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Shared decision-making between patients and healthcare providers at rural health facilities in Eastern Uganda: an exploratory qualitative study.
IF 3 1区 哲学 Q1 ETHICS Pub Date : 2025-01-27 DOI: 10.1186/s12910-025-01172-x
Ranga Solomon Owino, Olivia Kituuka, Paul Kutyabami, Nelson K Sewankambo

Background: Shared decision-making in healthcare is a collaborative process where patients are supported to make informed decisions according to their preferences. Healthcare decisions affect patients' lives which necessitates patients to participate in decisions concerning their health. This study explored experiences and ethical issues related to shared decision-making in a rural healthcare setting.

Methods: An exploratory qualitative study was conducted at Budumba Health Centre III and Butaleja Health Centre III in rural Eastern Uganda. In this study, 23 in-depth interviews were conducted among 12 healthcare providers and 11 patients. Data was analyzed thematically using NVivo-12 plus software.

Results: Four themes emerged which included: Paternalistic cultures of care, challenges, strategies for improvement, and ethical issues. Patients at both facilities expressed the need to be involved in decision-making processes. However, many stressed that they are not engaged in decision-making about their health. Many healthcare providers noted that shared decision-making could improve patient prognosis but are faced with challenges related to low male involvement and the influence of cultural and religious practices, including myths and patriarchal attitudes which impact effective patient engagement. Ethical issues identified include concerns about informed consent, privacy and confidentiality, deception, and harm.

Conclusions: This study highlighted the need for better sensitization of patients and comprehensive training for healthcare providers to minimize and resolve ethical issues that emerge during shared decision-making processes. Therefore, targeted interventions are needed to enhance decision-making processes in rural healthcare including but not limited to developing shared decision-making manual and continuous training of healthcare providers to ethically engage patients. Further research is needed to explore larger facilities with a bigger scope including patients under 18 years of age and and their surrogates.

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引用次数: 0
Aesthetic dentistry and ethics: a systematic review of marketing practices and overtreatment in cosmetic dental procedures.
IF 3 1区 哲学 Q1 ETHICS Pub Date : 2025-01-27 DOI: 10.1186/s12910-025-01169-6
Masoumeh Rostamzadeh, Farshad Rahimi

Background: The increasing societal emphasis on physical appearance, particularly influenced by social media, has led to a significant rise in demand for aesthetic dentistry procedures. This study aims to explore the ethical dimensions of marketing practices and the phenomenon of overtreatment in cosmetic dental procedures, highlighting the implications for patient care and professional integrity.

Methods: A systematic literature review was conducted across four databases, yielding an initial 76 articles. After applying inclusion and exclusion criteria, 12 articles were selected for analysis. The review focused on ethical considerations, marketing practices, and overtreatment in aesthetic dentistry, employing narrative synthesis to extract relevant data.

Results: The findings indicate that social media is a primary driver of patient expectations, often prioritizing aesthetic outcomes over health considerations. This trend raises ethical concerns about informed consent and autonomy. The commodification of dental care, fueled by aggressive marketing strategies, has resulted in a notable increase in overtreatment, where unnecessary procedures are performed to satisfy commercial pressures and idealized beauty standards. The review highlights a lack of robust ethical guidelines governing marketing practices in aesthetic dentistry, exacerbating these issues.

Conclusions: The study underscores the urgent need for clear ethical frameworks to guide dental practitioners in balancing patient welfare with business interests. Recommendations include the implementation of ethics education in dental curricula, the development of comprehensive ethical guidelines, and fostering open communication between practitioners and patients. These measures are essential for enhancing informed decision-making and ensure that patient care remains the priority in aesthetic dentistry.

