A. Rani, S. Prabhu, Thirumoorthy Ammapattian, Janaki Trichy, Sojan Antony
Background and Purpose: Schizophrenia is a chronic and severe mental disorder which impacts a person’s ability to successfully function in the community. When it interacts with structural and situational stress like poverty, homelessness and unemployment, it can lead to negative experiences and makes a person vulnerable to abuse or even develop resilience or retaining a meaningful life within the limitation of the disorder. The study aims to understand how individuals diagnosed with schizophrenia define and evaluate their experience of living in the community; personal and environmental strengths, impact of illness on their personal and social life, the challenges and barriers they meet in their day to day life and how they overcome those challenges. Methods: The study focuses on lived experiences and deriving meaning from those experiences from a service user perspective. Therefore, Hermeneutic phenomenological approach will be used. In-depth interviews will be conducted over the course of four months to elicit client’s narratives of their experiences. The interviews are transcribed, read and coded to cluster thematic aspects in each case by using ATLAS.ti.v.7. Data will be collected till saturation point is reached and participants are from various age-group, socio-economic status, ethnicity and educational background, living in the Community. Implication: Participants’ stories would narrate sources of strength, process of normalization, describing instances of discrimination, social and structural factors which they encounter affecting their help-seeking behaviour and how these factors act as facilitator and barriers in their day to day life. Findings would suggest the need for advocacy services which are discussed through recommendations and suggestions.
{"title":"Lived Experiences of Persons with Chronic Schizophrenia Living in the Community","authors":"A. Rani, S. Prabhu, Thirumoorthy Ammapattian, Janaki Trichy, Sojan Antony","doi":"10.7565/ssp.2019.2656","DOIUrl":"https://doi.org/10.7565/ssp.2019.2656","url":null,"abstract":"Background and Purpose: Schizophrenia is a chronic and severe mental disorder which impacts a person’s ability to successfully function in the community. When it interacts with structural and situational stress like poverty, homelessness and unemployment, it can lead to negative experiences and makes a person vulnerable to abuse or even develop resilience or retaining a meaningful life within the limitation of the disorder. The study aims to understand how individuals diagnosed with schizophrenia define and evaluate their experience of living in the community; personal and environmental strengths, impact of illness on their personal and social life, the challenges and barriers they meet in their day to day life and how they overcome those challenges. Methods: The study focuses on lived experiences and deriving meaning from those experiences from a service user perspective. Therefore, Hermeneutic phenomenological approach will be used. In-depth interviews will be conducted over the course of four months to elicit client’s narratives of their experiences. The interviews are transcribed, read and coded to cluster thematic aspects in each case by using ATLAS.ti.v.7. Data will be collected till saturation point is reached and participants are from various age-group, socio-economic status, ethnicity and educational background, living in the Community. Implication: Participants’ stories would narrate sources of strength, process of normalization, describing instances of discrimination, social and structural factors which they encounter affecting their help-seeking behaviour and how these factors act as facilitator and barriers in their day to day life. Findings would suggest the need for advocacy services which are discussed through recommendations and suggestions.","PeriodicalId":74825,"journal":{"name":"Social science protocols","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-09-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46595476","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Nidhi Wali, B. Akombi, P. James, E. Waterton, H. Saul, Anyier Yuol, A. Renzaho
This systematic review aims to understand the impact of heritage tourism on sustainable community development, including the health and wellbeing of local host communities. The protocol is guided by the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Protocols (PRISMA-P) guidelines. It highlights the scope and methodology for the systematic review to be conducted. Studies will be included if they: (i) were conducted in English; (ii) were published between January 2000 and December 2018; (iii) used quantitative and/or qualitative methods; and (iv) analysed the impact of heritage tourism on sustainable community development and/or the health of local host communities. Data extraction will be informed by Cochrane Collaboration. The quality of evidence of the studies included will be assessed using validated tools. Findings will be summarised into themes and narrated. The systematic review will establish the impact of heritage tourism on sustainable community development including health and well-being. It also aims provide a theoretical framework which will inform recommendations to improve the life-worlds of local host communities and moderate any tensions between the expanding heritage reach of states and the maintenance of customary and traditional value systems, community governance structures, and associated community development and health benefits.
