Pub Date : 2023-01-23eCollection Date: 2022-12-31DOI: 10.4081/qrmh.2022.10639
Mellanie V Springer, Tiffany Hodges, Cristi Lanning, Michael Tupper, Lesli E Skolarus
Qualitative research methods are often used to develop health interventions, but few researchers report how their qualitative data informed intervention development. Improved completeness of reporting may facilitate the development of effective behavior change interventions. Our objective was to describe how we used qualitative data to develop our stroke education intervention consisting of a pamphlet and video. First, we created a questionnaire grounded in the theory of planned behavior to determine reasons people delay in activating emergency medical services and presenting to the hospital after stroke symptom onset. From our questionnaire data, we identified theoretical constructs that affect behavior which informed the active components of our intervention. We then conducted cognitive interviews to determine emergency department patients' understanding of the intervention pamphlet and video. Our cognitive interview data provided insight into how our intervention might produce behavior change. Our hope is that other researchers will similarly reflect upon and report on how they used their qualitative data to develop health interventions.
{"title":"Using qualitative data to inform the adaptation of a stroke preparedness health intervention.","authors":"Mellanie V Springer, Tiffany Hodges, Cristi Lanning, Michael Tupper, Lesli E Skolarus","doi":"10.4081/qrmh.2022.10639","DOIUrl":"10.4081/qrmh.2022.10639","url":null,"abstract":"<p><p>Qualitative research methods are often used to develop health interventions, but few researchers report how their qualitative data informed intervention development. Improved completeness of reporting may facilitate the development of effective behavior change interventions. Our objective was to describe how we used qualitative data to develop our stroke education intervention consisting of a pamphlet and video. First, we created a questionnaire grounded in the theory of planned behavior to determine reasons people delay in activating emergency medical services and presenting to the hospital after stroke symptom onset. From our questionnaire data, we identified theoretical constructs that affect behavior which informed the active components of our intervention. We then conducted cognitive interviews to determine emergency department patients' understanding of the intervention pamphlet and video. Our cognitive interview data provided insight into how our intervention might produce behavior change. Our hope is that other researchers will similarly reflect upon and report on how they used their qualitative data to develop health interventions.</p>","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"6 3","pages":"10639"},"PeriodicalIF":0.0,"publicationDate":"2023-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/03/6d/qrmh-6-3-10639.PMC10336881.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10174347","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-23eCollection Date: 2022-12-31DOI: 10.4081/qrmh.2022.10241
Hans Zingmark, Anetth Granberg-Axèll
Near-death experiences (NDEs) can occur during episodes of unconsciousness from life-threatening conditions, such as sudden cardiac arrests (SCAs). This study is based on interviews with patients who had an NDE. The interviews were analyzed with phenomenological hermeneutical method for their lived experiences and the meaning for the view of life and death. Four participants were interviewed 10 weeks after their NDE. Four themes emerged: being on the other side, in another dimension; not dreaming, this is a real experience; being in a non-physical condition without my body; and comparing views of life and death before and after the NDEs. The participants described the NDEs as an experience of another realm as non-physical in nature and existing beyond space and time. This study shows that this experience of another state of being, through the lived experiences of NDEs, gave the participants an entirely new meaning on life and death. To them, death was no longer viewed as an end but a passage into something else and that life continues after death. This realization instantly changed their worldview.