{"title":"Aesthetic dentistry and ethics: a systematic review of marketing practices and overtreatment in cosmetic dental procedures.","authors":"Masoumeh Rostamzadeh, Farshad Rahimi","doi":"10.1186/s12910-025-01169-6","DOIUrl":"https://doi.org/10.1186/s12910-025-01169-6","url":null,"abstract":"<p><strong>Background: </strong>The increasing societal emphasis on physical appearance, particularly influenced by social media, has led to a significant rise in demand for aesthetic dentistry procedures. This study aims to explore the ethical dimensions of marketing practices and the phenomenon of overtreatment in cosmetic dental procedures, highlighting the implications for patient care and professional integrity.</p><p><strong>Methods: </strong>A systematic literature review was conducted across four databases, yielding an initial 76 articles. After applying inclusion and exclusion criteria, 12 articles were selected for analysis. The review focused on ethical considerations, marketing practices, and overtreatment in aesthetic dentistry, employing narrative synthesis to extract relevant data.</p><p><strong>Results: </strong>The findings indicate that social media is a primary driver of patient expectations, often prioritizing aesthetic outcomes over health considerations. This trend raises ethical concerns about informed consent and autonomy. The commodification of dental care, fueled by aggressive marketing strategies, has resulted in a notable increase in overtreatment, where unnecessary procedures are performed to satisfy commercial pressures and idealized beauty standards. The review highlights a lack of robust ethical guidelines governing marketing practices in aesthetic dentistry, exacerbating these issues.</p><p><strong>Conclusions: </strong>The study underscores the urgent need for clear ethical frameworks to guide dental practitioners in balancing patient welfare with business interests. Recommendations include the implementation of ethics education in dental curricula, the development of comprehensive ethical guidelines, and fostering open communication between practitioners and patients. These measures are essential for enhancing informed decision-making and ensure that patient care remains the priority in aesthetic dentistry.</p>","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":"26 1","pages":"12"},"PeriodicalIF":3.0,"publicationDate":"2025-01-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143054324","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Ethical issues raised in the care of the elderly during the SARS-CoV-2 pandemic and possible solutions for the future: a systematic review of qualitative scientific literature.
IF 3 1区 哲学 Q1 ETHICS Pub Date : 2025-01-25 DOI: 10.1186/s12910-024-01149-2
Mohamed Amine Bouchlaghem, Zoé Estey-Amyot, Erika Ethier, Miruna Anohim, Marie-Laurence Ouellet-Pelletier, Lyse Langlois, Félix Pageau

Background: The COVID-19 pandemic has led governments worldwide to make ethically controversial decisions. As a result, healthcare professionals are facing several ethical dilemmas, especially in terms of healthcare services provided to senior citizens. Thus, the aim of this review is to identify and categorize ethical dilemmas as well as propose solutions regarding health care services for elderly individuals.

Methods: A qualitative systematic review of the literature was undertaken in the first tier of the pandemic. All identified scientific and editorial articles published in English or French between December 2019 and October 2021 were included. An article was excluded if it was commercial, did not address an issue in the care of the elderly or present any qualitative data. Article eligibility was determined through a process of triangulation among three independent reviewers.

Results: Initially, 69 articles met our inclusion criteria and were selected for this review. These studies can be divided into 2 distinct categories: scientific articles (17 studies) and expert opinion articles (52 articles). However, due to the large quantity of qualitative data that was extracted, only the results from the scientific literature are presented here. The analysis of the data of 17 studies has allowed the emergence of 2 main themes of ethical dilemmas: 1) access to care (3 subthemes: A) triage decisions for admission, B) access to the intensive care unit and C) vaccine allocation) and 2) infection control decisions (2 subthemes: (D) isolation and E) autonomy). Our results also revealed 4 categories of potential solutions to the encountered ethical dilemmas, namely, optimal protocols, enhanced communication, caregiver support and technological assistance (virtual team-based, AI).

Conclusions: The ethical dilemmas that emerged from our results highlight the interest of a serious international discussion around the phenomena of ageism and its potential ethical implications for health care workers (be it under normal circumstances or exceptional circumstances such as those of a pandemic). We highly recommend that future research be undertaken to test the efficacy of the proposed solutions in providing age-friendly, dilemma-free health care and environments.

