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Younger Women with Breast Cancer and Treatment Decision-Making: Rethinking Patient Involvement and Empowerment 癌症年轻女性与治疗决策:对患者参与和授权的反思
Pub Date : 2018-09-05 DOI: 10.1108/S0275-495920180000036002
K. Snyder, Alexandra Tate, E. Roubenoff
Abstract Purpose Encouraging patient involvement is a cornerstone of many healthcare interventions and decision-making models to ensure that treatment decisions reflect the needs, values, and desires of patients. Involved patients are thought to be empowered patients who feel a sense of efficacy in regards to their own health. However, there is a lack of understanding of how patients relate to empowerment and involvement and, most importantly, how these constructs relate to one another in patients’ decision-making experiences. Methodology/approach Through an inductive analysis, this chapter draws on qualitative interviews of women diagnosed with breast cancer prior to 40 years of age (n = 69). Findings By examining the intersection of how patients define their own involvement in treatment decisions and their sense of empowerment, we find four orientations to decision-making (Advocates, Bystanders, Co-Pilots, and Downplayers) with involvement and empowerment being coupled for some respondents, but decoupled for others. Research limitations/implications Our findings suggest expanding what it means to be an “active” patient as respondents had multiple ways of characterizing involvement, including being informed or following their doctor’s advice. Our findings also suggest a more critical examination of the origins and potential downsides of patient empowerment as some respondents reported feeling overwhelmed or pushed into advocacy roles. The sample was disproportionately higher socioeconomic status with limited racial/ethnic diversity. Empowerment and involvement may be enacted differently for other social groups and other medical conditions. Originality/value By examining first-person patient narratives, we conclude that patients’ experience may not fully align with current academic or clinical discussions of patient involvement or empowerment.
摘要目的鼓励患者参与是许多医疗干预和决策模式的基石,以确保治疗决策反映患者的需求、价值观和愿望。相关患者被认为是对自身健康有疗效的患者。然而,人们缺乏对患者如何与赋权和参与相关的理解,最重要的是,缺乏对这些结构在患者决策体验中如何相互关联的理解。方法/方法通过归纳分析,本章对40岁之前诊断为癌症的女性(n=69)进行了定性访谈。研究结果通过检查患者如何定义自己对治疗决策的参与和他们的授权感的交叉点,我们发现了四种决策取向(倡导者、旁观者、联合飞行员和失败者),其中一些受访者的参与和授权是耦合的,但另一些人则是解耦的。研究局限性/影响我们的研究结果表明,作为一名“活跃”的患者,受访者有多种方式来描述参与情况,包括知情或听从医生的建议,这意味着要扩大“活跃”患者的含义。我们的研究结果还表明,对患者赋权的起源和潜在负面影响进行了更严格的检查,因为一些受访者报告说,他们感到不知所措或被迫担任宣传角色。样本的社会经济地位过高,种族/民族多样性有限。对于其他社会群体和其他医疗条件,授权和参与可能会有不同的规定。独创性/价值通过研究第一人称患者叙述,我们得出结论,患者的经历可能与当前关于患者参与或赋权的学术或临床讨论不完全一致。
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引用次数: 1
Handled without Care: Women’s Health Experiences in Jail 不小心处理:女性在监狱中的健康经历
Pub Date : 2018-09-05 DOI: 10.1108/S0275-495920180000036017
Laura McKendy
Originality/valueThis research responds to the lack of research on carceral health experiences within both penal scholarship and medical sociology, particularly in relation to women and those confined in jails.
独创性/价值这项研究回应了刑法学和医学社会学领域缺乏对尸体健康经历的研究,特别是对妇女和被监禁者的研究。
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引用次数: 0
Weight Loss Surgery Patients’ Gender-Differentiated Experiences of Vanity Stigma 减肥手术患者虚荣污名的性别差异体验
Pub Date : 2018-09-05 DOI: 10.1108/S0275-495920180000036010
P. Drew
Abstract Purpose This study examines weight loss surgery patients’ experiences with vanity stigma. First, the research explores if and how vanity stigma occurrences differ for female and male surgery patients. Second, the research interrogates the role of this stigma in shaping patients’ feelings about their bodies. Methodology/approach The data stems from qualitative interviews (n = 44) and surveys (n = 55) with pre-operative and post-operative weight loss surgery patients. The author used narrative interview analysis to inductively identify and analyze prevalent themes. Findings Participants’ stigma