Pub Date : 2022-04-01DOI: 10.1097/cr9.0000000000000026
Amy Beasley, P. Carter
{"title":"When the Gold Standard of Care Is Not Available","authors":"Amy Beasley, P. Carter","doi":"10.1097/cr9.0000000000000026","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000026","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45676152","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-04-01DOI: 10.1097/cr9.0000000000000022
M. Chan, Maryam Al-Shandudi, M. Al-Moundhri, Muna Al-Balushi, M. Al-Azri
{"title":"Quality of Life Profiles of Colorectal Cancer Patients After Treatments in Oman","authors":"M. Chan, Maryam Al-Shandudi, M. Al-Moundhri, Muna Al-Balushi, M. Al-Azri","doi":"10.1097/cr9.0000000000000022","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000022","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43763556","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-04-01DOI: 10.1097/cr9.0000000000000020
Kathleen E. Montgomery, Jennifer L. Raybin, J. Ward, Krista Grinde, Corey Smith, Roger L. Brown
{"title":"Using the Pediatric Patient-reported Outcomes–common Terminology Criteria for Adverse Events to Longitudinally Measure Symptom Adverse Events of Children With Advanced Cancer","authors":"Kathleen E. Montgomery, Jennifer L. Raybin, J. Ward, Krista Grinde, Corey Smith, Roger L. Brown","doi":"10.1097/cr9.0000000000000020","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000020","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48206509","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-04-01DOI: 10.1097/cr9.0000000000000023
J. Gorman, Ellie Smith, Julia H. Drizin, K. Lyons, S. Harvey
{"title":"Managing Family Building Concerns After Cancer","authors":"J. Gorman, Ellie Smith, Julia H. Drizin, K. Lyons, S. Harvey","doi":"10.1097/cr9.0000000000000023","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000023","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47049422","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-01-01DOI: 10.1097/cr9.0000000000000017
K. Yagasaki, H. Komatsu, Y. Hamamoto
{"title":"Rediscovering the Joy of Eating in Older Adults With Gastrointestinal Cancer Undergoing Treatment","authors":"K. Yagasaki, H. Komatsu, Y. Hamamoto","doi":"10.1097/cr9.0000000000000017","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000017","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42761021","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-01-01DOI: 10.1097/cr9.0000000000000018
L. Hughes, M. Peters, I. Ellis, Lisa Mcmonagle
{"title":"The Impact of COVID-19 on Adolescent and Young Adult Cancer Services","authors":"L. Hughes, M. Peters, I. Ellis, Lisa Mcmonagle","doi":"10.1097/cr9.0000000000000018","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000018","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42872980","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-01-01DOI: 10.1097/cr9.0000000000000019
C. Olsson, B. Wilde Larsson, M. Larsson, E. Holmberg, J. Marcickiewicz, B. Tholander, A. Flöter-Rådestad, M. Bjurberg, P. Dahm-Kähler, K. Hellman, P. Kjølhede, K. Stålberg, T. Högberg, E. Åvall Lundqvist, C. Borgfeldt
{"title":"Adaption of the Quality From the Patient’s Perspective Instrument for Use in Assessing Gynecological Cancer Care and Patients’ Perceptions of Quality Care Received","authors":"C. Olsson, B. Wilde Larsson, M. Larsson, E. Holmberg, J. Marcickiewicz, B. Tholander, A. Flöter-Rådestad, M. Bjurberg, P. Dahm-Kähler, K. Hellman, P. Kjølhede, K. Stålberg, T. Högberg, E. Åvall Lundqvist, C. Borgfeldt","doi":"10.1097/cr9.0000000000000019","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000019","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45255025","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-01-01DOI: 10.1097/cr9.0000000000000015
Ayumi Takao, Sena Yamamoto, Harue Arao
{"title":"Caregiver Burden of Cancer Patients Related to Cognitive Decline at End of Life","authors":"Ayumi Takao, Sena Yamamoto, Harue Arao","doi":"10.1097/cr9.0000000000000015","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000015","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42857555","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-01-01DOI: 10.1097/cr9.0000000000000016
Miwako Eto, Sena Yamamoto, Harue Arao
{"title":"Flexible Coping in Cancer Care","authors":"Miwako Eto, Sena Yamamoto, Harue Arao","doi":"10.1097/cr9.0000000000000016","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000016","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43899559","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-12-01DOI: 10.1097/cr9.0000000000000014
