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Relationship between apathy/post-stroke depression and gait training in patients with stroke. 脑卒中患者冷漠/脑卒中后抑郁与步态训练的关系
Takashi Maeda, Kenichiro Shishido, Tomoki Ouchida, Yasuyuki Moriuchi, Atsuko Hayashi

Background: We examined the effect of gait training on apathy/post-stroke depression (PSD) in patients with walking disorders after stroke, and the effect of apathy/PSD on gait reacquisition in subacute stroke.

Methods: Fifty-five participants with gait disorders after stroke underwent gait training for 6 weeks. Outcome measurements included Apathy Scale (AS), Center for Epidemiologic Studies Depression Scale (CES-D), Mini-Mental State Examination, Lower Extremity Function of Stroke Impairment Assessment Set, and Functional Independence Measure-TRANSFER and -WALK scores. These scores of the participants were divided into groups with or without apathy based on AS scores for statistical analysis.

Results: Both groups showed significant differences in all outcomes after gait training. In addition, even if the participants had apathy at baseline, there were no significant differences in outcomes other than AS/CES-D between the two groups after gait training. Logistic regression analysis showed that only Mini-Mental State Examination and Lower Extremity Function of Stroke Impairment Assessment Set scores affected the reacquisition of independent walking (odds ratio: 1.332, P = 0.015; odds ratio: 1.364, P = 0.005, respectively). AS and CES-D scores had no effects on gait reacquisition.

Conclusion: Gait training may be beneficial for both physical impairment and psychiatric symptoms in patients with stroke and may prevent poor functional recovery caused by apathy and PSD. As opposed to previous studies that have shown a negative impact of apathy and PSD on functional recovery, our results suggest that apathy/PSD may not negatively affect functional recovery when gait training is conducted in subacute stroke.

背景:我们研究了步态训练对卒中后行走障碍患者冷漠/卒中后抑郁(PSD)的影响,以及亚急性卒中患者冷漠/PSD对步态重新习得的影响。方法:55名卒中后步态障碍患者接受为期6周的步态训练。结果测量包括冷漠量表(AS)、流行病学研究中心抑郁量表(CES-D)、简易精神状态检查、中风损伤下肢功能评估集、功能独立测量-转移和-WALK评分。根据受试者的AS得分分为冷漠组和不冷漠组进行统计分析。结果:两组在步态训练后的所有结果均有显著差异。此外,即使参与者在基线时冷漠,两组在步态训练后除了AS/CES-D之外的结果没有显著差异。Logistic回归分析显示,仅卒中损害评估集最小精神状态检查和下肢功能评分影响独立行走的再习得(优势比:1.332,P = 0.015;优势比:1.364,P = 0.005)。AS和CES-D评分对步态恢复无影响。结论:步态训练对脑卒中患者的身体损伤和精神症状均有改善作用,并可预防因冷漠和PSD引起的功能恢复不良。与以往研究显示冷漠和PSD对功能恢复的负面影响相反,我们的研究结果表明,在亚急性卒中中进行步态训练时,冷漠/PSD可能不会对功能恢复产生负面影响。
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引用次数: 0
Expressed emotion mediates the association between caregiver relationship closeness and psychological symptoms in people with dementia. 表达情绪在照顾者关系亲密度和痴呆症患者心理症状之间起中介作用。
Xiaoji Liu, Wenping Mo, Reiko Kanaya, Kazue Shigenobu, Keigo Takiue, Eriko Koujiya, Yasushi Takeya, Miyae Yamakawa

Aim: This study examines whether expressed emotion (EE) mediates the association between caregiver relationship closeness and behavioural and psychological symptoms of dementia (BPSD).

Methods: We recruited 64 families with dementia in Osaka and collected data for 3 months. Caregiver-patient relationship closeness was assessed using the Relationship Closeness Scale (RCS), and BPSD was measured with the Neuropsychiatric Inventory Questionnaire (NPI-Q). EE was evaluated using the Family Attitude Scale (FAS).

