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Sensory impairments, loneliness, and quality of life among middle-aged and older Europeans: the mediating roles of depressive symptoms and activity participation. 欧洲中老年人群的感觉障碍、孤独和生活质量:抑郁症状和活动参与的中介作用
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2026-02-01 DOI: 10.1080/13607863.2025.2553329
Mathilde Sofie Schmidt Hansen, Jesper Lykkegaard, Sören Möller, Niels Kristian Kjær, Linda Juel Ahrenfeldt

Objectives: To examine how sensory impairments are associated with loneliness and quality of life (QoL) over time, and to assess the mediating roles of depressive symptoms and activity participation.

Method: A longitudinal study including 83,459 participants who took part in at least two waves of the Survey of Health, Ageing and Retirement in Europe (2011-2022). Mixed-effects linear regression models were used, adjusting for socio-demographic and health-related factors.

Results: Sensory impairments were associated with increased loneliness and reduced QoL. For vision impairment (VI), loneliness increased (coef. = 0.13, 95% CI: 0.11; 0.15) and QoL decreased (coef. = -1.01, 95% CI: -1.10; -0.92). Hearing impairment (HI) showed similar patterns (loneliness: 0.11, 95% CI: 0.08; 0.14; QoL: -0.76, 95% CI: -0.88; -0.64), while dual sensory impairment (DSI) showed the strongest associations (loneliness: 0.30, 95% CI: 0.26; 0.33; QoL: -2.18, 95% CI: -2.32; -2.04). Depressive symptoms were the most prominent mediator, while activity participation mediated only the associations with VI and DSI. Associations were strongest for HI and loneliness, and DSI and QoL, in women. Loneliness associations were most pronounced in Northern and Western Europe.

Conclusion: Addressing depressive symptoms may be key to mitigating loneliness and reduced QoL in older adults with sensory impairments.

目的:研究感觉障碍如何随时间与孤独和生活质量(QoL)相关,并评估抑郁症状和活动参与的中介作用。方法:一项纵向研究,包括83,459名参与者,他们参加了至少两波欧洲健康、老龄化和退休调查(2011-2022)。使用混合效应线性回归模型,调整社会人口统计学和健康相关因素。结果:感觉障碍与孤独感增加和生活质量降低有关。对于视力障碍(VI),孤独感增加(coef = 0.13, 95% CI: 0.11; 0.15),生活质量下降(coef = -1.01, 95% CI: -1.10; -0.92)。听力障碍(HI)表现出相似的模式(孤独:0.11,95% CI: 0.08; 0.14;生活质量:-0.76,95% CI: -0.88; -0.64),而双重感觉障碍(DSI)表现出最强的关联(孤独:0.30,95% CI: 0.26; 0.33;生活质量:-2.18,95% CI: -2.32; -2.04)。抑郁症状是最显著的中介,而活动参与仅介导了与VI和DSI的关联。在女性中,HI和孤独、DSI和生活质量的相关性最强。孤独感在北欧和西欧最为明显。结论:解决抑郁症状可能是减轻老年人感觉障碍患者孤独感和生活质量下降的关键。
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引用次数: 0
Navigating dementia care: a systematic review of young and young adult carers' needs and support solutions. 引导痴呆症护理:对青年和青年成人护理者的需求和支持解决方案的系统审查。
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2026-02-01 Epub Date: 2025-10-01 DOI: 10.1080/13607863.2025.2564719
Ki Tong, Jodi Emma Wainwright, Joanna Horne, Kerry Jones, Klara Dadova, Elena Alder, Agnes Leu, Louise Birkett-Swan, Jitka Vseteckova

Objectives: This systematic review aimed to explore the available support and identify the unique needs of young and young adult carers of individuals with dementia.

Method: A systematic review following PRISMA guidelines was conducted. Electronic databases, including PubMed, Web of Science, PsycINFO, CINAHL, and Ovid, along with Google Scholar for grey literature, were searched. A narrative synthesis approach was used to analyse the findings of the included studies. The quality of the articles was assessed using the Mixed Methods Appraisal Tool (MMAT).

Results: Seven studies met the predefined inclusion criteria and were included in the narrative synthesis. Findings revealed that young and young adult carers often lack knowledge of available support services and face challenges navigating the healthcare system. Caregiving responsibilities were found to hinder educational and career aspirations, leading to social isolation and strained relationships. The support received from family, friends, and teachers was often inconsistent and inadequate. A significant finding was the lack of differentiation between young and young adult carers in the existing research, despite their distinct social care support needs.