experiences are differentiated by gender. Approximately half of female participants reported perceiving vanity stigma. Women who faced negative accusations were likely to distance themselves from such claims by citing personal disinterest in their bodies, whereas women who did not perceive vanity accusations were likely to express approval and pleasure in their post-weight loss bodies. Men, in contrast, were not accused of vanity. Men frequently characterized their post-surgical, post-weight loss bodies as having utilitarian value. Research limitations/implications The study concludes that gender norms play a role in shaping bariatric surgery patients’ experiences with vanity stigma and body-related feelings. Limitations include the small number (n = 9) of male participants and the lack of a representative sampling frame for bariatric surgery patients. Originality/value Previous studies have not explored how gender shapes bariatric surgery patients’ experiences with appearance-related social scrutiny. This chapter adds to existing research on gendered body norms and reveals gendered dimensions of vanity stigma.
摘要目的本研究调查了减肥手术患者的虚荣心污名经历。首先,这项研究探讨了女性和男性手术患者虚荣心污名的发生是否以及如何不同。其次,这项研究质疑了这种污名在塑造患者对自己身体的感受方面的作用。方法/方法数据来源于对术前和术后减肥手术患者的定性访谈(n=44)和调查(n=55)。作者运用叙述性访谈分析法,归纳并分析了当下流行的主题。研究结果参与者的耻辱经历因性别而异。大约一半的女性参与者报告说,她们感受到了虚荣的耻辱感。面临负面指控的女性可能会以个人对自己的身体不感兴趣为由,与这种说法保持距离,而不认为虚荣指控的女性则可能对自己减肥后的身体表示赞同和愉悦。相比之下,男人并没有被指责为虚荣。男性经常将手术后、减肥后的身体描述为具有实用价值。研究局限性/影响研究得出结论,性别规范在塑造减肥手术患者的虚荣心污名和身体相关感受方面发挥了作用。局限性包括男性参与者人数较少(n=9),以及缺乏减肥手术患者的代表性抽样框架。独创性/价值先前的研究没有探讨性别如何影响减肥手术患者的外表相关社会审查经历。本章补充了现有的性别身体规范研究,揭示了虚荣污名的性别维度。
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引用次数: 0
Prelims 预考
Pub Date : 2018-09-05 DOI: 10.1108/s0275-495920180000036018
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引用次数: 0
Understanding the Impact of Gender in the Decision-Making Process to Undergo Certain Surgeries Compared to Uncertain Surgeries 与不确定的外科医生相比,了解性别在接受某些外科医生的决策过程中的影响
Pub Date : 2018-09-05 DOI: 10.1108/S0275-495920180000036007
DaJuan Ferrell
Abstract Purpose Procedures can be categorized as certain surgeries based on their necessity and outcomes while others are classified as uncertain surgeries based on these areas. To account for this variance, policies such as the Affordable Care Act (ACA) call for health care providers to engage in shared decision making (SDM) with patients to ensure they are informed of treatment options and asked their preferences. Yet, gender may influence the decision-making process. Thus, this project examines the decision process and how gender impacts patients’ participation in decisions to undergo certain surgeries compared to uncertain surgeries. Methodology/approach This research project analyzed data from the National Survey of Medical Decisions 2006–2007 which surveyed the medical decisions of US residents 40 and older. Findings First, the data reveals that women felt more informed having uncertain surgeries compared to men. Second, patients were less likely asked their preference for surgery when undergoing certain surgeries compared to uncertain surgeries. Third, compared to men, women having uncertain surgeries were less likely to make the final decision to have surgery, compared to sharing the final decision with health care providers. Limitations Due to the sample size, this project could not perform three-way interactions between gender, race, and surgery type. Originality/value Gender influences the level patients feel informed having uncertain surgeries. Though policy calls for SDM, health care providers are less likely to ask patients their preference for surgery regarding certain surgeries, relative to uncertain surgeries. Gender impacts the final decision-making process regarding whether patients should have uncertain surgeries.