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引用次数: 0
Lay views in Southern France of the acceptability of refusing to provide treatment because of alleged futility.
IF 3 1区 哲学 Q1 ETHICS Pub Date : 2025-01-25 DOI: 10.1186/s12910-025-01171-y
María Teresa Muñoz Sastre, Paul Clay Sorum, Etienne Mullet

Aim: To carry out a detailed study of existing positions in the French public of the acceptability of refusing treatment because of alleged futility, and to try to link these to people's age, gender, and religious practice.

Method: 248 lay participants living in southern France were presented with 16 brief vignettes depicting a cancer patient at the end of life who asks his doctor to administer a new cancer treatment he has heard about. Considering that this treatment is futile in the patient's case, the doctor refuses to prescribe it. The vignettes were composed by systematically varying the level of four factors: likelihood of a positive effect, painfulness to the patient of the treatment, cost of the treatment, and attitude of the family.

Results: Five main positions were identified. For 10%, refusing treatment was almost never acceptable. 35% judged acceptability in line with the level of painfulness. 19% judged acceptability consistent with an interaction between the painfulness of treatment and likelihood of positive effect. For 30% it was either almost always acceptable or always acceptable. 5% did not take a position.

Conclusion: A range of positions regarding the acceptability of refusing to provide treatment on the basis of perceived futility was observed. These positions have been analyzed in terms of what physicians and medical ethicists would see as the four principles of medical ethics. This description of lay people's positions in terms of the principles of medical ethics present clinicians with a conceptual tool to improve communication and shared decision making.

目的:详细研究法国公众对因所谓的治疗无效而拒绝治疗的可接受性的现有立场,并尝试将这些立场与人们的年龄、性别和宗教信仰联系起来。方法:向居住在法国南部的 248 名非专业参与者展示 16 个简短的小故事,描述一名癌症患者在生命的最后阶段要求医生采用他听说过的一种新的癌症治疗方法。考虑到这种疗法对病人来说是徒劳无益的,医生拒绝为其开具处方。这些小故事是通过系统地改变以下四个因素的水平而构成的:产生积极效果的可能性、治疗给病人带来的痛苦、治疗费用以及家属的态度:结果:确定了五种主要立场。10%的人几乎从不接受拒绝治疗。35% 的人根据痛苦程度判断是否可以接受。19% 的人根据治疗的痛苦程度与产生积极效果的可能性之间的相互作用来判断可接受性。30%的人认为几乎总是可以接受或总是可以接受。5%的人没有表态:结论:对于以认为治疗无效为由拒绝提供治疗的可接受性,我们观察到了不同的立场。我们根据医生和医学伦理学家认为的医学伦理四项原则对这些立场进行了分析。从医学伦理原则的角度描述非专业人士的立场,为临床医生提供了一个概念工具,以改善沟通和共同决策。
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引用次数: 0
Students' attitudes toward euthanasia and abortion: a cross-cultural study in three Mediterranean countries.
IF 3 1区 哲学 Q1 ETHICS Pub Date : 2025-01-23 DOI: 10.1186/s12910-025-01167-8
Ivana Tutić Grokša, Ana Depope, Tijana Trako Poljak, Igor Eterović, Toni Buterin, Robert Doričić, Mariana Gensabella, Maria Laura Giacobello, Josip Guć, Eleni Kalokairinou, Željko Kaluđerović, Iva Rinčić, Ivana Zagorac, Miltiadis Vantsos, Amir Muzur

Introduction: Abortion and euthanasia are still one of the greatest bioethical challenges. Previous studies have shown that there are differences in attitudes towards these issues depending on socio-demographic characteristics and socio-cultural environment (country of residence). As part of the scientific research project EuroBioMed, we compared the attitudes of students from three Mediterranean countries towards abortion and euthanasia and examined them from the perspective of Mediterranean bioethics.

