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Using qualitative data to inform the adaptation of a stroke preparedness health intervention. 使用定性数据为卒中预防健康干预的适应提供信息。
Pub Date : 2023-01-23 eCollection Date: 2022-12-31 DOI: 10.4081/qrmh.2022.10639
Mellanie V Springer, Tiffany Hodges, Cristi Lanning, Michael Tupper, Lesli E Skolarus

Qualitative research methods are often used to develop health interventions, but few researchers report how their qualitative data informed intervention development. Improved completeness of reporting may facilitate the development of effective behavior change interventions. Our objective was to describe how we used qualitative data to develop our stroke education intervention consisting of a pamphlet and video. First, we created a questionnaire grounded in the theory of planned behavior to determine reasons people delay in activating emergency medical services and presenting to the hospital after stroke symptom onset. From our questionnaire data, we identified theoretical constructs that affect behavior which informed the active components of our intervention. We then conducted cognitive interviews to determine emergency department patients' understanding of the intervention pamphlet and video. Our cognitive interview data provided insight into how our intervention might produce behavior change. Our hope is that other researchers will similarly reflect upon and report on how they used their qualitative data to develop health interventions.

定性研究方法通常用于制定卫生干预措施,但很少有研究人员报告他们的定性数据如何为干预措施的制定提供信息。提高报告的完整性可能有助于制定有效的行为改变干预措施。我们的目的是描述我们如何使用定性数据来开发我们的中风教育干预措施,包括小册子和视频。首先,我们创建了一个基于计划行为理论的调查问卷,以确定人们在中风症状出现后延迟启动紧急医疗服务和到医院就诊的原因。从我们的问卷数据中,我们确定了影响行为的理论结构,这些理论结构告知了我们干预的积极组成部分。然后我们进行认知访谈,以确定急诊科患者对干预小册子和视频的理解。我们的认知访谈数据为我们的干预如何产生行为改变提供了见解。我们希望其他研究人员也能同样反思并报告他们是如何利用定性数据制定卫生干预措施的。
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引用次数: 0
Near-death experiences and the change of worldview in survivors of sudden cardiac arrest: A phenomenological and hermeneutical study. 心脏骤停幸存者的濒死体验和世界观的改变:现象学和解释学研究。
Pub Date : 2023-01-23 eCollection Date: 2022-12-31 DOI: 10.4081/qrmh.2022.10241
Hans Zingmark, Anetth Granberg-Axèll

Near-death experiences (NDEs) can occur during episodes of unconsciousness from life-threatening conditions, such as sudden cardiac arrests (SCAs). This study is based on interviews with patients who had an NDE. The interviews were analyzed with phenomenological hermeneutical method for their lived experiences and the meaning for the view of life and death. Four participants were interviewed 10 weeks after their NDE. Four themes emerged: being on the other side, in another dimension; not dreaming, this is a real experience; being in a non-physical condition without my body; and comparing views of life and death before and after the NDEs. The participants described the NDEs as an experience of another realm as non-physical in nature and existing beyond space and time. This study shows that this experience of another state of being, through the lived experiences of NDEs, gave the participants an entirely new meaning on life and death. To them, death was no longer viewed as an end but a passage into something else and that life continues after death. This realization instantly changed their worldview.

