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Thinking About the Future: Relationships Between Time Perspective, Peace of Mind, and Goal Navigation Among Young Adults With Cancer. 思考未来:年轻癌症患者的时间观、心境平和和目标导航之间的关系。
Pub Date : 2025-07-01 Epub Date: 2025-05-23 DOI: 10.1097/cr9.0000000000000074
Katie Darabos, Sean McHugh, Zeba Ahmad

Background: Cancer, particularly during young adulthood, can alter one's perspective about the future, which may play a major role in one's ability to identify new life goals and challenge existing important life goals. Peace of mind (i.e., the ability to find harmony, reach deep down for comfort, and have confidence that things will be okay) may be particularly beneficial in the context of having a negative outlook on the future and goal navigation.

Objective: This study investigated relationships among future negative time perspective (FNTP), peace of mind, and goal navigation among young adults (YAs) with cancer.

Methods: YAs (N=56, M=34.8), recruited through cancer organizations and via the Pennsylvania Cancer Registry, completed measures of FNTP, peace of mind, and goal navigation.

Results: Controlling for relevant covariates, peace of mind moderated the relationship between FNTP and goal navigation (β=0.25, 95% CI: 0.01, 0.04). High FNTP was associated with lower goal navigation, particularly among those with low peace of mind.

Conclusions: The extent to which YAs adopt a FNTP contributes to declines in goal navigation. YAs with low peace of mind might be at heightened risk for the interference of FNTP in anticipating and planning for the future.

Implications for practice: Interventions and clinical care aimed at increasing peace of mind might be particularly helpful in facilitating goal navigation for YAs with negative outlooks for the future.

Foundational: This study contributes to a better understanding of the role of peace of mind on FNTP and navigating goals among YAs with cancer.

背景:癌症,特别是在青年时期,可以改变一个人对未来的看法,这可能在一个人确定新的生活目标和挑战现有重要生活目标的能力方面发挥重要作用。在对未来和目标抱有消极看法的情况下,内心的平静(即找到和谐的能力,深入内心寻求安慰的能力,以及对事情会好起来的信心)可能特别有益。目的:探讨青年癌症患者未来负性时间观(FNTP)、心境平和与目标导航的关系。方法:通过癌症组织和宾夕法尼亚癌症登记处招募的青少年(N=56, M=34.8),完成FNTP、安心和目标导航的测量。结果:在相关协变量控制下,心境平和调节了FNTP与目标导航的关系(β=0.25, 95% CI: 0.01, 0.04)。高FNTP与较低的目标导航相关,尤其是那些内心平静度较低的人。结论:青少年采用FNTP的程度导致了目标导航能力的下降。心理平静程度低的青少年在预测和规划未来时可能受到FNTP干扰的风险更高。对实践的启示:旨在增加内心平静的干预措施和临床护理可能特别有助于促进对未来前景消极的青少年的目标导航。基础:本研究有助于更好地理解心境平和在FNTP中的作用,以及在癌症患者中导航目标。
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引用次数: 0
"We've Changed, the World's Changed": Leveraging Knowledge from COVID-19 to Improve Self-management for Cancer Survivors and Care Partners. “我们改变了,世界也改变了”:利用COVID-19的知识改善癌症幸存者和护理伙伴的自我管理。
Pub Date : 2025-01-01 Epub Date: 2024-12-11 DOI: 10.1097/cr9.0000000000000066
Kelly J Mansfield, Sarah E Wawryznski, Marilisa Vega, Jacqueline Kent-Marvick, Jia-Wen Guo, Kristin G Cloyes

Background: During the COVID-19 pandemic, cancer survivors and care partners navigated social interactions amidst the uncertainties of cancer-related vulnerability and risk. Vaccination offered a new tool for self-management yet created potential for conflict within survivors' and care partners' social networks.

Objective: We examined cancer survivors' and care partners' perceptions of the impact of vaccine availability on social interactions.

Methods: In May 2021, survivor and care partner participants in a prospective study of social support network interactions (N=64) were invited to complete an online survey about COVID-19 vaccination and record an audio diary describing the impact of vaccine availability. Descriptive statistics summarized demographic data. Audio diaries were transcribed, inductively coded, and themes developed and narratively summarized.