Results: The results indicated significant correlations between EE, relationship closeness, and BPSD, showing that higher caregiver intimacy levels were associated with lower aggression in dementia people. Mediation analysis revealed that EE significantly and mainly mediated the relationship between RCS and BPSD.

Conclusions: The findings underscore the importance of interventions focused on improving caregiver-patient relationships and managing caregiver emotional expressions to mitigate BPSD. These insights are valuable for developing targeted support programs for dementia care.

目的:本研究探讨情感表达是否在照顾者亲密关系与痴呆(BPSD)行为和心理症状之间起中介作用。方法:选取大阪地区64个痴呆患者家庭,进行为期3个月的资料收集。采用关系亲密度量表(RCS)评估护患关系亲密度,采用神经精神量表(NPI-Q)测量BPSD。使用家庭态度量表(FAS)评估情感表达。结果:情感表达、关系亲密度和BPSD之间存在显著相关,表明痴呆症患者的照顾者亲密度越高,其攻击行为越低。中介分析显示,情感表达在RCS与BPSD之间起着显著且主要的中介作用。结论:研究结果强调了干预的重要性,重点是改善护理者与患者的关系和管理护理者的情绪表达,以减轻BPSD。这些见解对于制定有针对性的痴呆症护理支持计划很有价值。
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引用次数: 0
Related factors of cognitive frailty among older adults with type 2 diabetes: a cross-sectional study. 老年2型糖尿病患者认知衰弱的相关因素:一项横断面研究
Min Cheng, Yan Qiao, Bailin Yang, Mei He

Background: The correlation between diabetes and cognitive frailty is still controversial. The purpose of this study was to explore the related factors of cognitive frailty in older adults with type 2 diabetes, and to provide new ideas for realising healthy ageing of diabetic patients.

Methods: The survey was conducted at Mianyang Central Hospital affiliated to University of Electronic Science and Technology of China from January 15 to June 30, 2024. The subjects were older adults with type 2 diabetes aged 60 years or older. Cognitive frailty was assessed using Fried's phenotype and Mini-Mental State Examination. Statistical analysis and plotting were conducted using SPSS 25.0 and R 4.3.3. Least absolute shrinkage and selection operator (LASSO) regression was used to reduce the dimensionality of 30 clinical features collected, and the unimportant factors were initially screened out. The important factors with non-zero coefficients identified by LASSO regression were included in a multivariate logistic regression analysis to explore the factors influencing cognitive frailty in older diabetic patients.

Results: This study included 301 older persons with type 2 diabetes. Among them, 91 (30.2%) cases of cognitive frailty occurred. Related factors for cognitive frailty in older adults with type 2 diabetes include: age (odds ratio (OR) = 6.417, 95% CI: 1.882-21.876, P = 0.003), hypomnesia (OR = 2,985, 95%CI: 1.143-7.797, P = 0.026), depression (OR = 9.926, 95%CI: 4.117-23.934, P < 0.001), diabetic retinopathy (OR = 6.489, 95%CI: 1.969-21.384, P = 0.002), history of diabetic ketoacidosis (OR = 12.024, 95%CI: 1.724-83.872, P = 0.012).

Conclusion: The prevalence of cognitive frailty in older persons with type 2 diabetes mellitus was higher. It was closely related to age, hypomnesia, depression, diabetic retinopathy and history of diabetic ketoacidosis. Early detection of the risk and effective intervention can reduce the incidence of adverse events and improve the quality of life of patients.

