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Enablers for and barriers to using My Kanta - A focus group study of older adults' perceptions of the National Electronic Health Record in Finland. 使用我的坎塔的促进因素和障碍——芬兰老年人对国家电子健康记录的看法的焦点小组研究。
IF 2.4 4区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2021-12-02 Epub Date: 2021-03-31 DOI: 10.1080/17538157.2021.1902331
Kristina Eriksson-Backa, Noora Hirvonen, Heidi Enwald, Isto Huvila

To explicate how experiences with patient-accessible electronic health records correspond to the expectations of the users, we present qualitative results of older adults' experiences with the Finnish national patient-accessible health record My Kanta and similar services. 24 persons, 17 women and 7 men aged 55-73, took part in the study. We interviewed six focus groups of 3-5 participants with previous experience of My Kanta, in two cities in Finland. We used a convenience sample and video- and audio-recording as well as note taking. The interviews were transcribed verbatim. The inductive analysis was based on content analysis. We identified major uses, enablers, barriers, and outcomes of My Kanta. In addition to earlier reported barriers and enablers, the findings show that launch-time lack of useful content and features in systems still under development can cause frustration and hinder their effective use at the time and in the long run. Concerns and barriers relating to use were socio-techno-informational and tightly associated with the contents of the system. Improved security, usability and additional information and functions might increase use. Furthermore, coherent and timely information from health-care providers should be available in the e-health services.

为了解释患者可访问的电子健康记录的体验如何与用户的期望相对应,我们提出了老年人使用芬兰国家患者可访问的健康记录My Kanta和类似服务的体验的定性结果。24人参加了这项研究,其中17名女性和7名男性,年龄在55-73岁之间。我们在芬兰的两个城市采访了6个焦点小组,每个小组3-5名参与者都有玩过《My Kanta》。我们使用了一个方便的样本,视频和音频录音以及笔记。采访是逐字逐句记录下来的。归纳分析是在内容分析基础上进行的。我们确定了My Kanta的主要用途、推动因素、障碍和结果。除了早期报道的障碍和推动因素,研究结果表明,在开发阶段的系统中,启动时缺乏有用的内容和特性可能会导致挫折,并阻碍它们在时间和长期内的有效使用。与使用有关的问题和障碍是社会技术信息问题,与系统的内容密切相关。改进的安全性、可用性以及额外的信息和功能可能会增加使用。此外,应在电子保健服务中提供卫生保健提供者提供的连贯和及时的信息。
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引用次数: 9
Use of social media data for disease based social network analysis and network modeling: A Systematic Review. 基于疾病的社会网络分析和网络建模的社会媒体数据的使用:系统综述。
IF 2.4 4区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2021-12-02 Epub Date: 2021-04-20 DOI: 10.1080/17538157.2021.1905642
Thilagavathi Ramamoorthy, Dhivya Karmegam, Bagavandas Mappillairaju

Burden due to infectious and noncommunicable disease is increasing at an alarming rate. Social media usage is growing rapidly and has become the new norm of communication. It is imperative to examine what is being discussed in the social media about diseases or conditions and the characteristics of the network of people involved in discussion. The objective is to assess the tools and techniques used to study social media disease networks using network analysis and network modeling. PubMed and IEEEXplore were searched from 2009 to 2020 and included 30 studies after screening and analysis. Twitter, QuitNet, and disease-specific online forums were widely used to study communications on various health conditions. Most of the studies have performed content analysis and network analysis, whereas network modeling has been done in six studies. Posts on cancer, COVID-19, and smoking have been widely studied. Tools and techniques used for network analysis are listed. Health-related social media data can be leveraged for network analysis. Network modeling technique would help to identify the structural factors associated with the affiliation of the disease networks, which is scarcely utilized. This will help public health professionals to tailor targeted interventions.