{"title":"The Impact of Heritage Tourism on Sustainable Community Development, Health and Wellbeing","authors":"Nidhi Wali, B. Akombi, P. James, E. Waterton, H. Saul, Anyier Yuol, A. Renzaho","doi":"10.7565/SSSP.2019.2655","DOIUrl":"https://doi.org/10.7565/SSSP.2019.2655","url":null,"abstract":"This systematic review aims to understand the impact of heritage tourism on sustainable community development, including the health and wellbeing of local host communities. The protocol is guided by the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Protocols (PRISMA-P) guidelines. It highlights the scope and methodology for the systematic review to be conducted. Studies will be included if they: (i) were conducted in English; (ii) were published between January 2000 and December 2018; (iii) used quantitative and/or qualitative methods; and (iv) analysed the impact of heritage tourism on sustainable community development and/or the health of local host communities. Data extraction will be informed by Cochrane Collaboration. The quality of evidence of the studies included will be assessed using validated tools. Findings will be summarised into themes and narrated. The systematic review will establish the impact of heritage tourism on sustainable community development including health and well-being. It also aims provide a theoretical framework which will inform recommendations to improve the life-worlds of local host communities and moderate any tensions between the expanding heritage reach of states and the maintenance of customary and traditional value systems, community governance structures, and associated community development and health benefits.","PeriodicalId":74825,"journal":{"name":"Social science protocols","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-08-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43103204","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Background: American Muslims tend to hold more negative attitudes towards organ donation than other American populations, and these attitudes are contributed to by gaps in biomedical and religious knowledge. As a result, there is significant need for religiously-tailored health education on organ donation within this community. Thus our study sought to test the effectiveness of a mosque-based, religiously-tailored health education program that addressed biomedical and religious knowledge gaps regarding living organ donation amongst Muslim Americans. Methods: A randomized, controlled, cross-over trial of religiously-tailored educational workshops held at four mosques in Washington D.C. and Chicagoland. Mosques are randomized into early and late intervention arms and participants are recruited at worship services and other mosque events. The primary study outcomes are changes in biomedical and religious knowledge regarding living organ donation. Secondary outcomes include change in procedural knowledge about the process and types of living organ donation, beliefs regarding organ donation, and religious knowledge regarding end-of-life care. Funding and Ethics: This study is supported by a grant from the U.S. Human Services Health Resources and Services Administration and received ethics approval from the University of Chicago’s Biological Sciences Division Institutional Review Board.
{"title":"Study Protocol for ‘Informing American Muslims about Organ Donation (I AM a LD)’","authors":"A. Padela, R. Duivenbode, M. Quinn, M. Saunders","doi":"10.7565/SSP.2019.2654","DOIUrl":"https://doi.org/10.7565/SSP.2019.2654","url":null,"abstract":"Background: American Muslims tend to hold more negative attitudes towards organ donation than other American populations, and these attitudes are contributed to by gaps in biomedical and religious knowledge. As a result, there is significant need for religiously-tailored health education on organ donation within this community. Thus our study sought to test the effectiveness of a mosque-based, religiously-tailored health education program that addressed biomedical and religious knowledge gaps regarding living organ donation amongst Muslim Americans. \u0000Methods: A randomized, controlled, cross-over trial of religiously-tailored educational workshops held at four mosques in Washington D.C. and Chicagoland. Mosques are randomized into early and late intervention arms and participants are recruited at worship services and other mosque events. The primary study outcomes are changes in biomedical and religious knowledge regarding living organ donation. Secondary outcomes include change in procedural knowledge about the process and types of living organ donation, beliefs regarding organ donation, and religious knowledge regarding end-of-life care. \u0000Funding and Ethics: This study is supported by a grant from the U.S. Human Services Health Resources and Services Administration and received ethics approval from the University of Chicago’s Biological Sciences Division Institutional Review Board.","PeriodicalId":74825,"journal":{"name":"Social science protocols","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-08-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43383586","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Global challenges research brings with it the challenge of integrating diverse cultural and disciplinary perspectives in the service of addressing persistent and complex problems. In fragile and resource poor contexts this also brings with it a swathe of operational, legal and logistic challenges which can generate ethical conflicts. A scoping review is needed to identify key issues of research ethics and integrity, as well as strategies that have been brought to bear in an effort to resolve them. This protocol followed Prisma guidelines for Scoping Reviews (Prisma-ScR) and provides details of the review scope and parameters.
{"title":"Key Issues of Research Ethics and Integrity in Global Challenges Research","authors":"Cristóbal Guerra, Matilda Anderson, Corinne Reid","doi":"10.7565/SSP.2019.2653","DOIUrl":"https://doi.org/10.7565/SSP.2019.2653","url":null,"abstract":"Global challenges research brings with it the challenge of integrating diverse cultural and disciplinary perspectives in the service of addressing persistent and complex problems. In fragile and resource poor contexts this also brings with it a swathe of operational, legal and logistic challenges which can generate ethical conflicts. A scoping review is needed to identify key issues of research ethics and integrity, as well as strategies that have been brought to bear in an effort to resolve them. This protocol followed Prisma guidelines for Scoping Reviews (Prisma-ScR) and provides details of the review scope and parameters.","PeriodicalId":74825,"journal":{"name":"Social science protocols","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-08-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47322950","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Vincenzo Bollettino, Allyson Brown Kenney, Sarah Schwartz, G. Burnham
Leadership skills are essential to addressing today’s humanitarian challenges. While leadership training programs abound in the private sector and within the military, the same is not true for the humanitarian field. International donors have recognized this gap and have recently invested in formal leadership training programs for aid workers. This paper presents a protocol to evaluate the effectiveness of the National NGO Program on Humanitarian Leadership, a leadership training course targeted to humanitarians working for national non-governmental organizations (NGOs) worldwide. The protocol establishes a model for evaluating the impact of NNPHL participants’ ability to make decisions about complex challenges in a manner that is consistent with a core set of leadership competencies introduced in the course. The evaluation consists of scenario-based vignettes that the participants answer in order to assess their leadership competencies through a series of illustrative indicators. This paper also includes a discussion of the definition of leadership, both broadly and through the NNPHL course, and the study’s strengths and limitations along with avenues for future research.