Conclusion: The limited research highlights a critical gap in the literature regarding the support and needs of young and young adult carers of people with dementia. The lack of distinction between these two groups, who receive different social care support, emphasises the need for further research to better understand their unique experiences. There is an urgent need for targeted education and support programmes that address the distinct developmental needs and challenges of this population, promoting their well-being and safeguarding their personal and educational aspirations.

目的:本系统综述旨在探索可获得的支持,并确定痴呆症患者的青年和青年成人护理者的独特需求。方法:按照PRISMA指南进行系统评价。电子数据库,包括PubMed, Web of Science, PsycINFO, CINAHL和Ovid,以及谷歌Scholar的灰色文献,被搜索。采用叙事综合方法分析纳入研究的结果。使用混合方法评估工具(MMAT)评估文章的质量。结果:7项研究符合预定的纳入标准,并被纳入叙事综合。调查结果显示,年轻和年轻的成人护理人员往往缺乏对现有支持服务的了解,并面临着在医疗保健系统中导航的挑战。研究发现,照料责任阻碍了教育和职业抱负,导致社会孤立和关系紧张。从家人、朋友和老师那里得到的支持往往是不一致和不充分的。一个重要的发现是,在现有的研究中,青年和青年成人照顾者之间缺乏区分,尽管他们有不同的社会照顾支持需求。结论:有限的研究突出了文献中关于老年痴呆症患者的支持和需求的关键差距。这两个群体之间缺乏区别,他们接受不同的社会关怀支持,强调需要进一步研究,以更好地了解他们的独特经历。迫切需要有针对性的教育和支助方案,以解决这一人口的独特发展需要和挑战,促进他们的福祉,保障他们的个人和教育愿望。
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引用次数: 0
Role of learning experiences of care knowledge and skills on caregiver burden and self-esteem among informal caregivers: an observational cross-sectional study. 非正式照顾者护理知识和技能学习经验对照顾者负担和自尊的影响:一项观察性横断面研究。
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2026-02-01 Epub Date: 2025-08-23 DOI: 10.1080/13607863.2025.2548017
Taiji Noguchi, Xueying Jin, Takeshi Nakagawa, Ayane Komatsu, Tami Saito

Objectives: Acquiring caregiving knowledge and skills may reduce informal caregivers' burden and enhance positive feelings, yet evidence on the impact of the learning across caregiving domains is limited. We examined the association between learning experiences in caregiving knowledge/skills and caregivers' negative and positive outcomes.

Method: This cross-sectional study involved 934 informal caregivers (mean 58.4 years) of family members aged ≥65 years, via an internet-based questionnaire. The Japanese version of the Caregiver Reaction Assessment (CRA-J) evaluated assessed five domains: impact on schedule, caregivers' self-esteem, lack of family support, impact on health, and impact on finances. Learning experiences were measured in seven areas: knowledge of diseases, living support, medical practice/devices management, mental support, physical care, safety management, and social resources.

Results: Oveall, 24.1% reported learning about caregiving in at least one area. Multivariable regression analysis indicated that learning experiences were associated with higher caregiver's self-esteem, but not CRA-J total scores and other domains. Learning other than knowledge of diseases exhibited associations with higher caregiver's self-esteem.

Conclusion: Learning caregiving knowledge and skills was related to the caregiver's self-esteem. Providing opportunities for care knowledge and skill acquision may strenghen caregivers' positive perception of their role.

目的:获得照护知识和技能可以减轻非正式照护者的负担,增强他们的积极情绪,但关于学习对整个照护领域的影响的证据有限。我们研究了护理知识/技能的学习经历与护理者的消极和积极结果之间的关系。方法:采用基于网络的问卷调查方法,对934名年龄≥65岁的家庭成员的非正式照顾者(平均年龄58.4岁)进行横断面研究。日本版的照顾者反应评估(CRA-J)评估了五个领域:对时间表的影响、照顾者的自尊、缺乏家庭支持、对健康的影响和对财务的影响。学习经历分为七个方面:疾病知识、生活支持、医疗实践/设备管理、精神支持、身体护理、安全管理和社会资源。结果:总体而言,24.1%的人报告至少在一个领域学习了护理知识。多变量回归分析表明,学习经历与照顾者自尊水平升高有关,但与CRA-J总分及其他领域无关。学习疾病以外的知识与照顾者的自尊心有较高的相关性。结论:护理知识和技能的学习与照顾者的自尊有关。提供护理知识和技能获取的机会可以加强照顾者对其角色的积极认知。
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引用次数: 0
Translation, validity, and reliability of the Arabic-language version of the 11-item Neglect and Abuse Scale (NAS) in community older adults. 11项忽视与虐待量表(NAS)阿拉伯语版本在社区老年人中的翻译、效度和信度
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2026-02-01 Epub Date: 2025-09-12 DOI: 10.1080/13607863.2025.2558884
Marwa Ibrahim Mahfouz Khalil, Reem Said Shaala, Mayar Elnakeeb, Reem Farag Mahrous Menessy, Zeinab Bitar, Enas Fouad Sayed Mousa, Kamel Jebreen, Souheil Hallit, Feten Fekih-Romdhane