传染病和非传染性疾病造成的负担正在以惊人的速度增加。社交媒体的使用正在迅速增长,并已成为沟通的新规范。必须检查社交媒体上正在讨论的关于疾病或状况的内容以及参与讨论的人的网络特征。目的是评估使用网络分析和网络建模来研究社交媒体疾病网络的工具和技术。PubMed和IEEEXplore从2009年到2020年进行了检索,筛选和分析后纳入了30项研究。Twitter、QuitNet和特定疾病的在线论坛被广泛用于研究各种健康状况的交流。大多数研究都进行了内容分析和网络分析,只有6项研究进行了网络建模。关于癌症、COVID-19和吸烟的帖子已经被广泛研究。列出了用于网络分析的工具和技术。与健康相关的社交媒体数据可以用于网络分析。网络建模技术将有助于识别与疾病网络隶属关系相关的结构因素,这一点很少得到利用。这将有助于公共卫生专业人员制定有针对性的干预措施。
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引用次数: 4
Model and variable selection using machine learning methods with applications to childhood stunting in Bangladesh. 使用机器学习方法进行模型和变量选择,并将其应用于孟加拉国的儿童发育迟缓。
IF 2.4 4区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2021-12-02 Epub Date: 2021-04-14 DOI: 10.1080/17538157.2021.1904938
Jahidur Rahman Khan, Jabed H Tomal, Enayetur Raheem

Childhood stunting is a serious public health concern in Bangladesh. Earlier research used conventional statistical methods to identify the risk factors of stunting, and very little is known about the applications and usefulness of machine learning (ML) methods that can identify the risk factors of various health conditions based on complex data. This research evaluates the performance of ML methods in predicting stunting among under-5 aged children using 2014 Bangladesh Demographic and Health Survey data. Besides, this paper identifies variables which are important to predict stunting in Bangladesh. Among the selected ML methods, gradient boosting provides the smallest misclassification error in predicting stunting, followed by random forests, support vector machines, classification tree and logistic regression with forward-stepwise selection. The top 10 important variables (in order of importance) that better predict childhood stunting in Bangladesh are child age, wealth index, maternal education, preceding birth interval, paternal education, division, household size, maternal age at first birth, maternal nutritional status, and parental age. Our study shows that ML can support the building of prediction models and emphasizes on the demographic, socioeconomic, nutritional and environmental factors to understand stunting in Bangladesh.

儿童发育迟缓是孟加拉国一个严重的公共卫生问题。早期的研究使用传统的统计方法来识别发育迟缓的风险因素,对于机器学习(ML)方法的应用和有用性知之甚少,机器学习(ML)方法可以根据复杂的数据识别各种健康状况的风险因素。本研究利用2014年孟加拉国人口与健康调查数据,评估机器学习方法在预测5岁以下儿童发育迟缓方面的表现。此外,本文还确定了预测孟加拉国发育迟缓的重要变量。在选择的机器学习方法中,梯度增强在预测发育迟缓方面的误分类误差最小,其次是随机森林、支持向量机、分类树和具有前向逐步选择的逻辑回归。能更好地预测孟加拉国儿童发育迟缓的前10个重要变量(按重要性排序)是儿童年龄、财富指数、母亲教育程度、产前间隔、父亲教育程度、分工、家庭规模、母亲初产年龄、母亲营养状况和父母年龄。我们的研究表明,机器学习可以支持预测模型的建立,并强调人口、社会经济、营养和环境因素,以了解孟加拉国的发育迟缓情况。
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引用次数: 5
Cross Cultural Team Collaboration: Integrating Cultural Humility in mHealth Development and Research. 跨文化团队合作:在移动医疗发展和研究中整合文化谦逊。
IF 2.4 4区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2021-12-02 Epub Date: 2021-03-28 DOI: 10.1080/17538157.2021.1895168
Shelby L Garner, Hope Koch, Carolin Elizabeth George, Julia Hitchcock, Gift Norman, Gina Green, Phil Young, Zonayed Mahid

The World Health Organization called for mobile health initiatives to improve population health outcomes, particularly in limited-resource settings. The aim of our study was to reflect upon approaches embedded in cultural humility and recognize areas where improvement was needed in the social innovation collaborative development of an mHealth app to improve hypertension health literacy in India. A qualitative descriptive case study approach was employed to elicit concepts of cultural humility and areas for improvement derived from communications between project stakeholders. Overarching themes included fostering coalescence and strengthening partnerships in addition to multiple subthemes. Enveloping cultural humility in multidisciplinary, interprofessional and cross-cultural healthcare projects and processes is imperative for the development and implementation of successful culturally congruent health initiatives. Team fostering of coalescence and recognizing challenges and adapting to mitigate challenges can strengthen partnerships, a desired consequence of cultural humility.