{"title":"Humanitarian Leadership","authors":"Vincenzo Bollettino, Allyson Brown Kenney, Sarah Schwartz, G. Burnham","doi":"10.7565/ssp.2019.2652","DOIUrl":"https://doi.org/10.7565/ssp.2019.2652","url":null,"abstract":"Leadership skills are essential to addressing today’s humanitarian challenges. While leadership training programs abound in the private sector and within the military, the same is not true for the humanitarian field. International donors have recognized this gap and have recently invested in formal leadership training programs for aid workers. This paper presents a protocol to evaluate the effectiveness of the National NGO Program on Humanitarian Leadership, a leadership training course targeted to humanitarians working for national non-governmental organizations (NGOs) worldwide. The protocol establishes a model for evaluating the impact of NNPHL participants’ ability to make decisions about complex challenges in a manner that is consistent with a core set of leadership competencies introduced in the course. The evaluation consists of scenario-based vignettes that the participants answer in order to assess their leadership competencies through a series of illustrative indicators. This paper also includes a discussion of the definition of leadership, both broadly and through the NNPHL course, and the study’s strengths and limitations along with avenues for future research. ","PeriodicalId":74825,"journal":{"name":"Social science protocols","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-07-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43453553","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Children’s readiness for school is often threatened by the occurrence of both externalising (EP) and internalising (IP) problems. In search for solutions, research has shown that School-Wide Positive Behaviour Support (SWPBS) is particularly effective for fostering children’s behavioural skills and reducing EP. However, whether SWPBS can enhance children’s emotional skills and reduce IP is less clear. Therefore, TIME-IN was developed, which extends SWPBS by also including emotional support systems. It will be tested whether TIME-IN is effective for (a) improving emotion regulation (ER) and (b) reducing depressive symptoms. Furthermore, it will be tentatively explored whether TIME-IN is accompanied by more than natural fluctuations in both children’s EP and IP. The effectiveness of TIME-IN will be evaluated in a non-randomized study, in which an intervention group will be compared with a matched control group. Both research questions will be addressed in a sample consisting of children between 8 and 12 years of age with special educational needs (SEN), who have been argued to benefit most from school readiness interventions. Questionnaires for teachers, children, and their parents will be administered at the beginning (T0) and the end of the school year (T1) using multi-informant assessment. Practical implications, strengths, and limitations were discussed. ISCRTN registry 54456609.Registered on 28 March 2017. Ethical requirements were fulfilled.
{"title":"Extending School-Wide Positive Behavior Support (SWPBS) with Emotional Support Systems: A Non-Randomized Study Testing the Effectiveness of a School-Wide Health Care Policy TIME-IN in Special Education","authors":"Henk Weymeis, K. Van Leeuwen, C. Braet","doi":"10.7565/SSP.2019.2651","DOIUrl":"https://doi.org/10.7565/SSP.2019.2651","url":null,"abstract":"Children’s readiness for school is often threatened by the occurrence of both externalising (EP) and internalising (IP) problems. In search for solutions, research has shown that School-Wide Positive Behaviour Support (SWPBS) is particularly effective for fostering children’s behavioural skills and reducing EP. However, whether SWPBS can enhance children’s emotional skills and reduce IP is less clear. Therefore, TIME-IN was developed, which extends SWPBS by also including emotional support systems. It will be tested whether TIME-IN is effective for (a) improving emotion regulation (ER) and (b) reducing depressive symptoms. Furthermore, it will be tentatively explored whether TIME-IN is accompanied by more than natural fluctuations in both children’s EP and IP. The effectiveness of TIME-IN will be evaluated in a non-randomized study, in which an intervention group will be compared with a matched control group. Both research questions will be addressed in a sample consisting of children between 8 and 12 years of age with special educational needs (SEN), who have been argued to benefit most from school readiness interventions. Questionnaires for teachers, children, and their parents will be administered at the beginning (T0) and the end of the school year (T1) using multi-informant assessment. Practical implications, strengths, and limitations were discussed. ISCRTN registry 54456609.Registered on 28 March 2017. Ethical requirements were fulfilled.","PeriodicalId":74825,"journal":{"name":"Social science protocols","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44558816","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
G. Stevens, Nidhi Wali, Nichole Georgeou, Z. Tadjoeddin
The rising number of natural disasters and emergent conflicts that require coordinated international response has re-focused attention on linking relief, rehabilitation and development (LRRD). This systematic review protocol aims to inform a systematic review to identify primary operational strategies employed to link humanitarian and development interventions. This protocol is guided by Preferred Reporting Items for Systematic Reviews and Meta-Analyses Protocols (PRISMA) guidelines and details the review scope and parameters. Findings from this review can contribute to articulation of an integrated LRRD practice framework and its potential application to resilience and related policy instruments.
