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Editorial Tips on Publishing Qualitative Research in Medicine & Healthcare. 出版医学与卫生保健定性研究的编辑技巧。
Pub Date : 2022-12-31 DOI: 10.4081/qrmh.2022.11170
Warren Bareiss
Welcome to Issue 3, Volume 6 of Qualitative Research in Medicine in Healthcare. The term “qualitative research” covers a wide range of theories and methodologies, and this issue certainly illustrates that diversity of approaches. As with most articles published in QRMH, authors featured in this issue worked through multiple manuscript iterations prior to acceptance for publication. Many other submitted manuscripts, of course, never make it that far. No doubt the story is the same for any reputable research journal. [...]
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引用次数: 1
Views from the trenches: California family physicians' challenges and resilience factors while providing patient care during the initial wave of COVID-19. 来自战壕的观点:加州家庭医生在COVID-19最初浪潮中提供患者护理时面临的挑战和恢复力因素。
Pub Date : 2022-10-04 DOI: 10.4081/qrmh.2022.10296
Avital Fischer, Johanna Shapiro, Tan Nguyen, Gabriela Meckler, Tien Lam, Uyen Mai, Reece Fenning, Jan Paolo De La Cruz, Cynthia Haq

This study examined challenges and factors promoting resilience among 20 California family physicians (FPs) during the first six months of the COVID-19 pandemic. A subset of academic, community, and resident FPs who responded to an online survey also participated in a semi-structured interview that explored concerns, moral distress, burnout, resource needs, support systems, coping strategies, and motivation to continue caring for patients. Thematic analysis was used to identify common themes in participant interviews. Interviewees demonstrated adaptability, resilience, and grit (i.e., commitment to completing a valued goal in the face of setbacks and adversity) despite challenges disrupting patient care, fears for family and self, and frustration due to the politicization of the pandemic. Factors promoting well-being and perseverance included professional and personal support, strong coping skills, and focusing on the meaning derived from practicing medicine. A service orientation that permeates family medicine philosophy and values motivated practitioners to continue to provide patient care while dealing with overwhelming personal and structural challenges. FPs drew strength from their internal coping skills, core family medicine values, and external support, notwithstanding demoralizing effects of mixed messages and politicization of the pandemic. FPs demonstrated resilience and grit in the face of challenges created by the COVID-19 pandemic. Ensuring adequate resources to promote a physically and psychologically healthy workforce while increasing access to care for all patients is crucial to prepare for the next healthcare crisis.

本研究调查了在COVID-19大流行的前六个月,20名加州家庭医生(FPs)面临的挑战和促进恢复力的因素。一部分参与在线调查的学术、社区和住院FPs也参与了半结构化访谈,探讨了关注、道德困境、倦怠、资源需求、支持系统、应对策略和继续照顾患者的动机。主题分析用于确定参与者访谈中的共同主题。受访者表现出了适应能力、韧性和勇气(即面对挫折和逆境致力于完成一个有价值的目标),尽管挑战扰乱了患者护理,对家庭和自我感到恐惧,以及因疫情政治化而感到沮丧。促进幸福感和毅力的因素包括专业和个人支持,强大的应对技能,以及关注从医学实践中获得的意义。以服务为导向,渗透家庭医学哲学和价值观,激励从业者在处理压倒性的个人和结构挑战的同时继续提供患者护理。家庭护理人员从其内部应对技能、核心家庭医学价值观和外部支持中获得了力量,尽管混合信息和大流行病政治化造成了士气低落的影响。FPs在面对COVID-19大流行带来的挑战时表现出了韧性和勇气。确保有足够的资源来促进身心健康的劳动力队伍,同时增加所有患者获得护理的机会,这对于为下一次医疗保健危机做好准备至关重要。
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引用次数: 2
The practice of qualitative inquiry in illness narrative scholarship. 疾病叙事学术中的定性调查实践。
Pub Date : 2022-10-04 DOI: 10.4081/qrmh.2022.10898
Warren Bareiss
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引用次数: 0
A pilot study of participatory video in early psychosis: Qualitative findings. 参与式视频在早期精神病中的试点研究:定性结果。
Pub Date : 2022-10-04 DOI: 10.4081/qrmh.2022.10438
Arlene G MacDougall, Elizabeth Price, Sarah Glen, Joshua C Wiener, Sahana Kukan, Laura Powe, Richelle Bird, Paul H Lysaker, Kelly K Anderson, Ross M G Norman