Results: Twenty-seven participants (42.9%) completed the survey and n=21 (33.3%; n=8 caregivers, 38.1%, n=13 survivors, 61.9%) recorded diaries. Eighty percent (n=21) of the sample received the COVID-19 vaccine. Two themes illustrated the impact of COVID-19 vaccines within a cancer context: Providing hope and Reconnecting with life.

Conclusion: Vaccination decisions allowed many cancer survivors and partners to reengage with their social networks. With limited guidance, many relied on their own knowledge, values, and experiences to determine how to preserve their health.

Implications for practice: Utilizing a shared decision-making model, nurses can help families develop strategies that enact their values to promote long-term health. Nursing education and support can be further strengthened to create patient self-efficacy when navigating social interactions in the post-COVID era.

Foundational: This study addresses the need for improved self-management strategies for cancer survivors.

背景:在2019冠状病毒病大流行期间,癌症幸存者和护理伙伴在癌症相关脆弱性和风险的不确定性中进行社会互动。疫苗接种为自我管理提供了一种新的工具,但也在幸存者和护理伙伴的社会网络中产生了冲突的可能性。目的:我们研究了癌症幸存者和护理伙伴对疫苗可得性对社会互动影响的看法。方法:于2021年5月,邀请参与社会支持网络互动前瞻性研究的幸存者和护理伙伴参与者(N=64)完成关于COVID-19疫苗接种的在线调查,并记录描述疫苗可获得性影响的音频日记。描述性统计汇总了人口统计数据。录音日记被转录,归纳编码,主题发展和叙述总结。结果:27名参与者(42.9%)完成了调查,n=21 (33.3%;N =8名照护者(38.1%),N =13名幸存者(61.9%)记录日记。80% (n=21)的样本接种了COVID-19疫苗。两个主题说明了COVID-19疫苗在癌症背景下的影响:提供希望和重新与生活联系。结论:疫苗接种决定允许许多癌症幸存者和伴侣重新参与他们的社会网络。在指导有限的情况下,许多人依靠自己的知识、价值观和经验来决定如何保持健康。实践意义:利用共享决策模型,护士可以帮助家庭制定战略,制定他们的价值观,以促进长期健康。可以进一步加强护理教育和支持,以在covid - 19后时代的社会交往中创造患者的自我效能感。基础:本研究解决了改善癌症幸存者自我管理策略的需要。
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引用次数: 0
Nutritional Status, Eating Behaviors, and Gastrointestinal Symptom Cluster Among Children Receiving Cancer Chemotherapy in Thailand: A Descriptive Study 泰国接受癌症化疗儿童的营养状况、饮食行为和胃肠道症状群:描述性研究
Pub Date : 2024-07-01 DOI: 10.1097/cr9.0000000000000060
Donruedee Kamkhoad, Autchareeya Patoomwan, S. Santacroce
Most children undergoing chemotherapy for cancer experience gastrointestinal (GI) tract symptoms that affect their eating habits, nutritional status, and quality of life (QOL). Previous research on the connections between these factors has primarily focused on Western countries. As a result, there is limited understanding of these issues among Thai children. To describe GI symptoms, eating, nutritional status, and QOL for Thai children with cancer. This descriptive study used multiple methods. Quantitative data were collected through (1) standardized measures of GI symptoms and QOL and (2) extraction of medical history and clinical data from the child’s medical records, then analyzed using descriptive statistics. Qualitative data were collected with semistructured interviews with each child, then their parent, and analyzed using a directed content analysis. Sixteen child-parent dyads participated in this study. Most children exhibited reduced food intake and weight loss, primarily attributed to GI symptoms and environmental factors. Underreporting of symptoms was identified, contributing to suboptimal symptom management. Clinician-recommended low-bacterial diets posed challenges to maintaining children’s food intake. Additionally, hospital food with repetitive menus and plain flavors was generally undesirable for children during hospitalization. Multifaceted factors influencing the nutritional status and QOL of children with cancer within the unique care context of Thailand were identified. The study findings inform the development of multi-level interventions targeting to optimize eating, nutritional status, and QOL for children with cancer. The model, informed by cultural considerations, could be adapted for research in other countries with distinctive cultures.
