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It is harder for me: A thematic analysis of lived experience of self-care, and its relationship with self-injurious behaviors in psychiatric patients.
Pub Date : 2025-01-23 eCollection Date: 2024-09-09 DOI: 10.4081/qrmh.2024.12544
Jonas Bjärehed, Hanna Grenner, Sara Pavlovic, Magnus Nilsson

Self-injury is associated with significant psychological distress and functional impairments, including difficulties with self-care. However, little is known about how individuals engaging in self-injury perceive and manage self-care in their daily lives. This study aimed to explore the lived experiences of self-care among individuals receiving psychiatric treatment for self-injury and to identify factors that support or hinder self-care capacity. Twelve participants were recruited from a psychiatric outpatient clinic and semi-structured interviews were conducted focusing on participants' perceptions of self-care, its relationship with self-injury, and factors influencing self-care. Reflexive thematic analysis was conducted to identify patterns and themes. The analysis revealed four themes: i) Why should I choose self-care?, highlighting motivational challenges rooted in low self-worth and the need for meaning; ii) Self-care is a difficult choice for me, reflecting how emotional variability, uncertainty about self-care, and dichotomous thinking hinder decision-making; iii) Self-care is beyond my control, emphasizing struggles with planning, routines, and the interplay of emotional states and self-care behaviors; and iv) Support can both help and hinder self-care, illustrating the critical yet complex role of external support. Findings highlight the multifaceted challenges individuals face in managing self-care and its intersection with self-injury. Clinical implications include the need for tailored, person-centered interventions that address barriers to self-care. Recognizing the dual role of self-injury-as both a barrier to and a risky form of self-care-may enhance treatment approaches for this population.

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引用次数: 0
The potential impact of nonsuicidal self-injury disorder: Insights from individuals with lived experience.
Pub Date : 2025-01-23 eCollection Date: 2024-09-09 DOI: 10.4081/qrmh.2024.12631
Gregory J Lengel, Brooke A Ammerman, Kerri-Anne Bell, Jason J Washburn

Nonsuicidal self-injury disorder (NSSI-D) is presently a condition for further study in the Diagnostic & Statistical Manual of Mental Disorders (DSM-5-TR) (American Psychiatric Association, 2022). While previous studies focused on NSSI-D through the lens of experts, there is a shortage of research that explores the potential impact of NSSI-D from the perspective of those most directly affected - individuals with NSSI lived experience. The present study aimed to expand this limited literature and provide a more enhanced and nuanced understanding of the potential implications and consequences of NSSI-D from lived experience viewpoints. Adults with lifetime NSSI history (N = 38) completed a semi-structured interview that surveyed perspectives on NSSI-D, including the meaning of officially recognizing NSSI-D, potential impacts of receiving an NSSI-D diagnosis, and the impact of NSSI-D on one's decision to speak with a clinician. Results from our thematic analysis of the interview data suggested opinions about NSSI-D and its potential impact were generally positive (e.g., increased awareness, understanding, and validation, increased comfort with disclosing NSSI behavior, positive impacts on treatment, and improved functioning). Participants also highlighted potential concerns about the potential consequences of NSSI-D (e.g., negative self-perception, increased stigma, and concerns about the necessity and utility of NSSI-D), and some expressed neutral/indifferent opinions about NSSI-D. Overall, results provide valuable insights regarding potential implications and consequences of official recognition and diagnosis of NSSI-D and have relevant implications for client-clinician interactions. Results also highlight the importance and value of amplifying lived experience perspectives.

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引用次数: 0
Qualitative research is about listening and growing.
Pub Date : 2025-01-23 eCollection Date: 2024-11-20 DOI: 10.4081/qrmh.2024.13654
Warren Bareiss
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引用次数: 0
"Suicide's very abstract": A qualitative analysis of risk assessment training recommendations from family physicians.
Pub Date : 2025-01-22 eCollection Date: 2024-11-20 DOI: 10.4081/qrmh.2024.12676
Mark A Dixon, Kathleen A McNamara, David A Moss

Suicide risk has consistently increased over the past 2.5 decades, despite growing awareness and tailored programs aimed at combating this epidemic. Suicide prevention initiatives include ensuring 24/7 access to crisis hotlines, encouraging individuals to seek mental health care, and reducing access to lethal means among high-risk populations. A recent area of focus is the physician's office, as research shows that nearly half of those who die by suicide had seen a primary care physician within one month of their death. However, primary care physicians do not consistently inquire about suicide risk among their patients. This study presents findings from 15 interviews with family medicine residents at a U.S. military hospital. Participants identified gaps in three key areas of training: i) foundational knowledge (e.g., risk assessment flow, available tools and resources, and therapeutic skills), ii) training program structure (e.g., timing, exposure, and effectiveness), and iii) training culture (e.g., fostering courage and support). Residents recognized their central role in suicide prevention and were eager to address perceived gaps in their knowledge. They also shared their ideal training environment, which would support learning and skill development. This paper offers clear and actionable recommendations for family medicine residency programs to advance the suicide prevention agenda.