背景:糖尿病与认知衰弱之间的相关性仍存在争议。本研究旨在探讨老年2型糖尿病患者认知衰弱的相关因素,为糖尿病患者实现健康老龄化提供新的思路。方法:调查于2024年1月15日至6月30日在中国电子科技大学绵阳市附属中心医院进行。研究对象为60岁以上的老年2型糖尿病患者。使用Fried's表型和迷你精神状态检查评估认知脆弱性。采用SPSS 25.0和R 4.3.3进行统计分析和绘图。采用最小绝对收缩和选择算子(LASSO)回归对收集到的30个临床特征进行降维,初步筛选出不重要的因素。将LASSO回归识别出非零系数的重要因素纳入多因素logistic回归分析,探讨老年糖尿病患者认知衰弱的影响因素。结果:本研究纳入了301例老年2型糖尿病患者。其中发生认知衰弱91例(30.2%)。老年2型糖尿病患者认知衰弱的相关因素包括:年龄(比值比(OR) = 6.417, 95%CI: 1.882 ~ 21.876, P = 0.003)、记忆力减退(OR = 2985, 95%CI: 1.143 ~ 7.797, P = 0.026)、抑郁(OR = 9.926, 95%CI: 4.117 ~ 23.934, P)。与年龄、健忘、抑郁、糖尿病视网膜病变、糖尿病酮症酸中毒史密切相关。早期发现风险并进行有效干预,可降低不良事件的发生率,提高患者的生活质量。
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引用次数: 0
Knee osteoarthritis emotional meaning scale development study. 膝骨关节炎情感意义量表开发研究。
Arife Azak, Nurgün Platin

Background: Knee osteoarthritis (OA) is a chronic, long-term disease with both physical and psychosocial consequences. In determining the treatment programs of patients diagnosed with knee OA and ensuring compliance with treatment, it is important to understand the emotional attitudes and experiences of patients regarding the physical and psychosocial effects of the disease. This study aimed to create a scale for evaluating the emotional attitudes of patients with knee OA as they manage and cope with the condition.

Methods: The research was a validity and reliability study designed using methodological methods. Study data were collected from the Department of Physical Therapy and Rehabilitation at a university hospital in Turkey between November and December 2024. The study sample included 90 patients diagnosed with knee OA. To establish the validity of the scale, content validity and construct validity were assessed. Internal consistency was determined using Cronbach's alpha reliability coefficient, item-total score correlations, and the Hotelling T2 test. The test-retest method was applied to determine the scale's stability over time.

Results: The content validity index (CVI) values for the draft form of the scale ranged between 0.91 and 1.00. The exploratory factor analysis indicated that the scale consisted of a single factor, which explained 41.62% of the total variance. The scale demonstrated strong reliability, with a Cronbach's alpha coefficient of 0.86, item-total correlations ranging from 0.36 to 0.73, and a significant Hotelling T2 value (P < 0.001). Test-retest analysis indicated a positive and highly significant correlation for the overall scale (r = 0.964, P < 0.001).

Conclusion: The knee osteoarthritis emotional meaning scale (KOEMS) was demonstrated to be a valid and reliable instrument for this patient sample.

背景:膝骨关节炎(OA)是一种慢性、长期疾病,具有生理和心理后果。在确定膝关节炎患者的治疗方案并确保治疗依从性时,了解患者对疾病的生理和心理影响的情绪态度和经历是很重要的。本研究旨在建立一个评估膝关节OA患者在管理和应对病情时的情绪态度的量表。方法:采用方法学方法进行效度和信度研究。研究数据是在2024年11月至12月期间从土耳其一所大学医院的物理治疗和康复部收集的。研究样本包括90名诊断为膝关节OA的患者。为确定量表的效度,分别进行了内容效度和构念效度的评估。内部一致性采用Cronbach's α信度系数、项目总分相关性和Hotelling T2检验来确定。采用测试-重测试的方法来确定天平随时间的稳定性。结果:量表初稿的内容效度指数(CVI)值在0.91 ~ 1.00之间。探索性因子分析表明,量表由单一因素组成,解释总方差的41.62%。该量表具有较强的信度,Cronbach's alpha系数为0.86,项目-总相关系数为0.36 ~ 0.73,Hotelling T2值显著(P)。结论:膝骨关节炎情绪意义量表(KOEMS)对该患者样本是一种有效可靠的工具。
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引用次数: 0
Psychosocial problems observed in older adults after disaster. 灾后老年人的社会心理问题。
Zeynep Güngörmüş, Safiye Özgüç