For people with psychotic disorders, developing a personal narrative about one's experiences with psychosis can help promote recovery. This pilot study examined participants' reactions to and experiences of participatory video as an intervention to help facilitate recovery-oriented narrative development in early psychosis. Outpatients of an early psychosis intervention program were recruited to participate in workshops producing short documentary-style videos of their collective and individual experiences. Six male participants completed the program and took part in a focus group upon completion and in an individual semistructured interview three months later. Themes were identified from the focus group and interviews and then summarized for descriptive purposes. Prominent themes included impacts of the videos on the participants and perceived impacts on others, fulfilment from sharing experiences and expressing oneself, value of collaboration and cohesion in a group, acquiring interpersonal and technological skills, and recommendations for future implementation. Findings of this study suggest that participatory video is an engaging means of self-definition and self-expression among young people in recovery from early psychosis.

对于患有精神疾病的人来说,对自己的精神疾病经历进行个人叙述有助于促进康复。本初步研究考察了参与者对参与式视频的反应和体验,作为一种干预措施,以帮助促进早期精神病患者以康复为导向的叙事发展。一个早期精神病干预项目的门诊病人被招募来参加工作坊,制作他们集体和个人经历的短纪录片风格的视频。六名男性参与者完成了这个项目,并在完成后参加了一个焦点小组,三个月后参加了一个单独的半结构化面试。从焦点小组和访谈中确定主题,然后为描述目的进行总结。突出的主题包括视频对参与者的影响和对他人的影响、分享经验和表达自我的成就感、团队合作和凝聚力的价值、获得人际关系和技术技能,以及对未来实施的建议。本研究结果表明,参与式视频是早期精神病康复青少年自我定义和自我表达的一种有吸引力的手段。
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引用次数: 1
Tumor talk: A descriptive study of communication about tumor board meetings. 肿瘤谈话:关于肿瘤委员会会议交流的描述性研究。
Pub Date : 2022-10-04 DOI: 10.4081/qrmh.2022.10717
Jillian A Tullis

Tumor board meetings are behind-the-scenes settings where communication about health and strategizing about healthcare delivery take place. Despite their wide use in hospitals and cancer centers, there is a dearth of information about the communication practices in this context. Drawing upon six weeks of observations, this study investigated communication during tumor board meetings at a tertiary cancer center in the Southeastern United States. Findings revealed differences in communication among cancer specialties, with one tumor board consistently talking about the medical and non-medical elements of patient cases, while other specialties focused primarily on plans for treatment with little discussion about quality of life, economic, or caregiver support issues. The manuscript includes suggestions for modifying tumor conferences and opportunities for future research.

肿瘤委员会会议是进行健康交流和制定医疗服务战略的幕后场所。尽管肿瘤委员会会议在医院和癌症中心被广泛使用,但有关其沟通方式的信息却十分匮乏。本研究通过六周的观察,调查了美国东南部一家三级癌症中心在肿瘤委员会会议期间的沟通情况。研究结果显示,癌症专科之间的沟通存在差异,其中一个肿瘤委员会一直在讨论患者病例的医疗和非医疗因素,而其他专科则主要关注治疗计划,很少讨论生活质量、经济或护理人员支持问题。该手稿包括修改肿瘤会议的建议和未来研究的机会。
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引用次数: 0
Revealing and explaining deep structure via Qualitative Research in Medicine and Healthcare. 通过医学和医疗保健领域的定性研究揭示和解释深层结构。
Pub Date : 2022-06-07 eCollection Date: 2022-05-31 DOI: 10.4081/qrmh.2022.10654
Warren Bareiss
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引用次数: 0
Evaluation of the Family Liaison Officer role during the COVID-19 pandemic. COVID-19大流行期间家庭联络干事作用评估
Pub Date : 2022-05-31 DOI: 10.4081/qrmh.2022.10287
Luke Hughes, Lisa Anderton, Rachel M Taylor