Methods: A pen-to-paper survey was conducted on a convenient sample of students (N = 1097) from five universities and four fields of study (Medicine, Law, Theology and Philosophy) in Croatia, Greece and Italy to investigate their attitudes towards abortion and euthanasia. Three hypotheses were tested using t-test and ANOVA for differences in attitudes according to country, field of study, year of study, gender, religiosity, political orientation, financial status, and size of place of residence.

Results: While attitudes towards abortion were not statistically significantly different between students from different countries, the analysis showed that students from Italy had more liberal attitudes towards euthanasia. Theology students had more conservative attitudes towards both abortion and euthanasia, while there were no differences between the other groups. Women, final year students, non-religious and politically left-oriented students had more liberal attitudes.

Conclusion: The results provided an insight into students' attitudes towards abortion and euthanasia. Knowledge of the attitudes of these future experts can be valuable for the discussion of these issues. These results also provided a basis for a better understanding of the construct of Mediterranean bioethics.

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引用次数: 0
Compliance with research participant protection guidelines by Nigerian medical journals.
IF 3 1区 哲学 Q1 ETHICS Pub Date : 2025-01-22 DOI: 10.1186/s12910-025-01168-7
Adaora A Onyiaorah, Euzebus C Ezugwu

Background: Stakeholders in medical research have roles in ensuring that research participants are protected. Medical journals play gatekeeping roles in the responsible conduct of research. They help guard against the publication of findings of unethical research, such as those with compromised participant welfare. Nigerian medical journals are being created to support the growing number of research enterprises. In this study, we aimed to determine the compliance of Nigerian medical journals with guidelines on research participant protection.

Methods: This was a descriptive cross-sectional study of Nigerian medical journals and articles. We used a checklist to obtain information on journal characteristics and the presence of recommendations from the International Committee of Medical Journal Editors (ICMJE) on the protection of research participants in the journal instructions to authors and articles. The data were analysed via IBM SPSS version 23.

Results: We studied 40 journals and 350 journal articles. Thirty-one (77.5%) journals required ethical approval and the Declaration of Helsinki statement in their instructions to the authors, while informed consent was present in 26 (65.0%) journals; 6 (15.0%) journals had no participant protection guidelines. Forty-one (11.7%) articles complied with all three recommendations on research participant protection, whereas 60 (17.1%) articles did not. Ethical approval was most common in 268 (76.6%) articles, whereas it was least common in statements on the Declaration of Helsinki in 50 (14.3%) articles. The presence of participant protection recommendations in instructions to authors was not associated with compliance with these recommendations in published articles (p > 0.05).

Conclusion: Although there is fairly good compliance of Nigerian medical journals with research participant protection recommendations, there are still gaps, which highlight the need for remedial measures.