Natural disasters are large-scale catastrophic events that seriously disrupt the functioning of a community or society. The frequency and severity of disasters are increasing and involve widespread human, material, economic, or environmental impacts that exceed the ability of the society affected by them to cope using its resources. In addition, disasters significantly affect the physical, emotional, and psychological health of individuals and cause numerous deaths, injuries, and economic losses. One of the most vulnerable groups to the negative effects of disasters is the elderly. The increase in the elderly population worldwide brings with it the problems specific to this period and the service needs for these problems. The population consists of older adults, who are among the most vulnerable groups to the negative effects of natural disasters. During the social traumatisation process triggered by natural disasters, elderly people experience intense feelings of anxiety, fear, anger, helplessness, loneliness, hopelessness, futurelessness, and insecurity. Reactions such as unresponsiveness, alienation, inability to focus, and inability to remember are normal during this process. The normality of these feelings and responses in the acute period, which can last up to 3 months, will give way to abnormality unless the necessary physical and psychosocial conditions are provided. When the necessary psychosocial conditions are not provided, elderly individuals who experience a disaster may experience mental problems such as post-traumatic stress disorder, depression, somatisation disorder, anxiety disorders, and substance use disorders. In this context, providing the necessary psychosocial support for older adults to cope with psychosocial problems after a disaster and facilitating access to this support is very important in terms of adapting to the post-disaster period.

自然灾害是严重破坏社区或社会运作的大规模灾难性事件。灾害的频率和严重程度正在增加,涉及广泛的人力、物力、经济或环境影响,超出了受灾害影响的社会利用其资源应付的能力。此外,灾害严重影响个人的身体、情感和心理健康,造成大量伤亡和经济损失。老年人是最容易受到灾害负面影响的群体之一。全球老年人口的增加带来了这一时期特有的问题以及针对这些问题的服务需求。人口由老年人组成,他们是最容易受到自然灾害负面影响的群体。在自然灾害引发的社会创伤过程中,老年人经历了强烈的焦虑、恐惧、愤怒、无助、孤独、绝望、无前途和不安全感。在这个过程中,诸如反应迟钝、疏离、无法集中注意力和无法记忆等反应是正常的。这些正常的感觉和反应在急性期可能持续3个月,除非提供必要的身体和社会心理条件,否则会让位于异常。如果没有提供必要的社会心理条件,经历灾难的老年人可能会出现精神问题,如创伤后应激障碍、抑郁症、躯体化障碍、焦虑症和物质使用障碍。在这种情况下,为老年人提供必要的社会心理支持,以应对灾后社会心理问题,并促进获得这种支持,对于适应灾后时期非常重要。
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引用次数: 0
Knowledge and attitudes about dementia among nursing students in Vietnam: a cross-sectional study. 越南护生对痴呆症的知识和态度:一项横断面研究。
Dung Thi My Pham, An Dang Do, Hien Thi Thu Do, Anh Ngoc Nguyen, Binh Thanh Nguyen, Mai Do

Background: Dementia is one of the most pressing health concerns among the ageing population, imposing significant health, financial and caregiving burdens on people with dementia (PWD), their families and caregivers. Building the capacity of nursing students is essential for effectively improving quality of life for affected people. This study aimed to assess nursing students' knowledge and attitudes toward dementia and its associated factors.

Methods: A cross-sectional study was conducted in four medical schools educating 3-year and 4-year diploma nursing students in northern, central and southern Vietnam, who were selected based on convenience. Six hundred full-time diploma senior nursing students were recruited for the survey. A self-administered questionnaire consisted of 34 true-false questions evaluating students' knowledge about dementia (Alzheimer's Disease Knowledge Scale) and 20 items using a five-point Likert scale assessing their attitudes toward dementia (Dementia Attitudes Scale) was used. The tools were validated with 60 students and showed good internal reliability.

Findings: Senior nursing students exhibited insufficient knowledge of dementia (mean score of 20.82 ± 2.96 out of 34) but demonstrated positive attitudes toward dementia care (mean score of 65.54 ± 8.25 out of 90). Engaging in a 4-year diploma program (β = 0.501), being female (β = 0.827), and achieving greater academic performance (β = 0.795) were positively associated with increased knowledge of dementia (P < 0.05). Being female (β = 2.179) and possessing better knowledge of dementia (β = 2.740) also positively affected nursing students' attitudes toward dementia (P < 0.05).