Communication within healthcare settings is often a subject of contention for patients' families at the best of times; however, contention was greatly magnified in the United Kingdom by restrictions on hospital visitations during the early stage of the COVID-19 pandemic. To support communication between families and patients, a central London hospital introduced the role of the family liaison officer (FLO). This study was designed to evaluate the rapid implementation of the FLO and to explore potential for it to become a standard role. Semi-structured interviews were conducted with five FLOs and seven colleagues who had worked alongside them between April and June, 2020. Two versions of the role emerged based on FLOs' previous background: clinical (primarily nurses) and pastoral (primarily play specialists). The FLO became a key role during the pandemic in facilitating communication between patients, clinical teams, and families. Challenges associated with the role reflect the speed in which it was implemented. It was evident to those in the role, and clinicians who the role was supporting, that it had potential to help improve hospital communication and the work of healthcare staff beyond the pandemic.

在最好的情况下,医疗机构内的沟通往往是患者家属争论的话题;然而,在英国,由于新冠肺炎大流行初期对医院探视的限制,这种争论被大大放大了。为了支持家属和患者之间的沟通,伦敦市中心的一家医院引入了家庭联络官(FLO)的角色。本研究旨在评估FLO的快速实施,并探讨其成为标准角色的潜力。在2020年4月至6月期间,对5名FLOs和7名与他们一起工作的同事进行了半结构化访谈。基于FLOs之前的背景,出现了两种版本的角色:临床(主要是护士)和牧师(主要是扮演专家)。疫情大流行期间,该组织在促进患者、临床团队和家庭之间的沟通方面发挥了关键作用。与该角色相关的挑战反映了其实施的速度。对于担任该角色的人员和该角色所支持的临床医生来说,很明显,它有可能帮助改善医院的沟通和大流行之后医护人员的工作。
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引用次数: 3
Lay knowledge regarding the prevention of complications related to childbirth: Perceptions of Congolese pregnant women. 关于预防与分娩有关的并发症的知识:刚果孕妇的看法。
Pub Date : 2022-05-31 DOI: 10.4081/qrmh.2022.8740
Claudine Tshiama, Gédéon Bongo, Oscar Nsutier, Mukandu Basua Babintu

During pregnancy, women sometimes choose certain practices based upon the experience of their family and/or their vicinity to anticipate complications that may occur during childbirth. The main objective of this study is to understand the motivations and perceptions of pregnant women on lay knowledge in the prevention of complications related to childbirth among a sample of Congolese women. We conducted this study at N'djili Referral Hospital in Kinshasa, Democratic Republic of Congo, using a qualitative phenomenological survey and indepth face-to-face interviews. We interviewed seven women on the phenomenon of lay knowledge practice in the prevention of maternal difficulties and analyzed the data using thematic coding. We provided a consent form to the participants and were careful not to include identifying information. Three main themes emerged: i) discussion of complications related to pregnancy and delivery, ii) perceptions about lay knowledge in preventing complications related to childbirth, and iii) suggestions from participants about using lay knowledge in healthcare settings. Based upon data collected, we argue that lay knowledge about pregnancy can be integrated into formal antenatal training when appropriate and, in doing so, we can build trust among pregnant women toward professional medical instruction.

在怀孕期间,妇女有时根据其家庭和/或附近地区的经验选择某些做法,以预测分娩期间可能发生的并发症。本研究的主要目的是了解在刚果妇女样本中孕妇对预防分娩并发症的外行知识的动机和看法。我们在刚果民主共和国金沙萨的恩吉利转诊医院进行了这项研究,采用了定性现象学调查和深度面对面访谈。我们采访了7名妇女在预防产妇困难方面的非专业知识实践现象,并使用专题编码对数据进行了分析。我们向参与者提供了一份同意书,并小心翼翼地不包括身份信息。出现了三个主要主题:1)讨论与妊娠和分娩有关的并发症,2)对预防与分娩有关的并发症的外行知识的看法,以及3)参与者关于在保健机构中使用外行知识的建议。根据收集到的数据,我们认为,有关怀孕的非专业知识可以在适当的时候纳入正式的产前培训,这样做,我们可以在孕妇中建立对专业医疗指导的信任。
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引用次数: 2
"Life is about trying to find a better place to live": Discourses of dwelling in a pro-recovery suicide forum. “生活就是寻找一个更好的地方居住”:在一个支持康复的自杀论坛上居住的话语。
Pub Date : 2022-05-31 DOI: 10.4081/qrmh.2022.10437
Mike Alvarez