{"title":"Near-death experiences and the change of worldview in survivors of sudden cardiac arrest: A phenomenological and hermeneutical study.","authors":"Hans Zingmark, Anetth Granberg-Axèll","doi":"10.4081/qrmh.2022.10241","DOIUrl":"10.4081/qrmh.2022.10241","url":null,"abstract":"<p><p>Near-death experiences (NDEs) can occur during episodes of unconsciousness from life-threatening conditions, such as sudden cardiac arrests (SCAs). This study is based on interviews with patients who had an NDE. The interviews were analyzed with phenomenological hermeneutical method for their lived experiences and the meaning for the view of life and death. Four participants were interviewed 10 weeks after their NDE. Four themes emerged: being on the other side, in another dimension; not dreaming, this is a real experience; being in a non-physical condition without my body; and comparing views of life and death before and after the NDEs. The participants described the NDEs as an experience of another realm as non-physical in nature and existing beyond space and time. This study shows that this experience of another state of being, through the lived experiences of NDEs, gave the participants an entirely new meaning on life and death. To them, death was no longer viewed as an end but a passage into something else and that life continues after death. This realization instantly changed their worldview.</p>","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"6 3","pages":"10241"},"PeriodicalIF":0.0,"publicationDate":"2023-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/95/60/qrmh-6-3-10241.PMC10336875.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10174348","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-23eCollection Date: 2022-12-31DOI: 10.4081/qrmh.2022.11170
Warren Bareiss
{"title":"Editorial Tips on Publishing Qualitative Research in Medicine & Healthcare.","authors":"Warren Bareiss","doi":"10.4081/qrmh.2022.11170","DOIUrl":"10.4081/qrmh.2022.11170","url":null,"abstract":"","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"6 3","pages":"11170"},"PeriodicalIF":0.0,"publicationDate":"2023-01-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/59/87/qrmh-6-3-11170.PMC10336863.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10193231","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jan Doolittle Wilson doesn’t invite as much as she compels the readers to do the uncomfortable, complicated, and necessary work of reimagining disability. Writing not only as a scholar of disability studies, but also as a disabled person, the granddaughter of a disabled woman, and the mother of a disabled child, Wilson uses an autoethnographic approach to not only get able-bodied readers to see disabled people in a new light, but also, and above all, to turn their gaze towards themselves and question their own understanding of disability. As Wilson explains, the autoethnographic approach is “defined as one in which an author draws on personal experiences to analyze and create meaning about larger social, cultural, and political phenomena” (p. 6). [...]
{"title":"Review of Jan Doolittle Wilson’s Becoming Disabled: Forging a Disability View of the World (Lexington Books, 2021)","authors":"Monika Shehi Herr","doi":"10.4081/qrmh.2022.11069","DOIUrl":"https://doi.org/10.4081/qrmh.2022.11069","url":null,"abstract":"Jan Doolittle Wilson doesn’t invite as much as she compels the readers to do the uncomfortable, complicated, and necessary work of reimagining disability. Writing not only as a scholar of disability studies, but also as a disabled person, the granddaughter of a disabled woman, and the mother of a disabled child, Wilson uses an autoethnographic approach to not only get able-bodied readers to see disabled people in a new light, but also, and above all, to turn their gaze towards themselves and question their own understanding of disability. As Wilson explains, the autoethnographic approach is “defined as one in which an author draws on personal experiences to analyze and create meaning about larger social, cultural, and political phenomena” (p. 6). [...]","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":" ","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-12-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46700851","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Avital Fischer, Johanna Shapiro, Tan Nguyen, Gabriela Meckler, Tien Lam, Uyen Mai, Reece Fenning, Jan Paolo De La Cruz, Cynthia Haq
This study examined challenges and factors promoting resilience among 20 California family physicians (FPs) during the first six months of the COVID-19 pandemic. A subset of academic, community, and resident FPs who responded to an online survey also participated in a semi-structured interview that explored concerns, moral distress, burnout, resource needs, support systems, coping strategies, and motivation to continue caring for patients. Thematic analysis was used to identify common themes in participant interviews. Interviewees demonstrated adaptability, resilience, and grit (i.e., commitment to completing a valued goal in the face of setbacks and adversity) despite challenges disrupting patient care, fears for family and self, and frustration due to the politicization of the pandemic. Factors promoting well-being and perseverance included professional and personal support, strong coping skills, and focusing on the meaning derived from practicing medicine. A service orientation that permeates family medicine philosophy and values motivated practitioners to continue to provide patient care while dealing with overwhelming personal and structural challenges. FPs drew strength from their internal coping skills, core family medicine values, and external support, notwithstanding demoralizing effects of mixed messages and politicization of the pandemic. FPs demonstrated resilience and grit in the face of challenges created by the COVID-19 pandemic. Ensuring adequate resources to promote a physically and psychologically healthy workforce while increasing access to care for all patients is crucial to prepare for the next healthcare crisis.