大多数接受癌症化疗的儿童都会出现胃肠道(GI)症状,这些症状会影响他们的饮食习惯、营养状况和生活质量(QOL)。以往有关这些因素之间联系的研究主要集中在西方国家。因此,泰国儿童对这些问题的了解十分有限。 本研究旨在描述泰国癌症儿童的消化道症状、饮食、营养状况和生活质量。 这项描述性研究采用了多种方法。定量数据通过以下方法收集:(1)消化道症状和 QOL 的标准化测量;(2)从患儿病历中提取病史和临床数据,然后使用描述性统计进行分析。定性数据是通过对每个儿童及其家长进行半结构式访谈收集的,并采用定向内容分析法进行分析。 共有 16 个儿童-家长二人组参与了本研究。大多数儿童表现出食物摄入量减少和体重下降,这主要归因于消化道症状和环境因素。研究发现,症状报告不足是导致症状管理不理想的原因之一。临床医生推荐的低菌饮食对维持儿童的食物摄入量构成了挑战。此外,儿童在住院期间普遍不喜欢菜单重复、口味单一的医院食物。 在泰国独特的医疗环境中,影响癌症患儿营养状况和 QOL 的因素是多方面的。 研究结果为制定旨在优化癌症患儿饮食、营养状况和 QOL 的多层次干预措施提供了参考。 该模型考虑了文化因素,可用于其他具有独特文化的国家的研究。
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引用次数: 0
Electricity Availability and Relevance for Oncology Nursing 电力供应与肿瘤护理的相关性
Pub Date : 2024-06-07 DOI: 10.1097/cr9.0000000000000059
J. Challinor
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引用次数: 0
Coping in Women With Breast Cancer Awaiting a Surgical Intervention: A Cross-Sectional Study 乳腺癌妇女在等待手术干预时的应对方式:横断面研究
Pub Date : 2024-04-23 DOI: 10.1097/cr9.0000000000000058
Sarah Fortunato, Matteo Danielis, Renzo Zanotti
Breast cancer affects a woman’s body and mind in complex ways and is more than just a physical condition that requires medical treatment. To investigate how women with breast cancer undergoing surgical treatment cope with and adjust to the disease. A cross-sectional study between April 12 and July 22, 2022. This study adhered to the Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) guidelines. A total of 125 women participated (median age 52). Most (64.8%) responded rationally, 25.4% emotionally, and 9.8% nonprevailing. About 76.2% used problem-focused coping. Women living with others had better adaptation than those alone. Emotional appraisal increased the likelihood of poor adaptation compared to rational appraisal. Nonprevailing coping was linked to a 6-fold increase in psychosocial maladjustment (OR, 5.88; 95% CI,1.14-30.30). The study indicates that women with breast cancer tend to adopt problem-focused coping strategies, with rational responses correlating with better psychological adaptation outcomes, while emotional or nonprevailing responses may lead to poorer adjustment. Coping strategies should be shared by oncology nurses with targeted women, especially if their potential for postdiagnosis positive psychological change is considered. Women diagnosed with breast cancer eligible for surgical treatment may undergo a positive psychological transformation, as the majority exhibit a problem-focused, rational approach to the disease.
乳腺癌对女性身心的影响非常复杂,它不仅仅是一种需要接受治疗的身体状况。 调查接受手术治疗的乳腺癌妇女如何应对和适应疾病。 在 2022 年 4 月 12 日至 7 月 22 日期间进行横断面研究。这项研究遵循了加强流行病学观察性研究报告(STROBE)指南。 共有 125 名女性参加了研究(中位年龄为 52 岁)。大多数人(64.8%)做出了理性反应,25.4%的人做出了感性反应,9.8%的人没有做出反应。约 76.2% 的人采用以问题为中心的应对方式。与他人共同生活的妇女比独自生活的妇女有更好的适应能力。与理性评估相比,情绪评估增加了适应不良的可能性。非主流应对方式与社会心理适应不良率增加 6 倍有关(OR,5.88;95% CI,1.14-30.30)。 该研究表明,乳腺癌女性患者倾向于采取以问题为中心的应对策略,理性应对与较好的心理适应结果相关,而感性或非主流应对则可能导致较差的适应性。 肿瘤科护士应与目标女性分享应对策略,尤其是考虑到这些策略在确诊后可能带来的积极心理变化。 被诊断出患有乳腺癌并符合手术治疗条件的妇女可能会经历积极的心理转变,因为大多数人都表现出以问题为中心、理性对待疾病的态度。
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引用次数: 0
Mobility Is Medicine, Too: Creating a Culture of Mobility Amongst Hospitalized Patients With Cancer to Improve Patient Outcomes 移动也是医学:在癌症住院病人中创建移动文化,改善患者预后