在过去的 25 年中,尽管人们对自杀的认识不断提高,并制定了有针对性的计划来应对这一流行病,但自杀风险却持续上升。预防自杀的措施包括确保危机热线全天候畅通、鼓励个人寻求心理保健以及减少高危人群获得致命手段的机会。最近的一个重点领域是医生办公室,因为研究表明,近一半死于自杀的人在死前一个月内看过初级保健医生。然而,初级保健医生并不经常询问病人的自杀风险。本研究介绍了对一家美军医院的家庭医学住院医生进行的 15 次访谈的结果。受访者指出了在三个关键培训领域存在的差距:i) 基础知识(如风险评估流程、可用工具和资源以及治疗技能);ii) 培训计划结构(如时间安排、接触机会和有效性);iii) 培训文化(如培养勇气和支持)。住院医师认识到他们在预防自杀中的核心作用,并渴望解决他们在知识方面的差距。他们还分享了自己理想中的培训环境,即支持学习和技能发展的环境。本文为家庭医学住院医师培训项目提供了清晰可行的建议,以推进自杀预防议程。
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引用次数: 0
What is veteran suicide prevention really about? Questions from the community to researchers. 预防退伍军人自杀的真正目的是什么?社区向研究人员提出的问题。
Pub Date : 2025-01-22 eCollection Date: 2024-11-20 DOI: 10.4081/qrmh.2024.13323
Brandy M Fox

Military veterans are one of the most researched groups in healthcare in the United States. This population has extremely high rates of suicide attempts and completions. Despite increasing research focus, millions of dollars in funding, and being designated as a high clinical priority, rates of suicidal behavior continue to rise among veterans. Veterans are extremely concerned about this trend and critical of some suicide prevention projects. This study engaged 20 veterans who are connected to individuals within the military community who have attempted or completed suicide. Through semi-structured interviews, participants expressed a profound sense of disconnection from existing policies, treatments, and strategies aimed at preventing veteran suicide. During the course of the interviews, participants posed their own questions: Why is the public really concerned about veteran suicide? Why won't the public recognize its part in the veteran suicide epidemic? Why won't the medical industry listen and collaborate with us? This study underscores the critical need for all stakeholders involved in veteran suicide prevention to reflect on these concerns and to incorporate veterans' insights into future prevention strategies, creating a more responsive and effective approach.

退伍军人是美国医疗保健研究最多的群体之一。这一人群的自杀未遂率和自杀完成率都非常高。尽管研究重点不断增加,资金投入达数百万美元,并被指定为临床重点研究对象,但退伍军人的自杀率仍在持续上升。退伍军人对这一趋势极为担忧,并对一些自杀预防项目持批评态度。这项研究邀请了 20 名退伍军人参与,他们与军队社区中自杀未遂或自杀身亡的人有联系。通过半结构式访谈,参与者表达了与旨在预防退伍军人自杀的现有政策、治疗方法和策略脱节的深刻感受。在访谈过程中,参与者提出了自己的问题:为什么公众会真正关注退伍军人自杀问题?为什么公众不承认自己在退伍军人自杀流行病中的作用?为什么医疗行业不愿倾听我们的声音并与我们合作?这项研究强调,所有参与预防退伍军人自杀的利益相关者都亟需反思这些问题,并将退伍军人的见解纳入未来的预防策略,从而创造出一种反应更迅速、更有效的方法。
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引用次数: 0
Obstetric care under the military health system: An analysis of active-duty women's and female spouses' online discussions. 军队医疗系统下的产科护理:对现役女性和女性配偶在线讨论的分析。
Pub Date : 2025-01-22 eCollection Date: 2024-11-20 DOI: 10.4081/qrmh.2024.12641
Amanda M Rebhi