摘要目的手术根据其必要性和结果可归类为某些手术,而其他手术则根据这些领域归类为不确定手术。为了解释这种差异,《平价医疗法案》(ACA)等政策呼吁医疗保健提供者与患者共同决策,以确保他们了解治疗方案并询问他们的偏好。然而,性别可能会影响决策过程。因此,该项目研究了决策过程,以及与不确定的手术相比,性别如何影响患者参与某些手术的决策。方法/方法该研究项目分析了2006-2007年全国医疗决策调查的数据,该调查调查了40岁及以上的美国居民的医疗决策。研究结果首先,数据显示,与男性相比,女性在进行不确定的手术时感觉更明智。其次,与不确定的手术相比,患者在接受某些手术时不太可能被问及他们更喜欢手术。第三,与男性相比,手术不确定的女性不太可能做出手术的最终决定,而与医疗保健提供者分享最终决定。限制由于样本量的原因,该项目无法在性别、种族和手术类型之间进行三方互动。独创性/价值观性别影响患者在不确定的手术中感到知情的程度。尽管政策要求SDM,但相对于不确定的手术,医疗保健提供者不太可能询问患者对某些手术的手术偏好。性别影响患者是否应该进行不确定手术的最终决策过程。
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引用次数: 0
Gender, Women’s Health Care Concerns and Other Social Factors in Health and Health Care 性别、妇女保健问题和保健和保健中的其他社会因素
Pub Date : 2018-09-05 DOI: 10.1108/s0275-4959201836
J. Kronenfeld
This book analyses micro-level gender issues and other social factors impacting macro-level health care systems. Examining the health and health care issues of patients and providers of care both in the United States and in other countries, chapters focus on linkages to policy and population concerns as ways to meet global health care needs.
这本书分析了微观层面的性别问题和影响宏观层面卫生保健系统的其他社会因素。各章节审查了美国和其他国家的病人和护理提供者的健康和保健问题,重点讨论了与政策和人口问题的联系,以此作为满足全球保健需求的途径。
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引用次数: 3
Relationship Matters: An Examination of Educational and Racial Disparities in Unintended Pregnancy 关系问题:对意外怀孕中教育和种族差异的调查
Pub Date : 2018-09-05 DOI: 10.1108/S0275-495920180000036005
Andrea M Bertotti
Abstract Purpose Most researchers examining educational disparities in unintended pregnancy take a rational-choice perspective, defining pregnancy intention as a fixed state within decontextualized individuals. However, evidence suggests that women’s reproductive intentions may be more relational than rational, and that relationship context varies by education. This study investigated if relationship context could explain educational disparities in unintended pregnancy. Methodology Using the 2006–2015 National Survey of Family Growth (n = 4,320 pregnancies), I calculated structural equation models and predicted probabilities to examine if relational stability (marital status) and partner specificity (wanting a baby with a particular man) mediated the association between education and pregnancy intendedness for White, Hispanic, and Black women. Findings Relational stability and partner specificity mediated the association between education and pregnancy intention for all three groups. Education was rendered insignificant after controlling for race, marital status, partner specificity, and age. Marital status was a better predictor for White women than Hispanic women, and was not statistically significant for Black women. Partner specificity had greater influence on pregnancy intendedness than marital status, and its effect varied only slightly by race. Thus, disparities in marriage and access to desired partners influence educational disparities in unintended pregnancy. Implications These findings suggest that partner specificity could prove particularly useful in predicting unintended pregnancy as rates of non-marital pregnancies continue to rise. They also indicate that a shift in research and policy focus from decontextualized individuals to relationships between women and men is warranted.
摘要目的大多数研究意外怀孕教育差异的研究人员都采取了理性选择的观点,将怀孕意图定义为非文本化个体中的一种固定状态。然而,有证据表明,女性的生育意愿可能更多是关系性的,而不是理性的,而且这种关系的背景因教育程度而异。这项研究调查了关系背景是否可以解释意外怀孕中的教育差异。方法使用2006-2015年全国家庭成长调查(n=4320次怀孕),我计算了结构方程模型和预测概率,以检验关系稳定性(婚姻状况)和伴侣特异性(希望与特定男性生孩子)是否在白人、西班牙裔和黑人女性的教育和怀孕意愿之间起到了中介作用。研究结果关系稳定性和伴侣特异性在所有三组受教育程度和妊娠意向之间起中介作用。在控制了种族、婚姻状况、伴侣特异性和年龄后,教育变得微不足道。与西班牙裔女性相比,白人女性的婚姻状况是一个更好的预测因素,而黑人女性的婚姻状态在统计上并不显著。伴侣特异性对妊娠意向的影响大于婚姻状况,其影响仅因种族而异。因此,婚姻和获得理想伴侣的机会方面的差异会影响意外怀孕的教育差异。这些发现表明,随着未婚怀孕率的持续上升,伴侣的特异性在预测意外怀孕方面可能特别有用。他们还表示,有必要将研究和政策重点从去文本化的个人转向男女关系。
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引用次数: 1
ROLE OF CANCER HISTORY AND GENDER IN MAJOR HEALTH INSURANCE TRANSITIONS: A LONGITUDINAL NATIONALLY REPRESENTATIVE STUDY. 癌症史和性别在主要医疗保险转型中的作用:一项具有全国代表性的纵向研究。
Pub Date : 2018-09-01 DOI: 10.1108/S0275-495920180000036003
Katherine S Virgo, Chun Chieh Lin, Amy Davidoff, Gery P Guy, Janet S de Moor, Donatus U Ekwueme, Erin E Kent, Neetu Chawla, K Robin Yabroff