世界卫生组织呼吁采取流动保健行动,以改善人口健康结果,特别是在资源有限的情况下。我们研究的目的是反思嵌入文化谦逊的方法,并认识到在社会创新合作开发移动健康应用程序以提高印度高血压健康素养方面需要改进的领域。采用定性描述性案例研究方法来引出文化谦逊的概念和源自项目利益相关者之间沟通的改进领域。总体主题包括促进合并和加强伙伴关系,以及多个分主题。在多学科、跨专业和跨文化的医疗保健项目和过程中,包涵文化谦逊对于制定和实施成功的文化一致的健康倡议是必不可少的。培养团队凝聚力,认识挑战并适应以减轻挑战,可以加强伙伴关系,这是文化谦逊的理想结果。
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引用次数: 4
Machine learning approaches to constructing predictive models of vitamin D deficiency in a hypertensive population: a comparative study. 构建高血压人群维生素D缺乏预测模型的机器学习方法:一项比较研究。
IF 2.4 4区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2021-12-02 Epub Date: 2021-04-01 DOI: 10.1080/17538157.2021.1896524
Rafael Garcia Carretero, Luis Vigil-Medina, Oscar Barquero-Perez, Inmaculada Mora-Jimenez, Cristina Soguero-Ruiz, Javier Ramos-Lopez

Objective: Given the association between vitamin D deficiency and risk for cardiovascular disease, we used machine learning approaches to establish a model to predict the probability of deficiency. Determination of serum levels of 25-hydroxy vitamin D (25(OH)D) provided the best assessment of vitamin D status, but such tests are not always widely available or feasible. Thus, our study established predictive models with high sensitivity to identify patients either unlikely to have vitamin D deficiency or who should undergo 25(OH)D testing.Methods: We collected data from 1002 hypertensive patients from a Spanish university hospital. The elastic net regularization approach was applied to reduce the dimensionality of the dataset. The issue of determining vitamin D status was addressed as a classification problem; thus, the following classifiers were applied: logistic regression, support vector machine (SVM), random forest, naive Bayes, and Extreme Gradient Boost methods. Classification accuracy, sensitivity, specificity, and predictive values were computed to assess the performance of each method.Results: The SVM-based method with radial kernel performed better than the other algorithms in terms of sensitivity (98%), negative predictive value (71%), and classification accuracy (73%).Conclusion: The combination of a feature-selection method such as elastic net regularization and a classification approach produced well-fitted models. The SVM approach yielded better predictions than the other algorithms. This combination approach allowed us to develop a predictive model with high sensitivity but low specificity, to identify the population that could benefit from laboratory determination of serum levels of 25(OH)D.