This research undertakes a thematic analysis of discussion threads on social media forums to determine women's perceptions of quality of obstetric care under TRICARE Prime and TRICARE Select. Following an open coding process and thematic analysis, themes arose regarding obstetric care as experienced by active-duty women as well as female spouses of active-duty members. Themes surrounding active-duty perceptions of quality of obstetric care concerned proximity to care deferred deliveries, lack of care options, deficient on-base care, better civilian care experiences, and lamenting having less options than spouses. Spouses generated themes of positive connotation with TRICARE Select, including low costs, freedom of choice, and proximity to care and negative connotation with TRICARE Prime, such as difficulty getting care, process bureaucracy, and deficient care. Ample evidence pointed to a strong spouse preference for TRICARE Select over TRICARE Prime, but there was not enough evidence to indicate if active-duty women were pursuing out-of-pocket care to circumvent TRICARE Prime restrictions. Overall, women's discussions point to a need to improve the Military Health System and concerningly suggest active-duty women are confined to care within a system plagued with issues that impact obstetric care.

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引用次数: 0
"But when I come home…": How patients with chronic musculoskeletal pain account for their absent pain during naturally occurring clinical consultations.
Pub Date : 2025-01-20 eCollection Date: 2024-11-20 DOI: 10.4081/qrmh.2024.12612
Trine C B Andersen, Olaug S Lian

When patients' embodied experiences cannot be conveyed to clinicians in real-time, the challenges of reaching a shared understanding between patient and clinician are enhanced. In this study, we explore how patients with chronic musculoskeletal pain manage the situation of knowing that they regularly experience pain, yet exhibit minimal signs of it during clinical consultations. Utilizing a multimethod, conversation analysis approach and an interactional perspective, this paper analyzes 10 naturally occurring consultations at a specialized rehabilitation clinic in Norway. The analysis shows that patients account for the absence of pain by referring to i) specific events, ii) pain tolerance, and iii) pain periods. Such accounts were typically triggered by null findings (i.e., the absence of findings in technological and physical tests) in the physical examination and clinicians' positive summaries of patients' bodily conditions. Patients resist clinicians' positive stance by accounting for absent pain, cautiously challenging the clinicians' epistemic stance. If clinicians do not pursue patients' accounts, this might lead to a misalignment between patient and clinician which can obstruct efforts to reach a shared understanding of the pain. These findings may have general relevance for clinical consultations where patients' symptoms are difficult to measure and validate biomedically. Understanding how patients account for absent pain can enhance clinician-patient communication and improve clinicians' understanding of patients' everyday circumstances and thereby improve the outcome of consultations.

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引用次数: 0
Psychogeriatric experts' experiences with risk factors of non-suicidal and suicidal self-injury in older adults: A qualitative study.
Pub Date : 2025-01-17 eCollection Date: 2024-09-09 DOI: 10.4081/qrmh.2024.12457
Lisa Van Hove, Imke Baetens, Steven Vanderstichelen

While research has highlighted potential age-related differences in risk factors for non-suicidal and suicidal self-injury ((N)SSI), studies on such distinct risk factors among older adults are scarce. The present study addresses this gap by gaining insights into the experiences of psychogeriatric experts who work with older adults who engage in (N)SSI. In total, nine experts were interviewed about factors associated with (N)SSI in older adults. The responses were thematically analyzed using the biopsychosocial framework. We located a range of biological, psychological, and social factors contributing to (N)SSI, which largely align with previous findings regardless of age. Nonetheless, according to the experts cognitive and physical decline, advancing age, various experiences of loss, and social isolation were observed as particularly significant risk factors for older adults. These results emphasize the need for tailored preventive measures, interventions, and screening tools to address the unique challenges faced by older adults at risk of (N)SSI. Additionally, future research should investigate (N)SSI experiences in older age with a more diverse sample, including mapping the perspective of older adults themselves, healthcare providers, and other informants, to enhance our comprehension of this phenomenon among older adults.