In the two decades since the advent of Web 2.0, scholars of cybersuicide have identified many beneficial and harmful uses of the internet. However, the discursive meanings interactionally created by suicide website users have scarcely been attended to. The present study uses the theory and method of cultural discourse analysis (CuDA) to arrive at meanings about place that radiate from online communication among users of SuicideForum.com (SF), a pro-recovery website. Analyses of 2,119 posts across 131 threads reveal two overarching discursive themes. The first speaks to problematic discourses about place, including the role of placelessness and entrapment in the genesis of suicidality and its affective states, leading to further diminution of experiential worlds. The second theme taps into participants' notions of what constitutes safe spaces, such as the presence of empathetic others who respect one's timetable for personal disclosure, and the freedom to experiment with new ways of inhabiting the world. The study has numerous implications for clinical practice, including recasting psychological disturbances in terms of self-world relations and reconsidering involuntary psychiatric hospitalization in light of forum participants' preoccupation with entrapment.

在web2.0出现后的二十年里,研究网络自杀的学者们发现了互联网的许多有益和有害的用途。然而,自杀网站用户互动创造的话语意义却很少得到关注。本研究使用文化话语分析(CuDA)的理论和方法,来得出自杀论坛(SF),一个支持康复的网站的用户之间的在线交流辐射的地方的意义。对131个帖子的2119篇文章的分析揭示了两个主要的话语主题。第一部分讲述了关于地点的有问题的话语,包括无地点性和诱捕在自杀及其情感状态的起源中的作用,导致经验世界的进一步减少。第二个主题挖掘了参与者对安全空间的概念,比如有同理心的其他人在场,他们尊重一个人的个人披露时间表,以及自由地尝试新的生活方式。该研究对临床实践有许多启示,包括从自我世界关系的角度重新定义心理障碍,以及根据论坛参与者对陷阱的关注重新考虑非自愿精神住院。
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引用次数: 1
Psychosocial benefits of the social support experienced at a community-based cancer wellness organization. 社区癌症健康组织的社会支持所带来的心理社会效益。
Pub Date : 2022-01-31 eCollection Date: 2021-12-31 DOI: 10.4081/qrmh.2021.10232
Andrea L Meluch

This study was designed to identify the sources of social support and the perceived psychosocial benefits people diagnosed with cancer experience at a community-based cancer wellness organization. Semi-structured, in-depth interviews were conducted with 31 people diagnosed with cancer who regularly used services at a community-based cancer wellness organization. Two themes were identified related to the sources of social support that participants experienced at the community-based cancer wellness organization: i) participants reported that individuals at the center (e.g., staff and volunteers) provided support, and ii) participants perceived the organization as a source of support. Further, four themes emerged related to participants' perceptions of the psychosocial benefits of social support experienced at the community-based cancer wellness organization including i) reduced feelings of social isolation; ii) acceptance at the center in contrast to stigmatizing experiences elsewhere; iii) validation of new identity; and iv) experiences of relaxation and stress relief. The study findings demonstrate that community-based cancer wellness organizations can be a source of connection, acceptance, validation, and stress relief to people diagnosed with cancer.

本研究旨在确定社会支持的来源,以及被诊断患有癌症的人在社区癌症健康组织中感受到的社会心理益处。研究人员对 31 名定期使用社区癌症康复机构服务的癌症确诊患者进行了半结构化深入访谈。访谈确定了两个与参与者在社区癌症康复机构所经历的社会支持来源有关的主题:i) 参与者称中心的个人(如工作人员和志愿者)提供了支持;ii) 参与者认为该机构是支持的来源。此外,研究还发现了四个主题,涉及参与者对社区癌症健康组织提供的社会支持所带来的社会心理益处的看法,包括 i) 减少了社会孤立感;ii) 与其他地方的污名化经历相比,在该中心得到了接纳;iii) 新身份得到了验证;以及 iv) 体验到了放松和压力缓解。研究结果表明,社区癌症健康组织可以为癌症患者提供联系、接纳、认可和压力缓解。
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引用次数: 0
期刊
Qualitative research in medicine & healthcare
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