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Journal of applied research in intellectual disabilities : JARID最新文献

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Robot-mediated therapy to reduce worrying in persons with visual and intellectual disabilities. 以机器人为媒介的治疗,减少视力和智力残疾人的担忧。
Pub Date : 2021-01-01 Epub Date: 2020-09-22 DOI: 10.1111/jar.12801
Evelien van Wingerden, Emilia Barakova, Tino Lourens, Paula S Sterkenburg

Background: The study explored the use of a robot-mediated therapeutic intervention in persons with visual and intellectual disabilities.

Method: Three robot-mediated intervention sessions were developed to teach three coping skills for worrying. Effectiveness was examined using a multiple-baseline case study design (N = 7). Baseline, pre-intervention and post-intervention assessments included social validity, severity of worrying (PSWQ-C-NL), and observations by caregivers (SDQ). Short checklists on worrying were repeated throughout baseline and intervention stages. Transcripts of the sessions were analysed for participants' emotional openness.

Results: Social validity was equally high before and after the intervention. The intervention did not impact the severity of worrying, although mentor caregivers reported a lower impact of personal difficulties for participants. We found no change in self-disclosure towards the robot over sessions.

Conclusions: The participants' positive responses warrant further exploration of using robot-mediated therapy for persons with visual and intellectual disabilities. Recommendations for additional adaptations are discussed.

背景本研究探讨了以机器人为媒介的治疗干预在视障和智障人士中的应用:方法:开发了三个以机器人为媒介的干预课程,教授三种应对担忧的技能。采用多基线案例研究设计(N = 7)对干预效果进行了检验。基线、干预前和干预后评估包括社会有效性、担忧的严重程度(PSWQ-C-NL)和护理人员的观察结果(SDQ)。在整个基线和干预阶段,都会重复进行有关担忧的简短核对表。对参与者的情绪开放性进行了分析:结果:干预前后的社会效度同样很高。虽然指导照顾者报告说参与者个人困难的影响较小,但干预并没有影响担忧的严重程度。结论:参与者的积极反应值得我们进一步探讨:结论:参与者的积极反应表明,我们有理由进一步探索针对视障和智障人士使用机器人辅助治疗的方法。本文还讨论了其他调整建议。
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引用次数: 0
Linked data analysis of learning disability health checks and emergency hospital admissions in the Kent Integrated Dataset. 肯特综合数据集中学习障碍健康检查和急诊住院的关联数据分析。
Pub Date : 2021-01-01 Epub Date: 2020-10-04 DOI: 10.1111/jar.12799
Zara Cuccu, Tom Bourne, Gerrard Abi-Aad, Samantha Bennett

Background: People with learning disabilities have higher rates of admitted patient care than the general population. This study explored emergency hospital admissions during 2018/19 in association with learning disability health check recording in general practice within the Kent Integrated Dataset during 2016/17 to 2018/19.

Methods: Multiple logistic regression evaluated the odds of emergency hospital admission by sex, age, deprivation, residence, risk score, long-term conditions, severe health needs and health check. During 2018/19, one or more emergency hospital admissions were recorded for 10.9% of the 5,759 persons recorded with learning disability.

Results: There were lower odds of emergency hospital admission in persons having had learning disability health check in the past 3 years even after adjustment.

Conclusions: Comparison to nationally representative research suggests a consistent finding of benefit from learning disability health check on indicators of unplanned care use, supporting the view that learning disability health checks facilitate the addressing of key health needs.