Pub Date : 2024-04-01 DOI: 10.1097/cr9.0000000000000057
S. Morjaria, Claire Carmody, Saket Navlakha, Wei Zhou, Donna Braccia, Jennifer Aquino, Adam Roumm, Steve Martin, G. Syrkin
Despite decades of evidence demonstrating the effectiveness of multidisciplinary mobility initiatives in improving patient clinical outcomes, the impact of mobility programs in oncology-specific settings has been ignored. The objective of this initiative is to test evidence-based mobility interventions in a cancer care center to create a culture among clinicians that prioritizes patient mobilization. We compared postintervention and preintervention outcomes using logistic regression analysis and time-to-event modeling to assess hospital length of stay. Basic statistical methods assessed whether improving mobility influenced clinical outcomes and clinician culture. Outcome data from 493 in the postintervention arm were compared to 498 patients in the preintervention arm. Patients in the postintervention group had 39% decreased odds of having the rapid response team called (confidence interval [CI] =0.39–0.97; P = .03) and 46% decreased odds of being admitted to the intensive care unit (CI = 0.29–1.02; P = .05) compared to the preintervention group. No safety issues were associated with these interventions. Hospitalized patients with cancer are especially prone to considerable debility due to their disease and treatment effects. Our initiative to create a mobility protocol in 1 medical unit resulted in positive clinical outcomes. Findings from this study can be used to increase recognition of the benefits of mobility programs for hospitalized cancer patients. Promoting mobility in the hospital often involves collaboration among various healthcare professionals, including nurses, physical therapists, occupational therapists, and physicians. This interdisciplinary approach ensures that patients receive holistic care tailored to their specific needs.
尽管数十年来已有证据证明多学科移动计划在改善患者临床预后方面的有效性,但移动计划在特定肿瘤环境中的影响却一直被忽视。 这项计划的目的是在癌症治疗中心测试以循证医学为基础的移动干预措施,在临床医生中营造一种优先考虑患者移动的文化。 我们使用逻辑回归分析和时间到事件模型对干预后和干预前的结果进行了比较,以评估住院时间。基本统计方法评估了改善移动能力是否会影响临床结果和临床医生文化。 将干预后组 493 名患者的疗效数据与干预前组 498 名患者的疗效数据进行了比较。与干预前相比,干预后组患者被呼叫快速反应小组的几率降低了 39%(置信区间 [CI] =0.39-0.97;P = .03),入住重症监护室的几率降低了 46%(CI = 0.29-1.02;P = .05)。这些干预措施均未涉及安全问题。 由于疾病和治疗效果的影响,住院癌症患者尤其容易出现严重衰弱。我们在一个医疗单位制定的移动方案取得了积极的临床效果。 这项研究的结果可用于提高人们对住院癌症患者移动方案益处的认识。 促进医院内的移动能力通常需要护士、理疗师、职业治疗师和医生等不同医护专业人员之间的合作。这种跨学科的方法可确保患者获得符合其特定需求的整体护理。
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引用次数: 0
Long-term Cancer Survivorship: A Family Affair 癌症长期生存:家庭事务
Pub Date : 2024-03-15 DOI: 10.1097/cr9.0000000000000056
C. García-Vivar, Irati Rodríguez-Matesanz
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引用次数: 0
Development of a Comprehensive Model for Cancer Symptom Care for Women With Ovarian or Endometrial Cancer 为卵巢癌或子宫内膜癌妇女开发癌症症状综合护理模式
Pub Date : 2024-02-29 DOI: 10.1097/cr9.0000000000000054
M. G. Christiansen, Mary Jarden, S. Colomer-Lahiguera, M. Eicher, Denise Bryant-Lukosius, M. Mirza, Helle Pappot, Karin Piil