{"title":"Compliance with research participant protection guidelines by Nigerian medical journals.","authors":"Adaora A Onyiaorah, Euzebus C Ezugwu","doi":"10.1186/s12910-025-01168-7","DOIUrl":"10.1186/s12910-025-01168-7","url":null,"abstract":"<p><strong>Background: </strong>Stakeholders in medical research have roles in ensuring that research participants are protected. Medical journals play gatekeeping roles in the responsible conduct of research. They help guard against the publication of findings of unethical research, such as those with compromised participant welfare. Nigerian medical journals are being created to support the growing number of research enterprises. In this study, we aimed to determine the compliance of Nigerian medical journals with guidelines on research participant protection.</p><p><strong>Methods: </strong>This was a descriptive cross-sectional study of Nigerian medical journals and articles. We used a checklist to obtain information on journal characteristics and the presence of recommendations from the International Committee of Medical Journal Editors (ICMJE) on the protection of research participants in the journal instructions to authors and articles. The data were analysed via IBM SPSS version 23.</p><p><strong>Results: </strong>We studied 40 journals and 350 journal articles. Thirty-one (77.5%) journals required ethical approval and the Declaration of Helsinki statement in their instructions to the authors, while informed consent was present in 26 (65.0%) journals; 6 (15.0%) journals had no participant protection guidelines. Forty-one (11.7%) articles complied with all three recommendations on research participant protection, whereas 60 (17.1%) articles did not. Ethical approval was most common in 268 (76.6%) articles, whereas it was least common in statements on the Declaration of Helsinki in 50 (14.3%) articles. The presence of participant protection recommendations in instructions to authors was not associated with compliance with these recommendations in published articles (p > 0.05).</p><p><strong>Conclusion: </strong>Although there is fairly good compliance of Nigerian medical journals with research participant protection recommendations, there are still gaps, which highlight the need for remedial measures.</p>","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":"26 1","pages":"8"},"PeriodicalIF":3.0,"publicationDate":"2025-01-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11753085/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143025356","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Disparity in attitudes regarding assisted dying among physicians and the general public in Japan. 日本医生和公众对协助死亡态度的差异。
IF 3 1区 哲学 Q1 ETHICS Pub Date : 2025-01-20 DOI: 10.1186/s12910-025-01166-9
Yoshiyuki Takimoto, Tadanori Nabeshima

Background: Recently, an increasing number of countries have been allowing voluntary active euthanasia (VAE) and physician-assisted suicide (PAS) as part of palliative care. Japan stands out as the most aged country in the developed world, and while the need for palliative care for older adults with dementia has been noted, there has been reluctance to openly address VAE and PAS.

Methods: We conducted an online questionnaire survey using a vignette case to investigate the attitudes of Japanese physicians and the general public towards VAE and PAS, and the factors influencing these attitudes.

Results: The findings revealed that Japanese physicians did not display support for euthanasia (2%) and assisted suicide (1%); however, the general public supported euthanasia (33%) and assisted suicide (34%). Notably, among the general public, males exhibited significantly higher support for PAS than females.

Conclusion: Japanese physicians and the general public expressed a more negative stance towards VAE and PAS compared with their counterparts in Western countries. This disparity may be attributed to the influence of the Buddhist view of life and death and family-centeredness in the Japanese culture, which affects people's attitudes towards assisted dying. The gap between physicians and the general public could potentially lead to challenges in medical practice, thereby, necessitating the need for open discussions in the future.

背景:最近,越来越多的国家允许自愿主动安乐死(VAE)和医生协助自杀(PAS)作为姑息治疗的一部分。日本是发达国家中老龄化最严重的国家,虽然已经注意到老年痴呆症患者需要姑息治疗,但一直不愿公开解决VAE和PAS问题。方法:采用网络问卷调查的方式,结合一个小案例,调查日本医生和公众对VAE和PAS的态度及其影响因素。结果:调查结果显示,日本医生不支持安乐死(2%)和协助自杀(1%);然而,公众支持安乐死(33%)和协助自杀(34%)。值得注意的是,在普通公众中,男性对PAS的支持率明显高于女性。结论:与西方国家相比,日本医生和公众对VAE和PAS的态度更为消极。这种差异可能是由于日本文化中佛教的生死观和以家庭为中心的观念的影响,影响了人们对协助死亡的态度。医生和公众之间的差距可能会导致医疗实践中的挑战,因此需要在未来进行公开讨论。
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引用次数: 0
Ethical dilemmas concerning orthodontic treatment among orthodontists in a sample from Saudi Arabia: a pilot study. 来自沙特阿拉伯的正畸医生样本中正畸治疗的伦理困境:一项试点研究。
IF 3 1区 哲学 Q1 ETHICS Pub Date : 2025-01-16 DOI: 10.1186/s12910-024-01142-9
Nawaf H Al Shammary, Abdulrahman K Alshammari

Background: Ethics is based on moral principles that should be the foundation for every healthcare decision, however, ethical concepts can often be challenging to define in specific clinical scenarios. There are several instances where a practising clinician often finds it difficult to make a proper decision despite maintaining integrity and professionalism. The objective of the present study was to explore the ethical dilemma faced by orthodontists practicing in Saudi Arabia concerning orthodontic treatment.