Purpose –: To examine associations by gender between cancer history and major health insurance transitions (gains and losses), and relationships between insurance transitions and access to care.

Methodology –: Longitudinal 2008-2013 Medical Expenditure Panel Survey data pooled yielding 2,223 cancer survivors and 50,692 individuals with no cancer history ages 18-63 years upon survey entry, with gender-specific sub-analyses. Access-to-care implications of insurance loss or gain were compared by cancer history and gender.

Findings –: Initially uninsured cancer survivors were significantly more likely to gain insurance coverage than individuals with no cancer history (RR: 1.25; 95% CI: 1.08-1.44). Females in particular were significantly more likely to gain insurance (unmarried RR: 1.16; 95% CI: 1.06-1.28; married RR: 1.09; 95% CI: 1.02-1.16). Significantly higher rates of difficulty accessing needed medical care and prescription medications were reported by those remaining uninsured, those who lost insurance, and women in general. Remaining uninsured, losing insurance, and male gender were associated with lack of a usual source of care.

Research implications –: Additional outreach to disadvantaged populations is needed to improve access to affordable insurance and medical care. Future longitudinal studies should assess whether major Affordable Care Act (ACA) provisions enacted after the 2008-2013 study period (or those of ACA's replacement) are addressing these important issues.

Originality –: Loss of health insurance coverage can reduce health care access resulting in poor health outcomes. Cancer survivors may be particularly at risk of insurance coverage gaps due to the long-term chronic disease trajectory. This study is novel in exploring associations between cancer history by gender and health insurance transitions, both gains and losses, in a national non-elderly adult sample.