Conclusions: The study is the first to shed light on the gaps in dementia knowledge among senior nursing students in Vietnam. It also provides a comparison in dementia knowledge and attitudes between students enrolling in 3-year versus 4-year nursing diploma programs. Educational strategies are needed to not only equip students with adequate knowledge and reinforced positive attitudes toward dementia, but to strengthen nursing graduates' knowledge and attititudes of dementia to better their capacity in ageing and dementia care.

Implications for nursing practice: The findings highlighted the need to enhance training programs to meet the growing demand for dementia care. Additional post-graduation training activities are also recommended to increase competencies of nurses in caring for PWD.

背景:痴呆症是老龄化人口中最紧迫的健康问题之一,给痴呆症患者、他们的家人和照顾者带来了巨大的健康、经济和护理负担。培养护理专业学生的能力对于有效改善受影响人群的生活质量至关重要。本研究旨在了解护生对痴呆及其相关因素的认知态度。方法:在越南北部、中部和南部四所培养三年制和四年制护理专业学生的医学院进行横断面研究。该调查招募了600名全日制高级护理专业的学生。采用自填问卷,由34个正反题组成,评估学生对痴呆症的知识(阿尔茨海默病知识量表),20个题项采用李克特5分量表评估学生对痴呆症的态度(痴呆症态度量表)。该工具在60名学生中进行了验证,显示出良好的内部信度。结果:护生对痴呆的认知程度不高(34分中平均得分为20.82±2.96分),但对痴呆护理态度积极(90分中平均得分为65.54±8.25分)。参加四年制文凭课程(β = 0.501),女性(β = 0.827)和取得更好的学业成绩(β = 0.795)与痴呆症知识的增加呈正相关(P结论:该研究首次揭示了越南高级护理学生在痴呆症知识方面的差距。它还提供了三年制和四年制护理文凭课程学生在痴呆症知识和态度方面的比较。教育策略不仅要使学生掌握足够的知识,增强对痴呆症的积极态度,而且要加强护理毕业生对痴呆症的认识和态度,以提高他们的老龄化和痴呆症护理能力。对护理实践的启示:研究结果强调了加强培训计划以满足日益增长的痴呆症护理需求的必要性。此外,亦建议增加毕业后培训活动,以提高护理残疾人士的能力。
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引用次数: 0
Health literacy and frailty: the mediating role of instrumental activities of daily living. 健康素养与虚弱:日常生活工具性活动的中介作用。
Keisuke Nakamura, Tomohiro Sasaki, Yoshiharu Yokokawa, Shinobu Yokouchi

Introduction: Japan has the fastest ageing population worldwide, with a high prevalence of frailty. This study aimed to investigate the impact of communicative and critical health literacy (CCHL) on the progression of frailty in older adults participating in community-based programs over 1 year, and whether instrumental activities of daily living (IADL) mediate this relationship.

Methods: This retrospective cohort study used data from the Matsumoto City Frailty Prevention Project, involving 373 older adults aged 65 years and over. Health literacy was measured using the CCHL scale, and IADL was assessed using the Tokyo Metropolitan Institute of Gerontology Index of Competence (TMIG-IC), which includes five items of IADLs. Frailty was classified using the Japanese version of the Cardiovascular Health Study (J-CHS) criteria. Mediation analysis was used to evaluate the role of IADL in the relationship between health literacy and frailty.

Results: Participants with higher CCHL had significantly better IADL scores (coefficient = 0.127, P = 0.043) and were less likely to progress to frailty (odds ratio: 0.546, P = 0.009). Mediation analysis revealed that IADL accounted for approximately 10.7% of the total effect of health literacy on frailty progression (P = 0.030).

Conclusion: Higher CCHL reduces the risk of frailty progression, with IADL playing a mediating role. Interventions targeting both health literacy and IADL may effectively prevent frailty in older adults.