Objectives: To validate the 11-item Neglect and Abuse Scale (NAS) in Arabic and establish its psychometric robustness within a sample of community older adult.

Method: A cross-sectional study was conducted involving 539 Arabic-speaking older adults from Egypt. The total sample was divided randomly into two subsamples (1/3 for the EFA and 2/3 for the CFA).

Results: The initial analysis of the unidimensional structure indicated poor fit. Consequently, an EFA using oblimin rotation was conducted, which revealed a clear two-factor structure, explaining 54% of the variance. The first factor captured neglect-related experiences (e.g. being deceived, neglected, or denied rights), while the second factor reflected more overt forms of abuse (e.g. physical or verbal assault, betrayal, sexual harassment). A CFA, conducted on the solution obtained in the EFA, demonstrated acceptable fit. Reliability assessments indicated a commendable level of internal consistency. Sex invariance results showed no significant differences between male and female participants in the measurement characteristics. Concurrent validity analysis indicated a moderate negative correlation between the NAS scores and resilience and quality of life scores.

Conclusion: This research provides a reliable and valid instrument for identifying and assessing elder neglect and abuse among Arabic-speaking communities, thereby supporting effective prevention and intervention strategies.

目的:验证阿拉伯语11项忽视和虐待量表(NAS),并在社区老年人样本中建立其心理测量稳健性。方法:对539名讲阿拉伯语的埃及老年人进行了横断面研究。总样本随机分为两个子样本(1/3为EFA, 2/3为CFA)。结果:对单维结构的初步分析表明其拟合性较差。因此,使用oblimin旋转进行EFA,揭示了一个明确的双因素结构,解释了54%的方差。第一个因素反映了与被忽视有关的经历(如被欺骗、被忽视或被剥夺权利),而第二个因素反映了更公开的虐待形式(如身体或言语攻击、背叛、性骚扰)。对在EFA中得到的溶液进行了CFA,证明了可接受的契合度。可靠性评估表明内部一致性的水平值得赞扬。性别不变性结果显示,男性和女性参与者在测量特征上没有显著差异。并发效度分析显示,NAS评分与心理弹性和生活质量评分呈中度负相关。结论:本研究为识别和评估阿拉伯语社区中老年人忽视和虐待行为提供了可靠和有效的工具,从而支持有效的预防和干预策略。
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引用次数: 0
Decision-making involvement and quality of life in people with dementia: the mediating role of psychological needs. 痴呆患者的决策参与与生活质量:心理需求的中介作用
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2026-02-01 Epub Date: 2025-08-16 DOI: 10.1080/13607863.2025.2541188
Carmen Colclough, Rotem Perach, Peter Harris, Jennifer Rusted, Sube Banerjee, Eleanor Miles

Objectives: Decision-making involvement is important for maintaining a sense of self and quality of life in people with dementia. To date, few studies have explored the factors behind this relationship. We explored whether decision-making benefits quality of life by enabling fulfilment of basic psychological needs: autonomy, competence, and relatedness.

Method: We analysed one-year longitudinal data from 787 people recently diagnosed with dementia from the DETERMIND cohort. Path analysis examined cross-sectional and longitudinal associations between decision-making involvement and quality of life. Parallel mediation analysis tested whether psychological needs explained this relationship. Cognitive impairment was tested as a moderator of longitudinal associations.

Results: At baseline, decision-making involvement was positively associated with quality of life, fully mediated by satisfaction of all three psychological needs. Despite declines in cognitive function, decision-making involvement remained high and quality of life stable over one year. No significant longitudinal associations were found between decision-making involvement and quality of life.