濒死体验(NDEs)可能发生在因危及生命的情况(如心脏骤停(sca))而失去意识的情况下。这项研究是基于对有过濒死体验的病人的采访。运用现象学解释学的方法对访谈对象的生活经历和生死观的意义进行分析。四名参与者在经历濒死体验10周后接受了采访。出现了四个主题:站在另一边,在另一个维度;不是做梦,这是真实的经历;没有身体的非物质状态;比较濒死体验前后对生与死的看法参与者将濒死体验描述为对另一个领域的体验,本质上是非物质的,存在于空间和时间之外。这项研究表明,通过濒死体验,这种对另一种存在状态的体验,使参与者对生与死有了全新的认识。对他们来说,死亡不再被视为一种终结,而是进入另一种事物的途径,死后生命仍在继续。这种认识立即改变了他们的世界观。
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引用次数: 0
Editorial Tips on Publishing Qualitative Research in Medicine & Healthcare. 出版医学与卫生保健定性研究的编辑技巧。
Pub Date : 2023-01-23 eCollection Date: 2022-12-31 DOI: 10.4081/qrmh.2022.11170
Warren Bareiss
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引用次数: 0
Review of Jan Doolittle Wilson’s Becoming Disabled: Forging a Disability View of the World (Lexington Books, 2021) 简·杜利特尔·威尔逊的《成为残疾人:打造残疾人世界观》评论(Lexington Books,2021)
Pub Date : 2022-12-31 DOI: 10.4081/qrmh.2022.11069
Monika Shehi Herr
Jan Doolittle Wilson doesn’t invite as much as she compels the readers to do the uncomfortable, complicated, and necessary work of reimagining disability. Writing not only as a scholar of disability studies, but also as a disabled person, the granddaughter of a disabled woman, and the mother of a disabled child, Wilson uses an autoethnographic approach to not only get able-bodied readers to see disabled people in a new light, but also, and above all, to turn their gaze towards themselves and question their own understanding of disability. As Wilson explains, the autoethnographic approach is “defined as one in which an author draws on personal experiences to analyze and create meaning about larger social, cultural, and political phenomena” (p. 6). [...]
简·杜立特·威尔逊并没有像强迫读者那样去做那些不舒服的、复杂的、必要的重新想象残疾的工作。作为一名残疾研究学者,同时也是一名残疾人、一名残疾妇女的孙女和一名残疾儿童的母亲,威尔逊用一种自我民族志的方式写作,不仅让健全的读者从新的角度看待残疾人,而且最重要的是,让他们把目光转向自己,质疑自己对残疾的理解。正如威尔逊所解释的那样,自我民族志方法“被定义为作者利用个人经历来分析和创造更大的社会、文化和政治现象的意义”(第6页)。
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引用次数: 0
Views from the trenches: California family physicians' challenges and resilience factors while providing patient care during the initial wave of COVID-19. 来自战壕的观点:加州家庭医生在COVID-19最初浪潮中提供患者护理时面临的挑战和恢复力因素。
Pub Date : 2022-10-04 DOI: 10.4081/qrmh.2022.10296
Avital Fischer, Johanna Shapiro, Tan Nguyen, Gabriela Meckler, Tien Lam, Uyen Mai, Reece Fenning, Jan Paolo De La Cruz, Cynthia Haq

This study examined challenges and factors promoting resilience among 20 California family physicians (FPs) during the first six months of the COVID-19 pandemic. A subset of academic, community, and resident FPs who responded to an online survey also participated in a semi-structured interview that explored concerns, moral distress, burnout, resource needs, support systems, coping strategies, and motivation to continue caring for patients. Thematic analysis was used to identify common themes in participant interviews. Interviewees demonstrated adaptability, resilience, and grit (i.e., commitment to completing a valued goal in the face of setbacks and adversity) despite challenges disrupting patient care, fears for family and self, and frustration due to the politicization of the pandemic. Factors promoting well-being and perseverance included professional and personal support, strong coping skills, and focusing on the meaning derived from practicing medicine. A service orientation that permeates family medicine philosophy and values motivated practitioners to continue to provide patient care while dealing with overwhelming personal and structural challenges. FPs drew strength from their internal coping skills, core family medicine values, and external support, notwithstanding demoralizing effects of mixed messages and politicization of the pandemic. FPs demonstrated resilience and grit in the face of challenges created by the COVID-19 pandemic. Ensuring adequate resources to promote a physically and psychologically healthy workforce while increasing access to care for all patients is crucial to prepare for the next healthcare crisis.