导读:日本是世界上人口老龄化最快的国家,身体虚弱的比例很高。本研究旨在探讨交流和关键健康素养(CCHL)对参与社区计划1年以上的老年人虚弱进展的影响,以及日常生活工具活动(IADL)是否介导了这种关系。方法:本回顾性队列研究使用松本市虚弱预防项目的数据,涉及373名65岁及以上的老年人。使用CCHL量表测量健康素养,使用东京都老年学研究所能力指数(TMIG-IC)评估IADL,其中包括IADL的五个项目。使用日本版的心血管健康研究(J-CHS)标准对虚弱进行分类。采用中介分析评估IADL在健康素养与脆弱之间的作用。结果:CCHL越高的受试者,其IADL评分越高(系数= 0.127,P = 0.043),且进展为虚弱的可能性越小(优势比:0.546,P = 0.009)。中介分析显示,IADL约占健康素养对衰弱进展总影响的10.7% (P = 0.030)。结论:较高的CCHL可降低衰弱进展的风险,IADL在其中起中介作用。针对健康素养和IADL的干预措施可以有效预防老年人的虚弱。
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引用次数: 0
Neuropsychiatric symptom-related role and activity restrictions by relatives: focusing on the gender of older adults with suspected dementia. 亲属的神经精神症状相关作用和活动限制:关注疑似痴呆老年人的性别
Yu Fujita, Yuka Kato, Hikaru Oba, Nana Hashimoto, Jin Narumoto

Background: As cognitive function declines, relatives may restrict the roles and activities they consider older adults unable to continue independently performing. We examined the characteristics of these role and activity restrictions by relatives among older adults prior to their first visit to a memory clinic for an official diagnosis, focusing on gender and the diagnosis of dementia. Additionally, we examined the relationship between role and activity restrictions by relatives and the presence of neuropsychiatric symptoms (NPS) controlling for older adults' gender.

Methods: We retrospectively reviewed the medical charts of 213 older adults. First, we calculated descriptive statistics for the characteristics of role and activity restrictions by relatives. Second, we examined the association between these roles and activity restrictions and NPS using multivariate logistic regression analysis controlling for older adults' gender, diagnosis, and presence of a cohabitant.

Results: The rate of role and activity restrictions by relatives was 21.6%. Of the older adults experiencing these restrictions, 78.3% were women, and 34.8% had mild cognitive impairment. The most common role and activity restriction was money-related. Role and activity restrictions were associated with the NPS of hyperactivity, psychosis. Hyperactivity was related to men.

Conclusions: Hyperactivity psychosis may be more strongly related to family involvement than other NPS. These findings highlight the importance of avoiding premature role and activity restrictions among older adults with suspected dementia.

背景:随着认知功能的下降,亲属可能会限制他们认为老年人无法继续独立执行的角色和活动。我们研究了老年人首次到记忆诊所进行正式诊断之前亲属的这些角色和活动限制的特征,重点是性别和痴呆症的诊断。此外,我们检查了亲属的角色和活动限制与控制老年人性别的神经精神症状(NPS)存在之间的关系。方法:回顾性分析213例老年人的病历资料。首先,我们计算了亲属角色和活动限制特征的描述性统计。其次,我们使用多变量逻辑回归分析来检验这些角色与活动限制和NPS之间的关系,控制老年人的性别、诊断和同居者的存在。结果:亲属的作用和活动限制率为21.6%。在经历这些限制的老年人中,78.3%是女性,34.8%有轻度认知障碍。最常见的角色和活动限制与金钱有关。角色和活动限制与多动、精神病的NPS相关。多动症与男性有关。结论:与其他NPS相比,多动性精神病可能与家庭参与关系更密切。这些发现强调了在疑似痴呆症的老年人中避免过早的角色和活动限制的重要性。
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引用次数: 0
Concept of good death in people with dementia: a cross-sectional questionnaire survey of bereaved family members and medical professionals. 痴呆患者的善终概念:对丧亲家庭成员和医疗专业人员的横断面问卷调查
Mitsunori Miyashita, Mizuho Nonaka, Maho Aoyama, Miharu Nakanishi, Miyae Yamakawa, Hiroki Fukahori, Kazuki Sato, Zaiya Takahashi, Hiroko Nagae, Tatsuya Morita

Background: There is limited quantitative evidence regarding good death for people with dementia.