M. Longacre, Marcin Chwistek, M. Collins, Michelle Odelberg, Mark Siemon, Cindy A. Keleher, C. Fang
Background Despite recommendations and policies to integrate family caregivers into U.S. healthcare settings, caregivers are not systematically involved. Thus, we developed an Integrated Caregiver Patient-Portal system that (1) allows a patient to identify their primary caregiver and their communication preferences; (2) connects the caregiver to a unique portal page to indicate their needs; and 3) informs the care team of dyad responses to aid in integrating the caregiver. Objective This formative research explored palliative care clinicians' perceptions of the system to inform refinements before usability testing. Methods We conducted two focus groups with palliative care clinicians (N=11) at an NCI-designated cancer center. Transcripts were analyzed using an integrated approach to specify system benefits and concerns. Results The most referenced benefits included: Learning information that they might not have known without the system; giving caregivers a voice or a way to express needs; and supporting an ideal model of care. Top concerns included lacking capacity to respond; needing to clarify clinician roles and expertise in responding to caregivers' needs; and ensuring ongoing system adaptability. Conclusions The clinicians' feedback resulted in revisions including: (1) modifying the caregiver questions; (2) integrating social workers in the response; and (3) adding a text-based report to the care team. Implications for Practice This formative research provided valuable feedback for portal development, and also contributes more broadly to recommendations related to integrating caregivers in healthcare. Foundational This research provides practical and logistical relevance to the discussion on how to integrate caregivers into clinical care.
{"title":"Palliative Care Clinicians' Perspectives of an Integrated Caregiver Patient-Portal System in Oncology.","authors":"M. Longacre, Marcin Chwistek, M. Collins, Michelle Odelberg, Mark Siemon, Cindy A. Keleher, C. Fang","doi":"10.1097/cr9.0000000000000014","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000014","url":null,"abstract":"Background\u0000Despite recommendations and policies to integrate family caregivers into U.S. healthcare settings, caregivers are not systematically involved. Thus, we developed an Integrated Caregiver Patient-Portal system that (1) allows a patient to identify their primary caregiver and their communication preferences; (2) connects the caregiver to a unique portal page to indicate their needs; and 3) informs the care team of dyad responses to aid in integrating the caregiver.\u0000\u0000\u0000Objective\u0000This formative research explored palliative care clinicians' perceptions of the system to inform refinements before usability testing.\u0000\u0000\u0000Methods\u0000We conducted two focus groups with palliative care clinicians (N=11) at an NCI-designated cancer center. Transcripts were analyzed using an integrated approach to specify system benefits and concerns.\u0000\u0000\u0000Results\u0000The most referenced benefits included: Learning information that they might not have known without the system; giving caregivers a voice or a way to express needs; and supporting an ideal model of care. Top concerns included lacking capacity to respond; needing to clarify clinician roles and expertise in responding to caregivers' needs; and ensuring ongoing system adaptability.\u0000\u0000\u0000Conclusions\u0000The clinicians' feedback resulted in revisions including: (1) modifying the caregiver questions; (2) integrating social workers in the response; and (3) adding a text-based report to the care team.\u0000\u0000\u0000Implications for Practice\u0000This formative research provided valuable feedback for portal development, and also contributes more broadly to recommendations related to integrating caregivers in healthcare.\u0000\u0000\u0000Foundational\u0000This research provides practical and logistical relevance to the discussion on how to integrate caregivers into clinical care.","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":"1 4 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49611231","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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