背景:有学习障碍的人比一般人群有更高的住院病人护理率。本研究探讨了2016/17至2018/19年期间肯特综合数据集中全科实践中学习障碍健康检查记录与2018/19年期间急诊住院情况的关系。方法:采用多元logistic回归分析按性别、年龄、剥夺、居住、风险评分、长期病情、严重健康需求、健康检查等因素评价急诊住院几率。在2018/19年度,记录在案的5759名学习障碍患者中,10.9%的人记录了一次或多次急诊住院。结果:在过去3年内进行过学习障碍健康检查的人,即使经过调整,急诊住院的几率也较低。结论:与具有全国代表性的研究进行比较表明,学习障碍健康检查对计划外护理使用指标的益处是一致的,这支持了学习障碍健康检查有助于解决关键健康需求的观点。
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引用次数: 4
Family network typologies of adults with intellectual disability: Associations with psychological outcomes. 智障成人的家庭网络类型:与心理结果的关联。
Pub Date : 2021-01-01 Epub Date: 2020-07-25 DOI: 10.1111/jar.12786
Tess Tournier, Alexander H C Hendriks, Andrew Jahoda, Richard P Hastings, Sanne A H Giesbers, Ad A Vermulst, Petri J C M Embregts

Background: Based on self-reported social capital, different typologies of family networks of people with intellectual disabilities were examined. Associations between behavioural and emotional problems or well-being and typologies were investigated.

Method: 137 participants with mild intellectual disability were interviewed using the Family Network Method-Intellectual Disability to assess their emotionally supportive family relationships. Data on participants' well-being and behavioural and emotional problems were also gathered. Latent class analysis was used to identify family typologies based on social network measures.

Results: Four distinguishable typologies were identified, two supportive and two less supportive. A small association was found with behavioural and emotional problems and one of the supportive typologies. Associations with constructs of well-being were found for both supportive and less supportive typologies.

Conclusions: A variety of family types were found, with implications for sensitive professional support.