Women with ovarian or endometrial cancer experience multiple symptoms during chemotherapy. Specialized cancer nurses possess specific knowledge and competencies to effectively monitor and manage treatment-related toxicities and provide self-management support. To describe the conception and development of a comprehensive cancer symptom model of care in an oncological setting for women diagnosed with ovarian or endometrial cancer. The participatory evidence-based, patient-focused process for guiding the development, implementation, and evaluation of advanced practice nursing roles—the participatory, evidence-based, patient-centered process for advanced practice (PEPPA) framework directed the process. The first 6 steps of this 9-step framework were utilized to incorporate research evidence, engage, and obtain the input of key stakeholders. Stakeholders (n = 27) contributed with specific knowledge, perspectives, and feedback to the entire development process, and several needs were identified. Following structured discussions, a new model of cancer symptom care with elements such as symptom management, electronic patient-reported outcomes, and an expanded nursing role in the form of nurse-led consultations was developed. We effectively utilized the PEPPA framework to design a new cancer symptom model of care, that was agreed upon by key stakeholders. This stakeholder-engaged, and evidence-driven process could be used as a template for others wanting to develop a population-specific model of care to improve cancer symptom management. With the expansion of the cancer nursing role, the new model has the potential to improve the quality of cancer care and health outcomes related to symptom management.
患有卵巢癌或子宫内膜癌的妇女在化疗期间会出现多种症状。癌症专科护士具备特定的知识和能力,能够有效监测和管理与治疗相关的毒性反应,并提供自我管理支持。 描述在肿瘤环境中为确诊为卵巢癌或子宫内膜癌的妇女提供综合癌症症状护理模式的构想和发展。 以循证为基础、以患者为中心的参与式流程,用于指导高级实践护理角色的开发、实施和评估--以循证为基础、以患者为中心的参与式高级实践流程(PEPPA)框架指导了这一流程。该框架分为 9 个步骤,前 6 个步骤用于纳入研究证据、吸引主要利益相关者参与并获取其意见。 利益相关者(n = 27)为整个开发过程提供了具体的知识、观点和反馈,并确定了若干需求。经过有条理的讨论,我们开发出了一种新的癌症症状护理模式,其中包括症状管理、电子化患者报告结果以及以护士为主导的会诊形式扩大护理角色等要素。 我们有效地利用了 PEPPA 框架,设计出一种新的癌症症状护理模式,并得到了主要利益相关者的一致认可。 这个由利益相关者参与、以证据为导向的过程可作为模板,供其他希望开发针对特定人群的护理模式以改善癌症症状管理的人使用。 随着癌症护理角色的扩展,新模式有可能提高癌症护理质量和与症状管理相关的健康结果。
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引用次数: 0
“A Caregiver’s Marriage”: The Impact of Blood Cancer on the Spousal Connection "照顾者的婚姻":血癌对夫妻关系的影响
Pub Date : 2024-02-14 DOI: 10.1097/cr9.0000000000000055
M. Mullis, Easton N Wollney, Carma L. Bylund, G. Campbell-Salome, Kevin B. Wright, M. Sae-Hau, E. Weiss, M. Rajotte, Carla L. Fisher
Spouses are the most common type of cancer caregiver and a primary source of support across the cancer continuum. While studies show that cancer can impact caregivers’ health outcomes, less is known about how blood cancer impacts the spousal relationship. We sought to examine the impact of blood cancer on the relational connection of married couples from the perspective of the spousal caregiver. We thematically analyzed transcripts of in-depth interviews with caregivers of a spouse diagnosed with a blood cancer. Caregivers (n = 27) identified positive and negative relational impacts related to physical intimacy, emotional intimacy, marital roles, discordance between spouses in coping, and a disrupted relational future. Spousal caregivers must navigate ongoing relational impacts across the care continuum. These relational effects illustrate how cancer jointly impacts diagnosed individuals and their caregiving spouses, altering their relational connection, roles, and future as a couple. While marital bonds can become strengthened after cancer, it also challenges couples and how they typically relate, which may be informed by gendered norms in some marital relationships. To provide better support, educational resources and interventions are needed to help couples prepare for and address challenges with intimacy, gender roles, discordant communication and coping preferences, managing discussions about their future, and coping with uncertainty. To support individuals living with blood cancer and their caregiving spouses, their needs must be understood from a family-centered or relational perspective to better facilitate psychosocial adjustment during and after cancer treatment.