{"title":"Psychogeriatric experts' experiences with risk factors of non-suicidal and suicidal self-injury in older adults: A qualitative study.","authors":"Lisa Van Hove, Imke Baetens, Steven Vanderstichelen","doi":"10.4081/qrmh.2024.12457","DOIUrl":"10.4081/qrmh.2024.12457","url":null,"abstract":"<p><p>While research has highlighted potential age-related differences in risk factors for non-suicidal and suicidal self-injury ((N)SSI), studies on such distinct risk factors among older adults are scarce. The present study addresses this gap by gaining insights into the experiences of psychogeriatric experts who work with older adults who engage in (N)SSI. In total, nine experts were interviewed about factors associated with (N)SSI in older adults. The responses were thematically analyzed using the biopsychosocial framework. We located a range of biological, psychological, and social factors contributing to (N)SSI, which largely align with previous findings regardless of age. Nonetheless, according to the experts cognitive and physical decline, advancing age, various experiences of loss, and social isolation were observed as particularly significant risk factors for older adults. These results emphasize the need for tailored preventive measures, interventions, and screening tools to address the unique challenges faced by older adults at risk of (N)SSI. Additionally, future research should investigate (N)SSI experiences in older age with a more diverse sample, including mapping the perspective of older adults themselves, healthcare providers, and other informants, to enhance our comprehension of this phenomenon among older adults.</p>","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"8 Suppl 1","pages":"12457"},"PeriodicalIF":0.0,"publicationDate":"2025-01-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11788995/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143124111","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
"Constantly justifying my existence": Lower-income, higher-weight Canadian adults' stigma coping mechanisms. “不断证明我的存在”:低收入、高体重的加拿大成年人的耻辱应对机制。
Pub Date : 2024-11-20 DOI: 10.4081/qrmh.2024.12480
Lee Turner, Andrea E Bombak

Individuals who are higher-weight and low-income may disproportionately experience weight and income stigmas in healthcare experiences compared to lower-weight, higher-income individuals. The ways that weight and income stigmas interact in healthcare should be better understood in order to provide better, less stigmatizing care to higher-weight, low-income patients. This study assesses how patients manage stigmatizing experiences in both healthcare and everyday experiences and how that impacts health seeking and stigma management behaviors through semi-structured interviews with 11 higher-weight (Body Mass Index ≥30), low-income adults (≥18 years of age) in an Atlantic Canadian province. Participants took part in two interviews that focused on healthcare experiences and both positive and negative places/spaces. The two face-to-face interviews for each participant (total 21 interviews) were audio-recorded and professionally transcribed verbatim. The transcripts were analyzed using thematic analysis to identify recurring concepts and patterns within the data. Two major themes emerged from the data, uptake of stigmatizing, neoliberal health messaging and coping with stigma. Coping with stigma included subthemes control over stigmatizing experiences and stoicism in the face of stigma. The findings suggest that individuals understand their health and wellness through a neoliberal lens and that they deploy strategies of control and stoicism to cope with the stigmas they face.

与低体重、高收入的个体相比,高体重和低收入的个体在医疗保健经历中可能不成比例地经历体重和收入歧视。应该更好地了解体重和收入歧视在医疗保健中相互作用的方式,以便为体重较高的低收入患者提供更好、更少歧视的护理。本研究通过对加拿大大西洋省11名高体重(体重指数≥30)、低收入成年人(≥18岁)的半结构化访谈,评估了患者在医疗保健和日常生活中如何管理污名化经历,以及它如何影响求医和污名化管理行为。参与者参加了两次访谈,重点是医疗保健经历以及积极和消极的地方/空间。每位参与者的两次面对面访谈(共21次访谈)均被录音,并由专业人员逐字抄录。使用主题分析对抄本进行分析,以确定数据中重复出现的概念和模式。数据中出现了两个主要主题,污名化,新自由主义健康信息和应对污名化。对污名化的处理包括对污名化经历的控制和面对污名化的坚忍。研究结果表明,个人通过新自由主义的视角来理解他们的健康和幸福,他们采用控制和坚忍的策略来应对他们面临的耻辱。
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引用次数: 0
"I have some people who actually really care:" Young sexual minority women's lived experiences of non-suicidal self-injury disclosure. "我有一些真正关心我的人年轻的性少数群体女性披露非自杀性自我伤害的生活经历。
Pub Date : 2024-10-30 eCollection Date: 2024-09-09 DOI: 10.4081/qrmh.2024.12632
Lindsay A Taliaferro, Jennifer J Muehlenkamp, Dahlia Wrubluski, Karli Reeves, Sarah A Job, Robert D Dvorak, Eric W Schrimshaw