{"title":"Views from the trenches: California family physicians' challenges and resilience factors while providing patient care during the initial wave of COVID-19.","authors":"Avital Fischer, Johanna Shapiro, Tan Nguyen, Gabriela Meckler, Tien Lam, Uyen Mai, Reece Fenning, Jan Paolo De La Cruz, Cynthia Haq","doi":"10.4081/qrmh.2022.10296","DOIUrl":"10.4081/qrmh.2022.10296","url":null,"abstract":"<p><p>This study examined challenges and factors promoting resilience among 20 California family physicians (FPs) during the first six months of the COVID-19 pandemic. A subset of academic, community, and resident FPs who responded to an online survey also participated in a semi-structured interview that explored concerns, moral distress, burnout, resource needs, support systems, coping strategies, and motivation to continue caring for patients. Thematic analysis was used to identify common themes in participant interviews. Interviewees demonstrated adaptability, resilience, and grit (i.e., commitment to completing a valued goal in the face of setbacks and adversity) despite challenges disrupting patient care, fears for family and self, and frustration due to the politicization of the pandemic. Factors promoting well-being and perseverance included professional and personal support, strong coping skills, and focusing on the meaning derived from practicing medicine. A service orientation that permeates family medicine philosophy and values motivated practitioners to continue to provide patient care while dealing with overwhelming personal and structural challenges. FPs drew strength from their internal coping skills, core family medicine values, and external support, notwithstanding demoralizing effects of mixed messages and politicization of the pandemic. FPs demonstrated resilience and grit in the face of challenges created by the COVID-19 pandemic. Ensuring adequate resources to promote a physically and psychologically healthy workforce while increasing access to care for all patients is crucial to prepare for the next healthcare crisis.</p>","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"6 2","pages":"10296"},"PeriodicalIF":0.0,"publicationDate":"2022-10-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/ef/71/qrmh-6-2-10296.PMC10336883.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9816598","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The practice of qualitative inquiry in illness narrative scholarship.","authors":"Warren Bareiss","doi":"10.4081/qrmh.2022.10898","DOIUrl":"10.4081/qrmh.2022.10898","url":null,"abstract":"","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"6 2","pages":"10898"},"PeriodicalIF":0.0,"publicationDate":"2022-10-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/a4/04/qrmh-6-2-10898.PMC10336860.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9806653","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Arlene G MacDougall, Elizabeth Price, Sarah Glen, Joshua C Wiener, Sahana Kukan, Laura Powe, Richelle Bird, Paul H Lysaker, Kelly K Anderson, Ross M G Norman
For people with psychotic disorders, developing a personal narrative about one's experiences with psychosis can help promote recovery. This pilot study examined participants' reactions to and experiences of participatory video as an intervention to help facilitate recovery-oriented narrative development in early psychosis. Outpatients of an early psychosis intervention program were recruited to participate in workshops producing short documentary-style videos of their collective and individual experiences. Six male participants completed the program and took part in a focus group upon completion and in an individual semistructured interview three months later. Themes were identified from the focus group and interviews and then summarized for descriptive purposes. Prominent themes included impacts of the videos on the participants and perceived impacts on others, fulfilment from sharing experiences and expressing oneself, value of collaboration and cohesion in a group, acquiring interpersonal and technological skills, and recommendations for future implementation. Findings of this study suggest that participatory video is an engaging means of self-definition and self-expression among young people in recovery from early psychosis.
{"title":"A pilot study of participatory video in early psychosis: Qualitative findings.","authors":"Arlene G MacDougall, Elizabeth Price, Sarah Glen, Joshua C Wiener, Sahana Kukan, Laura Powe, Richelle Bird, Paul H Lysaker, Kelly K Anderson, Ross M G Norman","doi":"10.4081/qrmh.2022.10438","DOIUrl":"10.4081/qrmh.2022.10438","url":null,"abstract":"<p><p>For people with psychotic disorders, developing a personal narrative about one's experiences with psychosis can help promote recovery. This pilot study examined participants' reactions to and experiences of participatory video as an intervention to help facilitate recovery-oriented narrative development in early psychosis. Outpatients of an early psychosis intervention program were recruited to participate in workshops producing short documentary-style videos of their collective and individual experiences. Six male participants completed the program and took part in a focus group upon completion and in an individual semistructured interview three months later. Themes were identified from the focus group and interviews and then summarized for descriptive purposes. Prominent themes included impacts of the videos on the participants and perceived impacts on others, fulfilment from sharing experiences and expressing oneself, value of collaboration and cohesion in a group, acquiring interpersonal and technological skills, and recommendations for future implementation. Findings of this study suggest that participatory video is an engaging means of self-definition and self-expression among young people in recovery from early psychosis.</p>","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"6 2","pages":"10438"},"PeriodicalIF":0.0,"publicationDate":"2022-10-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/ae/d6/qrmh-6-2-10438.PMC10336884.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9816592","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Tumor board meetings are behind-the-scenes settings where communication about health and strategizing about healthcare delivery take place. Despite their wide use in hospitals and cancer centers, there is a dearth of information about the communication practices in this context. Drawing upon six weeks of observations, this study investigated communication during tumor board meetings at a tertiary cancer center in the Southeastern United States. Findings revealed differences in communication among cancer specialties, with one tumor board consistently talking about the medical and non-medical elements of patient cases, while other specialties focused primarily on plans for treatment with little discussion about quality of life, economic, or caregiver support issues. The manuscript includes suggestions for modifying tumor conferences and opportunities for future research.