Method: This was a questionnaire-based cross-sectional study that was adapted from the scenarios of ethical dilemmas presented by Jerrold in 1998. Ten orthodontists from each province of Saudi Arabia were requested to participate in this study and the questionnaire were sent through email and their responses were analysed.

Results: A total of 37 responses were obtained (out of 130) with a response rate of 28.46%. Among them 23 were female and 14 were male. Most participants belonged to the age group 30-39 years and most of them have clinical experience of more than 5 years. There was a wide variation in the responses among the participants in all the scenarios presented. The median likelihood of getting similar scenarios in their clinical practice in Saudi Arabia ranged from 3 to 3.5.

Conclusion: There was a wide variation in the opinion among the practising orthodontists in Saudi Arabia in the scenarios presented. The presented scenarios are less likely to be perceived in the local context and some new situations of ethical dilemmas are identified.

背景:伦理是建立在道德原则的基础上的,它应该是每一个医疗保健决策的基础,然而,在特定的临床情况下,伦理概念往往是具有挑战性的。有几个例子,执业临床医生经常发现很难做出正确的决定,尽管保持诚信和专业精神。本研究的目的是探讨在沙特阿拉伯从事正畸治疗的正畸医生所面临的伦理困境。方法:采用基于问卷的横断面研究,改编自1998年Jerrold提出的伦理困境情境。来自沙特阿拉伯每个省的10名正畸医生被要求参与本研究,并通过电子邮件发送问卷并分析他们的回答。结果:共获得应答37例(130例),应答率28.46%。其中女性23人,男性14人。研究对象年龄多在30 ~ 39岁,临床经验多在5年以上。在所有呈现的场景中,参与者的反应差异很大。在沙特阿拉伯的临床实践中,出现类似情况的中位数可能性从3到3.5不等。结论:在沙特阿拉伯的执业正畸医生中,对所提出的情景的看法存在很大差异。所提出的情景不太可能在当地环境中被感知,并且确定了一些新的伦理困境情况。
{"title":"Ethical dilemmas concerning orthodontic treatment among orthodontists in a sample from Saudi Arabia: a pilot study.","authors":"Nawaf H Al Shammary, Abdulrahman K Alshammari","doi":"10.1186/s12910-024-01142-9","DOIUrl":"https://doi.org/10.1186/s12910-024-01142-9","url":null,"abstract":"<p><strong>Background: </strong>Ethics is based on moral principles that should be the foundation for every healthcare decision, however, ethical concepts can often be challenging to define in specific clinical scenarios. There are several instances where a practising clinician often finds it difficult to make a proper decision despite maintaining integrity and professionalism. The objective of the present study was to explore the ethical dilemma faced by orthodontists practicing in Saudi Arabia concerning orthodontic treatment.</p><p><strong>Method: </strong>This was a questionnaire-based cross-sectional study that was adapted from the scenarios of ethical dilemmas presented by Jerrold in 1998. Ten orthodontists from each province of Saudi Arabia were requested to participate in this study and the questionnaire were sent through email and their responses were analysed.</p><p><strong>Results: </strong>A total of 37 responses were obtained (out of 130) with a response rate of 28.46%. Among them 23 were female and 14 were male. Most participants belonged to the age group 30-39 years and most of them have clinical experience of more than 5 years. There was a wide variation in the responses among the participants in all the scenarios presented. The median likelihood of getting similar scenarios in their clinical practice in Saudi Arabia ranged from 3 to 3.5.</p><p><strong>Conclusion: </strong>There was a wide variation in the opinion among the practising orthodontists in Saudi Arabia in the scenarios presented. The presented scenarios are less likely to be perceived in the local context and some new situations of ethical dilemmas are identified.</p>","PeriodicalId":55348,"journal":{"name":"BMC Medical Ethics","volume":"26 1","pages":"6"},"PeriodicalIF":3.0,"publicationDate":"2025-01-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11737042/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143016843","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":1,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Navigating ethics in HIV data and biomaterial management within Black, African, and Caribbean communities in Canada. 在加拿大的黑人、非洲人和加勒比社区中导航艾滋病毒数据和生物材料管理的伦理。
IF 3 1区 哲学 Q1 ETHICS Pub Date : 2025-01-16 DOI: 10.1186/s12910-025-01161-0
Rusty Souleymanov, Bolaji Akinyele-Akanbi, Chinyere Njeze, Patricia Ukoli, Paula Migliardi, Linda Larcombe, Gayle Restall, Laurie Ringaert, Michael Payne, John Kim, Wangari Tharao, Ayn Wilcox

