绕痴呆症患者在使用健康应用程序时的体验,出现了三个主题。这项技术似乎改善了身体、心理和社会健康的某些方面,如刺激认知功能和沟通技巧。在为痴呆症患者实施健康应用程序时,有六个主题浮出水面。应用程序或移动设备的设计好坏以及其上的信息质量似乎会影响使用。参与这项技术还需要数字知识和技能。一个人的个人生活方式和机构是影响实施的其他相关因素,以及痴呆症患者的健康状况。结论:需要进一步研究健康应用程序对痴呆症患者的功效。还应考虑利用共同设计方法为痴呆症患者创造移动技术。普洛斯彼罗注册号:CRD42015029846。
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引用次数: 25
Electronic linkage and interrogation of administrative health, social care, and criminal justice datasets: feasibility concerning process and content. 行政卫生、社会保健和刑事司法数据集的电子链接和审讯:有关过程和内容的可行性。
IF 2.4 4区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2020-10-01 Epub Date: 2020-07-24 DOI: 10.1080/17538157.2020.1793346
Cassie Higgins, Keith Matthews

The objective was to test the feasibility of a novel model of electronic linkage and interrogation of large, sensitive, administrative datasets derived from health care, social care, and criminal justice. Participants comprised all individuals having completed suicide or drug-related death in Tayside between 2009 and 2014. Data were hosted, linked, and pseudo-anonymized by a Trusted Third Party and were interrogated via secure access to the HIC Scottish Government-certified Safe Haven. Several barriers were encountered concerning data access, with all but one issue (obtaining criminal justice data) ultimately soluble. However, each barrier led to a substantial delay in either obtaining the required approvals or in receiving the specified data extracts. Generally, data coverage was good but data quality was poor, with almost a fifth of the data fields (17%) being less than 10% complete. The feasibility of this novel approach was demonstrated. Critically, this was achieved because of the central involvement of a Trusted Third Party and the use of a Government-certified Safe Haven. Future studies using a similar model of data acquisition and analysis should consider the potential delays resulting from organizations' lack of familiarity with their data-sharing protocols and procedures.

其目的是测试一种新型模型的可行性,该模型对来自卫生保健、社会保健和刑事司法的大型、敏感的行政数据集进行电子连接和审讯。参与者包括2009年至2014年在泰赛德完成自杀或与毒品有关死亡的所有个人。数据由受信任的第三方托管,链接和伪匿名,并通过安全访问HIC苏格兰政府认证的避风港进行查询。在获取数据方面遇到了若干障碍,除了一个问题(获取刑事司法数据)以外,其他所有问题最终都可以解决。但是,每一个障碍都导致在获得所需的批准或接收指定的数据摘要方面出现严重延误。总的来说,数据覆盖范围很好,但数据质量很差,几乎五分之一的数据字段(17%)的完整性不足10%。验证了该方法的可行性。关键的是,这是由于一个受信任的第三方的核心参与和使用政府认证的避风港。使用类似数据获取和分析模型的未来研究应考虑由于组织对其数据共享协议和程序缺乏熟悉而导致的潜在延迟。
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引用次数: 2
Exploring core food accessibility in Tamworth, NSW, Australia. 探索在塔姆沃斯,新南威尔士州,澳大利亚的核心食物可及性。
IF 2.4 4区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2020-10-01 Epub Date: 2020-07-24 DOI: 10.1080/17538157.2020.1793345
Ellen Payne, Leanne J Brown, Elesa Crowley, Megan Rollo, Tracy L Schumacher

Introduction: A lack of core food accessibility negatively affects diet quality, potentially increasing the prevalence of health risk factors such as obesity. The purpose of this study was to investigate core food access in an Australian regional center through the use of data visualization techniques.

Methods: Supermarkets were used as a proxy for core food accessibility and were identified and mapped by town region with a combination of Google Maps and Stata/IC 15.1 software. A statistical analysis comparing the demographics of each town region was also completed using Stata.

Results: The maps generated suggest that there may be a disparity in core food accessibility between town regions. The analysis of demographics demonstrated that one town region had a greater proportion of disadvantaged residents, with statistically significant variation between regions.

Conclusion: Data visualization and analysis may be a useful tool for clinicians to communicate accessibility information experienced by local residents. This need not be limited to food accessibility and extended to health services.

缺乏核心食物可及性会对饮食质量产生负面影响,可能会增加肥胖等健康风险因素的患病率。本研究的目的是通过使用数据可视化技术来调查澳大利亚区域中心的核心食物获取情况。方法:以超市为核心食品可达性指标,结合Google Maps和Stata/IC 15.1软件进行城镇区域识别和地图绘制。还使用Stata完成了比较每个城镇区域人口统计数据的统计分析。结果:绘制的地图显示,城镇区域之间的核心食物可及性可能存在差异。人口统计分析表明,一个城镇区域的弱势居民比例较大,区域间差异具有统计学意义。结论:数据可视化分析可作为临床医生交流当地居民无障碍信息的有效工具。这不应局限于粮食供应,而应扩大到保健服务。
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引用次数: 2
Seniors and mobiles: A qualitative inquiry of mHealth adoption among Singapore seniors. 老年人和手机:新加坡老年人采用移动医疗的定性调查。
IF 2.4 4区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2020-10-01 Epub Date: 2020-06-02 DOI: 10.1080/17538157.2020.1755974
Trisha T C Lin, John Robert Bautista, Rachel Core

Objective: This study examines how seniors in Singapore use mobile devices for healthcare purposes.

Methods: Semi-structured interviews with 35 mobile phone users aged between 58-82 years old.

Results: Seniors regard mobile phones as important personal devices for socialization, security, and emergency purposes. Most of the seniors consider mobile telephony (voice calls and text messaging) as an accessible platform to access healthcare. Perceived usefulness, ease of use, compatibility, technology anxiety, financial cost, and self-efficacy were identified as factors affecting the use of mHealth among seniors. Although a few adopt mHealth applications and mobile Internet for health-information seeking, some younger seniors show enthusiastic attitudes toward its adoption. Additionally, some seniors also have technology anxiety and resistance toward using mHealth applications.

Conclusion: Seniors use mobile phones for healthcare purposes in their daily life, and its use involves several facilitators and barriers. Interpersonal training is likely to reduce their anxiety and increase mHealth literacy and adoption. Theoretical and practical implications are discussed.

目的:本研究考察了新加坡老年人如何使用移动设备进行医疗保健。方法:对35名年龄在58 ~ 82岁之间的手机用户进行半结构化访谈。结果:老年人将手机视为社交、安全、应急等重要的个人设备。大多数老年人认为移动电话(语音通话和短信)是获得医疗保健的可访问平台。感知有用性、易用性、兼容性、技术焦虑、财务成本和自我效能被确定为影响老年人使用移动健康的因素。尽管少数人采用移动健康应用程序和移动互联网来寻求健康信息,但一些年轻的老年人对采用这些应用程序表现出热情的态度。此外,一些老年人也有技术焦虑和抵制使用移动健康应用程序。结论:老年人在日常生活中使用手机进行医疗保健,其使用涉及几个促进因素和障碍。人际关系培训可能会减少他们的焦虑,并增加移动健康的知识普及和采用。讨论了理论和实践意义。
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引用次数: 18
期刊
Informatics for Health & Social Care
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