{"title":"Tumor talk: A descriptive study of communication about tumor board meetings.","authors":"Jillian A Tullis","doi":"10.4081/qrmh.2022.10717","DOIUrl":"10.4081/qrmh.2022.10717","url":null,"abstract":"<p><p>Tumor board meetings are behind-the-scenes settings where communication about health and strategizing about healthcare delivery take place. Despite their wide use in hospitals and cancer centers, there is a dearth of information about the communication practices in this context. Drawing upon six weeks of observations, this study investigated communication during tumor board meetings at a tertiary cancer center in the Southeastern United States. Findings revealed differences in communication among cancer specialties, with one tumor board consistently talking about the medical and non-medical elements of patient cases, while other specialties focused primarily on plans for treatment with little discussion about quality of life, economic, or caregiver support issues. The manuscript includes suggestions for modifying tumor conferences and opportunities for future research.</p>","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"6 2","pages":"10717"},"PeriodicalIF":0.0,"publicationDate":"2022-10-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/58/6f/qrmh-6-2-10717.PMC10336866.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9816593","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-06-07eCollection Date: 2022-05-31DOI: 10.4081/qrmh.2022.10654
Warren Bareiss
{"title":"Revealing and explaining deep structure via <i>Qualitative Research in Medicine and Healthcare</i>.","authors":"Warren Bareiss","doi":"10.4081/qrmh.2022.10654","DOIUrl":"10.4081/qrmh.2022.10654","url":null,"abstract":"","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"6 1","pages":"10654"},"PeriodicalIF":0.0,"publicationDate":"2022-06-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/e9/fc/qrmh-6-1-10654.PMC10336872.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10193235","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Communication within healthcare settings is often a subject of contention for patients' families at the best of times; however, contention was greatly magnified in the United Kingdom by restrictions on hospital visitations during the early stage of the COVID-19 pandemic. To support communication between families and patients, a central London hospital introduced the role of the family liaison officer (FLO). This study was designed to evaluate the rapid implementation of the FLO and to explore potential for it to become a standard role. Semi-structured interviews were conducted with five FLOs and seven colleagues who had worked alongside them between April and June, 2020. Two versions of the role emerged based on FLOs' previous background: clinical (primarily nurses) and pastoral (primarily play specialists). The FLO became a key role during the pandemic in facilitating communication between patients, clinical teams, and families. Challenges associated with the role reflect the speed in which it was implemented. It was evident to those in the role, and clinicians who the role was supporting, that it had potential to help improve hospital communication and the work of healthcare staff beyond the pandemic.
{"title":"Evaluation of the Family Liaison Officer role during the COVID-19 pandemic.","authors":"Luke Hughes, Lisa Anderton, Rachel M Taylor","doi":"10.4081/qrmh.2022.10287","DOIUrl":"10.4081/qrmh.2022.10287","url":null,"abstract":"<p><p>Communication within healthcare settings is often a subject of contention for patients' families at the best of times; however, contention was greatly magnified in the United Kingdom by restrictions on hospital visitations during the early stage of the COVID-19 pandemic. To support communication between families and patients, a central London hospital introduced the role of the family liaison officer (FLO). This study was designed to evaluate the rapid implementation of the FLO and to explore potential for it to become a standard role. Semi-structured interviews were conducted with five FLOs and seven colleagues who had worked alongside them between April and June, 2020. Two versions of the role emerged based on FLOs' previous background: clinical (primarily nurses) and pastoral (primarily play specialists). The FLO became a key role during the pandemic in facilitating communication between patients, clinical teams, and families. Challenges associated with the role reflect the speed in which it was implemented. It was evident to those in the role, and clinicians who the role was supporting, that it had potential to help improve hospital communication and the work of healthcare staff beyond the pandemic.</p>","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"6 1","pages":"10287"},"PeriodicalIF":0.0,"publicationDate":"2022-05-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/9f/fb/qrmh-6-1-10287.PMC10336864.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10193236","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}