Background: This study explored the ethical issues associated with community-based HIV testing among African, Caribbean, and Black (ACB) populations in Canada, focusing on their perceptions of consent, privacy, and the management of HIV-related data and bio-samples.

Methods: A qualitative community-based participatory research (CBPR) approach was employed to actively engage ACB community members in shaping the research process. The design included in-depth qualitative interviews with 33 ACB community members in Manitoba, Canada. The study was guided by a Community Guiding Circle, which contributed to study design, data analysis, and interpretation. A diverse sample was recruited through community agencies, social media, and flyers, with considerations for variations in age, gender, sexual orientation, and geographical location. The study employed iterative inductive thematic data analysis.

Findings: Participants expressed significant concerns about the collection, sharing, and use of HIV data from healthcare encounters, revealing mistrust towards institutions like police, child welfare, and immigration accessing their health information. Their worries centered on the handling of biological samples, data misuse, potential human rights violations, HIV criminalization, deportations, challenging consent, privacy, and bodily autonomy principles. While open to contributing to medical research, they unanimously demanded greater transparency, informed consent, and control over the secondary use of their health data.

Conclusions: The study underscores the need for culturally safe approaches in HIV testing and ethical governance in healthcare for ACB communities. It highlights the importance of prioritizing participant empowerment, ensuring transparency, practicing informed consent, and implementing robust data security measures to balance effective HIV information management with the protection of individual rights.

背景:本研究探讨了加拿大非洲、加勒比和黑人(ACB)人群中与社区艾滋病毒检测相关的伦理问题,重点关注他们对同意、隐私和艾滋病毒相关数据和生物样本管理的看法。方法:采用定性社区参与性研究(CBPR)方法,让ACB社区成员积极参与研究过程。该设计包括对加拿大马尼托巴省33名ACB社区成员进行深入的定性访谈。该研究由社区指导圈指导,该指导圈为研究设计、数据分析和解释做出了贡献。考虑到年龄、性别、性取向和地理位置的差异,通过社区机构、社交媒体和传单招募了不同的样本。本研究采用迭代归纳主题性数据分析。调查结果:与会者对收集、共享和使用来自医疗机构的艾滋病毒数据表示严重关切,显示出对警察、儿童福利和移民等机构获取其健康信息的不信任。他们的担忧集中在生物样本的处理、数据滥用、潜在的侵犯人权、艾滋病毒定罪、驱逐出境、对同意、隐私和身体自主原则的挑战。虽然他们愿意为医学研究作出贡献,但他们一致要求提高透明度、知情同意和控制其健康数据的二次使用。结论:该研究强调了ACB社区在艾滋病毒检测和卫生保健伦理治理中采用文化上安全的方法的必要性。它强调了优先考虑参与者赋权、确保透明度、实行知情同意和实施强有力的数据安全措施以平衡有效的艾滋病毒信息管理与保护个人权利的重要性。
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引用次数: 0
High-reward, high-risk technologies? An ethical and legal account of AI development in healthcare. 高回报、高风险的技术?医疗保健领域人工智能发展的伦理和法律解释。
IF 3 1区 哲学 Q1 ETHICS Pub Date : 2025-01-15 DOI: 10.1186/s12910-024-01158-1
Maelenn Corfmat, Joé T Martineau, Catherine Régis

