Pub Date : 2022-01-01DOI: 10.1097/cr9.0000000000000016
Miwako Eto, Sena Yamamoto, Harue Arao
{"title":"Flexible Coping in Cancer Care","authors":"Miwako Eto, Sena Yamamoto, Harue Arao","doi":"10.1097/cr9.0000000000000016","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000016","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43899559","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-12-01DOI: 10.1097/cr9.0000000000000014
M. Longacre, Marcin Chwistek, M. Collins, Michelle Odelberg, Mark Siemon, Cindy A. Keleher, C. Fang
Background Despite recommendations and policies to integrate family caregivers into U.S. healthcare settings, caregivers are not systematically involved. Thus, we developed an Integrated Caregiver Patient-Portal system that (1) allows a patient to identify their primary caregiver and their communication preferences; (2) connects the caregiver to a unique portal page to indicate their needs; and 3) informs the care team of dyad responses to aid in integrating the caregiver. Objective This formative research explored palliative care clinicians' perceptions of the system to inform refinements before usability testing. Methods We conducted two focus groups with palliative care clinicians (N=11) at an NCI-designated cancer center. Transcripts were analyzed using an integrated approach to specify system benefits and concerns. Results The most referenced benefits included: Learning information that they might not have known without the system; giving caregivers a voice or a way to express needs; and supporting an ideal model of care. Top concerns included lacking capacity to respond; needing to clarify clinician roles and expertise in responding to caregivers' needs; and ensuring ongoing system adaptability. Conclusions The clinicians' feedback resulted in revisions including: (1) modifying the caregiver questions; (2) integrating social workers in the response; and (3) adding a text-based report to the care team. Implications for Practice This formative research provided valuable feedback for portal development, and also contributes more broadly to recommendations related to integrating caregivers in healthcare. Foundational This research provides practical and logistical relevance to the discussion on how to integrate caregivers into clinical care.
{"title":"Palliative Care Clinicians' Perspectives of an Integrated Caregiver Patient-Portal System in Oncology.","authors":"M. Longacre, Marcin Chwistek, M. Collins, Michelle Odelberg, Mark Siemon, Cindy A. Keleher, C. Fang","doi":"10.1097/cr9.0000000000000014","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000014","url":null,"abstract":"Background\u0000Despite recommendations and policies to integrate family caregivers into U.S. healthcare settings, caregivers are not systematically involved. Thus, we developed an Integrated Caregiver Patient-Portal system that (1) allows a patient to identify their primary caregiver and their communication preferences; (2) connects the caregiver to a unique portal page to indicate their needs; and 3) informs the care team of dyad responses to aid in integrating the caregiver.\u0000\u0000\u0000Objective\u0000This formative research explored palliative care clinicians' perceptions of the system to inform refinements before usability testing.\u0000\u0000\u0000Methods\u0000We conducted two focus groups with palliative care clinicians (N=11) at an NCI-designated cancer center. Transcripts were analyzed using an integrated approach to specify system benefits and concerns.\u0000\u0000\u0000Results\u0000The most referenced benefits included: Learning information that they might not have known without the system; giving caregivers a voice or a way to express needs; and supporting an ideal model of care. Top concerns included lacking capacity to respond; needing to clarify clinician roles and expertise in responding to caregivers' needs; and ensuring ongoing system adaptability.\u0000\u0000\u0000Conclusions\u0000The clinicians' feedback resulted in revisions including: (1) modifying the caregiver questions; (2) integrating social workers in the response; and (3) adding a text-based report to the care team.\u0000\u0000\u0000Implications for Practice\u0000This formative research provided valuable feedback for portal development, and also contributes more broadly to recommendations related to integrating caregivers in healthcare.\u0000\u0000\u0000Foundational\u0000This research provides practical and logistical relevance to the discussion on how to integrate caregivers into clinical care.","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":"1 4 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49611231","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"From Lurking to Engaging and Finding Meaning in Pediatric Palliative Care Research.","authors":"Katherine Patterson Kelly","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":"1 3","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8594761/pdf/nihms-1727219.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39891269","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-08-26DOI: 10.1097/cr9.0000000000000009
N. Giordano, J. Bai, K. Yeager, J. Frediani, E. Im
{"title":"Impacts of Coronavirus Disease 2019 on Oncology Nursing Research","authors":"N. Giordano, J. Bai, K. Yeager, J. Frediani, E. Im","doi":"10.1097/cr9.0000000000000009","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000009","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-08-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44851488","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-08-01DOI: 10.1097/cr9.0000000000000010
K. Kelly
{"title":"From Lurking to Engaging and Finding Meaning in Pediatric Palliative Care Research","authors":"K. Kelly","doi":"10.1097/cr9.0000000000000010","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000010","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48794087","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-04-01DOI: 10.1097/cr9.0000000000000005
S. Kagan
{"title":"Elevating Supportive Cancer Care Research","authors":"S. Kagan","doi":"10.1097/cr9.0000000000000005","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000005","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42251951","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-04-01DOI: 10.1097/cr9.0000000000000007
K. Olling, K. Steffensen, Leonard Berry, D. Stacey
{"title":"The Invisible Roles of Oncology Nurses in Shared Decision Making","authors":"K. Olling, K. Steffensen, Leonard Berry, D. Stacey","doi":"10.1097/cr9.0000000000000007","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000007","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45046103","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-04-01DOI: 10.1097/cr9.0000000000000008
A. C. Banayat, Marichen Dychangco, Lydia T. Manahan, S. Howard, C. Sullivan
{"title":"Philippines Cancer Control Plan: Nursing Priorities From Nursing Service Delivery Working Group of the Philippine National Childhood Cancer Control Workshop","authors":"A. C. Banayat, Marichen Dychangco, Lydia T. Manahan, S. Howard, C. Sullivan","doi":"10.1097/cr9.0000000000000008","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000008","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46693053","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-04-01DOI: 10.1097/cr9.0000000000000006
Nazi Nejat, F. Rafiei, Maryam Ebrahimabadi
{"title":"Cross-cultural Adaptation and Psychometric Evaluation of the Persian Version of the Leuven Questionnaire for Patient Self-care During Chemotherapy","authors":"Nazi Nejat, F. Rafiei, Maryam Ebrahimabadi","doi":"10.1097/cr9.0000000000000006","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000006","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45746775","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-01-01DOI: 10.1097/cr9.0000000000000004
P. Hinds, Amy Bedinger Miller
{"title":"A Journal for Foundational Knowledge for Cancer Care: Cancer Care Research Online","authors":"P. Hinds, Amy Bedinger Miller","doi":"10.1097/cr9.0000000000000004","DOIUrl":"https://doi.org/10.1097/cr9.0000000000000004","url":null,"abstract":"","PeriodicalId":72506,"journal":{"name":"Cancer care research online","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46086123","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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