Conclusion: Decision-making involvement may support quality of life through psychological needs fulfilment. Stability in decision-making and quality of life suggests resilience among people with dementia in early stages. Supporting psychological needs through tailored interventions and decision-aid tools may have the potential to enhance quality of life as dementia progresses.

目的:参与决策对于维持痴呆患者的自我意识和生活质量非常重要。迄今为止,很少有研究探索这种关系背后的因素。我们探讨了决策是否通过实现基本心理需求(自主性、能力和相关性)来提高生活质量。方法:我们分析了来自DETERMIND队列的787名新近诊断为痴呆的患者一年的纵向数据。通径分析检验了决策参与与生活质量之间的横断面和纵向关联。平行中介分析测试了心理需求是否解释了这种关系。认知障碍被测试为纵向关联的调节因子。结果:在基线时,决策参与与生活质量呈正相关,完全由三种心理需求的满足所介导。尽管认知功能下降,但决策参与程度仍然很高,生活质量在一年内保持稳定。在决策参与和生活质量之间没有发现显著的纵向关联。结论:决策参与可能通过心理需求的满足来支持生活质量。决策的稳定性和生活质量表明早期痴呆症患者的适应力。通过量身定制的干预措施和决策辅助工具来支持心理需求,可能会在痴呆症进展过程中提高生活质量。
{"title":"Decision-making involvement and quality of life in people with dementia: the mediating role of psychological needs.","authors":"Carmen Colclough, Rotem Perach, Peter Harris, Jennifer Rusted, Sube Banerjee, Eleanor Miles","doi":"10.1080/13607863.2025.2541188","DOIUrl":"10.1080/13607863.2025.2541188","url":null,"abstract":"<p><strong>Objectives: </strong>Decision-making involvement is important for maintaining a sense of self and quality of life in people with dementia. To date, few studies have explored the factors behind this relationship. We explored whether decision-making benefits quality of life by enabling fulfilment of basic psychological needs: autonomy, competence, and relatedness.</p><p><strong>Method: </strong>We analysed one-year longitudinal data from 787 people recently diagnosed with dementia from the DETERMIND cohort. Path analysis examined cross-sectional and longitudinal associations between decision-making involvement and quality of life. Parallel mediation analysis tested whether psychological needs explained this relationship. Cognitive impairment was tested as a moderator of longitudinal associations.</p><p><strong>Results: </strong>At baseline, decision-making involvement was positively associated with quality of life, fully mediated by satisfaction of all three psychological needs. Despite declines in cognitive function, decision-making involvement remained high and quality of life stable over one year. No significant longitudinal associations were found between decision-making involvement and quality of life.</p><p><strong>Conclusion: </strong>Decision-making involvement may support quality of life through psychological needs fulfilment. Stability in decision-making and quality of life suggests resilience among people with dementia in early stages. Supporting psychological needs through tailored interventions and decision-aid tools may have the potential to enhance quality of life as dementia progresses.</p>","PeriodicalId":55546,"journal":{"name":"Aging & Mental Health","volume":" ","pages":"267-276"},"PeriodicalIF":2.4,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144859930","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Quality indicators for behavioral and psychological symptoms of dementia in acute care: a scoping review. 急性护理中痴呆行为和心理症状的质量指标:范围综述
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2026-02-01 Epub Date: 2025-08-26 DOI: 10.1080/13607863.2025.2550358
Philippe Desmarais, Aline Bolduc, Amy Bergeron, Katherine Desforges, Sandra Gauthier, Julie Décary, Marie-Claude Patry, Marie-Jeanne Kergoat

Objectives: This scoping review presents an overview of quality indicators (QIs) available for the monitoring of best practices in the assessment and management of behavioral and psychological symptoms of dementia (BPSD) in hospitalized older adults.

Method: The literature study followed the Joanna Briggs Institute methodology for scoping reviews. A conventional database search (Medline, Embase, PsycINFO, Cochrane, CINAHL, and Web of Science) was conducted in January 2024, and a grey literature search in February 2024. Articles published from 2013 onward were included if they reported potential QIs for monitoring best practices with regards to BPSD, or similar manifestations in the context of delirium, in hospitalized older adults.

Results: The review included 25 publications, reporting a total of 88 potential QIs: 23 structural indicators, 38 process indicators, and 27 outcome indicators. The QIs retrieved cover elements pertaining to the screening and reporting, assessment, management, impacts, hospitalization outcomes, and resources invested for BPSD in acute care.