本研究调查了在COVID-19大流行的前六个月,20名加州家庭医生(FPs)面临的挑战和促进恢复力的因素。一部分参与在线调查的学术、社区和住院FPs也参与了半结构化访谈,探讨了关注、道德困境、倦怠、资源需求、支持系统、应对策略和继续照顾患者的动机。主题分析用于确定参与者访谈中的共同主题。受访者表现出了适应能力、韧性和勇气(即面对挫折和逆境致力于完成一个有价值的目标),尽管挑战扰乱了患者护理,对家庭和自我感到恐惧,以及因疫情政治化而感到沮丧。促进幸福感和毅力的因素包括专业和个人支持,强大的应对技能,以及关注从医学实践中获得的意义。以服务为导向,渗透家庭医学哲学和价值观,激励从业者在处理压倒性的个人和结构挑战的同时继续提供患者护理。家庭护理人员从其内部应对技能、核心家庭医学价值观和外部支持中获得了力量,尽管混合信息和大流行病政治化造成了士气低落的影响。FPs在面对COVID-19大流行带来的挑战时表现出了韧性和勇气。确保有足够的资源来促进身心健康的劳动力队伍,同时增加所有患者获得护理的机会,这对于为下一次医疗保健危机做好准备至关重要。
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引用次数: 0
The practice of qualitative inquiry in illness narrative scholarship. 疾病叙事学术中的定性调查实践。
Pub Date : 2022-10-04 DOI: 10.4081/qrmh.2022.10898
Warren Bareiss
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引用次数: 0
A pilot study of participatory video in early psychosis: Qualitative findings. 参与式视频在早期精神病中的试点研究:定性结果。
Pub Date : 2022-10-04 DOI: 10.4081/qrmh.2022.10438
Arlene G MacDougall, Elizabeth Price, Sarah Glen, Joshua C Wiener, Sahana Kukan, Laura Powe, Richelle Bird, Paul H Lysaker, Kelly K Anderson, Ross M G Norman

For people with psychotic disorders, developing a personal narrative about one's experiences with psychosis can help promote recovery. This pilot study examined participants' reactions to and experiences of participatory video as an intervention to help facilitate recovery-oriented narrative development in early psychosis. Outpatients of an early psychosis intervention program were recruited to participate in workshops producing short documentary-style videos of their collective and individual experiences. Six male participants completed the program and took part in a focus group upon completion and in an individual semistructured interview three months later. Themes were identified from the focus group and interviews and then summarized for descriptive purposes. Prominent themes included impacts of the videos on the participants and perceived impacts on others, fulfilment from sharing experiences and expressing oneself, value of collaboration and cohesion in a group, acquiring interpersonal and technological skills, and recommendations for future implementation. Findings of this study suggest that participatory video is an engaging means of self-definition and self-expression among young people in recovery from early psychosis.

对于患有精神疾病的人来说,对自己的精神疾病经历进行个人叙述有助于促进康复。本初步研究考察了参与者对参与式视频的反应和体验,作为一种干预措施,以帮助促进早期精神病患者以康复为导向的叙事发展。一个早期精神病干预项目的门诊病人被招募来参加工作坊,制作他们集体和个人经历的短纪录片风格的视频。六名男性参与者完成了这个项目,并在完成后参加了一个焦点小组,三个月后参加了一个单独的半结构化面试。从焦点小组和访谈中确定主题,然后为描述目的进行总结。突出的主题包括视频对参与者的影响和对他人的影响、分享经验和表达自我的成就感、团队合作和凝聚力的价值、获得人际关系和技术技能,以及对未来实施的建议。本研究结果表明,参与式视频是早期精神病康复青少年自我定义和自我表达的一种有吸引力的手段。
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引用次数: 0
Tumor talk: A descriptive study of communication about tumor board meetings. 肿瘤谈话:关于肿瘤委员会会议交流的描述性研究。
Pub Date : 2022-10-04 DOI: 10.4081/qrmh.2022.10717
Jillian A Tullis