Sexual minority youth are more likely to engage in Non-Suicidal Self-Injury (NSSI) than their heterosexual peers, and sexual minority women demonstrate greater risk of NSSI than their sexual minority male counterparts. However, a lack of research exists on NSSI among young sexual minority women, particularly their NSSI disclosure experiences. We used a descriptive-interpretive, qualitative design with semi-structured interviews to examine young sexual minority women's lived experiences disclosing NSSI and of others' responses to these disclosures. The sample included 65 sexual minority women aged 14-30 recruited via paid social media advertising from across the U.S. We performed an inductive thematic analysis of transcripts from 58 participants (89%) who reported a history of NSSI. Participants shared reasons for disclosure (wanting help, communicating distress) or nondisclosure (cultural stigmas), types of disclosure (accidental/involuntary, and direct/voluntary), and recipients of a disclosure (friends, partners, mental health providers, and parents). They also described responses to, and feelings after, NSSI disclosure, revealing two themes: i) Unhelpful/stigmatizing responses (based on fear, anger, and apathy) and ii) Helpful/destigmatizing responses (expressions of concern, emotional support, and alternative coping strategies). Overall, young sexual minority women's disclosure experiences were consistent with those of other populations, highlighting the need to further reduce stigma about NSSI, as well as sexual minority identities, and provide universal education promoting helpful responses to NSSI disclosure.

与异性恋同龄人相比,性少数群体青年更有可能进行非自杀性自伤(NSSI),而与性少数群体男性同龄人相比,性少数群体女性进行非自杀性自伤的风险更大。然而,关于性少数群体年轻女性的 NSSI,尤其是她们的 NSSI 披露经历的研究还很缺乏。我们采用了半结构化访谈的描述性-解释性定性设计,研究了年轻的性少数群体女性披露 NSSI 的生活经历以及他人对这些披露的反应。我们对 58 名参与者(89%)的访谈记录进行了归纳式主题分析,她们报告了 NSSI 的历史。参与者分享了披露的原因(寻求帮助、传达痛苦)或不披露的原因(文化烙印)、披露的类型(意外/自愿、直接/自愿)以及披露的接收者(朋友、伴侣、心理健康提供者和父母)。她们还描述了披露 NSSI 后的反应和感受,揭示了两个主题:i) 无益/污名化反应(基于恐惧、愤怒和冷漠)和 ii) 有益/污名化反应(表达关心、情感支持和替代应对策略)。总体而言,性少数群体年轻女性的披露经历与其他人群的披露经历是一致的,这突出表明有必要进一步减少对 NSSI 以及性少数群体身份的污名化,并提供普及教育,促进对 NSSI 披露的有益回应。
{"title":"\"I have some people who actually really care:\" Young sexual minority women's lived experiences of non-suicidal self-injury disclosure.","authors":"Lindsay A Taliaferro, Jennifer J Muehlenkamp, Dahlia Wrubluski, Karli Reeves, Sarah A Job, Robert D Dvorak, Eric W Schrimshaw","doi":"10.4081/qrmh.2024.12632","DOIUrl":"10.4081/qrmh.2024.12632","url":null,"abstract":"<p><p>Sexual minority youth are more likely to engage in Non-Suicidal Self-Injury (NSSI) than their heterosexual peers, and sexual minority women demonstrate greater risk of NSSI than their sexual minority male counterparts. However, a lack of research exists on NSSI among young sexual minority women, particularly their NSSI disclosure experiences. We used a descriptive-interpretive, qualitative design with semi-structured interviews to examine young sexual minority women's lived experiences disclosing NSSI and of others' responses to these disclosures. The sample included 65 sexual minority women aged 14-30 recruited via paid social media advertising from across the U.S. We performed an inductive thematic analysis of transcripts from 58 participants (89%) who reported a history of NSSI. Participants shared reasons for disclosure (wanting help, communicating distress) or nondisclosure (cultural stigmas), types of disclosure (accidental/involuntary, and direct/voluntary), and recipients of a disclosure (friends, partners, mental health providers, and parents). They also described responses to, and feelings after, NSSI disclosure, revealing two themes: i) Unhelpful/stigmatizing responses (based on fear, anger, and apathy) and ii) Helpful/destigmatizing responses (expressions of concern, emotional support, and alternative coping strategies). Overall, young sexual minority women's disclosure experiences were consistent with those of other populations, highlighting the need to further reduce stigma about NSSI, as well as sexual minority identities, and provide universal education promoting helpful responses to NSSI disclosure.</p>","PeriodicalId":74623,"journal":{"name":"Qualitative research in medicine & healthcare","volume":"8 Suppl 1","pages":"12632"},"PeriodicalIF":0.0,"publicationDate":"2024-10-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11583136/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142712063","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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Qualitative research in medicine & healthcare
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