Aims: To clarify which components of good death are important for people with dementia and to identify the component structure of good death through explanatory factor analysis.

Design: A web-based questionnaire survey was conducted where bereaved family members and professionals were asked to rate the importance of the 44 items identified from previous qualitative interviews as components of 'good death'.

Setting/participants: A total of 618 bereaved family members of people with dementia, and 206 physicians, nurses and care workers, each, involved in dementia care.

Results: A total of 1236 participant responses were analyzed. The exploratory factor analysis identified the following four factors as the concepts of good death for people with dementia: 'Comfort, security, and safety', 'Relationships', 'Independence', and 'Personhood care'. The top five items that bereaved families indicated as important were 'dying at peace' (97%), 'being free from pain and physical distress' (97%), 'being calm' (96%), 'being clean' (96%), and 'receiving necessary daily living assistance' (96%). The items with the lowest scores were 'being cared for by family' (53%), 'living with faith' (54%), and 'remaining in people's memory after one's death' (67%). We found only small differences between the opinions of the bereaved family members and medical professionals.

Conclusions: The components of good death which stakeholders consider important provide useful information for developing care implementation strategies for dying people with dementia.

背景:关于痴呆症患者的良好死亡的定量证据有限。目的:通过解释因子分析,阐明好死的哪些组成部分对痴呆症患者是重要的,并确定好死的组成结构。设计:进行了一项基于网络的问卷调查,要求丧失亲人的家庭成员和专业人员对先前定性访谈中确定的44项作为“善终”组成部分的重要性进行评级。环境/参与者:共有618名失智症患者的家属,以及206名参与失智症护理的医生、护士和护理人员。结果:共分析了1236份参与者的反馈。探索性因素分析确定了以下四个因素作为痴呆症患者良好死亡的概念:“舒适、安全、安全”、“关系”、“独立”和“人格关怀”。死者家属认为最重要的前五项是“平静地死去”(97%)、“摆脱痛苦和身体上的痛苦”(97%)、“保持冷静”(96%)、“保持清洁”(96%)和“接受必要的日常生活援助”(96%)。得分最低的项目是“被家人照顾”(53%)、“有信仰地生活”(54%)和“死后留在人们的记忆中”(67%)。我们发现死者家属和医疗专业人员的意见只有很小的差异。结论:利益相关者认为重要的善死组成部分为制定临终痴呆症患者的护理实施战略提供了有用的信息。
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引用次数: 0
Gaps in dementia knowledge: a nationwide study of public awareness and misconceptions in Bulgaria. 痴呆知识的差距:保加利亚公众意识和误解的全国性研究。
Sophia Lazarova, Dessislava Petrova-Antonova

Background: Dementia is a global health concern which can be mitigated by primary prevention and improved literacy. Effective educational initiatives are informed by studies of dementia knowledge. However, most of these studies are conducted in high-income countries, leaving the Balkan region underrepresented. This study aimed to conduct the first investigation of dementia knowledge among the Bulgarian population, exploring recognition of symptoms, general dementia knowledge, and risk factors awareness.

Methods: Using an online survey we assessed the following components of knowledge: (i) recognition of dementia symptoms from a vignette; (ii) dementia literacy measured with the Dementia Knowledge Assessment Scale (DKAS); and (iii) knowledge about dementia risk factors. Demographic characteristics, previous experience with dementia, and patterns of informing about dementia were also considered in the study.

Results: One thousand, eight hundred and ninety-six adults (mean age = 44.99; 51.79% female) completed the survey. Half of the respondents correctly recognised dementia symptoms from a vignette. The average DKAS score was 9.51. Dementia knowledge was linked to education, marital status, employment, ethnicity, experience with dementia, and informational sources. 56.7% of the respondents thought dementia was a normal part of ageing and 74.8% did not know a healthy lifestyle reduces the risk of dementia. The average number of identified risk factors was eight (out of 17), with many mistakenly citing dental fillings, laziness, and witchcraft as contributors to dementia.