目的:按性别研究癌症病史与主要医疗保险过渡(收益和损失)之间的关系,以及保险过渡与获得护理之间的关系。方法——2008-2013年医疗支出小组纵向调查数据汇总,得出2223名癌症幸存者和50692名无癌症病史的个体,年龄在18-63岁之间,并进行性别特异性亚分析。根据癌症病史和性别比较了保险损失或收益对获得信用卡的影响。研究结果-:与没有癌症病史的人相比,最初没有保险的癌症幸存者获得保险的可能性更大(RR:1.25;95%CI:1.08-1.44)。尤其是女性更容易获得保险(未婚RR:1.16;95%CI:1.06-1.28;已婚RR:1.09;95%CI:0.02--1.16)。获得所需医疗护理的困难率显著更高处方药是由那些没有保险的人、那些失去保险的人和一般女性报告的。没有保险、失去保险和男性与缺乏通常的护理来源有关。研究意义——需要向弱势群体提供更多的服务,以改善获得负担得起的保险和医疗服务的机会。未来的纵向研究应评估2008-2013年研究期后颁布的《平价医疗法案》(ACA)主要条款(或ACA的替代条款)是否解决了这些重要问题。独创性——失去医疗保险可能会减少获得医疗保健的机会,导致健康状况不佳。由于长期慢性病的发展轨迹,癌症幸存者可能特别面临保险覆盖缺口的风险。这项研究在全国非老年成年人样本中探索癌症性别史与健康保险转变(包括收益和损失)之间的关联是新颖的。
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引用次数: 0
Nativity, Race-Ethnicity, and Dual Diagnosis among US Adults. 美国成年人的出生、种族和双重诊断。
Magdalena Szaflarski, Shawn Bauldry, Lisa A Cubbins, Karthikeyan Meganathan

Purpose: This study investigated disparities in dual diagnosis (comorbid substance-use and depressive/anxiety disorders) among US adults by nativity and racial-ethnic origin and socioeconomic, cultural, and psychosocial factors that may account for the observed disparities.

Design/methodology: The study drew on data from two waves of the National Epidemiological Survey on Alcohol and Related Conditions. Racial-ethnic categories included African, Asian/Pacific Islander, European, Mexican, Puerto Rican, and other Hispanic/Latino. Substance-use and depressive/anxiety disorders were assessed per DSM-IV. A four-category measure of comorbidity was constructed: no substance-use or psychiatric disorder; substance-use disorder only; depressive/anxiety disorder only; and, dual diagnosis. The data were analyzed using multinomial logistic regression.

Findings: The prevalence of dual diagnosis was low but varied by nativity, with the highest rates among Europeans and Puerto-Ricans born in US states, and the lowest among Mexicans and Asians/Pacific Islanders. The nativity and racial-ethnic effects on likelihood of having dual diagnosis remained significant after all adjustments.

Research limitations: The limitations included measures of immigrant status, race-ethnicity, and stress and potential misdiagnosis of mental disorder among ethnic minorities.

Practical and social implications: This new knowledge will help to guide public health and health care interventions addressing immigrant mental and behavioral health gaps.

Originality/value: This study addressed the research gap in regard to the prevalence and correlates of dual diagnosis among immigrants and racial-ethnic minorities. The study used the most current and comprehensive data addressing psychiatric conditions among US adults and examined factors rarely captured in epidemiologic surveys (e.g., acculturation).