背景:根据自我报告的社会资本,研究了智障人士家庭网络的不同类型。研究还调查了行为和情感问题或福祉与类型之间的关联:方法:使用智力障碍家庭网络法对 137 名轻度智力障碍参与者进行了访谈,以评估他们的情感支持性家庭关系。此外,还收集了有关参与者的幸福感、行为和情绪问题的数据。研究人员采用潜类分析法,根据社会网络测量结果确定家庭类型:结果:确定了四种不同类型的家庭,其中两种支持性家庭和两种支持性较弱的家庭。发现行为和情绪问题与其中一种支持性类型有微小关联。支持型和不太支持型都与幸福感的构建相关:发现了多种家庭类型,对敏感的专业支持具有影响。
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引用次数: 0
Obesity in youth and adults with intellectual disability in Europe and Eurasia. 欧洲和欧亚地区智力残疾青年和成人的肥胖问题。
Pub Date : 2020-03-01 DOI: 10.1111/jar.12667
Molly Sadowsky, R. McConkey, A. Shellard
BACKGROUNDInformation about obesity among people with intellectual disability comes mostly from small-scale, national samples in high-income countries. There are limited data from transnational studies.METHODBMI scores had been obtained for over 25,000 youth and adults with intellectual disabilities drawn from 60 European and Eurasian countries. Their height and weight had been measured using standardized procedures when they attended Special Olympics Healthy Athletes events.RESULTSBinary logistic regression identified higher levels of obesity for athletes living in high-income countries, and for adult females, for those aged 30 years and over, and also for youth aged 8-13 years.CONCLUSIONSParticipation in sports does not appear to have protected these athletes from obesity. Arguably, this remains the most pressing health issue for people with intellectual disability, particularly in Western Europe.
关于智力残疾者肥胖的信息主要来自高收入国家的小规模全国性样本。跨国研究的数据有限。方法对来自欧洲和欧亚60个国家的25000多名智障青年和成人进行了dbmi评分。他们的身高和体重是在参加特奥会健康运动员活动时用标准化程序测量的。结果二元logistic回归发现,生活在高收入国家的运动员、30岁及以上的成年女性以及8-13岁的青少年的肥胖水平较高。结论参与体育运动似乎并没有保护这些运动员免于肥胖。可以说,这仍然是智力残疾者最紧迫的健康问题,特别是在西欧。
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引用次数: 5
Causal attribution and coping with parental dominance and deprecation in youth with mild intellectual disability. 轻度智障青少年的因果归因与应对父母支配和贬低。
Pub Date : 2019-11-17 DOI: 10.1111/jar.12685
P. Kurtek
Although interactions among parents and Youth with Mild Intellectual Disability (MID) may be stressful at times, most studies focus on the effects of stressful interactions on the parents. This study considers the Youth's perspective - particularly their beliefs about the reason for the parent's actions as well as how they would respond in the situation. The RA-PD test (American Psychologist, 28, 2015, 107) was administered to 151 transition age youth with MID in Poland. The test includes vignettes that describe common situations in which the parent engages in Domination or Deprecation. The participants coping responses, based on a multi-axial approach developed by Hobfoll (Stress, culture, and community. The psychology and philosophy of stress, 1998, Springer, New York, NY), and attributions toward the parental figure in the scenarios, based on Kelley (American Psychologist, 28, 2015, 107), were coded by judges. Correlations between causal attribution and coping response showed a consistent pattern where positive attributions were associated with prosocial coping and negative attributions were significantly related to antisocial coping. The implications for improving coping, especially for Youth with aggressive and passive tendencies, are discussed.
虽然父母与轻度智障青少年之间的互动有时可能存在压力,但大多数研究都集中在压力互动对父母的影响上。这项研究考虑了青少年的观点,特别是他们对父母行为原因的看法,以及他们在这种情况下会如何反应。采用RA-PD测试(American Psychologist, 28,2015,107)对151名波兰过渡年龄的MID青少年进行测试。测试包括描述父母支配或贬低的常见情况的小插曲。参与者的应对反应,基于Hobfoll发展的多轴方法(压力,文化和社区)。压力的心理学和哲学(1998,b施普林格,New York, NY),以及基于Kelley (American Psychologist, 28,2015, 107)的情境中对父母形象的归因由评委编码。因果归因与应对反应的关系呈现一致性,积极归因与亲社会应对相关,消极归因与反社会应对相关。讨论了改善应对的含义,特别是对具有攻击性和被动倾向的青少年。
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引用次数: 0
The Relationship Between Intelligence Quotient and Aspects of Everyday Functioning and Participation for People Who Have Mild and Borderline Intellectual Disabilities. 轻度和边缘性智障人士的智商与日常功能和参与的关系。
Pub Date : 2018-01-01 DOI: 10.1111/jar.12314
P. Arvidsson, M. Granlund
BACKGROUND This study explored the relationship between intelligence quotient (IQ) and aspects of everyday functioning/participation in individuals (age 16-40) who have a mild/borderline intellectual disability (IQ 55-85). METHOD Correlations were examined between IQ and (i) self-rated (n = 72) ability, participation as performance (how often an activity is performed), important participation restriction (not/seldom performing an activity perceived as important) and general well-being and (ii) proxy-rated (n = 41) ability and participation as performance. RESULTS No significant correlations between IQ and any of the explored measures were found. However, the effect sizes of the correlations between IQ and ability were considered as small but not negligible. CONCLUSIONS The results support the notion that IQ is a poor predictor of general aspects of everyday functioning in persons with mild/borderline intellectual disability. The result indicates that self-ratings partly generate other information than proxy ratings which may be important for assessments of supportive requirements and diagnosis.
本研究探讨了轻度/边缘性智力残疾(IQ 55-85)个体(16-40岁)的智商与日常功能/参与方面的关系。方法研究智商与(i)自我评价(n = 72)能力、作为绩效的参与(一项活动进行的频率)、重要参与限制(不/很少进行被认为重要的活动)和总体幸福感之间的相关性,以及(ii)代理评价(n = 41)能力和作为绩效的参与之间的相关性。结果各项指标与智商均无显著相关性。然而,智商和能力之间的相关性的效应大小被认为是小的,但不可忽略。结论:研究结果支持智商不能很好地预测轻度/边缘性智力残疾患者日常功能的观点。结果表明,自我评价在一定程度上产生了其他信息,而不是代理评价,这可能对支持性要求和诊断的评估很重要。
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引用次数: 6
Establishing core mental health workforce attributes for the effective mental health care of people with an intellectual disability and co-occurring mental ill health. 建立精神卫生工作人员的核心属性,以便对智力残疾和并存的精神疾病患者进行有效的精神卫生保健。
Pub Date : 2017-12-01 Epub Date: 2017-09-05 DOI: 10.1111/jar.12407
Janelle Weise, Karen R Fisher, Julian N Trollor

Background: People with intellectual disability experience high rates of mental ill health but multiple barriers to access to quality mental health care. One significant barrier to access is a generalist mental health workforce that lacks capacity, and consensus on what constitutes core workforce competencies in this area. As such, the first step in developing a comprehensive strategy that addresses these barriers is to define the core mental health workforce attributes.