Conclusion: While this study generated an exhaustive list of QIs for the monitoring of best practices in the assessment and management of BPSD in hospitalized older adults, further research is needed to optimally operationalize these indicators before they can be successfully implemented in acute care settings.

Trial registration: Protocol was registered on the Open Science Framework platform on December 22, 2023. (https://osf.io/r4hwz/).

目的:本综述概述了可用于监测住院老年人痴呆(BPSD)行为和心理症状评估和管理最佳实践的质量指标(QIs)。方法:文献研究采用乔安娜布里格斯研究所的方法进行范围综述。常规数据库检索(Medline、Embase、PsycINFO、Cochrane、CINAHL和Web of Science)于2024年1月进行,灰色文献检索于2024年2月进行。2013年以后发表的文章,如果报告了住院老年人BPSD或谵妄背景下类似表现的潜在QIs监测最佳实践,则纳入。结果:该综述纳入了25篇出版物,共报告了88个潜在的质量指标:23个结构指标,38个过程指标和27个结果指标。检索到的质量指标涵盖了与筛查和报告、评估、管理、影响、住院结果以及在急性护理中为BPSD投入的资源有关的元素。结论:虽然本研究产生了一份详尽的质量指标清单,用于监测住院老年人BPSD评估和管理的最佳实践,但在这些指标能够在急性护理环境中成功实施之前,还需要进一步的研究来优化这些指标的操作。试验注册:协议于2023年12月22日在开放科学框架平台上注册。(https://osf.io/r4hwz/)。
{"title":"Quality indicators for behavioral and psychological symptoms of dementia in acute care: a scoping review.","authors":"Philippe Desmarais, Aline Bolduc, Amy Bergeron, Katherine Desforges, Sandra Gauthier, Julie Décary, Marie-Claude Patry, Marie-Jeanne Kergoat","doi":"10.1080/13607863.2025.2550358","DOIUrl":"10.1080/13607863.2025.2550358","url":null,"abstract":"<p><strong>Objectives: </strong>This scoping review presents an overview of quality indicators (QIs) available for the monitoring of best practices in the assessment and management of behavioral and psychological symptoms of dementia (BPSD) in hospitalized older adults.</p><p><strong>Method: </strong>The literature study followed the Joanna Briggs Institute methodology for scoping reviews. A conventional database search (Medline, Embase, PsycINFO, Cochrane, CINAHL, and Web of Science) was conducted in January 2024, and a grey literature search in February 2024. Articles published from 2013 onward were included if they reported potential QIs for monitoring best practices with regards to BPSD, or similar manifestations in the context of delirium, in hospitalized older adults.</p><p><strong>Results: </strong>The review included 25 publications, reporting a total of 88 potential QIs: 23 structural indicators, 38 process indicators, and 27 outcome indicators. The QIs retrieved cover elements pertaining to the screening and reporting, assessment, management, impacts, hospitalization outcomes, and resources invested for BPSD in acute care.</p><p><strong>Conclusion: </strong>While this study generated an exhaustive list of QIs for the monitoring of best practices in the assessment and management of BPSD in hospitalized older adults, further research is needed to optimally operationalize these indicators before they can be successfully implemented in acute care settings.</p><p><strong>Trial registration: </strong>Protocol was registered on the Open Science Framework platform on December 22, 2023. (https://osf.io/r4hwz/).</p>","PeriodicalId":55546,"journal":{"name":"Aging & Mental Health","volume":" ","pages":"219-229"},"PeriodicalIF":2.4,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144979843","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Perceived age stigma and emotional isolation in later life: a sequential mediation through self-esteem and aging anxiety. 感知的年龄耻辱和晚年的情感孤立:通过自尊和衰老焦虑的顺序调解。
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2026-02-01 Epub Date: 2025-08-07 DOI: 10.1080/13607863.2025.2543512
Minseon Park, Soondool Chung

Objectives: This study explores a sequential mediation model in which self-esteem and aging anxiety mediate the relationship between perceived age stigma and emotional isolation among older adults aged 65 and over in South Korea.

Method: Secondary analysis of cross-sectional data from 600 nationally representative older adults in the 2020 Ewha Study of Intergenerational Issues (ESoII) was conducted using structural equation modeling (SEM) and bootstrapping to assess sequential mediation effects.