Background: Considering the disruptive potential of AI technology, its current and future impact in healthcare, as well as healthcare professionals' lack of training in how to use it, the paper summarizes how to approach the challenges of AI from an ethical and legal perspective. It concludes with suggestions for improvements to help healthcare professionals better navigate the AI wave.

Methods: We analyzed the literature that specifically discusses ethics and law related to the development and implementation of AI in healthcare as well as relevant normative documents that pertain to both ethical and legal issues. After such analysis, we created categories regrouping the most frequently cited and discussed ethical and legal issues. We then proposed a breakdown within such categories that emphasizes the different - yet often interconnecting - ways in which ethics and law are approached for each category of issues. Finally, we identified several key ideas for healthcare professionals and organizations to better integrate ethics and law into their practices.

Results: We identified six categories of issues related to AI development and implementation in healthcare: (1) privacy; (2) individual autonomy; (3) bias; (4) responsibility and liability; (5) evaluation and oversight; and (6) work, professions and the job market. While each one raises different questions depending on perspective, we propose three main legal and ethical priorities: education and training of healthcare professionals, offering support and guidance throughout the use of AI systems, and integrating the necessary ethical and legal reflection at the heart of the AI tools themselves.

Conclusions: By highlighting the main ethical and legal issues involved in the development and implementation of AI technologies in healthcare, we illustrate their profound effects on professionals as well as their relationship with patients and other organizations in the healthcare sector. We must be able to identify AI technologies in medical practices and distinguish them by their nature so we can better react and respond to them. Healthcare professionals need to work closely with ethicists and lawyers involved in the healthcare system, or the development of reliable and trusted AI will be jeopardized.

背景:考虑到人工智能技术的颠覆性潜力,它对医疗保健的当前和未来的影响,以及医疗保健专业人员缺乏如何使用它的培训,本文总结了如何从伦理和法律的角度来应对人工智能的挑战。它最后提出了改进建议,以帮助医疗保健专业人员更好地驾驭人工智能浪潮。方法:我们分析了专门讨论与人工智能在医疗保健领域的发展和实施相关的伦理和法律的文献,以及涉及伦理和法律问题的相关规范性文件。经过这样的分析,我们将最常被引用的内容重新分类,并讨论了伦理和法律问题。然后,我们在这些类别中提出了一个细分,强调了不同的——但往往是相互联系的——方式,在每个类别的问题中,伦理和法律是如何处理的。最后,我们为医疗保健专业人员和组织确定了几个关键想法,以更好地将道德和法律整合到他们的实践中。结果:我们确定了与医疗保健中人工智能开发和实施相关的六类问题:(1)隐私;(二)个人自治;(3)偏见;(四)责任和义务;(五)评估和监督;(6)工作、职业和就业市场。虽然每个人都会根据不同的视角提出不同的问题,但我们提出了三个主要的法律和道德优先事项:医疗保健专业人员的教育和培训,在人工智能系统的整个使用过程中提供支持和指导,以及将必要的道德和法律反思整合到人工智能工具本身的核心。结论:通过强调人工智能技术在医疗保健领域的发展和实施所涉及的主要伦理和法律问题,我们说明了它们对专业人员的深刻影响,以及它们与医疗保健部门患者和其他组织的关系。我们必须能够识别医疗实践中的人工智能技术,并根据其性质区分它们,以便我们能够更好地应对和应对它们。医疗保健专业人员需要与医疗保健系统中涉及的伦理学家和律师密切合作,否则将危及可靠和可信的人工智能的发展。
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引用次数: 0
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