Methods: Thirty-six intellectual disability mental health experts from across Australia participated in a modified online Delphi which aimed to reach consensus on the core attributes required of the generalist mental health workforce. At the end of each Delphi round, descriptive analyses and thematic analyses were completed.

Results: Consensus was reached among the participants for 102 attributes across 14 clinical domains. The results highlighted specific attributes in all areas of clinical practice, especially for communication (e.g., utilizes assistive communication technology), assessment (e.g., assess contributing factors to behaviours) and intervention (e.g., uses integrative interventions).

Conclusion: A comprehensive strategy is required to facilitate the generalist mental health workforce to obtain these attributes.

背景:智力残疾者的精神疾病发病率很高,但在获得高质量的精神卫生保健方面存在多种障碍。获得精神卫生服务的一个重大障碍是多面手的精神卫生工作人员缺乏能力,以及对该领域核心工作人员能力的构成缺乏共识。因此,制定解决这些障碍的综合战略的第一步是确定精神卫生工作人员的核心属性。方法:来自澳大利亚各地的36名智障心理健康专家参与了一项改进的在线德尔福问卷调查,旨在就全才心理健康工作人员所需的核心属性达成共识。在每个德尔菲回合结束时,完成描述性分析和专题分析。结果:参与者在14个临床领域的102个属性上达成了共识。结果强调了临床实践所有领域的特定属性,特别是沟通(例如,利用辅助通信技术),评估(例如,评估行为的促成因素)和干预(例如,使用综合干预)。结论:需要一个全面的策略来促进全科精神卫生工作者获得这些属性。
{"title":"Establishing core mental health workforce attributes for the effective mental health care of people with an intellectual disability and co-occurring mental ill health.","authors":"Janelle Weise,&nbsp;Karen R Fisher,&nbsp;Julian N Trollor","doi":"10.1111/jar.12407","DOIUrl":"https://doi.org/10.1111/jar.12407","url":null,"abstract":"<p><strong>Background: </strong>People with intellectual disability experience high rates of mental ill health but multiple barriers to access to quality mental health care. One significant barrier to access is a generalist mental health workforce that lacks capacity, and consensus on what constitutes core workforce competencies in this area. As such, the first step in developing a comprehensive strategy that addresses these barriers is to define the core mental health workforce attributes.</p><p><strong>Methods: </strong>Thirty-six intellectual disability mental health experts from across Australia participated in a modified online Delphi which aimed to reach consensus on the core attributes required of the generalist mental health workforce. At the end of each Delphi round, descriptive analyses and thematic analyses were completed.</p><p><strong>Results: </strong>Consensus was reached among the participants for 102 attributes across 14 clinical domains. The results highlighted specific attributes in all areas of clinical practice, especially for communication (e.g., utilizes assistive communication technology), assessment (e.g., assess contributing factors to behaviours) and intervention (e.g., uses integrative interventions).</p><p><strong>Conclusion: </strong>A comprehensive strategy is required to facilitate the generalist mental health workforce to obtain these attributes.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"30 Suppl 1 ","pages":"22-33"},"PeriodicalIF":0.0,"publicationDate":"2017-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12407","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"35328844","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 18
Lifestyle factors and Alzheimer's disease in people with Down syndrome. 唐氏综合症患者的生活方式因素与阿尔茨海默病
Pub Date : 2017-12-01 Epub Date: 2017-07-30 DOI: 10.1111/jar.12369
Athena V Kenshole, Deanna Gallichan, Sabine Pahl, John Clibbens

Background: Lifestyle has previously been associated with the onset of Alzheimer's disease (AD) in the typically developing population, but research investigating this association in Down syndrome (DS) is limited.