Results: Perceived age stigma was not directly associated with emotional isolation. However, it was negatively associated with self-esteem, which in turn was negatively associated with aging anxiety. Aging anxiety showed a positive association with emotional isolation. A significant sequential mediating effect of self-esteem and aging anxiety was observed in the pathway from perceived age stigma to emotional isolation.

Conclusion: These findings highlight the importance of disrupting the internalization of perceived age stigma among older adults and underscore the protective role of self-esteem in mitigating aging anxiety. Interventions aimed at enhancing self-esteem and alleviating aging anxiety may help reduce emotional isolation in later life.

目的:本研究探讨了自尊和衰老焦虑在韩国65岁及以上老年人年龄耻辱感和情感孤立之间的顺序中介模型。方法:对2020年梨花大学代际问题研究(ESoII)中600名全国代表性老年人的横断面数据进行二次分析,采用结构方程模型(SEM)和bootstrapping来评估序列中介效应。结果:年龄耻辱感与情绪孤立无直接关系。然而,它与自尊呈负相关,而自尊又与衰老焦虑呈负相关。衰老焦虑与情绪孤立呈正相关。在年龄耻辱感到情感孤立的通路中,自尊和衰老焦虑具有显著的序贯中介作用。结论:这些研究结果强调了打破老年人年龄耻辱感内化的重要性,并强调了自尊在减轻衰老焦虑中的保护作用。旨在增强自尊和减轻衰老焦虑的干预措施可能有助于减少晚年的情感孤立。
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引用次数: 0
Support that people living with Alzheimer's disease provide to their spousal caregivers: a qualitative study on dyadic perspectives. 阿尔茨海默病患者向其配偶照顾者提供的支持:二元视角的定性研究。
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2026-02-01 Epub Date: 2025-10-11 DOI: 10.1080/13607863.2025.2569657
Meng Huo, Emily L Mroz, Joan K Monin, Ladson Hinton

Objectives: Research extensively examines spousal caregiving in dementia, but it remains unclear how both partners perceive the support that caregivers receive from their spouses with Alzheimer's disease (AD). We present a qualitative investigation of pleasant and stressful experiences in both partners when such support occurs.

Method: Seventy-two couples managing mild-to-moderate AD responded to open-ended prompts about their pleasant and stressful experiences when people living with AD (PLWD) provided support to their spousal caregivers. We applied descriptive content analysis to examine these responses.

Results: PLWD had pleasant experiences when perceiving their support to caregivers enhanced caregivers' well-being and promoted their own feelings of self-worth. Caregivers had pleasant experiences when support they received promoted their own well-being, reflected PLWD's preserved capabilities, and made PWLD happy. Regarding stressful experiences, PLWD noted that at times they could not help as much as they wished or were expected to, which, for some, promoted their sense of uselessness or a lack of caregiver appreciation. Caregivers had stressful experiences primarily due to frustration with the poor quality of support they received.

Conclusion: Findings inform the development of dyadic interventions for facilitating, while addressing the challenges of, mutual, changing support dynamics among spouses coping with AD.