{"title":"Understanding the Relationship BetweenHumanitarian and Development Interventions: A Mixed-Methods Systematic Review Protocol","authors":"G. Stevens, Nidhi Wali, Nichole Georgeou, Z. Tadjoeddin","doi":"10.7565/SSP.2018.2649","DOIUrl":"https://doi.org/10.7565/SSP.2018.2649","url":null,"abstract":"The rising number of natural disasters and emergent conflicts that require coordinated international response has re-focused attention on linking relief, rehabilitation and development (LRRD). This systematic review protocol aims to inform a systematic review to identify primary operational strategies employed to link humanitarian and development interventions. This protocol is guided by Preferred Reporting Items for Systematic Reviews and Meta-Analyses Protocols (PRISMA) guidelines and details the review scope and parameters. Findings from this review can contribute to articulation of an integrated LRRD practice framework and its potential application to resilience and related policy instruments.","PeriodicalId":74825,"journal":{"name":"Social science protocols","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2018-12-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46615159","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Emily Newman, E. Quayle, Laura A. Cariola, Karen Cooper, Nikolaos Koukopoulos, K. Beier, T. Squire, R. Wortley
BACKGROUND: Evidence indicates that the viewing of indecent images of children (IIOC) has increased due to the emergence of, and increased access to, the Internet. Over the last 20 years there has been a high level of collaboration between various stakeholders to prevent and restrict access to IIOC. Nevertheless, there is no comprehensive review of these approaches or their effect as deterrents to viewing IIOC. METHODS/DESIGN: This paper presents a protocol for a meta narrative review of the deterrents to viewing indecent images of children (IIOC) online. The meta narrative review methodology allows researchers to systematically identify and review different understandings, or narratives, of a subject across a range of disciplines, with the aim of synthesising this diverse literature and providing recommendations to researchers, practitioners and policymakers. We outline the authors’ approach to the review, focusing on six methodological steps: planning the review scope, questions and outputs, systematic searching of academic and grey literature, mapping the identified articles according to disciplines and their narratives, appraising the evidence within narratives, then synthesising the conceptualisations and evidence from the different disciplines to generate overarching narratives and recommendations to stakeholders. DISCUSSION: The discussion considers the anticipated benefits and challenges of conducting the review, and makes recommendations for other researchers embarking on this type of review.
{"title":"Deterrents to Viewing Indecent Images of Children Online: A Protocol for a Meta-Narrative Review","authors":"Emily Newman, E. Quayle, Laura A. Cariola, Karen Cooper, Nikolaos Koukopoulos, K. Beier, T. Squire, R. Wortley","doi":"10.7565/SSP.2018.2648","DOIUrl":"https://doi.org/10.7565/SSP.2018.2648","url":null,"abstract":"BACKGROUND: Evidence indicates that the viewing of indecent images of children (IIOC) has increased due to the emergence of, and increased access to, the Internet. Over the last 20 years there has been a high level of collaboration between various stakeholders to prevent and restrict access to IIOC. Nevertheless, there is no comprehensive review of these approaches or their effect as deterrents to viewing IIOC. \u0000 \u0000METHODS/DESIGN: This paper presents a protocol for a meta narrative review of the deterrents to viewing indecent images of children (IIOC) online. The meta narrative review methodology allows researchers to systematically identify and review different understandings, or narratives, of a subject across a range of disciplines, with the aim of synthesising this diverse literature and providing recommendations to researchers, practitioners and policymakers. We outline the authors’ approach to the review, focusing on six methodological steps: planning the review scope, questions and outputs, systematic searching of academic and grey literature, mapping the identified articles according to disciplines and their narratives, appraising the evidence within narratives, then synthesising the conceptualisations and evidence from the different disciplines to generate overarching narratives and recommendations to stakeholders. \u0000 \u0000DISCUSSION: The discussion considers the anticipated benefits and challenges of conducting the review, and makes recommendations for other researchers embarking on this type of review.","PeriodicalId":74825,"journal":{"name":"Social science protocols","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2018-09-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44577716","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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