Conclusions: The Bulgarian society has a poor understanding of dementia, highlighting the need for improved awareness and education. Policy-makers should prioritise dementia as a social issue and take coordinated actions to educate society and eradicate harmful misconceptions.

背景:痴呆症是一个全球性的健康问题,可以通过初级预防和提高识字率来缓解。对痴呆症知识的研究为有效的教育活动提供了信息。然而,这些研究大多是在高收入国家进行的,使得巴尔干地区的代表性不足。本研究旨在对保加利亚人群的痴呆症知识进行首次调查,探讨对痴呆症症状的认识、一般痴呆症知识和危险因素的认识。方法:通过在线调查,我们评估了以下知识组成部分:(i)从小插曲中识别痴呆症状;(ii)用痴呆知识评估量表(DKAS)衡量痴呆识字率;(三)对痴呆危险因素的了解。该研究还考虑了人口统计学特征、以前的痴呆症经历和痴呆症的告知模式。结果:成人1396人,平均年龄44.99岁;51.79%的女性)完成了调查。一半的受访者从一个小插曲中正确地识别出痴呆症状。平均DKAS评分为9.51分。痴呆症知识与教育、婚姻状况、就业、种族、痴呆症经历和信息来源有关。56.7%的受访者认为痴呆症是衰老的正常部分,74.8%的人不知道健康的生活方式可以降低痴呆症的风险。被确定的风险因素平均有8个(17个中),其中许多人错误地将补牙、懒惰和巫术列为痴呆症的诱因。结论:保加利亚社会对痴呆症的了解不足,突出了提高认识和教育的必要性。决策者应将痴呆症作为一个社会问题予以优先重视,并采取协调一致的行动,对社会进行教育,消除有害的误解。
{"title":"Gaps in dementia knowledge: a nationwide study of public awareness and misconceptions in Bulgaria.","authors":"Sophia Lazarova, Dessislava Petrova-Antonova","doi":"10.1111/psyg.70016","DOIUrl":"10.1111/psyg.70016","url":null,"abstract":"<p><strong>Background: </strong>Dementia is a global health concern which can be mitigated by primary prevention and improved literacy. Effective educational initiatives are informed by studies of dementia knowledge. However, most of these studies are conducted in high-income countries, leaving the Balkan region underrepresented. This study aimed to conduct the first investigation of dementia knowledge among the Bulgarian population, exploring recognition of symptoms, general dementia knowledge, and risk factors awareness.</p><p><strong>Methods: </strong>Using an online survey we assessed the following components of knowledge: (i) recognition of dementia symptoms from a vignette; (ii) dementia literacy measured with the Dementia Knowledge Assessment Scale (DKAS); and (iii) knowledge about dementia risk factors. Demographic characteristics, previous experience with dementia, and patterns of informing about dementia were also considered in the study.</p><p><strong>Results: </strong>One thousand, eight hundred and ninety-six adults (mean age = 44.99; 51.79% female) completed the survey. Half of the respondents correctly recognised dementia symptoms from a vignette. The average DKAS score was 9.51. Dementia knowledge was linked to education, marital status, employment, ethnicity, experience with dementia, and informational sources. 56.7% of the respondents thought dementia was a normal part of ageing and 74.8% did not know a healthy lifestyle reduces the risk of dementia. The average number of identified risk factors was eight (out of 17), with many mistakenly citing dental fillings, laziness, and witchcraft as contributors to dementia.</p><p><strong>Conclusions: </strong>The Bulgarian society has a poor understanding of dementia, highlighting the need for improved awareness and education. Policy-makers should prioritise dementia as a social issue and take coordinated actions to educate society and eradicate harmful misconceptions.</p>","PeriodicalId":74597,"journal":{"name":"Psychogeriatrics : the official journal of the Japanese Psychogeriatric Society","volume":"25 2","pages":"e70016"},"PeriodicalIF":0.0,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11868682/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143525486","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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Psychogeriatrics : the official journal of the Japanese Psychogeriatric Society
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