目的:研究广泛地考察了痴呆症患者的配偶照顾,但尚不清楚双方如何看待照顾者从患有阿尔茨海默病(AD)的配偶那里得到的支持。我们提出了一个定性调查愉快和紧张的经验,双方的合作伙伴,当这种支持发生。方法:72对患有轻度至中度AD的夫妇在AD患者(PLWD)为其配偶照顾者提供支持时,对他们的愉快和紧张经历的开放式提示作出反应。我们应用描述性内容分析来检验这些回答。结果:护理人员对照顾者的支持有愉快的体验,能提高照顾者的幸福感和自我价值感。当护理人员得到的支持促进了他们自己的幸福,反映了PLWD保留的能力,并使PWLD快乐时,他们的体验是愉快的。关于压力经历,PLWD指出,有时他们不能像他们希望或期望的那样提供帮助,这对一些人来说,促进了他们的无用感或缺乏对照顾者的感激。照顾者有压力的经历,主要是由于对他们得到的低质量支持感到沮丧。结论:研究结果为二元干预的发展提供了信息,以促进,同时解决配偶之间应对AD的相互变化的支持动态的挑战。
{"title":"Support that people living with Alzheimer's disease provide to their spousal caregivers: a qualitative study on dyadic perspectives.","authors":"Meng Huo, Emily L Mroz, Joan K Monin, Ladson Hinton","doi":"10.1080/13607863.2025.2569657","DOIUrl":"10.1080/13607863.2025.2569657","url":null,"abstract":"<p><strong>Objectives: </strong>Research extensively examines spousal caregiving in dementia, but it remains unclear how both partners perceive the support that caregivers receive from their spouses with Alzheimer's disease (AD). We present a qualitative investigation of pleasant and stressful experiences in both partners when such support occurs.</p><p><strong>Method: </strong>Seventy-two couples managing mild-to-moderate AD responded to open-ended prompts about their pleasant and stressful experiences when people living with AD (PLWD) provided support to their spousal caregivers. We applied descriptive content analysis to examine these responses.</p><p><strong>Results: </strong>PLWD had pleasant experiences when perceiving their support to caregivers <i>enhanced caregivers' well-being</i> and <i>promoted their own feelings of self-worth</i>. Caregivers had pleasant experiences when support they received <i>promoted their own well-being</i>, <i>reflected PLWD's preserved capabilities</i>, and <i>made PWLD happy</i>. Regarding stressful experiences, PLWD noted that at times they could not help as much as they wished or were expected to, which, for some, <i>promoted their sense of uselessness</i> or <i>a lack of caregiver appreciation</i>. Caregivers had stressful experiences primarily due to <i>frustration with the poor quality of support</i> they received.</p><p><strong>Conclusion: </strong>Findings inform the development of dyadic interventions for facilitating, while addressing the challenges of, mutual, changing support dynamics among spouses coping with AD.</p>","PeriodicalId":55546,"journal":{"name":"Aging & Mental Health","volume":" ","pages":"300-310"},"PeriodicalIF":2.4,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12629515/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145276738","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Social network size and cognitive decline in older adults experiencing depressive symptoms and loneliness. 经历抑郁症状和孤独的老年人的社会网络大小和认知能力下降。
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2026-02-01 Epub Date: 2025-10-09 DOI: 10.1080/13607863.2025.2566292
Pankaja Desai, Ted K S Ng, Kristin R Krueger, Robert S Wilson, Denis A Evans, Kumar B Rajan

Objectives: This paper evaluates the association between social network size and cognitive decline in older adults, approximately 61 years and older, with or without depressive symptoms and/or loneliness.

Method: This study is a secondary data analysis of the Chicago Health and Aging Project (CHAP), which is a population-based cohort study. Data collection occurred in three-year cycles from 1993 to 2012, consisting of a maximum of up to six cycles, including baseline. Mixed effects regression models were conducted to evaluate the relationship between social network size and cognitive decline.

Results: The study sample is comprised of 10,569 participants. Among participants experiencing baseline loneliness, having a social network size of nine or more individuals at baseline was associated with a slower annual rate of global cognitive decline (β = 0.016 (SE = 0.007), p = 0.019) than participants with a network size below nine at baseline. Participants experiencing moderate to severe depressive symptoms at baseline and a network size of nine or more at baseline also had a slower rate of global cognitive decline (β = 0.014 (SE = 0.006), p = 0.014) compared to participants with a network size below nine at baseline.

Conclusion: Developing approaches for maintaining and improving social network size in individuals experiencing loneliness and depression may reduce Alzheimer's disease risk.