目的:本研究调查了美国成年人在双重诊断(共病药物使用和抑郁/焦虑障碍)方面的差异,这些差异可能是由出生、种族和民族血统以及社会经济、文化和社会心理因素造成的。设计/方法:该研究利用了全国酒精及相关疾病流行病学调查的两波数据。种族-民族类别包括非洲人、亚洲/太平洋岛民、欧洲人、墨西哥人、波多黎各人和其他西班牙裔/拉丁裔人。根据DSM-IV对物质使用和抑郁/焦虑障碍进行评估。共病分为四类:无物质使用或精神障碍;仅限物质使用障碍;仅限抑郁/焦虑症;双重诊断。数据采用多项逻辑回归分析。研究结果:双重诊断的患病率较低,但因出生地而异,在美国各州出生的欧洲人和波多黎各人中发病率最高,在墨西哥人和亚洲人/太平洋岛民中发病率最低。在所有调整后,出生和种族-民族对双重诊断可能性的影响仍然显著。研究局限:局限包括对移民身份、种族、压力和少数民族精神障碍的潜在误诊的测量。实际和社会影响:这一新知识将有助于指导解决移民心理和行为健康差距的公共卫生和卫生保健干预措施。独创性/价值:本研究解决了关于移民和少数民族双重诊断的患病率及其相关性的研究差距。该研究使用了美国成年人中最新和最全面的精神疾病数据,并检查了流行病学调查中很少捕获的因素(例如,文化适应)。
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引用次数: 0
Nativity, Race-Ethnicity, and Dual Diagnosis among US Adults. 美国成年人的出生、种族和双重诊断。
Pub Date : 2017-01-01 DOI: 10.1108/S0275-495920170000035009
M. Szaflarski, Shawn Bauldry, L. Cubbins, K. Meganathan
Purpose This study investigated disparities in dual diagnosis (comorbid substance-use and depressive/anxiety disorders) among US adults by nativity and racial-ethnic origin and socioeconomic, cultural, and psychosocial factors that may account for the observed disparities. Design/methodology The study drew on data from two waves of the National Epidemiological Survey on Alcohol and Related Conditions. Racial-ethnic categories included African, Asian/Pacific Islander, European, Mexican, Puerto Rican, and other Hispanic/Latino. Substance-use and depressive/anxiety disorders were assessed per DSM-IV. A four-category measure of comorbidity was constructed: no substance-use or psychiatric disorder; substance-use disorder only; depressive/anxiety disorder only; and, dual diagnosis. The data were analyzed using multinomial logistic regression. Findings The prevalence of dual diagnosis was low but varied by nativity, with the highest rates among Europeans and Puerto-Ricans born in US states, and the lowest among Mexicans and Asians/Pacific Islanders. The nativity and racial-ethnic effects on likelihood of having dual diagnosis remained significant after all adjustments. Research limitations The limitations included measures of immigrant status, race-ethnicity, and stress and potential misdiagnosis of mental disorder among ethnic minorities. Practical and Social Implications This new knowledge will help to guide public health and health care interventions addressing immigrant mental and behavioral health gaps. Originality/value This study addressed the research gap in regard to the prevalence and correlates of dual diagnosis among immigrants and racial-ethnic minorities. The study used the most current and comprehensive data addressing psychiatric conditions among US adults and examined factors rarely captured in epidemiologic surveys (e.g., acculturation).
目的:本研究调查了美国成年人在双重诊断(共病药物使用和抑郁/焦虑障碍)方面的差异,这些差异可能是由出生、种族和民族血统以及社会经济、文化和社会心理因素造成的。设计/方法:该研究利用了全国酒精及相关疾病流行病学调查的两波数据。种族-民族类别包括非洲人、亚洲/太平洋岛民、欧洲人、墨西哥人、波多黎各人和其他西班牙裔/拉丁裔人。根据DSM-IV对物质使用和抑郁/焦虑障碍进行评估。共病分为四类:无物质使用或精神障碍;仅限物质使用障碍;仅限抑郁/焦虑症;双重诊断。数据采用多项逻辑回归分析。研究发现双重诊断的患病率较低,但因出生地而异,在美国各州出生的欧洲人和波多黎各人中发病率最高,在墨西哥人和亚洲/太平洋岛民中发病率最低。在所有调整后,出生和种族-民族对双重诊断可能性的影响仍然显著。研究的局限包括对移民身份、种族、压力和少数民族精神障碍的潜在误诊的测量。实践和社会意义这一新知识将有助于指导公共卫生和卫生保健干预措施,解决移民心理和行为健康差距。原创性/价值本研究弥补了关于移民和少数民族双重诊断的患病率及其相关因素的研究空白。该研究使用了美国成年人中最新和最全面的精神疾病数据,并检查了流行病学调查中很少捕获的因素(例如,文化适应)。
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引用次数: 3
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