目的:鉴于维生素D缺乏与心血管疾病风险之间的关联,我们使用机器学习方法建立了一个模型来预测维生素D缺乏的概率。血清25-羟基维生素D (25(OH)D)水平的测定提供了维生素D状态的最佳评估,但这种测试并不总是广泛可用或可行的。因此,我们的研究建立了具有高灵敏度的预测模型,以确定不太可能患有维生素D缺乏症或应该进行25(OH)D检测的患者。方法:我们收集了西班牙某大学医院1002例高血压患者的资料。采用弹性网正则化方法对数据集进行降维处理。确定维生素D状况的问题作为分类问题加以处理;因此,使用了以下分类器:逻辑回归,支持向量机(SVM),随机森林,朴素贝叶斯和极端梯度增强方法。计算分类准确性、敏感性、特异性和预测值,以评估每种方法的性能。结果:基于支持向量机的径向核方法在灵敏度(98%)、阴性预测值(71%)和分类准确率(73%)方面均优于其他算法。结论:结合弹性网正则化等特征选择方法和分类方法产生了良好的拟合模型。支持向量机方法比其他算法产生更好的预测。这种组合方法使我们能够开发一种高灵敏度但低特异性的预测模型,以确定可以从实验室测定血清25(OH)D水平中受益的人群。
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引用次数: 6
An Ecological Momentary Intervention for people with social anxiety: A descriptive case study. 对社交焦虑患者的生态瞬时干预:一个描述性案例研究。
IF 2.4 4区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2021-12-02 Epub Date: 2021-03-28 DOI: 10.1080/17538157.2021.1896525
Brendan Loo Gee, Philip J Batterham, Amelia Gulliver, Julia Reynolds, Kathleen M Griffiths
ABSTRACT This study describes the development and pilot evaluation of a smartphone- delivered Ecological Momentary Intervention (EMI) for people with social anxiety symptoms. Using a software engineering framework (agile modeling, model-driven development, bottom-up development), mental health experts and software developers collaborated to develop a 4-module EMI app designed to reduce social anxiety in real-time. Fifty-five participants with social anxiety were randomly allocated to the EMI or a wait-list control arm. App downloads, usage and user satisfaction data were collected and mental health outcomes assessed at baseline and post-intervention. Software development practices allowed mental health experts to distil core elements of a psychological intervention into discrete software components but there were challenges in engaging mental health experts in the process. Relative to control there was no significant reduction in social anxiety among the EMI participants in the pilot trial. However, post-test data were available for only 4 intervention and 10 control participants and only 2 (4.0%) of the EMI participants downloaded the app. The two participants who both accessed the app and completed the post-test reported being satisfied with the intervention. Future research should address managing resources and providing additional training to support ongoing engagement with key stakeholders.
本研究描述了智能手机生态瞬间干预(EMI)对社交焦虑症状患者的发展和试点评估。利用软件工程框架(敏捷建模、模型驱动开发、自下而上开发),心理健康专家和软件开发人员合作开发了一个由4个模块组成的EMI应用程序,旨在实时减少社交焦虑。55名患有社交焦虑的参与者被随机分配到EMI组或等候名单控制组。收集应用程序下载、使用和用户满意度数据,并在基线和干预后评估心理健康结果。软件开发实践允许心理健康专家将心理干预的核心要素提炼成离散的软件组件,但在让心理健康专家参与这一过程方面存在挑战。与对照组相比,试验性试验中EMI参与者的社交焦虑没有显著减少。然而,只有4名干预参与者和10名对照参与者的测试后数据可用,只有2名(4.0%)EMI参与者下载了应用程序。两名参与者都访问了应用程序并完成了后测试,他们报告对干预感到满意。未来的研究应解决管理资源和提供额外培训的问题,以支持与关键利益相关者的持续接触。
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引用次数: 0
Quantitative and qualitative evaluation of the COMPASS mobile app: a citizen science project. COMPASS移动应用程序的定量和定性评价:一个公民科学项目。
IF 2.4 4区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2021-12-02 Epub Date: 2021-04-13 DOI: 10.1080/17538157.2021.1902332
Jorge Luis Díaz, Núria Codern-Bové, Maria-Dolors Zomeño, Camille Lassale, Helmut Schröder, María Grau

To evaluate the usability of the COMPASS application with mixed-methodology, using a citizen science approach. Parents/tutors of 10-11 years old children attending a primary school in Barcelona, Spain, were invited to take part in the study. We conducted semi-structured interviews on a subset (n = 7) of participants, two weeks after using the app for the first time. A list of suggestions of improvement was extracted from the interviews. The System Usability Scale (SUS, range 0-100) was administered to all participants before and after the improvements were implemented. We provide both a quantitative analysis (t-test of change in SUS scores) and a qualitative thematic analysis of the interviews. A total of 22 participants were included in the study. The mean score before implementation of changes was 68.5 (Standard deviation, SD = 11.1), and improved to 73.1 (10.5) (p-value = 0.025). Regarding the qualitative assessment, we obtained 24 codes and grouped them into 3 categories. It uncovered problems in the installation phase and the main barriers to use: lack of time and the need for the app to evolve. The new version of COMPASS, improved by taking into account the participants' comments and suggestions, was more usable than the initial version.