目的:本文评估社会网络大小与老年人认知能力下降之间的关系,大约61岁及以上,有或没有抑郁症状和/或孤独。方法:本研究是芝加哥健康与老龄化项目(CHAP)的二次数据分析,这是一项基于人群的队列研究。从1993年至2012年,数据收集以三年为一个周期进行,包括基线在内最多可达6个周期。采用混合效应回归模型评估社会网络规模与认知能力下降之间的关系。结果:研究样本由10,569名参与者组成。在经历基线孤独感的参与者中,与基线社交网络规模低于9人的参与者相比,基线社交网络规模为9人或9人以上的参与者全球认知能力下降的年速度较慢(β = 0.016 (SE = 0.007), p = 0.019)。与基线时网络规模小于9的参与者相比,基线时经历中度至重度抑郁症状和基线时网络规模为9或更多的参与者整体认知能力下降的速度也较慢(β = 0.014 (SE = 0.006), p = 0.014)。结论:开发维持和改善孤独和抑郁个体社会网络规模的方法可能降低阿尔茨海默病的风险。
{"title":"Social network size and cognitive decline in older adults experiencing depressive symptoms and loneliness.","authors":"Pankaja Desai, Ted K S Ng, Kristin R Krueger, Robert S Wilson, Denis A Evans, Kumar B Rajan","doi":"10.1080/13607863.2025.2566292","DOIUrl":"10.1080/13607863.2025.2566292","url":null,"abstract":"<p><strong>Objectives: </strong>This paper evaluates the association between social network size and cognitive decline in older adults, approximately 61 years and older, with or without depressive symptoms and/or loneliness.</p><p><strong>Method: </strong>This study is a secondary data analysis of the Chicago Health and Aging Project (CHAP), which is a population-based cohort study. Data collection occurred in three-year cycles from 1993 to 2012, consisting of a maximum of up to six cycles, including baseline. Mixed effects regression models were conducted to evaluate the relationship between social network size and cognitive decline.</p><p><strong>Results: </strong>The study sample is comprised of 10,569 participants. Among participants experiencing baseline loneliness, having a social network size of nine or more individuals at baseline was associated with a slower annual rate of global cognitive decline (<i>β</i> = 0.016 (SE = 0.007), <i>p</i> = 0.019) than participants with a network size below nine at baseline. Participants experiencing moderate to severe depressive symptoms at baseline and a network size of nine or more at baseline also had a slower rate of global cognitive decline (<i>β</i> = 0.014 (SE = 0.006), <i>p</i> = 0.014) compared to participants with a network size below nine at baseline.</p><p><strong>Conclusion: </strong>Developing approaches for maintaining and improving social network size in individuals experiencing loneliness and depression may reduce Alzheimer's disease risk.</p>","PeriodicalId":55546,"journal":{"name":"Aging & Mental Health","volume":" ","pages":"377-384"},"PeriodicalIF":2.4,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145253650","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Experiences of informal caregivers of people with dementia with acceptance and commitment therapy: a meta-synthesis of qualitative research. 失智症患者非正式照护者接受与承诺治疗的经验:质性研究的元综合。
IF 2.4 3区 医学 Q3 GERIATRICS & GERONTOLOGY Pub Date : 2026-02-01 Epub Date: 2025-10-16 DOI: 10.1080/13607863.2025.2568160
Xiaofeng Liu, Jiping Bian, Shinya Mitani, Ardith Z Doorenbos, Naoki Yoshinaga, Hiroki Fukahori

Objectives: to conduct a meta-synthesis of the experiences of caregivers of people with dementia receiving Acceptance and Commitment Therapy (ACT).

Method: this study conducted a meta-synthesis of qualitative research that focused on caregivers' experiences. Eleven databases were used to retrieve literature on implementations of ACT published up to December 2024. Qualitative and mixed-methods studies published in Japanese, Chinese, and English were included. The studies were selected by screening titles, abstracts, and full texts. The quality of each study was assessed independently by two researchers. Meta-aggregation was used to synthesize findings.

Results: six studies were published between 2017 and 2023, including one qualitative and five mixed-methods studies. ACT was found to have a positive influence on caregivers, including changed cognition, improved action capacity, and reduced negative emotions. Caregivers were found to be receptive to ACT but also perceived some barriers and limitations.

Conclusion: The mechanisms identified in this study align with the six core processes of the ACT model, which promote psychological flexibility. Despite some barriers to participation, ACT shows promise as a supportive intervention when culturally and practically adapted, future improvements for implementing ACT may include flexible arrangements regarding the time and location.

目的:对痴呆症患者的护理人员接受接受和承诺治疗(ACT)的经验进行荟萃综合。方法:本研究以照顾者体验为研究对象,进行了质性研究的元综合。使用11个数据库检索截至2024年12月发表的有关ACT实施的文献。包括用日语、中文和英语发表的定性和混合方法研究。这些研究是通过筛选标题、摘要和全文来选择的。每项研究的质量由两名研究人员独立评估。Meta-aggregation用于综合研究结果。结果:2017年至2023年间共发表了6项研究,包括1项定性研究和5项混合方法研究。ACT被发现对照顾者有积极的影响,包括改变认知,提高行动能力,减少负面情绪。护理人员被发现接受ACT,但也意识到一些障碍和限制。结论:本研究确定的机制与ACT模型的六个核心过程一致,这些过程促进了心理灵活性。尽管在参与过程中存在一些障碍,但在文化和实践上适应时,ACT显示出作为一种支持性干预措施的希望,未来实施ACT的改进可能包括对时间和地点的灵活安排。
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Aging & Mental Health
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