Method: Adults with DS and AD (n = 27) were compared to adults with DS without AD (n = 30) on physical activity, diet, weight, where participants currently lived, where participants had lived for the majority of their lives, educational attainment, occupational attainment and cognitive activity.

Results: There was a significant difference between samples on where participants currently lived, with the majority of the clinical sample living in institutionalized settings and the majority of the control sample living in independent/supported living settings. This may reflect a tendency to move people once they start to deteriorate which, if correct, is contrary to clinical recommendations that people with AD should be supported to "die in place."

Conclusions: Further research into the way in which lifestyle factors, particularly living environment, could contribute to the increased risk of AD in adults with DS is required. This may support interventions aimed at preventing or delaying the onset of the disease.

背景:生活方式与典型发展人群阿尔茨海默病(AD)发病有关,但在唐氏综合症(DS)中调查这种关联的研究有限。方法:将27名患有退行性痴呆的成年人(n = 27)与30名没有退行性痴呆的成年人(n = 30)在身体活动、饮食、体重、参与者目前居住的地方、参与者一生中大部分时间居住的地方、受教育程度、职业成就和认知活动方面进行比较。结果:在参与者目前居住的地方,样本之间存在显著差异,大多数临床样本生活在机构环境中,而大多数对照样本生活在独立/支持的生活环境中。这可能反映了一种趋势,一旦人们开始恶化,他们就会移动,如果这是正确的,这与临床建议相反,即AD患者应该被支持“就地死亡”。结论:需要进一步研究生活方式因素,特别是生活环境,是如何导致成年退行性椎体滑移患者AD风险增加的。这可能支持旨在预防或延缓该病发病的干预措施。
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引用次数: 2
Early detection of dementia in people with an intellectual disability - A German pilot study. 智障患者痴呆的早期检测——一项德国试点研究。
Pub Date : 2017-12-01 Epub Date: 2017-03-23 DOI: 10.1111/jar.12347
Bettina Kuske, Christian Wolff, Uwe Gövert, Sandra Verena Müller

Background: This study investigated the application of a newly developed neuropsychological assessment, the Wolfenbütteler Dementia Test for Individuals with Intellectual Disabilities (WDTIM) in combination with the Dementia Screening Questionnaire for Individuals with Intellectual Disabilities (DSQIID).

Methods: The instruments were evaluated in a prospective 2-year follow-up study. A total of 102 people with an intellectual disability were assessed at 6-month intervals. Data were analysed using qualitative and statistical analyses.

Results: Four groups of individuals emerged from the analysis: (1) confirmed suspicion, (2) no suspicion, (3) questionable suspicion and (4) early suspicion. Significant differences were found between groups 1 and 2. The WDTIM could be administered to 90%-100% of all participants exhibiting mild-to-moderate intellectual disability and to 50% with severe intellectual disability .

Conclusions: The WDTIM was shown to have good applicability to people with mild-to-moderate intellectual disability and to be appropriate for detecting cognitive changes. Using the two instruments in combination achieved greater accuracy in reinforcing a dementia suspicion than did using the DSQIID alone.

背景:本研究探讨了一种新开发的神经心理学评估方法——wolfenb teteler痴呆测试(WDTIM)与智障个体痴呆筛查问卷(DSQIID)的应用。方法:在一项前瞻性2年随访研究中对这些器械进行评估。共有102名智障人士每隔6个月接受一次评估。数据分析采用定性和统计分析。结果:从分析中得出四组个体:(1)确认怀疑,(2)无怀疑,(3)可疑怀疑,(4)早期怀疑。第1组和第2组之间存在显著差异。WDTIM适用于90% ~ 100%的轻至中度智力残疾和50%的重度智力残疾患者。结论:WDTIM对轻至中度智力残疾患者具有良好的适用性,适用于检测认知变化。与单独使用DSQIID相比,结合使用这两种工具在加强痴呆症怀疑方面取得了更高的准确性。
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引用次数: 16
Development and evaluation of a manual for extended brief intervention for alcohol misuse for adults with mild to moderate intellectual disabilities living in the community: The EBI-LD study manual. 针对社区中有轻度至中度智力残疾的成人酒精滥用的扩展短期干预手册的开发和评估:EBI-LD研究手册
Pub Date : 2017-12-01 Epub Date: 2017-09-05 DOI: 10.1111/jar.12409
Christos Kouimtsidis, Katrina Scior, Gianluca Baio, Rachael Hunter, Vittoria Pezzoni, Angela Hassiotis