使用公民科学方法,以混合方法评估COMPASS应用程序的可用性。西班牙巴塞罗那一所小学10-11岁儿童的家长/导师被邀请参加这项研究。我们对一部分参与者(n = 7)进行了半结构化访谈,时间是他们第一次使用这款应用两周后。从访谈中摘录了一份改进建议清单。在实施改进之前和之后,对所有参与者进行了系统可用性量表(SUS,范围0-100)。我们提供了定量分析(SUS分数变化的t检验)和访谈的定性专题分析。共有22名参与者参与了这项研究。实施改变前的平均得分为68.5分(标准差,SD = 11.1),改善为73.1分(10.5分)(p值= 0.025)。在定性评价方面,我们获得了24个编码,并将其分为3类。它揭示了安装阶段的问题和使用的主要障碍:缺乏时间和应用程序需要发展。新版本的COMPASS在考虑了参与者的意见和建议后得到了改进,比最初的版本更有用。
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引用次数: 3
Technological prescription: evaluation of the effectiveness of mobile applications to improve depression and anxiety. Systematic review. 技术处方:评估移动应用程序改善抑郁和焦虑的有效性。系统的回顾。
IF 2.4 4区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2021-09-02 Epub Date: 2021-03-08 DOI: 10.1080/17538157.2021.1887196
Raquel Planas, Oriol Yuguero

Several studies have shown that, due to their features, mobile applications have a great potential to address mental health in depression and anxiety. We carried out a systematic review of publications from the last 10 years: from 1 January 2010 until 31 March 2020. Systematic reviews and meta-analyses related to the research question were also selected to identify other potentially eligible studies. The literature search in selected databases returned a total of 3,011 records from which a total of 22 articles were finally selected. The main conclusion of the study is that most of the scientific evidence found supports the hypothesis that mobile applications significantly improve the symptoms associated with depression and anxiety. Therefore, their effectiveness as a digital tool in the treatment of such health problems is proven. However, further studies and further evaluations of mobile applications are required (also in other languages) to incorporate this resource into the healthcare context. In addition, since mobile applications allow reinforcing concepts such as patient empowerment, shared decision-making and health literacy, their use would be highly positive for depression and anxiety, where there is a strong element of self-managing the disease.

几项研究表明,由于它们的特点,移动应用程序在解决抑郁症和焦虑症的心理健康问题方面具有巨大的潜力。我们对过去10年(2010年1月1日至2020年3月31日)的出版物进行了系统评价。还选择了与研究问题相关的系统综述和荟萃分析来确定其他可能符合条件的研究。在选定的数据库中进行文献检索,共返回3011条记录,最终选出22篇文章。这项研究的主要结论是,发现的大多数科学证据都支持这样的假设,即移动应用程序可以显著改善与抑郁和焦虑相关的症状。因此,它们作为治疗此类健康问题的数字工具的有效性已得到证实。然而,需要对移动应用程序(也包括其他语言)进行进一步的研究和进一步的评估,以将这一资源纳入医疗保健环境。此外,由于移动应用程序可以强化诸如患者赋权、共同决策和卫生知识等概念,因此它们的使用将对抑郁症和焦虑症非常积极,因为这些疾病有很强的自我管理因素。
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引用次数: 7
Defining participatory health informatics - a scoping review. 界定参与式卫生信息学——范围审查。
IF 2.5 4区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2021-09-02 Epub Date: 2021-02-23 DOI: 10.1080/17538157.2021.1883028
Kerstin Denecke, Elia Gabarron, Carolyn Petersen, Mark Merolli

Healthcare has been shifting toward individuals participating in decision-making and empowered to be active in their treatment, and health monitoring. The term "participatory health informatics" (PHI) started to appear in literature. A clear definition of PHI is missing, and facets of PHI still have to be shaped. The objective of this paper is to offer a definition of PHI considering themes and technologies that make healthcare participatory. We searched Pubmed, ACM Digital Library, IEEE Xplore, EMBASE, and conference proceedings for articles that reported about use of information technology or informatics in the context of PHI. We performed qualitative synthesis and reported summary statistics. 39 studies were eligible after screening 382 titles and abstracts and reviewing 82 full texts. The top 5 person-centered key themes related to PHI included empowerment, decision-making, informed patient, collaboration, and disease management. Finally, we propose to define PHI as multidisciplinary field that uses information technology as provided through the web, smartphones, or wearables to increase participation of individuals in their care process and to enable them in self-care and shared decision-making. Goals to be achieved through PHI include maintaining health and well-being; improving the healthcare system and health outcomes; sharing experiences; achieving life goals; and self-education.