Tumor board meetings are behind-the-scenes settings where communication about health and strategizing about healthcare delivery take place. Despite their wide use in hospitals and cancer centers, there is a dearth of information about the communication practices in this context. Drawing upon six weeks of observations, this study investigated communication during tumor board meetings at a tertiary cancer center in the Southeastern United States. Findings revealed differences in communication among cancer specialties, with one tumor board consistently talking about the medical and non-medical elements of patient cases, while other specialties focused primarily on plans for treatment with little discussion about quality of life, economic, or caregiver support issues. The manuscript includes suggestions for modifying tumor conferences and opportunities for future research.

肿瘤委员会会议是进行健康交流和制定医疗服务战略的幕后场所。尽管肿瘤委员会会议在医院和癌症中心被广泛使用,但有关其沟通方式的信息却十分匮乏。本研究通过六周的观察,调查了美国东南部一家三级癌症中心在肿瘤委员会会议期间的沟通情况。研究结果显示,癌症专科之间的沟通存在差异,其中一个肿瘤委员会一直在讨论患者病例的医疗和非医疗因素,而其他专科则主要关注治疗计划,很少讨论生活质量、经济或护理人员支持问题。该手稿包括修改肿瘤会议的建议和未来研究的机会。
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引用次数: 0
Revealing and explaining deep structure via Qualitative Research in Medicine and Healthcare. 通过医学和医疗保健领域的定性研究揭示和解释深层结构。
Pub Date : 2022-06-07 eCollection Date: 2022-05-31 DOI: 10.4081/qrmh.2022.10654
Warren Bareiss
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引用次数: 0
Evaluation of the Family Liaison Officer role during the COVID-19 pandemic. COVID-19大流行期间家庭联络干事作用评估
Pub Date : 2022-05-31 DOI: 10.4081/qrmh.2022.10287
Luke Hughes, Lisa Anderton, Rachel M Taylor

Communication within healthcare settings is often a subject of contention for patients' families at the best of times; however, contention was greatly magnified in the United Kingdom by restrictions on hospital visitations during the early stage of the COVID-19 pandemic. To support communication between families and patients, a central London hospital introduced the role of the family liaison officer (FLO). This study was designed to evaluate the rapid implementation of the FLO and to explore potential for it to become a standard role. Semi-structured interviews were conducted with five FLOs and seven colleagues who had worked alongside them between April and June, 2020. Two versions of the role emerged based on FLOs' previous background: clinical (primarily nurses) and pastoral (primarily play specialists). The FLO became a key role during the pandemic in facilitating communication between patients, clinical teams, and families. Challenges associated with the role reflect the speed in which it was implemented. It was evident to those in the role, and clinicians who the role was supporting, that it had potential to help improve hospital communication and the work of healthcare staff beyond the pandemic.

在最好的情况下,医疗机构内的沟通往往是患者家属争论的话题;然而,在英国,由于新冠肺炎大流行初期对医院探视的限制,这种争论被大大放大了。为了支持家属和患者之间的沟通,伦敦市中心的一家医院引入了家庭联络官(FLO)的角色。本研究旨在评估FLO的快速实施,并探讨其成为标准角色的潜力。在2020年4月至6月期间,对5名FLOs和7名与他们一起工作的同事进行了半结构化访谈。基于FLOs之前的背景,出现了两种版本的角色:临床(主要是护士)和牧师(主要是扮演专家)。疫情大流行期间,该组织在促进患者、临床团队和家庭之间的沟通方面发挥了关键作用。与该角色相关的挑战反映了其实施的速度。对于担任该角色的人员和该角色所支持的临床医生来说,很明显,它有可能帮助改善医院的沟通和大流行之后医护人员的工作。
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引用次数: 0
期刊
Qualitative research in medicine & healthcare
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