Background: Extended brief interventions for alcohol misuse are effective in the general population. The process of manualising the first ever such intervention for people with mild to moderate intellectual disabilities in the UK is the focus of this study.

Methods: The manual was an adaptation of existing manuals based on Motivational Enhancement and Cognitive Behaviour Therapy and was used in a feasibility randomized controlled trial, the EBI-LD study. The sessions were recorded and scored using an adapted version of the Yale Adherence and Competence Scale (YACS II). Feedback was provided by therapists. The trial is closed. Registered: isrctn.com; ISRCTN58783633.

Results: The quality of the sessions provided was rated as good. Therapists were able to cover all topics within each session. Main challenges included session duration and homework task completion.

Conclusions: We recommend the duration of the sessions to be extended to 40 min to accommodate carers in the session and to enhance their support in homework task completion.

背景:对酒精滥用的长期短期干预在一般人群中是有效的。这项研究的重点是在英国首次对轻度到中度智力残疾的人进行这种干预。方法:该手册是基于动机增强和认知行为治疗的现有手册的改编,并用于可行性随机对照试验,即EBI-LD研究。使用耶鲁依从性和能力量表(YACS II)进行记录和评分。治疗师提供反馈。审判已经结束。注册:isrctn.com;ISRCTN58783633。结果:提供的课程质量被评为良好。治疗师能够在每个疗程中涵盖所有主题。主要的挑战包括上课时间和完成家庭作业。结论:我们建议将辅导时间延长至40分钟,以配合照顾者的需要,并协助他们完成家庭作业。
{"title":"Development and evaluation of a manual for extended brief intervention for alcohol misuse for adults with mild to moderate intellectual disabilities living in the community: The EBI-LD study manual.","authors":"Christos Kouimtsidis,&nbsp;Katrina Scior,&nbsp;Gianluca Baio,&nbsp;Rachael Hunter,&nbsp;Vittoria Pezzoni,&nbsp;Angela Hassiotis","doi":"10.1111/jar.12409","DOIUrl":"https://doi.org/10.1111/jar.12409","url":null,"abstract":"<p><strong>Background: </strong>Extended brief interventions for alcohol misuse are effective in the general population. The process of manualising the first ever such intervention for people with mild to moderate intellectual disabilities in the UK is the focus of this study.</p><p><strong>Methods: </strong>The manual was an adaptation of existing manuals based on Motivational Enhancement and Cognitive Behaviour Therapy and was used in a feasibility randomized controlled trial, the EBI-LD study. The sessions were recorded and scored using an adapted version of the Yale Adherence and Competence Scale (YACS II). Feedback was provided by therapists. The trial is closed. Registered: isrctn.com; ISRCTN58783633.</p><p><strong>Results: </strong>The quality of the sessions provided was rated as good. Therapists were able to cover all topics within each session. Main challenges included session duration and homework task completion.</p><p><strong>Conclusions: </strong>We recommend the duration of the sessions to be extended to 40 min to accommodate carers in the session and to enhance their support in homework task completion.</p>","PeriodicalId":73610,"journal":{"name":"Journal of applied research in intellectual disabilities : JARID","volume":"30 Suppl 1 ","pages":"42-48"},"PeriodicalIF":0.0,"publicationDate":"2017-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1111/jar.12409","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"35381651","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 9
期刊
Journal of applied research in intellectual disabilities : JARID
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