医疗保健已经转向个人参与决策,并授权积极参与他们的治疗和健康监测。“参与式卫生信息学”(PHI)一词开始出现在文献中。PHI的一个明确的定义是缺失的,PHI的各个方面仍然需要塑造。本文的目的是提供PHI的定义,考虑主题和技术,使医疗保健参与性。我们检索了Pubmed、ACM数字图书馆、IEEE explore、EMBASE和会议记录,以寻找有关在PHI环境中使用信息技术或信息学的文章。我们进行了定性综合并报告了汇总统计数据。在筛选了382篇标题和摘要以及审阅了82篇全文后,39篇研究入选。与PHI相关的前5个以人为中心的关键主题包括授权、决策、知情患者、协作和疾病管理。最后,我们建议将PHI定义为多学科领域,该领域使用通过网络、智能手机或可穿戴设备提供的信息技术来增加个人在其护理过程中的参与,并使他们能够自我护理和共同决策。通过PHI实现的目标包括保持健康和福祉;改善卫生保健系统和卫生结果;经验分享;实现人生目标;和自我教育。
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引用次数: 0
myPainPal: Co-creation of a mHealth app for the management of chronic pain in young people. myPainPal:与他人合作开发的移动健康应用程序,用于管理年轻人的慢性疼痛。
IF 2.4 4区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2021-09-02 Epub Date: 2021-03-30 DOI: 10.1080/17538157.2021.1892697
Marie Cooke, Julianne Richards, Dian Tjondronegoro, Prithwi Raj Chakraborty, Jacqueline Jauncey-Cooke, Elizabeth Andresen, Joanne Theodoros, Rebecca Paterson, Jessica Schults, Bhavesh Raithatha, Susan Wilson, Mark Alcock

Chronic pain is common in young people aged 10-14 years. Interdisciplinary, clinician-delivered treatments, while effective, are often criticized for failing to be readily accessible. Mobile health applications (mHealth apps) have been proposed as effective treatment adjuncts that address these challenges, while meeting the needs of tech-savvy young people. The objectives of this study were to co-create a mHealth app with consumers and health care professionals and evaluate the acceptability and feasibility of the resulting mHealth app (myPainPal). A phased, qualitative approach within a consumer engagement framework was employed. Interviews with young people (n = 14), parents (n = 12) and health care professionals (n = 8) identified key health needs that formed the underlying structure of the myPainPal app. Testing showed that the app is an acceptable and feasible platform to facilitate young people's self-management of chronic pain. The myPainPal app has the potential to positively influence young people's experiences of chronic pain. Further testing in controlled settings is required.

慢性疼痛在10-14岁的年轻人中很常见。跨学科的、由临床医生提供的治疗方法虽然有效,但往往因不易获得而受到批评。移动健康应用程序(移动健康应用程序)已被提议作为应对这些挑战的有效治疗辅助手段,同时满足精通技术的年轻人的需求。本研究的目的是与消费者和医疗保健专业人员共同创建一个移动健康应用程序,并评估由此产生的移动健康应用程序(myPainPal)的可接受性和可行性。采用了消费者参与框架内的阶段性定性方法。通过对青少年(n = 14)、父母(n = 12)和医疗保健专业人员(n = 8)的访谈,确定了构成myPainPal应用程序底层结构的关键健康需求。测试表明,该应用程序是一个可接受且可行的平台,可以促进年轻人对慢性疼痛的自我管理。myPainPal应用程序有可能对年轻人的慢性疼痛体验产生积极影响。需要在受控环境下进行进一步测试。
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引用次数: 5
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Informatics for Health & Social Care
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