配偶是最常见的癌症护理者,也是整个癌症治疗过程中的主要支持来源。虽然研究表明癌症会影响照顾者的健康状况,但人们对血癌如何影响配偶关系却知之甚少。 我们试图从配偶照顾者的角度来研究血癌对已婚夫妇关系的影响。 我们对诊断出患有血癌的配偶的照顾者的深入访谈记录进行了专题分析。 照顾者(n = 27)指出了与身体亲密关系、情感亲密关系、婚姻角色、配偶间应对不和谐以及关系中断的未来相关的积极和消极关系影响。 配偶照顾者必须在整个护理过程中应对持续的关系影响。这些关系影响说明了癌症如何共同影响确诊患者及其护理配偶,改变他们作为夫妻的关系、角色和未来。虽然癌症会加强婚姻关系,但它也会挑战夫妻关系以及他们通常的相处方式,这可能会受到某些婚姻关系中性别规范的影响。 为了提供更好的支持,我们需要教育资源和干预措施来帮助夫妻做好准备,应对亲密关系、性别角色、不和谐的沟通和应对偏好、有关未来的讨论以及应对不确定性等方面的挑战。 为了支持血癌患者及其护理配偶,必须从以家庭为中心或关系的角度来理解他们的需求,以更好地促进癌症治疗期间和治疗后的社会心理调整。
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引用次数: 0
“A Caregiver’s Marriage”: The Impact of Blood Cancer on the Spousal Connection "照顾者的婚姻":血癌对夫妻关系的影响
Pub Date : 2024-02-14 DOI: 10.1097/cr9.0000000000000055
M. Mullis, Easton N Wollney, Carma L. Bylund, G. Campbell-Salome, Kevin B. Wright, M. Sae-Hau, E. Weiss, M. Rajotte, Carla L. Fisher
Spouses are the most common type of cancer caregiver and a primary source of support across the cancer continuum. While studies show that cancer can impact caregivers’ health outcomes, less is known about how blood cancer impacts the spousal relationship. We sought to examine the impact of blood cancer on the relational connection of married couples from the perspective of the spousal caregiver. We thematically analyzed transcripts of in-depth interviews with caregivers of a spouse diagnosed with a blood cancer. Caregivers (n = 27) identified positive and negative relational impacts related to physical intimacy, emotional intimacy, marital roles, discordance between spouses in coping, and a disrupted relational future. Spousal caregivers must navigate ongoing relational impacts across the care continuum. These relational effects illustrate how cancer jointly impacts diagnosed individuals and their caregiving spouses, altering their relational connection, roles, and future as a couple. While marital bonds can become strengthened after cancer, it also challenges couples and how they typically relate, which may be informed by gendered norms in some marital relationships. To provide better support, educational resources and interventions are needed to help couples prepare for and address challenges with intimacy, gender roles, discordant communication and coping preferences, managing discussions about their future, and coping with uncertainty. To support individuals living with blood cancer and their caregiving spouses, their needs must be understood from a family-centered or relational perspective to better facilitate psychosocial adjustment during and after cancer treatment.
配偶是最常见的癌症护理者,也是整个癌症治疗过程中的主要支持来源。虽然研究表明癌症会影响照顾者的健康状况,但人们对血癌如何影响配偶关系却知之甚少。 我们试图从配偶照顾者的角度来研究血癌对已婚夫妇关系的影响。 我们对诊断出患有血癌的配偶的照顾者的深入访谈记录进行了专题分析。 照顾者(n = 27)指出了与身体亲密关系、情感亲密关系、婚姻角色、配偶间应对不和谐以及关系中断的未来相关的积极和消极关系影响。 配偶照顾者必须在整个护理过程中应对持续的关系影响。这些关系影响说明了癌症如何共同影响确诊患者及其护理配偶,改变他们作为夫妻的关系、角色和未来。虽然癌症会加强婚姻关系,但它也会挑战夫妻关系以及他们通常的相处方式,这可能会受到某些婚姻关系中性别规范的影响。 为了提供更好的支持,我们需要教育资源和干预措施来帮助夫妻做好准备,应对亲密关系、性别角色、不和谐的沟通和应对偏好、有关未来的讨论以及应对不确定性等方面的挑战。 为了支持血癌患者及其护理配偶,必须从以家庭为中心或关系的角度来理解他们的需求,以更好地促进癌症治疗期间和治疗后的社会心理调整。
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引用次数: 0
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